Well, it looks like I don't have CMT

[Guest guest]

After 20 years, 3 Neurologists, 3 Orthopedist, 2 Pshyatrists and 4

Orthotists telling me I had CMT I've always had this nagging suspision

that I didn't have it.

A couple of months ago I decided that I wanted to know beyond the

shadow of a doubt what was wrong with me so I went to a Neurologist

and told him I was diagnosed with CMT many years ago and wanted to

confirm...he confirmed it based on an examination.

Not satisfied, I went to another Neurologist and never mentioned anything about

CMT. He examined me, did an EMG and said I had CMT. I asked him if he was 100%

positive and that there was nothing else it could be. He sais " Yes, it's

definitly CMT " .

Still not convinced, I decided to go to an MDA clinic. The Neurologist there

looked at my EMG, examined me and said " This doesn't look like CMT to me " . She

took blood and based on that is " convinced " that I don't have CMT....the

question now is " what is it " ?

I'm determined to find out what's wrong so I'm going to continue to

work with the MDA doctor...how frustrating is this though? I only hope

that I don't have something worse!