Re: Is this CMT

[Guest guest]

Buffy,

I was 10 with high arches. Just walked up and down my doctor's halls.

He also looked at the bottoms of my shoes, which I was wearing down

on the sides from foot rolling. This was 1962, WAY before all the

testing done now.

Subsequently I had tendon surgery on both feet which has lasted very

well all these years. I have never worn braces nor do I now.

I do have a pes cavus right foot.

My EMG results were also normal - the last one, in '99, was more in

depth and showed some reinnervation, which suggests CMT Type 2, as

opposed to Type 1. In the EMG tests, there is a 'range' of numbers

for 'normal'.

I also do not have any CMT evident in my family history.

I can't tell you if your son has CMT or not - maybe next step after

the EMG might be a DNA blood test.

Sometimes because of muscle atrophy, bones will be pulled in the

wrong way or too much stress will be placed on joints. I have always

had a slight 2 " indentation in my peroneal muscle (front leg muscle)

but do not have footdrop, I can wiggles my toes, feet and ankles fine.

~ Gretchen

[Guest guest]

Buffy,

My heels curved in and I had surgery when I was 15 and 16 - 20 + years ago. I

am not sure what they would do now to correct the problem. They cut my heels in

half and repositioned them. I was in a cast for 2 months per foot. My right

heel turned out great and my left is turning in again. I am going to an

orthopedic in January to see what my options are. My left ankle turns when I

step on small rock or stick. My podiatrist said I should have been in orthotics

after my surgery but I did not get those until I was 29.

Hope this helps.

Vicky