Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 , I am a member of this group. It is common for us to comment on posts or ask questions. If you will note below, Dr. Grim asked, " Tell us how your BP has done on spiro and DASHing? "  I pulled out excerpts that showed you did very well on spiro. Then I asked if you had been told by anyone to DASH. DASHing is easy if you track every morsel that goes into your mouth with a Program like FitDay. If you prefer that people not comment on your postings, please let us know. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Val, First I need to ask who you are? I thought my story was out for approval and then I would move it into the " stories " files. At this pointI don't know if just you and Dr. Grim (he asked about DASHing and current BP) are seeing it or if " the whole world " is viewing. It would be nice to only have to address questions and issues once! Bear with me, in addition to getting a fast education re. Conns I'm also learning Yahoo! Comments: DASHing - No, Learning curve is too steep to include that now as I try to get up to speed on Conn's before the Dr.'s (and Residents) at the VA take me down too many paths. Your observation re. Spiro and AVS is exactly one of the issues. I am aware of the issue and that is exactly the reason Dr. Webster and I didn't proceed with eliminating any more BP meds. We need to develope a plan. I am also aware that tumor removal doesn't " fix it " in about a third of the time, depending on who's numbers you use. I have an additional issue that needs to be considered, namely the flank pain radiatimg to my right Testicle. It's hard to explain to a woman who has never had what we call " had our bell rung " But that is the best way I can explain it. Six year is long enough, especially since the narcotics don't totally ever eliminate it! So there-in lies the vicious circle. Does the tumor continue to grow? If it is causing the pain and it grows, does the pain get worse? If we are going to remove it anyway do we still jump through the hoops and spend $27,000 do the AVS and risk damaging the left Adrenal? I think not! Now you might start to understand why one of my early stops is with a surgeon - I thought that would raise some issues! Hang on - IT'S GOING TO BE A GOOD RIDE! > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Honestly, you get the feeling EVERYONE EVERYWHERE is tired of the diagnosing part of medicine. seems the " science " of it has dissapeared. it is not all the providers fault as very few work for themselves anymore, but the principle of speed and volume with patients is so overwhelming anymore. I have worked as a physician assistant in ruraal small town hospitals and while i saw the light very quickly have been told by administrators, and staff, that if we " didn't start seeing more, or admitting to the hospital (rural ERs can ALOT of subsidies and better pay for hospitalizations) that we would not make payroll! " That is alot of pressure to help 25-50 people get their paychecks, in addition to your own. BTW, we all have physician and hospital horror stories about our adrenal issues etc., but if we all knew how often docs DO NOT get paid for things they do, we'd be amazed. most of us in ANY of our own careers would not do work without getting paid, but docs, while we get on them, do not always make as much as we think. some do, but a family practice doc averages take home around $115,000 a year. thats not alot for the schooling, but we tend to view them as money hungry millionaires. Not so. My point? i think the pressures and stress of economy etc has us all mentally, emotionally, and physically exhausted. we have to get medicine back to the personal level and get care, LISTENING especially, back. On Sat Feb 19th, 2011 11:47 AM CST Francis Bill SUSPECTED PA wrote: >Do you sometimes get the feeling that the VA thinks they have spent enough money on you so stop looking for your problem? > > >> > > > > >> > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! >> > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - >> > > > > >> > > > >> > > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Your call always. But seems to me that the more u can help her the better ur care will be better. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Don't know if I am going to get her that involved - I'm going to get her knowledgable enough to treat me! She is a damn good Internest but I don't know her Endocriology background. Besides, If she gets too good and moves on I have to look for a new Primary Care and I don't care to do that. Call me selfish but I have already done that in the Psychology Dept! > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 There is only aPproval for first note. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Val, I certainly wasn't requesting that people not comment, I guess I was just confused on the process. As a new member I thought I had sent my e-mail "up for approval" and would then move it to Files when instructed. When you responded I was surprised because I thought I would get approval and do the move before the comments started. I just wanted to make sure everyone else was seeing our interchange. I got some other comments so I guess everyone is seeing it if they care to! Regarding the "Who are you" question, its hard as a new member to figure out what kind of credit to give the answer/comment if you don't know the source. I'm a 27-year computer specialist and learned a long time ago that the value of the information is only as good as its source; the Information Age can be a Dual Edged Sword if you get what I mean! We'll be in touch > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Hard to say on the stones and pain. Ever had hematuria?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I am sure Dr grim has some idea on your kidney stones. But I would guess this has a lot to do with your pain. They can do ultra sound treatment to break them up. > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 The VA should have a HTN EXPERT to take care of difficult pts. Every VA USED to have a HTN clinic but these were stopped about 15 Years ago as the thought was that any FP, PA ,NP could manage HTN which should be true but is not. They need to do some edu on this most common disease in the VA Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Do you think you can get Dr. Webster up to speed on Conn's. Do need someone in the WRJ VA that knows what it is. See if you can get her to join this group. > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 ReAd uTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension This is a test - I tried to respond and got an error so I want to see if it works and if it does I will send a real answer. > > > > > Here is a draft of my story to date. Comments and suggestions will > > be greatly appreciated. I didn't know if you wanted it as a > > seperate file so you are getting it both ways! > > - - - - - - - - - - - - - - - > > - - - - - - - - - - - - - - - > > - - - - - - - - - - - - - - - > > - - - - - - - - > > > > 2011/02/17 - By way of introduction, I am , a 64 year old > > morbidly obese individual living in Graniteville, VT and currently > > being treated at the Veteran’s Hospital in White River Jct., VT. I > > will be meeting with a surgeon at DHMHospital next Tuesday to try > > and figure out if there is anyone qualified to treat Conn’s > > Disease. I am in a unique position because I am able to get all my > > treatments thru the VA, I have private insurance thru my previous > > employer and I am on Medicare Part A due to disability so I will be > > looking for the best place to find treatment. > > > > This is not intended to be a full autobiography at this time but I > > will hit the highlights and plan to backfill later. (I need to > > introduce myself so I can start reaping some of the benefits of this > > group and Dr. Grim.) I feel like I was on a treadmill for 63 ½ years > > and then the train left the station and we are now traveling at Warp > > Speed! > > > > In addition to self diagnosed Conn’s Syndrome I am Morbidly Obese > > (315 lbs.), have Obstructive Sleep Apnea, am on Oxygen full time, am > > Diabetic Type II ,and have a continuous pain in my Right Flank area > > that radiates to my Right Testicle. (Does anyone want to guess on > > which side the Adrenal Adenoma is?) > > > > I have had high blood pressure for as long as I can remember. I > > worked in Computer Programming and Management for 27 years until I > > took early retirement at age 50, save your fingers - it was 1997! It > > was an insurance company that had a nursing staff so they had me on > > weekly BP checks and blamed it on stress and white-coat syndrome. > > > > After I retired I got bored, got my CDL and became a Tour Bus > > Driver. I always fought to keep my BP under the mandatory CDL > > threshold of 140/90. Through the magic of medicine I was able to do > > so and simply blamed its elevation on stress and w-c syndrome again. > > > > In 2005 I returned from a 4-day trip to Toronto and had developed a > > pain in the kidney area of my right flank radiating down to my right > > testicle. I figured I had pulled something handling baggage and it > > would heal itself in a few days. When that didn’t happen I went to > > my local family doctor and he referred me to a Nephrologists. I went > > for a CT Scan and they found 2 small stones in my right kidney. We > > agreed to use pain medication and wait to see if they would pass. He > > recalled me in 3 months and repeated the CT Scan. The stones were > > still there but his opinion was that they were not the cause of my > > pain because of where they were located and the fact that they were > > stationary in the wall of the kidney. He sent me back to my family > > Dr. (There’s two that will be getting your “evolution of PA†> > Dr. G.!) > > > > I decided to go for a second opinion and decided to pursue that > > through the VA Hospital in White River Jct, VT. I felt this was a > > good choice because they not only have good doctors, they also have > > access to the doctors at DHMH. (This is the largest hospital in the > > area and a teaching hospital affiliated with Dartmouth College.) > > While the doctors are good and the service was “top notch†my > > being back in a more military environment unleashed a severe case of > > PTSD, dating back to my service in Vietnam. Enter “shrinks†and > > depression medicine (Duloxetine hcl 80 MG, andMIRTAZAPINE 15 MG with > > a LIOTHYRONINE 5 MCG kicker!) > > > > I was assigned to a Resident Dr. He referred me to a Nephrologists > > and he along with a bunch of other doctors took turns “adjusting†> > my high BP meds. The kidney Dr. (there’s another one to get Dr > > G.’s evolution of PA) came to the same conclusion as I had > > previously gotten - there were two kidney stones so he didn’t think > > he could help me. With nobody being able to come up with a better > > idea they decided it best to treat me with pain medicine. We added > > METHADONE 20 mg and OXYCODONE 10 MG/ACETAM 650 MG to the mix and > > that put an end to my professional driving career! (The government > > frowns on us using narcotics and driving the big rigs!) I guess the > > plus side if there is one is that I was put on 100% disability. > > > > Fast forward about 5 years to the summer of 2010. During those years > > various doctors and nurse practitioners tried different BP meds, > > both strengths and the meds themselves. I ended up transferring to a > > different unit and got a new primary care provider, Dr. Lynn > > Webster. In 2010 I had actually been with her for probably a year > > and they established that I had Diabetes Type II. AddMETFORMIN HCL > > 1000 MG to the medicine mix. > > > > Around this time my wife insisted my BiPAP machine wasn’t working > > as well as it had been so I’m off to DHMH for two sleep studies. I > > flunked the first one because I ran out of Oxygen. The second one > > determined they needed to raise my settings from 17/11 to 19/13 and > > needed nocturnal oxygen therapy of 4L. I saw Dr. Webster soon after > > this and asked her, “If I need oxygen when you are forcing air into > > my lungs at night, what happens during the day when I am drawing it > > in without a biPAP machine?†She thought that a good point so she > > put an Oximeter on me and walked down the hall. When we got back the > > meter was reading 83 so, you guessed it, Oxygen full time (2L normal > > and 3L with exertion). > > > > Chapter 2! - Now if you have hung with me we get to the good part - > > The Conn’s determination. > > > > It is around June of 2010 and the BP meds are as follows: AMLODIPINE > > BESYLATE 10 MG, CLONIDINE 0.2MG/24hr patch, HYDROCHLOROTHAZIDE 50 > > MG, LISINOPRIL 40 MG, LOSARTA N 100 MG, METOPROLOL TARTRATE 400 MG, > > MINOXIDIL 10 MG, and POTASSIUM CHLORIDE 40MG SA. (Does anyone see > > any problems yet? That’s only 8 including Potassium!) With all this > > we are able to get/keep my BP in the 160ish/83ish range. It will > > “float†10 pts. either way. > > > > The VA brings in a doctor to look at problematic BP (and I think > > other meds and their interaction.) Dr.Webster jumped at the > > opportunity and made an appointment for me. > > > > I go to the appointment and meet Dr. Faysal Yousifi who is a > > Nephrologists from Long Island. (He will hereafter be referred to as > > Saint Faysal!) I wasn’t impressed to be seeing another > > Nephrologists and asked him what that was all about. He said he was > > going to “Fix my BPâ€Â, to just bear with him. > > > > St. Faysal’s plan: He took me off HYDROCHLOROTHAZIDE and MINOXIDIL > > and put me on FUROSEMIDE 40 MG and (drum roll here would be > > appropriate) SPIRONOLACTONE 25 MG. He ordered some blood work, gave > > me a target BP goal of 140/80 or lower and wanted to see me again in > > about 6 weeks. (That turned out to be an easy goal, I was almost > > instantly in the mid 130’s over 70ish area!) > > > > When I saw him in mid August he was simply ecstatic with my > > readings. He was just like a kid who had just gotten everything he > > had ever asked for at Christmas. He jumped up, shook my hand and did > > a little dance, not once but three times during that appointment! He > > ordered up a CT Scan and raised the SPIRO to 50MG. He set up another > > appt. for me in Dec. and put in for an appt. with an > > Endocrinologist. Then he told me his time in VT would be over and he > > would be moving on “before snow fliesâ€Â! > > > > The CT Scan came back and showed: “There is a 13 x 12 mm well > > circumscribed ovoid hypo attenuating lesion in the right adrenal > > gland without significant interval change in size since the prior > > study. Left adrenal gland is normal. (They apparently were able to > > go back to the 2005 scan and find it although there was no mention > > of it in 2005 as far as I know.) > > > > I saw a resident Endocrinologist and my BP’s were running in the > > mid 1teens/low 60’s (116/62, 118/64, etc.) They tell me since I am > > getting no adverse reactions that they are happy to leave it there > > and she started removing other BP meds. She asked me which one I > > wanted to get rid of first. I tried to tell her that was her job but > > we finally agreed to get rid of the Losartan. She indicated they > > would wean me off all the BP and then leave me on a long term > > treatment of Spiro. I told her that my studying told me that we > > should remove the right Adrenal Gland if it proved to be a > > unilateral adenoma. > > > > I told her I had observed a few comments of, “the best part of it > > all is that I got rid of my flank pain after the offending adenoma > > was removed.†She indicated that it was “such a small tumor†> > that it wouldn’t be causing any pain. I told her I was a big boy > > and could accept it if I was wrong but it was worth a chance of > > “fixing†it if that was acceptable practice. She indicated she > > had “7 years of training†and it was her job to decide the best > > course of action. I explained to her that she would explain the > > options along with the risks but I would decide the course of > > action! I will probably be in the market for an Endocrinologist if > > you have one! > > > > I am interested in other’s experience with eliminating Flank Pain > > if you had an adrenalectomy. > > > > She spoke with her attending physician who said an AVS would be > > required “no matter what, nobody would proceed without one“. She > > indicated we had the best specialist in this area to do the test. > > I’m not sure if he has done 3 and everyone else has done 1 but you > > can “bet your bippy†I’ll find out before they start probing > > me! I let her know I really questioned potentially risking a problem > > with the veins for the left adrenal gland if it was a forgone > > conclusion we were going to remove the right one. (I have done some > > more reading and see there actually is some merit in her position!) > > > > She apparently set up an appt with my Pulmonologist to see if they > > would “sign off†on an operation. That doctor felt the question > > was premature until she knew what procedure we were considering! I > > tried to get her to consider AVS and she said she considered there > > to be three risk categories, low, medium and high. She put me at a > > medium. > > > > I finally got back to see my Primary Care Physician, Dr. Webster, > > last week. We had a long conversation regarding what had been going > > on in the last 4 months and the direction I saw thing going. She > > indicated Conn’s Syndrome was a “once in a lifetime experience†> > for general practice internists. I told her that may change after > > she read a copy of Dr. Grim’s “evolution of PA†(of which I > > provided her a copy.) She was very appreciative of it, promised to > > read it before we met again and asked that I “keep her in the > > loop†with anything else I came across. She had apparently read my > > Endocrinologist’s comment that such a “small tumor†couldn’t > > be causing pain. I suggested she might get up to speed before she > > decides what it might and might not do. She agreed that that was a > > prudent approach! > > > > We talked about eliminating more of my BP meds and decided to leave > > it as is until I get a chance to talk to a surgeon. We decided a lot > > needed to happen if AVS is in my future and we should come up with a > > plan. I meet with the surgeon, Dr. S. Laycock at DHMH, next > > Tuesday (02/22/2012) and will be exploring credentials. (On paper he > > looks good. He lists “Endocrine Tumors Program†among his > > specialties and “Laparoscopic Surgery for Adrenal…†under his > > practice notes. I feel I am still looking for a qualified > > Endocrinologist and Surgeon and will see what DHMH has to offer and > > what the VA recommends. I’m trying to keep an open mind at this > > point but may have to go to the greater Boston area to find the > > right solution. I haven’t ruled out the studies in Bethesda and > > would be interested if anyone in this group has experience with that. > > > > I haven’t included any of my lab reports because the VA sent me 15 > > pages and I am not sure exactly which numbers you are looking for. I > > also don’t know if my being on Spiro will have any adverse effects. > > Tell me what to send and I won’t copy all 15 pages to you! > > > > If you made it this far, thanks for humoring me! My current BP is > > 107/67 using the new 3-sampling method that I just learned! (I just > > realized I spent most of the afternoon in front of the screen, > > without even a nap and I still feel quite alert! Maybe, just maybe > > the Spiro is having a positive effect!) > > > > 　 > > 　 > > 　 > > > > > > <'s Conn Story.wps> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Low K muscle cramps?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Good observation! I guess yes, because before my doc places me on Spiro I had ocasions of pain and even reported them to doc so he sent me for scrotal ultrasound test and they found nothing. I remember the pain continued intermittently until perhaps Spiro was increased to 100 and then it stopped. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} ||Does having PA ever cause Testicle pain?| Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 No one has ever noted this but we don't ask this. Another reAson we need a complete data base. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Does having PA ever cause Testicle pain? > > > > > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > > > > > > > > > > > > > > Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (28) Recent Activity: New Members 4 New Files 1 Visit Your Group MARKETPLACE Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Switch to: Text-Only, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Low k poor insulin release high Aldo insulin resistance = diabetes. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Have to understand when Conn's or PA is treated may help your diabetes as will. > > > > > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Damn! did not know even there?! K=3.8 was at the time. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} Low K muscle cramps? CE Grim MD Specializing in Difficult Hypertension Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 How it's so?Nataia KamnevaTo: hyperaldosteronism Sent: Sat, February 19, 2011 3:41:44 PMSubject: Re: 's Conn's Srory Have to understand when Conn's or PA is treated may help your diabetes as will. > > > > > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 I don't have testicles, but I had pain in my left kidney where I have both a stone and an adenoma. The pain was in the left side of my back and went down to the same place. I complained to PCP and he said that usually people don't feel stones in this place of kidney. When I went to eplerenone the pain gradually disappeared. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. To: hyperaldosteronism Sent: Sat, February 19, 2011 3:46:28 PMSubject: Re: 's Conn's Srory Does having PA ever cause Testicle pain? > > > > > > > > > > > > Here is a draft of my story to date. Comments and suggestions will be greatly appreciated. I didn't know if you wanted it as a seperate file so you are getting it both ways! > > > > > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. To: "hyperaldosteronism " <hyperaldosteronism >Sent: Sun, February 20, 2011 12:39:15 AMSubject: Re: Re: 's Conn's Srory Low K muscle cramps?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Good observation! I guess yes, because before my doc places me on Spiro I had ocasions of pain and even reported them to doc so he sent me for scrotal ultrasound test and they found nothing. I remember the pain continued intermittently until perhaps Spiro was increased to 100 and then it stopped. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} ||Does having PA ever cause Testicle pain?| Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Yes but sounds like u may be getting enough but only a urine will tell. Low Na v-8 is the best source I have found. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. To: "hyperaldosteronism " <hyperaldosteronism >Sent: Sun, February 20, 2011 12:39:15 AMSubject: Re: Re: 's Conn's Srory Low K muscle cramps?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Good observation! I guess yes, because before my doc places me on Spiro I had ocasions of pain and even reported them to doc so he sent me for scrotal ultrasound test and they found nothing. I remember the pain continued intermittently until perhaps Spiro was increased to 100 and then it stopped. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} ||Does having PA ever cause Testicle pain?| Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Do u believe?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. To: "hyperaldosteronism " <hyperaldosteronism >Sent: Sun, February 20, 2011 12:39:15 AMSubject: Re: Re: 's Conn's Srory Low K muscle cramps?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Good observation! I guess yes, because before my doc places me on Spiro I had ocasions of pain and even reported them to doc so he sent me for scrotal ultrasound test and they found nothing. I remember the pain continued intermittently until perhaps Spiro was increased to 100 and then it stopped. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} ||Does having PA ever cause Testicle pain?| Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Natalia, You eat so well...I am truly jealous now! However, you report your own K=3.4!! How come? With all those goodies you eat you lose so much K. My pain in 2005 was with my K=3.8 and I have my data that any K<4.0 means pain of some sort for me. You might have a severely leaking kidney, or two...otherwise you must be the healthiest person out there. Check if you have at least one kidney!!! Have you ever traveled to a country where they kidnap you and remove your kidneys for sale to rich people in USA or Europe? hehehehaaa check it out. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Or ur eating too much SaltTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Natalia, You eat so well...I am truly jealous now! However, you report your own K=3.4!! How come? With all those goodies you eat you lose so much K. My pain in 2005 was with my K=3.8 and I have my data that any K<4.0 means pain of some sort for me. You might have a severely leaking kidney, or two...otherwise you must be the healthiest person out there. Check if you have at least one kidney!!! Have you ever traveled to a country where they kidnap you and remove your kidneys for sale to rich people in USA or Europe? hehehehaaa check it out. Max. 61M L adenoma by NP59 scan. High aldos not low renin. med combo #75={Spiro=100, Amlo=10, Indap=2.5, Ramip=5, Metf=1000, Prav=40, Feno=67, K.cl=120 mEq} Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Something like testicle pain is tough because i get it, but note i have to be somewhat careful as since i became ill, and better, i notice everything now about where i hurt, a new ache, a weakness, etc. many of us men are not very in tune with our bodies naturally, but once something does occur now everything is bit hypersensitive. a real catch 22 isnt it. the other side of the coin is that we've also now been down that road of misdiagnosis, ignorance, being ignored or intimidated and so on in the medical system. So we are likely a little more vigilant now. tough. But in terms of testicular pain asking those with PA if they have it is likely not much of anything UNLESS we compare it to people without PA who get it (i think we can leave the women out), compared to PA with/without low testosterone levels, age, etc.. . On Sun Feb 20th, 2011 7:21 PM CST Francis Bill SUSPECTED PA wrote: >I belong to other group sites most don't always stay on subject. > >You are the first one that has said any thing about testicle pain So we started asking it. I think if you read what is writen you will see it has some thing to do with you > > >> > > >> > >> >> > >> >> > >> Are muscle cramps the good indication of low K? Can I take K supplements only in case if I have them? Mostly I don't. I don't count beans and even don't count K and Na, but I eat about 10 and more servings of vegetables and fruit, 7 servings of grain, some low fat yogurt, milk and cheese and less that 1 serving of meat, poultry or fish. It works excellent for me, Max. What was strange for me that I don't gain weight, I was very suspicious and didn't believe Dr. Grim on that. >> > >> >> > >> Natalia Kamneva 66 Russian F with 1.5 cm adrenal adenoma, HTN and low renin , low aldosteron and high cortisol, K=3.4. >> > >> >> > >> >> > >> >> > > >> > > >> > >> > > Quote Link to comment Share on other sites More sharing options...
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