AVS

[Guest guest]

Did they give u ACTH as recommended?Are u sure u have side right asleft easiest AlIst always. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I had my avs yesterday and besides the fact that my procedure was 2 1/2 hours late, it went really well. THe doc came in and explained everything to me and the nurse started my iv. I walked back to the procedure room and hopped on the table. they took a few pics and steralized my right groin area the doc came in and got started. the right adrenal was first and it took only about 5 minutes or less. the left was more challenging. the used 3 different size catheters and that side took about 25 minutes. I was wide awake the whole time. I felt movement but never any pain. I was in recovery for an hour and then was allowed to go. THey offered me a wheel chair but I was able to walk out. i had a bit of bleeding from the site but i laid down and applied pressure and it stopped. feel fine today. not sore or anything.

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Sent from my Verizon Wireless mobile phone

[Guest guest]

They gave me cortisol.

Yes, when they got the first sample I asked which side it was from and they said they said the right. The left side was harder to get into to. I didn't think to ask why.

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Wed, March 31, 2010 9:01:14 AMSubject: Re: AVS

Did they give u ACTH as recommended?

Are u sure u have side right asleft easiest Al

Ist always.

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Mar 31, 2010, at 7:48 AM, Vicki Ritchie <vritchie147@ yahoo.com> wrote:

I had my avs yesterday and besides the fact that my procedure was 2 1/2 hours late, it went really well. THe doc came in and explained everything to me and the nurse started my iv. I walked back to the procedure room and hopped on the table. they took a few pics and steralized my right groin area the doc came in and got started. the right adrenal was first and it took only about 5 minutes or less. the left was more challenging. the used 3 different size catheters and that side took about 25 minutes. I was wide awake the whole time. I felt movement but never any pain. I was in recovery for an hour and then was allowed to go. THey offered me a wheel chair but I was able to walk out. i had a bit of bleeding from the site but i laid down and applied pressure and it stopped. feel fine today. not sore or anything.----------Sent from my Verizon Wireless mobile phone

[Guest guest]

My right side was hard, especially the first time, when a catheter had to be

fashioned to fit. The second time the left took longer because they needed to

sample in two places. The only complication the second time was a mistaken

arterial stick. The first time, the big complication was missing a third vein

on the left, which was the one they needed, as well as something that caused

bruising on the left. The drive home the next day was in rush hour traffic and

I was wearing jeans, so the bruise got big. So big, they had me see my PCP. I

also went back to work too early. The second time, I took a day off after

discharge.

I find it hard to believe they let you walk. Each time, I was on a gurney and

down for two hours before being allowed to sit up.

> >

> >

> >

> > I had my avs yesterday and besides the fact that my procedure was 2 1/2

> > hours late, it went really well. THe doc came in and explained everything to

> > me and the nurse started my iv. I walked back to the procedure room and

> > hopped on the table. they took a few pics and steralized my right groin area

> > the doc came in and got started. the right adrenal was first and it took

> > only about 5 minutes or less. the left was more challenging. the used 3

> > different size catheters and that side took about 25 minutes. I was wide

> > awake the whole time. I felt movement but never any pain. I was in recovery

> > for an hour and then was allowed to go. THey offered me a wheel chair but I

> > was able to walk out. i had a bit of bleeding from the site but i laid down

> > and applied pressure and it stopped. feel fine today. not sore or anything.

> >

> > ----------

> > Sent from my Verizon Wireless mobile phone

> >

> >

> >

> >

> >

> >

>

[Guest guest]

AVS requires a VERY experienced radiologist.CE Grim MDMy right side was hard, especially the first time, when a catheter had to be fashioned to fit. The second time the left took longer because they needed to sample in two places. The only complication the second time was a mistaken arterial stick. The first time, the big complication was missing a third vein on the left, which was the one they needed, as well as something that caused bruising on the left. The drive home the next day was in rush hour traffic and I was wearing jeans, so the bruise got big. So big, they had me see my PCP. I also went back to work too early. The second time, I took a day off after discharge.I find it hard to believe they let you walk. Each time, I was on a gurney and down for two hours before being allowed to sit up.> >> >> >> > I had my avs yesterday and besides the fact that my procedure was 2 1/2> > hours late, it went really well. THe doc came in and explained everything to> > me and the nurse started my iv. I walked back to the procedure room and> > hopped on the table. they took a few pics and steralized my right groin area> > the doc came in and got started. the right adrenal was first and it took> > only about 5 minutes or less. the left was more challenging. the used 3> > different size catheters and that side took about 25 minutes. I was wide> > awake the whole time. I felt movement but never any pain. I was in recovery> > for an hour and then was allowed to go. THey offered me a wheel chair but I> > was able to walk out. i had a bit of bleeding from the site but i laid down> > and applied pressure and it stopped. feel fine today. not sore or anything.> >> > ----------> > Sent from my Verizon Wireless mobile phone> >> >> >> >> > > >>

[Guest guest]

I just had my AVS on Monday. It was successful in that they got samples from

both adrenal veins. Though it did not go as they expected. The director of

radiology at Loma Hospital performed the procedure. He told me he did have

quite a bit of experience with the procedure, and had about an 80% success rate

with the right vein. He explained the procedure well before hand.

I was sedated and hooked up to an IV, and the procedure began with them

attempting the right side first. This is the side the dr told me would be most

difficult. But he was able to get a sample from the right adrenal vein in about

25 mins or so and seemed pretty pleased that it was simpler than he expected for

that side. It wasn't until the left side that there was an issue. He told me

after the procedure that it was the most difficult left adrenal vein he had ever

experienced more so than many of the right sides he had seen. He said the vein

was very small and narrow, and it took a number of tries with various sized

catheters before they could get the sample. But they did get it finally after

about an hour and ten mins.

Although successful, I experienced quite a bit of pain and discomfort throughout

the entire procedure. I was in quite a bit of pain and discomfort after the

procedure and now 48 hours later am still experiencing what I would think is

more pain and discomfort than I should be. I have called the hospital and they

want me to come in and be seen tomorrow, but the nurse I spoke to basically said

he didn't feel that it " fit with the procedure I had " ...whatever that means.

I've had some bleeding from the incision site today, it stopped fairly quickly

once laying down and applying pressure, but the blood was bright red which

concerns me especially after 48 hours. I have alot of pain/discomfort in the

general region of the right groin around the incision, and in the lower abdomen

on that right side, and severe pain in the lower back and flank, especially on

the right side (this is also the side that I've had alot of flank pain

previously as indicated in my symptoms list).

I have been very careful, took the day of the procedure off of course, and the

following day (yesterday). Did not drive until after 30 hours or do anything

beyond walking from the bedroom to the frontroom until after 30 hours as well. I

did do some driving yesterday evening (had to pick up children) and then

returned to work this morning, and had to be driven home after only 5 hours due

to the pain. Shortly after getting home when changing the bandage is when the

bleeding started.

Did anyone that has had the AVS have continued pain this far after the

procedure? If anyone that has had it, did have pain/discomfort, how severe was

it? Did anyone else experience pain including shooting pains to the chest while

the procedure was in progress?

[Guest guest]

If still bleeding call dr now. You see why it is important to give ACTH. PAIN etcWill will kick it up and lead to difficult to interpret results. Givenus ur aldos and cortisone when u get them. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I had no sedation for my AVS. Left side easy. Right side a nightmare and unsuccessful.Had extreme pain on that side, shooting up under ribs, difficult to endure. Very sore and a bit painful next 24 hrs, then OK. Site was sealed properly. You definitely should get this checked out ASAP.

From: Jen <singlemomx2gmail>Subject: AVSTo: hyperaldosteronism Received: Wednesday, 14 July, 2010, 9:30 PM

I just had my AVS on Monday. It was successful in that they got samples from both adrenal veins. Though it did not go as they expected. The director of radiology at Loma Hospital performed the procedure. He told me he did have quite a bit of experience with the procedure, and had about an 80% success rate with the right vein. He explained the procedure well before hand.I was sedated and hooked up to an IV, and the procedure began with them attempting the right side first. This is the side the dr told me would be most difficult. But he was able to get a sample from the right adrenal vein in about 25 mins or so and seemed pretty pleased that it was simpler than he expected for that side. It wasn't until the left side that there was an issue. He told me after the procedure that it was the most difficult left adrenal vein he had ever experienced more so than many of the right sides he had seen. He said the vein was very small and narrow,

and it took a number of tries with various sized catheters before they could get the sample. But they did get it finally after about an hour and ten mins. Although successful, I experienced quite a bit of pain and discomfort throughout the entire procedure. I was in quite a bit of pain and discomfort after the procedure and now 48 hours later am still experiencing what I would think is more pain and discomfort than I should be. I have called the hospital and they want me to come in and be seen tomorrow, but the nurse I spoke to basically said he didn't feel that it "fit with the procedure I had"...whatever that means. I've had some bleeding from the incision site today, it stopped fairly quickly once laying down and applying pressure, but the blood was bright red which concerns me especially after 48 hours. I have alot of pain/discomfort in the general region of the right groin around the incision, and in the lower abdomen on that right

side, and severe pain in the lower back and flank, especially on the right side (this is also the side that I've had alot of flank pain previously as indicated in my symptoms list).I have been very careful, took the day of the procedure off of course, and the following day (yesterday). Did not drive until after 30 hours or do anything beyond walking from the bedroom to the frontroom until after 30 hours as well. I did do some driving yesterday evening (had to pick up children) and then returned to work this morning, and had to be driven home after only 5 hours due to the pain. Shortly after getting home when changing the bandage is when the bleeding started.Did anyone that has had the AVS have continued pain this far after the procedure? If anyone that has had it, did have pain/discomfort, how severe was it? Did anyone else experience pain including shooting pains to the chest while the procedure was in

progress?

[Guest guest]

My thoughts and prayers are with

you. Heed Dr. Grim’s advice on calling your doctor now. Don’t

allow a nurse to give you instructions, they probably have no idea what AVS

is. I would speak with my doctor or get to an ER personally.

Prayers your way,

Charlotte Zahnd

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Jen

Sent: Wednesday, July 14, 2010

5:30 PM

To: hyperaldosteronism

Subject: AVS

I just had my AVS on Monday. It was successful in that

they got samples from both adrenal veins. Though it did not go as they

expected. The director of radiology at Loma Hospital performed the procedure. He

told me he did have quite a bit of experience with the procedure, and had about

an 80% success rate with the right vein. He explained the procedure well before

hand.

I was sedated and hooked up to an IV, and the procedure began with them

attempting the right side first. This is the side the dr told me would be most

difficult. But he was able to get a sample from the right adrenal vein in about

25 mins or so and seemed pretty pleased that it was simpler than he expected

for that side. It wasn't until the left side that there was an issue. He told me

after the procedure that it was the most difficult left adrenal vein he had

ever experienced more so than many of the right sides he had seen. He said the

vein was very small and narrow, and it took a number of tries with various

sized catheters before they could get the sample. But they did get it finally

after about an hour and ten mins.

Although successful, I experienced quite a bit of pain and discomfort

throughout the entire procedure. I was in quite a bit of pain and discomfort

after the procedure and now 48 hours later am still experiencing what I would

think is more pain and discomfort than I should be. I have called the hospital

and they want me to come in and be seen tomorrow, but the nurse I spoke to

basically said he didn't feel that it " fit with the procedure I

had " ...whatever that means.

I've had some bleeding from the incision site today, it stopped fairly quickly

once laying down and applying pressure, but the blood was bright red which

concerns me especially after 48 hours. I have alot of pain/discomfort in the

general region of the right groin around the incision, and in the lower abdomen

on that right side, and severe pain in the lower back and flank, especially on

the right side (this is also the side that I've had alot of flank pain previously

as indicated in my symptoms list).

I have been very careful, took the day of the procedure off of course, and the

following day (yesterday). Did not drive until after 30 hours or do anything

beyond walking from the bedroom to the frontroom until after 30 hours as well.

I did do some driving yesterday evening (had to pick up children) and then

returned to work this morning, and had to be driven home after only 5 hours due

to the pain. Shortly after getting home when changing the bandage is when the

bleeding started.

Did anyone that has had the AVS have continued pain this far after the

procedure? If anyone that has had it, did have pain/discomfort, how severe was

it? Did anyone else experience pain including shooting pains to the chest while

the procedure was in progress?

[Guest guest]

Can you include in your title if you have unilat or bilat dis? This helps me remember folks better. Trust you are doing will, on meds as I recall.I just heard that Inspra is now available for $15/month and spiro at $4/m at Walmart.CE Grim MDInstead of AVS, I took NP-59 Scintiscan with accurate results without any hassle...even I did not need stop any of my BP medications like Spironolactone.