Re: Re: Excited to find this group!

January 2, 2011

You have primary aldosteronism (at least based on what you have sent us) and need to start DASHing now we would recommend.Read my article on PA and take to all of your Drs. CE Grim MDThanks for the reply. I am familiar with the dash diet, but I do not know what the MCBs test is. When in the hospital due to the temporary paralysis, I had multiple labs done, so I will try to post the relevant numbers you asked for.My blood test while laying supine was Renin 0.1, Aldosterone 4.1, potassium 1.4. After I got out of the hospital, I did a 24 hour aldosterone urine collection, which gave me the number 24.7.From what the doctors at the hospital told me, my renin is very low, aldosterone is normal-high, but my ARR is very high.Thanks for any help.> > > Hi all,> >> > I've read through many of your stories, and it is quite refreshing > > to finally find people that experience what I've experienced. My > > story is similar to most everyone elses: I am 30 and a few years ago > > I started having extreme migraines, especially after drinking > > alcohol. The doctors all claimed I had medication-resistant > > hypertension. I was taking 5 BP meds of the strongest dose to try to > > even slightly bring down my BP. I got on FMLA at work to protect my > > job because the side effects of the medication were hard for me: > > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of > > Absence from work. A month later, I woke up paralyzed from the chest > > down. My potassium had dropped to 1.4, I don't know in what > > measurement. That's when they realized I had hyperaldosterone. > > Sadly, since I now no longer have insurance, I can no longer afford > > to follow up on my treatment. The next step for me was the AVS to > > narrow down which adrenal is hyperactive, and then talk solutions. > > Currently, I'm maintaining myself by taking 50mg of Spiro twice each > > day.> >> > I look forward to keeping up with this group. Thanks. - Xander> >> >> >>

January 2, 2011

Hi,The paralysis was very scary because I didn't even know I had hyperaldosteronism at the time. I thought I just had medication-resistant high BP. This is the reason my article is subtitled why it is so common today in drug resistant HTN.So when I woke that one morning and couldn't move anything below my neck, except my fingers a little bit, I thought I had a stroke. I was in the hospital for 5 days total, the first two days I couldn't move. The third day I could sit up and walk a little.My BP before taking spiro was typically 165/110. I almost always had a headache. When it would bump to 180/130, the headaches would get so bad I thought my head was going to explode. Those would be the times that I would go to the ER just to have them temporarily bring down my BP, charge me $125, and scratch their heads in disbelief at my BP.This is the reason some hire me to help get their problem straightened out. As you can tell I would have had the Dx before you went to the hosp I suspect.How many times a night do (did) you get up to pee.CE Grim MD> > > Subject: Excited to find this group!> To: hyperaldosteronism > Date: Friday, 17 December, 2010, 6:49 AM> > > > > > > > Â > > > > > > > > > > Hi all,> > > > I've read through many of your stories, and it is quite refreshing to finally find people that experience what I've experienced. My story is similar to most everyone elses: I am 30 and a few years ago I started having extreme migraines, especially after drinking alcohol. The doctors all claimed I had medication-resistant hypertension. I was taking 5 BP meds of the strongest dose to try to even slightly bring down my BP. I got on FMLA at work to protect my job because the side effects of the medication were hard for me: dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of Absence from work. A month later, I woke up paralyzed from the chest down. My potassium had dropped to 1.4, I don't know in what measurement. That's when they realized I had hyperaldosterone. Sadly, since I now no longer have insurance, I can no longer afford to follow up on my treatment. The next step for me was the AVS to narrow down which adrenal is hyperactive,> and then talk solutions. Currently, I'm maintaining myself by taking 50mg of Spiro twice each day.> > > > I look forward to keeping up with this group. Thanks. - Xander>

January 3, 2011

Every Dr. learned about it in Medical School unless they skipped that day-but were told it was very rare and they would never see a case.Dr. Conn estimated 24% of all HTN would have it in 1964 but it has only been easy to test for for about 10 years. Read my article yet?Take to every Dr who missed you in the past so they do not miss all the others they are seeing.As HTN is the most common reason to see a Dr. for a chronic problem most should be seeing lots of them. CE Grim, MDBefore taking Spiro, I would get up about 2 or 3 times each night to urinate. Now, I just urinate before bed and when I wake up in the morning.I'm surprised more doctors don't know about this condition. Is PA that rare? I though I read somewhere that 30% of people with hypertension really have PA.> > >> > > From: novionx <novionx@>> > > Subject: Excited to find this group!> > > To: hyperaldosteronism > > > Date: Friday, 17 December, 2010, 6:49 AM> > >> > >> > >> > >> > >> > >> > >> > > Â> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Hi all,> > >> > >> > >> > > I've read through many of your stories, and it is quite refreshing > > to finally find people that experience what I've experienced. My > > story is similar to most everyone elses: I am 30 and a few years ago > > I started having extreme migraines, especially after drinking > > alcohol. The doctors all claimed I had medication-resistant > > hypertension. I was taking 5 BP meds of the strongest dose to try to > > even slightly bring down my BP. I got on FMLA at work to protect my > > job because the side effects of the medication were hard for me: > > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of > > Absence from work. A month later, I woke up paralyzed from the chest > > down. My potassium had dropped to 1.4, I don't know in what > > measurement. That's when they realized I had hyperaldosterone. > > Sadly, since I now no longer have insurance, I can no longer afford > > to follow up on my treatment. The next step for me was the AVS to > > narrow down which adrenal is hyperactive,> > > and then talk solutions. Currently, I'm maintaining myself by > > taking 50mg of Spiro twice each day.> > >> > >> > >> > > I look forward to keeping up with this group. Thanks. - Xander> > >> >> >> >>

January 3, 2011

You would think the makers of Inspra would be pushing this on TV. It is one of the most expensive BP meds.The drug companies never push looking for secondary causes or measuring BP correctly. Too much to lose IMHO.CE Grim MD"I'm surprised more doctors don't know about this condition." This is what we all want to know. The American Heart Association says that at least 10% of of those that Dr are treating for high blood pressure have PA. This means that one out of ten have PA. Not rare by a long ways. The question is why someing this common is missed by so many Dr. Do the drug companies have this much control? After all they would lose a lot of money if more of us were treated with only one drug instead of 3 or more. > > > >> > > > From: novionx <novionx@>> > > > Subject: Excited to find this group!> > > > To: hyperaldosteronism > > > > Date: Friday, 17 December, 2010, 6:49 AM> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > Â> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > Hi all,> > > >> > > >> > > >> > > > I've read through many of your stories, and it is quite refreshing > > > to finally find people that experience what I've experienced. My > > > story is similar to most everyone elses: I am 30 and a few years ago > > > I started having extreme migraines, especially after drinking > > > alcohol. The doctors all claimed I had medication-resistant > > > hypertension. I was taking 5 BP meds of the strongest dose to try to > > > even slightly bring down my BP. I got on FMLA at work to protect my > > > job because the side effects of the medication were hard for me: > > > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of > > > Absence from work. A month later, I woke up paralyzed from the chest > > > down. My potassium had dropped to 1.4, I don't know in what > > > measurement. That's when they realized I had hyperaldosterone. > > > Sadly, since I now no longer have insurance, I can no longer afford > > > to follow up on my treatment. The next step for me was the AVS to > > > narrow down which adrenal is hyperactive,> > > > and then talk solutions. Currently, I'm maintaining myself by > > > taking 50mg of Spiro twice each day.> > > >> > > >> > > >> > > > I look forward to keeping up with this group. Thanks. - Xander> > > >> > >> > >> > >> >>

January 3, 2011

I have the impression many doctors are afraid to diagnose anything they don't see their colleagues diagnosing. Nobody wants to stick out. You might think a doc would want to be the first in the practice to bring down a zebra, but more often the opposite appears to be closer to the truth. Must be something about the medical school experience, I don't know.

Every Dr. learned about it in Medical School unless they skipped that day-but were told it was very rare and they would never see a case.

Dr. Conn estimated 24% of all HTN would have it in 1964 but it has only been easy to test for for about 10 years.

Read my article yet?

Take to every Dr who missed you in the past so they do not miss all the others they are seeing.

As HTN is the most common reason to see a Dr. for a chronic problem most should be seeing lots of them.

CE Grim, MD

Before taking Spiro, I would get up about 2 or 3 times each night to urinate. Now, I just urinate before bed and when I wake up in the morning.

I'm surprised more doctors don't know about this condition. Is PA that rare? I though I read somewhere that 30% of people with hypertension really have PA.

> > >

> > > From: novionx <novionx@>

> > > Subject: Excited to find this group!

> > > To: hyperaldosteronism

> > > Date: Friday, 17 December, 2010, 6:49 AM

> > >

> > > Ã‚

> > >

> > > Hi all,

> > >

> > > I've read through many of your stories, and it is quite refreshing

> > to finally find people that experience what I've experienced. My

> > story is similar to most everyone elses: I am 30 and a few years ago

> > I started having extreme migraines, especially after drinking

> > alcohol. The doctors all claimed I had medication-resistant

> > hypertension. I was taking 5 BP meds of the strongest dose to try to

> > even slightly bring down my BP. I got on FMLA at work to protect my

> > job because the side effects of the medication were hard for me:

> > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of

> > Absence from work. A month later, I woke up paralyzed from the chest

> > down. My potassium had dropped to 1.4, I don't know in what

> > measurement. That's when they realized I had hyperaldosterone.

> > Sadly, since I now no longer have insurance, I can no longer afford

> > to follow up on my treatment. The next step for me was the AVS to

> > narrow down which adrenal is hyperactive,

> > > and then talk solutions. Currently, I'm maintaining myself by

> > taking 50mg of Spiro twice each day.

> > >

> > > I look forward to keeping up with this group. Thanks. - Xander

> > >

> >

>

January 6, 2011

as my advice,always have banana with u to eat it to increase your potassium and to prevent an exaggerated hypokalemia or paralyze from abbie.Before taking Spiro, I would get up about 2 or 3 times each night to urinate. Now, I just urinate before bed and when I wake up in the morning.I'm surprised more doctors don't know about this condition. Is PA that rare? I though I read somewhere that 30% of people with hypertension really have PA.> > >> > > From: novionx <novionx@>> > > Subject: Excited to find this group!> > > To: hyperaldosteronism > > > Date: Friday, 17 December, 2010, 6:49 AM> > >> > >> > >> > >> > >> > >> > >> > > Ã‚> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Hi all,> > >> > >> > >> > > I've read through many of your stories, and it is quite refreshing > > to finally find people that experience what I've experienced. My > >

story is similar to most everyone elses: I am 30 and a few years ago > > I started having extreme migraines, especially after drinking > > alcohol. The doctors all claimed I had medication-resistant > > hypertension. I was taking 5 BP meds of the strongest dose to try to > > even slightly bring down my BP. I got on FMLA at work to protect my > > job because the side effects of the medication were hard for me: > > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of > > Absence from work. A month later, I woke up paralyzed from the chest > > down. My potassium had dropped to 1.4, I don't know in what > > measurement. That's when they realized I had hyperaldosterone. > > Sadly, since I now no longer have insurance, I can no longer afford > > to follow up on my treatment. The next step for me was the AVS to > > narrow down which adrenal is hyperactive,> > > and then talk solutions. Currently, I'm maintaining myself by > > taking

50mg of Spiro twice each day.> > >> > >> > >> > > I look forward to keeping up with this group. Thanks. - Xander> > >> >> >> >>

January 6, 2011

Better to carry low Na V8 and DASH. EATING TOO much salt drives the K down. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

as my advice,always have banana with u to eat it to increase your potassium and to prevent an exaggerated hypokalemia or paralyze from abbie.Before taking Spiro, I would get up about 2 or 3 times each night to urinate. Now, I just urinate before bed and when I wake up in the morning.I'm surprised more doctors don't know about this condition. Is PA that rare? I though I read somewhere that 30% of people with hypertension really have PA.> > >> > > From: novionx <novionx@>> > > Subject: Excited to find this group!> > > To: hyperaldosteronism > > > Date: Friday, 17 December, 2010, 6:49 AM> > >> > >> > >> > >> > >> > >> > >> > > Ã‚> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Hi all,> > >> > >> > >> > > I've read through many of your stories, and it is quite refreshing > > to finally find people that experience what I've experienced. My > >

story is similar to most everyone elses: I am 30 and a few years ago > > I started having extreme migraines, especially after drinking > > alcohol. The doctors all claimed I had medication-resistant > > hypertension. I was taking 5 BP meds of the strongest dose to try to > > even slightly bring down my BP. I got on FMLA at work to protect my > > job because the side effects of the medication were hard for me: > > dizzy, nausea, etc. I exhausted my FMLA, had to take a Leave of > > Absence from work. A month later, I woke up paralyzed from the chest > > down. My potassium had dropped to 1.4, I don't know in what > > measurement. That's when they realized I had hyperaldosterone. > > Sadly, since I now no longer have insurance, I can no longer afford > > to follow up on my treatment. The next step for me was the AVS to > > narrow down which adrenal is hyperactive,> > > and then talk solutions. Currently, I'm maintaining myself by > > taking

50mg of Spiro twice each day.> > >> > >> > >> > > I look forward to keeping up with this group. Thanks. - Xander> > >> >> >> >>

January 6, 2011

My doc also used to recommend bananas for me due to low K...gradually he added to my K supplements and I calculated if I had to follow his advice, I had to eat 41 bananas daily! Even a monkey explodes with that many bananas! Try on your monkeys in Philippines and share the results.

as my advice,always have banana with u to eat it to increase your potassium and to prevent an exaggerated hypokalemia or paralyze from abbie.

January 6, 2011

8oz low na v8 = 1200 mg kTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

My doc also used to recommend bananas for me due to low K...gradually he added to my K supplements and I calculated if I had to follow his advice, I had to eat 41 bananas daily! Even a monkey explodes with that many bananas! Try on your monkeys in Philippines and share the results.

as my advice,always have banana with u to eat it to increase your potassium and to prevent an exaggerated hypokalemia or paralyze from abbie.

January 6, 2011

V8 looks excellent choice, hard to find low Na V8... they put so much Na in V8 that it appears that low Na V8 is called V7 !

8oz low na v8 = 1200 mg k

January 6, 2011

Maybe the spicy low sodium one.CE Grim Some only has 820 mg in 8 oz> > > > > > > >>

January 8, 2011

Maybe my can was 12 Oz. Anyway a good way to get K. Thanks.CEOn Jan 7, 2011, at 11:58 AM, Francis Bill SUSPECTED PA wrote:The label reads low sodium V8. Heart Healthy 2/3 less sodium. It is the low sodium that is in there store. 140 MG of sodium and 820 MG potassium in serving size of 8 OZ. I also have 12 OZ can Sevving size is one can. 200 MG sodium and 1180 mg potassium. > > > >> > > >> > > >> > > >> > >> >> >> >>

January 11, 2011

eat broccoli and cauliflower bec. it is high in Potassium in any other fruits or vegetables..you don't have to eat 41 bananas a day. at least bananas still can support your Hypokalemia. from abbie.BTW, i am away or far from a lot monkeys.The label reads low sodium V8. Heart Healthy 2/3 less sodium. It is the low sodium that is in there store. 140 MG of sodium and 820 MG potassium in serving size of 8 OZ. I also have 12 OZ can Sevving size is one can.

200 MG sodium and 1180 mg potassium. > > > >> > > >> > > >> > > >> > >> >> >>

>>

January 11, 2011

when a person is depressed,banana and chocolate can help to eliminate depression. from abbie. at least there is a suggestion and solution than nothing to share.

January 11, 2011

what is V8 and V7? from abbieSubject: RE: Re: Excited to find this group!To: hyperaldosteronism Date: Friday, 7 January, 2011, 7:59 AM

V8 looks excellent choice, hard to find low Na V8... they put so much Na in V8 that it appears that low Na V8 is called V7 !

8oz low na v8 = 1200 mg k

January 12, 2011

What'S ARR? from abbieSubject: Re: Excited to find this group!To: hyperaldosteronism Date: Monday, 3 January, 2011, 4:45 AM

Thanks for the reply. I am familiar with the dash diet, but I do not know what the MCBs test is. When in the hospital due to the temporary paralysis, I had multiple labs done, so I will try to post the relevant numbers you asked for.

My blood test while laying supine was Renin 0.1, Aldosterone 4.1, potassium 1.4. After I got out of the hospital, I did a 24 hour aldosterone urine collection, which gave me the number 24.7.

From what the doctors at the hospital told me, my renin is very low, aldosterone is normal-high, but my ARR is very high.

Thanks for any help.

>

> > Hi all,

> >

> > I've read through many of your stories, and it is quite refreshing