Dizziness

[Guest guest]

I am currently having major issues with dizziness and " sick " episodes. Since my

Doctors won't listen to me I thought I'd post to see if anyone has any

suggestions.

I am a 48 year old male who was was diagnosed with Primary Hyperaldosteronism

from Bilateral Adrenal Hyperplasia about 4 years ago after 20 years of high

blood pressure. I also have 2 nodules on the right adrenal gland. Lately, I

have developed a problem where, when I bend down or squat, then get back up, I

get extremely dizzy. If I do it a number of times, I also get nauseous and

sweaty. Here's a typical episode that happened yesterday: I did some work

(bending over) outside and became agitated, dizzy and nauseous. After a few

hours I came into the house and had a cold drink. Soon afterwards I was

extremely cold (shivering). After a while, I decided to warm myself up with a

cup of tea. After I finished my tea I became extremely warm and flushed (no

sweating) and felt the need to vomit (but didn't). Then, within about 60

minutes I was cold again. Within a few hours everything settled out and I was

no longer cold or nauseous. Today I am extremely hungry and have a migraine.

This is typical of what I experience after doing work where I bend over or

squat. I went to my primary care physician about this and he referred me to my

Endo. I saw the Endo this past Thursday and he basically referred me back to my

primary care guy. In the meantime, they did a 24 hour urine collection to test

for pheo, and measured high normetanephrines (~1100) and slightly high

metanephrines (~285). The Endo wants to rerun the 24 hour urine because he says

that these numbers are suspect because other catecholimines were not high. He

said that this might be a side effect of the Spironolactone that I take (50 mg

2x).

I'll also point out that my Dad had similar issues in the 1970s and was told

that he had 's. I was very young at the time and don't remember much,

but I do know that he took Spiro.

I am very frustrated as I am getting nowhere with my Doctors. Is anybody in the

group experiencing any thing like what I have described? Does anyone have any

suggestions?

Thanks