Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Yes, new form "regressive" autism. When Edith was dx I read loads of stuff about how parents seem to feel in a deluded sort of way that their child had regressed and some of them even had videotape to prove it, but the clever doctor writing the stuff knew better >>A proper study since then has proven he parents right, with psych's assessing pre and post video blind Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 I don't know about media waking up to regression, but 10yrs ago when there was doubt about the MMR the major story was that autism presented at around 18months old up to 3yrs and was coincidental with having the jabs. There was no argument that I remember over children being "normal" and then regressing into autism, the story then was this is how autism is. Every paed I have ever come across has said the same thing, none have been surprised that my children were normal up to around 2yrs old, they considered this the norm. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Yes, new form " regressive " autism. When Edith was dx I read loads of stuff about how parents seem to feel in a deluded sort of way that their child had regressed and some of them even had videotape to prove it, but the clever doctor writing the stuff knew better xx Sally stephaniesirr wrote: > > In terms of a poll also bear in mind that it';s only very recently the > media seems to have woken up to the notion that many of our children > lose considerable skills. Regression seems to be a fairly " new " > concept to them. Maybe a poll that simple, sent by Special > announcement so non posters get it, If your child regressed, at what age? > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release Date: 06/12/2007 23:15 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 The other point is that whether autism can be regressive is not of general interest. The question of whether vaccines can damage your child and make it autistic is of general interest. So a vaccine/not vaccine poll would be of interest outside the world of autism. Might cause aggro within it though if it came to the wrong conclusion. xx Sally stephaniesirr wrote: > > In terms of a poll also bear in mind that it';s only very recently the > media seems to have woken up to the notion that many of our children > lose considerable skills. Regression seems to be a fairly " new " > concept to them. Maybe a poll that simple, sent by Special > announcement so non posters get it, If your child regressed, at what age? > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release Date: 06/12/2007 23:15 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 s'all right Mandi. I knew the parents were right. The patronising tone in which " some parents " were derided for refusing to accept that the doctors were right and their child had been autistic all along is still quite vivid to me. xx Sally Mum231ASD@... wrote: > > In a message dated 07/12/2007 09:10:48 GMT Standard Time, > bobsallyeva@... writes: > > Yes, new form " regressive " autism. When Edith was dx I read loads of > stuff about how parents seem to feel in a deluded sort of way that > their > child had regressed and some of them even had videotape to prove > it, but > the clever doctor writing the stuff knew better > > >>A proper study since then has proven he parents right, with psych's > assessing pre and post video blind > > Mandi x > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release Date: 06/12/2007 23:15 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Actually, I was reading a book at the w/end by the guys that invented TEACCH. They explain how the kids don't regress. So when they lose speech, it's not a regression. Instead, they had scientific studies that show that the kids just stop progressing and slowly " forget " the stuff they knew. Made my blood pressure go up a bit! Delusional nonsense masquerading as science. As a scientist, I hate bad " science " . and when it's employed against my child.......then it really does my head in. > > > > In terms of a poll also bear in mind that it';s only very recently the > > media seems to have woken up to the notion that many of our children > > lose considerable skills. Regression seems to be a fairly " new " > > concept to them. Maybe a poll that simple, sent by Special > > announcement so non posters get it, If your child regressed, at what age? > > > > > > ----------------------------------------------------------------- ------- > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release Date: 06/12/2007 23:15 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 is dx Kanners and he regressed, but I have to say nothing like where Tom was at. He had a few words but not much, he was younger though at 18months. He definitely did not just stand still though at that age, he is not how he was even at 18 months, but like I said no huge skills that were lost, more gradual sliding inwards until he was not really with us anymore. This I was told was how most of their cases present, as it would be very rare for a child younger than this to get a dx of autism. How do they know a child is autistic from birth? Has anyone ever been told their baby may be autistic? Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 > > > > > > In terms of a poll also bear in mind that it';s only very > recently the > > > media seems to have woken up to the notion that many of our > children > > > lose considerable skills. Regression seems to be a fairly " new " > > > concept to them. Maybe a poll that simple, sent by Special > > > announcement so non posters get it, If your child regressed, at > what age? > > > > > > > > > ---------------------------------------------------------------- - > ------- > > > > > > No virus found in this incoming message. > > > Checked by AVG Free Edition. > > > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release > Date: 06/12/2007 23:15 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 I have always assumed Jack was autistic from birth. If not from birth, from injects given before we left the hospital. Jack NEVER made eye contact, always looked over my shoulder Not much of a 'babbler' Never waived 'bye-bye' Never mastered crawling, though he was very physical, and hit milestones early also I received 2 rhogam shots while pregnant AND I worked on a golf course for conception and 1st trimester. As far as being dx'd? well at 6yo we're still working on that... -Jenna MaddiganV@... wrote: is dx Kanners and he regressed, but I have to say nothing like where Tom was at. He had a few words but not much, he was younger though at 18months. He definitely did not just stand still though at that age, he is not how he was even at 18 months, but like I said no huge skills that were lost, more gradual sliding inwards until he was not really with us anymore. This I was told was how most of their cases present, as it would be very rare for a child younger than this to get a dx of autism. How do they know a child is autistic from birth? Has anyone ever been told their baby may be autistic? Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Vicky, I could write volumes on "being autistic from birth!" was very very clearly autistic from the moment he drew his first breath. Hypervigilant, anxious, screamed at all environmental changes, hated eating, didn't cry when he was hungry, had a dramatic moro reflex until he was 12 mos old, back arching to not be held from 4 mos, unsettled when anyone was in the house, cried when we would laugh (he hated any voices in unison no matter what the sound until he was treated on biomed), he would sit and stare into space when I thought he was sleeping, he would claw and cry for hours before going to sleep, he would scream (from about 4 months old) if I sang any but 1 song to him, he refused solid foods, he bit my neck (hard) constantly out of anxiety when I would be carrying him, he was a tormented little soul, that's for sure. His transitional tantrums started when he was about 6 mos old. (For instance everytime I put him in the carseat or took him out, he would cry.) His swallow was also uncoordinated from birth. He started pushing buttons when he was very young and was in ecstacy if we let him turn the lights on and off. He developed sequences of up to 12 items before he was 18 mos old. He also walked on his knees for ages because he didn't understand that what he was doing was different from what the other kids were doing (walking on their feet!). He was obsessed with doors and drawers from about 12 months and would only use his toys to tap them together or post them in a sequence into something (like a drawer). The back arching is one of the classic symptoms of infantile autism. I looked up back arching when he was very young and that led me to ASD on the internet. I did the MCHAT when he was 18 mos old and he came up "severe" on the risk scale for autism. I remember when he was 6 months old I had a Christmas party for the kids in my antenatal group, there was another girl there same age who was so similar to him. I very vividly remember trying to take assurance that must be okay because the girl's mother wasn't worried about her and she was just the same as . She turned out to have autism as well. Darla is dx Kanners and he regressed, but I have to say nothing like where Tom was at. He had a few words but not much, he was younger though at 18months. He definitely did not just stand still though at that age, he is not how he was even at 18 months, but like I said no huge skills that were lost, more gradual sliding inwards until he was not really with us anymore. This I was told was how most of their cases present, as it would be very rare for a child younger than this to get a dx of autism. How do they know a child is autistic from birth? Has anyone ever been told their baby may be autistic? Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Did you think something was wrong? I found I was always second guessing myself because it was my first child. Luka was very much like that as a baby.Still he regressed further some time after 1st birthday. As if thatlittle bit of sanity he had in him faded away gradually, only the madstuff remaining and intensifying.nx>>> Vicky,> I could write volumes on "being autistic from birth!" was very very> clearly autistic from the moment he drew his first breath. Hypervigilant,> anxious, screamed at all environmental changes, hated eating, didn'tcry when he> was hungry, had a dramatic moro reflex until he was 12 mos old, backarching> to not be held from 4 mos, unsettled when anyone was in the house,cried when> we would laugh (he hated any voices in unison no matter what thesound until> he was treated on biomed), he would sit and stare into space when Ithought> he was sleeping, he would claw and cry for hours before going to sleep, he> would scream (from about 4 months old) if I sang any but 1 song to him, he> refused solid foods, he bit my neck (hard) constantly out of anxietywhen I would> be carrying him, he was a tormented little soul, that's for sure. His> transitional tantrums started when he was about 6 mos old. (Forinstance everytime> I put him in the carseat or took him out, he would cry.)>> His swallow was also uncoordinated from birth. He started pushing buttons> when he was very young and was in ecstacy if we let him turn thelights on and> off. He developed sequences of up to 12 items before he was 18 mos old. He> also walked on his knees for ages because he didn't understand thatwhat he> was doing was different from what the other kids were doing (walkingon their> feet!). He was obsessed with doors and drawers from about 12 monthsand> would only use his toys to tap them together or post them in asequence into> something (like a drawer).>> The back arching is one of the classic symptoms of infantile autism. I> looked up back arching when he was very young and that led me to ASD on the> internet. I did the MCHAT when he was 18 mos old and he came up "severe" on the> risk scale for autism.>> I remember when he was 6 months old I had a Christmas party for thekids in> my antenatal group, there was another girl there same age who was sosimilar> to him. I very vividly remember trying to take assurance that must be> okay because the girl's mother wasn't worried about her and she wasjust the> same as . She turned out to have autism as well.>> Darla>>> In a message dated 07/12/2007 15:45:11 GMT Standard Time,MaddiganV@...> writes:>>>>> is dx Kanners and he regressed, but I have to say nothing likewhere> Tom was at.> He had a few words but not much, he was younger though at 18months.> He definitely did not just stand still though at that age, he is nothow he> was even at 18 months, but like I said no huge skills that were lost,more> gradual sliding inwards until he was not really with us anymore.> This I was told was how most of their cases present, as it would bevery> rare for a child younger than this to get a dx of autism.> How do they know a child is autistic from birth? Has anyone ever been told> their baby may be autistic?> Vicky> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 yeah, good ole gary mesibov. his organisation used to be called society for the autistically handicapped (and not that long ago either) > > > > > > > > In terms of a poll also bear in mind that it';s only very > > recently the > > > > media seems to have woken up to the notion that many of our > > children > > > > lose considerable skills. Regression seems to be a fairly " new " > > > > concept to them. Maybe a poll that simple, sent by Special > > > > announcement so non posters get it, If your child regressed, at > > what age? > > > > > > > > > > > > ------------------------------------------------------------- ---- > > ------- > > > > > > > > No virus found in this incoming message. > > > > Checked by AVG Free Edition. > > > > Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release > > Date: 06/12/2007 23:15 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Luka was very much like that as a baby. Still he regressed further some time after 1st birthday. As if that little bit of sanity he had in him faded away gradually, only the mad stuff remaining and intensifying. nx > > > Vicky, > I could write volumes on " being autistic from birth! " was very very > clearly autistic from the moment he drew his first breath. Hypervigilant, > anxious, screamed at all environmental changes, hated eating, didn't cry when he > was hungry, had a dramatic moro reflex until he was 12 mos old, back arching > to not be held from 4 mos, unsettled when anyone was in the house, cried when > we would laugh (he hated any voices in unison no matter what the sound until > he was treated on biomed), he would sit and stare into space when I thought > he was sleeping, he would claw and cry for hours before going to sleep, he > would scream (from about 4 months old) if I sang any but 1 song to him, he > refused solid foods, he bit my neck (hard) constantly out of anxiety when I would > be carrying him, he was a tormented little soul, that's for sure. His > transitional tantrums started when he was about 6 mos old. (For instance everytime > I put him in the carseat or took him out, he would cry.) > > His swallow was also uncoordinated from birth. He started pushing buttons > when he was very young and was in ecstacy if we let him turn the lights on and > off. He developed sequences of up to 12 items before he was 18 mos old. He > also walked on his knees for ages because he didn't understand that what he > was doing was different from what the other kids were doing (walking on their > feet!). He was obsessed with doors and drawers from about 12 months and > would only use his toys to tap them together or post them in a sequence into > something (like a drawer). > > The back arching is one of the classic symptoms of infantile autism. I > looked up back arching when he was very young and that led me to ASD on the > internet. I did the MCHAT when he was 18 mos old and he came up " severe " on the > risk scale for autism. > > I remember when he was 6 months old I had a Christmas party for the kids in > my antenatal group, there was another girl there same age who was so similar > to him. I very vividly remember trying to take assurance that must be > okay because the girl's mother wasn't worried about her and she was just the > same as . She turned out to have autism as well. > > Darla > > > In a message dated 07/12/2007 15:45:11 GMT Standard Time, MaddiganV@... > writes: > > > > > is dx Kanners and he regressed, but I have to say nothing like where > Tom was at. > He had a few words but not much, he was younger though at 18months. > He definitely did not just stand still though at that age, he is not how he > was even at 18 months, but like I said no huge skills that were lost, more > gradual sliding inwards until he was not really with us anymore. > This I was told was how most of their cases present, as it would be very > rare for a child younger than this to get a dx of autism. > How do they know a child is autistic from birth? Has anyone ever been told > their baby may be autistic? > Vicky > Quote Link to comment Share on other sites More sharing options...
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