Re: New here and looking for hope!

[Guest guest]

Please gives the meds u are on as they are the most likely cause of the swling. Please my outline of proper testing for PA IN THE welcome you should have gotten. And send it to your dr now as if he did not also do a renin and a 24 hr urine for NA K and creat it will not be able to interpret the tests Begin DASHing today and you will begin toFeel well again in days. Keep us posted and take ur Dr my evolution PA article and send to all who have missed ur dx so they can care for all the others like you they have or will have in the futureTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own

research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

[Guest guest]

Hi Terri,

This sounds pretty familiar. I am 41 year old female who has had

migraines since teenage years and they ramped up from 30 to 40 years

old. I

was also treated for HTN from age 18 to 32 when my HTN suddenly

dropped. Two years after my hands and feet started swelling and I

started

HCTZ. I think all of this is connected and it is a shame that I

too have lost out on life due to not feeling well. Work is

constantly a challenge and

the anxiety got the best of me until recently. I do not test

positive for PA but am being treated for it and it has kept the K in

check. Off the HCTZ

which now I am wondering didn't make everything worse. I do not

have a tumor though.

I am new to this group as well and I have learned more in a few

days than in the past 6 months. You are not alone that is for sure.

Kellie

Hello all, my name is Terri and I am new here. I am a 48

year old female and my story is long but sounds much like

many of yours that post here. I have suffered with

uncontrollable migraines since I was 17. I have been under

the constant care of Neurologists and now also see a Pain

Management Specialist. I have had a hysterectomy, lymph

node removed from my neck, gallbladder removed, 2 cervical

rhizotomys and have a peptic ulcer and pyloric stenosis.

Two weeks ago I became very ill and was doubled over with

stomach pains and pain in my back around my kidney. I was

sent to the hospital for a ct scan to look for

appendicitis. Scan came back normal so I was sent home. My

Doctor called me the next day to check on me and he was

reading the report to me and mentioned the tumor on my

Adrenal Gland. To say the least, I was shocked! When I

asked him about it he told me that I was diagnosed with it

in 2005. This was the first I had heard of it. I started

doing my own research and it was like connecting the dots!

Four years ago I started having bad swelling in my feet

and ankles. My BP was moderately high so he put me on BP

meds. My K was low so he also put me on supplements for

that. BP has remained good ever since but K remains low. I

take 2 K supplements twice a day and he has just increased

that again to 3 twice a day. When I went in for my follow

up I told him we needed to talk about this and he agreed

that this was something that we needed to investigate

further. Blood test for Aldosterone was done last

Wednesday and I am still waiting to hear from that. CT

Scan showed the tumor to be the size of a golf ball. MRI

of Adrenals and Kidneys is scheduled this Thursday.

For years I have had to force myself to do anything.

During the week is not so bad because I have to get up and

go to work but on the weekends I crash out. I have no life

at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up.

I do however get up during the night, every night and

sometimes more than once to eat something salty. My

symptoms are many and I couldn't even begin to go into all

of it in one post.

Thank you all for listening to me and any advice that you

can send my way including questions that I need to be

asking would be greatly appreciated. Forgive me for being

long winded and for not knowing all the terminology and

abbreviations yet. I will try to be better in future

posts. Just reading your stories and finally being able to

tell myself that I AM NOT CRAZY IN THE HEAD has been a

blessing for me.

[Guest guest]

Your story is sad, but true for many of us. Same thing as to missing the diagnosis. You likely went in with alot of pain and they checked your blood pressure and chalked up a high one to the pain or being nervous or anxious. And the chronic low K......after meeting - online - Dr Grim I have no idea how this keeps being missed again and again, but too many are too guilty of letting it go and brushing it off. Low once? it can happen, but watch the pattern. Twice? start looking harder. 3 times? Something is wrong no doubt with the provider if they ignore it and the patient who has it. Also the adrenal tumor....wow! 2005. Sounds like you suffered since '05 (longer it sounds like) unnecessarily. That is often a HUGE lawsuit and nearly always won when an xray/mri/ct absolutely shows something and it was ignored or chalked up to nothing by the

provider. You think they'd learn. I wonder of the migraines are a byproduct of too much adrenal hormones circulating at times. Hope it turns out well.If you need to vent we are here I have had a few say to me over the years regarding chest and abd CT's, "we see some things a little odd, but don't think they are anything to worry about" and they do not tell me what it is that was "odd". Trying to get my records still of those exams and I wonder. 43 yo male PA-C w/ PA and chronic HTN and chronic low K for years until dx'd late 2010. Subject: New

here and looking for hope!To: hyperaldosteronism Date: Tuesday, April 26, 2011, 3:19 PM

Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it.

I started doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

[Guest guest]

One of the biggest things is that labs and docs just are not testing for it right. And it is not one test but many they do related they just don't do right. Like, you have to be off some BP meds and others for quite a while. They never stopped any of them for mine. Speak up though and take them Dr G's papers - as they explain all this. It may be there just not tested for the right way. 43 yo male PA-C w/ PA and chronic low K

Hello all, my name is Terri and I am new here. I am a 48

year old female and my story is long but sounds much like

many of yours that post here. I have suffered with

uncontrollable migraines since I was 17. I have been under

the constant care of Neurologists and now also see a Pain

Management Specialist. I have had a hysterectomy, lymph

node removed from my neck, gallbladder removed, 2 cervical

rhizotomys and have a peptic ulcer and pyloric stenosis.

Two weeks ago I became very ill and was doubled over with

stomach pains and pain in my back around my kidney. I was

sent to the hospital for a ct scan to look for

appendicitis. Scan came back normal so I was sent home. My

Doctor called me the next day to check on me and he was

reading the report to me and mentioned the tumor on my

Adrenal Gland. To say the least, I was shocked! When I

asked him about it he told me that I was diagnosed with it

in 2005. This was the first I had heard of it. I started

doing my own research and it was like connecting the dots!

Four years ago I started having bad swelling in my feet

and ankles. My BP was moderately high so he put me on BP

meds. My K was low so he also put me on supplements for

that. BP has remained good ever since but K remains low. I

take 2 K supplements twice a day and he has just increased

that again to 3 twice a day. When I went in for my follow

up I told him we needed to talk about this and he agreed

that this was something that we needed to investigate

further. Blood test for Aldosterone was done last

Wednesday and I am still waiting to hear from that. CT

Scan showed the tumor to be the size of a golf ball. MRI

of Adrenals and Kidneys is scheduled this Thursday.

For years I have had to force myself to do anything.

During the week is not so bad because I have to get up and

go to work but on the weekends I crash out. I have no life

at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up.

I do however get up during the night, every night and

sometimes more than once to eat something salty. My

symptoms are many and I couldn't even begin to go into all

of it in one post.

Thank you all for listening to me and any advice that you

can send my way including questions that I need to be

asking would be greatly appreciated. Forgive me for being

long winded and for not knowing all the terminology and

abbreviations yet. I will try to be better in future

posts. Just reading your stories and finally being able to

tell myself that I AM NOT CRAZY IN THE HEAD has been a

blessing for me.

[Guest guest]

    Very true!

 

One of the

biggest things is that labs and docs just are not

testing for it right. And it is not one test but

many they do related they just don't do right.

Like, you have to be off some BP meds and others

for quite a while. They never stopped any of them

for mine. Speak up though and take them Dr G's

papers - as they explain all this. It may be there

just not tested for the right way.

43 yo male PA-C w/ PA and chronic low K

 

Hello all, my name is Terri and I am

new here. I am a 48 year old female

and my story is long but sounds much

like many of yours that post here. I

have suffered with uncontrollable

migraines since I was 17. I have been

under the constant care of

Neurologists and now also see a Pain

Management Specialist. I have had a

hysterectomy, lymph node removed from

my neck, gallbladder removed, 2

cervical rhizotomys and have a peptic

ulcer and pyloric stenosis. Two weeks

ago I became very ill and was doubled

over with stomach pains and pain in my

back around my kidney. I was sent to

the hospital for a ct scan to look for

appendicitis. Scan came back normal so

I was sent home. My Doctor called me

the next day to check on me and he was

reading the report to me and mentioned

the tumor on my Adrenal Gland. To say

the least, I was shocked! When I asked

him about it he told me that I was

diagnosed with it in 2005. This was

the first I had heard of it. I started

doing my own research and it was like

connecting the dots! Four years ago I

started having bad swelling in my feet

and ankles. My BP was moderately high

so he put me on BP meds. My K was low

so he also put me on supplements for

that. BP has remained good ever since

but K remains low. I take 2 K

supplements twice a day and he has

just increased that again to 3 twice a

day. When I went in for my follow up I

told him we needed to talk about this

and he agreed that this was something

that we needed to investigate further.

Blood test for Aldosterone was done

last Wednesday and I am still waiting

to hear from that. CT Scan showed the

tumor to be the size of a golf ball.

MRI of Adrenals and Kidneys is

scheduled this Thursday.

For years I have had to force myself

to do anything. During the week is not

so bad because I have to get up and go

to work but on the weekends I crash

out. I have no life at all anymore. I

am in constant pain and my migraines

are unbearable. I can not eat much at

all because I throw up. I do however

get up during the night, every night

and sometimes more than once to eat

something salty. My symptoms are many

and I couldn't even begin to go into

all of it in one post.

Thank you all for listening to me and

any advice that you can send my way

including questions that I need to be

asking would be greatly appreciated.

Forgive me for being long winded and

for not knowing all the terminology

and abbreviations yet. I will try to

be better in future posts. Just

reading your stories and finally being

able to tell myself that I AM NOT

CRAZY IN THE HEAD has been a blessing

for me.

[Guest guest]

All start off with having no visible tumor.CE Grim MD Very true! One of the biggest things is that labs and docs just are not testing for it right. And it is not one test but many they do related they just don't do right. Like, you have to be off some BP meds and others for quite a while. They never stopped any of them for mine. Speak up though and take them Dr G's papers - as they explain all this. It may be there just not tested for the right way. 43 yo male PA-C w/ PA and chronic low K Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

[Guest guest]

My meds are as follows:

Chlorthalidone 25mg 1xday

Potassium Cl 10MEQ 4xday

Carafate 16m/10ml 10ml 4xday

Nexium 40mg 1xday

Amerge 2.5mg 2xday

Zofran 8mg as needed

Cholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

>

> > Hello all, my name is Terri and I am new here. I am a 48 year old female and

my story is long but sounds much like many of yours that post here. I have

suffered with uncontrollable migraines since I was 17. I have been under the

constant care of Neurologists and now also see a Pain Management Specialist. I

have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2

cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago

I became very ill and was doubled over with stomach pains and pain in my back

around my kidney. I was sent to the hospital for a ct scan to look for

appendicitis. Scan came back normal so I was sent home. My Doctor called me the

next day to check on me and he was reading the report to me and mentioned the

tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him

about it he told me that I was diagnosed with it in 2005. This was the first I

had heard of it. I started doing my own research and it was like connecting the

dots! Four years ago I started having bad swelling in my feet and ankles. My BP

was moderately high so he put me on BP meds. My K was low so he also put me on

supplements for that. BP has remained good ever since but K remains low. I take

2 K supplements twice a day and he has just increased that again to 3 twice a

day. When I went in for my follow up I told him we needed to talk about this and

he agreed that this was something that we needed to investigate further. Blood

test for Aldosterone was done last Wednesday and I am still waiting to hear from

that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals

and Kidneys is scheduled this Thursday.

> >

> > For years I have had to force myself to do anything. During the week is not

so bad because I have to get up and go to work but on the weekends I crash out.

I have no life at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up. I do however get up

during the night, every night and sometimes more than once to eat something

salty. My symptoms are many and I couldn't even begin to go into all of it in

one post.

> >

> > Thank you all for listening to me and any advice that you can send my way

including questions that I need to be asking would be greatly appreciated.

Forgive me for being long winded and for not knowing all the terminology and

abbreviations yet. I will try to be better in future posts. Just reading your

stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD

has been a blessing for me.

> >

> >

>

[Guest guest]

CTD will lower K in PA. TELL ur dr and ask if he can stop it. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

My meds are as follows:

Chlorthalidone 25mg 1xday

Potassium Cl 10MEQ 4xday

Carafate 16m/10ml 10ml 4xday

Nexium 40mg 1xday

Amerge 2.5mg 2xday

Zofran 8mg as needed

Cholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

>

> > Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it

was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

> >

> > For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

> >

> > Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

> >

> >

>

[Guest guest]

Are u one on cholysty for gut or cholesterol?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

My meds are as follows:

Chlorthalidone 25mg 1xday

Potassium Cl 10MEQ 4xday

Carafate 16m/10ml 10ml 4xday

Nexium 40mg 1xday

Amerge 2.5mg 2xday

Zofran 8mg as needed

Cholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

>

> > Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it

was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

> >

> > For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

> >

> > Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

> >

> >

>

[Guest guest]

Need renin and Aldo numbers and 24 hr urine NA and K on same day Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

My meds are as follows:

Chlorthalidone 25mg 1xday

Potassium Cl 10MEQ 4xday

Carafate 16m/10ml 10ml 4xday

Nexium 40mg 1xday

Amerge 2.5mg 2xday

Zofran 8mg as needed

Cholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

>

> > Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it

was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

> >

> > For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

> >

> > Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

> >

> >

>

[Guest guest]

Gut....severe diarrhea all the time!!

> > >

> > > > Hello all, my name is Terri and I am new here. I am a 48 year old female

and my story is long but sounds much like many of yours that post here. I have

suffered with uncontrollable migraines since I was 17. I have been under the

constant care of Neurologists and now also see a Pain Management Specialist. I

have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2

cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago

I became very ill and was doubled over with stomach pains and pain in my back

around my kidney. I was sent to the hospital for a ct scan to look for

appendicitis. Scan came back normal so I was sent home. My Doctor called me the

next day to check on me and he was reading the report to me and mentioned the

tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him

about it he told me that I was diagnosed with it in 2005. This was the first I

had heard of it. I started doing my own research and it was like connecting the

dots! Four years ago I started having bad swelling in my feet and ankles. My BP

was moderately high so he put me on BP meds. My K was low so he also put me on

supplements for that. BP has remained good ever since but K remains low. I take

2 K supplements twice a day and he has just increased that again to 3 twice a

day. When I went in for my follow up I told him we needed to talk about this and

he agreed that this was something that we needed to investigate further. Blood

test for Aldosterone was done last Wednesday and I am still waiting to hear from

that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals

and Kidneys is scheduled this Thursday.

> > > >

> > > > For years I have had to force myself to do anything. During the week is

not so bad because I have to get up and go to work but on the weekends I crash

out. I have no life at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up. I do however get up

during the night, every night and sometimes more than once to eat something

salty. My symptoms are many and I couldn't even begin to go into all of it in

one post.

> > > >

> > > > Thank you all for listening to me and any advice that you can send my

way including questions that I need to be asking would be greatly appreciated.

Forgive me for being long winded and for not knowing all the terminology and

abbreviations yet. I will try to be better in future posts. Just reading your

stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD

has been a blessing for me.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

did it help? What is your cholesterol.Assume you do not take laxatives?CE Grim MDGut....severe diarrhea all the time!!> > > > > > > Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.> > > > > > > > For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.> > > > > > > > Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me. > > > > > > > >> > >> > > >>

[Guest guest]

Mmmm breakfast of champions

Recall that 1 cup of low sodium V-8 will give you more K than you get with the 10 qid and with a little vodka will help your BP more.CE Grim MDGut....severe diarrhea all the time!!> > > > > > > Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.> > > > > > > > For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.> > > > > > > > Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me. > > > > > > > >> > >> > > >>

[Guest guest]

I still dont have a tumor on CT after almost 3 years. How common is that?

============================================================================45-Male-Caucasian, 5'9"- 230lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Spiro, 25mg HCTZ, 40meg Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 40mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Fibromyalgia

DASH: Not at this time, but cutting back on excess salt. No more bacon everyday. Using Mrs Dash instead of salt when ever possible.

To: hyperaldosteronism Cc: Clarence Grim Sent: Tuesday, April 26, 2011 7:10 PMSubject: Re: New here and looking for hope!

All start off with having no visible tumor.

CE Grim MD

Very true!

One of the biggest things is that labs and docs just are not testing for it right. And it is not one test but many they do related they just don't do right. Like, you have to be off some BP meds and others for quite a while. They never stopped any of them for mine. Speak up though and take them Dr G's papers - as they explain all this. It may be there just not tested for the right way. 43 yo male PA-C w/ PA and chronic low K

Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started

doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

[Guest guest]

I'm interested in that answer since I don't have one either.

Kellie Sent from my Samsung Epicâ„¢ 4G

Brown wrote:

>I still dont have a tumor on CT after almost 3 years. How common is that?

>

>============================================================================

>45-Male-Caucasian, 5'9 " - 230lbs, PA Diagnosed 2007 Suspected Hyperplasia-No

tumors on CT - No AVS.

>Meds: 50mg Spiro, 25mg HCTZ, 40meg Potassium, 2400mg Calcium, 1000mg Magnesium,

100,000UI Vit D (weekly), 40mg Omeprazole

>Side effects: Gynecomastia, stomach inflammation

>Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary

Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head

and Pelvis. Fibromyalgia

>DASH: Not at this time, but cutting back on excess salt. No more bacon

everyday. Using Mrs Dash instead of salt when ever possible.

>

>

>>To: hyperaldosteronism

>>Cc: Clarence Grim

>>Sent: Tuesday, April 26, 2011 7:10 PM

>>Subject: Re: New here and looking for hope!

>>

>> 

>>All start off with having no visible tumor.

>>

>>

>>CE Grim MD

>>

>>

>>    Very true!

>>>

>>>

>>> 

>>>>

>>>>

>>>>One of the biggest things is that labs and docs just are not testing for it

right. And it is not one test but many they do related they just don't do right.

Like, you have to be off some BP meds and others for quite a while. They never

stopped any of them for mine. Speak up though and take them Dr G's papers - as

they explain all this. It may be there just not tested for the right way.

>>>>

>>>> 43 yo male PA-C w/ PA and chronic low K

>>>>

>>>>--- On Tue, 4/26/11, Kellie

  wrote:

>>>>

>>>>

>>>>>

>>>>>Subject: Re: New here and looking for hope!

>>>>>To: hyperaldosteronism

>>>>>Date: Tuesday, April 26, 2011, 4:59 PM

>>>>>

>>>>>

>>>>> 

>>>>>    Hi Terri,

>>>>>

>>>>>    This sounds pretty familiar. I am 41 year old female who has had

migraines since teenage years and they ramped up from 30 to 40 years old. I 

>>>>>    was also treated for HTN from age 18 to 32 when my HTN suddenly

dropped. Two years after my hands and feet started swelling and I started  

>>>>>    HCTZ.  I think all of this is connected and it is a shame that I

too have lost out on life due to not feeling well. Work is constantly a

challenge and 

>>>>>    the anxiety got the best of me until recently.  I do not test

positive for PA but am being treated for it and it has kept the K in check. Off

the HCTZ

>>>>>    which now I am wondering didn't make everything worse. I do not have

a tumor though. 

>>>>>

>>>>>    I am new to this group as well and I have learned more in a few days

than in the past 6 months. You are not alone that is for sure.

>>>>>

>>>>>    Kellie

>>>>>

>>>>>   

>>>>>

>>>>>

>>>>> 

>>>>>>Hello all, my name is Terri and I am new here. I am a 48 year old female

and my story is long but sounds much like many of yours that post here. I have

suffered with uncontrollable migraines since I was 17. I have been under the

constant care of Neurologists and now also see a Pain Management Specialist. I

have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2

cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago

I became very ill and was doubled over with stomach pains and pain in my back

around my kidney. I was sent to the hospital for a ct scan to look for

appendicitis. Scan came back normal so I was sent home. My Doctor called me the

next day to check on me and he was reading the report to me and mentioned the

tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him

about it he told me that I was diagnosed with it in 2005. This was the first I

had heard of it. I started

> doing my own research and it was like connecting the dots! Four years ago I

started having bad swelling in my feet and ankles. My BP was moderately high so

he put me on BP meds. My K was low so he also put me on supplements for that. BP

has remained good ever since but K remains low. I take 2 K supplements twice a

day and he has just increased that again to 3 twice a day. When I went in for my

follow up I told him we needed to talk about this and he agreed that this was

something that we needed to investigate further. Blood test for Aldosterone was

done last Wednesday and I am still waiting to hear from that. CT Scan showed the

tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled

this Thursday.

>>>>>>

>>>>>>For years I have had to force myself to do anything. During the week is

not so bad because I have to get up and go to work but on the weekends I crash

out. I have no life at all anymore. I am in constant pain and my migraines are

unbearable. I can not eat much at all because I throw up. I do however get up

during the night, every night and sometimes more than once to eat something

salty. My symptoms are many and I couldn't even begin to go into all of it in

one post.

>>>>>>

>>>>>>Thank you all for listening to me and any advice that you can send my way

including questions that I need to be asking would be greatly appreciated.

Forgive me for being long winded and for not knowing all the terminology and

abbreviations yet. I will try to be better in future posts. Just reading your

stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD

has been a blessing for me. 

>>>>>>

>>>>>>

>>

[Guest guest]

If u read my article full blown PA IS ONLY The tip of the iceberg. Most other PAs don't have visible tumors when BP STARTS UP. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I'm interested in that answer since I don't have one either.

Kellie Sent from my Samsung Epicâ„¢ 4G

Brown wrote:

>I still dont have a tumor on CT after almost 3 years. How common is that?

>

>============================================================================

>45-Male-Caucasian, 5'9"- 230lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

>Meds: 50mg Spiro, 25mg HCTZ, 40meg Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 40mg Omeprazole

>Side effects: Gynecomastia, stomach inflammation

>Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Fibromyalgia

>DASH: Not at this time, but cutting back on excess salt. No more bacon everyday. Using Mrs Dash instead of salt when ever possible.

>

>

>>To: hyperaldosteronism

>>Cc: Clarence Grim

>>Sent: Tuesday, April 26, 2011 7:10 PM

>>Subject: Re: New here and looking for hope!

>>

>>

>>All start off with having no visible tumor.

>>

>>

>>CE Grim MD

>>

>>

>> Very true!

>>>

>>>

>>>

>>>>

>>>>

>>>>One of the biggest things is that labs and docs just are not testing for it right. And it is not one test but many they do related they just don't do right. Like, you have to be off some BP meds and others for quite a while. They never stopped any of them for mine. Speak up though and take them Dr G's papers - as they explain all this. It may be there just not tested for the right way.

>>>>

>>>> 43 yo male PA-C w/ PA and chronic low K

>>>>

>>>>

>>>>>

>>>>>>Hello all, my name is Terri and I am new here. I am a 48 year old female and my story is long but sounds much like many of yours that post here. I have suffered with uncontrollable migraines since I was 17. I have been under the constant care of Neurologists and now also see a Pain Management Specialist. I have had a hysterectomy, lymph node removed from my neck, gallbladder removed, 2 cervical rhizotomys and have a peptic ulcer and pyloric stenosis. Two weeks ago I became very ill and was doubled over with stomach pains and pain in my back around my kidney. I was sent to the hospital for a ct scan to look for appendicitis. Scan came back normal so I was sent home. My Doctor called me the next day to check on me and he was reading the report to me and mentioned the tumor on my Adrenal Gland. To say the least, I was shocked! When I asked him about it he told me that I was diagnosed with it in 2005. This was the first I had heard of it. I started

> doing my own research and it was like connecting the dots! Four years ago I started having bad swelling in my feet and ankles. My BP was moderately high so he put me on BP meds. My K was low so he also put me on supplements for that. BP has remained good ever since but K remains low. I take 2 K supplements twice a day and he has just increased that again to 3 twice a day. When I went in for my follow up I told him we needed to talk about this and he agreed that this was something that we needed to investigate further. Blood test for Aldosterone was done last Wednesday and I am still waiting to hear from that. CT Scan showed the tumor to be the size of a golf ball. MRI of Adrenals and Kidneys is scheduled this Thursday.

>>>>>>

>>>>>>For years I have had to force myself to do anything. During the week is not so bad because I have to get up and go to work but on the weekends I crash out. I have no life at all anymore. I am in constant pain and my migraines are unbearable. I can not eat much at all because I throw up. I do however get up during the night, every night and sometimes more than once to eat something salty. My symptoms are many and I couldn't even begin to go into all of it in one post.

>>>>>>

>>>>>>Thank you all for listening to me and any advice that you can send my way including questions that I need to be asking would be greatly appreciated. Forgive me for being long winded and for not knowing all the terminology and abbreviations yet. I will try to be better in future posts. Just reading your stories and finally being able to tell myself that I AM NOT CRAZY IN THE HEAD has been a blessing for me.

>>>>>>

>>>>>>

>>

[Guest guest]

What

is the Colestyramine powder for and how do you know when it is needed?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Terri Faw

My meds are as follows:

Chlorthalidone 25mg 1xday

Potassium Cl 10MEQ 4xday

Carafate 16m/10ml 10ml 4xday

Nexium 40mg 1xday

Amerge 2.5mg 2xday

Zofran 8mg as needed

Cholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

[Guest guest]

I think it is an anti diarrea med used for people with Crohns. My sister has Crohns, but not sure if she uses that power or not.

============================================================================45-Male-Caucasian, 5'9"- 230lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Spiro, 25mg HCTZ, 40meg Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 40mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Fibromyalgia

DASH: Not at this time, but cutting back on excess salt. No more bacon everyday. Using Mrs Dash instead of salt when ever possible.

To: hyperaldosteronism Sent: Thursday, April 28, 2011 10:09 AMSubject: RE: Re: New here and looking for hope!

What is the Colestyramine powder for and how do you know when it is needed?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Terri Faw

My meds are as follows:Chlorthalidone 25mg 1xdayPotassium Cl 10MEQ 4xdayCarafate 16m/10ml 10ml 4xdayNexium 40mg 1xdayAmerge 2.5mg 2xdayZofran 8mg as neededCholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

[Guest guest]

It blocks the reabsorption of bile acids and lowers cholesterol. In some the bike acids cause diarrhea and this helps. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I think it is an anti diarrea med used for people with Crohns. My sister has Crohns, but not sure if she uses that power or not.

============================================================================45-Male-Caucasian, 5'9"- 230lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Spiro, 25mg HCTZ, 40meg Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 40mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Fibromyalgia

DASH: Not at this time, but cutting back on excess salt. No more bacon everyday. Using Mrs Dash instead of salt when ever possible.

To: hyperaldosteronism Sent: Thursday, April 28, 2011 10:09 AMSubject: RE: Re: New here and looking for hope!

What is the Colestyramine powder for and how do you know when it is needed?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Terri Faw

My meds are as follows:Chlorthalidone 25mg 1xdayPotassium Cl 10MEQ 4xdayCarafate 16m/10ml 10ml 4xdayNexium 40mg 1xdayAmerge 2.5mg 2xdayZofran 8mg as neededCholestyramine Powder 1 scoop in 8oz water as needed (about twice a week)

[Guest guest]

you are no longer alone!! "welcome" to the group....

Dr. Grim - I saw your post stating that everyone starts off without a tumor....does that also mean that everyone ends up with a tumor?

just curious....

I am feeling much better on my Doxycycline for my Lyme (thanks again Val!) and they are weaning my K down to 20 meq per day...

still on 300mg Spiro

night all!

M. Meredith, DPM, FACFAS195 Fore River Parkway, Suite 210Portland, ME 04102

[Guest guest]

OMG

! I guess I missed your post

about Lyme. I really wonder how

many of us have it.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of ocnblu777@...

I am feeling much better

on my Doxycycline for my Lyme (thanks again Val!) and they are weaning my K

down to 20 meq per day...

still on 300mg Spiro

night all!

M. Meredith, DPM, FACFAS

195 Fore River Parkway, Suite 210

Portland, ME 04102

[Guest guest]

Yes please give us your PAstory and your Lyme story. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

OMG

! I guess I missed your post

about Lyme. I really wonder how

many of us have it.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of ocnblu777@...

I am feeling much better

on my Doxycycline for my Lyme (thanks again Val!) and they are weaning my K

down to 20 meq per day...

still on 300mg Spiro

night all!

M. Meredith, DPM, FACFAS

195 Fore River Parkway, Suite 210

Portland, ME 04102

[Guest guest]

No I have suggested most end up with many saSmall tumors to smallTo image. Few end up with a single tumor nTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

you are no longer alone!! "welcome" to the group....

Dr. Grim - I saw your post stating that everyone starts off without a tumor....does that also mean that everyone ends up with a tumor?

just curious....

I am feeling much better on my Doxycycline for my Lyme (thanks again Val!) and they are weaning my K down to 20 meq per day...

still on 300mg Spiro

night all!

M. Meredith, DPM, FACFAS195 Fore River Parkway, Suite 210Portland, ME 04102

[Guest guest]

V-8 Juice and Vodka! Wow! I have to stay away from any and all alchol. I can smell it and it will throw me into a migraine. Beer is the worst (I think it is the hops). I actually drink at least one 12 oz can of V-8 juice everyday and some days I will drink three or four. I crave the stuff. Unfortunately I do not drink the low-sodium kind. I have had this horrible craving for salt for several years now that I just can't fight. I have eaten so many things that I don't even like and I can't seem to help it. The V-8 juice helps with this a lot. Strange as it may sound, at least now that I have been doing my research and have joined this group, I know I am not crazy! Hope everyone has a good day!

[Guest guest]

>

> OMG ! I guess I missed your post about Lyme. I really wonder how

> many of us have it.

>

> Val

>

>

And I wonder if the weakening and imbalances in our bodies caused by the

undiagnosed PA allows the Lyme to become a problem

I still feel many are exposed but not everyone gets as sick as we did with it.