Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 hi Sandy and Tim What a change to hear some lovely news. Well no one deserves it more that you all do. You have put so much into Eddie's recovery and it has certainly paid off. As a former hairdresser i know how difficult cutting a child with ASD's hair is, so what you have described is fantastic. best wishes Darren and Mariella x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 hi Sandy and Tim What a change to hear some lovely news. Well no one deserves it more that you all do. You have put so much into Eddie's recovery and it has certainly paid off. As a former hairdresser i know how difficult cutting a child with ASD's hair is, so what you have described is fantastic. best wishes Darren and Mariella x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 What great news, well done. Vicky x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 I’m lost for words! Congratulations doesn’t seem enough. I can’t stop crying. Well done! Even though that’s a pathetic thing to say too! You have worked unbelievably hard and I’ve followed your story all the way. Sandy, can I forward this message to my mum and a couple of friends please? Thanks, SARA x -----Original Message----- From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Sandy and Tim Sent: 19 February 2008 19:15 To: Autism-Biomedical-Europe Subject: Eddie recovered Feb 15th 2008 Hi all, Can we share our good news please. First we should qualify this a bit ... It's not " official " Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours. We intend to work on Eddie's health until he has a flat belly full- time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc. *** BUT *** here's why we believe he recovered on 15th Feb ... Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby. Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people. So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support. Best wishes, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Sandy, Fantastic. What wonderful news and well deserved. Elaine From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Sandy and Tim Sent: 19 February 2008 19:15 To: Autism-Biomedical-Europe Subject: Eddie recovered Feb 15th 2008 Hi all, Can we share our good news please. First we should qualify this a bit ... It's not " official " Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours. We intend to work on Eddie's health until he has a flat belly full- time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc. *** BUT *** here's why we believe he recovered on 15th Feb ... Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby. Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people. So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support. Best wishes, Sandy No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.7/1286 - Release Date: 18/02/2008 18:49 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.7/1286 - Release Date: 18/02/2008 18:49 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Wow, what a reason to celebrate everyone on this board. What spellbinding news. Your title of the thread put the hairs up my back. HOpe for all of our wonderful children. thank you for this. > > I'm lost for words! Congratulations doesn't seem enough. I can't stop > crying. Well done! Even though that's a pathetic thing to say too! You > have worked unbelievably hard and I've followed your story all the way. > Sandy, can I forward this message to my mum and a couple of friends > please? Thanks, SARA x > > Eddie recovered Feb 15th 2008 > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Fantastic news Sandy and Tim! I caanot imagine how you must be feeling now. Well done on all your hard work on a very long journey! All the best, Angelle > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 -Sandy and Tim, I'm so happy for you and Eddie. What wonderful,dedicated parents you are. Many congratulations, Sharon.x -- In Autism-Biomedical-Europe , " Sandy and Tim " wrote: > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Sandy and Tim Absolutely fantastic news well done - all that hard work and dedication has finally paid off. He looked just like a normal child when we saw you at Park Hall Farm recently. Looking forward to Manchester now.. Best wishes Joanne > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi That is amazing - well done to both of you - Eddie is so lucky to have parents like you! Can I ask if you were to summarise the top tips of how you have got Eddie to where you are now (I don't always have time to read all the forum messages) - what would you say are your top 10 tips! We are striving to get to where you are with our 6 year old son Luke! Best wishes Nicola Eddie recovered Feb 15th 2008 Hi all,Can we share our good news please. First we should qualify this a bit ... It's not "official" Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours.We intend to work on Eddie's health until he has a flat belly full-time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc.*** BUT *** here's why we believe he recovered on 15th Feb ...Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby.Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people.So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support.Best wishes,Sandy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.8/1287 - Release Date: 19/02/2008 10:55 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Can you share your news?! Of course, of course!! I am all misty-eyed for the three of you. Congratulations and enjoy every wonderful moment. I know you have some way to go for Eddie's health, but I am positive you will get there, and soon. Warmly, Anita > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Fantastic news! You could say “hair today gone tomorrow”….. n x From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Sandy and Tim Sent: 19 February 2008 19:15 To: Autism-Biomedical-Europe Subject: Eddie recovered Feb 15th 2008 Hi all, Can we share our good news please. First we should qualify this a bit ... It's not " official " Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours. We intend to work on Eddie's health until he has a flat belly full- time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc. *** BUT *** here's why we believe he recovered on 15th Feb ... Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby. Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people. So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support. Best wishes, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 It's not "official" Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours. >>Thats awesome Sandy and Tim and Little Eddie, you have all worked so hard, treat your self to alittle time to just enjoy! Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 that's gereat news sandy melissaxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Sandy and Tim, What a gorgeous story. I am so deeply moved by this and so pleased for you all. Life just doesn't get any better than this. Well done to all of you, you've all worked so very hard - even treating yourselves! Congratulations, Darla x Hi all,Can we share our good news please. First we should qualify this a bit ... It's not "official" Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours.We intend to work on Eddie's health until he has a flat belly full-time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc.*** BUT *** here's why we believe he recovered on 15th Feb ...Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby.Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people.So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support.Best wishes,Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Thanks for sharing, it was lovely to hear how well he done at the hairdressers. n s wrote: Fantastic news! You could say “hair today gone tomorrow”….. n x From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Sandy and TimSent: 19 February 2008 19:15To: Autism-Biomedical-Europe Subject: Eddie recovered Feb 15th 2008 Hi all,Can we share our good news please. First we should qualify this a bit ... It's not "official" Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours.We intend to work on Eddie's health until he has a flat belly full-time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc.*** BUT *** here's why we believe he recovered on 15th Feb ...Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby.Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people.So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support.Best wishes,Sandy Support the World Aids Awareness campaign this month with Yahoo! for Good Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 --- What wonderful wonderful news, gives strength and hope to all .Nina. In Autism-Biomedical-Europe , melissaeasthope@... wrote: > > that's gereat news sandy > > melissaxx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > This is the best! Well done! I know that doesn't quite say enough really. Lucky little Eddie, having you two as parents. And having two birthdays to celebrate now! Thank you for sharing this news, and thank you for helping newbies like me along the way. Jane x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Congratulations - that's lovely news. Peta-- - In Autism-Biomedical-Europe , " Sandy and Tim " wrote: > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi Nicola Taking directly from our list of " wows " on Eddie's web site, I'd say the top ten or so would tentatively be: Diet: GFCF then Specific Carbohydrate Diet (SCD) Removing Soya Digestive Enzymes (Houston) mB12 and B12 Probiotics Epsom Salt Baths Adrenal and Thyroid Support Consulting with Muscroft Following Amy Yasko's Genomic Interpretation Nystatin & Metronidazole Artemesia Oregano Oil Obviously some are more specific to Eddie than others but they're all things that have made us say " wow " ! I think you also can't underestimate the combined effects of lots of little things that don't, on their own, always seem to have any observable effect. We've put a fairly complete list of things we do on Eddie's web site: http://www.endofthetunnel.co.uk/eddie/ (follow the " Eddie's Interventions " link). Some of them sound a little crazy but if they do no harm we're happy to give it a go! My number one tip, though, would be to never stop believing that Luke is going to make a full and complete recovery and that every little improvement, no matter how small, is another step towards that goal. When it comes to the healing potential of the human body, nothing is impossible. Best wishes Tim PS. Many thanks to everyone for their kind messages of congratulations. I've had some quite unmanly moments reading through them all! > > Hi > > That is amazing - well done to both of you - Eddie is so lucky to have parents like you! > > Can I ask if you were to summarise the top tips of how you have got Eddie to where you are now (I don't always have time to read all the forum messages) - what would you say are your top 10 tips! > > We are striving to get to where you are with our 6 year old son Luke! > > Best wishes > Nicola > > > Eddie recovered Feb 15th 2008 > > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > > > > > > > ------------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.20.8/1287 - Release Date: 19/02/2008 10:55 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 hi sandy and tim, just been reading your wonderful news, thank you for sharing it i am really inspired by your wonderful story. warm wishes and huge congratulations, patricia Sandy and Tim wrote: Hi all,Can we share our good news please. First we should qualify this a bit ... It's not "official" Eddie is still being formally assessed for recovery and this will take a few months yet - BUT we have decided he is fully recovered in terms of autism behaviours.We intend to work on Eddie's health until he has a flat belly full-time and can eat, healthily and within reason, what he likes without regression or fear of anaphylaxis. Basically we want his recovery to include his health AND not be conditional on supplements etc.*** BUT *** here's why we believe he recovered on 15th Feb ...Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his life AND had a haircut AND chatted with the lovely hairdressers (who had no idea about anything) Big high chair, scissors, water spray, hairdryer, more water spray and more scissors. He was there quite a few minutes - spoke to the other hairdresser who was saying how great he was if this was really his first time. Thought it was all very interesting and fun (the water spray was a hoot). Kept still, looked up, down etc. Answered all questions and chatted back. Just amazing. I have only ever cut Eddie's hair while he was sleeping except for maybe once when he was a very small baby.Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 years - no kisses no cuddles - not that he had EVER cuddled back or held on etc because Eddie had very early onset autism. Then light sensitivity kept us from going ANYWHERE except home, grandparents and shops like B & Q or supermarkets that had very high ceilings. Outside was OK but we couldn't mix with people.So we decided that Eddie has recovered. A 4yr 4month old who can enjoy a haircut in a hairdressers (and he's never been in one before) is what I call recovered. I didn't know that was going to be our recovery test! I was just so overwhelmed at the time - and we all thought it was so so incredible. It has been a long slog - many ups and downs - and we've got further to go yet with health and anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism recovery day :-) Thanks so much everyone for all your support.Best wishes,Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Wonderful, Marvelous, Well Done all of you, keep up the good work, Very Inspiring! Nikki x In Autism-Biomedical-Europe , " Sandy and Tim " wrote: > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 --- Sandy, Tim and of course Eddie - Congratulations to you all, wonderful news, and such a boost to us all here. Thanks for sharing and warmest wishes for the future. Glynis In Autism-Biomedical-Europe , " Sandy and Tim " wrote: > > Hi all, > > Can we share our good news please. First we should qualify this a > bit ... > > It's not " official " Eddie is still being formally assessed for > recovery and this will take a few months yet - BUT we have decided he > is fully recovered in terms of autism behaviours. > > We intend to work on Eddie's health until he has a flat belly full- > time and can eat, healthily and within reason, what he likes without > regression or fear of anaphylaxis. Basically we want his recovery to > include his health AND not be conditional on supplements etc. > > *** BUT *** here's why we believe he recovered on 15th Feb ... > > Eddie went to the HAIRDRESSERS on Feb 15th for the first time in his > life AND had a haircut AND chatted with the lovely hairdressers (who > had no idea about anything) Big high chair, scissors, water spray, > hairdryer, more water spray and more scissors. He was there quite a > few minutes - spoke to the other hairdresser who was saying how great > he was if this was really his first time. Thought it was all very > interesting and fun (the water spray was a hoot). Kept still, looked > up, down etc. Answered all questions and chatted back. Just > amazing. I have only ever cut Eddie's hair while he was sleeping > except for maybe once when he was a very small baby. > > Eddie's touch sensitivity meant we couldn't even hold him for maybe 2 > years - no kisses no cuddles - not that he had EVER cuddled back or > held on etc because Eddie had very early onset autism. Then light > sensitivity kept us from going ANYWHERE except home, grandparents and > shops like B & Q or supermarkets that had very high ceilings. Outside > was OK but we couldn't mix with people. > > So we decided that Eddie has recovered. A 4yr 4month old who can > enjoy a haircut in a hairdressers (and he's never been in one before) > is what I call recovered. I didn't know that was going to be our > recovery test! I was just so overwhelmed at the time - and we all > thought it was so so incredible. It has been a long slog - many ups > and downs - and we've got further to go yet with health and > anaphylaxis. But we've decided Feb 15th 2008 is Eddie's autism > recovery day :-) > > Thanks so much everyone for all your support. > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Wow - thank you everyone!! Your lovely comments mean so much to us. You have helped us so so many times with ideas and motivation. This is a fantastic forum Mandi and where would we be without Treating Autism? We really are blessed to have such supportive friends :-) Sara and everyone - please feel free to copy our post. Eddie's few web pages are www.endofthetunnel.co.uk/eddie and his TA article is at http://www.endofthetunnel.co.uk/files/TA_Newsletter_Autumn_2007.pdf You really are so kind everyone - how can we say thank you enough. Best wishes, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Tat's amazing guys. Well done. Haircuts at horrible for kids at the best of times ( I had to hold mmy 2 yo NT kid in a headlock lat Sunday in order to cut his hair!). For Eddie to ave done so well is clearly a huge step. > > Wow - thank you everyone!! Your lovely comments mean so much to us. > You have helped us so so many times with ideas and motivation. This is > a fantastic forum Mandi and where would we be without Treating Autism? > > We really are blessed to have such supportive friends :-) > > Sara and everyone - please feel free to copy our post. > Eddie's few web pages are www.endofthetunnel.co.uk/eddie > and his TA article is at > http://www.endofthetunnel.co.uk/files/TA_Newsletter_Autumn_2007.pdf > > You really are so kind everyone - how can we say thank you enough. > > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.