Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 > > > > Thank you so much for allowing me in this forum. I am new to perfumery. I have read about this and did some > practice blendings of essential oils. Have also used the manoi de tahiti oil for perfumery. But, alas, that is about it. > > I have been using the book " Perfumes, Splashes & Colognes " by Booth. And I do research on the web always > reading about blending essential oils hoping to learn. > > I did try my hand recently and have a blend of patchouli, ylang yland, chamomile and rosewood. It is maybe a chypre > blend? Not bad either. It is not a floral and not a citrus and I enjoy wearing this. > > I will be reading the files and posts and hope you will bear with me as I learn! > > Thank you. > > Carole > > Welcome Carol You'll enjopy it here, and soon wish for a pot of gold, so you can purchase an endless array of aromatics! Margi Brisbane, Australia http://margihealing.wordpress.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Hi Carole!Welcome! Here's hoping you the most fragrant well wishes and greetings,Aerhttp://www.hausofwaft.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 > > Thank you so much for allowing me in this forum. I am new to perfumery. I have read about this and did some > practice blendings of essential oils. Have also used the manoi de tahiti oil for perfumery. But, alas, that is about it. > > I have been using the book " Perfumes, Splashes & Colognes " by Booth. And I do research on the web always > reading about blending essential oils hoping to learn. > > I did try my hand recently and have a blend of patchouli, ylang yland, chamomile and rosewood. It is maybe a chypre > blend? Not bad either. It is not a floral and not a citrus and I enjoy wearing this. > > I will be reading the files and posts and hope you will bear with me as I learn! > > Thank you. > > Carole Hi Carole: No offense to the author of that book, but there are many books superior to that on the market. I'll let the others here recommend their favorites, because I'd like you to get the most responses possible. Your blend is not a chypre, but I'm glad you enjoy it. Anya McCoy http://AnyasGarden.com http://PerfumeClasses.com http://NaturalPerfumers.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I'll let the others here recommend their favorites, because I'd like you to get the most responses possible. Your blend is not a chypre, but I'm glad you enjoy it. Anya McCoy http://AnyasGarden.com http://PerfumeClasses.com http://NaturalPerfumers.com Thank you Anya! I would appreciate guidance on my reading material for perfumery. I was not sure about the blend as I am sooo green. I did forget to mention that I used lavender as well in the blend ... but I will read the files, learn and experiment! I did not know that essential oils were diluted for perfumery, they are so concentrated. I am going to dilute the very strong ones I have that you discuss in your podcast. I want to have them diluted for sure. Off to read the files.......... Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 > Thank you Anya! I would appreciate guidance on my reading material for perfumery. > > I was not sure about the blend as I am sooo green. I did forget to mention that I used lavender as well in the blend ... but I will read the files, learn and experiment! > > I did not know that essential oils were diluted for perfumery, they are so concentrated. I am going to dilute > the very strong ones I have that you discuss in your podcast. I want to have them diluted for sure. > > Off to read the files.......... > Hi Carole....... You will probably run across this recommendation in the files, too.... 'Essence and Alchemy' by Mandy Aftel....Is a very good primer for Natural Perfumery...Under $20 on Amazon, last time I checked... -- W. Bourbonais L'Hermite Aromatique A.J.P. (GIA) http://www.facebook.com/Le.Hermite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 'Essence and Alchemy' by Mandy Aftel....Is a very good primer for Natural Perfumery...Under $20 on Amazon, last time I checked... -- W. Bourbonais L'Hermite Aromatique A.J.P. (GIA) http://www.facebook.com/Le.Hermite Thank you ! I found a copy of it to download onto my Kindle! Not a bad price either! $6.99 It is a 5 star review book and got rave reviews. The ones who gave it two stars were not perfumers and reading it just as a non-fiction entertaining book and not to learn perfuming! I have so much reading to do between the files, on line and now this book on my Kindle - LOL... I am taking notes too! But, once I get a circular bit of knowledge to jump off and go at it , I will enjoy making perfumes so much more. My essential oils are too expensive to play around with and not know what I am doing, what blends lovely and what not to use too heavily!! Thank you for the book recommendation! Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 > Thank you ! > I found a copy of it to download onto my Kindle! Not a bad price . > either! $6.99 .. .. .. > My essential oils are too expensive to play around with and not know > what I am doing, what blends lovely and what not to > use too heavily!! Hi Again.... Carole, the other thing I can recommend is to play with and sample personally, your essences...Not just EOs, but absolutes, concretes, tinctures and infusions...Perhaps informally at first, and then strip drydowns (can use coffee filters, too) to familiarize yourself with what they do....Try simple combinations that occur to you...That will give you sensory backup, to what you are reading... Oh Yeah....And Have Fun.....<G>...! -- W. Bourbonais L'Hermite Aromatique A.J.P. (GIA) http://www.facebook.com/Le.Hermite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Carole, I realized this week that it has been three years since I embarked on my self-study total immersion program for the art of natural perfume. I've read every book on the subject that I could get my hands on, bought as many EO's, CO2's and Absolutes that I could afford to buy, and have talked to as many NPers that I could find to talk to. I also realized that I now know the attributes of all the oils I work with (over 150), can identify each of them blindfolded, and can actually visualize what a blend will smell like just by looking at the ingredients! It took awhile but you will get there if you persevere. And you've definitely come to the right place to share and receive knowledge. Welcome! :0) Sonsa Rae www.sonsaraeskincare.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Carole, I realized this week that it has been three years since I embarked on my self-study total immersion program for the art of natural perfume. Thank you Sonsa! I have done nothing for three day but read, read, read! Much studying involved yes!! I have worked with essential oils in soaps, lotions and natural dusting powders. Blending EOs to make something divinely scented is an art form! I have not worked with absolutes, concretes but have worked with herbs and know how to tincture and I do infusions. Just not have done these to make perfumes.. Thank you for the warm welcome! Carole .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Hi Don, Last year I was at your position. While doc/endo continue to control your bp by Spiro, endo will arrange tests to find out which adrenal adenoma (left/right/both) is there and generates aldosterone (aldo). You have the choice of AVS or Scintiscan like NP59 nuclear imaging to find that out. After finding which side is your adenoma then if it is left/right you have the choice of surgerically remove it, but if adenoma are on right+left then there is no surgery and you continue to control bp by medications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Hi Don:Based on your results you have PA. Starting Spiro is a good way of controlling the bp but please let us know what other medication you are taking. Also if you are to see an endo soon, he/she may want to run other tests and perhaps suggest to do an Adrenal Vein Sampling. If it gets to that do keep in mind that you have to get off Spiro for 6-8 weeks for an accurate sampling. My endo didn't want me to start Spiro until I did the AVS. Each doctor's approach is of course different.Farah I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/h Aldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results. My doc prescribed Spironolactone, 50 mg daily. Next I have an appointment with an endocrinologist. What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Don, welcome. You have PA. As soon as you get yourself situated, you should notify all those docs who missed it for the last 20 years. Misdiagnosis, BTW, puts you in a very, very big club. Has anyone suggested you DASH? 50 mg spiro is not a lot; you may need more. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Don I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/h Aldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results. My doc prescribed Spironolactone, 50 mg daily. Next I have an appointment with an endocrinologist. What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 My approach is to do AVS only if DASH and meds have failed. But I have only been doing this for 45 years. Maybe you will find a Dr who has been doing it longer and has more experience.CE Grim MDHi Don:Based on your results you have PA. Starting Spiro is a good way of controlling the bp but please let us know what other medication you are taking. Also if you are to see an endo soon, he/she may want to run other tests and perhaps suggest to do an Adrenal Vein Sampling. If it gets to that do keep in mind that you have to get off Spiro for 6-8 weeks for an accurate sampling. My endo didn't want me to start Spiro until I did the AVS. Each doctor's approach is of course different.Farah I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/hAldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results.My doc prescribed Spironolactone, 50 mg daily.Next I have an appointment with an endocrinologist.What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Have you had a CT or MRI of your kidneys and adrenals? Mine showed up after several years as a right adrenal adenoma. I'd been struggling w/PA for several years. I had a right adrenalectomy (no AVS) on 12.15.10 and I'm doing great! I'm not saying that works for everyone but I'm all for the less invasive tests to start. Juli I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/h Aldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results. My doc prescribed Spironolactone, 50 mg daily. Next I have an appointment with an endocrinologist. What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 How much K do you take? Juli I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/h Aldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results. My doc prescribed Spironolactone, 50 mg daily. Next I have an appointment with an endocrinologist. What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Dr Grim – I know you have stated that approach – “NO AVS unlessDASH & spiro fail” multiple times. Can you help me (us?) understand why you feel that approach is better than having AVS and knowing, with certainty, which adrenal(s) is over-performing? I have tremendous respect for your knowledge. But from a verysimple, ordinary person (that would be me), I keep thinking that knowing exactly what you’re dealing with gives you options (surgery or meds/diet), which can only be a good thing. Also -- and possibly related? I am not being very successful in findinginfo about living with one adrenal. My right adrenal is over-producingaldosterone, and my doc is recommending surgery. I look forward to your response. Thanks for all you do for the all of ustrying to understand and live with this disease! Laskomslasko@... http://abrokencompass.comCompass Media, LLC From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Tuesday, January 25, 2011 8:17 AMTo: hyperaldosteronism Cc: Clarence GrimSubject: Re: A newbie My approach is to do AVS only if DASH and meds have failed. But I have only been doing this for 45 years. Maybe you will find a Dr who has been doing it longer and has more experience. CE Grim MD Hi Don: Based on your results you have PA. Starting Spiro is a good way of controlling the bp but please let us know what other medication you are taking. Also if you are to see an endo soon, he/she may want to run other tests and perhaps suggest to do an Adrenal Vein Sampling. If it gets to that do keep in mind that you have to get off Spiro for 6-8 weeks for an accurate sampling. My endo didn't want me to start Spiro until I did the AVS. Each doctor's approach is of course different.Farah I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/hAldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results.My doc prescribed Spironolactone, 50 mg daily.Next I have an appointment with an endocrinologist.What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 How do you know your right adrenal is overproducing if you haven't had AVS done? AVS carries risk, even IF you are fortunate to find an epert to perform the test as there aren't many out there with enough experience do do it right. One potential and serious risk is that one, or worse yet, BOTH adrenals get infarcted during the procedure and then you really have problems. There are other serious risks like bleeding, infection, etc. > > > > > > I'm new to the group, and new to hyperaldosteronism. I am 57, and have been > on BP meds since my late 30's. I've had chronic fatigue almost as long, and > recently started on insulin. I have chronically low K. I have not yet > adopted the DASH diet, but it appears that I may be doing so very soon. > > > > My new doctor suspects hyperaldosteronism. I just got some test results > today: > > > > Plasma Renin Activity = 0.04 ng/ml/h > > Aldosterone = 14 ng/dL > > > > Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of > 0.9 - 28.9 > > > > I would appreciate an interpretation of these results. > > My doc prescribed Spironolactone, 50 mg daily. > > Next I have an appointment with an endocrinologist. > > What should I ask? Demand? Expect? > > > > I am an engineer, so technical details are of interest to me. I treat my > medical situation like I treat most other challenges - like a science > experiment. I'm willing to share most other medical/personal details that > may be important to reaching an understanding of my situation, and I hope, a > resolution. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 I did have AVS a few weeks ago. My right adrenal is over-producing --nearly 4 times as much as is normal. Laskomommyblogger extraordinaireCompass Media, LLChttp://abrokencompass.comSent from my iPad How do you know your right adrenal is overproducing if you haven't had AVS done? AVS carries risk, even IF you are fortunate to find an epert to perform the test as there aren't many out there with enough experience do do it right. One potential and serious risk is that one, or worse yet, BOTH adrenals get infarcted during the procedure and then you really have problems. There are other serious risks like bleeding, infection, etc. > > > > > > I'm new to the group, and new to hyperaldosteronism. I am 57, and have been > on BP meds since my late 30's. I've had chronic fatigue almost as long, and > recently started on insulin. I have chronically low K. I have not yet > adopted the DASH diet, but it appears that I may be doing so very soon. > > > > My new doctor suspects hyperaldosteronism. I just got some test results > today: > > > > Plasma Renin Activity = 0.04 ng/ml/h > > Aldosterone = 14 ng/dL > > > > Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of > 0.9 - 28.9 > > > > I would appreciate an interpretation of these results. > > My doc prescribed Spironolactone, 50 mg daily. > > Next I have an appointment with an endocrinologist. > > What should I ask? Demand? Expect? > > > > I am an engineer, so technical details are of interest to me. I treat my > medical situation like I treat most other challenges - like a science > experiment. I'm willing to share most other medical/personal details that > may be important to reaching an understanding of my situation, and I hope, a > resolution. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Dont ever tell us you have "low K". Give us the numbers if you want us to help!CE Grim MDHow much K do you take? Juli I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/hAldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results.My doc prescribed Spironolactone, 50 mg daily.Next I have an appointment with an endocrinologist.What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 So you have already had an AVS if you know your right adrenal is the culprit.1. Cost up to $28,000 for an AVS2. Risk of AVS: adrenal death, bleeding, pain, failure to do it right (about 50% of the time here). Doing it twice will cost 2x as much.3. Even with AVS only about 50% end up with long term cure.4. Adrenal surgery is not with out risk.5. No evidence that surgery is better than medical Rx over the long haul-a proper trial has never been done on this. 6. Read the article in our files by Bravo on long term Rx. Read our files on failed AVS. You can search all of our post for failed going back 10 years now.CE Grim MDDr Grim – I know you have stated that approach – “NO AVS unlessDASH & spiro fail” multiple times. Can you help me (us?) understand why you feel that approach is better than having AVS and knowing, with certainty, which adrenal(s) is over-performing? I have tremendous respect for your knowledge. But from a verysimple, ordinary person (that would be me), I keep thinking that knowing exactly what you’re dealing with gives you options (surgery or meds/diet), which can only be a good thing. Also -- and possibly related? I am not being very successful in findinginfo about living with one adrenal. My right adrenal is over-producingaldosterone, and my doc is recommending surgery. I look forward to your response. Thanks for all you do for the all of ustrying to understand and live with this disease! Laskomslasko@... http://abrokencompass.comCompass Media, LLC From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Tuesday, January 25, 2011 8:17 AMTo: hyperaldosteronism Cc: Clarence GrimSubject: Re: A newbie My approach is to do AVS only if DASH and meds have failed. But I have only been doing this for 45 years. Maybe you will find a Dr who has been doing it longer and has more experience. CE Grim MD Hi Don: Based on your results you have PA. Starting Spiro is a good way of controlling the bp but please let us know what other medication you are taking. Also if you are to see an endo soon, he/she may want to run other tests and perhaps suggest to do an Adrenal Vein Sampling. If it gets to that do keep in mind that you have to get off Spiro for 6-8 weeks for an accurate sampling. My endo didn't want me to start Spiro until I did the AVS. Each doctor's approach is of course different.Farah I’m new to the group, and new to hyperaldosteronism. I am 57, and have been on BP meds since my late 30’s. I’ve had chronic fatigue almost as long, and recently started on insulin. I have chronically low K. I have not yet adopted the DASH diet, but it appears that I may be doing so very soon. My new doctor suspects hyperaldosteronism. I just got some test results today: Plasma Renin Activity = 0.04 ng/ml/hAldosterone = 14 ng/dL Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of 0.9 – 28.9 I would appreciate an interpretation of these results.My doc prescribed Spironolactone, 50 mg daily.Next I have an appointment with an endocrinologist.What should I ask? Demand? Expect? I am an engineer, so technical details are of interest to me. I treat my medical situation like I treat most other challenges – like a science experiment. I’m willing to share most other medical/personal details that may be important to reaching an understanding of my situation, and I hope, a resolution. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Please send us the results (aldo and cortisol) as they are often misinterpreted. With normal values for that lab.Trust ACTH was given?CE Grim MDI did have AVS a few weeks ago. My right adrenal is over-producing --nearly 4 times as much as is normal. Laskomommyblogger extraordinaireCompass Media, LLChttp://abrokencompass.comSent from my iPad How do you know your right adrenal is overproducing if you haven't had AVS done?AVS carries risk, even IF you are fortunate to find an epert to perform the test as there aren't many out there with enough experience do do it right. One potential and serious risk is that one, or worse yet, BOTH adrenals get infarcted during the procedure and then you really have problems. There are other serious risks like bleeding, infection, etc. > > > > > > I'm new to the group, and new to hyperaldosteronism. I am 57, and have been> on BP meds since my late 30's. I've had chronic fatigue almost as long, and> recently started on insulin. I have chronically low K. I have not yet> adopted the DASH diet, but it appears that I may be doing so very soon.> > > > My new doctor suspects hyperaldosteronism. I just got some test results> today: > > > > Plasma Renin Activity = 0.04 ng/ml/h> > Aldosterone = 14 ng/dL> > > > Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal range of> 0.9 - 28.9> > > > I would appreciate an interpretation of these results.> > My doc prescribed Spironolactone, 50 mg daily.> > Next I have an appointment with an endocrinologist.> > What should I ask? Demand? Expect?> > > > I am an engineer, so technical details are of interest to me. I treat my> medical situation like I treat most other challenges - like a science> experiment. I'm willing to share most other medical/personal details that> may be important to reaching an understanding of my situation, and I hope, a> resolution.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Yes, hopefully your AVS was done properly using ACTH and your results are reliable but I'm thinking of one member here in recent months who had an AVS done and initially felt confident with the results showing lateralization to one side unti she posted the results here. That is when Dr. Grim pointed out that the sample from the right adrenal vein had nearly the same result as the vena cava indicating that the right adrenal vein was not cannulated properly, making the results unreliable and therefore a waste of time, money and risk. My husband was offered to have AVS done, but because he's responding nicely to spiro (switching in a matter of days to Inspra for gynocomastia) and DASHing, we feel the risk outweighs the benefit. For over 5 years he's been on a horrific cocktail of BP/K meds. To have all those replaced by one and the prospect of being on that one permanently seems like a piece of cake. My concern also and maybe Dr. Grim could comment, if you have proof of lateralization and have that adrenal removed, what are the chances of the other adrenal developing the same disease, whether it be adenoma or hyperplasia, some time down the road? > >> > > >> > > >> > > >> > > >> > > >> > I'm new to the group, and new to hyperaldosteronism. I am 57, and > >> have been > >> > on BP meds since my late 30's. I've had chronic fatigue almost as > >> long, and > >> > recently started on insulin. I have chronically low K. I have not > >> yet > >> > adopted the DASH diet, but it appears that I may be doing so very > >> soon. > >> > > >> > > >> > > >> > My new doctor suspects hyperaldosteronism. I just got some test > >> results > >> > today: > >> > > >> > > >> > > >> > Plasma Renin Activity = 0.04 ng/ml/h > >> > > >> > Aldosterone = 14 ng/dL > >> > > >> > > >> > > >> > Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal > >> range of > >> > 0.9 - 28.9 > >> > > >> > > >> > > >> > I would appreciate an interpretation of these results. > >> > > >> > My doc prescribed Spironolactone, 50 mg daily. > >> > > >> > Next I have an appointment with an endocrinologist. > >> > > >> > What should I ask? Demand? Expect? > >> > > >> > > >> > > >> > I am an engineer, so technical details are of interest to me. I > >> treat my > >> > medical situation like I treat most other challenges - like a > >> science > >> > experiment. I'm willing to share most other medical/personal > >> details that > >> > may be important to reaching an understanding of my situation, > >> and I hope, a > >> > resolution. > >> > > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Chances of being off all BP meds is about 50%. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Yes, hopefully your AVS was done properly using ACTH and your results are reliable but I'm thinking of one member here in recent months who had an AVS done and initially felt confident with the results showing lateralization to one side unti she posted the results here. That is when Dr. Grim pointed out that the sample from the right adrenal vein had nearly the same result as the vena cava indicating that the right adrenal vein was not cannulated properly, making the results unreliable and therefore a waste of time, money and risk. My husband was offered to have AVS done, but because he's responding nicely to spiro (switching in a matter of days to Inspra for gynocomastia) and DASHing, we feel the risk outweighs the benefit. For over 5 years he's been on a horrific cocktail of BP/K meds. To have all those replaced by one and the prospect of being on that one permanently seems like a piece of cake. My concern also and maybe Dr. Grim could comment, if you have proof of lateralization and have that adrenal removed, what are the chances of the other adrenal developing the same disease, whether it be adenoma or hyperplasia, some time down the road? > >> > > >> > > >> > > >> > > >> > > >> > I'm new to the group, and new to hyperaldosteronism. I am 57, and > >> have been > >> > on BP meds since my late 30's. I've had chronic fatigue almost as > >> long, and > >> > recently started on insulin. I have chronically low K. I have not > >> yet > >> > adopted the DASH diet, but it appears that I may be doing so very > >> soon. > >> > > >> > > >> > > >> > My new doctor suspects hyperaldosteronism. I just got some test > >> results > >> > today: > >> > > >> > > >> > > >> > Plasma Renin Activity = 0.04 ng/ml/h > >> > > >> > Aldosterone = 14 ng/dL > >> > > >> > > >> > > >> > Aldosterone Plasma Renin Activity Ratio = 350, 12x the max normal > >> range of > >> > 0.9 - 28.9 > >> > > >> > > >> > > >> > I would appreciate an interpretation of these results. > >> > > >> > My doc prescribed Spironolactone, 50 mg daily. > >> > > >> > Next I have an appointment with an endocrinologist. > >> > > >> > What should I ask? Demand? Expect? > >> > > >> > > >> > > >> > I am an engineer, so technical details are of interest to me. I > >> treat my > >> > medical situation like I treat most other challenges - like a > >> science > >> > experiment. I'm willing to share most other medical/personal > >> details that > >> > may be important to reaching an understanding of my situation, > >> and I hope, a > >> > resolution. > >> > > >> > >> > > > > > Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (15) Recent Activity: New Members 5 New Links 1 Visit Your Group MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Quote Link to comment Share on other sites More sharing options...
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