Allergy ideas? (sorry a bit long)

[Guest guest]

Hi everyone,

Sorry this is a bit long. Eddie and I had a really really rotten day

attempting NAET. We had a really fabulous day yesterday - he is so

improved - saying " hello " and " bye-bye " to people. This is so

significant for us - Eddie has had such huge problems with anxieties

in the past. We're in a very strange place now - he appears fairly

normal - I can't see anyone giving a diagnosis on his good days now

and he was very autistic and early onset too. What made yesterday so

great was that he had a conversation with the librarian while he

waited for me to fill out the forms. Not so long back we couldn't go

anywhere at all - and especially not the library. We read 4 stories

and he had a good look around and really enjoyed everything - even

did the little quiz and took home a picture to colour. Just amazing.

But the downs after the ups are really hard. I really feel it's

unfair to have to try out therapies rather than spend time just

playing and having fun BUT Eddie is anaphylactic to wheat and egg

white and very allergic to - well most of the planet. It is so hard

just keeping him safe - he is like a peanut allergic child but it's

wheat and egg white that can kill him - every biscuit, pizza, bit of

play doh is absurdly dangerous. Wheat is so pervasive - but I guess

you all know that! So we really have to keep trying everything to

help Eddie heal.

So driving a long long way to the nearest NAET practitioner and it

going so badly was really sad (he just didn't like the place or

anything about it - really awful - lots of pitying looks etc.). We

have also tried looking into low does immunotherapy at Breakspear -

but that's so far away too and he's less ready for that than NAET.

Would really love any suggestions on ideas for helping allergies. We

are well into DAN! and Yasko too. The fact that Eddie can no longer

tolerate colostrum or transfer factor doesn't help.

I'm thinking about having a go at somehow learning NAET myself - we

have got the books. But not sure if this will be the best investment

in our time? Any ideas at all (no matter how wacky) with allergy

interventions would really be welcome.

Best wishes,

Sandy

[Guest guest]

Hi Sandy, I copied an old post that could give a few ideas. not sure if you looked at Chinese medicine/herbs but sounds worth investigating... it would help of course to trace and get in touch with someone who really knows their stuff, like this Dr Lee in the article. "...Just came across this and remembered someone here (Anita?) mentioned chinese herbs blocking anaphylactic reactionsÉ well, here it is:fromhttp://www.co-allergy.com/pt/re/coallergy/abstract.00130832-200506000-00016.htm;jsessionid=GVFbp1r19JTHlZZJgrLYCj6pgySNShrthpjyL1n2c22BxnWxLWTj!588122478!-949856145!8091!-1in short:.... several novel therapeutic approaches, tested in the murine model of peanut anaphylaxis appeared promising. Immunotherapy with engineered recombinant peanut protein and bacterial adjuvant significantly protected peanut allergic mice from anaphylaxis. It was also found that a Chinese herbal medicine formula called Food Allergy Herbal Formula-2 completely blocked anaphylaxis up to 5 weeks following therapy. These potent therapeutic effects are associated with immunoregulation of Th1 and Th2 responses.Dr. Li's current project (with Dr. Sampson) involves applying her research skills for an herbal formula to treat food allergies, particularly the potentially fatal peanut allergy. For this, she is using the traditional formula wu mei san with the addition of ling zhi. Due to FDA concerns, she removed from the original formula aconite (fu zi) and asarum (xi xin). The formula used is the following: * ling zhi (ganoderma lucidum), 28.17% * wu mei (fructus pruni mume), 28.17% * huang lian (rhizoma coptidis), 8.46% * ren shen (radix ginseng), 8.45% * huang bai (cortex phellodendri), 5.63% * gan jiang (rhizoma zingiberis officinalis), 8.45% * dang gui (radix angelicae sinensis), 8.45% * gui zhi (ramulus cinnamomi cassiae), 2.81% * chuan jiao (pericarpium zanthoxyli bungeanum), 1.41%this is what they refer to:J Allergy Clin Immunol. 2005 Jan;115(1):171-8. The Chinese herbal medicine formula FAHF-2 completely blocks anaphylactic reactions in a murine model of peanut allergy. Srivastava KD et al. Department of Pediatrics, Mount Sinai School of Medicine, New York, NY 10029-6574, USA. BACKGROUND: Peanut allergy is potentially life threatening. There is no curative therapy for this disorder. We previously found that an herbal formula, food allergy herbal formula (FAHF)-1, blocked peanut-induced anaphylaxis in a murine model when challenged immediately posttherapy. OBJECTIVE: To test whether FAHF-2, an improved herbal formula, from which 2 herbs, Zhi Fu Zi (Radix Lateralis Aconiti Carmichaeli Praeparata) and Xi Xin (Herba Asari), were eliminated, is equally effective to FAHF-1, and if so, whether protection persists after therapy is discontinued. METHODS: Mice allergic to peanut treated with FAHF-2 for 7 weeks were challenged 1, 3, or 5 weeks posttherapy. Anaphylactic scores, core body temperatures, vascular leakage, and plasma histamine levels after peanut challenge were determined. Serum peanut-specific antibody levels and splenocyte cytokine profiles were also measured. RESULTS: After challenges, all sham-treated mice developed severe anaphylactic signs, significant decrease in rectal temperatures, significantly increased plasma histamine levels, and marked vascular leakage. In contrast, no sign of anaphylactic reactions, decrease in rectal temperatures, or elevation of plasma histamine levels was observed in FAHF-2-treated mice in 5 separate experiments. IgE levels were significantly reduced by FAHF-2 treatment and remained significantly lower as long as 5 weeks posttherapy. Splenocytes from FAHF-2-treated mice showed significantly reduced IL-4, IL-5, and IL-13, and enhanced IFN-gamma production to recall peanut stimulation in vitro . CONCLUSION: FAHF-2 treatment completely eliminated anaphylaxis in mice allergic to peanut challenged as long as 5 weeks posttherapy. This result was associated with downregulation of T H 2 responses. FAHF-2 may be a potentially effective and safe therapy for peanut allergy. PMID: 15637565 [PubMed - indexed for MEDLINE]This link has more on this and some chinese herbal therapies for asthma, also showing some stunning results:http://www.acupuncturetoday.com/archives2005/dec/12fratkin.htmlHTHNatasa--- In Autism-Biomedical-Europe , "Sandy and Tim" wrote:>> Hi everyone,> > Sorry this is a bit long. Eddie and I had a really really rotten day > attempting NAET. We had a really fabulous day yesterday - he is so > improved - saying "hello" and "bye-bye" to people. This is so > significant for us - Eddie has had such huge problems with anxieties > in the past. We're in a very strange place now - he appears fairly > normal - I can't see anyone giving a diagnosis on his good days now > and he was very autistic and early onset too. What made yesterday so > great was that he had a conversation with the librarian while he > waited for me to fill out the forms. Not so long back we couldn't go > anywhere at all - and especially not the library. We read 4 stories > and he had a good look around and really enjoyed everything - even > did the little quiz and took home a picture to colour. Just amazing.> > But the downs after the ups are really hard. I really feel it's > unfair to have to try out therapies rather than spend time just > playing and having fun BUT Eddie is anaphylactic to wheat and egg > white and very allergic to - well most of the planet. It is so hard > just keeping him safe - he is like a peanut allergic child but it's > wheat and egg white that can kill him - every biscuit, pizza, bit of > play doh is absurdly dangerous. Wheat is so pervasive - but I guess > you all know that! So we really have to keep trying everything to > help Eddie heal.> > So driving a long long way to the nearest NAET practitioner and it > going so badly was really sad (he just didn't like the place or > anything about it - really awful - lots of pitying looks etc.). We > have also tried looking into low does immunotherapy at Breakspear - > but that's so far away too and he's less ready for that than NAET. > Would really love any suggestions on ideas for helping allergies. We > are well into DAN! and Yasko too. The fact that Eddie can no longer > tolerate colostrum or transfer factor doesn't help.> > I'm thinking about having a go at somehow learning NAET myself - we > have got the books. But not sure if this will be the best investment > in our time? Any ideas at all (no matter how wacky) with allergy > interventions would really be welcome. > > Best wishes,> Sandy>

[Guest guest]

Hi Sandy,

I believe there is a NEAT practioner(level 1) course comimg up in

London. 3 day course for about £400--dont quote me though.

Keep up the good work.

Baz

>

> Hi everyone,

>

> Sorry this is a bit long. Eddie and I had a really really rotten

day

> attempting NAET. We had a really fabulous day yesterday - he is

so

> improved - saying " hello " and " bye-bye " to people. This is so

> significant for us - Eddie has had such huge problems with

anxieties

> in the past. We're in a very strange place now - he appears

fairly

> normal - I can't see anyone giving a diagnosis on his good days

now

> and he was very autistic and early onset too. What made yesterday

so

> great was that he had a conversation with the librarian while he

> waited for me to fill out the forms. Not so long back we couldn't

go

> anywhere at all - and especially not the library. We read 4

stories

> and he had a good look around and really enjoyed everything - even

> did the little quiz and took home a picture to colour. Just

amazing.

>

> But the downs after the ups are really hard. I really feel it's

> unfair to have to try out therapies rather than spend time just

> playing and having fun BUT Eddie is anaphylactic to wheat and egg

> white and very allergic to - well most of the planet. It is so

hard

> just keeping him safe - he is like a peanut allergic child but

it's

> wheat and egg white that can kill him - every biscuit, pizza, bit

of

> play doh is absurdly dangerous. Wheat is so pervasive - but I

guess

> you all know that! So we really have to keep trying everything to

> help Eddie heal.

>

> So driving a long long way to the nearest NAET practitioner and it

> going so badly was really sad (he just didn't like the place or

> anything about it - really awful - lots of pitying looks etc.).

We

> have also tried looking into low does immunotherapy at Breakspear -

> but that's so far away too and he's less ready for that than

NAET.

> Would really love any suggestions on ideas for helping allergies.

We

> are well into DAN! and Yasko too. The fact that Eddie can no

longer

> tolerate colostrum or transfer factor doesn't help.

>

> I'm thinking about having a go at somehow learning NAET myself -

we

> have got the books. But not sure if this will be the best

investment

> in our time? Any ideas at all (no matter how wacky) with allergy

> interventions would really be welcome.

>

> Best wishes,

> Sandy

>