Re: Braces or surgery

[Guest guest]

Hello ,

took Cody back to the dr. Monday and he said that EMG looked good but it could

be that they have caught it too soon. They will redo in 6 months. The dr. wanted

to break both his heels and across both the tops of his feet because they are so

bad.

We are worried and he has an appointment at 9:10 Monday morning

at boot and brace. We are trying the braces for 6 months first and

then we will reavaluate to see how he is doing. His feet was a 3 1/2

last year and this year he wears a 2 1/2.

I am praying that the braces will help because I could not imagine them breaking

both his heels and the tops of his feet.

My husband told the dr. that he doesn't want him getting arthritis but the dr.

said he will have it either way because of the way his feet are growing. We will

just keep taking it one step at a time. Thanks for all your help.

Buffy

[Guest guest]

Hello,

I have CMT type 2. I just wanted to reply and say I had that very same thing

(sort of) done in 85 and 86. I too wore braces for a while before I had surgery

on both feet, I had very high arches.

I had a tripple arthrodesis and tendon transfer with great success. They broke

my foot (well both of them) across the top and refused them then took a tendon

from the inside of my foot to the outside of my foot. I won't lie, it was

painful, but the rewards for me were worth it. I would do it again. I still have

the internal staples, but I don't even know they're there.

I am now 36 and AFO free.

[Guest guest]

Buffy,

I had surgery about 12 years ago and it worked out wonderfully. However, my foot

began to have problems as of late. I went back to the surgeon and he said that

although the surgery was a success, that CMT continues to advance. Because of

this he said that he recommends that he go back in and " make adjustments " .

I have to say that after the surgery the foot had no problems and I didn't need

any AFOs, only now am I checking to find out about them. I loved the surgery and

highly recommend it. I would deffinatly have the " adjustment " . However, I am no

longer on Medicare and a Social Security income which allowed me the 8 weeks of

recovery time (it was a major surgery). Some people gotta work fer a livin' heh.

If you have the time and income or insurance for the surgery, I personally would

do it. However (don't you love those), I will tell you that it is painfull and

you are on your back (out of necessiy) for at least 2 weeks of your recovery

time. After the recovery time though, and when it has fully healed, no problem.

[Guest guest]

Hi Buffy,

The surgery may really help your son then. My son had to have it done at 14 & 15

to bring his foot to a weight baring position. His bones were very soft. The

doctors report said he was able to cut through them without much effort. I never

knew CMT deformity could actually create soft bones, but it does.

[Guest guest]

hey i have had the surgery. i had it 3 yrs ago. it really helped me. i

still where my braces also when i sleep and lounge around. so yea i

like both.