Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hello Jeff, I hope you are resting up, taking it easy. The body needs sleep and fluids to bounce back. Thanks for reporting in, I look forward to finding out more about your gross pictures. Isn't the bone hearing aid the one that you wear outside the ear? I think it might be (but I could be wrong!). You know, some hearing aids go inside the ear, some sit outside & behind it. One of the guys in the group (Pete) talked about them in a post just after my last op in May. Take care, get well - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Jeff, Glad you came through the surgery ok. It seems like most of us here ended up with a canal wall down. It is kind of strange, that the ones we hear most about are cwd, and the textbooks say that canal wall up is the procedure of choice... The one advantage though is that you are not as likely to have further or new growth of c-toma. Apart from that, you also have a larger external ear canal, but once you are healed, you shouldn't be able to notice any difference in your ears... My rt ear feels different though... and I think it always will. Are the pics of the surgical procedure itself? How did you get them to do that... pretty neat. I am not sure what a bone hearing aid is. Wait till you have more healing before deciding what to do next. There are a lot of sites you can go to learn about hearing aids... I guess the one you mention is for bone conduction. My ENT mentioned a hearing aid to me, but I told him that I am not too keen on that, and he says he may be able to reconstruct the ossicles... but he wants to wait at least 6 more months. I will try that before I think about a hearing aid... Good luck with your recovery. Keep us posted. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Jeff, Good to have you report in. Sounds like the surgery was extensive. I hope you feel o.k. Are you dizzy at all? You may want to ask your doctor about reconstructive surgery before you look into hearing aids. If the bones of hearing were destroyed by the cholesteatoma, prosthetics can be used and the eardrum can be graphed. I'm not sure what a " bone hearing aid " is maybe someone else can help you with that one. Mark > Had surgery yesterday. Bad news is, they had to do a canal wall down. It was > pretty bad in there. Cholesteotoma on the nerve, balance canal and filling > the mastoid. He said I should look into a " bone hearing aid. " What is this? > > I have pix. Will scan & upload later in case anybody wants to get grossed > out. > > -- > Cheers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Jeff Congratulations, You're over the worst part of it! Bone conduction hearing aids can be very alien looking devices and don't usually have a very good press. Basically they amplify the sound that is transmits the bone of the skull. If you're thoroughly conductively deaf, this would probably be a louder version of the sound you're already getting - probably just a louder distortion. BCHAs do tend to fall off, though sometimes there held in place and partially disguised by glasses or (weirdly) headbands. The only alternative is to drill a hole into the skull and implant the device - that improves the sound but is a bit too drastic for most people. You would really have to try BCHA on to know whether it would make any useful improvement to your hearing. Try this web address. A straightforward explanation that isn't influenced by any commercial interest. Phil http://www.rnid.org.uk/html/info_factsheets_hearing_aids_bone_conduction_hearing_aids.htm Surgery report Hi all.Had surgery yesterday. Bad news is, they had to do a canal wall down. It waspretty bad in there. Cholesteotoma on the nerve, balance canal and fillingthe mastoid. He said I should look into a "bone hearing aid." What is this?I have pix. Will scan & upload later in case anybody wants to get grossedout.--Cheers,--Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Phil, Can you suggest a site for hearing aids. My surgeon wants me to wait 6 months, before he will try reconstruction. I know that this might not be successful, so then I'll be thinking of a hearing aid... and while I now know quite a bit about c-toma, (more than I'd ever imagine I'd know), I don't know anything about hearing aids... I read that they are harder to fit in an ear after a meatoplasty... I hear well in my left ear and that is why I am not too keen on wearing one, but there are times where I know a hearing aid would help. I haven't got a clue of what I should look for in one. Thanks Lynn Surgery report Hi all.Had surgery yesterday. Bad news is, they had to do a canal wall down. It waspretty bad in there. Cholesteotoma on the nerve, balance canal and fillingthe mastoid. He said I should look into a "bone hearing aid." What is this?I have pix. Will scan & upload later in case anybody wants to get grossedout.--Cheers,--Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Dear Jeff, Very best wishes to you for a speedy recovery. CWD is not so bad...that is what I had first op (almost 9 yrs ago) and I have had NO regrowth since. Although healing takes time I am glad I had it in the first place. Remember to rest Audrey Surgery report Hi all.Had surgery yesterday. Bad news is, they had to do a canal wall down. It waspretty bad in there. Cholesteotoma on the nerve, balance canal and fillingthe mastoid. He said I should look into a "bone hearing aid." What is this?I have pix. Will scan & upload later in case anybody wants to get grossedout.--Cheers,--Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Jeff, Glad you're out of surgery. Never heard of bone hearing aide, but my hubby had a cwd in his left ear (2nd surgery) and was left with a maximal conductive hearing loss. He now wears a behind the ear hearing aide and hears pretty much fine, but he has trouble if more than one person is talking to him at the same time. The audiologist said he had the perfect type of hearing loss for use of a hearing aide. Michele Jeff Tindall wrote: Hi all.Had surgery yesterday. Bad news is, they had to do a canal wall down. It waspretty bad in there. Cholesteotoma on the nerve, balance canal and fillingthe mastoid. He said I should look into a "bone hearing aid." What is this?I have pix. Will scan & upload later in case anybody wants to get grossedout.--Cheers,--Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Re: Surgery report >Try this web address. A straightforward explanation that isn't influenced >by any commercial interest. > >Phil >http://www.rnid.org.uk/html/info_factsheets_hearing_aids_bone_conduction_he aring_aids.htm This was most helpful, thank you. Here's the pix, y'all: http://www.cincinnatimedia.com/tumor/ There are four pictures, the first is a " before " the middle two are during and the last is " after " . -- Cheers, --Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 --Hi Jeff, I am so happy that the surgery went well for you. Be sure and rest up and take it easy on the pain meds! LOL I had a look see at your pictures, YUK, how did you get those? I hope you feel better soon, take care, Charla. In cholesteatoma@y..., " Jeff Tindall " <@T...> wrote: > Hi all. > > Had surgery yesterday. Bad news is, they had to do a canal wall down. It was > pretty bad in there. Cholesteotoma on the nerve, balance canal and filling > the mastoid. He said I should look into a " bone hearing aid. " What is this? > > I have pix. Will scan & upload later in case anybody wants to get grossed > out. > > -- > Cheers, > --Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 On Tue, 16 Jul 2002 16:25:06 EDT rlockw1092@... wrote: > Isn't the bone hearing aid the one that you wear outside the ear? I > think it might be (but I could be wrong!). You know, some hearing aids > go inside the ear, some sit outside & behind it. One of the guys in > the group (Pete) talked about them in a post just after my last op in > May. Hi People. I think I may have mentioned Songbird hearing aids at some point in the past. However, I've since seen an audiologist at Boots (UK) who told me that they wouldn't be powerful enough for a total conductive loss. Instead she recommended a Danavox 163PPV BTE aid, which costs UKP 650 for one. I had my second surgery (first for right ear) 3 weeks ago. I've been holding off posting for a couple of reasons. The first is I've also been struggling with depression, but the meds I'm on now (Seroxat) seem to be kicking in, so I'm a bit more upbeat now. Secondly, the surgeon wasn't able to reconstruct the hearing bones this time, as there was bone rebuilding work required at the head of the ear canal where it meets the ear drum (he says he used a bone paste). He's also grafted the hole in the eardrum, using both muscle covering and some cartiledge this time (the graft in the left ear drum inverts, but does pop out again if I 'pop my ears', so the cartiledge is supposed to strengthen it). So I was going to wait until I have the packing out (today at 2:30pm) until I posted, so I could let you all know what the hearing loss is like. Currently I'm completely deaf in the right ear, but I don't know how much of that is caused by the packing. I'm pleased to report that this operation, and recovery afterwards, has been alot easier than the first I had. For a start the operation only lasted 2 and bit hours, so I was less affected by the anesthetic. I've been less scared of touching the scar and ear too, so I've felt more comfortable with it. The pain was no where near as bad as last time, but did last for about a week afterwards (controlled with a combination of ibuprofen and paracetamol). I've even been able to sleep on my right ear already, which does help with hearing the alarm in the mornings (although I've also gotten myself a vibrating alarm clock to go under the pillow, just to be on the safe side). Due to my lack of fear exploring the scar, I've noticed I have a fingertip sized depression just behind the top of the ear, as if the bone underneath is missing. It freaked me out a bit when I first discovered it, but I've since found I have one of similar size on the left too. I'm going to ask the consultant about it when I see him later today, but I guess some skull drilling is required when they go in behind the ear, unless this is the mastoid process that got drilled. The scar is very neat and tidy too, a fact commented on my the nurses when I was in hospital (they were absolutely excellent - if you ever have to go into the Independant Berkshire Hospital in the UK you can be assured you'll get the best care - private rooms too!). All in all, I think I've had a very good experience this time, no dizzyness or suchlike. Just a little vision problem on the right when the face was swollen out for the first few days. All I've got to do now is see how I cope with the hearing loss (I've already found it quite upsetting at times), but hopefully I'll be able to hear something on the right when the packing comes out. -- Pete pete@... ------------------------------------------------------------- MaVerick - Open Source MultiValue Database Management System Check out the website -> http://www.maverick-dbms.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Re: Surgery report > I've even been able to sleep on my right > ear already, which does help with hearing the alarm in the mornings > (although I've also gotten myself a vibrating alarm clock to go under > the pillow, just to be on the safe side). I've got one of these gizmos too. Works quite well. I've also got an Ameriphone in-line telephone amplifier (HA-40), and a light thingy that goes on when the phone rings. -- Cheers, --Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Dear Pete, Well I hope as each day passes things improve for you. I can understand the depression as at various times I have felt the same. It's like losing control of your body in a way. Others unless they suffer hearing loss have no idea what you are going through. The best way I keep on top of it all is to think I am really lucky they found the C-toma before it reached my brain! I am now completely deaf (well 99%) in my left ear...I tried a hearing aid without much luck and can't afford one of the "newer" versions people refer to here. Anyway keep your "chin up"...as I said to a friend only yesterday..."At least now I only have to listen to half the "bull......" (dust of course!) Audrey Re: Surgery report On Tue, 16 Jul 2002 16:25:06 EDTrlockw1092@... wrote:> Isn't the bone hearing aid the one that you wear outside the ear? I> think it might be (but I could be wrong!). You know, some hearing aids> go inside the ear, some sit outside & behind it. One of the guys in> the group (Pete) talked about them in a post just after my last op in> May.Hi People.I think I may have mentioned Songbird hearing aids at some point in thepast. However, I've since seen an audiologist at Boots (UK) who told methat they wouldn't be powerful enough for a total conductive loss.Instead she recommended a Danavox 163PPV BTE aid, which costs UKP 650for one.I had my second surgery (first for right ear) 3 weeks ago. I've beenholding off posting for a couple of reasons. The first is I've alsobeen struggling with depression, but the meds I'm on now (Seroxat) seemto be kicking in, so I'm a bit more upbeat now. Secondly, the surgeonwasn't able to reconstruct the hearing bones this time, as there wasbone rebuilding work required at the head of the ear canal where itmeets the ear drum (he says he used a bone paste). He's also graftedthe hole in the eardrum, using both muscle covering and some cartiledgethis time (the graft in the left ear drum inverts, but does pop outagain if I 'pop my ears', so the cartiledge is supposed to strengthenit). So I was going to wait until I have the packing out (today at2:30pm) until I posted, so I could let you all know what the hearingloss is like.Currently I'm completely deaf in the right ear, but I don't know howmuch of that is caused by the packing.I'm pleased to report that this operation, and recovery afterwards, hasbeen alot easier than the first I had. For a start the operation onlylasted 2 and bit hours, so I was less affected by the anesthetic. I'vebeen less scared of touching the scar and ear too, so I've felt morecomfortable with it. The pain was no where near as bad as last time,but did last for about a week afterwards (controlled with a combinationof ibuprofen and paracetamol). I've even been able to sleep on my rightear already, which does help with hearing the alarm in the mornings(although I've also gotten myself a vibrating alarm clock to go underthe pillow, just to be on the safe side).Due to my lack of fear exploring the scar, I've noticed I have afingertip sized depression just behind the top of the ear, as if thebone underneath is missing. It freaked me out a bit when I firstdiscovered it, but I've since found I have one of similar size on theleft too. I'm going to ask the consultant about it when I see him latertoday, but I guess some skull drilling is required when they go inbehind the ear, unless this is the mastoid process that got drilled.The scar is very neat and tidy too, a fact commented on my the nurseswhen I was in hospital (they were absolutely excellent - if you everhave to go into the Independant Berkshire Hospital in the UK you can beassured you'll get the best care - private rooms too!).All in all, I think I've had a very good experience this time, nodizzyness or suchlike. Just a little vision problem on the right whenthe face was swollen out for the first few days.All I've got to do now is see how I cope with the hearing loss (I'vealready found it quite upsetting at times), but hopefully I'll be ableto hear something on the right when the packing comes out.-- Petepete@...-------------------------------------------------------------MaVerick - Open Source MultiValue Database Management SystemCheck out the website -> http://www.maverick-dbms.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 This is my first time in the chat group, so am not sure about the set up. My question is for Jeff. You said you had a "canal wall down". What is this? I am about to have my third trip to surgery (3 Sept). The first surgery (1976) I had Tympanoplasty, Mastoidectomy, and "clean up of the small bones" (that is how it was explained to me). In 1998 I had a radically modified mastoidectomy, tympanoplasty, OCR (occipital chain reconstruction) and a metoplasty. This trip he is widening the ear canal (I have repeated fungal infections), revisit the OCR, and check for any C-toma. I thank everyone you contributes to this chat session as I have learnt so much more than anywhere else. Diane Re: Surgery report Hi Jeff, Glad you're out of surgery. Never heard of bone hearing aide, but my hubby had a cwd in his left ear (2nd surgery) and was left with a maximal conductive hearing loss. He now wears a behind the ear hearing aide and hears pretty much fine, but he has trouble if more than one person is talking to him at the same time. The audiologist said he had the perfect type of hearing loss for use of a hearing aide. Michele Jeff Tindall wrote: Hi all. Had surgery yesterday. Bad news is, they had to do a canal wall down. It was pretty bad in there. Cholesteotoma on the nerve, balance canal and filling the mastoid. He said I should look into a "bone hearing aid." What is this? I have pix. Will scan & upload later in case anybody wants to get grossed out. -- Cheers, --Jeff (very wasted) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Re: Surgery report >My question is for Jeff. You said you had a " canal wall down " . What is this? It refers to the method of surgery. Simply put, it is the more radical option, where they take down the wall of the ear canal (hence the name). You may find this Web page informative. http://www.atlantaearclinic.com/surgeries.htm -- Cheers, --Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Hi Ken, A canal wall down also gives you the least chance of recurrence, but is not a guarantee that c-toma will not return. Check out the Bank of Bookmarks in, of course, the bookmarks section. They contain a wealth of information and pictures. Welcome to the group. Michele Jeff Tindall wrote: Re: Surgery report>My question is for Jeff. You said you had a "canal wall down". What isthis?It refers to the method of surgery. Simply put, it is the more radicaloption, where they take down the wall of the ear canal (hence the name).You may find this Web page informative.http://www.atlantaearclinic.com/surgeries.htm--Cheers,--Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Vicky, I had my ankle repositioned 3 years ago and was in for 3 days then. I didn't even realize it was doing it again. I knew my fusion had broke and my foot was turning in so that the bottom of my left foot was facing the side of my right foot. I am definately gonna ask to be admitted for my right foot. It was just too much and I have a high pain tolerance. I have had several sugeries in the past and wear AFOs. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi Jen. Glad to hear you are up sorry to hear about the pain. When they repositioned my heels 20+ years ago I was in the hospital for days!! So you had yours done as out patient? WOW. How long will you be off your foot? You might have gone over this and I missed it but what lead to the surgury? Rolling your ankle? Did you try anything before surgery? I still have not made an appointment to visit the orthopedic but I need to my heel is turning in more and my ankle rolls at the drop of a hat. thanks for sharing you experience. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 In a message dated 8/26/2006 3:46:01 P.M. Pacific Daylight Time, spedteach2002@... writes: I am wondering if the pain block doesn't last in CMTers because of the nerve involvement already Hi Jen, Glad you are home. My sons block after a triple lasted about 3 days. Quote Link to comment Share on other sites More sharing options...
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