Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 Don't wait that long. Go to the ER if you can't get in to see your Doctor. Don't wait. You need to breathe, nothing else matters more than that. I know, I have difficulties too and I know what it is like when you can't breathe. Get there today, please. Sincerely, Colletti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 , Breathing problems are considered emergencies and are not scheduled as a routine visit. Your rheumy should get you in TODAY. Did you explain to them that you are having trouble breathing? If your rheumy won¹t see you, maybe a trip to ER is necessary to find out what is going on. Have you had a cold or respiratory infection of some kind? a > > Hi everyone, I'm wondering if anyone in this group has problems with > breathing due to RA or one of the other autoimmune diseases. I have been > doing some reasearch on this since it looks like that is a new problem I am > now dealing with. I am wondering what medications your doctor has given you > for this. I am trying to get ahold of my doctor so I can get in and see him, > but he doesn't have any openings until April 21. I don't know that I want > to wait that long. > > P > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 , I have had pleurisy a couple times since dx .Also I have allergies and if I dont keep them under control I will go to serious allergic asthma and or bronchitis. None of these are anything to fool with with an already skewd immune system...Pls get to a dr today or asap....Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 I'm not sure what sort of breathing problems you are having, , but I hope you will listen to the others who told you not to wait. April 21st is way too long! BTW, have you had your eye appointment yet? Thought I forgot, didn't you? [ ] breathing problems > > Hi everyone, > I'm wondering if anyone in this group has problems with breathing due to RA or one of the other autoimmune diseases. I have been doing some reasearch on this since it looks like that is a new problem I am now dealing with. I am wondering what medications your doctor has given you for this. I am trying to get ahold of my doctor so I can get in and see him, but he doesn't have any openings until April 21. I don't know that I want to wait that long. > > P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 , So glad you went and got checked. You can¹t be to careful when it comes to your lungs. I wish you had gotten answers but at least they are investigating it. Hope all is well with you. a > > Hi all, > I went to the walk-in clinic after work today. At this point they have > scheduled me for some breathing tests and then I see my rheumatoligist and > regular doctor next week. The doctor at the walk-in clinic does not think it > is RA related. She thinks it is asthma (my regular doctor didn't think so > when I talked to him about it.) I will let you know how things go. > > P > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Donna, Lovely to hear from you again. The builders have just started work on our house and they expect to be here for appx 3 months so you can appreciate how stressed I am. I am currently seeing a speech therapist at St ', she is helping me with breathing techniques as I tend to panic at night when I wake and cannot get my breath. I have been diagnosed with bi-lateral vocal cord paralysis which explains the difficulties I have been experiencing. Last Thursday I went to see an ENT doctor and asked if it can deteriorate any more and was informed ' it's as bad as it can get' (what a nice birthday present that was!). He has discussed surgery on my vocal cords but that will affect my voice and they cannot say how much and it could also lead to me choking as the food could then go down the wrong tube. We also discussed a tracheoctomy but as you can imagine it is not the route I want to go down at my age. After lots of tears and sleepless nights I have decided to continue as I am but have asked if I can try a breathing machine to help me at night. The speech therapist did not think that this is possible but the ENT doc didn't see a problem so I am waiting to see Dr Hart in December unless I can get an earlier appt. I have been told that I should carry a letter with me at all times as this condition can be life threatening. As the cords are so close together and do not move apart to allow me to breathe the speech therapist feels I should take extreme care to avoid catching a cold as this would obviously cause problems. I phoned my doctor to ask for a flu jab and was told I will have to wait until end of Nov and I may have to pay for it! I asked my neurologist to refer me to see but I am still waiting to hear from him. Will let you know when I hear. Take care Donna, from miserable and cloudy Kent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 I just took these tests at the pulmonary clinic, BSA 1.73, The FVC, FEV1,FEV1/FVC ratio and FEF25 IS 75% REDUCED indicating airway obstruction. The inspiratory flow rates are reduced. The MVV is reduced. The FVC is reduced relative to the SVC indicating air trapping.The total lung capacity is increased indicating overinflation. Conclusions: Severe airway obsrtuction, overinflation. Severe Obstructive Airways Disease 2/6/07 I believe mine were over the muscle I had them 20 years, But I was lied to as to the type so I am not positive. Terri P --- In , " straubtina " <straubtina@...> wrote: > > Will some of you please request that your physician take a spirometer > test to determine if you are hyperinflated and report the numbers to > me please?? I have tables that determine what your oxygen levels > should be based on your age and sex. I especially want the numbers > from those of you who have implants under your pec muscles. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 What is a spirometer? . . .One of those red-light things they put on your finger during surgery? Rogene straubtina <straubtina@...> wrote: Will some of you please request that your physician take a spirometer test to determine if you are hyperinflated and report the numbers to me please?? I have tables that determine what your oxygen levels should be based on your age and sex. I especially want the numbers from those of you who have implants under your pec muscles. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi, My chest feels tight, my heart flutters some times and I find that I get short of breath even when sitting down, it may seem silly but I am more concious of my breathing these day where as before I never gave it a thought I never noticed. I thought I may be comming down with a chest infection but I have now been feeling like this for months. Do you think that it may be part of CMT or may it be asthma. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Yes, breathing problems can be CMT related. Look in our Files section under 'Breathing', also search our Archives for the many past posts on this subject. Research has shown that CMT can cause heart problems can be too. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 I also have breathing problems and heart flutters. It definitely is caused by CMT. Enjoy the day! Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Ditto, to Kay's comments. I too have breathing problems and heart flutters. Tammy - I also get the same throat tightness that you describe, primarily when overdoing things, but stress too. Went to the ER the first time, before I understood it was CMT and I just needed to rest. Muscles get too tired and it's much harder to get air. Also, I had a CMT family member who had a piece of food get stuck in his throat when traveling. He went to ER. Took muscle relaxants, everything loosened up and the food passed. So...it sounds like what you are experiencing is definitely CMT related and common with many of us. You undertook a very stressful event. It's certainly understandable that your muscles reacted. You may want to keep muscle relaxants with you, especially when you travel. And...congratulations on your new addition!!! Quote Link to comment Share on other sites More sharing options...
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