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I'm 50 yrs. old. I've had CMT since birth I have AFO on both legs. I live in

North West Florida on the beach. I have never met anyone out side my family with

CMT. They may say it common but I sure haven't found a bunch of people with it.

The older I get the harder it is to keep working some days are better than

others, just as most of you do I keep going, people stare a lot and make

comments about the way I walk. Our disease is not one that stands out. If any of

you are from this area let me know.

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