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My aldo/plasma renin says 1.16 ng/ml/h, aldo ratio is 0.9, aldo lc/ms/ms is 1.

My sodium/creat ratio is 416, sodium random urine is 104, and creatine random

urine is 25. Does this look okay? Thank you

> >

> >

> > Subject: Mass found on my left adrenal gland

> > To: hyperaldosteronism

> > Date: Sunday, January 16, 2011, 1:11 PM

> >

> >

> > I want to start from the beginning as to the very first symptom. Im pretty

sure Conn's is what I have. These symptoms started the first of August and they

keep getting worse. I was picking beans in the garden and my legs just felt like

jello, weak. I thought it was from being out of shape, but I felt like this all

week long. I never had any pain at all. After a month of my legs feeling like

this I started thinking I had MS or something. Then along with my legs feeling

weak my vision was blurred, I gained 25 lbs. and I swear it all went to my

stomach like I'm pregnant. I kept going brushing it off until I had a hard time

climbing the stairs. It was like my knees would just give out. After 3 months of

this I went to my family Dr. He tested me for MS, lots of blood work, EKG and

everything come back normal (I also had no reflexes when he tested me and my

blood pressure was 160/90). He said something about treating me for depression,

like this is all in my head I wasnt going back. I am on NO medication at all.

Then after another month it started going up into my upper body. Not only are my

legs weak but my upper body as well. I look like a moran walking so slow like I

just cant make it another step. The only thing that makes me feel better is

taking potassium pills, I take 8 to 12 aday not sure if this is good for me or

not but I atleast have some energy. I can fall asleep at any time of the day and

I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns

syndrome and went back to the Dr and demanded the test. He did blood work, urine

sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just

recently had this done. I've been working up until I went in to get my results

which was last Monday. He said the CT showed a mass on my left adrenal gland. My

blood work all shows normal. I got copies of all my lab work and my sodium is

416H I know thats not normal. My potassium/creatine ratio in my urine is 64,

random 16, and creatinine 25. Not sure what all this is I just need some help. I

cant take this anymore. After the Dr. told me all this I became like more weaker

and I fell going to the bathroom that night and started to get terrible muscle

spasms in my upper back and left shoulder. I called him and he gave me a pain

med and muscle relaxer I took one of each and it just didn't help. It lasted for

two days and now I'm okay I'm just sore there. My shoulder and my side in my rib

still is tender and will spasm when I go to bed only. Please someone help. Also

my chest hurts sometimes like I cant take a deep breath it hurts and my ears are

plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try

does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> >

> >

>

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Posted
Posted

My aldo/plasma renin says 1.16 ng/ml/h, aldo ratio is 0.9, aldo lc/ms/ms is 1.

My sodium/creat ratio is 416, sodium random urine is 104, and creatine random

urine is 25. Does this look okay? Thank you

> >

> >

> > Subject: Mass found on my left adrenal gland

> > To: hyperaldosteronism

> > Date: Sunday, January 16, 2011, 1:11 PM

> >

> >

> > I want to start from the beginning as to the very first symptom. Im pretty

sure Conn's is what I have. These symptoms started the first of August and they

keep getting worse. I was picking beans in the garden and my legs just felt like

jello, weak. I thought it was from being out of shape, but I felt like this all

week long. I never had any pain at all. After a month of my legs feeling like

this I started thinking I had MS or something. Then along with my legs feeling

weak my vision was blurred, I gained 25 lbs. and I swear it all went to my

stomach like I'm pregnant. I kept going brushing it off until I had a hard time

climbing the stairs. It was like my knees would just give out. After 3 months of

this I went to my family Dr. He tested me for MS, lots of blood work, EKG and

everything come back normal (I also had no reflexes when he tested me and my

blood pressure was 160/90). He said something about treating me for depression,

like this is all in my head I wasnt going back. I am on NO medication at all.

Then after another month it started going up into my upper body. Not only are my

legs weak but my upper body as well. I look like a moran walking so slow like I

just cant make it another step. The only thing that makes me feel better is

taking potassium pills, I take 8 to 12 aday not sure if this is good for me or

not but I atleast have some energy. I can fall asleep at any time of the day and

I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns

syndrome and went back to the Dr and demanded the test. He did blood work, urine

sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just

recently had this done. I've been working up until I went in to get my results

which was last Monday. He said the CT showed a mass on my left adrenal gland. My

blood work all shows normal. I got copies of all my lab work and my sodium is

416H I know thats not normal. My potassium/creatine ratio in my urine is 64,

random 16, and creatinine 25. Not sure what all this is I just need some help. I

cant take this anymore. After the Dr. told me all this I became like more weaker

and I fell going to the bathroom that night and started to get terrible muscle

spasms in my upper back and left shoulder. I called him and he gave me a pain

med and muscle relaxer I took one of each and it just didn't help. It lasted for

two days and now I'm okay I'm just sore there. My shoulder and my side in my rib

still is tender and will spasm when I go to bed only. Please someone help. Also

my chest hurts sometimes like I cant take a deep breath it hurts and my ears are

plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try

does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> >

> >

>

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I do have a urine sample they took and this says potassium/creatine ratio 64,

potasium random urine 16, and creatinine random urine 25. Besides the blood at

4.4. Does this help? Should I request something when I go today? Thank you

for your help

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > Subject: Mass found on my left adrenal

gland

> > > > > > > > > To: hyperaldosteronism

> > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Â

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > I want to start from the beginning as to the very first

symptom. Im pretty sure Conn's is what I have. These symptoms started the first

of August and they keep getting worse. I was picking beans in the garden and my

legs just felt like jello, weak. I thought it was from being out of shape, but I

felt like this all week long. I never had any pain at all. After a month of my

legs feeling like this I started thinking I had MS or something. Then along with

my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all

went to my stomach like I'm pregnant. I kept going brushing it off until I had a

hard time climbing the stairs. It was like my knees would just give out. After 3

months of this I went to my family Dr. He tested me for MS, lots of blood work,

EKG and everything come back normal (I also had no reflexes when he tested me

and my blood pressure was 160/90). He said something about treating me for

depression, like this is all in my

> > > > > > > > > head I wasnt going back. I am on NO medication at all. Then

after another month it started going up into my upper body. Not only are my legs

weak but my upper body as well. I look like a moran walking so slow like I just

cant make it another step. The only thing that makes me feel better is taking

potassium pills, I take 8 to 12 aday not sure if this is good for me or not but

I atleast have some energy. I can fall asleep at any time of the day and I'm in

bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome

and went back to the Dr and demanded the test. He did blood work, urine sampling

24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently

had this done. I've been working up until I went in to get my results which was

last Monday. He said the CT showed a mass on my left adrenal gland. My blood

work all shows normal. I got copies of all my lab work and my sodium is 416H I

know thats not normal. My

> > > > > > > > > potassium/creatine ratio in my urine is 64, random 16, and

creatinine 25. Not sure what all this is I just need some help. I cant take this

anymore. After the Dr. told me all this I became like more weaker and I fell

going to the bathroom that night and started to get terrible muscle spasms in my

upper back and left shoulder. I called him and he gave me a pain med and muscle

relaxer I took one of each and it just didn't help. It lasted for two days and

now I'm okay I'm just sore there. My shoulder and my side in my rib still is

tender and will spasm when I go to bed only. Please someone help. Also my chest

hurts sometimes like I cant take a deep breath it hurts and my ears are plugged.

Oh and I can't yawn or sneeze I'm just too weak to even though I try does this

make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > >

> > > > > > > > Thank you for replying to my message I was about ready to give

up. Im new to this and wasn't even sure I posted this correctly or maybe it was

too long of a story but I just dont want to miss anything. I have been freaked

out since this happened to me and have been searching the web non stop since.

I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm

just hoping I do. I know that sounds bad, but it's something. Alot of what the

Group is saying is new language to me. If you can kind of fill me in quick on

how this works I would really appreciate it. Thanks again Kristy

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

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Posted
Posted

Hopefully Dr Girm will get to see this and your other posting before you go to

Dr. I think he can give you some information based on this.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > > Subject: Mass found on my left adrenal

gland

> > > > > > > > > > To: hyperaldosteronism

> > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Â

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > I want to start from the beginning as to the very first

symptom. Im pretty sure Conn's is what I have. These symptoms started the first

of August and they keep getting worse. I was picking beans in the garden and my

legs just felt like jello, weak. I thought it was from being out of shape, but I

felt like this all week long. I never had any pain at all. After a month of my

legs feeling like this I started thinking I had MS or something. Then along with

my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all

went to my stomach like I'm pregnant. I kept going brushing it off until I had a

hard time climbing the stairs. It was like my knees would just give out. After 3

months of this I went to my family Dr. He tested me for MS, lots of blood work,

EKG and everything come back normal (I also had no reflexes when he tested me

and my blood pressure was 160/90). He said something about treating me for

depression, like this is all in my

> > > > > > > > > > head I wasnt going back. I am on NO medication at all. Then

after another month it started going up into my upper body. Not only are my legs

weak but my upper body as well. I look like a moran walking so slow like I just

cant make it another step. The only thing that makes me feel better is taking

potassium pills, I take 8 to 12 aday not sure if this is good for me or not but

I atleast have some energy. I can fall asleep at any time of the day and I'm in

bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome

and went back to the Dr and demanded the test. He did blood work, urine sampling

24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently

had this done. I've been working up until I went in to get my results which was

last Monday. He said the CT showed a mass on my left adrenal gland. My blood

work all shows normal. I got copies of all my lab work and my sodium is 416H I

know thats not normal. My

> > > > > > > > > > potassium/creatine ratio in my urine is 64, random 16, and

creatinine 25. Not sure what all this is I just need some help. I cant take this

anymore. After the Dr. told me all this I became like more weaker and I fell

going to the bathroom that night and started to get terrible muscle spasms in my

upper back and left shoulder. I called him and he gave me a pain med and muscle

relaxer I took one of each and it just didn't help. It lasted for two days and

now I'm okay I'm just sore there. My shoulder and my side in my rib still is

tender and will spasm when I go to bed only. Please someone help. Also my chest

hurts sometimes like I cant take a deep breath it hurts and my ears are plugged.

Oh and I can't yawn or sneeze I'm just too weak to even though I try does this

make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > > >

> > > > > > > > > Thank you for replying to my message I was about ready to give

up. Im new to this and wasn't even sure I posted this correctly or maybe it was

too long of a story but I just dont want to miss anything. I have been freaked

out since this happened to me and have been searching the web non stop since.

I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm

just hoping I do. I know that sounds bad, but it's something. Alot of what the

Group is saying is new language to me. If you can kind of fill me in quick on

how this works I would really appreciate it. Thanks again Kristy

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

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Posted
Posted

Hopefully Dr Girm will get to see this and your other posting before you go to

Dr. I think he can give you some information based on this.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > > Subject: Mass found on my left adrenal

gland

> > > > > > > > > > To: hyperaldosteronism

> > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Â

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > I want to start from the beginning as to the very first

symptom. Im pretty sure Conn's is what I have. These symptoms started the first

of August and they keep getting worse. I was picking beans in the garden and my

legs just felt like jello, weak. I thought it was from being out of shape, but I

felt like this all week long. I never had any pain at all. After a month of my

legs feeling like this I started thinking I had MS or something. Then along with

my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all

went to my stomach like I'm pregnant. I kept going brushing it off until I had a

hard time climbing the stairs. It was like my knees would just give out. After 3

months of this I went to my family Dr. He tested me for MS, lots of blood work,

EKG and everything come back normal (I also had no reflexes when he tested me

and my blood pressure was 160/90). He said something about treating me for

depression, like this is all in my

> > > > > > > > > > head I wasnt going back. I am on NO medication at all. Then

after another month it started going up into my upper body. Not only are my legs

weak but my upper body as well. I look like a moran walking so slow like I just

cant make it another step. The only thing that makes me feel better is taking

potassium pills, I take 8 to 12 aday not sure if this is good for me or not but

I atleast have some energy. I can fall asleep at any time of the day and I'm in

bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome

and went back to the Dr and demanded the test. He did blood work, urine sampling

24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently

had this done. I've been working up until I went in to get my results which was

last Monday. He said the CT showed a mass on my left adrenal gland. My blood

work all shows normal. I got copies of all my lab work and my sodium is 416H I

know thats not normal. My

> > > > > > > > > > potassium/creatine ratio in my urine is 64, random 16, and

creatinine 25. Not sure what all this is I just need some help. I cant take this

anymore. After the Dr. told me all this I became like more weaker and I fell

going to the bathroom that night and started to get terrible muscle spasms in my

upper back and left shoulder. I called him and he gave me a pain med and muscle

relaxer I took one of each and it just didn't help. It lasted for two days and

now I'm okay I'm just sore there. My shoulder and my side in my rib still is

tender and will spasm when I go to bed only. Please someone help. Also my chest

hurts sometimes like I cant take a deep breath it hurts and my ears are plugged.

Oh and I can't yawn or sneeze I'm just too weak to even though I try does this

make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > > >

> > > > > > > > > Thank you for replying to my message I was about ready to give

up. Im new to this and wasn't even sure I posted this correctly or maybe it was

too long of a story but I just dont want to miss anything. I have been freaked

out since this happened to me and have been searching the web non stop since.

I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm

just hoping I do. I know that sounds bad, but it's something. Alot of what the

Group is saying is new language to me. If you can kind of fill me in quick on

how this works I would really appreciate it. Thanks again Kristy

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

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Yes you want the 24 hr excretion so need urine volume. But it must not have been a 24 hr urine.If you were dashing there would be more Na and K in the urine.Tell us exactly how they drew the blood. Fist clenching etc. Are you hard to draw.See item 7 below. Welcome to the exciting world of Hyperaldosteronism! You are in the right place! I am Dr. CE Grim a retired Professor of Medicine and Endocrinology. I have a long standing interest is Primary Aldosteronism since medical school days when I saw my first patient with Primary Aldosteronism in 1963. I trained with Dr. Jerome W. Conn in Endocrinology and Metabolism 1969-70 and have published over 240 papers and book chapters in most areas of the broad discipline of High Blood Pressure. My CV is in our files for details. The goal of our group is to teach you and your health care team about the ins and outs of the causes, diagnosis and control of the many forms of hyperaldosteronism. The steps below will introduce you into the fascinating world of high blood pressure, salt (sodium(Na) chloride (Cl) or NaCL) and potassium (K) and the role of the adrenal hormone aldosterone in health and disease. Doing these in sequence will save you time and effort in getting up to speed in taking control of you health and educating your own health care team. While we can’t make you into a doctor we will make you into a pretty good BP doctor-a skill that you will have for life and you can transfer to the rest of your family who will likely have high blood pressure eventually-if they live long enough. 1. A brief history of Primary Aldosteronsim and why it is so common today in drug resistant high blood pressure. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. This is a brief review of most causes of hyperaldosteronism, high blood pressure, low potassium (K). READING THIS HOW WILL SAVE YOU TIME AND MONEY. By taking it to your health care team they will not treat their other patients as badly as they may have treated you. 2. Read about other patients with hyperaldosteronism (Conn’s syndrome). Read our Conn's stories in our files and then give us your own in as much detail as you can. Dr. Conn was the first to describe this disease process and the syndrome is named after him. The first patient is described in my review article.To see others' stories, on the Hyperaldosteronism home page, go to Files/Conn’s Stories. You'll find instructions in "A - How to put your story here.doc " First send us your story in an email and they we may have questions and suggestions before you upload it to our files. 3. DASH to lower your BP. Your and my tax dollars funded the most important series of studies on how to improve blood pressure, blood sugar, blood lipids and make your heart smaller: The DASH Eating Plan to control high blood pressure due to hyperaldosteronism and most others with high blood pressure. This will reduce your need for medications and in many will get your BP and K to goal without meds.. Get the DASH diet book by T. et al, (http://www.amazon.com/DASH-Diet-Hypertension--/dp/0743202953) read it and use it: ~$8 in paperback at your local bookstore or online. If they don’t have it ask them to order it for you. You can also get the hardback larger print version as well at Amazon. Learning to eat the DASH way will play a major role in your road to good BP and K control and, in many of our folks here, will revolutionize your life. See http://en.wikipedia.org/wiki/DASH_diet for an overview and more details. In the book go to chapter 9 and do the 14 day challenge. Tell your Dr you are doing this as your BP may plummet if you are on other meds. Measure your BP every day and post to us. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP (20/10 mm Hg or more) and let your Dr. know you are doing this. And/Or go to (but costs money monthly) DASH Diet for Health Program (http://www.dashforhealth.com/pages/public/tour.php)The DASH Diet for Health Program is designed to help you improve your eating and exercise habits. Twice each week they will provide you with information on our website about food, food preparation, eating out, losing weight, getting fit and much more. In addition to providing new information each week on the website, they create a web page specially for you where you can track progress in areas such as your weight, blood pressure, and exercise. I strongly recommend you get this book by .... and read it. 4. Measure your BP: Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. We recommend you use a device you listen to and will help you learn how to do this. If this is not something you want to do we can teach a significant other how to do it. See sharedcareinc.com or email to sharedcare@... to order a video on how to do this. If you already have one we will teach you how to teach your health care team how to validate your device. Your life and health depends on accurate BP measurements. Go to the amricanheart.org and download the Guidelines for Human Blood Pressure Measurement. Insist that your health care team do BP the AHA way. Never trust your life to an automatic BP machine unless you know it is accurate on YOU. 5. Genetics and your BP: Go to familyhistory.hhs.gov and do your detailed family medical history (FHx or FH) so we can review with you to help diagnosis (Dx) and treat (Rx) familial causes of high blood pressure and heart disease. If BP runs in your family you may save lives in your family by checking their BP yourself. 6. How to DX and treat PA: Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. It is old but still one of the best in the medical management of PA. DX: Also see our file from the Endocrine Society Guidelines on PA. 7. Dr. Grim's Perfect Primary Aldosteronism Blood and Urine Testing to diagnose PA in one day. 1. Eat a regular to high salt diet for 2 weeks.2. No BP meds in last 4-12 weeks depending on meds.3. Collect 24 hr urine for Na, K and creatinine and aldosterone. Do not lose a drop of this liquid gold. It is impossible to interpret the renin and aldo without this urine.4. The morning you finish the 24 hr urine have fasting blood drawn for renin, aldo and K using our guidelines to get an accurate K. Try to get this done about 4 hours after you have been out of bed.5. Send us the results with the normal values for your lab.6. If you ever have a salt (saline) infusion test for PA be certain to ask them to measure how much you pee during the 4 hours of the infusion. If it is 1-1.5 liter of urine it strongly suggests that you may have PA. If more tha 1.5 L you almost certainly have PA. 8. Become a participant in our PA Registry and contribute to our large database on PA: If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don't know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 9. Learn the language: If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/2918610. Salt and high blood pressure: To learn the state of the science of salt and blood pressure please spend some time looking at http://www.worldactiononsalt.com/evidence/treatment_trials.htm11. Become a HBP expert consumer: Expect that it will take at least several weeks to get all this digested and to learn the new language of high blood pressure health care. As most doctors and nurses in practice have had very little training in high blood pressure you must become an expert yourself. For example most have never had anyone listen with them with a double stethoscope to verify that they can hear BP sounds. We cannot make you a doctor but we will make you a pretty good BP doctor.12. How High Blood Pressure should be managed: Go to nih.gov and download and read the Joint National Commission (JNC) Report 7 to get an overview on current guidelines. I ask all my secretaries to read this so they can communicate the importance of high blood pressure to my patients. JNC 8 will be out soon.Then: get (and study) the Hypertension Primer from americanheart.org 4th addition. I coauthored the chapter on BP measurement. You can also get this for about $6 from Amazon.com. This is the most up-to-date compendium of what is known about high blood pressure and what every Dr. should know when they graduate from Medical School. Every chapter is only 2-3 pages. Read one chapter every week-night and you will finish it in about a year. I am working on a reading guide for lay people for the Primer. Stay tuned. If you don't like it take it to your health care team so they will know what every medical student today should know.13. Ask us questions: Ask any questions about high blood pressure you want answered. That is what we are here for. We have had this site for 10 years and over 30,000 emails are searchable. This is the largest collection of communications about Conn's Syndrome in the World. 14. One-on-one Consulting: I can provide individual consulting if you do not want to go public. If you want individual one-on-one consulting for you and your Doctor contract me directly at lowerbp2@....15: Abbreviations of common use in aldo speak include: AME apparent mineralocorticoid excess AVS adrenal vein sampling BB beta blockers CCB calcium channel blockers Dx diagnosis FHx family history GRE glucocorticoid remedial aldosteronism MCB mineralocorticoid blocker also called AB aldosterone blocker. MHx medical history Rx treatment SHx social history May your pressure be low!Clarence E. Grim BS, MS, MD, FACP, FACC, FAHA Council for High Blood Pressure Research. Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure by the American Society of Hypertension. Retired Faculty/Professor of Medicine (U of MO, Indiana, UCLA/DREW, Medical College of Wisconsin in Nephrology, Endocrinology, Cardiology, and Epidemiology. Specializing in Primary Aldosteronism and Difficult to Control High Blood Pressure. On Jan 17, 2011, at 7:59 AM, Francis Bill SUSPECTED PA wrote:Hopefully Dr Girm will get to see this and your other posting before you go to Dr. I think he can give you some information based on this.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > > > > > > > Subject: Mass found on my left adrenal gland> > > > > > > > > > To: hyperaldosteronism > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > > > > > > > > > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > > > > > > > > > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > > > > > > > >> > > > > > > > > Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > > > > > >> > > >> > >> >>

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Yes you want the 24 hr excretion so need urine volume. But it must not have been a 24 hr urine.If you were dashing there would be more Na and K in the urine.Tell us exactly how they drew the blood. Fist clenching etc. Are you hard to draw.See item 7 below. Welcome to the exciting world of Hyperaldosteronism! You are in the right place! I am Dr. CE Grim a retired Professor of Medicine and Endocrinology. I have a long standing interest is Primary Aldosteronism since medical school days when I saw my first patient with Primary Aldosteronism in 1963. I trained with Dr. Jerome W. Conn in Endocrinology and Metabolism 1969-70 and have published over 240 papers and book chapters in most areas of the broad discipline of High Blood Pressure. My CV is in our files for details. The goal of our group is to teach you and your health care team about the ins and outs of the causes, diagnosis and control of the many forms of hyperaldosteronism. The steps below will introduce you into the fascinating world of high blood pressure, salt (sodium(Na) chloride (Cl) or NaCL) and potassium (K) and the role of the adrenal hormone aldosterone in health and disease. Doing these in sequence will save you time and effort in getting up to speed in taking control of you health and educating your own health care team. While we can’t make you into a doctor we will make you into a pretty good BP doctor-a skill that you will have for life and you can transfer to the rest of your family who will likely have high blood pressure eventually-if they live long enough. 1. A brief history of Primary Aldosteronsim and why it is so common today in drug resistant high blood pressure. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. This is a brief review of most causes of hyperaldosteronism, high blood pressure, low potassium (K). READING THIS HOW WILL SAVE YOU TIME AND MONEY. By taking it to your health care team they will not treat their other patients as badly as they may have treated you. 2. Read about other patients with hyperaldosteronism (Conn’s syndrome). Read our Conn's stories in our files and then give us your own in as much detail as you can. Dr. Conn was the first to describe this disease process and the syndrome is named after him. The first patient is described in my review article.To see others' stories, on the Hyperaldosteronism home page, go to Files/Conn’s Stories. You'll find instructions in "A - How to put your story here.doc " First send us your story in an email and they we may have questions and suggestions before you upload it to our files. 3. DASH to lower your BP. Your and my tax dollars funded the most important series of studies on how to improve blood pressure, blood sugar, blood lipids and make your heart smaller: The DASH Eating Plan to control high blood pressure due to hyperaldosteronism and most others with high blood pressure. This will reduce your need for medications and in many will get your BP and K to goal without meds.. Get the DASH diet book by T. et al, (http://www.amazon.com/DASH-Diet-Hypertension--/dp/0743202953) read it and use it: ~$8 in paperback at your local bookstore or online. If they don’t have it ask them to order it for you. You can also get the hardback larger print version as well at Amazon. Learning to eat the DASH way will play a major role in your road to good BP and K control and, in many of our folks here, will revolutionize your life. See http://en.wikipedia.org/wiki/DASH_diet for an overview and more details. In the book go to chapter 9 and do the 14 day challenge. Tell your Dr you are doing this as your BP may plummet if you are on other meds. Measure your BP every day and post to us. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP (20/10 mm Hg or more) and let your Dr. know you are doing this. And/Or go to (but costs money monthly) DASH Diet for Health Program (http://www.dashforhealth.com/pages/public/tour.php)The DASH Diet for Health Program is designed to help you improve your eating and exercise habits. Twice each week they will provide you with information on our website about food, food preparation, eating out, losing weight, getting fit and much more. In addition to providing new information each week on the website, they create a web page specially for you where you can track progress in areas such as your weight, blood pressure, and exercise. I strongly recommend you get this book by .... and read it. 4. Measure your BP: Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. We recommend you use a device you listen to and will help you learn how to do this. If this is not something you want to do we can teach a significant other how to do it. See sharedcareinc.com or email to sharedcare@... to order a video on how to do this. If you already have one we will teach you how to teach your health care team how to validate your device. Your life and health depends on accurate BP measurements. Go to the amricanheart.org and download the Guidelines for Human Blood Pressure Measurement. Insist that your health care team do BP the AHA way. Never trust your life to an automatic BP machine unless you know it is accurate on YOU. 5. Genetics and your BP: Go to familyhistory.hhs.gov and do your detailed family medical history (FHx or FH) so we can review with you to help diagnosis (Dx) and treat (Rx) familial causes of high blood pressure and heart disease. If BP runs in your family you may save lives in your family by checking their BP yourself. 6. How to DX and treat PA: Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. It is old but still one of the best in the medical management of PA. DX: Also see our file from the Endocrine Society Guidelines on PA. 7. Dr. Grim's Perfect Primary Aldosteronism Blood and Urine Testing to diagnose PA in one day. 1. Eat a regular to high salt diet for 2 weeks.2. No BP meds in last 4-12 weeks depending on meds.3. Collect 24 hr urine for Na, K and creatinine and aldosterone. Do not lose a drop of this liquid gold. It is impossible to interpret the renin and aldo without this urine.4. The morning you finish the 24 hr urine have fasting blood drawn for renin, aldo and K using our guidelines to get an accurate K. Try to get this done about 4 hours after you have been out of bed.5. Send us the results with the normal values for your lab.6. If you ever have a salt (saline) infusion test for PA be certain to ask them to measure how much you pee during the 4 hours of the infusion. If it is 1-1.5 liter of urine it strongly suggests that you may have PA. If more tha 1.5 L you almost certainly have PA. 8. Become a participant in our PA Registry and contribute to our large database on PA: If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don't know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 9. Learn the language: If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/2918610. Salt and high blood pressure: To learn the state of the science of salt and blood pressure please spend some time looking at http://www.worldactiononsalt.com/evidence/treatment_trials.htm11. Become a HBP expert consumer: Expect that it will take at least several weeks to get all this digested and to learn the new language of high blood pressure health care. As most doctors and nurses in practice have had very little training in high blood pressure you must become an expert yourself. For example most have never had anyone listen with them with a double stethoscope to verify that they can hear BP sounds. We cannot make you a doctor but we will make you a pretty good BP doctor.12. How High Blood Pressure should be managed: Go to nih.gov and download and read the Joint National Commission (JNC) Report 7 to get an overview on current guidelines. I ask all my secretaries to read this so they can communicate the importance of high blood pressure to my patients. JNC 8 will be out soon.Then: get (and study) the Hypertension Primer from americanheart.org 4th addition. I coauthored the chapter on BP measurement. You can also get this for about $6 from Amazon.com. This is the most up-to-date compendium of what is known about high blood pressure and what every Dr. should know when they graduate from Medical School. Every chapter is only 2-3 pages. Read one chapter every week-night and you will finish it in about a year. I am working on a reading guide for lay people for the Primer. Stay tuned. If you don't like it take it to your health care team so they will know what every medical student today should know.13. Ask us questions: Ask any questions about high blood pressure you want answered. That is what we are here for. We have had this site for 10 years and over 30,000 emails are searchable. This is the largest collection of communications about Conn's Syndrome in the World. 14. One-on-one Consulting: I can provide individual consulting if you do not want to go public. If you want individual one-on-one consulting for you and your Doctor contract me directly at lowerbp2@....15: Abbreviations of common use in aldo speak include: AME apparent mineralocorticoid excess AVS adrenal vein sampling BB beta blockers CCB calcium channel blockers Dx diagnosis FHx family history GRE glucocorticoid remedial aldosteronism MCB mineralocorticoid blocker also called AB aldosterone blocker. MHx medical history Rx treatment SHx social history May your pressure be low!Clarence E. Grim BS, MS, MD, FACP, FACC, FAHA Council for High Blood Pressure Research. Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure by the American Society of Hypertension. Retired Faculty/Professor of Medicine (U of MO, Indiana, UCLA/DREW, Medical College of Wisconsin in Nephrology, Endocrinology, Cardiology, and Epidemiology. Specializing in Primary Aldosteronism and Difficult to Control High Blood Pressure. On Jan 17, 2011, at 7:59 AM, Francis Bill SUSPECTED PA wrote:Hopefully Dr Girm will get to see this and your other posting before you go to Dr. I think he can give you some information based on this.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > > > > > > > Subject: Mass found on my left adrenal gland> > > > > > > > > > To: hyperaldosteronism > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > > > > > > > > > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > > > > > > > > > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > > > > > > > >> > > > > > > > > Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > > > > > >> > > >> > >> >>

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What is normal for that lab!!!!You do not have classic PA but maybe something much more rare. Were you taking any drugs when the testing was done? The very low aldo is very low unless their normal values are different.You are eating a ton of salt which may be driving down both your urine Na, and blood K. Note your Na/K ratio is 104/12 so you are eating about 10 x more Na than K. if you DASH you will be eating about equal amounts. (in MEq).If it is not the high salt then1. How much licorice do you eat?2. You may have Liddle's syndrome, or AME. Read my article and take to your Dr. NOW. Welcome to the exciting world of Hyperaldosteronism! You are in the right place! I am Dr. CE Grim a retired Professor of Medicine and Endocrinology. I have a long standing interest is Primary Aldosteronism since medical school days when I saw my first patient with Primary Aldosteronism in 1963. I trained with Dr. Jerome W. Conn in Endocrinology and Metabolism 1969-70 and have published over 240 papers and book chapters in most areas of the broad discipline of High Blood Pressure. My CV is in our files for details. The goal of our group is to teach you and your health care team about the ins and outs of the causes, diagnosis and control of the many forms of hyperaldosteronism. The steps below will introduce you into the fascinating world of high blood pressure, salt (sodium(Na) chloride (Cl) or NaCL) and potassium (K) and the role of the adrenal hormone aldosterone in health and disease. Doing these in sequence will save you time and effort in getting up to speed in taking control of you health and educating your own health care team. While we can’t make you into a doctor we will make you into a pretty good BP doctor-a skill that you will have for life and you can transfer to the rest of your family who will likely have high blood pressure eventually-if they live long enough. 1. A brief history of Primary Aldosteronsim and why it is so common today in drug resistant high blood pressure. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. This is a brief review of most causes of hyperaldosteronism, high blood pressure, low potassium (K). READING THIS HOW WILL SAVE YOU TIME AND MONEY. By taking it to your health care team they will not treat their other patients as badly as they may have treated you. 2. Read about other patients with hyperaldosteronism (Conn’s syndrome). Read our Conn's stories in our files and then give us your own in as much detail as you can. Dr. Conn was the first to describe this disease process and the syndrome is named after him. The first patient is described in my review article.To see others' stories, on the Hyperaldosteronism home page, go to Files/Conn’s Stories. You'll find instructions in "A - How to put your story here.doc " First send us your story in an email and they we may have questions and suggestions before you upload it to our files. 3. DASH to lower your BP. Your and my tax dollars funded the most important series of studies on how to improve blood pressure, blood sugar, blood lipids and make your heart smaller: The DASH Eating Plan to control high blood pressure due to hyperaldosteronism and most others with high blood pressure. This will reduce your need for medications and in many will get your BP and K to goal without meds.. Get the DASH diet book by T. et al, (http://www.amazon.com/DASH-Diet-Hypertension--/dp/0743202953) read it and use it: ~$8 in paperback at your local bookstore or online. If they don’t have it ask them to order it for you. You can also get the hardback larger print version as well at Amazon. Learning to eat the DASH way will play a major role in your road to good BP and K control and, in many of our folks here, will revolutionize your life. See http://en.wikipedia.org/wiki/DASH_diet for an overview and more details. In the book go to chapter 9 and do the 14 day challenge. Tell your Dr you are doing this as your BP may plummet if you are on other meds. Measure your BP every day and post to us. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP (20/10 mm Hg or more) and let your Dr. know you are doing this. And/Or go to (but costs money monthly) DASH Diet for Health Program (http://www.dashforhealth.com/pages/public/tour.php)The DASH Diet for Health Program is designed to help you improve your eating and exercise habits. Twice each week they will provide you with information on our website about food, food preparation, eating out, losing weight, getting fit and much more. In addition to providing new information each week on the website, they create a web page specially for you where you can track progress in areas such as your weight, blood pressure, and exercise. I strongly recommend you get this book by .... and read it. 4. Measure your BP: Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. We recommend you use a device you listen to and will help you learn how to do this. If this is not something you want to do we can teach a significant other how to do it. See sharedcareinc.com or email to sharedcare@... to order a video on how to do this. If you already have one we will teach you how to teach your health care team how to validate your device. Your life and health depends on accurate BP measurements. Go to the amricanheart.org and download the Guidelines for Human Blood Pressure Measurement. Insist that your health care team do BP the AHA way. Never trust your life to an automatic BP machine unless you know it is accurate on YOU. 5. Genetics and your BP: Go to familyhistory.hhs.gov and do your detailed family medical history (FHx or FH) so we can review with you to help diagnosis (Dx) and treat (Rx) familial causes of high blood pressure and heart disease. If BP runs in your family you may save lives in your family by checking their BP yourself. 6. How to DX and treat PA: Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. It is old but still one of the best in the medical management of PA. DX: Also see our file from the Endocrine Society Guidelines on PA. 7. Dr. Grim's Perfect Primary Aldosteronism Blood and Urine Testing to diagnose PA in one day. 1. Eat a regular to high salt diet for 2 weeks.2. No BP meds in last 4-12 weeks depending on meds.3. Collect 24 hr urine for Na, K and creatinine and aldosterone. Do not lose a drop of this liquid gold. It is impossible to interpret the renin and aldo without this.4. The morning you finish the 24 hr urine have fasting blood drawn for renin, aldo and K using our guidelines to get an accurate K. Try to get this done about 4 hours after you have been out of bed.5. Send us the results with the normal values for your lab.6. If you ever have a salt (saline) infusion test for PA be certain to ask them to measure how much you pee during the 4 hours of the infusion. If it is 1-1.5 liter of urine it strongly suggests that you may have PA. If more tha 1.5 L you almost certainly have PA. 8. Become a participant in our PA Registry and contribute to our large database on PA: If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don't know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 9. Learn the language: If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/2918610. Salt and high blood pressure: To learn the state of the science of salt and blood pressure please spend some time looking at http://www.worldactiononsalt.com/evidence/treatment_trials.htm11. Become a HBP expert consumer: Expect that it will take at least several weeks to get all this digested and to learn the new language of high blood pressure health care. As most doctors and nurses in practice have had very little training in high blood pressure you must become an expert yourself. For example most have never had anyone listen with them with a double stethoscope to verify that they can hear BP sounds. We cannot make you a doctor but we will make you a pretty good BP doctor.12. How High Blood Pressure should be managed: Go to nih.gov and download and read the Joint National Commission (JNC) Report 7 to get an overview on current guidelines. I ask all my secretaries to read this so they can communicate the importance of high blood pressure to my patients. JNC 8 will be out soon.Then: get (and study) the Hypertension Primer from americanheart.org 4th addition. I coauthored the chapter on BP measurement. You can also get this for about $6 from Amazon.com. This is the most up-to-date compendium of what is known about high blood pressure and what every Dr. should know when they graduate from Medical School. Every chapter is only 2-3 pages. Read one chapter every week-night and you will finish it in about a year. I am working on a reading guide for lay people for the Primer. Stay tuned. If you don't like it take it to your health care team so they will know what every medical student today should know.13. Ask us questions: Ask any questions about high blood pressure you want answered. That is what we are here for. We have had this site for 10 years and over 30,000 emails are searchable. This is the largest collection of communications about Conn's Syndrome in the World. 14. One-on-one Consulting: I can provide individual consulting if you do not want to go public. If you want individual one-on-one consulting for you and your Doctor contract me directly at lowerbp2@....15: Abbreviations of common use in aldo speak include: AME apparent mineralocorticoid excess AVS adrenal vein sampling BB beta blockers CCB calcium channel blockers Dx diagnosis FHx family history GRE glucocorticoid remedial aldosteronism MCB mineralocorticoid blocker also called AB aldosterone blocker. MHx medical history Rx treatment SHx social history May your pressure be low!Clarence E. Grim BS, MS, MD, FACP, FACC, FAHA Council for High Blood Pressure Research. Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure by the American Society of Hypertension. Retired Faculty/Professor of Medicine (U of MO, Indiana, UCLA/DREW, Medical College of Wisconsin in Nephrology, Endocrinology, Cardiology, and Epidemiology. Specializing in Primary Aldosteronism and Difficult to Control High Blood Pressure. My aldo/plasma renin says 1.16 ng/ml/h, aldo ratio is 0.9, aldo lc/ms/ms is 1. My sodium/creat ratio is 416, sodium random urine is 104, and creatine random urine is 25. Does this look okay? Thank you> > > > > > Subject: Mass found on my left adrenal gland> > To: hyperaldosteronism > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow. > > > >>

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This was in her other post.

My aldo/plasma renin says 1.16 ng/ml/h, aldo ratio is 0.9, aldo lc/ms/ms is 1.

My sodium/creat ratio is 416, sodium random urine is 104, and creatine random

urine is 25. Does this look okay? Thank you

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > > > Subject: Mass found on my

> > left adrenal gland

> > > > > > > > > > > To: hyperaldosteronism

> > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > Â

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > I want to start from the beginning as to the very

> > first symptom. Im pretty sure Conn's is what I have. These symptoms

> > started the first of August and they keep getting worse. I was

> > picking beans in the garden and my legs just felt like jello, weak.

> > I thought it was from being out of shape, but I felt like this all

> > week long. I never had any pain at all. After a month of my legs

> > feeling like this I started thinking I had MS or something. Then

> > along with my legs feeling weak my vision was blurred, I gained 25

> > lbs. and I swear it all went to my stomach like I'm pregnant. I kept

> > going brushing it off until I had a hard time climbing the stairs.

> > It was like my knees would just give out. After 3 months of this I

> > went to my family Dr. He tested me for MS, lots of blood work, EKG

> > and everything come back normal (I also had no reflexes when he

> > tested me and my blood pressure was 160/90). He said something about

> > treating me for depression, like this is all in my

> > > > > > > > > > > head I wasnt going back. I am on NO medication at

> > all. Then after another month it started going up into my upper

> > body. Not only are my legs weak but my upper body as well. I look

> > like a moran walking so slow like I just cant make it another step.

> > The only thing that makes me feel better is taking potassium pills,

> > I take 8 to 12 aday not sure if this is good for me or not but I

> > atleast have some energy. I can fall asleep at any time of the day

> > and I'm in bed by 8 p.m. every night. I seen an article in newspaper

> > about conns syndrome and went back to the Dr and demanded the test.

> > He did blood work, urine sampling 24 hr. and he ordered a CT scan of

> > my stomach area with the dye. I just recently had this done. I've

> > been working up until I went in to get my results which was last

> > Monday. He said the CT showed a mass on my left adrenal gland. My

> > blood work all shows normal. I got copies of all my lab work and my

> > sodium is 416H I know thats not normal. My

> > > > > > > > > > > potassium/creatine ratio in my urine is 64, random

> > 16, and creatinine 25. Not sure what all this is I just need some

> > help. I cant take this anymore. After the Dr. told me all this I

> > became like more weaker and I fell going to the bathroom that night

> > and started to get terrible muscle spasms in my upper back and left

> > shoulder. I called him and he gave me a pain med and muscle relaxer

> > I took one of each and it just didn't help. It lasted for two days

> > and now I'm okay I'm just sore there. My shoulder and my side in my

> > rib still is tender and will spasm when I go to bed only. Please

> > someone help. Also my chest hurts sometimes like I cant take a deep

> > breath it hurts and my ears are plugged. Oh and I can't yawn or

> > sneeze I'm just too weak to even though I try does this make any

> > sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > > > >

> > > > > > > > > > Thank you for replying to my message I was about

> > ready to give up. Im new to this and wasn't even sure I posted this

> > correctly or maybe it was too long of a story but I just dont want

> > to miss anything. I have been freaked out since this happened to me

> > and have been searching the web non stop since. I'm thankful my Dr.

> > tested me for this. I'm still not sure I have Conn's I'm just hoping

> > I do. I know that sounds bad, but it's something. Alot of what the

> > Group is saying is new language to me. If you can kind of fill me in

> > quick on how this works I would really appreciate it. Thanks again

> > Kristy

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

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Sorry should have been PAWhat is PAMTo: hyperaldosteronism Sent: Sun, January 16, 2011 6:21:51 PMSubject: RE: Re: Mass found on my left adrenal gland Does it mean that Pam is responsible for Kristy's medical condition?Most likely cause of adrenal bump and HTN IS PAM

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Sorry should have been PAWhat is PAMTo: hyperaldosteronism Sent: Sun, January 16, 2011 6:21:51 PMSubject: RE: Re: Mass found on my left adrenal gland Does it mean that Pam is responsible for Kristy's medical condition?Most likely cause of adrenal bump and HTN IS PAM

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I'm sorry. He had me fast but I could drink liquids because of the CT scan that

morning. I drank coffee and water. My basic metabolic panel was n/a 139, k

4.4, cl 105 co2 28, agap 10, glu 90, bun 10, crea 0.68, ca 9.4, egfr 101. You

have everything else except my complete blood count which is quite abit the only

highs were mch 33.7 and mpv 11.4. Do you want the rest of these? Again I am

sorry.

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > > > Subject: Mass found on my

> > left adrenal gland

> > > > > > > > > > > To: hyperaldosteronism

> > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > Â

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > I want to start from the beginning as to the very

> > first symptom. Im pretty sure Conn's is what I have. These symptoms

> > started the first of August and they keep getting worse. I was

> > picking beans in the garden and my legs just felt like jello, weak.

> > I thought it was from being out of shape, but I felt like this all

> > week long. I never had any pain at all. After a month of my legs

> > feeling like this I started thinking I had MS or something. Then

> > along with my legs feeling weak my vision was blurred, I gained 25

> > lbs. and I swear it all went to my stomach like I'm pregnant. I kept

> > going brushing it off until I had a hard time climbing the stairs.

> > It was like my knees would just give out. After 3 months of this I

> > went to my family Dr. He tested me for MS, lots of blood work, EKG

> > and everything come back normal (I also had no reflexes when he

> > tested me and my blood pressure was 160/90). He said something about

> > treating me for depression, like this is all in my

> > > > > > > > > > > head I wasnt going back. I am on NO medication at

> > all. Then after another month it started going up into my upper

> > body. Not only are my legs weak but my upper body as well. I look

> > like a moran walking so slow like I just cant make it another step.

> > The only thing that makes me feel better is taking potassium pills,

> > I take 8 to 12 aday not sure if this is good for me or not but I

> > atleast have some energy. I can fall asleep at any time of the day

> > and I'm in bed by 8 p.m. every night. I seen an article in newspaper

> > about conns syndrome and went back to the Dr and demanded the test.

> > He did blood work, urine sampling 24 hr. and he ordered a CT scan of

> > my stomach area with the dye. I just recently had this done. I've

> > been working up until I went in to get my results which was last

> > Monday. He said the CT showed a mass on my left adrenal gland. My

> > blood work all shows normal. I got copies of all my lab work and my

> > sodium is 416H I know thats not normal. My

> > > > > > > > > > > potassium/creatine ratio in my urine is 64, random

> > 16, and creatinine 25. Not sure what all this is I just need some

> > help. I cant take this anymore. After the Dr. told me all this I

> > became like more weaker and I fell going to the bathroom that night

> > and started to get terrible muscle spasms in my upper back and left

> > shoulder. I called him and he gave me a pain med and muscle relaxer

> > I took one of each and it just didn't help. It lasted for two days

> > and now I'm okay I'm just sore there. My shoulder and my side in my

> > rib still is tender and will spasm when I go to bed only. Please

> > someone help. Also my chest hurts sometimes like I cant take a deep

> > breath it hurts and my ears are plugged. Oh and I can't yawn or

> > sneeze I'm just too weak to even though I try does this make any

> > sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > > > >

> > > > > > > > > > Thank you for replying to my message I was about

> > ready to give up. Im new to this and wasn't even sure I posted this

> > correctly or maybe it was too long of a story but I just dont want

> > to miss anything. I have been freaked out since this happened to me

> > and have been searching the web non stop since. I'm thankful my Dr.

> > tested me for this. I'm still not sure I have Conn's I'm just hoping

> > I do. I know that sounds bad, but it's something. Alot of what the

> > Group is saying is new language to me. If you can kind of fill me in

> > quick on how this works I would really appreciate it. Thanks again

> > Kristy

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

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Guess have not heard of adrenal lipomas or myolipomas or other non-functioning adrenal bumps? Review the endo guidelines on PA again.CE Grim MD Welcome to the exciting world of Hyperaldosteronism! You are in the right place! I am Dr. CE Grim a retired Professor of Medicine and Endocrinology. I have a long standing interest is Primary Aldosteronism since medical school days when I saw my first patient with Primary Aldosteronism in 1963. I trained with Dr. Jerome W. Conn in Endocrinology and Metabolism 1969-70 and have published over 240 papers and book chapters in most areas of the broad discipline of High Blood Pressure. My CV is in our files for details. The goal of our group is to teach you and your health care team about the ins and outs of the causes, diagnosis and control of the many forms of hyperaldosteronism. The steps below will introduce you into the fascinating world of high blood pressure, salt (sodium(Na) chloride (Cl) or NaCL) and potassium (K) and the role of the adrenal hormone aldosterone in health and disease. Doing these in sequence will save you time and effort in getting up to speed in taking control of you health and educating your own health care team. While we can’t make you into a doctor we will make you into a pretty good BP doctor-a skill that you will have for life and you can transfer to the rest of your family who will likely have high blood pressure eventually-if they live long enough. 1. A brief history of Primary Aldosteronsim and why it is so common today in drug resistant high blood pressure. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. This is a brief review of most causes of hyperaldosteronism, high blood pressure, low potassium (K). READING THIS HOW WILL SAVE YOU TIME AND MONEY. By taking it to your health care team they will not treat their other patients as badly as they may have treated you. 2. Read about other patients with hyperaldosteronism (Conn’s syndrome). Read our Conn's stories in our files and then give us your own in as much detail as you can. Dr. Conn was the first to describe this disease process and the syndrome is named after him. The first patient is described in my review article.To see others' stories, on the Hyperaldosteronism home page, go to Files/Conn’s Stories. You'll find instructions in "A - How to put your story here.doc " First send us your story in an email and they we may have questions and suggestions before you upload it to our files. 3. DASH to lower your BP. Your and my tax dollars funded the most important series of studies on how to improve blood pressure, blood sugar, blood lipids and make your heart smaller: The DASH Eating Plan to control high blood pressure due to hyperaldosteronism and most others with high blood pressure. This will reduce your need for medications and in many will get your BP and K to goal without meds.. Get the DASH diet book by T. et al, (http://www.amazon.com/DASH-Diet-Hypertension--/dp/0743202953) read it and use it: ~$8 in paperback at your local bookstore or online. If they don’t have it ask them to order it for you. You can also get the hardback larger print version as well at Amazon. Learning to eat the DASH way will play a major role in your road to good BP and K control and, in many of our folks here, will revolutionize your life. See http://en.wikipedia.org/wiki/DASH_diet for an overview and more details. In the book go to chapter 9 and do the 14 day challenge. Tell your Dr you are doing this as your BP may plummet if you are on other meds. Measure your BP every day and post to us. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP (20/10 mm Hg or more) and let your Dr. know you are doing this. And/Or go to (but costs money monthly) DASH Diet for Health Program (http://www.dashforhealth.com/pages/public/tour.php)The DASH Diet for Health Program is designed to help you improve your eating and exercise habits. Twice each week they will provide you with information on our website about food, food preparation, eating out, losing weight, getting fit and much more. In addition to providing new information each week on the website, they create a web page specially for you where you can track progress in areas such as your weight, blood pressure, and exercise. I strongly recommend you get this book by .... and read it. 4. Measure your BP: Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. We recommend you use a device you listen to and will help you learn how to do this. If this is not something you want to do we can teach a significant other how to do it. See sharedcareinc.com or email to sharedcare@... to order a video on how to do this. If you already have one we will teach you how to teach your health care team how to validate your device. Your life and health depends on accurate BP measurements. Go to the amricanheart.org and download the Guidelines for Human Blood Pressure Measurement. Insist that your health care team do BP the AHA way. Never trust your life to an automatic BP machine unless you know it is accurate on YOU. 5. Genetics and your BP: Go to familyhistory.hhs.gov and do your detailed family medical history (FHx or FH) so we can review with you to help diagnosis (Dx) and treat (Rx) familial causes of high blood pressure and heart disease. If BP runs in your family you may save lives in your family by checking their BP yourself. 6. How to DX and treat PA: Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. It is old but still one of the best in the medical management of PA. DX: Also see our file from the Endocrine Society Guidelines on PA. 7. Dr. Grim's Perfect Primary Aldosteronism Blood and Urine Testing to diagnose PA in one day. 1. Eat a regular to high salt diet for 2 weeks.2. No BP meds in last 4-12 weeks depending on meds.3. Collect 24 hr urine for Na, K and creatinine and aldosterone. Do not lose a drop of this liquid gold. It is impossible to interpret the renin and aldo without this.4. The morning you finish the 24 hr urine have fasting blood drawn for renin, aldo and K using our guidelines to get an accurate K. Try to get this done about 4 hours after you have been out of bed.5. Send us the results with the normal values for your lab.6. If you ever have a salt (saline) infusion test for PA be certain to ask them to measure how much you pee during the 4 hours of the infusion. If it is 1-1.5 liter of urine it strongly suggests that you may have PA. If more tha 1.5 L you almost certainly have PA. 8. Become a participant in our PA Registry and contribute to our large database on PA: If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don't know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 9. Learn the language: If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/2918610. Salt and high blood pressure: To learn the state of the science of salt and blood pressure please spend some time looking at http://www.worldactiononsalt.com/evidence/treatment_trials.htm11. Become a HBP expert consumer: Expect that it will take at least several weeks to get all this digested and to learn the new language of high blood pressure health care. As most doctors and nurses in practice have had very little training in high blood pressure you must become an expert yourself. For example most have never had anyone listen with them with a double stethoscope to verify that they can hear BP sounds. We cannot make you a doctor but we will make you a pretty good BP doctor.12. How High Blood Pressure should be managed: Go to nih.gov and download and read the Joint National Commission (JNC) Report 7 to get an overview on current guidelines. I ask all my secretaries to read this so they can communicate the importance of high blood pressure to my patients. JNC 8 will be out soon.Then: get (and study) the Hypertension Primer from americanheart.org 4th addition. I coauthored the chapter on BP measurement. You can also get this for about $6 from Amazon.com. This is the most up-to-date compendium of what is known about high blood pressure and what every Dr. should know when they graduate from Medical School. Every chapter is only 2-3 pages. Read one chapter every week-night and you will finish it in about a year. I am working on a reading guide for lay people for the Primer. Stay tuned. If you don't like it take it to your health care team so they will know what every medical student today should know.13. Ask us questions: Ask any questions about high blood pressure you want answered. That is what we are here for. We have had this site for 10 years and over 30,000 emails are searchable. This is the largest collection of communications about Conn's Syndrome in the World. 14. One-on-one Consulting: I can provide individual consulting if you do not want to go public. If you want individual one-on-one consulting for you and your Doctor contract me directly at lowerbp2@....15: Abbreviations of common use in aldo speak include: AME apparent mineralocorticoid excess AVS adrenal vein sampling BB beta blockers CCB calcium channel blockers Dx diagnosis FHx family history GRE glucocorticoid remedial aldosteronism MCB mineralocorticoid blocker also called AB aldosterone blocker. MHx medical history Rx treatment SHx social history May your pressure be low!Clarence E. Grim BS, MS, MD, FACP, FACC, FAHA Council for High Blood Pressure Research. Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure by the American Society of Hypertension. Retired Faculty/Professor of Medicine (U of MO, Indiana, UCLA/DREW, Medical College of Wisconsin in Nephrology, Endocrinology, Cardiology, and Epidemiology. Specializing in Primary Aldosteronism and Difficult to Control High Blood Pressure. KristyI have found this site to be a wonderful source of information. I think you are lucky to have had the CT already. If a mass has been found on your left adrenal I would think that means the problem has been found! Now you are positioned to get some solutions. Wishing you all the best as you find out more about all this. I think we all come to this site not knowing much about this condition. You will pick up on the "language". I just keep an open search tab on my computer and if I don't understand something, I just google it on the web. It all starts to make sense. However, it sounds like you have the ability to contact your doctor readily so you have that in your favor. ElaineTo: hyperaldosteronism Sent: Sun, January 16, 2011 3:11:25 PMSubject: Re: Mass found on my left adrenal gland Your weight gain soulds more like you could have cushing's. > > > > > > From: kristystuck <kristystuck@>> > Subject: Mass found on my left adrenal gland> > To: hyperaldosteronism > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > Â > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> >> Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy>

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Yes I know it well. But you do not sound like that. CE Grim MDHi all. Today I discovered a site www.inspire.com linked with the NORD - National Organization of Rare Diseases. One of the members was talking about a condition that has similiar symptoms as Primary Aldosteronism called PHEOCHROMOCYTOMAS. Any one heard of that? Apparently it is a tumor IN the adrenal gland. ElaineTo: hyperaldosteronism Sent: Sun, January 16, 2011 4:14:41 PMSubject: Re: Mass found on my left adrenal gland Coritsol is made by adrenal glands. Tumor on adrenal glands can make to much Coritsol. How did they check for Coritsol? Coritsol should be lower in afternoon than morning not the same both times. > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > Subject: Mass found on my left adrenal gland> > > > To: hyperaldosteronism > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > Â > > > > > > > > > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > > > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > > > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > >> > > Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy> > >> >>

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Yes I know it well. But you do not sound like that. CE Grim MDHi all. Today I discovered a site www.inspire.com linked with the NORD - National Organization of Rare Diseases. One of the members was talking about a condition that has similiar symptoms as Primary Aldosteronism called PHEOCHROMOCYTOMAS. Any one heard of that? Apparently it is a tumor IN the adrenal gland. ElaineTo: hyperaldosteronism Sent: Sun, January 16, 2011 4:14:41 PMSubject: Re: Mass found on my left adrenal gland Coritsol is made by adrenal glands. Tumor on adrenal glands can make to much Coritsol. How did they check for Coritsol? Coritsol should be lower in afternoon than morning not the same both times. > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > Subject: Mass found on my left adrenal gland> > > > To: hyperaldosteronism > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > Â > > > > > > > > > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > > > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > > > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > >> > > Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy> > >> >>

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Also easy to test for. 24 hr urine.Hi all. Today I discovered a site www.inspire.com linked with the NORD - National Organization of Rare Diseases. One of the members was talking about a condition that has similiar symptoms as Primary Aldosteronism called PHEOCHROMOCYTOMAS. Any one heard of that? Apparently it is a tumor IN the adrenal gland. ElaineTo: hyperaldosteronism Sent: Sun, January 16, 2011 4:14:41 PMSubject: Re: Mass found on my left adrenal gland Coritsol is made by adrenal glands. Tumor on adrenal glands can make to much Coritsol. How did they check for Coritsol? Coritsol should be lower in afternoon than morning not the same both times. > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > Subject: Mass found on my left adrenal gland> > > > To: hyperaldosteronism > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > Â > > > > > > > > > > > > > > > > I want to start from the beginning as to the very first symptom. Im pretty sure Conn's is what I have. These symptoms started the first of August and they keep getting worse. I was picking beans in the garden and my legs just felt like jello, weak. I thought it was from being out of shape, but I felt like this all week long. I never had any pain at all. After a month of my legs feeling like this I started thinking I had MS or something. Then along with my legs feeling weak my vision was blurred, I gained 25 lbs. and I swear it all went to my stomach like I'm pregnant. I kept going brushing it off until I had a hard time climbing the stairs. It was like my knees would just give out. After 3 months of this I went to my family Dr. He tested me for MS, lots of blood work, EKG and everything come back normal (I also had no reflexes when he tested me and my blood pressure was 160/90). He said something about treating me for depression, like this is all in my> > > > head I wasnt going back. I am on NO medication at all. Then after another month it started going up into my upper body. Not only are my legs weak but my upper body as well. I look like a moran walking so slow like I just cant make it another step. The only thing that makes me feel better is taking potassium pills, I take 8 to 12 aday not sure if this is good for me or not but I atleast have some energy. I can fall asleep at any time of the day and I'm in bed by 8 p.m. every night. I seen an article in newspaper about conns syndrome and went back to the Dr and demanded the test. He did blood work, urine sampling 24 hr. and he ordered a CT scan of my stomach area with the dye. I just recently had this done. I've been working up until I went in to get my results which was last Monday. He said the CT showed a mass on my left adrenal gland. My blood work all shows normal. I got copies of all my lab work and my sodium is 416H I know thats not normal. My> > > > potassium/creatine ratio in my urine is 64, random 16, and creatinine 25. Not sure what all this is I just need some help. I cant take this anymore. After the Dr. told me all this I became like more weaker and I fell going to the bathroom that night and started to get terrible muscle spasms in my upper back and left shoulder. I called him and he gave me a pain med and muscle relaxer I took one of each and it just didn't help. It lasted for two days and now I'm okay I'm just sore there. My shoulder and my side in my rib still is tender and will spasm when I go to bed only. Please someone help. Also my chest hurts sometimes like I cant take a deep breath it hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm just too weak to even though I try does this make any sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > >> > > Thank you for replying to my message I was about ready to give up. Im new to this and wasn't even sure I posted this correctly or maybe it was too long of a story but I just dont want to miss anything. I have been freaked out since this happened to me and have been searching the web non stop since. I'm thankful my Dr. tested me for this. I'm still not sure I have Conn's I'm just hoping I do. I know that sounds bad, but it's something. Alot of what the Group is saying is new language to me. If you can kind of fill me in quick on how this works I would really appreciate it. Thanks again Kristy> > >> >>

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Posted
Posted

I'm not sure if its me beings my hormones and stress level is so out of wack or

not but this is my life I'm talking about here and I feel I'm being picked on

here. You sound very salty to me and I don't like it. I will just figure it

out on my own thanks again Kristy Stuckey

> > > >

> > > >

> > > > From: kristystuck <kristystuck@>

> > > > Subject: Mass found on my left adrenal gland

> > > > To: hyperaldosteronism

> > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > >

> > > >

> > > > Â

> > > >

> > > >

> > > >

> > > > I want to start from the beginning as to the very first symptom.

> > Im pretty sure Conn's is what I have. These symptoms started the

> > first of August and they keep getting worse. I was picking beans in

> > the garden and my legs just felt like jello, weak. I thought it was

> > from being out of shape, but I felt like this all week long. I never

> > had any pain at all. After a month of my legs feeling like this I

> > started thinking I had MS or something. Then along with my legs

> > feeling weak my vision was blurred, I gained 25 lbs. and I swear it

> > all went to my stomach like I'm pregnant. I kept going brushing it

> > off until I had a hard time climbing the stairs. It was like my

> > knees would just give out. After 3 months of this I went to my

> > family Dr. He tested me for MS, lots of blood work, EKG and

> > everything come back normal (I also had no reflexes when he tested

> > me and my blood pressure was 160/90). He said something about

> > treating me for depression, like this is all in my

> > > > head I wasnt going back. I am on NO medication at all. Then

> > after another month it started going up into my upper body. Not only

> > are my legs weak but my upper body as well. I look like a moran

> > walking so slow like I just cant make it another step. The only

> > thing that makes me feel better is taking potassium pills, I take 8

> > to 12 aday not sure if this is good for me or not but I atleast have

> > some energy. I can fall asleep at any time of the day and I'm in bed

> > by 8 p.m. every night. I seen an article in newspaper about conns

> > syndrome and went back to the Dr and demanded the test. He did blood

> > work, urine sampling 24 hr. and he ordered a CT scan of my stomach

> > area with the dye. I just recently had this done. I've been working

> > up until I went in to get my results which was last Monday. He said

> > the CT showed a mass on my left adrenal gland. My blood work all

> > shows normal. I got copies of all my lab work and my sodium is 416H

> > I know thats not normal. My

> > > > potassium/creatine ratio in my urine is 64, random 16, and

> > creatinine 25. Not sure what all this is I just need some help. I

> > cant take this anymore. After the Dr. told me all this I became like

> > more weaker and I fell going to the bathroom that night and started

> > to get terrible muscle spasms in my upper back and left shoulder. I

> > called him and he gave me a pain med and muscle relaxer I took one

> > of each and it just didn't help. It lasted for two days and now I'm

> > okay I'm just sore there. My shoulder and my side in my rib still is

> > tender and will spasm when I go to bed only. Please someone help.

> > Also my chest hurts sometimes like I cant take a deep breath it

> > hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm

> > just too weak to even though I try does this make any sense? My Dr.

> > refered me to a Endocronologist. I go tomarrow.

> > > >

> > > Thank you for replying to my message I was about ready to give up.

> > Im new to this and wasn't even sure I posted this correctly or maybe

> > it was too long of a story but I just dont want to miss anything. I

> > have been freaked out since this happened to me and have been

> > searching the web non stop since. I'm thankful my Dr. tested me for

> > this. I'm still not sure I have Conn's I'm just hoping I do. I know

> > that sounds bad, but it's something. Alot of what the Group is

> > saying is new language to me. If you can kind of fill me in quick on

> > how this works I would really appreciate it. Thanks again Kristy

> > >

> >

> >

> >

> >

> >

>

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Posted
Posted

I'm not sure if its me beings my hormones and stress level is so out of wack or

not but this is my life I'm talking about here and I feel I'm being picked on

here. You sound very salty to me and I don't like it. I will just figure it

out on my own thanks again Kristy Stuckey

> > > >

> > > >

> > > > From: kristystuck <kristystuck@>

> > > > Subject: Mass found on my left adrenal gland

> > > > To: hyperaldosteronism

> > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > >

> > > >

> > > > Â

> > > >

> > > >

> > > >

> > > > I want to start from the beginning as to the very first symptom.

> > Im pretty sure Conn's is what I have. These symptoms started the

> > first of August and they keep getting worse. I was picking beans in

> > the garden and my legs just felt like jello, weak. I thought it was

> > from being out of shape, but I felt like this all week long. I never

> > had any pain at all. After a month of my legs feeling like this I

> > started thinking I had MS or something. Then along with my legs

> > feeling weak my vision was blurred, I gained 25 lbs. and I swear it

> > all went to my stomach like I'm pregnant. I kept going brushing it

> > off until I had a hard time climbing the stairs. It was like my

> > knees would just give out. After 3 months of this I went to my

> > family Dr. He tested me for MS, lots of blood work, EKG and

> > everything come back normal (I also had no reflexes when he tested

> > me and my blood pressure was 160/90). He said something about

> > treating me for depression, like this is all in my

> > > > head I wasnt going back. I am on NO medication at all. Then

> > after another month it started going up into my upper body. Not only

> > are my legs weak but my upper body as well. I look like a moran

> > walking so slow like I just cant make it another step. The only

> > thing that makes me feel better is taking potassium pills, I take 8

> > to 12 aday not sure if this is good for me or not but I atleast have

> > some energy. I can fall asleep at any time of the day and I'm in bed

> > by 8 p.m. every night. I seen an article in newspaper about conns

> > syndrome and went back to the Dr and demanded the test. He did blood

> > work, urine sampling 24 hr. and he ordered a CT scan of my stomach

> > area with the dye. I just recently had this done. I've been working

> > up until I went in to get my results which was last Monday. He said

> > the CT showed a mass on my left adrenal gland. My blood work all

> > shows normal. I got copies of all my lab work and my sodium is 416H

> > I know thats not normal. My

> > > > potassium/creatine ratio in my urine is 64, random 16, and

> > creatinine 25. Not sure what all this is I just need some help. I

> > cant take this anymore. After the Dr. told me all this I became like

> > more weaker and I fell going to the bathroom that night and started

> > to get terrible muscle spasms in my upper back and left shoulder. I

> > called him and he gave me a pain med and muscle relaxer I took one

> > of each and it just didn't help. It lasted for two days and now I'm

> > okay I'm just sore there. My shoulder and my side in my rib still is

> > tender and will spasm when I go to bed only. Please someone help.

> > Also my chest hurts sometimes like I cant take a deep breath it

> > hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm

> > just too weak to even though I try does this make any sense? My Dr.

> > refered me to a Endocronologist. I go tomarrow.

> > > >

> > > Thank you for replying to my message I was about ready to give up.

> > Im new to this and wasn't even sure I posted this correctly or maybe

> > it was too long of a story but I just dont want to miss anything. I

> > have been freaked out since this happened to me and have been

> > searching the web non stop since. I'm thankful my Dr. tested me for

> > this. I'm still not sure I have Conn's I'm just hoping I do. I know

> > that sounds bad, but it's something. Alot of what the Group is

> > saying is new language to me. If you can kind of fill me in quick on

> > how this works I would really appreciate it. Thanks again Kristy

> > >

> >

> >

> >

> >

> >

>

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I was responding to another person. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I'm not sure if its me beings my hormones and stress level is so out of wack or not but this is my life I'm talking about here and I feel I'm being picked on here. You sound very salty to me and I don't like it. I will just figure it out on my own thanks again Kristy Stuckey

>

> >

> > Kristy

> > I have found this site to be a wonderful source of information. I

> > think you are lucky to have had the CT already. If a mass has been

> > found on your left adrenal I would think that means the problem has

> > been found! Now you are positioned to get some solutions. Wishing

> > you all the best as you find out more about all this. I think we

> > all come to this site not knowing much about this condition. You

> > will pick up on the "language". I just keep an open search tab on

> > my computer and if I don't understand something, I just google it on

> > the web. It all starts to make sense. However, it sounds like you

> > have the ability to contact your doctor readily so you have that in

> > your favor.

> > Elaine

> >

> >

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Dr grim was responding to this. " If a mass has been

found on your left adrenal I would think that means the problem has

been found! Now you are positioned to get some solutions. "

By current standards only 20% of adrenal masses found on CT creatate a problem.

> > > > >

> > > > >

> > > > > From: kristystuck <kristystuck@>

> > > > > Subject: Mass found on my left adrenal gland

> > > > > To: hyperaldosteronism

> > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > >

> > > > >

> > > > > Â

> > > > >

> > > > >

> > > > >

> > > > > I want to start from the beginning as to the very first symptom.

> > > Im pretty sure Conn's is what I have. These symptoms started the

> > > first of August and they keep getting worse. I was picking beans in

> > > the garden and my legs just felt like jello, weak. I thought it was

> > > from being out of shape, but I felt like this all week long. I never

> > > had any pain at all. After a month of my legs feeling like this I

> > > started thinking I had MS or something. Then along with my legs

> > > feeling weak my vision was blurred, I gained 25 lbs. and I swear it

> > > all went to my stomach like I'm pregnant. I kept going brushing it

> > > off until I had a hard time climbing the stairs. It was like my

> > > knees would just give out. After 3 months of this I went to my

> > > family Dr. He tested me for MS, lots of blood work, EKG and

> > > everything come back normal (I also had no reflexes when he tested

> > > me and my blood pressure was 160/90). He said something about

> > > treating me for depression, like this is all in my

> > > > > head I wasnt going back. I am on NO medication at all. Then

> > > after another month it started going up into my upper body. Not only

> > > are my legs weak but my upper body as well. I look like a moran

> > > walking so slow like I just cant make it another step. The only

> > > thing that makes me feel better is taking potassium pills, I take 8

> > > to 12 aday not sure if this is good for me or not but I atleast have

> > > some energy. I can fall asleep at any time of the day and I'm in bed

> > > by 8 p.m. every night. I seen an article in newspaper about conns

> > > syndrome and went back to the Dr and demanded the test. He did blood

> > > work, urine sampling 24 hr. and he ordered a CT scan of my stomach

> > > area with the dye. I just recently had this done. I've been working

> > > up until I went in to get my results which was last Monday. He said

> > > the CT showed a mass on my left adrenal gland. My blood work all

> > > shows normal. I got copies of all my lab work and my sodium is 416H

> > > I know thats not normal. My

> > > > > potassium/creatine ratio in my urine is 64, random 16, and

> > > creatinine 25. Not sure what all this is I just need some help. I

> > > cant take this anymore. After the Dr. told me all this I became like

> > > more weaker and I fell going to the bathroom that night and started

> > > to get terrible muscle spasms in my upper back and left shoulder. I

> > > called him and he gave me a pain med and muscle relaxer I took one

> > > of each and it just didn't help. It lasted for two days and now I'm

> > > okay I'm just sore there. My shoulder and my side in my rib still is

> > > tender and will spasm when I go to bed only. Please someone help.

> > > Also my chest hurts sometimes like I cant take a deep breath it

> > > hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm

> > > just too weak to even though I try does this make any sense? My Dr.

> > > refered me to a Endocronologist. I go tomarrow.

> > > > >

> > > > Thank you for replying to my message I was about ready to give up.

> > > Im new to this and wasn't even sure I posted this correctly or maybe

> > > it was too long of a story but I just dont want to miss anything. I

> > > have been freaked out since this happened to me and have been

> > > searching the web non stop since. I'm thankful my Dr. tested me for

> > > this. I'm still not sure I have Conn's I'm just hoping I do. I know

> > > that sounds bad, but it's something. Alot of what the Group is

> > > saying is new language to me. If you can kind of fill me in quick on

> > > how this works I would really appreciate it. Thanks again Kristy

> > > >

> > >

> > >

> > >

> > >

> > >

> >

>

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Good. All of these look good assuming that the normals for your lab are the normals for most labs. CE Grim MDI'm sorry. He had me fast but I could drink liquids because of the CT scan that morning. I drank coffee and water. My basic metabolic panel was n/a 139, k 4.4, cl 105 co2 28, agap 10, glu 90, bun 10, crea 0.68, ca 9.4, egfr 101. You have everything else except my complete blood count which is quite abit the only highs were mch 33.7 and mpv 11.4. Do you want the rest of these? Again I am sorry.> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > From: kristystuck <kristystuck@>> > > > > > > > > > > Subject: Mass found on my > > left adrenal gland> > > > > > > > > > > To: hyperaldosteronism > > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > Â> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > I want to start from the beginning as to the very > > first symptom. Im pretty sure Conn's is what I have. These symptoms > > started the first of August and they keep getting worse. I was > > picking beans in the garden and my legs just felt like jello, weak. > > I thought it was from being out of shape, but I felt like this all > > week long. I never had any pain at all. After a month of my legs > > feeling like this I started thinking I had MS or something. Then > > along with my legs feeling weak my vision was blurred, I gained 25 > > lbs. and I swear it all went to my stomach like I'm pregnant. I kept > > going brushing it off until I had a hard time climbing the stairs. > > It was like my knees would just give out. After 3 months of this I > > went to my family Dr. He tested me for MS, lots of blood work, EKG > > and everything come back normal (I also had no reflexes when he > > tested me and my blood pressure was 160/90). He said something about > > treating me for depression, like this is all in my> > > > > > > > > > > head I wasnt going back. I am on NO medication at > > all. Then after another month it started going up into my upper > > body. Not only are my legs weak but my upper body as well. I look > > like a moran walking so slow like I just cant make it another step. > > The only thing that makes me feel better is taking potassium pills, > > I take 8 to 12 aday not sure if this is good for me or not but I > > atleast have some energy. I can fall asleep at any time of the day > > and I'm in bed by 8 p.m. every night. I seen an article in newspaper > > about conns syndrome and went back to the Dr and demanded the test. > > He did blood work, urine sampling 24 hr. and he ordered a CT scan of > > my stomach area with the dye. I just recently had this done. I've > > been working up until I went in to get my results which was last > > Monday. He said the CT showed a mass on my left adrenal gland. My > > blood work all shows normal. I got copies of all my lab work and my > > sodium is 416H I know thats not normal. My> > > > > > > > > > > potassium/creatine ratio in my urine is 64, random > > 16, and creatinine 25. Not sure what all this is I just need some > > help. I cant take this anymore. After the Dr. told me all this I > > became like more weaker and I fell going to the bathroom that night > > and started to get terrible muscle spasms in my upper back and left > > shoulder. I called him and he gave me a pain med and muscle relaxer > > I took one of each and it just didn't help. It lasted for two days > > and now I'm okay I'm just sore there. My shoulder and my side in my > > rib still is tender and will spasm when I go to bed only. Please > > someone help. Also my chest hurts sometimes like I cant take a deep > > breath it hurts and my ears are plugged. Oh and I can't yawn or > > sneeze I'm just too weak to even though I try does this make any > > sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > > > > > > > > >> > > > > > > > > > Thank you for replying to my message I was about > > ready to give up. Im new to this and wasn't even sure I posted this > > correctly or maybe it was too long of a story but I just dont want > > to miss anything. I have been freaked out since this happened to me > > and have been searching the web non stop since. I'm thankful my Dr. > > tested me for this. I'm still not sure I have Conn's I'm just hoping > > I do. I know that sounds bad, but it's something. Alot of what the > > Group is saying is new language to me. If you can kind of fill me in > > quick on how this works I would really appreciate it. Thanks again > > Kristy> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >>

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Yes but this did not have UK and the one that had the UK did not have the U Na so not very useful.Now have both.CE Grim MDOn Jan 17, 2011, at 9:22 AM, Francis Bill SUSPECTED PA wrote:This was in her other post. My aldo/plasma renin says 1.16 ng/ml/h, aldo ratio is 0.9, aldo lc/ms/ms is 1. My sodium/creat ratio is 416, sodium random urine is 104, and creatine randomurine is 25. Does this look okay? Thank you> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > From: kristystuck <kristystuck@>> > > > > > > > > > > Subject: Mass found on my > > left adrenal gland> > > > > > > > > > > To: hyperaldosteronism > > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > Â> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > > I want to start from the beginning as to the very > > first symptom. Im pretty sure Conn's is what I have. These symptoms > > started the first of August and they keep getting worse. I was > > picking beans in the garden and my legs just felt like jello, weak. > > I thought it was from being out of shape, but I felt like this all > > week long. I never had any pain at all. After a month of my legs > > feeling like this I started thinking I had MS or something. Then > > along with my legs feeling weak my vision was blurred, I gained 25 > > lbs. and I swear it all went to my stomach like I'm pregnant. I kept > > going brushing it off until I had a hard time climbing the stairs. > > It was like my knees would just give out. After 3 months of this I > > went to my family Dr. He tested me for MS, lots of blood work, EKG > > and everything come back normal (I also had no reflexes when he > > tested me and my blood pressure was 160/90). He said something about > > treating me for depression, like this is all in my> > > > > > > > > > > head I wasnt going back. I am on NO medication at > > all. Then after another month it started going up into my upper > > body. Not only are my legs weak but my upper body as well. I look > > like a moran walking so slow like I just cant make it another step. > > The only thing that makes me feel better is taking potassium pills, > > I take 8 to 12 aday not sure if this is good for me or not but I > > atleast have some energy. I can fall asleep at any time of the day > > and I'm in bed by 8 p.m. every night. I seen an article in newspaper > > about conns syndrome and went back to the Dr and demanded the test. > > He did blood work, urine sampling 24 hr. and he ordered a CT scan of > > my stomach area with the dye. I just recently had this done. I've > > been working up until I went in to get my results which was last > > Monday. He said the CT showed a mass on my left adrenal gland. My > > blood work all shows normal. I got copies of all my lab work and my > > sodium is 416H I know thats not normal. My> > > > > > > > > > > potassium/creatine ratio in my urine is 64, random > > 16, and creatinine 25. Not sure what all this is I just need some > > help. I cant take this anymore. After the Dr. told me all this I > > became like more weaker and I fell going to the bathroom that night > > and started to get terrible muscle spasms in my upper back and left > > shoulder. I called him and he gave me a pain med and muscle relaxer > > I took one of each and it just didn't help. It lasted for two days > > and now I'm okay I'm just sore there. My shoulder and my side in my > > rib still is tender and will spasm when I go to bed only. Please > > someone help. Also my chest hurts sometimes like I cant take a deep > > breath it hurts and my ears are plugged. Oh and I can't yawn or > > sneeze I'm just too weak to even though I try does this make any > > sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > > > > > > > > >> > > > > > > > > > Thank you for replying to my message I was about > > ready to give up. Im new to this and wasn't even sure I posted this > > correctly or maybe it was too long of a story but I just dont want > > to miss anything. I have been freaked out since this happened to me > > and have been searching the web non stop since. I'm thankful my Dr. > > tested me for this. I'm still not sure I have Conn's I'm just hoping > > I do. I know that sounds bad, but it's something. Alot of what the > > Group is saying is new language to me. If you can kind of fill me in > > quick on how this works I would really appreciate it. Thanks again > > Kristy> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >>

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As a retired medical school teacher I tend to talk to folks here like they are my students.As you will note, one of my goals is to make you a "pretty good BP doctor". As I have limited time to respond I need the be blunt many times.You can always go to a different teacher.CE Grim MDOn Jan 17, 2011, at 10:50 AM, Francis Bill SUSPECTED PA wrote:Dr grim was responding to this. "If a mass has been found on your left adrenal I would think that means the problem has been found! Now you are positioned to get some solutions." By current standards only 20% of adrenal masses found on CT creatate a problem. > > > > >> > > > >> > > > > From: kristystuck <kristystuck@>> > > > > Subject: Mass found on my left adrenal gland> > > > > To: hyperaldosteronism > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > >> > > > >> > > > > Â> > > > >> > > > >> > > > >> > > > > I want to start from the beginning as to the very first symptom. > > > Im pretty sure Conn's is what I have. These symptoms started the > > > first of August and they keep getting worse. I was picking beans in > > > the garden and my legs just felt like jello, weak. I thought it was > > > from being out of shape, but I felt like this all week long. I never > > > had any pain at all. After a month of my legs feeling like this I > > > started thinking I had MS or something. Then along with my legs > > > feeling weak my vision was blurred, I gained 25 lbs. and I swear it > > > all went to my stomach like I'm pregnant. I kept going brushing it > > > off until I had a hard time climbing the stairs. It was like my > > > knees would just give out. After 3 months of this I went to my > > > family Dr. He tested me for MS, lots of blood work, EKG and > > > everything come back normal (I also had no reflexes when he tested > > > me and my blood pressure was 160/90). He said something about > > > treating me for depression, like this is all in my> > > > > head I wasnt going back. I am on NO medication at all. Then > > > after another month it started going up into my upper body. Not only > > > are my legs weak but my upper body as well. I look like a moran > > > walking so slow like I just cant make it another step. The only > > > thing that makes me feel better is taking potassium pills, I take 8 > > > to 12 aday not sure if this is good for me or not but I atleast have > > > some energy. I can fall asleep at any time of the day and I'm in bed > > > by 8 p.m. every night. I seen an article in newspaper about conns > > > syndrome and went back to the Dr and demanded the test. He did blood > > > work, urine sampling 24 hr. and he ordered a CT scan of my stomach > > > area with the dye. I just recently had this done. I've been working > > > up until I went in to get my results which was last Monday. He said > > > the CT showed a mass on my left adrenal gland. My blood work all > > > shows normal. I got copies of all my lab work and my sodium is 416H > > > I know thats not normal. My> > > > > potassium/creatine ratio in my urine is 64, random 16, and > > > creatinine 25. Not sure what all this is I just need some help. I > > > cant take this anymore. After the Dr. told me all this I became like > > > more weaker and I fell going to the bathroom that night and started > > > to get terrible muscle spasms in my upper back and left shoulder. I > > > called him and he gave me a pain med and muscle relaxer I took one > > > of each and it just didn't help. It lasted for two days and now I'm > > > okay I'm just sore there. My shoulder and my side in my rib still is > > > tender and will spasm when I go to bed only. Please someone help. > > > Also my chest hurts sometimes like I cant take a deep breath it > > > hurts and my ears are plugged. Oh and I can't yawn or sneeze I'm > > > just too weak to even though I try does this make any sense? My Dr. > > > refered me to a Endocronologist. I go tomarrow.> > > > >> > > > Thank you for replying to my message I was about ready to give up. > > > Im new to this and wasn't even sure I posted this correctly or maybe > > > it was too long of a story but I just dont want to miss anything. I > > > have been freaked out since this happened to me and have been > > > searching the web non stop since. I'm thankful my Dr. tested me for > > > this. I'm still not sure I have Conn's I'm just hoping I do. I know > > > that sounds bad, but it's something. Alot of what the Group is > > > saying is new language to me. If you can kind of fill me in quick on > > > how this works I would really appreciate it. Thanks again Kristy> > > >> > >> > >> > >> > >> > >> >>

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Also have this from her other posting.

They did an MRI checking for a tumor on my pituatary gland and coritsol am and

pm was both 5.6. I'm 40 years old I am not on any

meds. My blood pressure ranges from 160/90-130/90 everytime I go. I was going

to an iridologist when all this happened so I was taking mega vitamins, could

this have triggered either of these diseases?

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > > From: kristystuck <kristystuck@>

> > > > > > > > > > > > > Subject: Mass found on my

> > > > left adrenal gland

> > > > > > > > > > > > > To: hyperaldosteronism

> > > > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > > Â

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > > I want to start from the beginning as to the

> > very

> > > > first symptom. Im pretty sure Conn's is what I have. These

> > symptoms

> > > > started the first of August and they keep getting worse. I was

> > > > picking beans in the garden and my legs just felt like jello,

> > weak.

> > > > I thought it was from being out of shape, but I felt like this all

> > > > week long. I never had any pain at all. After a month of my legs

> > > > feeling like this I started thinking I had MS or something. Then

> > > > along with my legs feeling weak my vision was blurred, I gained 25

> > > > lbs. and I swear it all went to my stomach like I'm pregnant. I

> > kept

> > > > going brushing it off until I had a hard time climbing the stairs.

> > > > It was like my knees would just give out. After 3 months of this I

> > > > went to my family Dr. He tested me for MS, lots of blood work, EKG

> > > > and everything come back normal (I also had no reflexes when he

> > > > tested me and my blood pressure was 160/90). He said something

> > about

> > > > treating me for depression, like this is all in my

> > > > > > > > > > > > > head I wasnt going back. I am on NO medication

> > at

> > > > all. Then after another month it started going up into my upper

> > > > body. Not only are my legs weak but my upper body as well. I look

> > > > like a moran walking so slow like I just cant make it another

> > step.

> > > > The only thing that makes me feel better is taking potassium

> > pills,

> > > > I take 8 to 12 aday not sure if this is good for me or not but I

> > > > atleast have some energy. I can fall asleep at any time of the day

> > > > and I'm in bed by 8 p.m. every night. I seen an article in

> > newspaper

> > > > about conns syndrome and went back to the Dr and demanded the

> > test.

> > > > He did blood work, urine sampling 24 hr. and he ordered a CT

> > scan of

> > > > my stomach area with the dye. I just recently had this done. I've

> > > > been working up until I went in to get my results which was last

> > > > Monday. He said the CT showed a mass on my left adrenal gland. My

> > > > blood work all shows normal. I got copies of all my lab work and

> > my

> > > > sodium is 416H I know thats not normal. My

> > > > > > > > > > > > > potassium/creatine ratio in my urine is 64,

> > random

> > > > 16, and creatinine 25. Not sure what all this is I just need some

> > > > help. I cant take this anymore. After the Dr. told me all this I

> > > > became like more weaker and I fell going to the bathroom that

> > night

> > > > and started to get terrible muscle spasms in my upper back and

> > left

> > > > shoulder. I called him and he gave me a pain med and muscle

> > relaxer

> > > > I took one of each and it just didn't help. It lasted for two days

> > > > and now I'm okay I'm just sore there. My shoulder and my side in

> > my

> > > > rib still is tender and will spasm when I go to bed only. Please

> > > > someone help. Also my chest hurts sometimes like I cant take a

> > deep

> > > > breath it hurts and my ears are plugged. Oh and I can't yawn or

> > > > sneeze I'm just too weak to even though I try does this make any

> > > > sense? My Dr. refered me to a Endocronologist. I go tomarrow.

> > > > > > > > > > > > >

> > > > > > > > > > > > Thank you for replying to my message I was about

> > > > ready to give up. Im new to this and wasn't even sure I posted

> > this

> > > > correctly or maybe it was too long of a story but I just dont want

> > > > to miss anything. I have been freaked out since this happened to

> > me

> > > > and have been searching the web non stop since. I'm thankful my

> > Dr.

> > > > tested me for this. I'm still not sure I have Conn's I'm just

> > hoping

> > > > I do. I know that sounds bad, but it's something. Alot of what the

> > > > Group is saying is new language to me. If you can kind of fill

> > me in

> > > > quick on how this works I would really appreciate it. Thanks again

> > > > Kristy

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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Posted

What is an iridologist?And what were they treating.CE Grim MDOn Jan 17, 2011, at 12:03 PM, Francis Bill SUSPECTED PA wrote:Also have this from her other posting.They did an MRI checking for a tumor on my pituatary gland and coritsol am andpm was both 5.6. I'm 40 years old I am not on anymeds. My blood pressure ranges from 160/90-130/90 everytime I go. I was goingto an iridologist when all this happened so I was taking mega vitamins, couldthis have triggered either of these diseases? > > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > > From: kristystuck <kristystuck@>> > > > > > > > > > > > > Subject: Mass found on my> > > > left adrenal gland> > > > > > > > > > > > > To: hyperaldosteronism > > > > > > > > > > > > > Date: Sunday, January 16, 2011, 1:11 PM> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > > Â> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > > I want to start from the beginning as to the > > very> > > > first symptom. Im pretty sure Conn's is what I have. These > > symptoms> > > > started the first of August and they keep getting worse. I was> > > > picking beans in the garden and my legs just felt like jello, > > weak.> > > > I thought it was from being out of shape, but I felt like this all> > > > week long. I never had any pain at all. After a month of my legs> > > > feeling like this I started thinking I had MS or something. Then> > > > along with my legs feeling weak my vision was blurred, I gained 25> > > > lbs. and I swear it all went to my stomach like I'm pregnant. I > > kept> > > > going brushing it off until I had a hard time climbing the stairs.> > > > It was like my knees would just give out. After 3 months of this I> > > > went to my family Dr. He tested me for MS, lots of blood work, EKG> > > > and everything come back normal (I also had no reflexes when he> > > > tested me and my blood pressure was 160/90). He said something > > about> > > > treating me for depression, like this is all in my> > > > > > > > > > > > > head I wasnt going back. I am on NO medication > > at> > > > all. Then after another month it started going up into my upper> > > > body. Not only are my legs weak but my upper body as well. I look> > > > like a moran walking so slow like I just cant make it another > > step.> > > > The only thing that makes me feel better is taking potassium > > pills,> > > > I take 8 to 12 aday not sure if this is good for me or not but I> > > > atleast have some energy. I can fall asleep at any time of the day> > > > and I'm in bed by 8 p.m. every night. I seen an article in > > newspaper> > > > about conns syndrome and went back to the Dr and demanded the > > test.> > > > He did blood work, urine sampling 24 hr. and he ordered a CT > > scan of> > > > my stomach area with the dye. I just recently had this done. I've> > > > been working up until I went in to get my results which was last> > > > Monday. He said the CT showed a mass on my left adrenal gland. My> > > > blood work all shows normal. I got copies of all my lab work and > > my> > > > sodium is 416H I know thats not normal. My> > > > > > > > > > > > > potassium/creatine ratio in my urine is 64, > > random> > > > 16, and creatinine 25. Not sure what all this is I just need some> > > > help. I cant take this anymore. After the Dr. told me all this I> > > > became like more weaker and I fell going to the bathroom that > > night> > > > and started to get terrible muscle spasms in my upper back and > > left> > > > shoulder. I called him and he gave me a pain med and muscle > > relaxer> > > > I took one of each and it just didn't help. It lasted for two days> > > > and now I'm okay I'm just sore there. My shoulder and my side in > > my> > > > rib still is tender and will spasm when I go to bed only. Please> > > > someone help. Also my chest hurts sometimes like I cant take a > > deep> > > > breath it hurts and my ears are plugged. Oh and I can't yawn or> > > > sneeze I'm just too weak to even though I try does this make any> > > > sense? My Dr. refered me to a Endocronologist. I go tomarrow.> > > > > > > > > > > > >> > > > > > > > > > > > Thank you for replying to my message I was about> > > > ready to give up. Im new to this and wasn't even sure I posted > > this> > > > correctly or maybe it was too long of a story but I just dont want> > > > to miss anything. I have been freaked out since this happened to > > me> > > > and have been searching the web non stop since. I'm thankful my > > Dr.> > > > tested me for this. I'm still not sure I have Conn's I'm just > > hoping> > > > I do. I know that sounds bad, but it's something. Alot of what the> > > > Group is saying is new language to me. If you can kind of fill > > me in> > > > quick on how this works I would really appreciate it. Thanks again> > > > Kristy> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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