Re: Re: Wondered

February 22, 2011

You can search all of our 30000+ emails I think.CE Grim MDOn Feb 22, 2011, at 12:12 PM, Francis Bill SUSPECTED PA wrote:There was someone in this group that did the study at HIH. But stopped posting soon after. Over all he was happy with what was done. They did have to do AVS twice on him. He lived in that area so was much easier for him. I believe they have many on going studies. >> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will add my file after i hear on the lab results from BI>

February 23, 2011

Lettie,

I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:

DASH as your life depends on it :-)

Good luck,

Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo.

To: hyperaldosteronism Sent: Wed, February 23, 2011 3:40:54 AMSubject: Re: Wondered

Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will

add my file after i hear on the lab results from BI>

February 23, 2011

Natalia- you have either AME or Liddle's Syndrome or are eating a lot of licorice. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Lettie,

I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:

DASH as your life depends on it :-)

Good luck,

Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo.

To: hyperaldosteronism Sent: Wed, February 23, 2011 3:40:54 AMSubject: Re: Wondered

Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will

add my file after i hear on the lab results from BI>

February 23, 2011

micardis is likely playing no role. Reread my article.what do the call lcorice in Russian. Are you sure you know what licorice is?Just want to be sure. Not trying to insult you.the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.CE Grim MDIf you have Liddle't the Rx can be DASH and MCBs or amiloride. 5he latter closes ENAC channels which stay open in Liddle's.CE Grim MDDr. Grim, I even never saw or heard about licorice, except in movies :-) As for AME or Liddle's, what tests should I ask for to diagnose them? And as far as I could understand from your emails, anyway the medications for them are spiro or Inspra? If I have AME or Liddle's, should micardis works for me? Because micardis + eplerenone + DASH makes me ALMOST normal. With great appreciation, Natalia Kamneva, 66 F Russian with 1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo To: "hyperaldosteronism " <hyperaldosteronism >Sent: Wed, February 23, 2011 5:01:50 PMSubject: Re: Re: Wondered Natalia- you have either AME or Liddle's Syndrome or are eating a lot of licorice. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Lettie, I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:DASH as your life depends on it :-) Good luck, Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo. To: hyperaldosteronism Sent: Wed, February 23, 2011 3:40:54 AMSubject: Re: Wondered Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will add my file after i hear on the lab results from BI>

February 24, 2011

>micardis is likely playing no role. Reread my article.

When I try to reduce the dosage my BP goes up.

>what do the call lcorice in Russian. Are you sure you know what licorice is?

Not sure. Don't think we have licorice in Russia. Since I live about 18 years in Pennsylvania, you can hardly consider me pure Russian. Is licorice something like candies?

>Just want to be sure. Not trying to insult you.

No insult at all. I am learning so much from you and I am so grateful!!!!

>the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

This DOCA (not on the list of abbreviatons) can cause high BP?

>If you have Liddle't the Rx can be DASH and MCBs or amiloride.

MCBs??????? Then eplerenone should not help me? It helps.

Have a very nice trip. I can imagine how much are you tired from our problems :-)

To: hyperaldosteronism Cc: Clarence Grim Sent: Wed, February 23, 2011 8:28:32 PMSubject: Re: Re: Wondered

micardis is likely playing no role. Reread my article. what do the call lcorice in Russian. Are you sure you know what licorice is?

Just want to be sure. Not trying to insult you.

the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

CE Grim MD

If you have Liddle't the Rx can be DASH and MCBs or amiloride. 5he latter closes ENAC channels which stay open in Liddle's.

CE Grim MD

Dr. Grim, I even never saw or heard about licorice, except in movies :-)

As for AME or Liddle's, what tests should I ask for to diagnose them? And as far as I could understand from your emails, anyway the medications for them are spiro or Inspra?

If I have AME or Liddle's, should micardis works for me? Because micardis + eplerenone + DASH makes me ALMOST normal.

With great appreciation,

Natalia Kamneva, 66 F Russian with 1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Wed, February 23, 2011 5:01:50 PMSubject: Re: Re: Wondered

Natalia- you have either AME or Liddle's Syndrome or are eating a lot of licorice.

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Lettie,

I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:

DASH as your life depends on it :-)

Good luck,

Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo.

To: hyperaldosteronism Sent: Wed, February 23, 2011 3:40:54 AMSubject: Re: Wondered

Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said

she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will add my file after i hear on the lab results from BI>

February 24, 2011

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

To: hyperaldosteronism Sent: Wed, February 23, 2011 8:39:13 PMSubject: RE: Re: Wondered

Natalia alread said:

BTW, of course, sometimes I also cheat with a diet. I am a big fan of chocolate, but I buy only 90% cocoa with 3 g of sugar.

There may be a connection!

Max.

micardis is likely playing no role. Reread my article. what do the call lcorice in Russian. Are you sure you know what licorice is?

Just want to be sure. Not trying to insult you.

the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

CE Grim MD

If you have Liddle't the Rx can be DASH and MCBs or amiloride. 5he latter closes ENAC channels which stay open in Liddle's.

CE Grim MD

February 24, 2011

Liquorice flavour is found in a wide variety of liquorice candies. The most popular in the United Kingdom are liquorice allsorts. In continental Europe, however, far stronger, saltier candies are preferred. In most of these candies the taste is reinforced by aniseed oil, and the actual content of liquorice is very low.

In the Netherlands, where liquorice candy ("drop") is one of the most popular forms of sweet, only a few of the many forms that are sold contain aniseed (although mixing it with mint, menthol or with laurel is popular, and mixing it with ammonium chloride creates the very popular salty liquorice known in Dutch as zoute drop.)[8]

Ref.: http://en.wikipedia.org/wiki/Licorice

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

February 24, 2011

So, it's candies, not that they add it to chocolate bars? I am diabetic and didn't take any candies in my mouth for 10 years.

Natalia

To: hyperaldosteronism Sent: Thu, February 24, 2011 1:38:50 PMSubject: RE: Re: Wondered

Liquorice flavour is found in a wide variety of liquorice candies. The most popular in the United Kingdom are liquorice allsorts. In continental Europe, however, far stronger, saltier candies are preferred. In most of these candies the taste is reinforced by aniseed oil, and the actual content of liquorice is very low.

In the Netherlands, where liquorice candy ("drop") is one of the most popular forms of sweet, only a few of the many forms that are sold contain aniseed (although mixing it with mint, menthol or with laurel is popular, and mixing it with ammonium chloride creates the very popular salty liquorice known in Dutch as zoute drop.)[8]

Ref.: http://en.wikipedia.org/wiki/Licorice

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

So

February 24, 2011

Many thanks, Val.

Natalia

To: hyperaldosteronism Sent: Thu, February 24, 2011 1:54:10 PMSubject: RE: Re: Wondered

MCB = mineralocorticoid blocker = Inspra = spironolactone

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Natalia Kamneva

MCBs??????? Then eplerenone should not help me? It helps.

..

February 24, 2011

I remember reading, in PA literature, not to eat licorice . I used the get the nice Dutch salty stuff. Gave that up quick! American licorice rarely has real licorice in it. It's usually anise.

>micardis is likely playing no role. Reread my article.

When I try to reduce the dosage my BP goes up.

>what do the call lcorice in Russian. Are you sure you know what licorice is?

Not sure. Don't think we have licorice in Russia. Since I live about 18 years in Pennsylvania, you can hardly consider me pure Russian. Is licorice something like candies?

>Just want to be sure. Not trying to insult you.

No insult at all. I am learning so much from you and I am so grateful!!!!

>the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

This DOCA (not on the list of abbreviatons) can cause high BP?

>If you have Liddle't the Rx can be DASH and MCBs or amiloride.

MCBs??????? Then eplerenone should not help me? It helps.

Have a very nice trip. I can imagine how much are you tired from our problems :-)

To: hyperaldosteronism Cc: Clarence Grim Sent: Wed, February 23, 2011 8:28:32 PMSubject: Re: Re: Wondered

micardis is likely playing no role. Reread my article. what do the call lcorice in Russian. Are you sure you know what licorice is?

Just want to be sure. Not trying to insult you.

the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

CE Grim MD

If you have Liddle't the Rx can be DASH and MCBs or amiloride. 5he latter closes ENAC channels which stay open in Liddle's.

CE Grim MD

Dr. Grim, I even never saw or heard about licorice, except in movies :-)

As for AME or Liddle's, what tests should I ask for to diagnose them? And as far as I could understand from your emails, anyway the medications for them are spiro or Inspra?

If I have AME or Liddle's, should micardis works for me? Because micardis + eplerenone + DASH makes me ALMOST normal.

With great appreciation,

Natalia Kamneva, 66 F Russian with 1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Wed, February 23, 2011 5:01:50 PMSubject: Re: Re: Wondered

Natalia- you have either AME or Liddle's Syndrome or are eating a lot of licorice.

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Lettie,

I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:

DASH as your life depends on it :-)

Good luck,

Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo.

To: hyperaldosteronism Sent: Wed, February 23, 2011 3:40:54 AMSubject: Re: Wondered

Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said

she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will add my file after i hear on the lab results from BI>

February 24, 2011

I tried controlling BP w just meds but w all the testing they took me off spire so manytimes. I'd end up in ER. Finally I was just given nitroglycerin . It was what worked best on those severe days. That wasn't living for me so I decided on surgery. I felt it was my best option but every case is different. Low K makes it harder for your blood to clot and I already have a clotting disorder. So after 3 blood transfusions and numerous ER visits for massive high BP- I decided anything was better than this. It's a hard decision but everyone has a different case.

o S, Didn't think I was overthinking it. Have been told it is complicated. I don't want an AVS nor do I want surgery.If I could control my BP with meds I will. The spiro hasn't done that . Anyway thanks for the advice.

L

> >

> > A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad.

> > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated.

> > L

> > PS I will add my file after i hear on the lab results from BI

> >

>

February 24, 2011

Suspect you mean Cushing's syndrome.NIH would be a good choice if she has both. But I think they needed an adrenal bump as well. On Feb 23, 2011, at 4:20 PM, Francis Bill SUSPECTED PA wrote:Her test results show she has both PA and Cushman's She needs to find someone that can help her with this. > >> > A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > > L> > PS I will add my file after i hear on the lab results from BI> >>

February 24, 2011

I don't think we have your whole story yet. CE GRIM MDTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I tried controlling BP w just meds but w all the testing they took me off spire so manytimes. I'd end up in ER. Finally I was just given nitroglycerin . It was what worked best on those severe days. That wasn't living for me so I decided on surgery. I felt it was my best option but every case is different. Low K makes it harder for your blood to clot and I already have a clotting disorder. So after 3 blood transfusions and numerous ER visits for massive high BP- I decided anything was better than this. It's a hard decision but everyone has a different case.

o S, Didn't think I was overthinking it. Have been told it is complicated. I don't want an AVS nor do I want surgery.If I could control my BP with meds I will. The spiro hasn't done that . Anyway thanks for the advice.

L

> >

> > A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad.

> > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated.

> > L

> > PS I will add my file after i hear on the lab results from BI

> >

>

February 24, 2011

Anise also contains the glyz acid as I recall. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I remember reading, in PA literature, not to eat licorice . I used the get the nice Dutch salty stuff. Gave that up quick! American licorice rarely has real licorice in it. It's usually anise.

>micardis is likely playing no role. Reread my article.

When I try to reduce the dosage my BP goes up.

>what do the call lcorice in Russian. Are you sure you know what licorice is?

Not sure. Don't think we have licorice in Russia. Since I live about 18 years in Pennsylvania, you can hardly consider me pure Russian. Is licorice something like candies?

>Just want to be sure. Not trying to insult you.

No insult at all. I am learning so much from you and I am so grateful!!!!

>the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

This DOCA (not on the list of abbreviatons) can cause high BP?

>If you have Liddle't the Rx can be DASH and MCBs or amiloride.

MCBs??????? Then eplerenone should not help me? It helps.

Have a very nice trip. I can imagine how much are you tired from our problems :-)

To: hyperaldosteronism Cc: Clarence Grim Sent: Wed, February 23, 2011 8:28:32 PMSubject: Re: Re: Wondered

micardis is likely playing no role. Reread my article. what do the call lcorice in Russian. Are you sure you know what licorice is?

Just want to be sure. Not trying to insult you.

the adeoma could also be making other mieralocoticoids such as DOCA but if doing well no worries.

CE Grim MD

If you have Liddle't the Rx can be DASH and MCBs or amiloride. 5he latter closes ENAC channels which stay open in Liddle's.

CE Grim MD

Dr. Grim, I even never saw or heard about licorice, except in movies :-)

As for AME or Liddle's, what tests should I ask for to diagnose them? And as far as I could understand from your emails, anyway the medications for them are spiro or Inspra?

If I have AME or Liddle's, should micardis works for me? Because micardis + eplerenone + DASH makes me ALMOST normal.

With great appreciation,

Natalia Kamneva, 66 F Russian with 1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Wed, February 23, 2011 5:01:50 PMSubject: Re: Re: Wondered

Natalia- you have either AME or Liddle's Syndrome or are eating a lot of licorice.

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Lettie,

I completely agree with o, even though I don't have high aldo, but I have all other things on his list and all symptoms of PA. I started on 50 mg eplerenone(generic of Inspra) and it works magically for me. What he forgot to tell you:

DASH as your life depends on it :-)

Good luck,

Natalia Kamneva, 66 F Russian with1.5 cm left adrenal adenoma, HTN, low K, low renin and low aldo.

To: hyperaldosteronism Sent: Wed, February 23, 2011

3:40:54 AMSubject: Re: Wondered

Sorry I have not followed your case but really why go trough all the trouble of doing that study hyperaldosteronism is simpleHigh Pressurehigh aldo low reninhigh likelyhood low Kwith that you get the diagnostic, and the treatment is even easierstart blocking aldo, with spiro. (or inspira )now you have even the small tumor so reallyI see this as a no brainerwell without numbers noone here can really give you a diagnosis, however give us your K,NA,Aldo,Renin,serum K values and DR grimm or someone will tell you if it is what you think it isThen start the spiro an voila gonna go for a better life.this is not rocket science and an AVS is not something to be taken lightly.Really don't over think it, or look for another physician>> A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad. > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high

cortisol. The endo at Beth Israel said

she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated. > L> PS I will add my file after i hear on the lab results from BI>

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MARKETPLACE

February 24, 2011

Good DM Should get better with DASHING AND SPIROTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

So, it's candies, not that they add it to chocolate bars? I am diabetic and didn't take any candies in my mouth for 10 years.

Natalia

To: hyperaldosteronism Sent: Thu, February 24, 2011 1:38:50 PMSubject: RE: Re: Wondered

Liquorice flavour is found in a wide variety of liquorice candies. The most popular in the United Kingdom are liquorice allsorts. In continental Europe, however, far stronger, saltier candies are preferred. In most of these candies the taste is reinforced by aniseed oil, and the actual content of liquorice is very low.

In the Netherlands, where liquorice candy ("drop") is one of the most popular forms of sweet, only a few of the many forms that are sold contain aniseed (although mixing it with mint, menthol or with laurel is popular, and mixing it with ammonium chloride creates the very popular salty liquorice known in Dutch as zoute drop.)[8]

Ref.: http://en.wikipedia.org/wiki/Licorice

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

So

February 24, 2011

Go to licorice.com for the real scoop would be interested in who wrote the wikipedia part. Someone from the candy industryTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

So, it's candies, not that they add it to chocolate bars? I am diabetic and didn't take any candies in my mouth for 10 years.

Natalia

To: hyperaldosteronism Sent: Thu, February 24, 2011 1:38:50 PMSubject: RE: Re: Wondered

Liquorice flavour is found in a wide variety of liquorice candies. The most popular in the United Kingdom are liquorice allsorts. In continental Europe, however, far stronger, saltier candies are preferred. In most of these candies the taste is reinforced by aniseed oil, and the actual content of liquorice is very low.

In the Netherlands, where liquorice candy ("drop") is one of the most popular forms of sweet, only a few of the many forms that are sold contain aniseed (although mixing it with mint, menthol or with laurel is popular, and mixing it with ammonium chloride creates the very popular salty liquorice known in Dutch as zoute drop.)[8]

Ref.: http://en.wikipedia.org/wiki/Licorice

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

So

February 24, 2011

Make that licorice.orgTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Liquorice flavour is found in a wide variety of liquorice candies. The most popular in the United Kingdom are liquorice allsorts. In continental Europe, however, far stronger, saltier candies are preferred. In most of these candies the taste is reinforced by aniseed oil, and the actual content of liquorice is very low.

In the Netherlands, where liquorice candy ("drop") is one of the most popular forms of sweet, only a few of the many forms that are sold contain aniseed (although mixing it with mint, menthol or with laurel is popular, and mixing it with ammonium chloride creates the very popular salty liquorice known in Dutch as zoute drop.)[8]

Ref.: http://en.wikipedia.org/wiki/Licorice

I didn't get that: the connection between licorice and chocolate???? Or are you just kidding me?

Max, what exactly licorice is? In which forms it exists in the USA?

Many thanks,

Natalia

February 24, 2011

Thanks for the summary. Most Americans eat so much salt that many HTN DRUGS NOT only Spiro don't work. If u review Guyton's medical Physiology section on the regulation of the circulation it will become clear why bTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I back up the "read the bravo article"

Just as an intro, basically it says that spiro effectiveness is based on how much sodium you eat.

if you eat a LOT of sodium you will need a LOT of spiro, or even spiro will not work.

if you restrict the sodium you will need little to no spiro.

personally I was with 4-5 BP meds, and I had bps over 190/110 so I found I had PA, and immediately switched to spiro only 50mgs ( ok I kept atenolol for like 1 month cause of the withdrawal effect )

I started dashing like mad, then 50mgs where too much for me, ( read another post where I write low bp ) so I had to switch to 25mgs

So really spiro without dash is useless, and spiro without dash lowers the need for spiro, and at very good dashing we could go to a point where we do not need spiro.

So really if we where left in the wilderness we would not need spiro, just to steer away of the salt, actually that's comforting in the case we could not afford meds we would just need to eat saltless.

here people write a lot, Dash like your life depended on it, seems a joke, but really when it comes to it.. it does.

For now think that salt is basically a poison for you... avoid it.

TC

> > > >

> > > > A few days ago I asked what people's opinion was on doing a clinical study at NIH. Someone here had suggested it and on the other message board as well. Nobody repsonded to that post and I wondered if I said something wrong again. If anyone has an opinion on that I welcome it both good and bad.

> > > > I'm thinking that even without the AVS I have a DX of PA. I am 48 and had a ct scan showing a small tumor, I have low renin, high urine aldo and high cortisol. The endo at Beth Israel said she isn't convinced but I also got the sense she didn't have any experience with this so ...Anyway my point is, the studies at NIH have been suggested to me but I wanted to hear from people here. You all have so much information and i find it very useful. Any thoughts would be appreciated.

> > > > L

> > > > PS I will add my file after i hear on the lab results from BI

> > > >

> > >

> >

>

February 24, 2011

Good echo. CE Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension