90 Thousand USA CMT people

October 5, 2006

Dear ers,

Later this week, the U.S. Census Data Bank will release their new

figure stating that 330 million people now live in the USA. I have

been wondering for so long how many people in the US have CMT.

Dr. Greg , CMT expert, provided me with an academic research

paper from 1991 that gave a figure whereas 1 out of 3,300 people are

affected with CMT. This is the same figure Mayo clinic uses.

I contacted two other organizations and both reported it is 1 in 2500

who are affected. One organization gave me no research data to back

that up. The response was simply " this is the number we use given by

our Medical Advisors " . The second organization replied with that same

number, but didn't even say where they derive that number - they just

sent the number.

With the trust that I have for Dr. and the CMT experts and

academics at Mayo, I decided to use the 1991 academic report on CMT

populations and then with this new USA Census figure, see how many

people have CMT in the USA. (Obviously there is no way to

actually 'count heads' - many with CMT do not know they have it.

Also, as we know, people are often misdiagnosed with a 'form of MD or

MS', ad infinitium)

OK, now we have a good figure for the CMT population in the USA.

Ready for this?

That is 90,909 - get that? Ninety thousand, nine hundred and nine

people have CMT in the USA!

My next plan is to break down the new Census information by State,

Counties and major cities. Remember, you heard it first at .

I have been asked to write an in-depth article about CMT and will be

including this information. Soon as I find my link to the 1991

report, I'll post that for your information. If you use any of the above

information in your support groups, individual newspaper articles, posts on

forums, info for your doctors, wherever, please respect my project and credit

. Thank you.

~ Gretchen

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