Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 For sandwiches, I also like Dijonaise. I find mustard alone to be too strong, mayo to be too fattening, but that seems to be a good combo and you only need a tiny bit for flavoring. > > > For sandwiches or bread you can use any healthy spread you want if you go > easy on it - peanut butter, olive oil, butter spray, heart healthy spread, > light mayo. Personally, I prefer to use a tiny bit of the real thing rather > than fat free fake stuff but I know plenty of people prefer light > everything. On BFL you can use condiments like salad dressing, barbecue > sauce, jam, ketchup, mustard, margarine. Just check labels. Make sure > you're > being smart about it and not absentmindedly adding hundreds of extra > calories to each meal. :-) > > Bananas are big and calorie/carb dense fruits. They're probably not a top > recommendation for that reason but you can certainly eat them. The > authorized foods list is a starting point. You can't go wrong following it > strictly but you can also be very successful allowing some flexibility. No > " unauthorized " fruit or vegetable will harm your progress. They're all > pretty awesome! > > Congrats on getting started. > > > > On Sat, Oct 16, 2010 at 10:42 AM, koilady@... <koilady%40ymail.com>< > koilady@... <koilady%40ymail.com>>wrote: > > > > Hello all, > > Glad to have found this group. My girlfriend and I have just started our > > first week of BFL. We are so excited and dedicated just hoping we will do > > well. > > I have a question regarding margarine.....when making a chicken or turkey > > sandwich if margarine is not allowed what can you put on your whole wheat > > bread for a spread? I can't find any mention of bananas on the BFL > website > > are they an ok food? > > > > Thanks > > From two new gals who hope to get transformed!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 I like hummus as a sandwich spread. Bananas, I would just count a half banana as a full carb portion. You get a lot of bang for your buck with bananas! Sent from my Verizon Wireless BlackBerry Re: New to group For sandwiches, I also like Dijonaise. I find mustard alone to be too strong, mayo to be too fattening, but that seems to be a good combo and you only need a tiny bit for flavoring. > > > For sandwiches or bread you can use any healthy spread you want if you go > easy on it - peanut butter, olive oil, butter spray, heart healthy spread, > light mayo. Personally, I prefer to use a tiny bit of the real thing rather > than fat free fake stuff but I know plenty of people prefer light > everything. On BFL you can use condiments like salad dressing, barbecue > sauce, jam, ketchup, mustard, margarine. Just check labels. Make sure > you're > being smart about it and not absentmindedly adding hundreds of extra > calories to each meal. :-) > > Bananas are big and calorie/carb dense fruits. They're probably not a top > recommendation for that reason but you can certainly eat them. The > authorized foods list is a starting point. You can't go wrong following it > strictly but you can also be very successful allowing some flexibility. No > " unauthorized " fruit or vegetable will harm your progress. They're all > pretty awesome! > > Congrats on getting started. > > > > On Sat, Oct 16, 2010 at 10:42 AM, koilady@... <koilady%40ymail.com>< > koilady@... <koilady%40ymail.com>>wrote: > > > > Hello all, > > Glad to have found this group. My girlfriend and I have just started our > > first week of BFL. We are so excited and dedicated just hoping we will do > > well. > > I have a question regarding margarine.....when making a chicken or turkey > > sandwich if margarine is not allowed what can you put on your whole wheat > > bread for a spread? I can't find any mention of bananas on the BFL > website > > are they an ok food? > > > > Thanks > > From two new gals who hope to get transformed!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 I use a garlic butter ( just a small amount) on the out side of some of my sandwiches and then cook them in my frying pan kind of like a grilled cheese would be cooked. it only takes a very small amount of the garlic butter but it gives my sandwich and entirely new flavor that is wonderful and worth the couple of extra calories I spend. Margarine is ok I just perfer butter. I am with some of the others I usally only use 1/2 a bananna at a time. Welcome to the group its nice to have you hear. > > Hello all, > Glad to have found this group. My girlfriend and I have just started our first week of BFL. We are so excited and dedicated just hoping we will do well. > I have a question regarding margarine.....when making a chicken or turkey sandwich if margarine is not allowed what can you put on your whole wheat bread for a spread? I can't find any mention of bananas on the BFL website are they an ok food? > > Thanks > From two new gals who hope to get transformed!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Hello! My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? Any help or suggestions would be appreciated, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 This group will start asking you a lot of questions since many of our stories are very similar in sharing your frustration. Post your labs if you can on here and if you don't have them try to get them since the long time users on here are very well versed in the road primary hyperaldosterone takes and they have been a great help. A few things to help just in case you didn't know: abbreviations are used on this list frequently so "PA" = primary hyperaldosteronsim, "K" = Potassium"BP" or "HTN" is blood pressure"AVS" = adrenal venous samplingthere's more, but ask if you don't understand something or know the abbreviation Questions of course are did they rule out 's and Cushing's ? The low BP, dizziness, and weight gain would be concerning for s or something else. If it is PA then until all things are under control or found/treated potassium may be your best friend. Seems you are functionally at least okay as the potassium goes. I know for me potassium has been my best friend since they diagnosed me. Spironolactone is the ONLY med out of I-don't-know how many (maybe 20ish) over the years to control my BP (based on my symptoms I think I have it for maybe 5-6 years or longer but no one ever put low K together with HTN), but the K has changed my energy, which has given me back the ability to exercise again, which has made me feel 100% better. Now, I am not a woman so can't relate to the other things, but there are a lot of people on here who sure can. But if you have numbers have them handy as people will ask about your lab values. Also they are a big help in helping you find the experts. 43 yo male PA-C w/ PA controlled on Spironolactone, potassium, and DASHSubject: New to GroupTo: hyperaldosteronism Date: Friday, April 22, 2011, 5:33 PM Hello! My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? Any help or suggestions would be appreciated, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi , Thanks so much for explaining the ins and outs of this wonderful group. I will update my story and then do you always put your blood work results at the end of each email? Yes, s and Cushings were both looked at. I had some symptoms but not others and tested negative. What I am finding is not everything is so clear cut with me which is why we started with the testing of spironolactone to see if we could get my potassium elevated and stable. Thanks Kellie  This group will start asking you a lot of questions since many of our stories are very similar in sharing your frustration. Post your labs if you can on here and if you don't have them try to get them since the long time users on here are very well versed in the road primary hyperaldosterone takes and they have been a great help. A few things to help just in case you didn't know: abbreviations are used on this list frequently so  "PA" = primary hyperaldosteronsim, "K" = Potassium "BP" or "HTN" is blood pressure "AVS" = adrenal venous sampling there's more, but ask if you don't understand something or know the abbreviation  Questions of course are did they rule out 's and Cushing's ? The low BP, dizziness, and weight gain would be concerning for s or something else. If it is PA then until all things are under control or found/treated potassium may be your best friend. Seems you are functionally at least okay as the potassium goes. I know for me potassium has been my best friend since they diagnosed me. Spironolactone is the ONLY med out of I-don't-know how many (maybe 20ish) over the years to control my BP (based on my symptoms I think I have it for maybe 5-6 years or longer but no one ever put low K together with HTN), but the K has changed my energy, which has given me back the ability to exercise again, which has made me feel 100% better. Now, I am not a woman so can't relate to the other things, but there are a lot of people on here who sure can. But if you have numbers have them handy as people will ask about your lab values. Also they are a big help in helping you find the experts. 43 yo male PA-C w/ PA controlled on Spironolactone, potassium, and DASH From: Kellie -Geiger Subject: New to Group To: hyperaldosteronism Date: Friday, April 22, 2011, 5:33 PM  Hello! My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? Any help or suggestions would be appreciated, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Spiro will mess with some folks periods Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Hello! My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? Any help or suggestions would be appreciated, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Dr g says it ain't or Cush it's PA Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension This group will start asking you a lot of questions since many of our stories are very similar in sharing your frustration. Post your labs if you can on here and if you don't have them try to get them since the long time users on here are very well versed in the road primary hyperaldosterone takes and they have been a great help. A few things to help just in case you didn't know: abbreviations are used on this list frequently so "PA" = primary hyperaldosteronsim, "K" = Potassium"BP" or "HTN" is blood pressure"AVS" = adrenal venous samplingthere's more, but ask if you don't understand something or know the abbreviation Questions of course are did they rule out 's and Cushing's ? The low BP, dizziness, and weight gain would be concerning for s or something else. If it is PA then until all things are under control or found/treated potassium may be your best friend. Seems you are functionally at least okay as the potassium goes. I know for me potassium has been my best friend since they diagnosed me. Spironolactone is the ONLY med out of I-don't-know how many (maybe 20ish) over the years to control my BP (based on my symptoms I think I have it for maybe 5-6 years or longer but no one ever put low K together with HTN), but the K has changed my energy, which has given me back the ability to exercise again, which has made me feel 100% better. Now, I am not a woman so can't relate to the other things, but there are a lot of people on here who sure can. But if you have numbers have them handy as people will ask about your lab values. Also they are a big help in helping you find the experts. 43 yo male PA-C w/ PA controlled on Spironolactone, potassium, and DASHSubject: New to GroupTo: hyperaldosteronism Date: Friday, April 22, 2011, 5:33 PM Hello! My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? Any help or suggestions would be appreciated, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Yep, it messed with mine, I'm guessing due to its estrogenic effects since I've already got an excess of estrogen in relation to progesterone. But hey, it cleared up my adult onset acne fabulously > > > Hello! > > > > My history is a little complicated. Prior to last May I have been a long time sufferer of migraines. In the last few years the frequency and intensity magnified causing me to step down at my job. I was also treated very young for high blood pressure. I was on a low dose blood pressure medication from ages 18-32. Suddenly and for no reason my blood pressure plummeted. At that time I stopped the medication and my blood pressure ranged from normal to low. About five years ago I started taking Dyazide (water pill) for hand and feet swelling but the doctor could not find a reason as to why this was happening. > > > > All was well until last May. While at work I experienced dizziness, racing heart and felt like I was going to pass out. The security team took my vitals and my blood pressure and pulse were sky high. They made me go to the hospital where I found out my potassium was 2.3. I got to spend the day with two iv potassium bags. Since this was an isolated incident they told me to follow up with my family doctor. I was on potassium supplements for three weeks and all seemed to go back to normal. > > > > During our vacation in September late in the evening my heart started racing again. Since I was out of town in a remote area I was on the fence with finding a hospital. I decided not to go and the next two days I was fine. Unfortunately on the day of departure I felt horrible. I could tell my blood pressure was up, I had a hard time breathing and I had heart palpitations. Once I got back into town I went directly to the hospital. Potassium was 2.7 again. Same drill with the potassium iv bags. At that time the Doctor had a long talk with me about my family history and my history. She wanted me to follow up with my family doctor and get treated for Primary Aldostrerone. I was also told to quit the Dyazide immediately. That hospital visit put me 9 pounds heavier probably from the fluids and by not taking the Dyazide I put on 5 more pounds and have been unable to lose that weight. > > > > At the family doctor I actually tested negative for Primary Aldosterone so she referred me to an Endocrinologist. She ran the whole battery of tests and the only red flag was I was on the high end of normal for Primary Aldosterone. So we decided to do a test with Spironolactone 50mg twice a day. I started this on October 4th. On Thanksgiving Day I started having some of the same symptoms and went back to the hospital. My potassium was 3.0 and I was able to leave by taking my potassium supplements. We then went to 100 mg twice a day but this caused my lived enzymes to increase. Now I am at 100 mg in the morning and 50 mg in the evening which keeps my potassium bouncing around 4.0-4.5. > > > > All three incidents happened to be on the heaviest days of my periods which have been increasing worse. My doctor was unaware of any correlation between the two but I swear hormones are playing a huge role in this as well. I am 41 years old and have never had kids. I just recently had an endometrial ablasion and found out I also had two polyps. Hopefully this gives me some type of relief in the future. > > > > I also started suffering from Hypoglycemia and my blood sugar was dropping way down ad then spiking way up. My Endo put me on Metformin but it tore up my stomach. I have joined Weight Watchers to aid in healthy eating and hopefully lose this weight I have gained since this all first started. Since joining Weight Watchers my blood pressure has dropped so I am now off the additional blood pressure medication Bystolic and my AC1 number droped 1 point and I haven't had any hypoglycemic incidents but the weight loss is SLOW. > > > > Due to all the heart palpitations and what you experience with this disease my anxiety is through the roof. I saw an Anxiety Doctor for about three months but have stopped going now. > > > > Currently I am on 100 mg Spiro in the morning and 50 mg of Spiro in the evenings. I am also on .5 mg Xanax three times a day. I did have a CT scan and I do not have a tumor. > > > > I am looking for people that have suffered from this disease for more than two years and what your life is like now. Will I ever feel better? Will I ever lose this weight? Will things get worse? Is this a manageable disease? Will this be my life for the next 40 years? > > > > Any help or suggestions would be appreciated, > > Kellie > > > > > Quote Link to comment Share on other sites More sharing options...
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