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Re: PA & Renal Calcium Leak

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Almost all of your problems are most likely due to excess aldosterone based on your Hx and labs. Read my article on the evolution of PA AND TAKE to your team. Begging to DASH IN THE AM and increase your Spiro if your team agrees. DASH is a high Ca, K and Mg and low Na diet and will likely reverse all of your symptoms. How many time a night do you get up to pee?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

This is my first post, so i thought i would give a little background on my diagnosis process. Sorry if it is a bit long.

I originally went to my family doctor in 1/2007 because of muscle twitching. All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was fearing I had ALS. All my local docs came up with was that I had Secondary HyperParathyroidism and possible PA.I eventually gave up on my local docs and went to Mayo Clinic. Mayro ran me through a ton of tests including DEX suppression. They couldnt explain the random/constant muscle twitching for certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS.

Blood work issues:

Low Vitamin D (actually one endo told me i literally had almost nothing in my body)

Low normal calcium

Low Ionized Calcium

Low Potassium

Low Magnesium

Low renin /High Aldesterone (it was like 26 before any meds)

High Parathyroid hormone

My Endo at mayo concluded that I had mutiple things going on. I was told I had a renal calcium leak that was causing the secondary Hyper parathyroidism, and possible PA that was causing me high ALDO and Low renin and low normal potassium. My BP was slightly elevated but rarely ever more than 140/100. I also had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it was advised that it wasnt worth the risk since I seemed to have such a slight case and no visable tumors. The CT showed my right kidney has a birth defect. It was going to split into 2 kidneys, but didnt. SO it is oversized and has a duplicate collecting system. I also have scaring on the lower pole of that kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I also pass alot of urine (I almost always top of the 24 hr collection jug). I have to not over drink on

the collection days or I will need a 2nd jug. I am almost always thirsty. Sometime unquenchable, but usually not.

As far as treatment - I switched to a local endocrinologist that actually worked with my Mayo doctor for his 2 yr residence. He has settled on the following meds that seems to be keeping me in the normal ranges on things

25mg Hydroclorathyzide

50mg Spirnolactone

100,000IU of VitD

20meq of Potassium Chloride

1200mg Calcium

500mg Magnesium

40mg Omeprazole

Even with all this, my potassium and magnesium are still low normal range. My Vit D level hovers around the 40's.

I slowly stopped the twitching over that last 3 years on this drug cocktail mix and my muscle pain/weakness is much better, but i still feel off. I am a singer and the diuretics do not help my voice as all.

June 2010 I ended up in ER thinking i might be having a heart problem. It turned out to be GERD related becuase I was taking Possium Citrate at the time. They did a CT to look for blood clots in my lungs since i had just flown on a plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So now I have another CT coming up in June to make sure they are nothing to worry about. I am going to have them also scan my kidneys to see if they can see a tumor on the adrenals now. My endo wasnt even going to look again, but I felt since it has been 3yr and I am getting blasted with a CT that they might as well do it all at once. He agreed.

My only real side effects from the drugs that are bothersome is gynecomastia. However, that was starting before the Spirno. In fact, I had 2 mammograms and ultrasound to make sure i didnt have breast cancer starting or something.

A few questions:

Could the neuro be wrong in that all I was really suffering from was low potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a problem with the potassium channel. How about, just low potassium?

I am only a 45 year old male. Can i really take these drugs the rest of my life without it causing something else to go wrong? At the rate i am going I fear I have a chest bigger than my wife in a few years time. I know that is just cosmetic, but still annoying.

Can the lung nodules be coming from anything related to these conditions or meds?

My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of that, or is it just blocking it from having much impact?

Thanks again for reading this long post and I appreciate being part of the group. I have learned alot just from reading the discussion threads.

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Thank you for your reply Dr. Grim. I usually get up one during the night. It is

rare that i make it through the night without getting up once.

I have been low carbing for the last 3 weeks to take off some weight and manage

my blood sugar. I have dropped about 10 pounds so far, but I am still 60-70

pounds overweight for my height. Low carb seems to be the only way I can

tolerate trying to take off weight. I am lactose intolerant as well, so no dairy

products.

My sodium level in my last blood test was 136 (normal range 135-145) It was at

142 three years ago and has slowly been dropping each time it is tested. I am

guessing that is because of the hydrochlorothiazide. My potassium level was 4.1

(NR=3.5-5.1), so that seems to be stable on my current drug regime.

My Doc says I need to keep taking hydrochlorothiazide to " plug " the renal

calcium leak to avoid kidney stones (although I never had any). Do you have

another way of doing that? I was taking 25mg 2 time a day, but cut it back to

25mg one per day. That helped with the need to get up and use the bathroom more

than once every night and helped my singing as well.

I wonder if DASH is really the right approach in my case? I often crave salt.

Find myself heading for the pickle jar on occasion. I suspect that

hydrochlorothiazide is causing that. My BP is usually normal or just slightly

elevated when ever I check it.

My mission right now is to lose the excess weight and avoid becoming a Type 2

diabetic.

With regard to electrolytes, I have found it troubling when I am setting up my

band gear to play a live performance. I sweat alot carrying in my gear. This

often leads to my hands cramping up when I am performing...not good for a guitar

player. Several times I have had to drink a glass of orange juice and pour a

pile of salt in my hand from a salt shaker and eat it to get it to subside. Do

you think it is potassium or salt that i am needing here? It is a big driver for

me to lose weight so i dont sweat so much. I literally need to bring a change of

cloths as i am usually drenched after I setup my gear. Very annoying.

>

> > This is my first post, so i thought i would give a little background on my

diagnosis process. Sorry if it is a bit long.

> >

> > I originally went to my family doctor in 1/2007 because of muscle twitching.

All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was

fearing I had ALS. All my local docs came up with was that I had Secondary

HyperParathyroidism and possible PA.I eventually gave up on my local docs and

went to Mayo Clinic. Mayro ran me through a ton of tests including DEX

suppression. They couldnt explain the random/constant muscle twitching for

certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation

Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS.

> >

> > Blood work issues:

> > Low Vitamin D (actually one endo told me i literally had almost nothing in

my body)

> > Low normal calcium

> > Low Ionized Calcium

> > Low Potassium

> > Low Magnesium

> > Low renin /High Aldesterone (it was like 26 before any meds)

> > High Parathyroid hormone

> >

> > My Endo at mayo concluded that I had mutiple things going on. I was told I

had a renal calcium leak that was causing the secondary Hyper parathyroidism,

and possible PA that was causing me high ALDO and Low renin and low normal

potassium. My BP was slightly elevated but rarely ever more than 140/100. I also

had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia

at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it

was advised that it wasnt worth the risk since I seemed to have such a slight

case and no visable tumors. The CT showed my right kidney has a birth defect. It

was going to split into 2 kidneys, but didnt. SO it is oversized and has a

duplicate collecting system. I also have scaring on the lower pole of that

kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic

syndrome. I also pass alot of urine (I almost always top of the 24 hr collection

jug). I have to not over drink on

> > the collection days or I will need a 2nd jug. I am almost always thirsty.

Sometime unquenchable, but usually not.

> >

> > As far as treatment - I switched to a local endocrinologist that actually

worked with my Mayo doctor for his 2 yr residence. He has settled on the

following meds that seems to be keeping me in the normal ranges on things

> >

> > 25mg Hydroclorathyzide

> > 50mg Spirnolactone

> > 100,000IU of VitD

> > 20meq of Potassium Chloride

> > 1200mg Calcium

> > 500mg Magnesium

> > 40mg Omeprazole

> >

> > Even with all this, my potassium and magnesium are still low normal range.

My Vit D level hovers around the 40's.

> >

> > I slowly stopped the twitching over that last 3 years on this drug cocktail

mix and my muscle pain/weakness is much better, but i still feel off. I am a

singer and the diuretics do not help my voice as all.

> >

> > June 2010 I ended up in ER thinking i might be having a heart problem. It

turned out to be GERD related becuase I was taking Possium Citrate at the time.

They did a CT to look for blood clots in my lungs since i had just flown on a

plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So

now I have another CT coming up in June to make sure they are nothing to worry

about. I am going to have them also scan my kidneys to see if they can see a

tumor on the adrenals now. My endo wasnt even going to look again, but I felt

since it has been 3yr and I am getting blasted with a CT that they might as well

do it all at once. He agreed.

> >

> > My only real side effects from the drugs that are bothersome is

gynecomastia. However, that was starting before the Spirno. In fact, I had 2

mammograms and ultrasound to make sure i didnt have breast cancer starting or

something.

> >

> > A few questions:

> > Could the neuro be wrong in that all I was really suffering from was low

potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a

problem with the potassium channel. How about, just low potassium?

> >

> > I am only a 45 year old male. Can i really take these drugs the rest of my

life without it causing something else to go wrong? At the rate i am going I

fear I have a chest bigger than my wife in a few years time. I know that is just

cosmetic, but still annoying.

> >

> > Can the lung nodules be coming from anything related to these conditions or

meds?

> >

> > My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of

that, or is it just blocking it from having much impact?

> >

> > Thanks again for reading this long post and I appreciate being part of the

group. I have learned alot just from reading the discussion threads.

> >

> >

>

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It would help to give all test results with lab ranges. All meds you take or

meds you were taking at the time lab were done.

>

> This is my first post, so i thought i would give a little background on my

diagnosis process. Sorry if it is a bit long.

>

> I originally went to my family doctor in 1/2007 because of muscle twitching.

All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was

fearing I had ALS. All my local docs came up with was that I had Secondary

HyperParathyroidism and possible PA.I eventually gave up on my local docs and

went to Mayo Clinic. Mayro ran me through a ton of tests including DEX

suppression. They couldnt explain the random/constant muscle twitching for

certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation

Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS.

>

> Blood work issues:

> Low Vitamin D (actually one endo told me i literally had almost nothing in my

body)

> Low normal calcium

> Low Ionized Calcium

> Low Potassium

> Low Magnesium

> Low renin /High Aldesterone (it was like 26 before any meds)

> High Parathyroid hormone

>

>

> My Endo at mayo concluded that I had mutiple things going on. I was told I had

a renal calcium leak that was causing the secondary Hyper parathyroidism, and

possible PA that was causing me high ALDO and Low renin and low normal

potassium. My BP was slightly elevated but rarely ever more than 140/100. I also

had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia

at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it

was advised that it wasnt worth the risk since I seemed to have such a slight

case and no visable tumors. The CT showed my right kidney has a birth defect. It

was going to split into 2 kidneys, but didnt. SO it is oversized and has a

duplicate collecting system. I also have scaring on the lower pole of that

kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic

syndrome. I also pass alot of urine (I almost always top of the 24 hr collection

jug). I have to not over drink on

> the collection days or I will need a 2nd jug. I am almost always thirsty.

Sometime unquenchable, but usually not.

>

> As far as treatment - I switched to a local endocrinologist that actually

worked with my Mayo doctor for his 2 yr residence. He has settled on the

following meds that seems to be keeping me in the normal ranges on things

>

> 25mg Hydroclorathyzide

> 50mg Spirnolactone

> 100,000IU of VitD

> 20meq of Potassium Chloride

> 1200mg Calcium

> 500mg Magnesium

> 40mg Omeprazole

>

> Even with all this, my potassium and magnesium are still low normal range. My

Vit D level hovers around the 40's.

>

> I slowly stopped the twitching over that last 3 years on this drug cocktail

mix and my muscle pain/weakness is much better, but i still feel off. I am a

singer and the diuretics do not help my voice as all.

>

> June 2010 I ended up in ER thinking i might be having a heart problem. It

turned out to be GERD related becuase I was taking Possium Citrate at the time.

They did a CT to look for blood clots in my lungs since i had just flown on a

plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So

now I have another CT coming up in June to make sure they are nothing to worry

about. I am going to have them also scan my kidneys to see if they can see a

tumor on the adrenals now. My endo wasnt even going to look again, but I felt

since it has been 3yr and I am getting blasted with a CT that they might as well

do it all at once. He agreed.

>

> My only real side effects from the drugs that are bothersome is gynecomastia.

However, that was starting before the Spirno. In fact, I had 2 mammograms and

ultrasound to make sure i didnt have breast cancer starting or something.

>

> A few questions:

> Could the neuro be wrong in that all I was really suffering from was low

potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a

problem with the potassium channel. How about, just low potassium?

>

> I am only a 45 year old male. Can i really take these drugs the rest of my

life without it causing something else to go wrong? At the rate i am going I

fear I have a chest bigger than my wife in a few years time. I know that is just

cosmetic, but still annoying.

>

> Can the lung nodules be coming from anything related to these conditions or

meds?

>

> My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of

that, or is it just blocking it from having much impact?

>

> Thanks again for reading this long post and I appreciate being part of the

group. I have learned alot just from reading the discussion threads.

>

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Right never give us "low" etc. Always need numbers and normal values.We are not mind readers.Also get a thumbnail of who you are for us.Most likely all of your problems are related to PA. So focus on that first. Others will likely go away.Keep us posted.DASH first and then if K and BP not normal in 2 weeks start spiro and keep DASHingBut check with your Drs. CE Grim MDOn Apr 10, 2011, at 9:19 AM, Francis Bill SUSPECTED PA wrote:It would help to give all test results with lab ranges. All meds you take or meds you were taking at the time lab were done. >> This is my first post, so i thought i would give a little background on my diagnosis process. Sorry if it is a bit long.> > I originally went to my family doctor in 1/2007 because of muscle twitching. All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was fearing I had ALS. All my local docs came up with was that I had Secondary HyperParathyroidism and possible PA.I eventually gave up on my local docs and went to Mayo Clinic. Mayro ran me through a ton of tests including DEX suppression. They couldnt explain the random/constant muscle twitching for certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS. > > Blood work issues:> Low Vitamin D (actually one endo told me i literally had almost nothing in my body)> Low normal calcium> Low Ionized Calcium> Low Potassium> Low Magnesium> Low renin /High Aldesterone (it was like 26 before any meds)> High Parathyroid hormone> > > My Endo at mayo concluded that I had mutiple things going on. I was told I had a renal calcium leak that was causing the secondary Hyper parathyroidism, and possible PA that was causing me high ALDO and Low renin and low normal potassium. My BP was slightly elevated but rarely ever more than 140/100. I also had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it was advised that it wasnt worth the risk since I seemed to have such a slight case and no visable tumors. The CT showed my right kidney has a birth defect. It was going to split into 2 kidneys, but didnt. SO it is oversized and has a duplicate collecting system. I also have scaring on the lower pole of that kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I also pass alot of urine (I almost always top of the 24 hr collection jug). I have to not over drink on> the collection days or I will need a 2nd jug. I am almost always thirsty. Sometime unquenchable, but usually not.> > As far as treatment - I switched to a local endocrinologist that actually worked with my Mayo doctor for his 2 yr residence. He has settled on the following meds that seems to be keeping me in the normal ranges on things> > 25mg Hydroclorathyzide> 50mg Spirnolactone> 100,000IU of VitD> 20meq of Potassium Chloride> 1200mg Calcium> 500mg Magnesium> 40mg Omeprazole> > Even with all this, my potassium and magnesium are still low normal range. My Vit D level hovers around the 40's.> > I slowly stopped the twitching over that last 3 years on this drug cocktail mix and my muscle pain/weakness is much better, but i still feel off. I am a singer and the diuretics do not help my voice as all.> > June 2010 I ended up in ER thinking i might be having a heart problem. It turned out to be GERD related becuase I was taking Possium Citrate at the time. They did a CT to look for blood clots in my lungs since i had just flown on a plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So now I have another CT coming up in June to make sure they are nothing to worry about. I am going to have them also scan my kidneys to see if they can see a tumor on the adrenals now. My endo wasnt even going to look again, but I felt since it has been 3yr and I am getting blasted with a CT that they might as well do it all at once. He agreed. > > My only real side effects from the drugs that are bothersome is gynecomastia. However, that was starting before the Spirno. In fact, I had 2 mammograms and ultrasound to make sure i didnt have breast cancer starting or something.> > A few questions:> Could the neuro be wrong in that all I was really suffering from was low potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a problem with the potassium channel. How about, just low potassium?> > I am only a 45 year old male. Can i really take these drugs the rest of my life without it causing something else to go wrong? At the rate i am going I fear I have a chest bigger than my wife in a few years time. I know that is just cosmetic, but still annoying.> > Can the lung nodules be coming from anything related to these conditions or meds?> > My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of that, or is it just blocking it from having much impact? > > Thanks again for reading this long post and I appreciate being part of the group. I have learned alot just from reading the discussion threads.>

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Sure - Here is what my last workups came in at in Nov 2010

Calcium Ionized 1.20 (1.19-1.30 mmol/L)

Calcium 9.2 (8.5-10.5 mg/dL)

PTH, Intact 64 (15-65 pg/ml)

Phosphorus 3.4 (2.5-4.7 mg/dL)

Creatine 1.09 (.50-1.30 mg/dL)

Vitamin D Total 44.6 (30.0-80.0 ng/ML)

Magnesium 1.9 (1.8-2.6 mg/dL)

Potassium 4.1 (3.5-5.1 mmol/L)

Fasting Glucose 129 (65-100 mg/dL)

HBA1C 6.1 (<6.4 %)

My Meds at the Nov 2010 time (and still are)

> > 25mg Hydroclorathyzide

> > 50mg Spirnolactone

> > 100,000IU of VitD per week

> > 20meq of Potassium Chloride

> > 1200mg Calcium

> > 500mg Magnesium

> > 40mg Omeprazole

Here are some of the labs from before I was being treated with meds at all at

the time. 7/2007 There a a tons in between, but this is a little of the before

picture. I the midst of my muscle twitching all over my body. It was a horrible

time.

RENIN ACTIVITY, PLASMA 0.8 (undefined NG/ML/HR)

Aldosterone, Serum 21.0 (1.0-21.0 ng/dL)

Glucose Tolerance, 2hr 135 (65-140 mg/dL)

Fasting Glucose 89 (65-100 mg/dL)

Magnesium 1.9 (1.8-2.6 mg/dL)

Magnesium 24hr urine 176 (28-180 MG/24H)

Albumin 4.3 (3.5-5.0 g/dL)

Phosphorus 3.4 (2.5-4.7 mg/dL)

Calcium Ionized 1.16 (1.19-1.30 mmol/L)

Calcium 8.8 (8.5-10.5 mg/dL)

Sodium 1.42 (135-145 mmol/L)

Potassium 3.4 (3.5-5.1 mmol/L)

Potassium timed Urine 78 (25-125 mmol/24HR)

Creatine 1.0 (.50-1.30 mg/dL)

PTH, Intact 100 (15-65 pg/mL)

Vitamin D Total 24 (25.0-80.0 ng/ML)

> >

> > This is my first post, so i thought i would give a little background on my

diagnosis process. Sorry if it is a bit long.

> >

> > I originally went to my family doctor in 1/2007 because of muscle twitching.

All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was

fearing I had ALS. All my local docs came up with was that I had Secondary

HyperParathyroidism and possible PA.I eventually gave up on my local docs and

went to Mayo Clinic. Mayro ran me through a ton of tests including DEX

suppression. They couldnt explain the random/constant muscle twitching for

certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation

Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS.

> >

> > Blood work issues:

> > Low Vitamin D (actually one endo told me i literally had almost nothing in

my body)

> > Low normal calcium

> > Low Ionized Calcium

> > Low Potassium

> > Low Magnesium

> > Low renin /High Aldesterone (it was like 26 before any meds)

> > High Parathyroid hormone

> >

> >

> > My Endo at mayo concluded that I had mutiple things going on. I was told I

had a renal calcium leak that was causing the secondary Hyper parathyroidism,

and possible PA that was causing me high ALDO and Low renin and low normal

potassium. My BP was slightly elevated but rarely ever more than 140/100. I also

had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia

at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it

was advised that it wasnt worth the risk since I seemed to have such a slight

case and no visable tumors. The CT showed my right kidney has a birth defect. It

was going to split into 2 kidneys, but didnt. SO it is oversized and has a

duplicate collecting system. I also have scaring on the lower pole of that

kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic

syndrome. I also pass alot of urine (I almost always top of the 24 hr collection

jug). I have to not over drink on

> > the collection days or I will need a 2nd jug. I am almost always thirsty.

Sometime unquenchable, but usually not.

> >

> > As far as treatment - I switched to a local endocrinologist that actually

worked with my Mayo doctor for his 2 yr residence. He has settled on the

following meds that seems to be keeping me in the normal ranges on things

> >

> > 25mg Hydroclorathyzide

> > 50mg Spirnolactone

> > 100,000IU of VitD

> > 20meq of Potassium Chloride

> > 1200mg Calcium

> > 500mg Magnesium

> > 40mg Omeprazole

> >

> > Even with all this, my potassium and magnesium are still low normal range.

My Vit D level hovers around the 40's.

> >

> > I slowly stopped the twitching over that last 3 years on this drug cocktail

mix and my muscle pain/weakness is much better, but i still feel off. I am a

singer and the diuretics do not help my voice as all.

> >

> > June 2010 I ended up in ER thinking i might be having a heart problem. It

turned out to be GERD related becuase I was taking Possium Citrate at the time.

They did a CT to look for blood clots in my lungs since i had just flown on a

plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So

now I have another CT coming up in June to make sure they are nothing to worry

about. I am going to have them also scan my kidneys to see if they can see a

tumor on the adrenals now. My endo wasnt even going to look again, but I felt

since it has been 3yr and I am getting blasted with a CT that they might as well

do it all at once. He agreed.

> >

> > My only real side effects from the drugs that are bothersome is

gynecomastia. However, that was starting before the Spirno. In fact, I had 2

mammograms and ultrasound to make sure i didnt have breast cancer starting or

something.

> >

> > A few questions:

> > Could the neuro be wrong in that all I was really suffering from was low

potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a

problem with the potassium channel. How about, just low potassium?

> >

> > I am only a 45 year old male. Can i really take these drugs the rest of my

life without it causing something else to go wrong? At the rate i am going I

fear I have a chest bigger than my wife in a few years time. I know that is just

cosmetic, but still annoying.

> >

> > Can the lung nodules be coming from anything related to these conditions or

meds?

> >

> > My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of

that, or is it just blocking it from having much impact?

> >

> > Thanks again for reading this long post and I appreciate being part of the

group. I have learned alot just from reading the discussion threads.

> >

>

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Sure - Here is what my last workups came in at in Nov 2010Calcium Ionized 1.20 (1.19-1.30 mmol/L)NormalCalcium 9.2 (8.5-10.5 mg/dL)NormalPTH, Intact 64 (15-65 pg/ml)NormalPhosphorus 3.4 (2.5-4.7 mg/dL)NormalCreatine 1.09 (.50-1.30 mg/dL)you prob mean creatinineVitamin D Total 44.6 (30.0-80.0 ng/ML)Good Magnesium 1.9 (1.8-2.6 mg/dL)NormalPotassium 4.1 (3.5-5.1 mmol/L)Fasting Glucose 129 (65-100 mg/dL)High unless you were not fasting for 12 hrs before being drawn.HBA1C 6.1 (<6.4 %)How old are you? Thumbnail???????My Meds at the Nov 2010 time (and still are)> > 25mg Hydroclorathyzide> > 50mg Spirnolactone> > 100,000IU of VitD per week> > 20meq of Potassium Chloride> > 1200mg Calcium> > 500mg Magnesium> > 40mg OmeprazoleHere are some of the labs from before I was being treated with meds at all at the time. 7/2007 There a a tons in between, but this is a little of the before picture. I the midst of my muscle twitching all over my body. It was a horrible time.RENIN ACTIVITY, PLASMA 0.8 (undefined NG/ML/HR)Aldosterone, Serum 21.0 (1.0-21.0 ng/dL)Glucose Tolerance, 2hr 135 (65-140 mg/dL)Fasting Glucose 89 (65-100 mg/dL)Magnesium 1.9 (1.8-2.6 mg/dL)Magnesium 24hr urine 176 (28-180 MG/24H)Albumin 4.3 (3.5-5.0 g/dL)Phosphorus 3.4 (2.5-4.7 mg/dL)Calcium Ionized 1.16 (1.19-1.30 mmol/L)Calcium 8.8 (8.5-10.5 mg/dL)Sodium 1.42 (135-145 mmol/L)Potassium 3.4 (3.5-5.1 mmol/L)Potassium timed Urine 78 (25-125 mmol/24HR)Creatine 1.0 (.50-1.30 mg/dL)PTH, Intact 100 (15-65 pg/mL)Vitamin D Total 24 (25.0-80.0 ng/ML)You have PA and seem at least since 2007CE Grim MD> >> > This is my first post, so i thought i would give a little background on my diagnosis process. Sorry if it is a bit long.> > > > I originally went to my family doctor in 1/2007 because of muscle twitching. All kinds of blood tests, doc visits, neurologists, emgs, you name it. I was fearing I had ALS. All my local docs came up with was that I had Secondary HyperParathyroidism and possible PA.I eventually gave up on my local docs and went to Mayo Clinic. Mayro ran me through a ton of tests including DEX suppression. They couldnt explain the random/constant muscle twitching for certain, but the Mayo Neuro that ran the last emg said Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he was 100% sure it wasnt ALS. > > > > Blood work issues:> > Low Vitamin D (actually one endo told me i literally had almost nothing in my body)> > Low normal calcium> > Low Ionized Calcium> > Low Potassium> > Low Magnesium> > Low renin /High Aldesterone (it was like 26 before any meds)> > High Parathyroid hormone> > > > > > My Endo at mayo concluded that I had mutiple things going on. I was told I had a renal calcium leak that was causing the secondary Hyper parathyroidism, and possible PA that was causing me high ALDO and Low renin and low normal potassium. My BP was slightly elevated but rarely ever more than 140/100. I also had alot of muscle pain, but not cramping. I even was diagosed with fibromyalgia at Mayo. They did CT scans and didnt find any tumors. I was offered AVS, but it was advised that it wasnt worth the risk since I seemed to have such a slight case and no visable tumors. The CT showed my right kidney has a birth defect. It was going to split into 2 kidneys, but didnt. SO it is oversized and has a duplicate collecting system. I also have scaring on the lower pole of that kidney. I am slow borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I also pass alot of urine (I almost always top of the 24 hr collection jug). I have to not over drink on> > the collection days or I will need a 2nd jug. I am almost always thirsty. Sometime unquenchable, but usually not.> > > > As far as treatment - I switched to a local endocrinologist that actually worked with my Mayo doctor for his 2 yr residence. He has settled on the following meds that seems to be keeping me in the normal ranges on things> > > > 25mg Hydroclorathyzide> > 50mg Spirnolactone> > 100,000IU of VitD> > 20meq of Potassium Chloride> > 1200mg Calcium> > 500mg Magnesium> > 40mg Omeprazole> > > > Even with all this, my potassium and magnesium are still low normal range. My Vit D level hovers around the 40's.> > > > I slowly stopped the twitching over that last 3 years on this drug cocktail mix and my muscle pain/weakness is much better, but i still feel off. I am a singer and the diuretics do not help my voice as all.> > > > June 2010 I ended up in ER thinking i might be having a heart problem. It turned out to be GERD related becuase I was taking Possium Citrate at the time. They did a CT to look for blood clots in my lungs since i had just flown on a plane. Not clots, but found 3 nodules in my right lung ( all 5mm or less). So now I have another CT coming up in June to make sure they are nothing to worry about. I am going to have them also scan my kidneys to see if they can see a tumor on the adrenals now. My endo wasnt even going to look again, but I felt since it has been 3yr and I am getting blasted with a CT that they might as well do it all at once. He agreed. > > > > My only real side effects from the drugs that are bothersome is gynecomastia. However, that was starting before the Spirno. In fact, I had 2 mammograms and ultrasound to make sure i didnt have breast cancer starting or something.> > > > A few questions:> > Could the neuro be wrong in that all I was really suffering from was low potassium? I asked him what Cramp Fasiculation Syndrome was and he told me a problem with the potassium channel. How about, just low potassium?> > > > I am only a 45 year old male. Can i really take these drugs the rest of my life without it causing something else to go wrong? At the rate i am going I fear I have a chest bigger than my wife in a few years time. I know that is just cosmetic, but still annoying.> > > > Can the lung nodules be coming from anything related to these conditions or meds?> > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone take care of that, or is it just blocking it from having much impact? > > > > Thanks again for reading this long post and I appreciate being part of the group. I have learned alot just from reading the discussion threads.> >>

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I am 45 years old

> > > >

> > > > This is my first post, so i thought i would give a little

> > background on my diagnosis process. Sorry if it is a bit long.

> > > >

> > > > I originally went to my family doctor in 1/2007 because of

> > muscle twitching. All kinds of blood tests, doc visits,

> > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > local docs came up with was that I had Secondary HyperParathyroidism

> > and possible PA.I eventually gave up on my local docs and went to

> > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > suppression. They couldnt explain the random/constant muscle

> > twitching for certain, but the Mayo Neuro that ran the last emg said

> > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he

> > was 100% sure it wasnt ALS.

> > > >

> > > > Blood work issues:

> > > > Low Vitamin D (actually one endo told me i literally had almost

> > nothing in my body)

> > > > Low normal calcium

> > > > Low Ionized Calcium

> > > > Low Potassium

> > > > Low Magnesium

> > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > High Parathyroid hormone

> > > >

> > > >

> > > > My Endo at mayo concluded that I had mutiple things going on. I

> > was told I had a renal calcium leak that was causing the secondary

> > Hyper parathyroidism, and possible PA that was causing me high ALDO

> > and Low renin and low normal potassium. My BP was slightly elevated

> > but rarely ever more than 140/100. I also had alot of muscle pain,

> > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > They did CT scans and didnt find any tumors. I was offered AVS, but

> > it was advised that it wasnt worth the risk since I seemed to have

> > such a slight case and no visable tumors. The CT showed my right

> > kidney has a birth defect. It was going to split into 2 kidneys, but

> > didnt. SO it is oversized and has a duplicate collecting system. I

> > also have scaring on the lower pole of that kidney. I am slow

> > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I

> > also pass alot of urine (I almost always top of the 24 hr collection

> > jug). I have to not over drink on

> > > > the collection days or I will need a 2nd jug. I am almost always

> > thirsty. Sometime unquenchable, but usually not.

> > > >

> > > > As far as treatment - I switched to a local endocrinologist that

> > actually worked with my Mayo doctor for his 2 yr residence. He has

> > settled on the following meds that seems to be keeping me in the

> > normal ranges on things

> > > >

> > > > 25mg Hydroclorathyzide

> > > > 50mg Spirnolactone

> > > > 100,000IU of VitD

> > > > 20meq of Potassium Chloride

> > > > 1200mg Calcium

> > > > 500mg Magnesium

> > > > 40mg Omeprazole

> > > >

> > > > Even with all this, my potassium and magnesium are still low

> > normal range. My Vit D level hovers around the 40's.

> > > >

> > > > I slowly stopped the twitching over that last 3 years on this

> > drug cocktail mix and my muscle pain/weakness is much better, but i

> > still feel off. I am a singer and the diuretics do not help my voice

> > as all.

> > > >

> > > > June 2010 I ended up in ER thinking i might be having a heart

> > problem. It turned out to be GERD related becuase I was taking

> > Possium Citrate at the time. They did a CT to look for blood clots

> > in my lungs since i had just flown on a plane. Not clots, but found

> > 3 nodules in my right lung ( all 5mm or less). So now I have another

> > CT coming up in June to make sure they are nothing to worry about. I

> > am going to have them also scan my kidneys to see if they can see a

> > tumor on the adrenals now. My endo wasnt even going to look again,

> > but I felt since it has been 3yr and I am getting blasted with a CT

> > that they might as well do it all at once. He agreed.

> > > >

> > > > My only real side effects from the drugs that are bothersome is

> > gynecomastia. However, that was starting before the Spirno. In fact,

> > I had 2 mammograms and ultrasound to make sure i didnt have breast

> > cancer starting or something.

> > > >

> > > > A few questions:

> > > > Could the neuro be wrong in that all I was really suffering from

> > was low potassium? I asked him what Cramp Fasiculation Syndrome was

> > and he told me a problem with the potassium channel. How about, just

> > low potassium?

> > > >

> > > > I am only a 45 year old male. Can i really take these drugs the

> > rest of my life without it causing something else to go wrong? At

> > the rate i am going I fear I have a chest bigger than my wife in a

> > few years time. I know that is just cosmetic, but still annoying.

> > > >

> > > > Can the lung nodules be coming from anything related to these

> > conditions or meds?

> > > >

> > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone

> > take care of that, or is it just blocking it from having much impact?

> > > >

> > > > Thanks again for reading this long post and I appreciate being

> > part of the group. I have learned alot just from reading the

> > discussion threads.

> > > >

> > >

> >

> >

> >

>

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And your thumbnail is?CE Grim MDI am 45 years old> > > >> > > > This is my first post, so i thought i would give a little > > background on my diagnosis process. Sorry if it is a bit long.> > > >> > > > I originally went to my family doctor in 1/2007 because of > > muscle twitching. All kinds of blood tests, doc visits, > > neurologists, emgs, you name it. I was fearing I had ALS. All my > > local docs came up with was that I had Secondary HyperParathyroidism > > and possible PA.I eventually gave up on my local docs and went to > > Mayo Clinic. Mayro ran me through a ton of tests including DEX > > suppression. They couldnt explain the random/constant muscle > > twitching for certain, but the Mayo Neuro that ran the last emg said > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he > > was 100% sure it wasnt ALS.> > > >> > > > Blood work issues:> > > > Low Vitamin D (actually one endo told me i literally had almost > > nothing in my body)> > > > Low normal calcium> > > > Low Ionized Calcium> > > > Low Potassium> > > > Low Magnesium> > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > High Parathyroid hormone> > > >> > > >> > > > My Endo at mayo concluded that I had mutiple things going on. I > > was told I had a renal calcium leak that was causing the secondary > > Hyper parathyroidism, and possible PA that was causing me high ALDO > > and Low renin and low normal potassium. My BP was slightly elevated > > but rarely ever more than 140/100. I also had alot of muscle pain, > > but not cramping. I even was diagosed with fibromyalgia at Mayo. > > They did CT scans and didnt find any tumors. I was offered AVS, but > > it was advised that it wasnt worth the risk since I seemed to have > > such a slight case and no visable tumors. The CT showed my right > > kidney has a birth defect. It was going to split into 2 kidneys, but > > didnt. SO it is oversized and has a duplicate collecting system. I > > also have scaring on the lower pole of that kidney. I am slow > > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I > > also pass alot of urine (I almost always top of the 24 hr collection > > jug). I have to not over drink on> > > > the collection days or I will need a 2nd jug. I am almost always > > thirsty. Sometime unquenchable, but usually not.> > > >> > > > As far as treatment - I switched to a local endocrinologist that > > actually worked with my Mayo doctor for his 2 yr residence. He has > > settled on the following meds that seems to be keeping me in the > > normal ranges on things> > > >> > > > 25mg Hydroclorathyzide> > > > 50mg Spirnolactone> > > > 100,000IU of VitD> > > > 20meq of Potassium Chloride> > > > 1200mg Calcium> > > > 500mg Magnesium> > > > 40mg Omeprazole> > > >> > > > Even with all this, my potassium and magnesium are still low > > normal range. My Vit D level hovers around the 40's.> > > >> > > > I slowly stopped the twitching over that last 3 years on this > > drug cocktail mix and my muscle pain/weakness is much better, but i > > still feel off. I am a singer and the diuretics do not help my voice > > as all.> > > >> > > > June 2010 I ended up in ER thinking i might be having a heart > > problem. It turned out to be GERD related becuase I was taking > > Possium Citrate at the time. They did a CT to look for blood clots > > in my lungs since i had just flown on a plane. Not clots, but found > > 3 nodules in my right lung ( all 5mm or less). So now I have another > > CT coming up in June to make sure they are nothing to worry about. I > > am going to have them also scan my kidneys to see if they can see a > > tumor on the adrenals now. My endo wasnt even going to look again, > > but I felt since it has been 3yr and I am getting blasted with a CT > > that they might as well do it all at once. He agreed.> > > >> > > > My only real side effects from the drugs that are bothersome is > > gynecomastia. However, that was starting before the Spirno. In fact, > > I had 2 mammograms and ultrasound to make sure i didnt have breast > > cancer starting or something.> > > >> > > > A few questions:> > > > Could the neuro be wrong in that all I was really suffering from > > was low potassium? I asked him what Cramp Fasiculation Syndrome was > > and he told me a problem with the potassium channel. How about, just > > low potassium?> > > >> > > > I am only a 45 year old male. Can i really take these drugs the > > rest of my life without it causing something else to go wrong? At > > the rate i am going I fear I have a chest bigger than my wife in a > > few years time. I know that is just cosmetic, but still annoying.> > > >> > > > Can the lung nodules be coming from anything related to these > > conditions or meds?> > > >> > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone > > take care of that, or is it just blocking it from having much impact?> > > >> > > > Thanks again for reading this long post and I appreciate being > > part of the group. I have learned alot just from reading the > > discussion threads.> > > >> > >> >> >> >>

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Dr Grim looking at the before and after meds test do you think he has a Renal

Calcium Leak or HyperParathyroidism?

> > > >

> > > > This is my first post, so i thought i would give a little

> > background on my diagnosis process. Sorry if it is a bit long.

> > > >

> > > > I originally went to my family doctor in 1/2007 because of

> > muscle twitching. All kinds of blood tests, doc visits,

> > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > local docs came up with was that I had Secondary HyperParathyroidism

> > and possible PA.I eventually gave up on my local docs and went to

> > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > suppression. They couldnt explain the random/constant muscle

> > twitching for certain, but the Mayo Neuro that ran the last emg said

> > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he

> > was 100% sure it wasnt ALS.

> > > >

> > > > Blood work issues:

> > > > Low Vitamin D (actually one endo told me i literally had almost

> > nothing in my body)

> > > > Low normal calcium

> > > > Low Ionized Calcium

> > > > Low Potassium

> > > > Low Magnesium

> > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > High Parathyroid hormone

> > > >

> > > >

> > > > My Endo at mayo concluded that I had mutiple things going on. I

> > was told I had a renal calcium leak that was causing the secondary

> > Hyper parathyroidism, and possible PA that was causing me high ALDO

> > and Low renin and low normal potassium. My BP was slightly elevated

> > but rarely ever more than 140/100. I also had alot of muscle pain,

> > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > They did CT scans and didnt find any tumors. I was offered AVS, but

> > it was advised that it wasnt worth the risk since I seemed to have

> > such a slight case and no visable tumors. The CT showed my right

> > kidney has a birth defect. It was going to split into 2 kidneys, but

> > didnt. SO it is oversized and has a duplicate collecting system. I

> > also have scaring on the lower pole of that kidney. I am slow

> > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I

> > also pass alot of urine (I almost always top of the 24 hr collection

> > jug). I have to not over drink on

> > > > the collection days or I will need a 2nd jug. I am almost always

> > thirsty. Sometime unquenchable, but usually not.

> > > >

> > > > As far as treatment - I switched to a local endocrinologist that

> > actually worked with my Mayo doctor for his 2 yr residence. He has

> > settled on the following meds that seems to be keeping me in the

> > normal ranges on things

> > > >

> > > > 25mg Hydroclorathyzide

> > > > 50mg Spirnolactone

> > > > 100,000IU of VitD

> > > > 20meq of Potassium Chloride

> > > > 1200mg Calcium

> > > > 500mg Magnesium

> > > > 40mg Omeprazole

> > > >

> > > > Even with all this, my potassium and magnesium are still low

> > normal range. My Vit D level hovers around the 40's.

> > > >

> > > > I slowly stopped the twitching over that last 3 years on this

> > drug cocktail mix and my muscle pain/weakness is much better, but i

> > still feel off. I am a singer and the diuretics do not help my voice

> > as all.

> > > >

> > > > June 2010 I ended up in ER thinking i might be having a heart

> > problem. It turned out to be GERD related becuase I was taking

> > Possium Citrate at the time. They did a CT to look for blood clots

> > in my lungs since i had just flown on a plane. Not clots, but found

> > 3 nodules in my right lung ( all 5mm or less). So now I have another

> > CT coming up in June to make sure they are nothing to worry about. I

> > am going to have them also scan my kidneys to see if they can see a

> > tumor on the adrenals now. My endo wasnt even going to look again,

> > but I felt since it has been 3yr and I am getting blasted with a CT

> > that they might as well do it all at once. He agreed.

> > > >

> > > > My only real side effects from the drugs that are bothersome is

> > gynecomastia. However, that was starting before the Spirno. In fact,

> > I had 2 mammograms and ultrasound to make sure i didnt have breast

> > cancer starting or something.

> > > >

> > > > A few questions:

> > > > Could the neuro be wrong in that all I was really suffering from

> > was low potassium? I asked him what Cramp Fasiculation Syndrome was

> > and he told me a problem with the potassium channel. How about, just

> > low potassium?

> > > >

> > > > I am only a 45 year old male. Can i really take these drugs the

> > rest of my life without it causing something else to go wrong? At

> > the rate i am going I fear I have a chest bigger than my wife in a

> > few years time. I know that is just cosmetic, but still annoying.

> > > >

> > > > Can the lung nodules be coming from anything related to these

> > conditions or meds?

> > > >

> > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone

> > take care of that, or is it just blocking it from having much impact?

> > > >

> > > > Thanks again for reading this long post and I appreciate being

> > part of the group. I have learned alot just from reading the

> > discussion threads.

> > > >

> > >

> >

> >

> >

>

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Posted

I am not sure what you mean by Thumbnail?

> > > > > >

> > > > > > This is my first post, so i thought i would give a little

> > > > background on my diagnosis process. Sorry if it is a bit long.

> > > > > >

> > > > > > I originally went to my family doctor in 1/2007 because of

> > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > > > local docs came up with was that I had Secondary

> > HyperParathyroidism

> > > > and possible PA.I eventually gave up on my local docs and went to

> > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > > suppression. They couldnt explain the random/constant muscle

> > > > twitching for certain, but the Mayo Neuro that ran the last emg

> > said

> > > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he

> > > > was 100% sure it wasnt ALS.

> > > > > >

> > > > > > Blood work issues:

> > > > > > Low Vitamin D (actually one endo told me i literally had

> > almost

> > > > nothing in my body)

> > > > > > Low normal calcium

> > > > > > Low Ionized Calcium

> > > > > > Low Potassium

> > > > > > Low Magnesium

> > > > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > > > High Parathyroid hormone

> > > > > >

> > > > > >

> > > > > > My Endo at mayo concluded that I had mutiple things going

> > on. I

> > > > was told I had a renal calcium leak that was causing the secondary

> > > > Hyper parathyroidism, and possible PA that was causing me high

> > ALDO

> > > > and Low renin and low normal potassium. My BP was slightly

> > elevated

> > > > but rarely ever more than 140/100. I also had alot of muscle pain,

> > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > > > They did CT scans and didnt find any tumors. I was offered AVS,

> > but

> > > > it was advised that it wasnt worth the risk since I seemed to have

> > > > such a slight case and no visable tumors. The CT showed my right

> > > > kidney has a birth defect. It was going to split into 2 kidneys,

> > but

> > > > didnt. SO it is oversized and has a duplicate collecting system. I

> > > > also have scaring on the lower pole of that kidney. I am slow

> > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > syndrome. I

> > > > also pass alot of urine (I almost always top of the 24 hr

> > collection

> > > > jug). I have to not over drink on

> > > > > > the collection days or I will need a 2nd jug. I am almost

> > always

> > > > thirsty. Sometime unquenchable, but usually not.

> > > > > >

> > > > > > As far as treatment - I switched to a local endocrinologist

> > that

> > > > actually worked with my Mayo doctor for his 2 yr residence. He has

> > > > settled on the following meds that seems to be keeping me in the

> > > > normal ranges on things

> > > > > >

> > > > > > 25mg Hydroclorathyzide

> > > > > > 50mg Spirnolactone

> > > > > > 100,000IU of VitD

> > > > > > 20meq of Potassium Chloride

> > > > > > 1200mg Calcium

> > > > > > 500mg Magnesium

> > > > > > 40mg Omeprazole

> > > > > >

> > > > > > Even with all this, my potassium and magnesium are still low

> > > > normal range. My Vit D level hovers around the 40's.

> > > > > >

> > > > > > I slowly stopped the twitching over that last 3 years on this

> > > > drug cocktail mix and my muscle pain/weakness is much better,

> > but i

> > > > still feel off. I am a singer and the diuretics do not help my

> > voice

> > > > as all.

> > > > > >

> > > > > > June 2010 I ended up in ER thinking i might be having a heart

> > > > problem. It turned out to be GERD related becuase I was taking

> > > > Possium Citrate at the time. They did a CT to look for blood clots

> > > > in my lungs since i had just flown on a plane. Not clots, but

> > found

> > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > another

> > > > CT coming up in June to make sure they are nothing to worry

> > about. I

> > > > am going to have them also scan my kidneys to see if they can

> > see a

> > > > tumor on the adrenals now. My endo wasnt even going to look again,

> > > > but I felt since it has been 3yr and I am getting blasted with a

> > CT

> > > > that they might as well do it all at once. He agreed.

> > > > > >

> > > > > > My only real side effects from the drugs that are bothersome

> > is

> > > > gynecomastia. However, that was starting before the Spirno. In

> > fact,

> > > > I had 2 mammograms and ultrasound to make sure i didnt have breast

> > > > cancer starting or something.

> > > > > >

> > > > > > A few questions:

> > > > > > Could the neuro be wrong in that all I was really suffering

> > from

> > > > was low potassium? I asked him what Cramp Fasiculation Syndrome

> > was

> > > > and he told me a problem with the potassium channel. How about,

> > just

> > > > low potassium?

> > > > > >

> > > > > > I am only a 45 year old male. Can i really take these drugs

> > the

> > > > rest of my life without it causing something else to go wrong? At

> > > > the rate i am going I fear I have a chest bigger than my wife in a

> > > > few years time. I know that is just cosmetic, but still annoying.

> > > > > >

> > > > > > Can the lung nodules be coming from anything related to these

> > > > conditions or meds?

> > > > > >

> > > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone

> > > > take care of that, or is it just blocking it from having much

> > impact?

> > > > > >

> > > > > > Thanks again for reading this long post and I appreciate being

> > > > part of the group. I have learned alot just from reading the

> > > > discussion threads.

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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I was diagnosed with secondary hyperparathyroidism. When I was on 50mg of HCTZ

PTH dropped like a rock. Since my doc and I trimmed it back to 25mg per day it

has slowly been climbing up. I dont want to take 50mg of HCTZ becuase it dries

out out vocal cords too much and makes me get up several time during the night.

At first they thought it might be Primary Hyperparathyroid at Mayo, but

determined renal calcium leak after the dramatic improvement on HCTZ. Phosphorus

has remained about the same the whole time. It was down to 32 until I trimmed

back to 25mg of HCTZ one time per day.

> > > > >

> > > > > This is my first post, so i thought i would give a little

> > > background on my diagnosis process. Sorry if it is a bit long.

> > > > >

> > > > > I originally went to my family doctor in 1/2007 because of

> > > muscle twitching. All kinds of blood tests, doc visits,

> > > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > > local docs came up with was that I had Secondary HyperParathyroidism

> > > and possible PA.I eventually gave up on my local docs and went to

> > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > suppression. They couldnt explain the random/constant muscle

> > > twitching for certain, but the Mayo Neuro that ran the last emg said

> > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he

> > > was 100% sure it wasnt ALS.

> > > > >

> > > > > Blood work issues:

> > > > > Low Vitamin D (actually one endo told me i literally had almost

> > > nothing in my body)

> > > > > Low normal calcium

> > > > > Low Ionized Calcium

> > > > > Low Potassium

> > > > > Low Magnesium

> > > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > > High Parathyroid hormone

> > > > >

> > > > >

> > > > > My Endo at mayo concluded that I had mutiple things going on. I

> > > was told I had a renal calcium leak that was causing the secondary

> > > Hyper parathyroidism, and possible PA that was causing me high ALDO

> > > and Low renin and low normal potassium. My BP was slightly elevated

> > > but rarely ever more than 140/100. I also had alot of muscle pain,

> > > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > > They did CT scans and didnt find any tumors. I was offered AVS, but

> > > it was advised that it wasnt worth the risk since I seemed to have

> > > such a slight case and no visable tumors. The CT showed my right

> > > kidney has a birth defect. It was going to split into 2 kidneys, but

> > > didnt. SO it is oversized and has a duplicate collecting system. I

> > > also have scaring on the lower pole of that kidney. I am slow

> > > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I

> > > also pass alot of urine (I almost always top of the 24 hr collection

> > > jug). I have to not over drink on

> > > > > the collection days or I will need a 2nd jug. I am almost always

> > > thirsty. Sometime unquenchable, but usually not.

> > > > >

> > > > > As far as treatment - I switched to a local endocrinologist that

> > > actually worked with my Mayo doctor for his 2 yr residence. He has

> > > settled on the following meds that seems to be keeping me in the

> > > normal ranges on things

> > > > >

> > > > > 25mg Hydroclorathyzide

> > > > > 50mg Spirnolactone

> > > > > 100,000IU of VitD

> > > > > 20meq of Potassium Chloride

> > > > > 1200mg Calcium

> > > > > 500mg Magnesium

> > > > > 40mg Omeprazole

> > > > >

> > > > > Even with all this, my potassium and magnesium are still low

> > > normal range. My Vit D level hovers around the 40's.

> > > > >

> > > > > I slowly stopped the twitching over that last 3 years on this

> > > drug cocktail mix and my muscle pain/weakness is much better, but i

> > > still feel off. I am a singer and the diuretics do not help my voice

> > > as all.

> > > > >

> > > > > June 2010 I ended up in ER thinking i might be having a heart

> > > problem. It turned out to be GERD related becuase I was taking

> > > Possium Citrate at the time. They did a CT to look for blood clots

> > > in my lungs since i had just flown on a plane. Not clots, but found

> > > 3 nodules in my right lung ( all 5mm or less). So now I have another

> > > CT coming up in June to make sure they are nothing to worry about. I

> > > am going to have them also scan my kidneys to see if they can see a

> > > tumor on the adrenals now. My endo wasnt even going to look again,

> > > but I felt since it has been 3yr and I am getting blasted with a CT

> > > that they might as well do it all at once. He agreed.

> > > > >

> > > > > My only real side effects from the drugs that are bothersome is

> > > gynecomastia. However, that was starting before the Spirno. In fact,

> > > I had 2 mammograms and ultrasound to make sure i didnt have breast

> > > cancer starting or something.

> > > > >

> > > > > A few questions:

> > > > > Could the neuro be wrong in that all I was really suffering from

> > > was low potassium? I asked him what Cramp Fasiculation Syndrome was

> > > and he told me a problem with the potassium channel. How about, just

> > > low potassium?

> > > > >

> > > > > I am only a 45 year old male. Can i really take these drugs the

> > > rest of my life without it causing something else to go wrong? At

> > > the rate i am going I fear I have a chest bigger than my wife in a

> > > few years time. I know that is just cosmetic, but still annoying.

> > > > >

> > > > > Can the lung nodules be coming from anything related to these

> > > conditions or meds?

> > > > >

> > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone

> > > take care of that, or is it just blocking it from having much impact?

> > > > >

> > > > > Thanks again for reading this long post and I appreciate being

> > > part of the group. I have learned alot just from reading the

> > > discussion threads.

> > > > >

> > > >

> > >

> > >

> > >

> >

>

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NO. Everything is in normal range. Again the biggest cause of a "renal calcium leak is eating too much salt. This is because volume expansion decrease proximal reabsrob of CA. Thus the leak. The best way to plug the "leak" is to plug the cause. Too much salt in diet but have not seem any numbers of how much is in the urine.CE Grim MDOn Apr 10, 2011, at 7:43 PM, Francis Bill SUSPECTED PA wrote:Dr Grim looking at the before and after meds test do you think he has a Renal Calcium Leak or HyperParathyroidism? > > > >> > > > This is my first post, so i thought i would give a little > > background on my diagnosis process. Sorry if it is a bit long.> > > >> > > > I originally went to my family doctor in 1/2007 because of > > muscle twitching. All kinds of blood tests, doc visits, > > neurologists, emgs, you name it. I was fearing I had ALS. All my > > local docs came up with was that I had Secondary HyperParathyroidism > > and possible PA.I eventually gave up on my local docs and went to > > Mayo Clinic. Mayro ran me through a ton of tests including DEX > > suppression. They couldnt explain the random/constant muscle > > twitching for certain, but the Mayo Neuro that ran the last emg said > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he > > was 100% sure it wasnt ALS.> > > >> > > > Blood work issues:> > > > Low Vitamin D (actually one endo told me i literally had almost > > nothing in my body)> > > > Low normal calcium> > > > Low Ionized Calcium> > > > Low Potassium> > > > Low Magnesium> > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > High Parathyroid hormone> > > >> > > >> > > > My Endo at mayo concluded that I had mutiple things going on. I > > was told I had a renal calcium leak that was causing the secondary > > Hyper parathyroidism, and possible PA that was causing me high ALDO > > and Low renin and low normal potassium. My BP was slightly elevated > > but rarely ever more than 140/100. I also had alot of muscle pain, > > but not cramping. I even was diagosed with fibromyalgia at Mayo. > > They did CT scans and didnt find any tumors. I was offered AVS, but > > it was advised that it wasnt worth the risk since I seemed to have > > such a slight case and no visable tumors. The CT showed my right > > kidney has a birth defect. It was going to split into 2 kidneys, but > > didnt. SO it is oversized and has a duplicate collecting system. I > > also have scaring on the lower pole of that kidney. I am slow > > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I > > also pass alot of urine (I almost always top of the 24 hr collection > > jug). I have to not over drink on> > > > the collection days or I will need a 2nd jug. I am almost always > > thirsty. Sometime unquenchable, but usually not.> > > >> > > > As far as treatment - I switched to a local endocrinologist that > > actually worked with my Mayo doctor for his 2 yr residence. He has > > settled on the following meds that seems to be keeping me in the > > normal ranges on things> > > >> > > > 25mg Hydroclorathyzide> > > > 50mg Spirnolactone> > > > 100,000IU of VitD> > > > 20meq of Potassium Chloride> > > > 1200mg Calcium> > > > 500mg Magnesium> > > > 40mg Omeprazole> > > >> > > > Even with all this, my potassium and magnesium are still low > > normal range. My Vit D level hovers around the 40's.> > > >> > > > I slowly stopped the twitching over that last 3 years on this > > drug cocktail mix and my muscle pain/weakness is much better, but i > > still feel off. I am a singer and the diuretics do not help my voice > > as all.> > > >> > > > June 2010 I ended up in ER thinking i might be having a heart > > problem. It turned out to be GERD related becuase I was taking > > Possium Citrate at the time. They did a CT to look for blood clots > > in my lungs since i had just flown on a plane. Not clots, but found > > 3 nodules in my right lung ( all 5mm or less). So now I have another > > CT coming up in June to make sure they are nothing to worry about. I > > am going to have them also scan my kidneys to see if they can see a > > tumor on the adrenals now. My endo wasnt even going to look again, > > but I felt since it has been 3yr and I am getting blasted with a CT > > that they might as well do it all at once. He agreed.> > > >> > > > My only real side effects from the drugs that are bothersome is > > gynecomastia. However, that was starting before the Spirno. In fact, > > I had 2 mammograms and ultrasound to make sure i didnt have breast > > cancer starting or something.> > > >> > > > A few questions:> > > > Could the neuro be wrong in that all I was really suffering from > > was low potassium? I asked him what Cramp Fasiculation Syndrome was > > and he told me a problem with the potassium channel. How about, just > > low potassium?> > > >> > > > I am only a 45 year old male. Can i really take these drugs the > > rest of my life without it causing something else to go wrong? At > > the rate i am going I fear I have a chest bigger than my wife in a > > few years time. I know that is just cosmetic, but still annoying.> > > >> > > > Can the lung nodules be coming from anything related to these > > conditions or meds?> > > >> > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone > > take care of that, or is it just blocking it from having much impact?> > > >> > > > Thanks again for reading this long post and I appreciate being > > part of the group. I have learned alot just from reading the > > discussion threads.> > > >> > >> >> >> >>

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age, ethnicitg, gender, sketch of where you are in the Dx process. so 67 W M HTN x yrs, low K x yrs, renin = aldo = scan showed drugs I am on now =So when I read this I can tell you apart from the other 500 folks here,CE Grim MDI am not sure what you mean by Thumbnail?> > > > > >> > > > > > This is my first post, so i thought i would give a little> > > > background on my diagnosis process. Sorry if it is a bit long.> > > > > >> > > > > > I originally went to my family doctor in 1/2007 because of> > > > muscle twitching. All kinds of blood tests, doc visits,> > > > neurologists, emgs, you name it. I was fearing I had ALS. All my> > > > local docs came up with was that I had Secondary > > HyperParathyroidism> > > > and possible PA.I eventually gave up on my local docs and went to> > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX> > > > suppression. They couldnt explain the random/constant muscle> > > > twitching for certain, but the Mayo Neuro that ran the last emg > > said> > > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he> > > > was 100% sure it wasnt ALS.> > > > > >> > > > > > Blood work issues:> > > > > > Low Vitamin D (actually one endo told me i literally had > > almost> > > > nothing in my body)> > > > > > Low normal calcium> > > > > > Low Ionized Calcium> > > > > > Low Potassium> > > > > > Low Magnesium> > > > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > > > High Parathyroid hormone> > > > > >> > > > > >> > > > > > My Endo at mayo concluded that I had mutiple things going > > on. I> > > > was told I had a renal calcium leak that was causing the secondary> > > > Hyper parathyroidism, and possible PA that was causing me high > > ALDO> > > > and Low renin and low normal potassium. My BP was slightly > > elevated> > > > but rarely ever more than 140/100. I also had alot of muscle pain,> > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.> > > > They did CT scans and didnt find any tumors. I was offered AVS, > > but> > > > it was advised that it wasnt worth the risk since I seemed to have> > > > such a slight case and no visable tumors. The CT showed my right> > > > kidney has a birth defect. It was going to split into 2 kidneys, > > but> > > > didnt. SO it is oversized and has a duplicate collecting system. I> > > > also have scaring on the lower pole of that kidney. I am slow> > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic > > syndrome. I> > > > also pass alot of urine (I almost always top of the 24 hr > > collection> > > > jug). I have to not over drink on> > > > > > the collection days or I will need a 2nd jug. I am almost > > always> > > > thirsty. Sometime unquenchable, but usually not.> > > > > >> > > > > > As far as treatment - I switched to a local endocrinologist > > that> > > > actually worked with my Mayo doctor for his 2 yr residence. He has> > > > settled on the following meds that seems to be keeping me in the> > > > normal ranges on things> > > > > >> > > > > > 25mg Hydroclorathyzide> > > > > > 50mg Spirnolactone> > > > > > 100,000IU of VitD> > > > > > 20meq of Potassium Chloride> > > > > > 1200mg Calcium> > > > > > 500mg Magnesium> > > > > > 40mg Omeprazole> > > > > >> > > > > > Even with all this, my potassium and magnesium are still low> > > > normal range. My Vit D level hovers around the 40's.> > > > > >> > > > > > I slowly stopped the twitching over that last 3 years on this> > > > drug cocktail mix and my muscle pain/weakness is much better, > > but i> > > > still feel off. I am a singer and the diuretics do not help my > > voice> > > > as all.> > > > > >> > > > > > June 2010 I ended up in ER thinking i might be having a heart> > > > problem. It turned out to be GERD related becuase I was taking> > > > Possium Citrate at the time. They did a CT to look for blood clots> > > > in my lungs since i had just flown on a plane. Not clots, but > > found> > > > 3 nodules in my right lung ( all 5mm or less). So now I have > > another> > > > CT coming up in June to make sure they are nothing to worry > > about. I> > > > am going to have them also scan my kidneys to see if they can > > see a> > > > tumor on the adrenals now. My endo wasnt even going to look again,> > > > but I felt since it has been 3yr and I am getting blasted with a > > CT> > > > that they might as well do it all at once. He agreed.> > > > > >> > > > > > My only real side effects from the drugs that are bothersome > > is> > > > gynecomastia. However, that was starting before the Spirno. In > > fact,> > > > I had 2 mammograms and ultrasound to make sure i didnt have breast> > > > cancer starting or something.> > > > > >> > > > > > A few questions:> > > > > > Could the neuro be wrong in that all I was really suffering > > from> > > > was low potassium? I asked him what Cramp Fasiculation Syndrome > > was> > > > and he told me a problem with the potassium channel. How about, > > just> > > > low potassium?> > > > > >> > > > > > I am only a 45 year old male. Can i really take these drugs > > the> > > > rest of my life without it causing something else to go wrong? At> > > > the rate i am going I fear I have a chest bigger than my wife in a> > > > few years time. I know that is just cosmetic, but still annoying.> > > > > >> > > > > > Can the lung nodules be coming from anything related to these> > > > conditions or meds?> > > > > >> > > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone> > > > take care of that, or is it just blocking it from having much > > impact?> > > > > >> > > > > > Thanks again for reading this long post and I appreciate being> > > > part of the group. I have learned alot just from reading the> > > > discussion threads.> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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You seem to have PA and a high salt intake as the cause of most problems.Do you have any 24 hr urines with the amt of Na and K and creatinine?CE Grim MDI was diagnosed with secondary hyperparathyroidism. When I was on 50mg of HCTZ PTH dropped like a rock. Since my doc and I trimmed it back to 25mg per day it has slowly been climbing up. I dont want to take 50mg of HCTZ becuase it dries out out vocal cords too much and makes me get up several time during the night. At first they thought it might be Primary Hyperparathyroid at Mayo, but determined renal calcium leak after the dramatic improvement on HCTZ. Phosphorus has remained about the same the whole time. It was down to 32 until I trimmed back to 25mg of HCTZ one time per day.> > > > >> > > > > This is my first post, so i thought i would give a little > > > background on my diagnosis process. Sorry if it is a bit long.> > > > >> > > > > I originally went to my family doctor in 1/2007 because of > > > muscle twitching. All kinds of blood tests, doc visits, > > > neurologists, emgs, you name it. I was fearing I had ALS. All my > > > local docs came up with was that I had Secondary HyperParathyroidism > > > and possible PA.I eventually gave up on my local docs and went to > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX > > > suppression. They couldnt explain the random/constant muscle > > > twitching for certain, but the Mayo Neuro that ran the last emg said > > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he > > > was 100% sure it wasnt ALS.> > > > >> > > > > Blood work issues:> > > > > Low Vitamin D (actually one endo told me i literally had almost > > > nothing in my body)> > > > > Low normal calcium> > > > > Low Ionized Calcium> > > > > Low Potassium> > > > > Low Magnesium> > > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > > High Parathyroid hormone> > > > >> > > > >> > > > > My Endo at mayo concluded that I had mutiple things going on. I > > > was told I had a renal calcium leak that was causing the secondary > > > Hyper parathyroidism, and possible PA that was causing me high ALDO > > > and Low renin and low normal potassium. My BP was slightly elevated > > > but rarely ever more than 140/100. I also had alot of muscle pain, > > > but not cramping. I even was diagosed with fibromyalgia at Mayo. > > > They did CT scans and didnt find any tumors. I was offered AVS, but > > > it was advised that it wasnt worth the risk since I seemed to have > > > such a slight case and no visable tumors. The CT showed my right > > > kidney has a birth defect. It was going to split into 2 kidneys, but > > > didnt. SO it is oversized and has a duplicate collecting system. I > > > also have scaring on the lower pole of that kidney. I am slow > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic syndrome. I > > > also pass alot of urine (I almost always top of the 24 hr collection > > > jug). I have to not over drink on> > > > > the collection days or I will need a 2nd jug. I am almost always > > > thirsty. Sometime unquenchable, but usually not.> > > > >> > > > > As far as treatment - I switched to a local endocrinologist that > > > actually worked with my Mayo doctor for his 2 yr residence. He has > > > settled on the following meds that seems to be keeping me in the > > > normal ranges on things> > > > >> > > > > 25mg Hydroclorathyzide> > > > > 50mg Spirnolactone> > > > > 100,000IU of VitD> > > > > 20meq of Potassium Chloride> > > > > 1200mg Calcium> > > > > 500mg Magnesium> > > > > 40mg Omeprazole> > > > >> > > > > Even with all this, my potassium and magnesium are still low > > > normal range. My Vit D level hovers around the 40's.> > > > >> > > > > I slowly stopped the twitching over that last 3 years on this > > > drug cocktail mix and my muscle pain/weakness is much better, but i > > > still feel off. I am a singer and the diuretics do not help my voice > > > as all.> > > > >> > > > > June 2010 I ended up in ER thinking i might be having a heart > > > problem. It turned out to be GERD related becuase I was taking > > > Possium Citrate at the time. They did a CT to look for blood clots > > > in my lungs since i had just flown on a plane. Not clots, but found > > > 3 nodules in my right lung ( all 5mm or less). So now I have another > > > CT coming up in June to make sure they are nothing to worry about. I > > > am going to have them also scan my kidneys to see if they can see a > > > tumor on the adrenals now. My endo wasnt even going to look again, > > > but I felt since it has been 3yr and I am getting blasted with a CT > > > that they might as well do it all at once. He agreed.> > > > >> > > > > My only real side effects from the drugs that are bothersome is > > > gynecomastia. However, that was starting before the Spirno. In fact, > > > I had 2 mammograms and ultrasound to make sure i didnt have breast > > > cancer starting or something.> > > > >> > > > > A few questions:> > > > > Could the neuro be wrong in that all I was really suffering from > > > was low potassium? I asked him what Cramp Fasiculation Syndrome was > > > and he told me a problem with the potassium channel. How about, just > > > low potassium?> > > > >> > > > > I am only a 45 year old male. Can i really take these drugs the > > > rest of my life without it causing something else to go wrong? At > > > the rate i am going I fear I have a chest bigger than my wife in a > > > few years time. I know that is just cosmetic, but still annoying.> > > > >> > > > > Can the lung nodules be coming from anything related to these > > > conditions or meds?> > > > >> > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone > > > take care of that, or is it just blocking it from having much impact?> > > > >> > > > > Thanks again for reading this long post and I appreciate being > > > part of the group. I have learned alot just from reading the > > > discussion threads.> > > > >> > > >> > >> > >> > >> >>

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Sodium, Timed Urine was last tested in 8/2007. It was 153 (40/220 mmol/24)

> > > > > >

> > > > > > This is my first post, so i thought i would give a little

> > > > background on my diagnosis process. Sorry if it is a bit long.

> > > > > >

> > > > > > I originally went to my family doctor in 1/2007 because of

> > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > > > local docs came up with was that I had Secondary

> > HyperParathyroidism

> > > > and possible PA.I eventually gave up on my local docs and went to

> > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > > suppression. They couldnt explain the random/constant muscle

> > > > twitching for certain, but the Mayo Neuro that ran the last emg

> > said

> > > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he

> > > > was 100% sure it wasnt ALS.

> > > > > >

> > > > > > Blood work issues:

> > > > > > Low Vitamin D (actually one endo told me i literally had

> > almost

> > > > nothing in my body)

> > > > > > Low normal calcium

> > > > > > Low Ionized Calcium

> > > > > > Low Potassium

> > > > > > Low Magnesium

> > > > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > > > High Parathyroid hormone

> > > > > >

> > > > > >

> > > > > > My Endo at mayo concluded that I had mutiple things going

> > on. I

> > > > was told I had a renal calcium leak that was causing the secondary

> > > > Hyper parathyroidism, and possible PA that was causing me high

> > ALDO

> > > > and Low renin and low normal potassium. My BP was slightly

> > elevated

> > > > but rarely ever more than 140/100. I also had alot of muscle pain,

> > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > > > They did CT scans and didnt find any tumors. I was offered AVS,

> > but

> > > > it was advised that it wasnt worth the risk since I seemed to have

> > > > such a slight case and no visable tumors. The CT showed my right

> > > > kidney has a birth defect. It was going to split into 2 kidneys,

> > but

> > > > didnt. SO it is oversized and has a duplicate collecting system. I

> > > > also have scaring on the lower pole of that kidney. I am slow

> > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > syndrome. I

> > > > also pass alot of urine (I almost always top of the 24 hr

> > collection

> > > > jug). I have to not over drink on

> > > > > > the collection days or I will need a 2nd jug. I am almost

> > always

> > > > thirsty. Sometime unquenchable, but usually not.

> > > > > >

> > > > > > As far as treatment - I switched to a local endocrinologist

> > that

> > > > actually worked with my Mayo doctor for his 2 yr residence. He has

> > > > settled on the following meds that seems to be keeping me in the

> > > > normal ranges on things

> > > > > >

> > > > > > 25mg Hydroclorathyzide

> > > > > > 50mg Spirnolactone

> > > > > > 100,000IU of VitD

> > > > > > 20meq of Potassium Chloride

> > > > > > 1200mg Calcium

> > > > > > 500mg Magnesium

> > > > > > 40mg Omeprazole

> > > > > >

> > > > > > Even with all this, my potassium and magnesium are still low

> > > > normal range. My Vit D level hovers around the 40's.

> > > > > >

> > > > > > I slowly stopped the twitching over that last 3 years on this

> > > > drug cocktail mix and my muscle pain/weakness is much better,

> > but i

> > > > still feel off. I am a singer and the diuretics do not help my

> > voice

> > > > as all.

> > > > > >

> > > > > > June 2010 I ended up in ER thinking i might be having a heart

> > > > problem. It turned out to be GERD related becuase I was taking

> > > > Possium Citrate at the time. They did a CT to look for blood clots

> > > > in my lungs since i had just flown on a plane. Not clots, but

> > found

> > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > another

> > > > CT coming up in June to make sure they are nothing to worry

> > about. I

> > > > am going to have them also scan my kidneys to see if they can

> > see a

> > > > tumor on the adrenals now. My endo wasnt even going to look again,

> > > > but I felt since it has been 3yr and I am getting blasted with a

> > CT

> > > > that they might as well do it all at once. He agreed.

> > > > > >

> > > > > > My only real side effects from the drugs that are bothersome

> > is

> > > > gynecomastia. However, that was starting before the Spirno. In

> > fact,

> > > > I had 2 mammograms and ultrasound to make sure i didnt have breast

> > > > cancer starting or something.

> > > > > >

> > > > > > A few questions:

> > > > > > Could the neuro be wrong in that all I was really suffering

> > from

> > > > was low potassium? I asked him what Cramp Fasiculation Syndrome

> > was

> > > > and he told me a problem with the potassium channel. How about,

> > just

> > > > low potassium?

> > > > > >

> > > > > > I am only a 45 year old male. Can i really take these drugs

> > the

> > > > rest of my life without it causing something else to go wrong? At

> > > > the rate i am going I fear I have a chest bigger than my wife in a

> > > > few years time. I know that is just cosmetic, but still annoying.

> > > > > >

> > > > > > Can the lung nodules be coming from anything related to these

> > > > conditions or meds?

> > > > > >

> > > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone

> > > > take care of that, or is it just blocking it from having much

> > impact?

> > > > > >

> > > > > > Thanks again for reading this long post and I appreciate being

> > > > part of the group. I have learned alot just from reading the

> > > > discussion threads.

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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I am not sure what 153 (20/220 mM/24 hr means) If 220 mM is then this is a very high salt intake but that was a long time ago.What you want to know is what is it now.Sodium, Timed Urine was last tested in 8/2007. It was 153 (40/220 mmol/24)> > > > > >> > > > > > This is my first post, so i thought i would give a little> > > > background on my diagnosis process. Sorry if it is a bit long.> > > > > >> > > > > > I originally went to my family doctor in 1/2007 because of> > > > muscle twitching. All kinds of blood tests, doc visits,> > > > neurologists, emgs, you name it. I was fearing I had ALS. All my> > > > local docs came up with was that I had Secondary > > HyperParathyroidism> > > > and possible PA.I eventually gave up on my local docs and went to> > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX> > > > suppression. They couldnt explain the random/constant muscle> > > > twitching for certain, but the Mayo Neuro that ran the last emg > > said> > > > Cramp Fasiculation Syndrome. At the time we was rejoicing cuase he> > > > was 100% sure it wasnt ALS.> > > > > >> > > > > > Blood work issues:> > > > > > Low Vitamin D (actually one endo told me i literally had > > almost> > > > nothing in my body)> > > > > > Low normal calcium> > > > > > Low Ionized Calcium> > > > > > Low Potassium> > > > > > Low Magnesium> > > > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > > > High Parathyroid hormone> > > > > >> > > > > >> > > > > > My Endo at mayo concluded that I had mutiple things going > > on. I> > > > was told I had a renal calcium leak that was causing the secondary> > > > Hyper parathyroidism, and possible PA that was causing me high > > ALDO> > > > and Low renin and low normal potassium. My BP was slightly > > elevated> > > > but rarely ever more than 140/100. I also had alot of muscle pain,> > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.> > > > They did CT scans and didnt find any tumors. I was offered AVS, > > but> > > > it was advised that it wasnt worth the risk since I seemed to have> > > > such a slight case and no visable tumors. The CT showed my right> > > > kidney has a birth defect. It was going to split into 2 kidneys, > > but> > > > didnt. SO it is oversized and has a duplicate collecting system. I> > > > also have scaring on the lower pole of that kidney. I am slow> > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic > > syndrome. I> > > > also pass alot of urine (I almost always top of the 24 hr > > collection> > > > jug). I have to not over drink on> > > > > > the collection days or I will need a 2nd jug. I am almost > > always> > > > thirsty. Sometime unquenchable, but usually not.> > > > > >> > > > > > As far as treatment - I switched to a local endocrinologist > > that> > > > actually worked with my Mayo doctor for his 2 yr residence. He has> > > > settled on the following meds that seems to be keeping me in the> > > > normal ranges on things> > > > > >> > > > > > 25mg Hydroclorathyzide> > > > > > 50mg Spirnolactone> > > > > > 100,000IU of VitD> > > > > > 20meq of Potassium Chloride> > > > > > 1200mg Calcium> > > > > > 500mg Magnesium> > > > > > 40mg Omeprazole> > > > > >> > > > > > Even with all this, my potassium and magnesium are still low> > > > normal range. My Vit D level hovers around the 40's.> > > > > >> > > > > > I slowly stopped the twitching over that last 3 years on this> > > > drug cocktail mix and my muscle pain/weakness is much better, > > but i> > > > still feel off. I am a singer and the diuretics do not help my > > voice> > > > as all.> > > > > >> > > > > > June 2010 I ended up in ER thinking i might be having a heart> > > > problem. It turned out to be GERD related becuase I was taking> > > > Possium Citrate at the time. They did a CT to look for blood clots> > > > in my lungs since i had just flown on a plane. Not clots, but > > found> > > > 3 nodules in my right lung ( all 5mm or less). So now I have > > another> > > > CT coming up in June to make sure they are nothing to worry > > about. I> > > > am going to have them also scan my kidneys to see if they can > > see a> > > > tumor on the adrenals now. My endo wasnt even going to look again,> > > > but I felt since it has been 3yr and I am getting blasted with a > > CT> > > > that they might as well do it all at once. He agreed.> > > > > >> > > > > > My only real side effects from the drugs that are bothersome > > is> > > > gynecomastia. However, that was starting before the Spirno. In > > fact,> > > > I had 2 mammograms and ultrasound to make sure i didnt have breast> > > > cancer starting or something.> > > > > >> > > > > > A few questions:> > > > > > Could the neuro be wrong in that all I was really suffering > > from> > > > was low potassium? I asked him what Cramp Fasiculation Syndrome > > was> > > > and he told me a problem with the potassium channel. How about, > > just> > > > low potassium?> > > > > >> > > > > > I am only a 45 year old male. Can i really take these drugs > > the> > > > rest of my life without it causing something else to go wrong? At> > > > the rate i am going I fear I have a chest bigger than my wife in a> > > > few years time. I know that is just cosmetic, but still annoying.> > > > > >> > > > > > Can the lung nodules be coming from anything related to these> > > > conditions or meds?> > > > > >> > > > > > My aldesterone keeps rising higher. Shouldnt the spirnolactone> > > > take care of that, or is it just blocking it from having much > > impact?> > > > > >> > > > > > Thanks again for reading this long post and I appreciate being> > > > part of the group. I have learned alot just from reading the> > > > discussion threads.> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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I see

45 WM HTN/Mild 6yrs, Low K/4+ years Renin/.8 (8/2007) aldo/70 (8/2009)

CT scan/no tumor seen as of 7/2008. Rescan coming 6/2011

Diag Probable PA (hyperplasia) and Renal Calcium Leak

Daily Meds:

25mg Hydroclorathyzide

50mg Spirnolactone

100,000IU of VitD per week

20meq of Potassium Chloride

1200mg Calcium

500mg Magnesium

40mg Omeprazole

> > > > > > > >

> > > > > > > > This is my first post, so i thought i would give a little

> > > > > > background on my diagnosis process. Sorry if it is a bit long.

> > > > > > > >

> > > > > > > > I originally went to my family doctor in 1/2007 because of

> > > > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > > > neurologists, emgs, you name it. I was fearing I had ALS.

> > All my

> > > > > > local docs came up with was that I had Secondary

> > > > HyperParathyroidism

> > > > > > and possible PA.I eventually gave up on my local docs and

> > went to

> > > > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > > > > suppression. They couldnt explain the random/constant muscle

> > > > > > twitching for certain, but the Mayo Neuro that ran the last

> > emg

> > > > said

> > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing

> > cuase he

> > > > > > was 100% sure it wasnt ALS.

> > > > > > > >

> > > > > > > > Blood work issues:

> > > > > > > > Low Vitamin D (actually one endo told me i literally had

> > > > almost

> > > > > > nothing in my body)

> > > > > > > > Low normal calcium

> > > > > > > > Low Ionized Calcium

> > > > > > > > Low Potassium

> > > > > > > > Low Magnesium

> > > > > > > > Low renin /High Aldesterone (it was like 26 before any

> > meds)

> > > > > > > > High Parathyroid hormone

> > > > > > > >

> > > > > > > >

> > > > > > > > My Endo at mayo concluded that I had mutiple things going

> > > > on. I

> > > > > > was told I had a renal calcium leak that was causing the

> > secondary

> > > > > > Hyper parathyroidism, and possible PA that was causing me high

> > > > ALDO

> > > > > > and Low renin and low normal potassium. My BP was slightly

> > > > elevated

> > > > > > but rarely ever more than 140/100. I also had alot of muscle

> > pain,

> > > > > > but not cramping. I even was diagosed with fibromyalgia at

> > Mayo.

> > > > > > They did CT scans and didnt find any tumors. I was offered

> > AVS,

> > > > but

> > > > > > it was advised that it wasnt worth the risk since I seemed

> > to have

> > > > > > such a slight case and no visable tumors. The CT showed my

> > right

> > > > > > kidney has a birth defect. It was going to split into 2

> > kidneys,

> > > > but

> > > > > > didnt. SO it is oversized and has a duplicate collecting

> > system. I

> > > > > > also have scaring on the lower pole of that kidney. I am slow

> > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > > > syndrome. I

> > > > > > also pass alot of urine (I almost always top of the 24 hr

> > > > collection

> > > > > > jug). I have to not over drink on

> > > > > > > > the collection days or I will need a 2nd jug. I am almost

> > > > always

> > > > > > thirsty. Sometime unquenchable, but usually not.

> > > > > > > >

> > > > > > > > As far as treatment - I switched to a local

> > endocrinologist

> > > > that

> > > > > > actually worked with my Mayo doctor for his 2 yr residence.

> > He has

> > > > > > settled on the following meds that seems to be keeping me in

> > the

> > > > > > normal ranges on things

> > > > > > > >

> > > > > > > > 25mg Hydroclorathyzide

> > > > > > > > 50mg Spirnolactone

> > > > > > > > 100,000IU of VitD

> > > > > > > > 20meq of Potassium Chloride

> > > > > > > > 1200mg Calcium

> > > > > > > > 500mg Magnesium

> > > > > > > > 40mg Omeprazole

> > > > > > > >

> > > > > > > > Even with all this, my potassium and magnesium are still

> > low

> > > > > > normal range. My Vit D level hovers around the 40's.

> > > > > > > >

> > > > > > > > I slowly stopped the twitching over that last 3 years on

> > this

> > > > > > drug cocktail mix and my muscle pain/weakness is much better,

> > > > but i

> > > > > > still feel off. I am a singer and the diuretics do not help my

> > > > voice

> > > > > > as all.

> > > > > > > >

> > > > > > > > June 2010 I ended up in ER thinking i might be having a

> > heart

> > > > > > problem. It turned out to be GERD related becuase I was taking

> > > > > > Possium Citrate at the time. They did a CT to look for blood

> > clots

> > > > > > in my lungs since i had just flown on a plane. Not clots, but

> > > > found

> > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > > > another

> > > > > > CT coming up in June to make sure they are nothing to worry

> > > > about. I

> > > > > > am going to have them also scan my kidneys to see if they can

> > > > see a

> > > > > > tumor on the adrenals now. My endo wasnt even going to look

> > again,

> > > > > > but I felt since it has been 3yr and I am getting blasted

> > with a

> > > > CT

> > > > > > that they might as well do it all at once. He agreed.

> > > > > > > >

> > > > > > > > My only real side effects from the drugs that are

> > bothersome

> > > > is

> > > > > > gynecomastia. However, that was starting before the Spirno. In

> > > > fact,

> > > > > > I had 2 mammograms and ultrasound to make sure i didnt have

> > breast

> > > > > > cancer starting or something.

> > > > > > > >

> > > > > > > > A few questions:

> > > > > > > > Could the neuro be wrong in that all I was really

> > suffering

> > > > from

> > > > > > was low potassium? I asked him what Cramp Fasiculation

> > Syndrome

> > > > was

> > > > > > and he told me a problem with the potassium channel. How

> > about,

> > > > just

> > > > > > low potassium?

> > > > > > > >

> > > > > > > > I am only a 45 year old male. Can i really take these

> > drugs

> > > > the

> > > > > > rest of my life without it causing something else to go

> > wrong? At

> > > > > > the rate i am going I fear I have a chest bigger than my

> > wife in a

> > > > > > few years time. I know that is just cosmetic, but still

> > annoying.

> > > > > > > >

> > > > > > > > Can the lung nodules be coming from anything related to

> > these

> > > > > > conditions or meds?

> > > > > > > >

> > > > > > > > My aldesterone keeps rising higher. Shouldnt the

> > spirnolactone

> > > > > > take care of that, or is it just blocking it from having much

> > > > impact?

> > > > > > > >

> > > > > > > > Thanks again for reading this long post and I appreciate

> > being

> > > > > > part of the group. I have learned alot just from reading the

> > > > > > discussion threads.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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Posted
Posted

Sorry - typo. I meant to type mmol/24. It has not been tested since then. Just

blood level.

> > > > > > > >

> > > > > > > > This is my first post, so i thought i would give a little

> > > > > > background on my diagnosis process. Sorry if it is a bit long.

> > > > > > > >

> > > > > > > > I originally went to my family doctor in 1/2007 because of

> > > > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > > > neurologists, emgs, you name it. I was fearing I had ALS.

> > All my

> > > > > > local docs came up with was that I had Secondary

> > > > HyperParathyroidism

> > > > > > and possible PA.I eventually gave up on my local docs and

> > went to

> > > > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > > > > suppression. They couldnt explain the random/constant muscle

> > > > > > twitching for certain, but the Mayo Neuro that ran the last

> > emg

> > > > said

> > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing

> > cuase he

> > > > > > was 100% sure it wasnt ALS.

> > > > > > > >

> > > > > > > > Blood work issues:

> > > > > > > > Low Vitamin D (actually one endo told me i literally had

> > > > almost

> > > > > > nothing in my body)

> > > > > > > > Low normal calcium

> > > > > > > > Low Ionized Calcium

> > > > > > > > Low Potassium

> > > > > > > > Low Magnesium

> > > > > > > > Low renin /High Aldesterone (it was like 26 before any

> > meds)

> > > > > > > > High Parathyroid hormone

> > > > > > > >

> > > > > > > >

> > > > > > > > My Endo at mayo concluded that I had mutiple things going

> > > > on. I

> > > > > > was told I had a renal calcium leak that was causing the

> > secondary

> > > > > > Hyper parathyroidism, and possible PA that was causing me high

> > > > ALDO

> > > > > > and Low renin and low normal potassium. My BP was slightly

> > > > elevated

> > > > > > but rarely ever more than 140/100. I also had alot of muscle

> > pain,

> > > > > > but not cramping. I even was diagosed with fibromyalgia at

> > Mayo.

> > > > > > They did CT scans and didnt find any tumors. I was offered

> > AVS,

> > > > but

> > > > > > it was advised that it wasnt worth the risk since I seemed

> > to have

> > > > > > such a slight case and no visable tumors. The CT showed my

> > right

> > > > > > kidney has a birth defect. It was going to split into 2

> > kidneys,

> > > > but

> > > > > > didnt. SO it is oversized and has a duplicate collecting

> > system. I

> > > > > > also have scaring on the lower pole of that kidney. I am slow

> > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > > > syndrome. I

> > > > > > also pass alot of urine (I almost always top of the 24 hr

> > > > collection

> > > > > > jug). I have to not over drink on

> > > > > > > > the collection days or I will need a 2nd jug. I am almost

> > > > always

> > > > > > thirsty. Sometime unquenchable, but usually not.

> > > > > > > >

> > > > > > > > As far as treatment - I switched to a local

> > endocrinologist

> > > > that

> > > > > > actually worked with my Mayo doctor for his 2 yr residence.

> > He has

> > > > > > settled on the following meds that seems to be keeping me in

> > the

> > > > > > normal ranges on things

> > > > > > > >

> > > > > > > > 25mg Hydroclorathyzide

> > > > > > > > 50mg Spirnolactone

> > > > > > > > 100,000IU of VitD

> > > > > > > > 20meq of Potassium Chloride

> > > > > > > > 1200mg Calcium

> > > > > > > > 500mg Magnesium

> > > > > > > > 40mg Omeprazole

> > > > > > > >

> > > > > > > > Even with all this, my potassium and magnesium are still

> > low

> > > > > > normal range. My Vit D level hovers around the 40's.

> > > > > > > >

> > > > > > > > I slowly stopped the twitching over that last 3 years on

> > this

> > > > > > drug cocktail mix and my muscle pain/weakness is much better,

> > > > but i

> > > > > > still feel off. I am a singer and the diuretics do not help my

> > > > voice

> > > > > > as all.

> > > > > > > >

> > > > > > > > June 2010 I ended up in ER thinking i might be having a

> > heart

> > > > > > problem. It turned out to be GERD related becuase I was taking

> > > > > > Possium Citrate at the time. They did a CT to look for blood

> > clots

> > > > > > in my lungs since i had just flown on a plane. Not clots, but

> > > > found

> > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > > > another

> > > > > > CT coming up in June to make sure they are nothing to worry

> > > > about. I

> > > > > > am going to have them also scan my kidneys to see if they can

> > > > see a

> > > > > > tumor on the adrenals now. My endo wasnt even going to look

> > again,

> > > > > > but I felt since it has been 3yr and I am getting blasted

> > with a

> > > > CT

> > > > > > that they might as well do it all at once. He agreed.

> > > > > > > >

> > > > > > > > My only real side effects from the drugs that are

> > bothersome

> > > > is

> > > > > > gynecomastia. However, that was starting before the Spirno. In

> > > > fact,

> > > > > > I had 2 mammograms and ultrasound to make sure i didnt have

> > breast

> > > > > > cancer starting or something.

> > > > > > > >

> > > > > > > > A few questions:

> > > > > > > > Could the neuro be wrong in that all I was really

> > suffering

> > > > from

> > > > > > was low potassium? I asked him what Cramp Fasiculation

> > Syndrome

> > > > was

> > > > > > and he told me a problem with the potassium channel. How

> > about,

> > > > just

> > > > > > low potassium?

> > > > > > > >

> > > > > > > > I am only a 45 year old male. Can i really take these

> > drugs

> > > > the

> > > > > > rest of my life without it causing something else to go

> > wrong? At

> > > > > > the rate i am going I fear I have a chest bigger than my

> > wife in a

> > > > > > few years time. I know that is just cosmetic, but still

> > annoying.

> > > > > > > >

> > > > > > > > Can the lung nodules be coming from anything related to

> > these

> > > > > > conditions or meds?

> > > > > > > >

> > > > > > > > My aldesterone keeps rising higher. Shouldnt the

> > spirnolactone

> > > > > > take care of that, or is it just blocking it from having much

> > > > impact?

> > > > > > > >

> > > > > > > > Thanks again for reading this long post and I appreciate

> > being

> > > > > > part of the group. I have learned alot just from reading the

> > > > > > discussion threads.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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Posted
Posted

Here are some from 2007

POTASSIUM,TIMED URINE 78 (25.0-125.0 mmol/24HR) from 8/2007

CALCIUM, TIMED URINE 272 (<301 mmol/24hr) from 8/2007

MAGNESIUM,24HR URINE 176 (28-180 MG/24HR) from 8/2007

CREATININE,24 HR 2.23 (0.63-2.50) G/24HR from 8/2007

This is all my current endo is checking at this time

CALCIUM, TIMED URINE 133 (<301 mmol/24hr) from 8/2010

> > > > > > >

> > > > > > > This is my first post, so i thought i would give a little

> > > > > background on my diagnosis process. Sorry if it is a bit long.

> > > > > > >

> > > > > > > I originally went to my family doctor in 1/2007 because of

> > > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > > neurologists, emgs, you name it. I was fearing I had ALS. All my

> > > > > local docs came up with was that I had Secondary

> > HyperParathyroidism

> > > > > and possible PA.I eventually gave up on my local docs and went

> > to

> > > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX

> > > > > suppression. They couldnt explain the random/constant muscle

> > > > > twitching for certain, but the Mayo Neuro that ran the last

> > emg said

> > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing

> > cuase he

> > > > > was 100% sure it wasnt ALS.

> > > > > > >

> > > > > > > Blood work issues:

> > > > > > > Low Vitamin D (actually one endo told me i literally had

> > almost

> > > > > nothing in my body)

> > > > > > > Low normal calcium

> > > > > > > Low Ionized Calcium

> > > > > > > Low Potassium

> > > > > > > Low Magnesium

> > > > > > > Low renin /High Aldesterone (it was like 26 before any meds)

> > > > > > > High Parathyroid hormone

> > > > > > >

> > > > > > >

> > > > > > > My Endo at mayo concluded that I had mutiple things going

> > on. I

> > > > > was told I had a renal calcium leak that was causing the

> > secondary

> > > > > Hyper parathyroidism, and possible PA that was causing me high

> > ALDO

> > > > > and Low renin and low normal potassium. My BP was slightly

> > elevated

> > > > > but rarely ever more than 140/100. I also had alot of muscle

> > pain,

> > > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.

> > > > > They did CT scans and didnt find any tumors. I was offered

> > AVS, but

> > > > > it was advised that it wasnt worth the risk since I seemed to

> > have

> > > > > such a slight case and no visable tumors. The CT showed my right

> > > > > kidney has a birth defect. It was going to split into 2

> > kidneys, but

> > > > > didnt. SO it is oversized and has a duplicate collecting

> > system. I

> > > > > also have scaring on the lower pole of that kidney. I am slow

> > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > syndrome. I

> > > > > also pass alot of urine (I almost always top of the 24 hr

> > collection

> > > > > jug). I have to not over drink on

> > > > > > > the collection days or I will need a 2nd jug. I am almost

> > always

> > > > > thirsty. Sometime unquenchable, but usually not.

> > > > > > >

> > > > > > > As far as treatment - I switched to a local

> > endocrinologist that

> > > > > actually worked with my Mayo doctor for his 2 yr residence. He

> > has

> > > > > settled on the following meds that seems to be keeping me in the

> > > > > normal ranges on things

> > > > > > >

> > > > > > > 25mg Hydroclorathyzide

> > > > > > > 50mg Spirnolactone

> > > > > > > 100,000IU of VitD

> > > > > > > 20meq of Potassium Chloride

> > > > > > > 1200mg Calcium

> > > > > > > 500mg Magnesium

> > > > > > > 40mg Omeprazole

> > > > > > >

> > > > > > > Even with all this, my potassium and magnesium are still low

> > > > > normal range. My Vit D level hovers around the 40's.

> > > > > > >

> > > > > > > I slowly stopped the twitching over that last 3 years on

> > this

> > > > > drug cocktail mix and my muscle pain/weakness is much better,

> > but i

> > > > > still feel off. I am a singer and the diuretics do not help my

> > voice

> > > > > as all.

> > > > > > >

> > > > > > > June 2010 I ended up in ER thinking i might be having a

> > heart

> > > > > problem. It turned out to be GERD related becuase I was taking

> > > > > Possium Citrate at the time. They did a CT to look for blood

> > clots

> > > > > in my lungs since i had just flown on a plane. Not clots, but

> > found

> > > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > another

> > > > > CT coming up in June to make sure they are nothing to worry

> > about. I

> > > > > am going to have them also scan my kidneys to see if they can

> > see a

> > > > > tumor on the adrenals now. My endo wasnt even going to look

> > again,

> > > > > but I felt since it has been 3yr and I am getting blasted with

> > a CT

> > > > > that they might as well do it all at once. He agreed.

> > > > > > >

> > > > > > > My only real side effects from the drugs that are

> > bothersome is

> > > > > gynecomastia. However, that was starting before the Spirno. In

> > fact,

> > > > > I had 2 mammograms and ultrasound to make sure i didnt have

> > breast

> > > > > cancer starting or something.

> > > > > > >

> > > > > > > A few questions:

> > > > > > > Could the neuro be wrong in that all I was really

> > suffering from

> > > > > was low potassium? I asked him what Cramp Fasiculation

> > Syndrome was

> > > > > and he told me a problem with the potassium channel. How

> > about, just

> > > > > low potassium?

> > > > > > >

> > > > > > > I am only a 45 year old male. Can i really take these

> > drugs the

> > > > > rest of my life without it causing something else to go wrong?

> > At

> > > > > the rate i am going I fear I have a chest bigger than my wife

> > in a

> > > > > few years time. I know that is just cosmetic, but still

> > annoying.

> > > > > > >

> > > > > > > Can the lung nodules be coming from anything related to

> > these

> > > > > conditions or meds?

> > > > > > >

> > > > > > > My aldesterone keeps rising higher. Shouldnt the

> > spirnolactone

> > > > > take care of that, or is it just blocking it from having much

> > impact?

> > > > > > >

> > > > > > > Thanks again for reading this long post and I appreciate

> > being

> > > > > part of the group. I have learned alot just from reading the

> > > > > discussion threads.

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

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blood tells you nothing about salt or K intake.Need urine.Sorry - typo. I meant to type mmol/24. It has not been tested since then. Just blood level.> > > > > > > >> > > > > > > > This is my first post, so i thought i would give a little> > > > > > background on my diagnosis process. Sorry if it is a bit long.> > > > > > > >> > > > > > > > I originally went to my family doctor in 1/2007 because of> > > > > > muscle twitching. All kinds of blood tests, doc visits,> > > > > > neurologists, emgs, you name it. I was fearing I had ALS. > > All my> > > > > > local docs came up with was that I had Secondary> > > > HyperParathyroidism> > > > > > and possible PA.I eventually gave up on my local docs and > > went to> > > > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX> > > > > > suppression. They couldnt explain the random/constant muscle> > > > > > twitching for certain, but the Mayo Neuro that ran the last > > emg> > > > said> > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing > > cuase he> > > > > > was 100% sure it wasnt ALS.> > > > > > > >> > > > > > > > Blood work issues:> > > > > > > > Low Vitamin D (actually one endo told me i literally had> > > > almost> > > > > > nothing in my body)> > > > > > > > Low normal calcium> > > > > > > > Low Ionized Calcium> > > > > > > > Low Potassium> > > > > > > > Low Magnesium> > > > > > > > Low renin /High Aldesterone (it was like 26 before any > > meds)> > > > > > > > High Parathyroid hormone> > > > > > > >> > > > > > > >> > > > > > > > My Endo at mayo concluded that I had mutiple things going> > > > on. I> > > > > > was told I had a renal calcium leak that was causing the > > secondary> > > > > > Hyper parathyroidism, and possible PA that was causing me high> > > > ALDO> > > > > > and Low renin and low normal potassium. My BP was slightly> > > > elevated> > > > > > but rarely ever more than 140/100. I also had alot of muscle > > pain,> > > > > > but not cramping. I even was diagosed with fibromyalgia at > > Mayo.> > > > > > They did CT scans and didnt find any tumors. I was offered > > AVS,> > > > but> > > > > > it was advised that it wasnt worth the risk since I seemed > > to have> > > > > > such a slight case and no visable tumors. The CT showed my > > right> > > > > > kidney has a birth defect. It was going to split into 2 > > kidneys,> > > > but> > > > > > didnt. SO it is oversized and has a duplicate collecting > > system. I> > > > > > also have scaring on the lower pole of that kidney. I am slow> > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic> > > > syndrome. I> > > > > > also pass alot of urine (I almost always top of the 24 hr> > > > collection> > > > > > jug). I have to not over drink on> > > > > > > > the collection days or I will need a 2nd jug. I am almost> > > > always> > > > > > thirsty. Sometime unquenchable, but usually not.> > > > > > > >> > > > > > > > As far as treatment - I switched to a local > > endocrinologist> > > > that> > > > > > actually worked with my Mayo doctor for his 2 yr residence. > > He has> > > > > > settled on the following meds that seems to be keeping me in > > the> > > > > > normal ranges on things> > > > > > > >> > > > > > > > 25mg Hydroclorathyzide> > > > > > > > 50mg Spirnolactone> > > > > > > > 100,000IU of VitD> > > > > > > > 20meq of Potassium Chloride> > > > > > > > 1200mg Calcium> > > > > > > > 500mg Magnesium> > > > > > > > 40mg Omeprazole> > > > > > > >> > > > > > > > Even with all this, my potassium and magnesium are still > > low> > > > > > normal range. My Vit D level hovers around the 40's.> > > > > > > >> > > > > > > > I slowly stopped the twitching over that last 3 years on > > this> > > > > > drug cocktail mix and my muscle pain/weakness is much better,> > > > but i> > > > > > still feel off. I am a singer and the diuretics do not help my> > > > voice> > > > > > as all.> > > > > > > >> > > > > > > > June 2010 I ended up in ER thinking i might be having a > > heart> > > > > > problem. It turned out to be GERD related becuase I was taking> > > > > > Possium Citrate at the time. They did a CT to look for blood > > clots> > > > > > in my lungs since i had just flown on a plane. Not clots, but> > > > found> > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have> > > > another> > > > > > CT coming up in June to make sure they are nothing to worry> > > > about. I> > > > > > am going to have them also scan my kidneys to see if they can> > > > see a> > > > > > tumor on the adrenals now. My endo wasnt even going to look > > again,> > > > > > but I felt since it has been 3yr and I am getting blasted > > with a> > > > CT> > > > > > that they might as well do it all at once. He agreed.> > > > > > > >> > > > > > > > My only real side effects from the drugs that are > > bothersome> > > > is> > > > > > gynecomastia. However, that was starting before the Spirno. In> > > > fact,> > > > > > I had 2 mammograms and ultrasound to make sure i didnt have > > breast> > > > > > cancer starting or something.> > > > > > > >> > > > > > > > A few questions:> > > > > > > > Could the neuro be wrong in that all I was really > > suffering> > > > from> > > > > > was low potassium? I asked him what Cramp Fasiculation > > Syndrome> > > > was> > > > > > and he told me a problem with the potassium channel. How > > about,> > > > just> > > > > > low potassium?> > > > > > > >> > > > > > > > I am only a 45 year old male. Can i really take these > > drugs> > > > the> > > > > > rest of my life without it causing something else to go > > wrong? At> > > > > > the rate i am going I fear I have a chest bigger than my > > wife in a> > > > > > few years time. I know that is just cosmetic, but still > > annoying.> > > > > > > >> > > > > > > > Can the lung nodules be coming from anything related to > > these> > > > > > conditions or meds?> > > > > > > >> > > > > > > > My aldesterone keeps rising higher. Shouldnt the > > spirnolactone> > > > > > take care of that, or is it just blocking it from having much> > > > impact?> > > > > > > >> > > > > > > > Thanks again for reading this long post and I appreciate > > being> > > > > > part of the group. I have learned alot just from reading the> > > > > > discussion threads.> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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Tell him that to treat PA one needs to increase K and lower Na in diet and only way to monitor this is to measure in the the urine.Pee does not lie.Here are some from 2007POTASSIUM,TIMED URINE 78 (25.0-125.0 mmol/24HR) from 8/2007CALCIUM, TIMED URINE 272 (<301 mmol/24hr) from 8/2007MAGNESIUM,24HR URINE 176 (28-180 MG/24HR) from 8/2007CREATININE,24 HR 2.23 (0.63-2.50) G/24HR from 8/2007This is all my current endo is checking at this time CALCIUM, TIMED URINE 133 (<301 mmol/24hr) from 8/2010> > > > > > >> > > > > > > This is my first post, so i thought i would give a little> > > > > background on my diagnosis process. Sorry if it is a bit long.> > > > > > >> > > > > > > I originally went to my family doctor in 1/2007 because of> > > > > muscle twitching. All kinds of blood tests, doc visits,> > > > > neurologists, emgs, you name it. I was fearing I had ALS. All my> > > > > local docs came up with was that I had Secondary > > HyperParathyroidism> > > > > and possible PA.I eventually gave up on my local docs and went > > to> > > > > Mayo Clinic. Mayro ran me through a ton of tests including DEX> > > > > suppression. They couldnt explain the random/constant muscle> > > > > twitching for certain, but the Mayo Neuro that ran the last > > emg said> > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing > > cuase he> > > > > was 100% sure it wasnt ALS.> > > > > > >> > > > > > > Blood work issues:> > > > > > > Low Vitamin D (actually one endo told me i literally had > > almost> > > > > nothing in my body)> > > > > > > Low normal calcium> > > > > > > Low Ionized Calcium> > > > > > > Low Potassium> > > > > > > Low Magnesium> > > > > > > Low renin /High Aldesterone (it was like 26 before any meds)> > > > > > > High Parathyroid hormone> > > > > > >> > > > > > >> > > > > > > My Endo at mayo concluded that I had mutiple things going > > on. I> > > > > was told I had a renal calcium leak that was causing the > > secondary> > > > > Hyper parathyroidism, and possible PA that was causing me high > > ALDO> > > > > and Low renin and low normal potassium. My BP was slightly > > elevated> > > > > but rarely ever more than 140/100. I also had alot of muscle > > pain,> > > > > but not cramping. I even was diagosed with fibromyalgia at Mayo.> > > > > They did CT scans and didnt find any tumors. I was offered > > AVS, but> > > > > it was advised that it wasnt worth the risk since I seemed to > > have> > > > > such a slight case and no visable tumors. The CT showed my right> > > > > kidney has a birth defect. It was going to split into 2 > > kidneys, but> > > > > didnt. SO it is oversized and has a duplicate collecting > > system. I> > > > > also have scaring on the lower pole of that kidney. I am slow> > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic > > syndrome. I> > > > > also pass alot of urine (I almost always top of the 24 hr > > collection> > > > > jug). I have to not over drink on> > > > > > > the collection days or I will need a 2nd jug. I am almost > > always> > > > > thirsty. Sometime unquenchable, but usually not.> > > > > > >> > > > > > > As far as treatment - I switched to a local > > endocrinologist that> > > > > actually worked with my Mayo doctor for his 2 yr residence. He > > has> > > > > settled on the following meds that seems to be keeping me in the> > > > > normal ranges on things> > > > > > >> > > > > > > 25mg Hydroclorathyzide> > > > > > > 50mg Spirnolactone> > > > > > > 100,000IU of VitD> > > > > > > 20meq of Potassium Chloride> > > > > > > 1200mg Calcium> > > > > > > 500mg Magnesium> > > > > > > 40mg Omeprazole> > > > > > >> > > > > > > Even with all this, my potassium and magnesium are still low> > > > > normal range. My Vit D level hovers around the 40's.> > > > > > >> > > > > > > I slowly stopped the twitching over that last 3 years on > > this> > > > > drug cocktail mix and my muscle pain/weakness is much better, > > but i> > > > > still feel off. I am a singer and the diuretics do not help my > > voice> > > > > as all.> > > > > > >> > > > > > > June 2010 I ended up in ER thinking i might be having a > > heart> > > > > problem. It turned out to be GERD related becuase I was taking> > > > > Possium Citrate at the time. They did a CT to look for blood > > clots> > > > > in my lungs since i had just flown on a plane. Not clots, but > > found> > > > > 3 nodules in my right lung ( all 5mm or less). So now I have > > another> > > > > CT coming up in June to make sure they are nothing to worry > > about. I> > > > > am going to have them also scan my kidneys to see if they can > > see a> > > > > tumor on the adrenals now. My endo wasnt even going to look > > again,> > > > > but I felt since it has been 3yr and I am getting blasted with > > a CT> > > > > that they might as well do it all at once. He agreed.> > > > > > >> > > > > > > My only real side effects from the drugs that are > > bothersome is> > > > > gynecomastia. However, that was starting before the Spirno. In > > fact,> > > > > I had 2 mammograms and ultrasound to make sure i didnt have > > breast> > > > > cancer starting or something.> > > > > > >> > > > > > > A few questions:> > > > > > > Could the neuro be wrong in that all I was really > > suffering from> > > > > was low potassium? I asked him what Cramp Fasiculation > > Syndrome was> > > > > and he told me a problem with the potassium channel. How > > about, just> > > > > low potassium?> > > > > > >> > > > > > > I am only a 45 year old male. Can i really take these > > drugs the> > > > > rest of my life without it causing something else to go wrong? > > At> > > > > the rate i am going I fear I have a chest bigger than my wife > > in a> > > > > few years time. I know that is just cosmetic, but still > > annoying.> > > > > > >> > > > > > > Can the lung nodules be coming from anything related to > > these> > > > > conditions or meds?> > > > > > >> > > > > > > My aldesterone keeps rising higher. Shouldnt the > > spirnolactone> > > > > take care of that, or is it just blocking it from having much > > impact?> > > > > > >> > > > > > > Thanks again for reading this long post and I appreciate > > being> > > > > part of the group. I have learned alot just from reading the> > > > > discussion threads.> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >>

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Interesting! So the HCTZ is basically treating my higher salt diet, which i

really have paid no attention to, and in turn is increasing my potassium and

magnesium loss. It is also interesting to note that during the summer of 2006 I

did about a 3-4 mo low carb diet where I lost about 27 pounds. I fell off the

wagon in Oct 2006. The twitching started about a month or so after I went back

to my old eating habits. I often wondered if the lowcarb diet caused it, or just

brought out the electrolyte imbalance. I just started low carbing again about 3

weeks ago. That way of eating has me ingesting massive amount of salt. Lot of

eggs & bacon, pickles, soups, etc that i make that are full of salt. I am

probably just making the situation worse. My blood sugar is benefiting, but

certainly not my PA problems.It takes so much work to get into a low carb

routine. I also really latched on to the philosophy of trying to eat like our

evolutionary ancestors. DASH works into that except for dairy, grain or beans.

Humans couldnt have eaten that prior to the last 10,000 years or so. It makes

sense to me to try and adopt an eating plan that we basically might have evolved

on. But, that said, it would not have had salt in it like I am eating, nor

splenda to sweeten things like coffee. I think it goes back to what you said. Do

DASH and restrict the caloric intake, it solves most of the problems. Perhaps

the Paleo diet in its most restrictive phase would work too? But, I bet our

ancestors ate alot of bugs and worms and stuff...not something I plan to do,

lol.

Why the problem with Vitamin D? I take a ton of that just to stay normal.

Granted, i am not a sun worshiper, but even in the summer it doent go higher. Is

that tied to PA too?

Mayo told me that the Renal Leak was probably genetic and that there was nothing

I could really do about it but try to " plug " it. I am learning that is not

entirely true. It is more like the fact that I am eating a typical American diet

that HCTZ is required to undo that high salt intake.

Is there any natural way to treat PA and the high Aldo? Of will my future be

DASH and Spirno for life...assuming a tumor is not found to be removed?

> > > > > > > > >

> > > > > > > > > This is my first post, so i thought i would give a

> > little

> > > > > > > background on my diagnosis process. Sorry if it is a bit

> > long.

> > > > > > > > >

> > > > > > > > > I originally went to my family doctor in 1/2007

> > because of

> > > > > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > > > > neurologists, emgs, you name it. I was fearing I had ALS.

> > All my

> > > > > > > local docs came up with was that I had Secondary

> > > > HyperParathyroidism

> > > > > > > and possible PA.I eventually gave up on my local docs and

> > went

> > > > to

> > > > > > > Mayo Clinic. Mayro ran me through a ton of tests including

> > DEX

> > > > > > > suppression. They couldnt explain the random/constant muscle

> > > > > > > twitching for certain, but the Mayo Neuro that ran the last

> > > > emg said

> > > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing

> > > > cuase he

> > > > > > > was 100% sure it wasnt ALS.

> > > > > > > > >

> > > > > > > > > Blood work issues:

> > > > > > > > > Low Vitamin D (actually one endo told me i literally had

> > > > almost

> > > > > > > nothing in my body)

> > > > > > > > > Low normal calcium

> > > > > > > > > Low Ionized Calcium

> > > > > > > > > Low Potassium

> > > > > > > > > Low Magnesium

> > > > > > > > > Low renin /High Aldesterone (it was like 26 before any

> > meds)

> > > > > > > > > High Parathyroid hormone

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > My Endo at mayo concluded that I had mutiple things

> > going

> > > > on. I

> > > > > > > was told I had a renal calcium leak that was causing the

> > > > secondary

> > > > > > > Hyper parathyroidism, and possible PA that was causing me

> > high

> > > > ALDO

> > > > > > > and Low renin and low normal potassium. My BP was slightly

> > > > elevated

> > > > > > > but rarely ever more than 140/100. I also had alot of muscle

> > > > pain,

> > > > > > > but not cramping. I even was diagosed with fibromyalgia at

> > Mayo.

> > > > > > > They did CT scans and didnt find any tumors. I was offered

> > > > AVS, but

> > > > > > > it was advised that it wasnt worth the risk since I seemed

> > to

> > > > have

> > > > > > > such a slight case and no visable tumors. The CT showed my

> > right

> > > > > > > kidney has a birth defect. It was going to split into 2

> > > > kidneys, but

> > > > > > > didnt. SO it is oversized and has a duplicate collecting

> > > > system. I

> > > > > > > also have scaring on the lower pole of that kidney. I am

> > slow

> > > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > > > syndrome. I

> > > > > > > also pass alot of urine (I almost always top of the 24 hr

> > > > collection

> > > > > > > jug). I have to not over drink on

> > > > > > > > > the collection days or I will need a 2nd jug. I am

> > almost

> > > > always

> > > > > > > thirsty. Sometime unquenchable, but usually not.

> > > > > > > > >

> > > > > > > > > As far as treatment - I switched to a local

> > > > endocrinologist that

> > > > > > > actually worked with my Mayo doctor for his 2 yr

> > residence. He

> > > > has

> > > > > > > settled on the following meds that seems to be keeping me

> > in the

> > > > > > > normal ranges on things

> > > > > > > > >

> > > > > > > > > 25mg Hydroclorathyzide

> > > > > > > > > 50mg Spirnolactone

> > > > > > > > > 100,000IU of VitD

> > > > > > > > > 20meq of Potassium Chloride

> > > > > > > > > 1200mg Calcium

> > > > > > > > > 500mg Magnesium

> > > > > > > > > 40mg Omeprazole

> > > > > > > > >

> > > > > > > > > Even with all this, my potassium and magnesium are

> > still low

> > > > > > > normal range. My Vit D level hovers around the 40's.

> > > > > > > > >

> > > > > > > > > I slowly stopped the twitching over that last 3 years on

> > > > this

> > > > > > > drug cocktail mix and my muscle pain/weakness is much

> > better,

> > > > but i

> > > > > > > still feel off. I am a singer and the diuretics do not

> > help my

> > > > voice

> > > > > > > as all.

> > > > > > > > >

> > > > > > > > > June 2010 I ended up in ER thinking i might be having a

> > > > heart

> > > > > > > problem. It turned out to be GERD related becuase I was

> > taking

> > > > > > > Possium Citrate at the time. They did a CT to look for blood

> > > > clots

> > > > > > > in my lungs since i had just flown on a plane. Not clots,

> > but

> > > > found

> > > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > > > another

> > > > > > > CT coming up in June to make sure they are nothing to worry

> > > > about. I

> > > > > > > am going to have them also scan my kidneys to see if they

> > can

> > > > see a

> > > > > > > tumor on the adrenals now. My endo wasnt even going to look

> > > > again,

> > > > > > > but I felt since it has been 3yr and I am getting blasted

> > with

> > > > a CT

> > > > > > > that they might as well do it all at once. He agreed.

> > > > > > > > >

> > > > > > > > > My only real side effects from the drugs that are

> > > > bothersome is

> > > > > > > gynecomastia. However, that was starting before the

> > Spirno. In

> > > > fact,

> > > > > > > I had 2 mammograms and ultrasound to make sure i didnt have

> > > > breast

> > > > > > > cancer starting or something.

> > > > > > > > >

> > > > > > > > > A few questions:

> > > > > > > > > Could the neuro be wrong in that all I was really

> > > > suffering from

> > > > > > > was low potassium? I asked him what Cramp Fasiculation

> > > > Syndrome was

> > > > > > > and he told me a problem with the potassium channel. How

> > > > about, just

> > > > > > > low potassium?

> > > > > > > > >

> > > > > > > > > I am only a 45 year old male. Can i really take these

> > > > drugs the

> > > > > > > rest of my life without it causing something else to go

> > wrong?

> > > > At

> > > > > > > the rate i am going I fear I have a chest bigger than my

> > wife

> > > > in a

> > > > > > > few years time. I know that is just cosmetic, but still

> > > > annoying.

> > > > > > > > >

> > > > > > > > > Can the lung nodules be coming from anything related to

> > > > these

> > > > > > > conditions or meds?

> > > > > > > > >

> > > > > > > > > My aldesterone keeps rising higher. Shouldnt the

> > > > spirnolactone

> > > > > > > take care of that, or is it just blocking it from having

> > much

> > > > impact?

> > > > > > > > >

> > > > > > > > > Thanks again for reading this long post and I appreciate

> > > > being

> > > > > > > part of the group. I have learned alot just from reading the

> > > > > > > discussion threads.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

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Many on here have low Vitamin D. Even though they have known about PA for 50

years research is lacking on all that it does to us.

> > > > > > > > > >

> > > > > > > > > > This is my first post, so i thought i would give a

> > > little

> > > > > > > > background on my diagnosis process. Sorry if it is a bit

> > > long.

> > > > > > > > > >

> > > > > > > > > > I originally went to my family doctor in 1/2007

> > > because of

> > > > > > > > muscle twitching. All kinds of blood tests, doc visits,

> > > > > > > > neurologists, emgs, you name it. I was fearing I had ALS.

> > > All my

> > > > > > > > local docs came up with was that I had Secondary

> > > > > HyperParathyroidism

> > > > > > > > and possible PA.I eventually gave up on my local docs and

> > > went

> > > > > to

> > > > > > > > Mayo Clinic. Mayro ran me through a ton of tests including

> > > DEX

> > > > > > > > suppression. They couldnt explain the random/constant muscle

> > > > > > > > twitching for certain, but the Mayo Neuro that ran the last

> > > > > emg said

> > > > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing

> > > > > cuase he

> > > > > > > > was 100% sure it wasnt ALS.

> > > > > > > > > >

> > > > > > > > > > Blood work issues:

> > > > > > > > > > Low Vitamin D (actually one endo told me i literally had

> > > > > almost

> > > > > > > > nothing in my body)

> > > > > > > > > > Low normal calcium

> > > > > > > > > > Low Ionized Calcium

> > > > > > > > > > Low Potassium

> > > > > > > > > > Low Magnesium

> > > > > > > > > > Low renin /High Aldesterone (it was like 26 before any

> > > meds)

> > > > > > > > > > High Parathyroid hormone

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > My Endo at mayo concluded that I had mutiple things

> > > going

> > > > > on. I

> > > > > > > > was told I had a renal calcium leak that was causing the

> > > > > secondary

> > > > > > > > Hyper parathyroidism, and possible PA that was causing me

> > > high

> > > > > ALDO

> > > > > > > > and Low renin and low normal potassium. My BP was slightly

> > > > > elevated

> > > > > > > > but rarely ever more than 140/100. I also had alot of muscle

> > > > > pain,

> > > > > > > > but not cramping. I even was diagosed with fibromyalgia at

> > > Mayo.

> > > > > > > > They did CT scans and didnt find any tumors. I was offered

> > > > > AVS, but

> > > > > > > > it was advised that it wasnt worth the risk since I seemed

> > > to

> > > > > have

> > > > > > > > such a slight case and no visable tumors. The CT showed my

> > > right

> > > > > > > > kidney has a birth defect. It was going to split into 2

> > > > > kidneys, but

> > > > > > > > didnt. SO it is oversized and has a duplicate collecting

> > > > > system. I

> > > > > > > > also have scaring on the lower pole of that kidney. I am

> > > slow

> > > > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic

> > > > > syndrome. I

> > > > > > > > also pass alot of urine (I almost always top of the 24 hr

> > > > > collection

> > > > > > > > jug). I have to not over drink on

> > > > > > > > > > the collection days or I will need a 2nd jug. I am

> > > almost

> > > > > always

> > > > > > > > thirsty. Sometime unquenchable, but usually not.

> > > > > > > > > >

> > > > > > > > > > As far as treatment - I switched to a local

> > > > > endocrinologist that

> > > > > > > > actually worked with my Mayo doctor for his 2 yr

> > > residence. He

> > > > > has

> > > > > > > > settled on the following meds that seems to be keeping me

> > > in the

> > > > > > > > normal ranges on things

> > > > > > > > > >

> > > > > > > > > > 25mg Hydroclorathyzide

> > > > > > > > > > 50mg Spirnolactone

> > > > > > > > > > 100,000IU of VitD

> > > > > > > > > > 20meq of Potassium Chloride

> > > > > > > > > > 1200mg Calcium

> > > > > > > > > > 500mg Magnesium

> > > > > > > > > > 40mg Omeprazole

> > > > > > > > > >

> > > > > > > > > > Even with all this, my potassium and magnesium are

> > > still low

> > > > > > > > normal range. My Vit D level hovers around the 40's.

> > > > > > > > > >

> > > > > > > > > > I slowly stopped the twitching over that last 3 years on

> > > > > this

> > > > > > > > drug cocktail mix and my muscle pain/weakness is much

> > > better,

> > > > > but i

> > > > > > > > still feel off. I am a singer and the diuretics do not

> > > help my

> > > > > voice

> > > > > > > > as all.

> > > > > > > > > >

> > > > > > > > > > June 2010 I ended up in ER thinking i might be having a

> > > > > heart

> > > > > > > > problem. It turned out to be GERD related becuase I was

> > > taking

> > > > > > > > Possium Citrate at the time. They did a CT to look for blood

> > > > > clots

> > > > > > > > in my lungs since i had just flown on a plane. Not clots,

> > > but

> > > > > found

> > > > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have

> > > > > another

> > > > > > > > CT coming up in June to make sure they are nothing to worry

> > > > > about. I

> > > > > > > > am going to have them also scan my kidneys to see if they

> > > can

> > > > > see a

> > > > > > > > tumor on the adrenals now. My endo wasnt even going to look

> > > > > again,

> > > > > > > > but I felt since it has been 3yr and I am getting blasted

> > > with

> > > > > a CT

> > > > > > > > that they might as well do it all at once. He agreed.

> > > > > > > > > >

> > > > > > > > > > My only real side effects from the drugs that are

> > > > > bothersome is

> > > > > > > > gynecomastia. However, that was starting before the

> > > Spirno. In

> > > > > fact,

> > > > > > > > I had 2 mammograms and ultrasound to make sure i didnt have

> > > > > breast

> > > > > > > > cancer starting or something.

> > > > > > > > > >

> > > > > > > > > > A few questions:

> > > > > > > > > > Could the neuro be wrong in that all I was really

> > > > > suffering from

> > > > > > > > was low potassium? I asked him what Cramp Fasiculation

> > > > > Syndrome was

> > > > > > > > and he told me a problem with the potassium channel. How

> > > > > about, just

> > > > > > > > low potassium?

> > > > > > > > > >

> > > > > > > > > > I am only a 45 year old male. Can i really take these

> > > > > drugs the

> > > > > > > > rest of my life without it causing something else to go

> > > wrong?

> > > > > At

> > > > > > > > the rate i am going I fear I have a chest bigger than my

> > > wife

> > > > > in a

> > > > > > > > few years time. I know that is just cosmetic, but still

> > > > > annoying.

> > > > > > > > > >

> > > > > > > > > > Can the lung nodules be coming from anything related to

> > > > > these

> > > > > > > > conditions or meds?

> > > > > > > > > >

> > > > > > > > > > My aldesterone keeps rising higher. Shouldnt the

> > > > > spirnolactone

> > > > > > > > take care of that, or is it just blocking it from having

> > > much

> > > > > impact?

> > > > > > > > > >

> > > > > > > > > > Thanks again for reading this long post and I appreciate

> > > > > being

> > > > > > > > part of the group. I have learned alot just from reading the

> > > > > > > > discussion threads.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

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Interesting! So the HCTZ is basically treating my higher salt diet, which i really have paid no attention to, and in turn is increasing my potassium and magnesium loss. most ;ikelyIt is also interesting to note that during the summer of 2006 I did about a 3-4 mo low carb diet where I lost about 27 pounds. I fell off the wagon in Oct 2006. The twitching started about a month or so after I went back to my old eating habits. I often wondered if the lowcarb diet caused it, or just brought out the electrolyte imbalance. I just started low carbing again about 3 weeks ago. That way of eating has me ingesting massive amount of salt. Lot of eggs & bacon, pickles, soups, etc that i make that are full of salt. I am probably just making the situation worse. My blood sugar is benefiting, but certainly not my PA problems.It takes so much work to get into a low carb routine. I also really latched on to the philosophy of trying to eat like our evolutionary ancestors. DASH works into that except for dairy, grain or beans. but remember we have good research data that DASH is healthy. We dont have that on a caveman diet.Humans couldnt have eaten that prior to the last 10,000 years or so. It makes sense to me to try and adopt an eating plan that we basically might have evolved on. But, that said, it would not have had salt in it like I am eating, nor splenda to sweeten things like coffee. I think it goes back to what you said. Do DASH and restrict the caloric intake, it solves most of the problems. Perhaps the Paleo diet in its most restrictive phase would work too? But, I bet our ancestors ate alot of bugs and worms and stuff...not something I plan to do, lol.Why the problem with Vitamin D? I take a ton of that just to stay normal. Granted, i am not a sun worshiper, but even in the summer it doent go higher. Is that tied to PA too? Some data that not all Vit is adsorbed. so change brands or go with a prescription one?Mayo told me that the Renal Leak was probably genetic and that there was nothing I could really do about it but try to "plug" it. I am learning that is not entirely true. It is more like the fact that I am eating a typical American diet that HCTZ is required to undo that high salt intake.Right and our genes are not used to the high salt load.Is there any natural way to treat PA and the high Aldo? Of will my future be DASH and Spirno for life...assuming a tumor is not found to be removed?Not that we know of.So DASH like you life depended on it and see how little spiro you need.CE Grim MD> > > > > > > > >> > > > > > > > > This is my first post, so i thought i would give a > > little> > > > > > > background on my diagnosis process. Sorry if it is a bit > > long.> > > > > > > > >> > > > > > > > > I originally went to my family doctor in 1/2007 > > because of> > > > > > > muscle twitching. All kinds of blood tests, doc visits,> > > > > > > neurologists, emgs, you name it. I was fearing I had ALS. > > All my> > > > > > > local docs came up with was that I had Secondary> > > > HyperParathyroidism> > > > > > > and possible PA.I eventually gave up on my local docs and > > went> > > > to> > > > > > > Mayo Clinic. Mayro ran me through a ton of tests including > > DEX> > > > > > > suppression. They couldnt explain the random/constant muscle> > > > > > > twitching for certain, but the Mayo Neuro that ran the last> > > > emg said> > > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing> > > > cuase he> > > > > > > was 100% sure it wasnt ALS.> > > > > > > > >> > > > > > > > > Blood work issues:> > > > > > > > > Low Vitamin D (actually one endo told me i literally had> > > > almost> > > > > > > nothing in my body)> > > > > > > > > Low normal calcium> > > > > > > > > Low Ionized Calcium> > > > > > > > > Low Potassium> > > > > > > > > Low Magnesium> > > > > > > > > Low renin /High Aldesterone (it was like 26 before any > > meds)> > > > > > > > > High Parathyroid hormone> > > > > > > > >> > > > > > > > >> > > > > > > > > My Endo at mayo concluded that I had mutiple things > > going> > > > on. I> > > > > > > was told I had a renal calcium leak that was causing the> > > > secondary> > > > > > > Hyper parathyroidism, and possible PA that was causing me > > high> > > > ALDO> > > > > > > and Low renin and low normal potassium. My BP was slightly> > > > elevated> > > > > > > but rarely ever more than 140/100. I also had alot of muscle> > > > pain,> > > > > > > but not cramping. I even was diagosed with fibromyalgia at > > Mayo.> > > > > > > They did CT scans and didnt find any tumors. I was offered> > > > AVS, but> > > > > > > it was advised that it wasnt worth the risk since I seemed > > to> > > > have> > > > > > > such a slight case and no visable tumors. The CT showed my > > right> > > > > > > kidney has a birth defect. It was going to split into 2> > > > kidneys, but> > > > > > > didnt. SO it is oversized and has a duplicate collecting> > > > system. I> > > > > > > also have scaring on the lower pole of that kidney. I am > > slow> > > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic> > > > syndrome. I> > > > > > > also pass alot of urine (I almost always top of the 24 hr> > > > collection> > > > > > > jug). I have to not over drink on> > > > > > > > > the collection days or I will need a 2nd jug. I am > > almost> > > > always> > > > > > > thirsty. Sometime unquenchable, but usually not.> > > > > > > > >> > > > > > > > > As far as treatment - I switched to a local> > > > endocrinologist that> > > > > > > actually worked with my Mayo doctor for his 2 yr > > residence. He> > > > has> > > > > > > settled on the following meds that seems to be keeping me > > in the> > > > > > > normal ranges on things> > > > > > > > >> > > > > > > > > 25mg Hydroclorathyzide> > > > > > > > > 50mg Spirnolactone> > > > > > > > > 100,000IU of VitD> > > > > > > > > 20meq of Potassium Chloride> > > > > > > > > 1200mg Calcium> > > > > > > > > 500mg Magnesium> > > > > > > > > 40mg Omeprazole> > > > > > > > >> > > > > > > > > Even with all this, my potassium and magnesium are > > still low> > > > > > > normal range. My Vit D level hovers around the 40's.> > > > > > > > >> > > > > > > > > I slowly stopped the twitching over that last 3 years on> > > > this> > > > > > > drug cocktail mix and my muscle pain/weakness is much > > better,> > > > but i> > > > > > > still feel off. I am a singer and the diuretics do not > > help my> > > > voice> > > > > > > as all.> > > > > > > > >> > > > > > > > > June 2010 I ended up in ER thinking i might be having a> > > > heart> > > > > > > problem. It turned out to be GERD related becuase I was > > taking> > > > > > > Possium Citrate at the time. They did a CT to look for blood> > > > clots> > > > > > > in my lungs since i had just flown on a plane. Not clots, > > but> > > > found> > > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have> > > > another> > > > > > > CT coming up in June to make sure they are nothing to worry> > > > about. I> > > > > > > am going to have them also scan my kidneys to see if they > > can> > > > see a> > > > > > > tumor on the adrenals now. My endo wasnt even going to look> > > > again,> > > > > > > but I felt since it has been 3yr and I am getting blasted > > with> > > > a CT> > > > > > > that they might as well do it all at once. He agreed.> > > > > > > > >> > > > > > > > > My only real side effects from the drugs that are> > > > bothersome is> > > > > > > gynecomastia. However, that was starting before the > > Spirno. In> > > > fact,> > > > > > > I had 2 mammograms and ultrasound to make sure i didnt have> > > > breast> > > > > > > cancer starting or something.> > > > > > > > >> > > > > > > > > A few questions:> > > > > > > > > Could the neuro be wrong in that all I was really> > > > suffering from> > > > > > > was low potassium? I asked him what Cramp Fasiculation> > > > Syndrome was> > > > > > > and he told me a problem with the potassium channel. How> > > > about, just> > > > > > > low potassium?> > > > > > > > >> > > > > > > > > I am only a 45 year old male. Can i really take these> > > > drugs the> > > > > > > rest of my life without it causing something else to go > > wrong?> > > > At> > > > > > > the rate i am going I fear I have a chest bigger than my > > wife> > > > in a> > > > > > > few years time. I know that is just cosmetic, but still> > > > annoying.> > > > > > > > >> > > > > > > > > Can the lung nodules be coming from anything related to> > > > these> > > > > > > conditions or meds?> > > > > > > > >> > > > > > > > > My aldesterone keeps rising higher. Shouldnt the> > > > spirnolactone> > > > > > > take care of that, or is it just blocking it from having > > much> > > > impact?> > > > > > > > >> > > > > > > > > Thanks again for reading this long post and I appreciate> > > > being> > > > > > > part of the group. I have learned alot just from reading the> > > > > > > discussion threads.> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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On one of the earlier posts someone mentioned the high co-occurrence of parathyroid disease with PA. Is there any science on this or just an anecdotal observation. Have any of the groups member had parathyroid removal in addition to adrenal surgery and is this ever done at the same time ? LSS From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Monday, April 11, 2011 9:38 AMTo: hyperaldosteronism Cc: Clarence GrimSubject: Re: Re: PA & Renal Calcium Leak Interesting! So the HCTZ is basically treating my higher salt diet, which i really have paid no attention to, and in turn is increasing my potassium and magnesium loss. most ;ikelyIt is also interesting to note that during the summer of 2006 I did about a 3-4 mo low carb diet where I lost about 27 pounds. I fell off the wagon in Oct 2006. The twitching started about a month or so after I went back to my old eating habits. I often wondered if the lowcarb diet caused it, or just brought out the electrolyte imbalance. I just started low carbing again about 3 weeks ago. That way of eating has me ingesting massive amount of salt. Lot of eggs & bacon, pickles, soups, etc that i make that are full of salt. I am probably just making the situation worse. My blood sugar is benefiting, but certainly not my PA problems.It takes so much work to get into a low carb routine. I also really latched on to the philosophy of trying to eat like our evolutionary ancestors. DASH works into that except for dairy, grain or beans. but remember we have good research data that DASH is healthy. We dont have that on a caveman diet. Humans couldnt have eaten that prior to the last 10,000 years or so. It makes sense to me to try and adopt an eating plan that we basically might have evolved on. But, that said, it would not have had salt in it like I am eating, nor splenda to sweeten things like coffee. I think it goes back to what you said. Do DASH and restrict the caloric intake, it solves most of the problems. Perhaps the Paleo diet in its most restrictive phase would work too? But, I bet our ancestors ate alot of bugs and worms and stuff...not something I plan to do, lol.Why the problem with Vitamin D? I take a ton of that just to stay normal. Granted, i am not a sun worshiper, but even in the summer it doent go higher. Is that tied to PA too? Some data that not all Vit is adsorbed. so change brands or go with a prescription one?Mayo told me that the Renal Leak was probably genetic and that there was nothing I could really do about it but try to " plug " it. I am learning that is not entirely true. It is more like the fact that I am eating a typical American diet that HCTZ is required to undo that high salt intake.Right and our genes are not used to the high salt load.Is there any natural way to treat PA and the high Aldo? Of will my future be DASH and Spirno for life...assuming a tumor is not found to be removed? Not that we know of. So DASH like you life depended on it and see how little spiro you need. CE Grim MD> > > > > > > > >> > > > > > > > > This is my first post, so i thought i would give a > > little> > > > > > > background on my diagnosis process. Sorry if it is a bit > > long.> > > > > > > > >> > > > > > > > > I originally went to my family doctor in 1/2007 > > because of> > > > > > > muscle twitching. All kinds of blood tests, doc visits,> > > > > > > neurologists, emgs, you name it. I was fearing I had ALS. > > All my> > > > > > > local docs came up with was that I had Secondary> > > > HyperParathyroidism> > > > > > > and possible PA.I eventually gave up on my local docs and > > went> > > > to> > > > > > > Mayo Clinic. Mayro ran me through a ton of tests including > > DEX> > > > > > > suppression. They couldnt explain the random/constant muscle> > > > > > > twitching for certain, but the Mayo Neuro that ran the last> > > > emg said> > > > > > > Cramp Fasiculation Syndrome. At the time we was rejoicing> > > > cuase he> > > > > > > was 100% sure it wasnt ALS.> > > > > > > > >> > > > > > > > > Blood work issues:> > > > > > > > > Low Vitamin D (actually one endo told me i literally had> > > > almost> > > > > > > nothing in my body)> > > > > > > > > Low normal calcium> > > > > > > > > Low Ionized Calcium> > > > > > > > > Low Potassium> > > > > > > > > Low Magnesium> > > > > > > > > Low renin /High Aldesterone (it was like 26 before any > > meds)> > > > > > > > > High Parathyroid hormone> > > > > > > > >> > > > > > > > >> > > > > > > > > My Endo at mayo concluded that I had mutiple things > > going> > > > on. I> > > > > > > was told I had a renal calcium leak that was causing the> > > > secondary> > > > > > > Hyper parathyroidism, and possible PA that was causing me > > high> > > > ALDO> > > > > > > and Low renin and low normal potassium. My BP was slightly> > > > elevated> > > > > > > but rarely ever more than 140/100. I also had alot of muscle> > > > pain,> > > > > > > but not cramping. I even was diagosed with fibromyalgia at > > Mayo.> > > > > > > They did CT scans and didnt find any tumors. I was offered> > > > AVS, but> > > > > > > it was advised that it wasnt worth the risk since I seemed > > to> > > > have> > > > > > > such a slight case and no visable tumors. The CT showed my > > right> > > > > > > kidney has a birth defect. It was going to split into 2> > > > kidneys, but> > > > > > > didnt. SO it is oversized and has a duplicate collecting> > > > system. I> > > > > > > also have scaring on the lower pole of that kidney. I am > > slow> > > > > > > borderline type 2 diabetic (6.2 a1c) and basic metabolic> > > > syndrome. I> > > > > > > also pass alot of urine (I almost always top of the 24 hr> > > > collection> > > > > > > jug). I have to not over drink on> > > > > > > > > the collection days or I will need a 2nd jug. I am > > almost> > > > always> > > > > > > thirsty. Sometime unquenchable, but usually not.> > > > > > > > >> > > > > > > > > As far as treatment - I switched to a local> > > > endocrinologist that> > > > > > > actually worked with my Mayo doctor for his 2 yr > > residence. He> > > > has> > > > > > > settled on the following meds that seems to be keeping me > > in the> > > > > > > normal ranges on things> > > > > > > > >> > > > > > > > > 25mg Hydroclorathyzide> > > > > > > > > 50mg Spirnolactone> > > > > > > > > 100,000IU of VitD> > > > > > > > > 20meq of Potassium Chloride> > > > > > > > > 1200mg Calcium> > > > > > > > > 500mg Magnesium> > > > > > > > > 40mg Omeprazole> > > > > > > > >> > > > > > > > > Even with all this, my potassium and magnesium are > > still low> > > > > > > normal range. My Vit D level hovers around the 40's.> > > > > > > > >> > > > > > > > > I slowly stopped the twitching over that last 3 years on> > > > this> > > > > > > drug cocktail mix and my muscle pain/weakness is much > > better,> > > > but i> > > > > > > still feel off. I am a singer and the diuretics do not > > help my> > > > voice> > > > > > > as all.> > > > > > > > >> > > > > > > > > June 2010 I ended up in ER thinking i might be having a> > > > heart> > > > > > > problem. It turned out to be GERD related becuase I was > > taking> > > > > > > Possium Citrate at the time. They did a CT to look for blood> > > > clots> > > > > > > in my lungs since i had just flown on a plane. Not clots, > > but> > > > found> > > > > > > 3 nodules in my right lung ( all 5mm or less). So now I have> > > > another> > > > > > > CT coming up in June to make sure they are nothing to worry> > > > about. I> > > > > > > am going to have them also scan my kidneys to see if they > > can> > > > see a> > > > > > > tumor on the adrenals now. My endo wasnt even going to look> > > > again,> > > > > > > but I felt since it has been 3yr and I am getting blasted > > with> > > > a CT> > > > > > > that they might as well do it all at once. He agreed.> > > > > > > > >> > > > > > > > > My only real side effects from the drugs that are> > > > bothersome is> > > > > > > gynecomastia. However, that was starting before the > > Spirno. In> > > > fact,> > > > > > > I had 2 mammograms and ultrasound to make sure i didnt have> > > > breast> > > > > > > cancer starting or something.> > > > > > > > >> > > > > > > > > A few questions:> > > > > > > > > Could the neuro be wrong in that all I was really> > > > suffering from> > > > > > > was low potassium? I asked him what Cramp Fasiculation> > > > Syndrome was> > > > > > > and he told me a problem with the potassium channel. How> > > > about, just> > > > > > > low potassium?> > > > > > > > >> > > > > > > > > I am only a 45 year old male. Can i really take these> > > > drugs the> > > > > > > rest of my life without it causing something else to go > > wrong?> > > > At> > > > > > > the rate i am going I fear I have a chest bigger than my > > wife> > > > in a> > > > > > > few years time. I know that is just cosmetic, but still> > > > annoying.> > > > > > > > >> > > > > > > > > Can the lung nodules be coming from anything related to> > > > these> > > > > > > conditions or meds?> > > > > > > > >> > > > > > > > > My aldesterone keeps rising higher. Shouldnt the> > > > spirnolactone> > > > > > > take care of that, or is it just blocking it from having > > much> > > > impact?> > > > > > > > >> > > > > > > > > Thanks again for reading this long post and I appreciate> > > > being> > > > > > > part of the group. I have learned alot just from reading the> > > > > > > discussion threads.> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

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