Re: Post Adrenalectomy

[Guest guest]

I'm about 6 weeks post op from a right minimally invasive adrenalectomy. My big problem was low K for the last 10 yrs. When the adenoma finally showed on a CT, I was ecstatic. I was not taking no for an answer when it came to surgery. I am doing great! I'm off all Spiro and doc is going to continue to wean me off my daily K dose (was 100meq/day, currently 50meq/day). My low K was discovered about 10 years ago during an ER visit for RLQ pain. It was critical at 2.6. I haven't heard much from anyone else about their post-adrenalectomy experience but mine has changed my life completely!

Juli

Subject: New memberTo: hyperaldosteronism Date: Tuesday, February 1, 2011, 9:16 PM

I just found this group today after a google search landed me at NORD. Anyway, I was diagnosed with PA in 2007. Tumor on left adrenal though AVS could only get blood from left adrenal did not know if any aldosterone was coming from right adrenal. Recommended an adrenalectomy. Surgeon was content to wait six months as my blood pressure was high normal. Nephrologist scared me to death debating whether I should have surgery or take meds. I ended up waiting about six months and getting pregnant. Aldosterone is supressed in pregnancy so no BP issues. Lost that baby at 11 weeks and decided to try a 30 day juice fast/cleansing program. It was a bit tough, but I felt great and my BP was phenomenal. Generally around 105/65. I was thrilled. AFterward when I started normal eating it went up a bit and I ate mostly vegan for a few months. Got the flu and it was normal for the next two months when I got pregnant again. Normal pregnancy, healthy baby and yet BP

was somewhat up afterward. I did a 27 day juice fast/raw food diet with no herbs since I was nursing. While juicing and eating totally raw BP is down in the 105/65 range. Add cooked veggies and it went up a little and then with normal eating stayed around 130/85. I would get occasional high readings, but after sitting a few minutes, a few deep breaths it was down to high normal.At Christmas I went to the dr. with another issue and BP was high. Decided I neeed to revisit the whole PA thing again. Tried to get dr. to retest Aldosterone levels after my fast, but they wouldn't. Today they called telling me my labwork came back with low potassium - 2.9. Now I really feel that the tumor is there and I have PA. Anybody ever try anything natural to deal with this situation? At this point I am not against an adrenelectomy, but would really like to know what my quality of life will be after and what meds I would require. I am pretty healthy

otherwise. Have 5 kids 14 months - 10 years and want to be able to keep up with them.What is the recovery like for the adrenelectomy? I am now in Tampa and would be interested in recommendations for dr.s in this area or the Gainesville, FL area. I look forward to learning alot from this group.

[Guest guest]

That is the ususal story in the short term. People who do well seem to drop out of our group. Trust you will keep us posted for the next 30 years or so.CE Grim MDI'm about 6 weeks post op from a right minimally invasive adrenalectomy. My big problem was low K for the last 10 yrs. When the adenoma finally showed on a CT, I was ecstatic. I was not taking no for an answer when it came to surgery. I am doing great! I'm off all Spiro and doc is going to continue to wean me off my daily K dose (was 100meq/day, currently 50meq/day). My low K was discovered about 10 years ago during an ER visit for RLQ pain. It was critical at 2.6. I haven't heard much from anyone else about their post-adrenalectomy experience but mine has changed my life completely! Juli Subject: New memberTo: hyperaldosteronism Date: Tuesday, February 1, 2011, 9:16 PM I just found this group today after a google search landed me at NORD. Anyway, I was diagnosed with PA in 2007. Tumor on left adrenal though AVS could only get blood from left adrenal did not know if any aldosterone was coming from right adrenal. Recommended an adrenalectomy. Surgeon was content to wait six months as my blood pressure was high normal. Nephrologist scared me to death debating whether I should have surgery or take meds. I ended up waiting about six months and getting pregnant. Aldosterone is supressed in pregnancy so no BP issues. Lost that baby at 11 weeks and decided to try a 30 day juice fast/cleansing program. It was a bit tough, but I felt great and my BP was phenomenal. Generally around 105/65. I was thrilled. AFterward when I started normal eating it went up a bit and I ate mostly vegan for a few months. Got the flu and it was normal for the next two months when I got pregnant again. Normal pregnancy, healthy baby and yet BP was somewhat up afterward. I did a 27 day juice fast/raw food diet with no herbs since I was nursing. While juicing and eating totally raw BP is down in the 105/65 range. Add cooked veggies and it went up a little and then with normal eating stayed around 130/85. I would get occasional high readings, but after sitting a few minutes, a few deep breaths it was down to high normal.At Christmas I went to the dr. with another issue and BP was high. Decided I neeed to revisit the whole PA thing again. Tried to get dr. to retest Aldosterone levels after my fast, but they wouldn't. Today they called telling me my labwork came back with low potassium - 2.9. Now I really feel that the tumor is there and I have PA. Anybody ever try anything natural to deal with this situation? At this point I am not against an adrenelectomy, but would really like to know what my quality of life will be after and what meds I would require. I am pretty healthy otherwise. Have 5 kids 14 months - 10 years and want to be able to keep up with them.What is the recovery like for the adrenelectomy? I am now in Tampa and would be interested in recommendations for dr.s in this area or the Gainesville, FL area. I look forward to learning alot from this group.

[Guest guest]

I absolutely will! It makes things so much easier for all of us that share their experiences. I want others to be able to see what life is like, at least for me, after my "cure"!

Juli

Subject: New memberTo: hyperaldosteronism Date: Tuesday, February 1, 2011, 9:16 PM

I just found this group today after a google search landed me at NORD. Anyway, I was diagnosed with PA in 2007. Tumor on left adrenal though AVS could only get blood from left adrenal did not know if any aldosterone was coming from right adrenal. Recommended an adrenalectomy. Surgeon was content to wait six months as my blood pressure was high normal. Nephrologist scared me to death debating whether I should have surgery or take meds. I ended up waiting about six months and getting pregnant. Aldosterone is supressed in pregnancy so no BP issues. Lost that baby at 11 weeks and decided to try a 30 day juice fast/cleansing program. It was a bit tough, but I felt great and my BP was phenomenal. Generally around 105/65. I was thrilled. AFterward when I started normal eating it went up a bit and I ate mostly vegan for a few months. Got the flu and it was normal for the next two months when I got pregnant again. Normal pregnancy, healthy baby and yet BP

was somewhat up afterward. I did a 27 day juice fast/raw food diet with no herbs since I was nursing. While juicing and eating totally raw BP is down in the 105/65 range. Add cooked veggies and it went up a little and then with normal eating stayed around 130/85. I would get occasional high readings, but after sitting a few minutes, a few deep breaths it was down to high normal.At Christmas I went to the dr. with another issue and BP was high. Decided I neeed to revisit the whole PA thing again. Tried to get dr. to retest Aldosterone levels after my fast, but they wouldn't. Today they called telling me my labwork came back with low potassium - 2.9. Now I really feel that the tumor is there and I have PA. Anybody ever try anything natural to deal with this situation? At this point I am not against an adrenelectomy, but would really like to know what my quality of life will be

after and what meds I would require. I am pretty healthy otherwise. Have 5 kids 14 months - 10 years and want to be able to keep up with them.What is the recovery like for the adrenelectomy? I am now in Tampa and would be interested in recommendations for dr.s in this area or the Gainesville, FL area. I look forward to learning alot from this group.

[Guest guest]

Thanks. We have a file of adrenalectomy stories in our files I think.CE Grim MDI absolutely will! It makes things so much easier for all of us that share their experiences. I want others to be able to see what life is like, at least for me, after my "cure"! JuliSubject: New memberTo: hyperaldosteronism Date: Tuesday, February 1, 2011, 9:16 PM I just found this group today after a google search landed me at NORD. Anyway, I was diagnosed with PA in 2007. Tumor on left adrenal though AVS could only get blood from left adrenal did not know if any aldosterone was coming from right adrenal. Recommended an adrenalectomy. Surgeon was content to wait six months as my blood pressure was high normal. Nephrologist scared me to death debating whether I should have surgery or take meds. I ended up waiting about six months and getting pregnant. Aldosterone is supressed in pregnancy so no BP issues. Lost that baby at 11 weeks and decided to try a 30 day juice fast/cleansing program. It was a bit tough, but I felt great and my BP was phenomenal. Generally around 105/65. I was thrilled. AFterward when I started normal eating it went up a bit and I ate mostly vegan for a few months. Got the flu and it was normal for the next two months when I got pregnant again. Normal pregnancy, healthy baby and yet BP was somewhat up afterward. I did a 27 day juice fast/raw food diet with no herbs since I was nursing. While juicing and eating totally raw BP is down in the 105/65 range. Add cooked veggies and it went up a little and then with normal eating stayed around 130/85. I would get occasional high readings, but after sitting a few minutes, a few deep breaths it was down to high normal.At Christmas I went to the dr. with another issue and BP was high. Decided I neeed to revisit the whole PA thing again. Tried to get dr. to retest Aldosterone levels after my fast, but they wouldn't. Today they called telling me my labwork came back with low potassium - 2.9. Now I really feel that the tumor is there and I have PA. Anybody ever try anything natural to deal with this situation? At this point I am not against an adrenelectomy, but would really like to know what my quality of life will be after and what meds I would require. I am pretty healthy otherwise. Have 5 kids 14 months - 10 years and want to be able to keep up with them.What is the recovery like for the adrenelectomy? I am now in Tampa and would be interested in recommendations for dr.s in this area or the Gainesville, FL area. I look forward to learning alot from this group.