Re: Re: headaches and hyperaldosteronism

[Guest guest]

These sound like HTN headaches to me. CEInteresting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.> > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet> >>

[Guest guest]

ThNks for this mojo! I suffer from migraines and cluster headaches. One dr finally told menthat when you have high bp then when it drops it triggers a migraine. So as soon as I feel the bp dropout I should take my migraine meds. It isn't the only trigger but the dr was so right. At the time my bp was fluctuating so bad that I had to use nitroglycerine to get it down. The dr said he saw a similRity in nitro headache and lowering bp. Also I am very sensitive to chemicals but I wasn't sure of details so I appreciate your emAil! ive woken with a barking cough because roomAtes 2 floors down were doing laundry. People never believe I have chemical sensitivities til they see what happens. A harsh one is restaurants that use hArshe chemicals to clean tables.

I had the same symptoms. Are you around a lot of scented products/air fresheners/cleaning products? It turns out my blood pressure issues and the symptoms you listed below were from exposure to toxic ingredients in air fresheners.

See abstract below and also search and read research by Anne Steinemann, Phd.University of Washington and her research on Environmental Toxins.

Since avoiding these products my symptoms have all but disappeared, but come back if I am exposed to scented products.

,

ABSTRAC - TClinical Endocrinology and Metabolism Issue 1, Pages 111-120 (March 2006)

Effects of endocrine-disrupting chemicals on adrenal function

J.P. Hinson, BSc, PhD, DSc (Reader in Molecular and Cellular Endocrinology) and P.W. Raven, MBBS, BSc, PhD, MRCP, MRC Psycn (Senior Lecturer in Psychiatry)

Considering the wide range of chemicals known to disrupt adrenal function and the physiological importance of the adrenal cortex, it is surprising that endocrine disruption of the adrenal gland has not been more widely researched. The chemical nature of adrenal disruptors is highly varied, and there are features of the adrenal structure and function, which render it particularly vulnerable to toxic attack. However, the homeostatic mechanisms inherent in the hypothalamo-pituitary-adrenal axis mean that only the most catastrophic effects are recognized as adrenal disruption, such as in the case of etomidate.

In order to detect potentially significant but milder forms of toxic disruption of adrenal function a new approach is needed; this requires the use of more sophisticated approaches than simply measuring one hormone at one time point. New methodologies are also needed, such as the use of human adrenal cell lines for the screening of toxins and for mechanistic investigation of adrenal disruptors. This review focuses on mechanisms of adrenal toxicity and on the challenges facing researchers in this important field.

Key words: glucocorticoid, stress, cortisol, corticosterone, adrenocortical, aldosterone

Centre for Endocrinology, WHRI, Barts and the London Queen School of Medicine and Dentistry, First Floor Vane Science Centre, Charterhouse Square, London EC1M 6BQ, UK

Metabolic and Clinical Trials Unit, Department of Mental Health Sciences, RFUCMS, University College of London, London, UK

Corresponding author. Corresponding author. Tel.: +44 20 7882 6235.

PII: S1521-690X(05)00073-4Volume 20

doi:10.1016/j.beem.2005.09.006

>

> Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

>

> I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

>

> I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

>

> I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

>

> Thanks, as always, for your input!

>

> - msmith1928

> 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

>

[Guest guest]

Are your headaches constant pain in one quadrant of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene.

Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.

> >

> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

> >

> > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

> >

> > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

> >

> > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

> >

> > Thanks, as always, for your input!

> >

> > - msmith1928

> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

> >

>

[Guest guest]

Sounds brutal. Have you ever tried fioricet generic butalbital. It has caffiene Tylenol and something else that works on the seized up neck. There is a version with aspirin instead of Tylenol. I hope you find a way out

I've got a long history of migraines exactly as you described - left side, starting in the eye, sometimes with aura. I've had several MRIs to rule anything else out.

These are different - they seem to start at the base of my neck and work their way up to the top of my head, then stay there for several days. Imitrex doesn't do a thing for them; aspirin/caffeine helps (and interestingly, doesn't elevate my BP) but other pain meds do not.

> > > >

> > > > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

> > > >

> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

> > > >

> > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

> > > >

> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

> > > >

> > > > Thanks, as always, for your input!

> > > >

> > > > - msmith1928

> > > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

> > > >

> > >

> >

> >

>

[Guest guest]

Always stress this is in you. Everyone is different and you must work with your team to get the best combo for you.Anytime one has HTN and headaches one must consider is the BP Rx making the headaches better(BB) or worse (CCBs, apresoline, mininoxidil).CE Grim MDAre your headaches constant pain in one quadrant of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene. Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.> > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet> >>

[Guest guest]

Have BB been tired. Many with PA have headaches that go away with effective Rx of BP and K by DASH and MCBs or surgery.CE Grim MDI've got a long history of migraines exactly as you described - left side, starting in the eye, sometimes with aura. I've had several MRIs to rule anything else out. These are different - they seem to start at the base of my neck and work their way up to the top of my head, then stay there for several days. Imitrex doesn't do a thing for them; aspirin/caffeine helps (and interestingly, doesn't elevate my BP) but other pain meds do not.> > > >> > > > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > > > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.> > > > > > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > > > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > > > > > Thanks, as always, for your input!> > > > > > > > - msmith1928> > > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet> > > >> > >> > > >>

[Guest guest]

I was on CCBs and my bp was mAssive and headaches worse. Currently I'm off all bp meds and waiting the 8 weeks til I can see an endo. one GP said I was stressed second agreed I may have adrenal or thyroid issues. So scheduled appt w endo but couldn't get in for 8 weeks. Bp varies from 90/55 to 192/102 pulse rate usually 100. I note when the bp hits it's highest then starts down. I get a crashing migraine. 4 years post l-adrenalectomy no current labs

I'm not on any BP meds at all right now, but I can say with certainty that CCBs definitely made the headaches worse! When I reported that as a side effect to my last doctor (the one who diagnosed me with "stress" rather than PA) he told me that was impossible.

> >> > >

> >> > > Hi all - I'm trying to understand exactly what is going on with

> >> my headaches, and hopefully figure out what to do to prevent them.

> >> > >

> >> > > I go through cycles of being awakened with intense left-side

> >> headaches for periods of a week or two at a time. Invariably when I

> >> get these, I'm also in a cycle of higher than usual BP, and greater

> >> salt sensitivity/water retention. They always come on in the middle

> >> of the night, and I always get a pounding heartbeat and

> >> palpitations along with them.

> >> > >

> >> > > I'm starting to see a link between these and drops in potassium

> >> - this seems to happen when my K gets down below 4.2.

> >> > >

> >> > > I'm just wondering who else here experiences this, and if

> >> there's a better explanation/treatment/preventive measure other

> >> than upping my K dosage?

> >> > >

> >> > > Thanks, as always, for your input!

> >> > >

> >> > > - msmith1928

> >> > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone

> >> 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg

> >> spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/

> >> day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg

> >> as needed; low sodium, fructose- and grain-free diet

> >> > >

> >> >

> >>

> >>

> >

> >

>

[Guest guest]

I can't get access to the list info page. I'm using this iPod toy. So I don't know what are MCBs or some abbreviation close to that.? Once I do see the endo dr , if I get put back on meds what bp meds work? Pre l-adrenalectomy I was on nitrog and I think propanalol. I'd been on so many and none worked. Plus no one knew about dashing at any Boston area hospital. I've been to all of them. Plus every single dr I've seen has told me once the adrenal gland is removed you're cured and we will never need to see u again. I saw one endo here in Texas and he refusedto even do any labs. He said the surgery is the cure then told me to see a therapist. My pain management dr( for RA) says she thinks I obviously have an endocrine issue but of course she doesn't treatmthat. So I made appt w new endo but am having to wait ages to see her. So I spend most days crashed out either from bp too low or so high I get headaches. I'm trying very hard to dash but should I stop a week before my appt.? To get more accurate labs? Has anyone tried those cocoa roast almonds by emerald nuts25mg sodium but 210 mg potassium They go great w apricots for added k

Always stress this is in you. Everyone is different and you must work with your team to get the best combo for you.Anytime one has HTN and headaches one must consider is the BP Rx making the headaches better(BB) or worse (CCBs, apresoline, mininoxidil).CE Grim MDAre your headaches constant pain in one quadrant of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene. Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.> > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet> >>

[Guest guest]

Ah...that wonderful art of listening to the patient.........might fix alot more things if they learn to actually listenSubject: Re: headaches and hyperaldosteronismTo: hyperaldosteronism Date: Monday, April 4, 2011, 12:01 PM

I'm not on any BP meds at all right now, but I can say with certainty that CCBs definitely made the headaches worse! When I reported that as a side effect to my last doctor (the one who diagnosed me with "stress" rather than PA) he told me that was impossible.

> >> > >

> >> > > Hi all - I'm trying to understand exactly what is going on with

> >> my headaches, and hopefully figure out what to do to prevent them.

> >> > >

> >> > > I go through cycles of being awakened with intense left-side

> >> headaches for periods of a week or two at a time. Invariably when I

> >> get these, I'm also in a cycle of higher than usual BP, and greater

> >> salt sensitivity/water retention. They always come on in the middle

> >> of the night, and I always get a pounding heartbeat and

> >> palpitations along with them.

> >> > >

> >> > > I'm starting to see a link between these and drops in potassium

> >> - this seems to happen when my K gets down below 4.2.

> >> > >

> >> > > I'm just wondering who else here experiences this, and if

> >> there's a better explanation/treatment/preventive measure other

> >> than upping my K dosage?

> >> > >

> >> > > Thanks, as always, for your input!

> >> > >

> >> > > - msmith1928

> >> > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone

> >> 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg

> >> spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/

> >> day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg

> >> as needed; low sodium, fructose- and grain-free diet

> >> > >

> >> >

> >>

> >>

> >

> >

>

[Guest guest]

He has never listened to pAtients. Rather he has never heard pts. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I'm not on any BP meds at all right now, but I can say with certainty that CCBs definitely made the headaches worse! When I reported that as a side effect to my last doctor (the one who diagnosed me with "stress" rather than PA) he told me that was impossible.

> >> > >

> >> > > Hi all - I'm trying to understand exactly what is going on with

> >> my headaches, and hopefully figure out what to do to prevent them.

> >> > >

> >> > > I go through cycles of being awakened with intense left-side

> >> headaches for periods of a week or two at a time. Invariably when I

> >> get these, I'm also in a cycle of higher than usual BP, and greater

> >> salt sensitivity/water retention. They always come on in the middle

> >> of the night, and I always get a pounding heartbeat and

> >> palpitations along with them.

> >> > >

> >> > > I'm starting to see a link between these and drops in potassium

> >> - this seems to happen when my K gets down below 4.2.

> >> > >

> >> > > I'm just wondering who else here experiences this, and if

> >> there's a better explanation/treatment/preventive measure other

> >> than upping my K dosage?

> >> > >

> >> > > Thanks, as always, for your input!

> >> > >

> >> > > - msmith1928

> >> > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone

> >> 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg

> >> spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/

> >> day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg

> >> as needed; low sodium, fructose- and grain-free diet

> >> > >

> >> >

> >>

> >>

> >

> >

>

[Guest guest]

Did you get our original welcome. There is a list of abbev there. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I can't get access to the list info page. I'm using this iPod toy. So I don't know what are MCBs or some abbreviation close to that.? Once I do see the endo dr , if I get put back on meds what bp meds work? Pre l-adrenalectomy I was on nitrog and I think propanalol. I'd been on so many and none worked. Plus no one knew about dashing at any Boston area hospital. I've been to all of them. Plus every single dr I've seen has told me once the adrenal gland is removed you're cured and we will never need to see u again. I saw one endo here in Texas and he refusedto even do any labs. He said the surgery is the cure then told me to see a therapist. My pain management dr( for RA) says she thinks I obviously have an endocrine issue but of course she doesn't treatmthat. So I made appt w new endo but am having to wait ages to see her. So I spend most days crashed out either from bp too low or so high I get headaches. I'm trying very hard to dash but should I stop a week before

my appt.? To get more accurate labs? Has anyone tried those cocoa roast almonds by emerald nuts25mg sodium but 210 mg potassium They go great w apricots for added k

Always stress this is in you. Everyone is different and you must work with your team to get the best combo for you.Anytime one has HTN and headaches one must consider is the BP Rx making the headaches better(BB) or worse (CCBs, apresoline, mininoxidil).CE Grim MDAre your headaches constant pain in one quadrant

of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene. Interesting, I've always had

an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.>

> > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet>

>>

[Guest guest]

Assuming u have PA AND I dont know DASH AND MCBS should. Anyone who tells u are are cured has not followed many.Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I can't get access to the list info page. I'm using this iPod toy. So I don't know what are MCBs or some abbreviation close to that.? Once I do see the endo dr , if I get put back on meds what bp meds work? Pre l-adrenalectomy I was on nitrog and I think propanalol. I'd been on so many and none worked. Plus no one knew about dashing at any Boston area hospital. I've been to all of them. Plus every single dr I've seen has told me once the adrenal gland is removed you're cured and we will never need to see u again. I saw one endo here in Texas and he refusedto even do any labs. He said the surgery is the cure then told me to see a therapist. My pain management dr( for RA) says she thinks I obviously have an endocrine issue but of course she doesn't treatmthat. So I made appt w new endo but am having to wait ages to see her. So I spend most days crashed out either from bp too low or so high I get headaches. I'm trying very hard to dash but should I stop a week before

my appt.? To get more accurate labs? Has anyone tried those cocoa roast almonds by emerald nuts25mg sodium but 210 mg potassium They go great w apricots for added k

Always stress this is in you. Everyone is different and you must work with your team to get the best combo for you.Anytime one has HTN and headaches one must consider is the BP Rx making the headaches better(BB) or worse (CCBs, apresoline, mininoxidil).CE Grim MDAre your headaches constant pain in one quadrant

of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene. Interesting, I've always had

an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.>

> > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet>

>>

[Guest guest]

Your goal is to get BP to goal with as few meds as possible. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I can't get access to the list info page. I'm using this iPod toy. So I don't know what are MCBs or some abbreviation close to that.? Once I do see the endo dr , if I get put back on meds what bp meds work? Pre l-adrenalectomy I was on nitrog and I think propanalol. I'd been on so many and none worked. Plus no one knew about dashing at any Boston area hospital. I've been to all of them. Plus every single dr I've seen has told me once the adrenal gland is removed you're cured and we will never need to see u again. I saw one endo here in Texas and he refusedto even do any labs. He said the surgery is the cure then told me to see a therapist. My pain management dr( for RA) says she thinks I obviously have an endocrine issue but of course she doesn't treatmthat. So I made appt w new endo but am having to wait ages to see her. So I spend most days crashed out either from bp too low or so high I get headaches. I'm trying very hard to dash but should I stop a week before

my appt.? To get more accurate labs? Has anyone tried those cocoa roast almonds by emerald nuts25mg sodium but 210 mg potassium They go great w apricots for added k

Always stress this is in you. Everyone is different and you must work with your team to get the best combo for you.Anytime one has HTN and headaches one must consider is the BP Rx making the headaches better(BB) or worse (CCBs, apresoline, mininoxidil).CE Grim MDAre your headaches constant pain in one quadrant

of your head? Or many streams of headaches ? Sounds like you has either migraine or cluster headaches. I've had headaches that lasted 15 days. Almost always staring in the left eye. A neurologist can sort out what type you hAve. It is a struggle getting the exact right medication for you but oh so very worth it to have less pain. Each neurologist will treat you different so go to a new one if the first doesn't help. I had a great one in Oklahoma and not having as good of luck in Texas. The cluster headaches react best to oxygen while migraines react best to axert/imetrix type meds and pain meds w caffiene. Interesting, I've always had

an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.>

> > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet>

>>

[Guest guest]

They (in Texas) always blamed my BP (remember mine was more or less - often more - 160/120-130 for years) on stress and depression (even the same docs - who saw it that high on previous visits). I walked on a few docs because telling them I WAS NOT depressed. I also had hyperthyroidism and the headaches were incredible and this was also before any mention of PA. I too could never take BB's because my heart rate would go too slow (in the 40's on the lowest dose) and the fatigue on the BB was beyond incredible. But then again I was also low K, hypertensive, and who knows what else for so long, that I wonder if the slow rate added to it, yet now that I know better I bet the low K was at the root of much of how I felt. Once I was dx with hyperthyroidism the ER doc put me back on a BB and it was a Godsend by that point, but then again my HR was

now running 120-140 all the time so slowing it was fine and it worked, but mostly it fantastically decreased that anxiety and shakiness that comes with hyperthyroid - though did absolutely nothing for the BP....AND it did seem to lessen the headaches. After the PA and subsequently being started on spiro I now have occasional fast rate issues so I take the BB only when the rate is up......some maybe bad news - I hope not -is the symptoms of hyperthyroid seem to be inching back on me so I just had all the blood work done and hope they call me to let me know one way or the other. Had a little flu bug a couple weeks ago and that seems to be what triggers it historically in me. I can only describe hyperthyroidism as "hell" and pray it's not back.......From:

Txsgreen Subject: Re: Re: headaches and hyperaldosteronismTo: "hyperaldosteronism " <hyperaldosteronism >Date: Monday, April 4, 2011, 12:41 PM

I was on CCBs and my bp was mAssive and headaches worse. Currently I'm off all bp meds and waiting the 8 weeks til I can see an endo. one GP said I was stressed second agreed I may have adrenal or thyroid issues. So scheduled appt w endo but couldn't get in for 8 weeks. Bp varies from 90/55 to 192/102 pulse rate usually 100. I note when the bp hits it's highest then starts down. I get a crashing migraine. 4 years post l-adrenalectomy no current labs

I'm not on any BP meds at all right now, but I can say with certainty that CCBs definitely made the headaches worse! When I reported that as a side effect to my last doctor (the one who diagnosed me with "stress" rather than PA) he told me that was impossible.

> >> > >

> >> > > Hi all - I'm trying to understand exactly what is going on with

> >> my headaches, and hopefully figure out what to do to prevent them.

> >> > >

> >> > > I go through cycles of being awakened with intense left-side

> >> headaches for periods of a week or two at a time. Invariably when I

> >> get these, I'm also in a cycle of higher than usual BP, and greater

> >> salt sensitivity/water retention. They always come on in the middle

> >> of the night, and I always get a pounding heartbeat and

> >> palpitations along with them.

> >> > >

> >> > > I'm starting to see a link between these and drops in potassium

> >> - this seems to happen when my K gets down below 4.2.

> >> > >

> >> > > I'm just wondering who else here experiences this, and if

> >> there's a better explanation/treatment/preventive measure other

> >> than upping my K dosage?

> >> > >

> >> > > Thanks, as always, for your input!

> >> > >

> >> > > - msmith1928

> >> > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone

> >> 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg

> >> spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/

> >> day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg

> >> as needed; low sodium, fructose- and grain-free diet

> >> > >

> >> >

> >>

> >>

> >

> >

>

[Guest guest]

I have never seen this level of HTN due to depression and almost never from anxiety. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

They (in Texas) always blamed my BP (remember mine was more or less - often more - 160/120-130 for years) on stress and depression (even the same docs - who saw it that high on previous visits). I walked on a few docs because telling them I WAS NOT depressed. I also had hyperthyroidism and the headaches were incredible and this was also before any mention of PA. I too could never take BB's because my heart rate would go too slow (in the 40's on the lowest dose) and the fatigue on the BB was beyond incredible. But then again I was also low K, hypertensive, and who knows what else for so long, that I wonder if the slow rate added to it, yet now that I know better I bet the low K was at the root of much of how I felt. Once I was dx with hyperthyroidism the ER doc put me back on a BB and it was a Godsend by that point, but then again my HR was

now running 120-140 all the time so slowing it was fine and it worked, but mostly it fantastically decreased that anxiety and shakiness that comes with hyperthyroid - though did absolutely nothing for the BP....AND it did seem to lessen the headaches. After the PA and subsequently being started on spiro I now have occasional fast rate issues so I take the BB only when the rate is up......some maybe bad news - I hope not -is the symptoms of hyperthyroid seem to be inching back on me so I just had all the blood work done and hope they call me to let me know one way or the other. Had a little flu bug a couple weeks ago and that seems to be what triggers it historically in me. I can only describe hyperthyroidism as "hell" and pray it's not back.......From:

Txsgreen Subject: Re: Re: headaches and hyperaldosteronismTo: "hyperaldosteronism " <hyperaldosteronism >Date: Monday, April 4, 2011, 12:41 PM

I was on CCBs and my bp was mAssive and headaches worse. Currently I'm off all bp meds and waiting the 8 weeks til I can see an endo. one GP said I was stressed second agreed I may have adrenal or thyroid issues. So scheduled appt w endo but couldn't get in for 8 weeks. Bp varies from 90/55 to 192/102 pulse rate usually 100. I note when the bp hits it's highest then starts down. I get a crashing migraine. 4 years post l-adrenalectomy no current labs

I'm not on any BP meds at all right now, but I can say with certainty that CCBs definitely made the headaches worse! When I reported that as a side effect to my last doctor (the one who diagnosed me with "stress" rather than PA) he told me that was impossible.

> >> > >

> >> > > Hi all - I'm trying to understand exactly what is going on with

> >> my headaches, and hopefully figure out what to do to prevent them.

> >> > >

> >> > > I go through cycles of being awakened with intense left-side

> >> headaches for periods of a week or two at a time. Invariably when I

> >> get these, I'm also in a cycle of higher than usual BP, and greater

> >> salt sensitivity/water retention. They always come on in the middle

> >> of the night, and I always get a pounding heartbeat and

> >> palpitations along with them.

> >> > >

> >> > > I'm starting to see a link between these and drops in potassium

> >> - this seems to happen when my K gets down below 4.2.

> >> > >

> >> > > I'm just wondering who else here experiences this, and if

> >> there's a better explanation/treatment/preventive measure other

> >> than upping my K dosage?

> >> > >

> >> > > Thanks, as always, for your input!

> >> > >

> >> > > - msmith1928

> >> > > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone

> >> 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg

> >> spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/

> >> day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg

> >> as needed; low sodium, fructose- and grain-free diet

> >> > >

> >> >

> >>

> >>

> >

> >

>

[Guest guest]

What about the connection between sleep apnea and hyperaldosteronism as causing the headaches, especially at night? What about it Dr G alot of studies show a connection, possibly in either direction (chicken or the egg?), but what has been your experience with the two?http://chestjournal.chestpubs.org/content/131/2/453.short http://hyper.ahajournals.org/cgi/content/abstract/43/3/518http://chestjournal.chestpubs.org/content/125/1/112.short43 yo male with PA

Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.

> >

> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

> >

> > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

> >

> > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

> >

> > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

> >

> > Thanks, as always, for your input!

> >

> > - msmith1928

> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

> >

>

[Guest guest]

As one with OSA I can say that CPAP revolutionized my life. But headaches were or BP was not a problem. But I immediately stopped going to sleep taking with staff, wife, patients, while dictating, working on the computer etc. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

What about the connection between sleep apnea and hyperaldosteronism as causing the headaches, especially at night? What about it Dr G alot of studies show a connection, possibly in either direction (chicken or the egg?), but what has been your experience with the two?http://chestjournal.chestpubs.org/content/131/2/453.short http://hyper.ahajournals.org/cgi/content/abstract/43/3/518http://chestjournal.chestpubs.org/content/125/1/112.short43 yo male with PA

Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.

> >

> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

> >

> > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

> >

> > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

> >

> > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

> >

> > Thanks, as always, for your input!

> >

> > - msmith1928

> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

> >

>

[Guest guest]

I think it is one of the most neglected aspects of family medicine and other disciplines. Sort of understandable as sleep studies are so expensive and insurances rarely cover them and with the economy likely will less in the future, so maybe we just treat the best we can since the patient can't pay for one, and block it out eventually. Sad, but true.That and massage therapy.....I think THAT could be one of the single most powerful treatment options out there.....but insurance will pay for acupuncture and deny massage. Ugh

Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.

> >

> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.

> >

> > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.

> >

> > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.

> >

> > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?

> >

> > Thanks, as always, for your input!

> >

> > - msmith1928

> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet

> >

>

[Guest guest]

Yes but we need good data that it is better to pay for that than for acupunct or aroma or other "therapies". I think it is one of the most neglected aspects of family medicine and other disciplines. Sort of understandable as sleep studies are so expensive and insurances rarely cover them and with the economy likely will less in the future, so maybe we just treat the best we can since the patient can't pay for one, and block it out eventually. Sad, but true.That and massage therapy.....I think THAT could be one of the single most powerful treatment options out there.....but insurance will pay for acupuncture and deny massage. Ugh Interesting, I've always had an aversion to scented products so I avoid them whenever possible. I do sometimes get headaches triggered by strong scents, but those are very different than the ones that I wake up with - much less intense, and they go away when I get some fresh air. The headaches I wake up with sometimes last for 2 or 3 days at a time.> >> > Hi all - I'm trying to understand exactly what is going on with my headaches, and hopefully figure out what to do to prevent them.> > > > I go through cycles of being awakened with intense left-side headaches for periods of a week or two at a time. Invariably when I get these, I'm also in a cycle of higher than usual BP, and greater salt sensitivity/water retention. They always come on in the middle of the night, and I always get a pounding heartbeat and palpitations along with them.> > > > I'm starting to see a link between these and drops in potassium - this seems to happen when my K gets down below 4.2.> > > > I'm just wondering who else here experiences this, and if there's a better explanation/treatment/preventive measure other than upping my K dosage?> > > > Thanks, as always, for your input!> > > > - msmith1928> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no HTN meds; other meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, and cyclobenzaprine 5mg as needed; low sodium, fructose- and grain-free diet> >>

[Guest guest]

I know a lot about hyperaldo, quite a bit bit about hypoaldo and some about Lyme. All 3 are common so having 3 at the same time would not be uncommon. Suggesting that they are related will take lots of folks with one and two and three. Keep us posted. CE Grim MDyes, hello - I also notice a spike of hypertension, tachycardia (rapid heart rate), water retention, irritability, and headaches when I eat too much salt.......Dr. Grim recommends DASH as much as possible and it works for most of us....I was still having severe muscle pain though along with floaters and fatigue and on Val's recommendation (thanks Val !!) I was tested for Lyme and it was "weakly positive"the ELISA was negative and the Western Blot (performed at Quest) was postive for one titer out of 15...I have taken enough immunology to know that if one is producing antibodies to something....you have been infected with it.......started my Doxycycline today........ Dr. Grim - any comments about a possible link between hypothyroid, LYME, and hyperaldosteronism? thanks, M. Meredith, DPM, FACFAS195 Fore River Parkway, Suite 210Portland, ME 04102

[Guest guest]

My

ELISA was negative and two Western Blots were IND (indeterminate). Finally, after an antibiotic challence,

I got a strong positive from a urine antigen test. Quest and Labcorp don't do the testing

accurately. There are two

Lyme-specific bands they don't even test for.

Endocrine: I got Lyme and not long

after, my thyroid failed. Then I

developed a parathyroid adenoma and finally, excess aldosterone. Connection? Don't know.

Some people

swear by salt and Vitamin C to treat Lyme.

In someone with Lyme, salt can cause all the things you experienced. It's called herxheimer reaction.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of ocnblu777@...

yes, hello - I

also notice a spike of hypertension, tachycardia (rapid heart rate), water

retention, irritability, and headaches when I eat too much salt.......

Dr. Grim recommends DASH

as much as possible and it works for most of us....

I was still having

severe muscle pain though along with floaters and fatigue and on Val's

recommendation (thanks Val !!) I was tested for Lyme and it was " weakly

positive "

the ELISA was negative

and the Western Blot (performed at Quest) was postive for one titer out of

15...I have taken enough immunology to know that if one is producing antibodies

to something....you have been infected with it.......started my Doxycycline

today........

Dr. Grim - any comments

about a possible link between hypothyroid, LYME, and hyperaldosteronism?

thanks,

M. Meredith, DPM, FACFAS

195 Fore River Parkway, Suite 210

Portland, ME 04102

[Guest guest]

I suspect Lyme is missed very often too. In places like Texas and Oklahoma we had tons of ticks, but rarely did anyone check for Lyme unless the patient insisted. It is rare nonetheless, but I bet we only get 1 of hundreds (if that) since it mimics other things.A little off topic, but funny tick story to break up the monotony. Had an old guy in the small town I was in in the Texas Panhandle who came to me one AM with his "ear plugged up". He was a funny old guy over 80 who still plowed his field and fed his cattle himself and he was making a big deal about this plugged ear and how he had to get back to work so he wanted me to get him fixed up. . Well, when you look in an ear with an otoscope the lens is a magnifier so things look alot bigger looking back you when they are in the ear (let's see......I have taken roaches, alot of moths (my own

daughter once), BB's, plastic "things", some things I didn't even know what they were, and so on). So I look in there of course, and there is this big fuzzy TICK attached to his ear drum. Looked like Godzilla. Attached right on the eardrum. Now I got used to removing ticks in that part of the country so I just did what I always did. Put a drop of rubbing alcohol on it, it got mad, backed out, and I grabbed it, head and all. But that was a first!43 yo 5'10" 170lbs

male PA-C and EMT-P w/ PA responded well to spiro and DASH. PA led to

development of a murmur, LVH, and combined with Hyperthyroidism a real CHF like lifestyle - which lifestyle was turned upside down in 2009, but now doing much better. Had an Average BP 160/120 (170/130 AVERAGE when TSH was also low!) for many years on 5 BP meds and now 130/80 on only 25mg/day spiro and DASH alone! Subject: RE:

Re: headaches and hyperaldosteronismTo: hyperaldosteronism Date: Monday, May 2, 2011, 11:57 AM

My

ELISA was negative and two Western Blots were IND (indeterminate). Finally, after an antibiotic challence,

I got a strong positive from a urine antigen test. Quest and Labcorp don't do the testing

accurately. There are two

Lyme-specific bands they don't even test for.

Endocrine: I got Lyme and not long

after, my thyroid failed. Then I

developed a parathyroid adenoma and finally, excess aldosterone. Connection? Don't know. Some people

swear by salt and Vitamin C to treat Lyme.

In someone with Lyme, salt can cause all the things you experienced. It's called herxheimer reaction.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of ocnblu777@...

yes, hello - I

also notice a spike of hypertension, tachycardia (rapid heart rate), water

retention, irritability, and headaches when I eat too much salt.......

Dr. Grim recommends DASH

as much as possible and it works for most of us....

I was still having

severe muscle pain though along with floaters and fatigue and on Val's

recommendation (thanks Val !!) I was tested for Lyme and it was "weakly

positive"

the ELISA was negative

and the Western Blot (performed at Quest) was postive for one titer out of

15...I have taken enough immunology to know that if one is producing antibodies

to something....you have been infected with it.......started my Doxycycline

today........

Dr. Grim - any comments

about a possible link between hypothyroid, LYME, and hyperaldosteronism?

thanks,

M. Meredith, DPM, FACFAS

195 Fore River Parkway, Suite 210

Portland, ME 04102

[Guest guest]

maybe high salt increases the aldo fibrosis as it does in DOCA salt HTN in animals. My ELISA was negative and two Western Blots were IND (indeterminate). Finally, after an antibiotic challence, I got a strong positive from a urine antigen test. Quest and Labcorp don't do the testing accurately. There are two Lyme-specific bands they don't even test for.Endocrine: I got Lyme and not long after, my thyroid failed. Then I developed a parathyroid adenoma and finally, excess aldosterone. Connection? Don't know. Some people swear by salt and Vitamin C to treat Lyme. In someone with Lyme, salt can cause all the things you experienced. It's called herxheimer reaction. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of ocnblu777@... yes, hello - I also notice a spike of hypertension, tachycardia (rapid heart rate), water retention, irritability, and headaches when I eat too much salt.......Dr. Grim recommends DASH as much as possible and it works for most of us....I was still having severe muscle pain though along with floaters and fatigue and on Val's recommendation (thanks Val !!) I was tested for Lyme and it was "weakly positive"the ELISA was negative and the Western Blot (performed at Quest) was postive for one titer out of 15...I have taken enough immunology to know that if one is producing antibodies to something....you have been infected with it.......started my Doxycycline today........ Dr. Grim - any comments about a possible link between hypothyroid, LYME, and hyperaldosteronism? thanks, M. Meredith, DPM, FACFAS195 Fore River Parkway, Suite 210Portland, ME 04102

[Guest guest]

I

don't believe Lyme is rare at all.  The

CDC reports 20,000 - 30,000 cases a year but estimates the actual incidence is

at least ten times that.  Since CDC

confirmation requires a positive ELISA test,, of course their statistics are

wrong.  The ELISA is accurate only about

half the time.  A coin tossed into the

air would be about as good.  I got mine

in Arkansas, right on the Oklahoma border. 

So did a bunch of my husband's family. 

We own 80 acres there and I am selling it so none of my family is ever

tempted to go there.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Bingham

I

suspect Lyme is missed very often too. In places like Texas and Oklahoma we

had tons of ticks, but rarely did anyone check for Lyme unless the patient

insisted. It is rare nonetheless, but I bet we only get 1 of hundreds (if

that) since it mimics other things.

[Guest guest]

A vet in the Conn area was trying to find the freq of Lyme negative dogs but gave up as he could find none.There are more dogs than humans infected. CE Grim MDI don't believe Lyme is rare at all. The CDC reports 20,000 - 30,000 cases a year but estimates the actual incidence is at least ten times that. Since CDC confirmation requires a positive ELISA test,, of course their statistics are wrong. The ELISA is accurate only about half the time. A coin tossed into the air would be about as good. I got mine in Arkansas, right on the Oklahoma border. So did a bunch of my husband's family. We own 80 acres there and I am selling it so none of my family is ever tempted to go there. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham I suspect Lyme is missed very often too. In places like Texas and Oklahoma we had tons of ticks, but rarely did anyone check for Lyme unless the patient insisted. It is rare nonetheless, but I bet we only get 1 of hundreds (if that) since it mimics other things.