Re: Some fantastic news.........

[Guest guest]

Can you give information on lab tests. Would be hard for Dr Grim to give his

thoughts without this information.

>

> Hey Dr G and All,

>

>

>

> I just wanted to let you know that following my recent visit to my Renal

> Physician (where I did my routine 24 hr urine and bloods), it appears my PHA

> is in total suppression. After AVS confirmation of adrenal hyperplasia in

> 2008 and PHA diagnosis, and then treatment with Spironolactone (and short

> term Inspra), my PHA is now fully suppressed, and I am currently on NO

> medications for BP.

>

> I have gone from BP swings of 160/90 to 210/125 to now daily readings of

> between 130/80 to 110/65.

>

> My Renal Physician said that she cannot explain how total suppression and

> complete removal of high BP has been achievable. She also is amazed that my

> blood cells hadn't hardened to the point where I would require at least some

> form of BP medication.

>

> I am now to remain on three monthly tests for the next five years, and my

> Renal Physician said they particularly want to monitor me to see if they

> find out how this has occurred. I asked her if this means I am cured of PHA

> and she said she could not say that as the hyperplasia and my highly

> vascular adrenal glands (as she describes them) tend to lead her to think

> the active PHA will return.

>

> Some of my own observations about this horrendous ordeal of the last three

> years and possible reasons for dramatic improvement are that in the last

> twelve months we have sold our rather large home (which required a

> significant amount of physical work to maintain - even during periods when I

> was fatigued, suffered leg cramps and migraine/headaches) - we are now

> renting a small villa whilst we look to purchase a small home. I have lost

> 16 kilograms of weight and am now the lightest I have ever been in my adult

> life weighing in at 68 kilos. I am also doing a lot more exercise on a

> daily basis.

>

> My husband and I have had to make some tough life changing decisions about

> our future, decisions that my husband said had to be made as he did not want

> a future without me (I am one lucky woman as it was his dream home that we

> sold). So I think that the combination of all of the above actions has

> allowed for my positive result, and I am hoping that it stays this way.

>

> I was wondering Dr G if you know of many others who have achieved total

> suppression, and stayed that way?

>

> I hope my good luck story is one that many of you suffering this

> debilitating disease can also experience.

>

> Best wishes

>

>

>

> (Sydney - Australia)

>