Re: Re: up next, AVS

[Guest guest]

Still ATTACHMENT folder is not there. So all attachments continue to disappear from the Group.

Max.

Good I just uploaded an article on adrenal bumps in New Orleans at least.

As attachments are added to the archives on the Group site, moderators can delete, move them to specific folders if they wish to be organized more. However, they can stay in one folder and be accessed and copied by users. Yahoo Groups have many other features that I recommend be enabled to maximum so that the Group be utilized to max...the same way Dr. Grim recommends DASH to max!

Max.

[Guest guest]

I know "I" sure got you! .....and it's working so well I am pretty giddy about it all....I have cheated a time or two or got caught eating something before I checked the sodium content and guess what? Obvious huge spike in my BP for a while. I will vouch that it works almost too good if you stick to it. I should have been DASHing all along.I do see a fair number of patients, more on the NORD site than on this one, who talk about how they've had to increase their meds to extremely high doses over the years, and how they've given up hope.Dr. Grim, would your opinion be that these are the people who are only taking meds and not DASHing?> > > As you have noted, there is very little information out there on the > > pros and cons of surgery vs. meds. As Dr. Grim has mentioned, we > > only hear from the people who are having problems. Once the problems > > are solved, the generally don't hang around posting to message > > boards, or seek them out in the first place.>

[Guest guest]

Will try again. But someone will need to clean out the folder from time to time I suspect. CE Grim MDis my assumption.Still ATTACHMENT folder is not there. So all attachments continue to disappear from the Group. Max.Good I just uploaded an article on adrenal bumps in New Orleans at least. As attachments are added to the archives on the Group site, moderators can delete, move them to specific folders if they wish to be organized more. However, they can stay in one folder and be accessed and copied by users. Yahoo Groups have many other features that I recommend be enabled to maximum so that the Group be utilized to max...the same way Dr. Grim recommends DASH to max! Max.

[Guest guest]

You have the ultimate form of salt sensitivity: PA as I recall.I know "I" sure got you! .....and it's working so well I am pretty giddy about it all....I have cheated a time or two or got caught eating something before I checked the sodium content and guess what? Obvious huge spike in my BP for a while. I will vouch that it works almost too good if you stick to it. I should have been DASHing all along.I do see a fair number of patients, more on the NORD site than on this one, who talk about how they've had to increase their meds to extremely high doses over the years, and how they've given up hope.Dr. Grim, would your opinion be that these are the people who are only taking meds and not DASHing?> > > As you have noted, there is very little information out there on the > > pros and cons of surgery vs. meds. As Dr. Grim has mentioned, we > > only hear from the people who are having problems. Once the problems > > are solved, the generally don't hang around posting to message > > boards, or seek them out in the first place.>

[Guest guest]

Salt is sneaking in. I think you had a 24 hr urine Na recently. What were the results?the truth is in the pee.Recall that DASH is not only low sodium but high K and Ca and Mg and low fat dairy.List all other meds OTC stuff you are taking.CE Grim MD> You do not get HTN if you have hyperaldo unless you also eat too much salt.I totally believe people are out-salting their meds, but here is what baffles me: I eat very low sodium and unmedicated, my BP is 140s/90s.A typical day's menu:2 eggs scrambled in olive oil, big handful of spinach, NO SALTHandful of UNSALTED almondsSalad with UNSALTED chicken breast, spinach, kale, red bell pepper, avocado, UNSALTED pecans - again, NO ADDED SALT, and absolutely no dressingHandful of UNSALTED macadamiasGrilled salmon, cauliflower roasted with olive oil and pepper, NO SALTHandful of unsalted almondsI make all of this myself so I know there's NO ADDED SALT. The fish and chicken is from a natural foods store without added brine or anything like that.So - why do I still have HTN?-msmith1928> > >> > > > As you have noted, there is very little information out there on > > the> > > > pros and cons of surgery vs. meds. As Dr. Grim has mentioned, we> > > > only hear from the people who are having problems. Once the > > problems> > > > are solved, the generally don't hang around posting to message> > > > boards, or seek them out in the first place.> > >> >> >> >>

[Guest guest]

I didn't know about AVS. I had appt with the surgeon and he refused to do surgery until I had one. Good on him.

I've been

on this list since 2005. I've seen

many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased)

who had an adrenalectomy at Hospital in St. Louis, and continued to have

PA. I think that was long before

AVS was routine. For people who

continue to have problems without following the advice to have AVS before

surgery, I doubt we'd hear much from them.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

Hi Hester, sounds like a pretty similar situation to mine -

otherwise great general health, clear-cut lab results, presence of an adenoma.

I think my specialist may have said based on all of that, he's 99% sure that

the adenoma is the culprit and that skipping the AVS is an option.

As you have noted, there is very little information out there on the pros and

cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the

people who are having problems. Once the problems are solved, the generally

don't hang around posting to message boards, or seek them out in the first

place.

It's very nerve-wracking, to say the least! Please keep us posted of your

progress and your decisions.

[Guest guest]

For me AVS has been routine since about 1978 or so. Well actually since 1969 when a pt of Dr Conn's who had an "adenoma" removed that was a lipoma and hAd to have the remaining adrenal out to get a cure. It only took one pt f Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I didn't know about AVS. I had appt with the surgeon and he refused to do surgery until I had one. Good on him.

I've been

on this list since 2005. I've seen

many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased)

who had an adrenalectomy at Hospital in St. Louis, and continued to have

PA. I think that was long before

AVS was routine. For people who

continue to have problems without following the advice to have AVS before

surgery, I doubt we'd hear much from them.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

Hi Hester, sounds like a pretty similar situation to mine -

otherwise great general health, clear-cut lab results, presence of an adenoma.

I think my specialist may have said based on all of that, he's 99% sure that

the adenoma is the culprit and that skipping the AVS is an option.

As you have noted, there is very little information out there on the pros and

cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the

people who are having problems. Once the problems are solved, the generally

don't hang around posting to message boards, or seek them out in the first

place.

It's very nerve-wracking, to say the least! Please keep us posted of your

progress and your decisions.

[Guest guest]

Good for him and you. He has been there before bTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I didn't know about AVS. I had appt with the surgeon and he refused to do surgery until I had one. Good on him.

I've been

on this list since 2005. I've seen

many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased)

who had an adrenalectomy at Hospital in St. Louis, and continued to have

PA. I think that was long before

AVS was routine. For people who

continue to have problems without following the advice to have AVS before

surgery, I doubt we'd hear much from them.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

Hi Hester, sounds like a pretty similar situation to mine -

otherwise great general health, clear-cut lab results, presence of an adenoma.

I think my specialist may have said based on all of that, he's 99% sure that

the adenoma is the culprit and that skipping the AVS is an option.

As you have noted, there is very little information out there on the pros and

cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the

people who are having problems. Once the problems are solved, the generally

don't hang around posting to message boards, or seek them out in the first

place.

It's very nerve-wracking, to say the least! Please keep us posted of your

progress and your decisions.

[Guest guest]

Unfortunatly too many Drs aren't inquisitive. They only learn what they need to pass a test. Same as any profession, many are lazy and a few are gems! I keep trying to only have Drs who like to keep informed.

For me AVS has been routine since about 1978 or so. Well actually since 1969 when a pt of Dr Conn's who had an "adenoma" removed that was a lipoma and hAd to have the remaining adrenal out to get a cure. It only took one pt f Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I didn't know about AVS. I had appt with the surgeon and he refused to do surgery until I had one. Good on him.

I've been

on this list since 2005. I've seen

many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased)

who had an adrenalectomy at Hospital in St. Louis, and continued to have

PA. I think that was long before

AVS was routine. For people who

continue to have problems without following the advice to have AVS before

surgery, I doubt we'd hear much from them.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

Hi Hester, sounds like a pretty similar situation to mine -

otherwise great general health, clear-cut lab results, presence of an adenoma.

I think my specialist may have said based on all of that, he's 99% sure that

the adenoma is the culprit and that skipping the AVS is an option.

As you have noted, there is very little information out there on the pros and

cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the

people who are having problems. Once the problems are solved, the generally

don't hang around posting to message boards, or seek them out in the first

place.

It's very nerve-wracking, to say the least! Please keep us posted of your

progress and your decisions.

[Guest guest]

Yeah, I was lucky. I wish I knew about this sight then tho. I would have tried DASH etc before surgery.

Good for him and you. He has been there before bTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I didn't know about AVS. I had appt with the surgeon and he refused to do surgery until I had one. Good on him.

I've been

on this list since 2005. I've seen

many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased)

who had an adrenalectomy at Hospital in St. Louis, and continued to have

PA. I think that was long before

AVS was routine. For people who

continue to have problems without following the advice to have AVS before

surgery, I doubt we'd hear much from them.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

Hi Hester, sounds like a pretty similar situation to mine -

otherwise great general health, clear-cut lab results, presence of an adenoma.

I think my specialist may have said based on all of that, he's 99% sure that

the adenoma is the culprit and that skipping the AVS is an option.

As you have noted, there is very little information out there on the pros and

cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the

people who are having problems. Once the problems are solved, the generally

don't hang around posting to message boards, or seek them out in the first

place.

It's very nerve-wracking, to say the least! Please keep us posted of your

progress and your decisions.

[Guest guest]

There are other stories there and from what I have seen in those stories they had no problems.......which is good for them but there is always a chance for and accident..........I just wanted to be sure that I got the correct adrenal gland out.......so in a way I'm glad I had it done, pain and all..........

Marie

Re: up next, AVS> > > > Interestingly I'm at the same stage - doctor called today with a positive diagnosis of primary aldosteronism. Given my age (under 40 - just), general health (great), blood test results (clear cut) and an MRI that revealed a 21mm adenoma on one adrenal gland, she's 97% sure (no idea where that figure came from - will meet in person next week to find out more) that it's an APA. So is recommending skipping the AVS (which would only give a 99% certainty at best) and going straight to the adrenalectomy. I'm tending to agree - and certainly have no wish to be on drugs for life so am naturally leaning towards surgery vs. Spiro (although I'll be going on that for the short term).> > There have been limited studies here (I'm in Z�rich, Switzerland) that surgery in the case of APA tends to be very effective. When I was in the earlier stages of diagnosis, I posted on this board to try and understand the pros and cons of surgery vs. drugs and still haven't seen a clear balance of argument so I'm sure there are points I've missed. Now I'm just trusting the judgement of my local experts.>

[Guest guest]

Did you just say over 40 is an "old fart". I am over 40 but I am not old, I just fart......alotSubject: Re: up next, AVSTo: hyperaldosteronism Date: Thursday, March 3, 2011, 9:24 PM

Hester, First, everyone has to make this decision for themself. I recently explained on this site how I made my decision. I even provided some of the sites I researched to come to my conclusion. Rather than ask you to trust me, I suggest you visit this site:

http://www.endocrinesurgery.org/patient_education/adrenal/hyperaldosteronism_diagnosis.shtml (it is easiest to go to page 2)

Marie, you might do a quick review, Remember THE 40 YEAR OLD TEST? I believe somebody was over 40! (I draw the conclision that "us old farts" like to grow non-functioning adnomas just keep the doctors employed! ;>)

Good Luck, Keep us posted, we care

> >

> > My doctor just called with the results of last week's aldosterone suppresion test/oral sodium loading test. As expected, my aldo was off the charts high, both serum and urine. (I can post numbers when I have a hard copy in front of me, if anyone is interested.) The interesting thing my doctor observed was that I did not excrete a lot of sodium - he believes it's because my diet is very low sodium. (I believe it's still trapped in my body in the form of the extra 2 pounds I've been carrying around since the test!)

> >

> > This gives me the go-ahead for AVS, or, interestingly, he said I could skip the AVS and have the adrenalectomy. I want to be good and certain that the culprit is my left adrenal before surgery, so I think I'm going through with the AVS first. I'm aware of the high risk of inconclusive results, and the risks of the procedure in general.

> >

> > This brings up two questions: how common is it to skip the AVS entirely? I only heard of that recently from another member here; I had been under the impression that standard protocol was AVS before surgery.

> >

> > And, long shot I know, but - anybody here have their AVS done at UCLA? Or anywhere in the greater Los Angeles area? If you have an interventional radiologist in the area that you'd recommend, please let me know. Thanks!

> >

> >

> > - msmith1928

> > 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, aldosterone 42.3, renin 0.5, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia, no meds currently except 20MEQ K 2x/day; low sodium, fructose- and grain-free diet

> >

>

[Guest guest]

I read

your story but didn't see any results.  What

were the results of the AVS? ( In numbers)?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Marie

on

this page is a short story of my PA diagnosis and my AVS experience

http://health.groups.yahoo.com/group/hyperaldosteronism/files/AVS%20Experiences/

scroll

about half way down to the one that was uploaded nov 29 2010 by sugarshack351

hope

this helps...............

Marie

Re: up next, AVS

>

>

>

> Interestingly I'm at the same stage - doctor called today with a positive

diagnosis of primary aldosteronism. Given my age (under 40 - just), general

health (great), blood test results (clear cut) and an MRI that revealed a 21mm

adenoma on one adrenal gland, she's 97% sure (no idea where that figure came

from - will meet in person next week to find out more) that it's an APA. So is

recommending skipping the AVS (which would only give a 99% certainty at best)

and going straight to the adrenalectomy. I'm tending to agree - and certainly

have no wish to be on drugs for life so am naturally leaning towards surgery

vs. Spiro (although I'll be going on that for the short term).

>

> There have been limited studies here (I'm in Z�rich, Switzerland) that

surgery in the case of APA tends to be very effective. When I was in the

earlier stages of diagnosis, I posted on this board to try and understand the

pros and cons of surgery vs. drugs and still haven't seen a clear balance of

argument so I'm sure there are points I've missed. Now I'm just trusting the

judgement of my local experts.

>

[Guest guest]

I hAd l-adrenalectomy about 5 years ago. I felt the operation was successful. All my symptoms went away nd I even lost a lot of weight with no effort. Moon face went away too. Now I'm gettin symptoms again so I found this site. I'm wondering if I had bilateral0PA or something else? Thyroid? I do have a pituitary adenoma. I am seeing a new PCP next week to start all the labs.

Why can't you still do that? You haven't had the operation yet have you? Any time I've had a proceedure they ask if I have any reservations before I sign the form, it sounds like you do. I'm sure they will still be there to do the operation if you want to try DASHing first. Good Luck!

> >>

> >>>

> >>> I've been on this list since 2005. I've seen many come through who got surgery; nearly all after having AVS. After a while, they just disappear. I assume they got well. I've only seen one (Dave, now deceased) who had an adrenalectomy at Hospital in St. Louis, and continued to have PA. I think that was long before AVS was routine. For people who continue to have problems without following the advice to have AVS before surgery, I doubt we'd hear much from them.

> >>>

> >>>

> >>>

> >>> Val

> >>>

> >>>

> >>>

> >>> From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of msmith_1928

> >>>

> >>>

> >>> Hi Hester, sounds like a pretty similar situation to mine - otherwise great general health, clear-cut lab results, presence of an adenoma. I think my specialist may have said based on all of that, he's 99% sure that the adenoma is the culprit and that skipping the AVS is an option.

> >>>

> >>> As you have noted, there is very little information out there on the pros and cons of surgery vs. meds. As Dr. Grim has mentioned, we only hear from the people who are having problems. Once the problems are solved, the generally don't hang around posting to message boards, or seek them out in the first place.

> >>>

> >>> It's very nerve-wracking, to say the least! Please keep us posted of your progress and your decisions.

> >>>

> >>>

> >>>

> >>>

> >>

> >

> >

>

[Guest guest]

In the irish language 'gra' means love

Hey that's what I am here for. Your FH OF Stroke in men suggests GRA. TrTiped sad Send form miatment is same iPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I do. Wonder about some things too. I read some others BP's they post and they often report theirs in the 140-160/90-110 range off meds. I walked around nearly always even on 4-5 meds (but never spiro) at the 160-170/110-130ish and often the diastolic hit 140. Rarely does the systolic have a spike over 170 (not sure I remember any time it did). What bothers me is the hope nothing is being missed too. It is now, on spiro and DASHing 120/82 (I just checked it!I had to tell my wife about the DASH diet of course and she is much more organized and fanatic than I am so I really have no choice now as no salt/low sodium is what I am getting - but no real complaint as I feel great). But I am also a thin man at 5'10" and 164lbs and physically fit at 43 and always have been (hey have a good looking wife I intend to keep so I try - anyway her warranty has expired).

Cholesterol is all within normal limits and HDL always around 60, LDL 96. CT's of head, thyroid, pituitary, etc, fine. Do have two other labs that always run low. One is testosterone and the other is my hematocrit which always with a slight normocytic anemia. Don't have a reason that I can see for either, but I know testosterone tends to wane after 40. Is there any relationship between PA and anemia that we know of? I always have the slightly low hct and RBC's no matter what. Mom and grandmother have both long passed away but about the only thing we knew about that sides geneaology was we have European Gypsy in us. I know anemia can be hereditary in some Gypsy groups. Ironically my mother had hyperthyroidism also and weight a mere 84 lbs at her death (hit by a car). My Dad alive and well, with no HTN. My grandfather died of a massive stroke and had a very critical blood pressure for many years, but if a

different era and quite stubborn. My greatgrandfather and ALL my g-pa's brothers died of strokes, or had strokes before they diedSadly and I am ashamed to say I also had a low potassium every damn time it was checked and had many ER trips for replacement. I now think (and I had a run of hyperthyroidism that seems to be fine now in this time frame), that it seems that the low potassium was so much of my woes. No one EVER suggested, at any ER, hyperaldosteronism. Never once. I even got all my records no reference anywhere about it. I feel great now and I have learned my lesson the hard way (so many docs I have worked with and others I saw seemed to blow off the chance of PA and secondary causes that I think I just did too after a while. I had asked before about it because I did my research on the 'net many times and it would point to it, but I would get the brush off).I think, even though it is in all the guidelines,

that we (meaning myself and my colleagues), are SO misinformed, are not educated, or too lax about the secondary causes of HTN. No excuse, but I want to make sure I at least do my part to correct this (though I just did a medscape search for "Conn's" and it sadly had NO results. Medline had 11 and some were just mentioning it in another context.)I think finding this site may just have saved my life in the long runI do see a fair number of patients, more on the NORD site than on this one, who talk about how they've had to increase their meds to extremely high doses over the years, and how they've given up hope.Dr. Grim, would your opinion be that these are the people who are only taking meds and not DASHing?> > > As you have noted, there is very little information out there on the > > pros and cons of surgery vs. meds. As Dr. Grim has mentioned, we > > only hear from the people who are having problems. Once the

problems > > are solved, the generally don't hang around posting to message > > boards, or seek them out in the first place.>

[Guest guest]

I stopped the CCB and my BP went down. Thanks to y'all for the info

Possibly. What meds are you taking? There was someone else on this board who mentioned that she stopped taking a CCB and her BP went down.

>

>

> Subject: Re: up next, AVS

> To: hyperaldosteronism

> Date: Thursday, March 3, 2011, 8:31 PM

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> > I read some others BP's they post and they often report theirs in the 140-160/90-110 range off meds. I walked around nearly always even on 4-5 meds (but never spiro) at the 160-170/110-130ish and often the diastolic hit 140.

>

>

>

> , while *on* meds - CCBs and ARBs - my BP was in the 160s/100s range. Once I stopped those, it dropped to the 140s/90s.

>

[Guest guest]

Yes her BP would be too low and she could not stand up.CE Grim MDIf she is getting no salt wouldn't she have other problems. > > > > >> > > > > > As you have noted, there is very little information out > > there on> > > > the> > > > > > pros and cons of surgery vs. meds. As Dr. Grim has > > mentioned, we> > > > > > only hear from the people who are having problems. Once the> > > > problems> > > > > > are solved, the generally don't hang around posting to message> > > > > > boards, or seek them out in the first place.> > > > >> > > >> > > >> > > >> > >> >> >> >>

[Guest guest]

REad about norethindrone if may raise renin and aldo. and cause breast problems. My guess is this + spiro is what got you into breast tenderness.also causes HTN in some and only way to see it that is the culprit is to stop it.Why are you taking this?See1.

Weinberger

MH, Kramer NJ, Grim CE, and LP. The effects of posture and saline

loading on plasma renin activity and aldosterone concentration in pregnant,

nonpregnant and estrogen-treated woman. J Clin Endocr 1977;44: 69-77.

Oh and meds - sorry about that, forgot to list:singulair 10mgnorethindrone .35mgcyclobenzaprine 5mg as neededpotassium 20meq 2x/day> > > > > >> > > > > > > As you have noted, there is very little information out > > > there on> > > > > the> > > > > > > pros and cons of surgery vs. meds. As Dr. Grim has > > > mentioned, we> > > > > > > only hear from the people who are having problems. Once the> > > > > problems> > > > > > > are solved, the generally don't hang around posting to message> > > > > > > boards, or seek them out in the first place.> > > > > >> > > > >> > > > >> > > > >> > > >> > >> > >> > >> >>

[Guest guest]

When I

went off spiro for six weeks, I was eating like that. I got maybe 300 - 400 mg

sodium/day. My BPO still remained

at 156/90 or so. I couldn't get it

any lower. When I got to Mayo

Clinic, my urine Na was " <7 " with a note below " too low to

quantitate. " Young,

the world famous expert, had never seen urine Na that low. He absolutely ignored that low Na,

however, when interpreting renin.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

> You do not get HTN if you have hyperaldo unless you

also eat too much salt.

I totally believe people are out-salting their meds, but here is what baffles

me: I eat very low sodium and unmedicated, my BP is 140s/90s.

A typical day's menu:

2 eggs scrambled in olive oil, big handful of spinach, NO SALT

Handful of UNSALTED almonds

Salad with UNSALTED chicken breast, spinach, kale, red bell pepper, avocado,

UNSALTED pecans - again, NO ADDED SALT, and absolutely no dressing

Handful of UNSALTED macadamias

Grilled salmon, cauliflower roasted with olive oil and pepper, NO SALT

Handful of unsalted almonds

I make all of this myself so I know there's NO ADDED SALT. The fish and chicken

is from a natural foods store without added brine or anything like that.

So - why do I still have HTN?

-msmith1928

[Guest guest]

I was in the hospital and NPO for 3 days, nothing by mouth, no medications, except a few ice chips. My BP was running around 160/90, at times much higher.

a

Subject: RE: Re: up next, AVSTo: hyperaldosteronism Date: Friday, March 4, 2011, 11:48 AM

When I went off spiro for six weeks, I was eating like that. I got maybe 300 - 400 mg sodium/day. My BPO still remained at 156/90 or so. I couldn't get it any lower. When I got to Mayo Clinic, my urine Na was "<7" with a note below "too low to quantitate." Young, the world famous expert, had never seen urine Na that low. He absolutely ignored that low Na, however, when interpreting renin.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of msmith_1928

> You do not get HTN if you have hyperaldo unless you also eat too much salt.I totally believe people are out-salting their meds, but here is what baffles me: I eat very low sodium and unmedicated, my BP is 140s/90s.A typical day's menu:2 eggs scrambled in olive oil, big handful of spinach, NO SALTHandful of UNSALTED almondsSalad with UNSALTED chicken breast, spinach, kale, red bell pepper, avocado, UNSALTED pecans - again, NO ADDED SALT, and absolutely no dressingHandful of UNSALTED macadamiasGrilled salmon, cauliflower roasted with olive oil and pepper, NO SALTHandful of unsalted almondsI make all of this myself so I know there's NO ADDED SALT. The fish and chicken is from a natural foods store without added brine or anything like that.So - why do I still have HTN?-msmith1928

[Guest guest]

going in the Hosp increases some BPs and lowers others.CE Grim MDI was in the hospital and NPO for 3 days, nothing by mouth, no medications, except a few ice chips. My BP was running around 160/90, at times much higher. aSubject: RE: Re: up next, AVSTo: hyperaldosteronism Date: Friday, March 4, 2011, 11:48 AMWhen I went off spiro for six weeks, I was eating like that. I got maybe 300 - 400 mg sodium/day. My BPO still remained at 156/90 or so. I couldn't get it any lower. When I got to Mayo Clinic, my urine Na was "<7" with a note below "too low to quantitate." Young, the world famous expert, had never seen urine Na that low. He absolutely ignored that low Na, however, when interpreting renin. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of msmith_1928> You do not get HTN if you have hyperaldo unless you also eat too much salt.I totally believe people are out-salting their meds, but here is what baffles me: I eat very low sodium and unmedicated, my BP is 140s/90s.A typical day's menu:2 eggs scrambled in olive oil, big handful of spinach, NO SALTHandful of UNSALTED almondsSalad with UNSALTED chicken breast, spinach, kale, red bell pepper, avocado, UNSALTED pecans - again, NO ADDED SALT, and absolutely no dressingHandful of UNSALTED macadamiasGrilled salmon, cauliflower roasted with olive oil and pepper, NO SALTHandful of unsalted almondsI make all of this myself so I know there's NO ADDED SALT. The fish and chicken is from a natural foods store without added brine or anything like that.So - why do I still have HTN?-msmith1928

[Guest guest]

The

fact that my BP was not totally responsive to the level of urine sodium has

convinced me that aldo is not the only culprit, and perhaps not a permanent

culprit. My BP has gone from

210/120 and 150 mg spiro to 125/68 and about 37.5 mg spiro. Sodium ingesting has gone from about 800

mg to about 1,500 mg. All that

change came after I started Lyme treatment. I'm not convinced spiro or Inspra are a

permanent part of my life.

While

the culprit may be different, the same may be true for you, a.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of a Hall

I

was in the hospital and NPO for 3 days, nothing by mouth, no

medications, except a few ice chips. My BP was running around 160/90,

at times much higher.

a

From: Valarie val@...

When

I went off spiro for six weeks, I was eating like that. I got maybe 300

- 400 mg sodium/day. My BPO still remained at 156/90 or so. I

couldn't get it any lower. When I got to Mayo Clinic, my urine Na was

" <7 " with a note below " too low to quantitate. "

Young, the world famous expert, had never seen urine Na that

low. He absolutely ignored that low Na, however, when interpreting

renin.

From:

hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

> You do not get HTN if you

have hyperaldo unless you also eat too much salt.

[Guest guest]

What Dr. Kempner would do is to increase salt intake slowly till BP increased again. Then you know your salt sensitivity threshold.CE Grim MDThe fact that my BP was not totally responsive to the level of urine sodium has convinced me that aldo is not the only culprit, and perhaps not a permanent culprit. My BP has gone from 210/120 and 150 mg spiro to 125/68 and about 37.5 mg spiro. Sodium ingesting has gone from about 800 mg to about 1,500 mg. All that change came after I started Lyme treatment. I'm not convinced spiro or Inspra are a permanent part of my life. While the culprit may be different, the same may be true for you, a. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of a Hall I was in the hospital and NPO for 3 days, nothing by mouth, no medications, except a few ice chips. My BP was running around 160/90, at times much higher. aFrom: Valarie val@...When I went off spiro for six weeks, I was eating like that. I got maybe 300 - 400 mg sodium/day. My BPO still remained at 156/90 or so. I couldn't get it any lower. When I got to Mayo Clinic, my urine Na was "<7" with a note below "too low to quantitate." Young, the world famous expert, had never seen urine Na that low. He absolutely ignored that low Na, however, when interpreting renin. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Ofmsmith_1928> You do not get HTN if you have hyperaldo unless you also eat too much salt.

[Guest guest]

I've

already tested that. If I eat a

really salty meal, my BP will be higher the next evening or two - 132/80. Going nearly salt free when I went to

Mayo, BP fell from 210 to 155.

There is obviously some salt sensitivity, but aldo may not be a

permanent culprit for me, and may not be the only culprit.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

What Dr. Kempner would do is to increase salt intake slowly

till BP increased again. Then you know your salt sensitivity threshold.

On

Mar 4, 2011, at 1:37 PM, Valarie wrote:

The fact that my BP was not

totally responsive to the level of urine sodium has convinced me that aldo o is

not the only culprit, and perhaps not a permanent culprit. My BP has gone from 210/120 and 150 mg

spiro to 125/68 and about 37.5 mg spiro. Sodium

ingesting has gone from about 800 mg to about 1,500 mg. All that change came after I

started Lyme treatment. I'm

not convinced spiro or Inspra are a permanent part of my life.

While the culprit

may be different, the same may be true for you, a.

_,_._,___

[Guest guest]

Inknow how you feel. Argh. I have labs that note the low k may be a lab error and maybe theirs at dr connors have the same lab problems. So two labs said I had low k and a dr refused to accept it

When I

went off spiro for six weeks, I was eating like that. I got maybe 300 - 400 mg

sodium/day. My BPO still remained

at 156/90 or so. I couldn't get it

any lower. When I got to Mayo

Clinic, my urine Na was "<7" with a note below "too low to

quantitate." Young,

the world famous expert, had never seen urine Na that low. He absolutely ignored that low Na,

however, when interpreting renin.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of msmith_1928

> You do not get HTN if you have hyperaldo unless you

also eat too much salt.

I totally believe people are out-salting their meds, but here is what baffles

me: I eat very low sodium and unmedicated, my BP is 140s/90s.

A typical day's menu:

2 eggs scrambled in olive oil, big handful of spinach, NO SALT

Handful of UNSALTED almonds

Salad with UNSALTED chicken breast, spinach, kale, red bell pepper, avocado,

UNSALTED pecans - again, NO ADDED SALT, and absolutely no dressing

Handful of UNSALTED macadamias

Grilled salmon, cauliflower roasted with olive oil and pepper, NO SALT

Handful of unsalted almonds

I make all of this myself so I know there's NO ADDED SALT. The fish and chicken

is from a natural foods store without added brine or anything like that.

So - why do I still have HTN?

-msmith1928