Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 Im was put on ateneolol because of fast heart rate and for B/P control. didn't do much for b/p am on 25mg a day. > > > > > > > > > > > > > > > > > > > > > > > > > My story is in the files, I have been > > diagnosed with > > > > > > > > > inappropriate > > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here > > > > getting > > > > > > > > > evaluated > > > > > > > > > > > > > again, for more than the PA, I also have > > > > hyperadrenergic > > > > > > > > > autonomic > > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily > > > > chronic > > > > > > > > > headache/ > > > > > > > > > > > > > migraines. Was in Monday AM to have an > > endoscopy and > > > > > > ended up > > > > > > > > > > > riding > > > > > > > > > > > > > the ambulance to the St 's ER for > > hypertensive > > > > > > crisis (was > > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > had a > > > > > > heck of a > > > > > > > > > time > > > > > > > > > > > > > getting pressure down (used a drip of labetalol > > > > after > > > > > > the > > > > > > > > > nitro > > > > > > > > > > > > > given in ER). I am still in hospital, but down > > on > > > > the > > > > > > general > > > > > > > > > > > floor > > > > > > > > > > > > > and get out in the am. Will meet with my endo > > > > tomorrow > > > > > > > > > afternoon > > > > > > > > > > > > > (ater the egd)and see what she said. However, I > > > > tested > > > > > > much > > > > > > > > > > > lower on > > > > > > > > > > > > > the aldo, will post numbers when I get a copy > > > > > > tomorrow, but > > > > > > > > > renin > > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > and > > > > the > > > > > > range > > > > > > > > > starts > > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued > > > > > > management with > > > > > > > > > > > > > spironolactone and others, will have to see > > what the > > > > > > team says > > > > > > > > > > > in am. > > > > > > > > > > > > > > > > > > > > > > > > > > Kim > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 I think it would be hard to tell if it is early PA or later stage PA based on being tested on the meds I was taking. Most of my SX seem to indicate at least stage 3. I don't get up to pee at night but some days pee a lot. About the only thing that has reduced B/p is Diuretics other then ateneolol I haven't been able to take other meds without making me feel worse. > > > > > Francis, I was tested, retested and detested. Given that they can't > > find anything else wrong with you, you need to consider Lyme testing > > from a Lyme literate MD, especially given where you live. > > > > > > > > Val > > > > > > > > > > > > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Francis Bill SUSPECTED PA > > > > > > Since I have two ratios the first one being 8.1 RENIN: 1.8 range > > (upright/sitting) 0.65-5.0 ng/mL/hr. ALDOS: 16 range Upright > > 8:00-10:00 am < or = 28 ng/dL Upright 4:00-6:00 > > > > pm < or = 21 ng/dL. > > The time of blood draw was 2:14PM. AT the VA > > > > RENIN 0.8 range (-) ALDOS 5.5 range (<=21-) time of blood draw 3pm > > At Dartmouth Mecical Center. > > > > There report > > Mr. Bill is a 61 years y.o. Mwith symptoms of daily lightheadednass > > and exartional > > SOB with an incidentally discovered 2.1cm left adrenal mass whom we > > saw in our > > Endocrinology Clinic at DHMC on 03/03/2009 for evaluation of the > > adrenal mass. > > We felt at the time the pt's symptoms were likely unrelated to this > > adrenal > > incidentaloma especially since he has had an extensive negative work- > > up in the past. > > However, since most of his previous testing results were not > > available to us, and > > the patient would like to be retested, we rechecked levels of: > > midnight salivary cortisol > > renin and aldosterone > > DHEA-S > > serum metanephrine and normetanephrine > > to rule this lesion out as a functioning adenoma. > > The results above show that there is no evidence that this adenoma > > is producing any > > excess adrenal hormones. > > > > Past Medical History: > > HTN diagnosed about 5 yrs ago > > Chronic Fatigue Syndrome > > Chronic dyspnea > > Chronic dizziness > > sip appendectomy in Dec 2008 > > Multiple granulomas in the Lungs > > Exophytic cyst Lt kidney > > > > History of Present I11ness: > > Mr Bill presents today for a second opinion regarding whether he > > might have Conns > > Syndrome. In 2006, he underwent w/u for SOB. He had a CT scan of the > > chest which > > showed a 2.1 cm soft tisuue mass in the Lt adrenal gland. Subsequent > > tests showed > > that the adenoma was non secretory. He has since undergone several > > chest CT and the > > adrenal mass has not grown is size. In March 2009, he was seen by > > endocrinology at > > DHMC. He again underwent testing including cortisol, PRA, > > aldosterone, metanephrines > > etc, all of which were within normal limits. Patient was reassured > > that this likely > > represents an incidentaloma. > > Over the past 3-4 yrs, he has had chronic SOB and dizziness . He has > > undergone > > extensive testing for both including EKG, stress tests, > > echocardiograms, Holter > > montior, MRI brain (to rio acoustic neuroma), sleep studies, PFTs > > etc all of which > > have not identified an abnormality. > > In Dec 2008, he presented with abd pain and was found to have > > appendicitis on CT > > scan. It also showed an exophytic mass in the L kidney for which he > > unerwent an > > ultrasound. He was told by his PCP that he needs CT scan for the > > lesion. I do > > not have records relating to this issue today. > > He has normal renal fucntion ( Cr from VA records has ranged from > > 0.8-1.1 in the > > past 3 yrs) . > > > > Was tested on these Meds > > > > Furosemide 20 mg Tablet 60 MG = 3 Tablet(s) / Once daily > > Oral > > Potassium Chloride 10 mEq 20 MEQ = 2 Capsule(s) / Once daily > > Capsule, Sustained Oral > > Release > > Atenolol 25 mg Tablet 25 MG = 1 Tablet(s) / Once daily > > > > He has undergone testing multiple times and there is no evidence > > that this is a > > fucntional adenoma. It most likely represents an incidentaloma that > > has not > > increased in size over the past 3 yrs based on CT scanning. His > > symptoms are also > > probably unrelated to the incidentaloma. He also does not have any > > evidence to > > support a diagnosis of Conns Syndrome. > > HTN - Not at goal. Discussed occasional home BP checks to help > > adjust medication > > regimen. If needed, would add ACEI /ARB or CCB for better control. > > Discussed wt loss > > and dietary salt restiriction. > > Lt renal mass - I do not have records available today regarding this > > issue but would > > recommed urology evaluation. > > He does not routine flu with nephrology unless a new issue arises. > > > > Seen and examined with Dr. Rangan. > > additions: > > I agree with her above note with the following > > Renin/aldo levels are normal; no evidence of hyperaldosteronism. H/o > > hypokalemia on > > furosemide is not unusual. BP is mildly elevated but likely > > essential hypertension. > > If BP remains above 140/90 would consider addition of ACEI as these > > synergize well > > with diuretics and may also help mitigate hypokalemia. Reportedly > > has an exophytic > > mass on his kidney that does not meet criteria for a simple cyst, > > although I do not > > have the images to review personally. Recommend urology evalution > > for this. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 If diuretics lowered BP then DASHING should as well. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I think it would be hard to tell if it is early PA or later stage PA based on being tested on the meds I was taking. Most of my SX seem to indicate at least stage 3. I don't get up to pee at night but some days pee a lot. About the only thing that has reduced B/p is Diuretics other then ateneolol I haven't been able to take other meds without making me feel worse. > > > > > Francis, I was tested, retested and detested. Given that they can't > > find anything else wrong with you, you need to consider Lyme testing > > from a Lyme literate MD, especially given where you live. > > > > > > > > Val > > > > > > > > > > > > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Francis Bill SUSPECTED PA > > > > > > Since I have two ratios the first one being 8.1 RENIN: 1.8 range > > (upright/sitting) 0.65-5.0 ng/mL/hr. ALDOS: 16 range Upright > > 8:00-10:00 am < or = 28 ng/dL Upright 4:00-6:00 > > > > pm < or = 21 ng/dL. > > The time of blood draw was 2:14PM. AT the VA > > > > RENIN 0.8 range (-) ALDOS 5.5 range (<=21-) time of blood draw 3pm > > At Dartmouth Mecical Center. > > > > There report > > Mr. Bill is a 61 years y.o. Mwith symptoms of daily lightheadednass > > and exartional > > SOB with an incidentally discovered 2.1cm left adrenal mass whom we > > saw in our > > Endocrinology Clinic at DHMC on 03/03/2009 for evaluation of the > > adrenal mass. > > We felt at the time the pt's symptoms were likely unrelated to this > > adrenal > > incidentaloma especially since he has had an extensive negative work- > > up in the past. > > However, since most of his previous testing results were not > > available to us, and > > the patient would like to be retested, we rechecked levels of: > > midnight salivary cortisol > > renin and aldosterone > > DHEA-S > > serum metanephrine and normetanephrine > > to rule this lesion out as a functioning adenoma. > > The results above show that there is no evidence that this adenoma > > is producing any > > excess adrenal hormones. > > > > Past Medical History: > > HTN diagnosed about 5 yrs ago > > Chronic Fatigue Syndrome > > Chronic dyspnea > > Chronic dizziness > > sip appendectomy in Dec 2008 > > Multiple granulomas in the Lungs > > Exophytic cyst Lt kidney > > > > History of Present I11ness: > > Mr Bill presents today for a second opinion regarding whether he > > might have Conns > > Syndrome. In 2006, he underwent w/u for SOB. He had a CT scan of the > > chest which > > showed a 2.1 cm soft tisuue mass in the Lt adrenal gland. Subsequent > > tests showed > > that the adenoma was non secretory. He has since undergone several > > chest CT and the > > adrenal mass has not grown is size. In March 2009, he was seen by > > endocrinology at > > DHMC. He again underwent testing including cortisol, PRA, > > aldosterone, metanephrines > > etc, all of which were within normal limits. Patient was reassured > > that this likely > > represents an incidentaloma. > > Over the past 3-4 yrs, he has had chronic SOB and dizziness . He has > > undergone > > extensive testing for both including EKG, stress tests, > > echocardiograms, Holter > > montior, MRI brain (to rio acoustic neuroma), sleep studies, PFTs > > etc all of which > > have not identified an abnormality. > > In Dec 2008, he presented with abd pain and was found to have > > appendicitis on CT > > scan. It also showed an exophytic mass in the L kidney for which he > > unerwent an > > ultrasound. He was told by his PCP that he needs CT scan for the > > lesion. I do > > not have records relating to this issue today. > > He has normal renal fucntion ( Cr from VA records has ranged from > > 0.8-1.1 in the > > past 3 yrs) . > > > > Was tested on these Meds > > > > Furosemide 20 mg Tablet 60 MG = 3 Tablet(s) / Once daily > > Oral > > Potassium Chloride 10 mEq 20 MEQ = 2 Capsule(s) / Once daily > > Capsule, Sustained Oral > > Release > > Atenolol 25 mg Tablet 25 MG = 1 Tablet(s) / Once daily > > > > He has undergone testing multiple times and there is no evidence > > that this is a > > fucntional adenoma. It most likely represents an incidentaloma that > > has not > > increased in size over the past 3 yrs based on CT scanning. His > > symptoms are also > > probably unrelated to the incidentaloma. He also does not have any > > evidence to > > support a diagnosis of Conns Syndrome. > > HTN - Not at goal. Discussed occasional home BP checks to help > > adjust medication > > regimen. If needed, would add ACEI /ARB or CCB for better control. > > Discussed wt loss > > and dietary salt restiriction. > > Lt renal mass - I do not have records available today regarding this > > issue but would > > recommed urology evaluation. > > He does not routine flu with nephrology unless a new issue arises. > > > > Seen and examined with Dr. Rangan. > > additions: > > I agree with her above note with the following > > Renin/aldo levels are normal; no evidence of hyperaldosteronism. H/o > > hypokalemia on > > furosemide is not unusual. BP is mildly elevated but likely > > essential hypertension. > > If BP remains above 140/90 would consider addition of ACEI as these > > synergize well > > with diuretics and may also help mitigate hypokalemia. Reportedly > > has an exophytic > > mass on his kidney that does not meet criteria for a simple cyst, > > although I do not > > have the images to review personally. Recommend urology evalution > > for this. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 Remarkable they prescribe Lasix and then add extra K to make up for shooting themselves in the foot. To: hyperaldosteronism Sent: Sat, May 1, 2010 9:35:57 AMSubject: Re: Re: Update What is your concern about DASHing and fur and tram. This is a piss poor way to treat HTN. F must be taken 2 x a day to have good BP effect. My guess it is only being given once.CE Grim MDOn Apr 29, 2010, at 10:17 PM, Francis Bill SUSPECTED PA wrote:Since my doctor seems to think it doesn't matter if I have PA he thinks the Meds I am on will treat it. So no Spiro. Also since he isn't on board with DASH and doing blood test to see if I would need te cut out meds. I have some concern about DASHING and being on Furosemide and Triamterene.They had left Triamterene off there list of meds. .> > > > > > > >> > > > > > > > > My story is in the files, I have been diagnosed with> > > > > inappropriate> > > > > > > > > aldosterone at the Mayo in the past. i am here getting> > > > > evaluated> > > > > > > > > again, for more than the PA, I also have hyperadrenergic> > > > > autonomic> > > > > > > > > dysfunction, cyclic vomiting syndrome and daily chronic> > > > > headache/> > > > > > > > > migraines. Was in Monday AM to have an endoscopy and > > ended up> > > > > > > riding> > > > > > > > > the ambulance to the St 's ER for hypertensive > > crisis (was> > > > > > > > > 230/144). They kept me in ICU over night and had a > > heck of a> > > > > time> > > > > > > > > getting pressure down (used a drip of labetalol after > > the> > > > > nitro> > > > > > > > > given in ER). I am still in hospital, but down on the > > general> > > > > > > floor> > > > > > > > > and get out in the am. Will meet with my endo tomorrow> > > > > afternoon> > > > > > > > > (ater the egd)and see what she said. However, I tested > > much> > > > > > > lower on> > > > > > > > > the aldo, will post numbers when I get a copy > > tomorrow, but> > > > > renin> > > > > > > > > still non-existent. K was borderline low (3.6 and the > > range> > > > > starts> > > > > > > > > at 3.6). Pretty sure will recommend continued > > management with> > > > > > > > > spironolactone and others, will have to see what the > > team says> > > > > > > in am.> > > > > > > > >> > > > > > > > > Kim> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 25 mg once a day long acting? not very much but did hear slow down?CE Grim MDIm was put on ateneolol because of fast heart rate and for B/P control. didn't do much for b/p am on 25mg a day.> > > > > > > > > > > >> > > > > > > > > > > > > My story is in the files, I have been > > diagnosed with> > > > > > > > > inappropriate> > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here> > > > getting> > > > > > > > > evaluated> > > > > > > > > > > > > again, for more than the PA, I also have> > > > hyperadrenergic> > > > > > > > > autonomic> > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily> > > > chronic> > > > > > > > > headache/> > > > > > > > > > > > > migraines. Was in Monday AM to have an > > endoscopy and> > > > > > ended up> > > > > > > > > > > riding> > > > > > > > > > > > > the ambulance to the St 's ER for > > hypertensive> > > > > > crisis (was> > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > had a> > > > > > heck of a> > > > > > > > > time> > > > > > > > > > > > > getting pressure down (used a drip of labetalol> > > > after> > > > > > the> > > > > > > > > nitro> > > > > > > > > > > > > given in ER). I am still in hospital, but down > > on> > > > the> > > > > > general> > > > > > > > > > > floor> > > > > > > > > > > > > and get out in the am. Will meet with my endo> > > > tomorrow> > > > > > > > > afternoon> > > > > > > > > > > > > (ater the egd)and see what she said. However, I> > > > tested> > > > > > much> > > > > > > > > > > lower on> > > > > > > > > > > > > the aldo, will post numbers when I get a copy> > > > > > tomorrow, but> > > > > > > > > renin> > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > and> > > > the> > > > > > range> > > > > > > > > starts> > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued> > > > > > management with> > > > > > > > > > > > > spironolactone and others, will have to see > > what the> > > > > > team says> > > > > > > > > > > in am.> > > > > > > > > > > > >> > > > > > > > > > > > > Kim> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 60 of Fur once a day works for 4 hours and then you retain salt the rest of the day. So basically one ends up where you started if you eat salt.K can get very low with Fur as well. Triamp should help prevent this.But again if you eat less Na you will need less Fur and Tri or maybe even none.CE Grim MDIf I don't have PA and Fur is removing sodium. I would think by reducing sodium I could deplete sodium to much. It happened to my mother. Of course she was 90 at the time. I take 60 mg of Fur once a day. There are warnings about eating to much K when taking Tram. I was put on Tram because of K droping so much. Didn't seem to help much. I take 50mg once a day. > > > > > > > > > >> > > > > > > > > > > My story is in the files, I have been diagnosed with> > > > > > > inappropriate> > > > > > > > > > > aldosterone at the Mayo in the past. i am here > > getting> > > > > > > evaluated> > > > > > > > > > > again, for more than the PA, I also have > > hyperadrenergic> > > > > > > autonomic> > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily > > chronic> > > > > > > headache/> > > > > > > > > > > migraines. Was in Monday AM to have an endoscopy and> > > > ended up> > > > > > > > > riding> > > > > > > > > > > the ambulance to the St 's ER for hypertensive> > > > crisis (was> > > > > > > > > > > 230/144). They kept me in ICU over night and had a> > > > heck of a> > > > > > > time> > > > > > > > > > > getting pressure down (used a drip of labetalol > > after> > > > the> > > > > > > nitro> > > > > > > > > > > given in ER). I am still in hospital, but down on > > the> > > > general> > > > > > > > > floor> > > > > > > > > > > and get out in the am. Will meet with my endo > > tomorrow> > > > > > > afternoon> > > > > > > > > > > (ater the egd)and see what she said. However, I > > tested> > > > much> > > > > > > > > lower on> > > > > > > > > > > the aldo, will post numbers when I get a copy> > > > tomorrow, but> > > > > > > renin> > > > > > > > > > > still non-existent. K was borderline low (3.6 and > > the> > > > range> > > > > > > starts> > > > > > > > > > > at 3.6). Pretty sure will recommend continued> > > > management with> > > > > > > > > > > spironolactone and others, will have to see what the> > > > team says> > > > > > > > > in am.> > > > > > > > > > >> > > > > > > > > > > Kim> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 There are many Lyme groups but none for Lyme and PA. The regular Lyme groups are not particularly helpful, and many go off into all sorts of unproved treatments. For now, I will just keep the Lymie’s posts and we’ll see what to do with them. If you want a group started, we can do that, but I’m not sure how many there will be. At this point, I’m wondering how many of the people right here have PA and/or Lyme. There are 200,000 – 300,000 cases of Lyme per year in the U.S. I just got a message from a woman named Fran who used to post here a lot. I thought she had hyperparathyroidism a couple of years ago. Now, her doctors is agreeing with me. She also has other familiar symptoms, like burning feet (Bartonella), and fractured sleep. There is a standard Lyme questionnaire; I think one developed by a Lyme doc named Burrascano. I’ll look for it. I really wish I could remember who came to the group about a month ago and told us she had Lyme instead of PA. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Need to start collecting data. Dont know if there is a standard Lyme questionnaire to use? Maybe a new Yahoo Group for those with both? On Apr 30, 2010, at 10:53 PM, Valarie wrote: I found a new friend on Facebook. It seems people are attracted by different communities of interest. Interestingly, my new friend is also a member of this board. Her name is Shotzie. She had PA and an adrenalectomy in 2006. Her BP and K returned to normal but her health continued to deteriorate. She’s been diagnosed since 1989 with CFS. She is now formally diagnosed with Lyme. That’s three of us. Connections. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 Was stared on 50 mg but because my sx were just starting. Wasn't sure if some were related to ateneolol or was just part of what was going on. So reduced to 25 mg. It did slow the heart down. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My story is in the files, I have been > > > > diagnosed with > > > > > > > > > > > inappropriate > > > > > > > > > > > > > > > aldosterone at the Mayo in the past. i am > > here > > > > > > getting > > > > > > > > > > > evaluated > > > > > > > > > > > > > > > again, for more than the PA, I also have > > > > > > hyperadrenergic > > > > > > > > > > > autonomic > > > > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and > > daily > > > > > > chronic > > > > > > > > > > > headache/ > > > > > > > > > > > > > > > migraines. Was in Monday AM to have an > > > > endoscopy and > > > > > > > > ended up > > > > > > > > > > > > > riding > > > > > > > > > > > > > > > the ambulance to the St 's ER for > > > > hypertensive > > > > > > > > crisis (was > > > > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > > > had a > > > > > > > > heck of a > > > > > > > > > > > time > > > > > > > > > > > > > > > getting pressure down (used a drip of > > labetalol > > > > > > after > > > > > > > > the > > > > > > > > > > > nitro > > > > > > > > > > > > > > > given in ER). I am still in hospital, but > > down > > > > on > > > > > > the > > > > > > > > general > > > > > > > > > > > > > floor > > > > > > > > > > > > > > > and get out in the am. Will meet with my > > endo > > > > > > tomorrow > > > > > > > > > > > afternoon > > > > > > > > > > > > > > > (ater the egd)and see what she said. > > However, I > > > > > > tested > > > > > > > > much > > > > > > > > > > > > > lower on > > > > > > > > > > > > > > > the aldo, will post numbers when I get a > > copy > > > > > > > > tomorrow, but > > > > > > > > > > > renin > > > > > > > > > > > > > > > still non-existent. K was borderline low > > (3.6 > > > > and > > > > > > the > > > > > > > > range > > > > > > > > > > > starts > > > > > > > > > > > > > > > at 3.6). Pretty sure will recommend > > continued > > > > > > > > management with > > > > > > > > > > > > > > > spironolactone and others, will have to see > > > > what the > > > > > > > > team says > > > > > > > > > > > > > in am. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Kim > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 Yes lets just keep a file here unless it gets too big.CE Grim MDThere are many Lyme groups but none for Lyme and PA. The regular Lyme groups are not particularly helpful, and many go off into all sorts of unproved treatments. For now, I will just keep the Lymie’s posts and we’ll see what to do with them. If you want a group started, we can do that, but I’m not sure how many there will be. At this point, I’m wondering how many of the people right here have PA and/or Lyme. There are 200,000 – 300,000 cases of Lyme per year in the U.S. I just got a message from a woman named Fran who used to post here a lot. I thought she had hyperparathyroidism a couple of years ago. Now, her doctors is agreeing with me. She also has other familiar symptoms, like burning feet (Bartonella), and fractured sleep. There is a standard Lyme questionnaire; I think one developed by a Lyme doc named Burrascano. I’ll look for it. I really wish I could remember who came to the group about a month ago and told us she had Lyme instead of PA. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed to start collecting data. Dont know if there is a standard Lyme questionnaire to use? Maybe a new Yahoo Group for those with both? I found a new friend on Facebook. It seems people are attracted by different communities of interest. Interestingly, my new friend is also a member of this board. Her name is Shotzie. She had PA and an adrenalectomyin 2006. Her BP and K returned to normal but her health continued to deteriorate. She’s been diagnosed since 1989 with CFS. She is now formally diagnosed with Lyme. That’s three of us. Connections. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 This is a spreedsheet I made. Don't know how to get it show charts. http://health.groups.yahoo.com/group/hyperaldosteronism/files/frankbill/ > > > > > > > > > > > >> > > > > > > > > > > > > My story is in the files, I have been > > diagnosed with> > > > > > > > > inappropriate> > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here> > > > getting> > > > > > > > > evaluated> > > > > > > > > > > > > again, for more than the PA, I also have> > > > hyperadrenergic> > > > > > > > > autonomic> > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily> > > > chronic> > > > > > > > > headache/> > > > > > > > > > > > > migraines. Was in Monday AM to have an > > endoscopy and> > > > > > ended up> > > > > > > > > > > riding> > > > > > > > > > > > > the ambulance to the St 's ER for > > hypertensive> > > > > > crisis (was> > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > had a> > > > > > heck of a> > > > > > > > > time> > > > > > > > > > > > > getting pressure down (used a drip of labetalol> > > > after> > > > > > the> > > > > > > > > nitro> > > > > > > > > > > > > given in ER). I am still in hospital, but down > > on> > > > the> > > > > > general> > > > > > > > > > > floor> > > > > > > > > > > > > and get out in the am. Will meet with my endo> > > > tomorrow> > > > > > > > > afternoon> > > > > > > > > > > > > (ater the egd)and see what she said. However, I> > > > tested> > > > > > much> > > > > > > > > > > lower on> > > > > > > > > > > > > the aldo, will post numbers when I get a copy> > > > > > tomorrow, but> > > > > > > > > renin> > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > and> > > > the> > > > > > range> > > > > > > > > starts> > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued> > > > > > management with> > > > > > > > > > > > > spironolactone and others, will have to see > > what the> > > > > > team says> > > > > > > > > > > in am.> > > > > > > > > > > > >> > > > > > > > > > > > > Kim> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 I cant see your file when I click here. CE Grim, NDOn Apr 30, 2010, at 6:58 PM, Francis Bill SUSPECTED PA wrote:I think that the Va is now getting up to speed on DASH. They are starting to talk about it on there web site. Blood pressure is in in the 145/80 range. Sometimes it is lower. Better then 175/90 before taking diuretics. > > > > > > > > > >> > > > > > > > > > > My story is in the files, I have been diagnosed with> > > > > > > inappropriate> > > > > > > > > > > aldosterone at the Mayo in the past. i am here > > getting> > > > > > > evaluated> > > > > > > > > > > again, for more than the PA, I also have > > hyperadrenergic> > > > > > > autonomic> > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily > > chronic> > > > > > > headache/> > > > > > > > > > > migraines. Was in Monday AM to have an endoscopy and> > > > ended up> > > > > > > > > riding> > > > > > > > > > > the ambulance to the St 's ER for hypertensive> > > > crisis (was> > > > > > > > > > > 230/144). They kept me in ICU over night and had a> > > > heck of a> > > > > > > time> > > > > > > > > > > getting pressure down (used a drip of labetalol > > after> > > > the> > > > > > > nitro> > > > > > > > > > > given in ER). I am still in hospital, but down on > > the> > > > general> > > > > > > > > floor> > > > > > > > > > > and get out in the am. Will meet with my endo > > tomorrow> > > > > > > afternoon> > > > > > > > > > > (ater the egd)and see what she said. However, I > > tested> > > > much> > > > > > > > > lower on> > > > > > > > > > > the aldo, will post numbers when I get a copy> > > > tomorrow, but> > > > > > > renin> > > > > > > > > > > still non-existent. K was borderline low (3.6 and > > the> > > > range> > > > > > > starts> > > > > > > > > > > at 3.6). Pretty sure will recommend continued> > > > management with> > > > > > > > > > > spironolactone and others, will have to see what the> > > > team says> > > > > > > > > in am.> > > > > > > > > > >> > > > > > > > > > > Kim> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 It is in Excel so have to be able to open excel files. > > > > > > > > > > > > > > > > > > > > > > > > > My story is in the files, I have been > > diagnosed with > > > > > > > > > inappropriate > > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here > > > > getting > > > > > > > > > evaluated > > > > > > > > > > > > > again, for more than the PA, I also have > > > > hyperadrenergic > > > > > > > > > autonomic > > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily > > > > chronic > > > > > > > > > headache/ > > > > > > > > > > > > > migraines. Was in Monday AM to have an > > endoscopy and > > > > > > ended up > > > > > > > > > > > riding > > > > > > > > > > > > > the ambulance to the St 's ER for > > hypertensive > > > > > > crisis (was > > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > had a > > > > > > heck of a > > > > > > > > > time > > > > > > > > > > > > > getting pressure down (used a drip of labetalol > > > > after > > > > > > the > > > > > > > > > nitro > > > > > > > > > > > > > given in ER). I am still in hospital, but down > > on > > > > the > > > > > > general > > > > > > > > > > > floor > > > > > > > > > > > > > and get out in the am. Will meet with my endo > > > > tomorrow > > > > > > > > > afternoon > > > > > > > > > > > > > (ater the egd)and see what she said. However, I > > > > tested > > > > > > much > > > > > > > > > > > lower on > > > > > > > > > > > > > the aldo, will post numbers when I get a copy > > > > > > tomorrow, but > > > > > > > > > renin > > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > and > > > > the > > > > > > range > > > > > > > > > starts > > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued > > > > > > management with > > > > > > > > > > > > > spironolactone and others, will have to see > > what the > > > > > > team says > > > > > > > > > > > in am. > > > > > > > > > > > > > > > > > > > > > > > > > > Kim > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 hi-lite all the data. select chart symbol on header select "line" as type chart click "next" > see chart sample click finish > select whether you want chart as new page or in the main page. I uploaded your sheet to HPA group > Files > frankbill note: if you don't have a chart symbol, click Chart > Chart type form menus. Regards Re: Update This is a spreedsheet I made. Don't know how to get it show charts. http://health.groups.yahoo.com/group/hyperaldosteronism/files/frankbill/ > > > > > > > > > > > >> > > > > > > > > > > > > My story is in the files, I have been > > diagnosed with> > > > > > > > > inappropriate> > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here> > > > getting> > > > > > > > > evaluated> > > > > > > > > > > > > again, for more than the PA, I also have> > > > hyperadrenergic> > > > > > > > > autonomic> > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily> > > > chronic> > > > > > > > > headache/> > > > > > > > > > > > > migraines. Was in Monday AM to have an > > endoscopy and> > > > > > ended up> > > > > > > > > > > riding> > > > > > > > > > > > > the ambulance to the St 's ER for > > hypertensive> > > > > > crisis (was> > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > had a> > > > > > heck of a> > > > > > > > > time> > > > > > > > > > > > > getting pressure down (used a drip of labetalol> > > > after> > > > > > the> > > > > > > > > nitro> > > > > > > > > > > > > given in ER). I am still in hospital, but down > > on> > > > the> > > > > > general> > > > > > > > > > > floor> > > > > > > > > > > > > and get out in the am. Will meet with my endo> > > > tomorrow> > > > > > > > > afternoon> > > > > > > > > > > > > (ater the egd)and see what she said. However, I> > > > tested> > > > > > much> > > > > > > > > > > lower on> > > > > > > > > > > > > the aldo, will post numbers when I get a copy> > > > > > tomorrow, but> > > > > > > > > renin> > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > and> > > > the> > > > > > range> > > > > > > > > starts> > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued> > > > > > management with> > > > > > > > > > > > > spironolactone and others, will have to see > > what the> > > > > > team says> > > > > > > > > > > in am.> > > > > > > > > > > > >> > > > > > > > > > > > > Kim> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >> __________ NOD32 4893 (20100224) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 Ok Will see what works. > > > > > > > > > > > > > > > > > > > > > > > > > > > My story is in the files, I have been > > > diagnosed with > > > > > > > > > > inappropriate > > > > > > > > > > > > > > aldosterone at the Mayo in the past. i am here > > > > > getting > > > > > > > > > > evaluated > > > > > > > > > > > > > > again, for more than the PA, I also have > > > > > hyperadrenergic > > > > > > > > > > autonomic > > > > > > > > > > > > > > dysfunction, cyclic vomiting syndrome and daily > > > > > chronic > > > > > > > > > > headache/ > > > > > > > > > > > > > > migraines. Was in Monday AM to have an > > > endoscopy and > > > > > > > ended up > > > > > > > > > > > > riding > > > > > > > > > > > > > > the ambulance to the St 's ER for > > > hypertensive > > > > > > > crisis (was > > > > > > > > > > > > > > 230/144). They kept me in ICU over night and > > > had a > > > > > > > heck of a > > > > > > > > > > time > > > > > > > > > > > > > > getting pressure down (used a drip of labetalol > > > > > after > > > > > > > the > > > > > > > > > > nitro > > > > > > > > > > > > > > given in ER). I am still in hospital, but down > > > on > > > > > the > > > > > > > general > > > > > > > > > > > > floor > > > > > > > > > > > > > > and get out in the am. Will meet with my endo > > > > > tomorrow > > > > > > > > > > afternoon > > > > > > > > > > > > > > (ater the egd)and see what she said. However, I > > > > > tested > > > > > > > much > > > > > > > > > > > > lower on > > > > > > > > > > > > > > the aldo, will post numbers when I get a copy > > > > > > > tomorrow, but > > > > > > > > > > renin > > > > > > > > > > > > > > still non-existent. K was borderline low (3.6 > > > and > > > > > the > > > > > > > range > > > > > > > > > > starts > > > > > > > > > > > > > > at 3.6). Pretty sure will recommend continued > > > > > > > management with > > > > > > > > > > > > > > spironolactone and others, will have to see > > > what the > > > > > > > team says > > > > > > > > > > > > in am. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Kim > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4893 (20100224) Information __________ > > This message was checked by NOD32 antivirus system. > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 It also causes euphoria. But if u have addisons u will feel better pretty fast. Do u have any other mainfestaions os it: low BP HI K increased skin pigmentation low blood sodium. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Prednisone reduces swelling and inflammation. Can be ok in small doses. If you body gets more then it needs you will get cushings. Not a goog drug to take long term unless that is your only choice. The question is it helping because it is reducing inflammation from some something other then addisons? If you have an autoimmune disorder then Prednisone would help this. > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > internal medicine doctor are on to something and it is not conn's. > > Did salt loading test and was normal. My new doctor did ACTH > > stimulation test and adrenal glands are not working like they should > > and he is thinking adrenal insuffienciency. My cortisol level was > > supposed to double and mine bearly did anything and was lower than > > normal to start out with. He put me on 2 mg of prednisone for 3 > > weeks and I saw him again. I wasn't a whole lot better and with more > > strewss of going to a special class for work, working, and doing > > projects for another job - I was getting dizzy and exteemely > > exhausted again. He increased dose to 4 mg a day and again I will go > > back in few weeks. > > > > The difference is huge but still not back to nomral by any means. I > > can breath better, less heart palpitations, increased tolerance to > > sodium, feel a lot more energy and mentally there. Last week though > > I had alot more stree again and dizziness and fatigue crept back in > > so maybe I need an evening dose or another pill when I am stressed > > to help with that. > > > > I'm wondering if this is autoimmune because of having autommune > > thyroid disease too. I've looked online and saw the adrenal spectrum > > disease that range from addisons to cushings and I think my adreanls > > ahve been going crazy because at first one doctor thought I did have > > cushings because of elevated cortisol and ACTH and many symptoms. > > Now it seems I am leaning toward addisons but still do not have the > > extreme symptoms of salt craving or tanning. Any thoughts guys.... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 Hey !Glad you've got some where, this is what my new consultant refered to adrenal glands.If you have secondary AI you don't tan from what I've read, you'd be pale. Or maybe you are Primary and luckily they've caught you before you have a crisis or something!?.So pleased for you your feeling a bit better :)There's another site www.addisonssupport.comIts great, full of s and secondary AI people. Many on there although have been diagnosed and treated help each other finely tweak their meds.If its a hot day, excersise, stress etc they have to adjust their meds.Many of them say endos don't really help and seem to be a massive help to each other!Well doneMandSent using BlackBerry® from OrangeSender: hyperaldosteronism Date: Fri, 11 Jun 2010 15:15:24 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: update Hello, I haven't e-mailed you guys in awhile but think me and my new internal medicine doctor are on to something and it is not conn's. Did salt loading test and was normal. My new doctor did ACTH stimulation test and adrenal glands are not working like they should and he is thinking adrenal insuffienciency. My cortisol level was supposed to double and mine bearly did anything and was lower than normal to start out with. He put me on 2 mg of prednisone for 3 weeks and I saw him again. I wasn't a whole lot better and with more strewss of going to a special class for work, working, and doing projects for another job - I was getting dizzy and exteemely exhausted again. He increased dose to 4 mg a day and again I will go back in few weeks. The difference is huge but still not back to nomral by any means. I can breath better, less heart palpitations, increased tolerance to sodium, feel a lot more energy and mentally there. Last week though I had alot more stree again and dizziness and fatigue crept back in so maybe I need an evening dose or another pill when I am stressed to help with that. I'm wondering if this is autoimmune because of having autommune thyroid disease too. I've looked online and saw the adrenal spectrum disease that range from addisons to cushings and I think my adreanls ahve been going crazy because at first one doctor thought I did have cushings because of elevated cortisol and ACTH and many symptoms. Now it seems I am leaning toward addisons but still do not have the extreme symptoms of salt craving or tanning. Any thoughts guys.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 Hey !Glad you've got some where, this is what my new consultant refered to adrenal glands.If you have secondary AI you don't tan from what I've read, you'd be pale. WRONG depends on what it is secondary to. If pituitary then pale. Or maybe you are Primary and luckily they've caught you before you have a crisis or something!?.So pleased for you your feeling a bit better :)There's another site www.addisonssupport.comIts great, full of s and secondary AI people. Many on there although have been diagnosed and treated help each other finely tweak their meds.If its a hot day, excersise, stress etc they have to adjust their meds.Many of them say endos don't really help and seem to be a massive help to each other!Well doneMandSent using BlackBerry® from OrangeFrom: " Stone" <astone312suddenlink (DOT) net>Sender: hyperaldosteronism Date: Fri, 11 Jun 2010 15:15:24 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: update Hello, I haven't e-mailed you guys in awhile but think me and my new internal medicine doctor are on to something and it is not conn's. Did salt loading test and was normal. My new doctor did ACTH stimulation test and adrenal glands are not working like they should and he is thinking adrenal insuffienciency. My cortisol level was supposed to double and mine bearly did anything and was lower than normal to start out with. He put me on 2 mg of prednisone for 3 weeks and I saw him again. I wasn't a whole lot better and with more strewss of going to a special class for work, working, and doing projects for another job - I was getting dizzy and exteemely exhausted again. He increased dose to 4 mg a day and again I will go back in few weeks. The difference is huge but still not back to nomral by any means. I can breath better, less heart palpitations, increased tolerance to sodium, feel a lot more energy and mentally there. Last week though I had alot more stree again and dizziness and fatigue crept back in so maybe I need an evening dose or another pill when I am stressed to help with that. I'm wondering if this is autoimmune because of having autommune thyroid disease too. I've looked online and saw the adrenal spectrum disease that range from addisons to cushings and I think my adreanls ahve been going crazy because at first one doctor thought I did have cushings because of elevated cortisol and ACTH and many symptoms. Now it seems I am leaning toward addisons but still do not have the extreme symptoms of salt craving or tanning. Any thoughts guys.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 See some Dr G comments.Hey !Glad you've got some where, this is what my new consultant refered to adrenal glands.If you have secondary AI you don't tan from what I've read, you'd be pale. Or maybe you are Primary and luckily they've caught you before you have a crisis or something!?.So pleased for you your feeling a bit better :)There's another site www.addisonssupport.comIts great, full of s and secondary AI people. Many on there although have been diagnosed and treated help each other finely tweak their meds.If its a hot day, excersise, stress etc they have to adjust their meds.Many of them say endos don't really help and seem to be a massive help to each other!Well doneMandSent using BlackBerry® from OrangeFrom: " Stone" <astone312suddenlink (DOT) net>Sender: hyperaldosteronism Date: Fri, 11 Jun 2010 15:15:24 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: update Hello, I haven't e-mailed you guys in awhile but think me and my new internal medicine doctor are on to something and it is not conn's. Did salt loading test and was normal. NEVER tell us it is normal. Show us the money errr numbers. ALWAYS.My new doctor did ACTH stimulation test and adrenal glands are not working like they should and he is thinking adrenal insuffienciency. Did he give it IV or by injection?My cortisol level was supposed to double and mine bearly did anything and was lower than normal to start out with. He put me on 2 mg of prednisone for 3 weeks and I saw him again. I wasn't a whole lot better and with more strewss of going to a special class for work, working, and doing projects for another job - I was getting dizzy and exteemely exhausted again. He increased dose to 4 mg a day and again I will go back in few weeks. The difference is huge but still not back to nomral by any means. I can breath better, less heart palpitations, increased tolerance to sodium, feel a lot more energy and mentally there. Last week though I had alot more stree again and dizziness and fatigue crept back in so maybe I need an evening dose or another pill when I am stressed to help with that.Steroids tend to do this even if you dont have 's Time will tell. I'm wondering if this is autoimmune because of having autommune thyroid disease too. I've looked online and saw the adrenal spectrum disease that range from addisons to cushings and I think my adreanls ahve been going crazy because at first one doctor thought I did have cushings because of elevated cortisol and ACTH and many symptoms. Now it seems I am leaning toward addisons but still do not have the extreme symptoms of salt craving or tanning. Any thoughts guys....Or you pituitary has stopped working. Pregnant recently? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 I didn't mean to say endo's don't help. They obviously do but the people I know do have to alter their meds with excersise, e.t.c. Its just another forum where AI patients can help each other, just like this forum.Sent using BlackBerry® from OrangeSender: hyperaldosteronism Date: Sat, 12 Jun 2010 15:48:46 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: update On Jun 12, 2010, at 3:53 AM, moseleymandhotmail (DOT) co.uk wrote:Hey !Glad you've got some where, this is what my new consultant refered to adrenal glands.If you have secondary AI you don't tan from what I've read, you'd be pale. WRONG depends on what it is secondary to. If pituitary then pale. Or maybe you are Primary and luckily they've caught you before you have a crisis or something!?.So pleased for you your feeling a bit better :)There's another site www.addisonssupport.comIts great, full of s and secondary AI people. Many on there although have been diagnosed and treated help each other finely tweak their meds.If its a hot day, excersise, stress etc they have to adjust their meds.Many of them say endos don't really help and seem to be a massive help to each other!Well doneMandSent using BlackBerry® from OrangeFrom: " Stone" <astone312suddenlink (DOT) net>Sender: hyperaldosteronism Date: Fri, 11 Jun 2010 15:15:24 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: update Hello, I haven't e-mailed you guys in awhile but think me and my new internal medicine doctor are on to something and it is not conn's. Did salt loading test and was normal. My new doctor did ACTH stimulation test and adrenal glands are not working like they should and he is thinking adrenal insuffienciency. My cortisol level was supposed to double and mine bearly did anything and was lower than normal to start out with. He put me on 2 mg of prednisone for 3 weeks and I saw him again. I wasn't a whole lot better and with more strewss of going to a special class for work, working, and doing projects for another job - I was getting dizzy and exteemely exhausted again. He increased dose to 4 mg a day and again I will go back in few weeks. The difference is huge but still not back to nomral by any means. I can breath better, less heart palpitations, increased tolerance to sodium, feel a lot more energy and mentally there. Last week though I had alot more stree again and dizziness and fatigue crept back in so maybe I need an evening dose or another pill when I am stressed to help with that. I'm wondering if this is autoimmune because of having autommune thyroid disease too. I've looked online and saw the adrenal spectrum disease that range from addisons to cushings and I think my adreanls ahve been going crazy because at first one doctor thought I did have cushings because of elevated cortisol and ACTH and many symptoms. Now it seems I am leaning toward addisons but still do not have the extreme symptoms of salt craving or tanning. Any thoughts guys.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 Good points. I do have atleast one autoimmune disease...autoimmune thyroid. Im wondering if I have another autoimmune disease affecting adrenal glands too.The only thing doc can come up with now is adrenal insufficiency because when I did the ACTH stim test my cotisol bearly did anything. I'll get the lab results and post them on here soon.ALWASY WONDER IF ACTH WAS GOOD OR IF LAB SCREWED UP. WHAT OTHER SUPPORTING LABS DO YOU HAVE FOR ADRENAL INSUFF. I am feeling much better with the 4 mg of prednisone but still with more activity and stress I feel worse again and get weird dizzy feeling and really really tired. But I'm not exhausted like I was before. One day before taking meds, I was outside during a childrens olympics activity and all I was doing was holding a hula hoop and going to fetch the football. I was in the sun for a couple of hours and this should have made me tired and maybe needed a nap right....no. I was so exhausted when I got home that I crashed out and ate supper and slept again for 12 hours. Got up next morning still feeling same and very dizzy. I couldn't go to work the next day and stayed all day in bed. I felt the same the next day and did the same thing.I once sat up long enough to check my e-mail but couldn't even get into program withou having to lay down...an overwhelming feelin of you got to lay down now....aweful! After this, that is why doctor ran ACTH stim test. I have not done this since medicines and have more energy and feel more like myself. If i truely do have addisons or adrenal insufficiency...dont they take this medicine for life? If I have an autoimmune disease attacking my adrenal glands, I'm sure I'll still need it. I'm just glad something is making me feel better....YES AND THAT IS THE REASON (LIFE LONG NEED AND NEED TO CARRY A SYRINGE WITH YOU WITH CORTISL FOR EMERGENCIES) IT IS CRITICAL TO CONSIDER REPEATING THE TEST. Re: update Prednisone reduces swelling and inflammation. Can be ok in small doses. If you body gets more then it needs you will get cushings. Not a goog drug to take long term unless that is your only choice. The question is it helping because it is reducing inflammation from some something other then addisons? If you have an autoimmune disorder then Prednisone would help this. > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > internal medicine doctor are on to something and it is not conn's. > > Did salt loading test and was normal. My new doctor did ACTH > > stimulation test and adrenal glands are not working like they should > > and he is thinking adrenal insuffienciency. My cortisol level was > > supposed to double and mine bearly did anything and was lower than > > normal to start out with. He put me on 2 mg of prednisone for 3 > > weeks and I saw him again. I wasn't a whole lot better and with more > > strewss of going to a special class for work, working, and doing > > projects for another job - I was getting dizzy and exteemely > > exhausted again. He increased dose to 4 mg a day and again I will go > > back in few weeks.> >> > The difference is huge but still not back to nomral by any means. I > > can breath better, less heart palpitations, increased tolerance to > > sodium, feel a lot more energy and mentally there. Last week though > > I had alot more stree again and dizziness and fatigue crept back in > > so maybe I need an evening dose or another pill when I am stressed > > to help with that.> >> > I'm wondering if this is autoimmune because of having autommune > > thyroid disease too. I've looked online and saw the adrenal spectrum > > disease that range from addisons to cushings and I think my adreanls > > ahve been going crazy because at first one doctor thought I did have > > cushings because of elevated cortisol and ACTH and many symptoms. > > Now it seems I am leaning toward addisons but still do not have the > > extreme symptoms of salt craving or tanning. Any thoughts guys....> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 what other supporting labs would i need to get. I know he tested several other things at the same time but haven't had the chance to get copies of labwork. Will go next week to get them. Re: update Prednisone reduces swelling and inflammation. Can be ok in small doses. If you body gets more then it needs you will get cushings. Not a goog drug to take long term unless that is your only choice. The question is it helping because it is reducing inflammation from some something other then addisons? If you have an autoimmune disorder then Prednisone would help this. > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > internal medicine doctor are on to something and it is not conn's. > > Did salt loading test and was normal. My new doctor did ACTH > > stimulation test and adrenal glands are not working like they should > > and he is thinking adrenal insuffienciency. My cortisol level was > > supposed to double and mine bearly did anything and was lower than > > normal to start out with. He put me on 2 mg of prednisone for 3 > > weeks and I saw him again. I wasn't a whole lot better and with more > > strewss of going to a special class for work, working, and doing > > projects for another job - I was getting dizzy and exteemely > > exhausted again. He increased dose to 4 mg a day and again I will go > > back in few weeks.> >> > The difference is huge but still not back to nomral by any means. I > > can breath better, less heart palpitations, increased tolerance to > > sodium, feel a lot more energy and mentally there. Last week though > > I had alot more stree again and dizziness and fatigue crept back in > > so maybe I need an evening dose or another pill when I am stressed > > to help with that.> >> > I'm wondering if this is autoimmune because of having autommune > > thyroid disease too. I've looked online and saw the adrenal spectrum > > disease that range from addisons to cushings and I think my adreanls > > ahve been going crazy because at first one doctor thought I did have > > cushings because of elevated cortisol and ACTH and many symptoms. > > Now it seems I am leaning toward addisons but still do not have the > > extreme symptoms of salt craving or tanning. Any thoughts guys....> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 you can find information here. http://en.wikipedia.org/wiki/%27s_disease > > > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > > internal medicine doctor are on to something and it is not conn's. > > > Did salt loading test and was normal. My new doctor did ACTH > > > stimulation test and adrenal glands are not working like they should > > > and he is thinking adrenal insuffienciency. My cortisol level was > > > supposed to double and mine bearly did anything and was lower than > > > normal to start out with. He put me on 2 mg of prednisone for 3 > > > weeks and I saw him again. I wasn't a whole lot better and with more > > > strewss of going to a special class for work, working, and doing > > > projects for another job - I was getting dizzy and exteemely > > > exhausted again. He increased dose to 4 mg a day and again I will go > > > back in few weeks. > > > > > > The difference is huge but still not back to nomral by any means. I > > > can breath better, less heart palpitations, increased tolerance to > > > sodium, feel a lot more energy and mentally there. Last week though > > > I had alot more stree again and dizziness and fatigue crept back in > > > so maybe I need an evening dose or another pill when I am stressed > > > to help with that. > > > > > > I'm wondering if this is autoimmune because of having autommune > > > thyroid disease too. I've looked online and saw the adrenal spectrum > > > disease that range from addisons to cushings and I think my adreanls > > > ahve been going crazy because at first one doctor thought I did have > > > cushings because of elevated cortisol and ACTH and many symptoms. > > > Now it seems I am leaning toward addisons but still do not have the > > > extreme symptoms of salt craving or tanning. Any thoughts guys.... > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 24 hr urine free cortisol is best. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension what other supporting labs would i need to get. I know he tested several other things at the same time but haven't had the chance to get copies of labwork. Will go next week to get them. Re: update Prednisone reduces swelling and inflammation. Can be ok in small doses. If you body gets more then it needs you will get cushings. Not a goog drug to take long term unless that is your only choice. The question is it helping because it is reducing inflammation from some something other then addisons? If you have an autoimmune disorder then Prednisone would help this. > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > internal medicine doctor are on to something and it is not conn's. > > Did salt loading test and was normal. My new doctor did ACTH > > stimulation test and adrenal glands are not working like they should > > and he is thinking adrenal insuffienciency. My cortisol level was > > supposed to double and mine bearly did anything and was lower than > > normal to start out with. He put me on 2 mg of prednisone for 3 > > weeks and I saw him again. I wasn't a whole lot better and with more > > strewss of going to a special class for work, working, and doing > > projects for another job - I was getting dizzy and exteemely > > exhausted again. He increased dose to 4 mg a day and again I will go > > back in few weeks.> >> > The difference is huge but still not back to nomral by any means. I > > can breath better, less heart palpitations, increased tolerance to > > sodium, feel a lot more energy and mentally there. Last week though > > I had alot more stree again and dizziness and fatigue crept back in > > so maybe I need an evening dose or another pill when I am stressed > > to help with that.> >> > I'm wondering if this is autoimmune because of having autommune > > thyroid disease too. I've looked online and saw the adrenal spectrum > > disease that range from addisons to cushings and I think my adreanls > > ahve been going crazy because at first one doctor thought I did have > > cushings because of elevated cortisol and ACTH and many symptoms. > > Now it seems I am leaning toward addisons but still do not have the > > extreme symptoms of salt craving or tanning. Any thoughts guys....> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2010 Report Share Posted June 14, 2010 Good points. I do have atleast one autoimmune disease...autoimmune thyroid. Im wondering if I have another autoimmune disease affecting adrenal glands too.The only thing doc can come up with now is adrenal insufficiency because when I did the ACTH stim test my cotisol bearly did anything. I'll get the lab results and post them on here soon.ALWASY WONDER IF ACTH WAS GOOD OR IF LAB SCREWED UP. WHAT OTHER SUPPORTING LABS DO YOU HAVE FOR ADRENAL INSUFF. I am feeling much better with the 4 mg of prednisone but still with more activity and stress I feel worse again and get weird dizzy feeling and really really tired. But I'm not exhausted like I was before. One day before taking meds, I was outside during a childrens olympics activity and all I was doing was holding a hula hoop and going to fetch the football. I was in the sun for a couple of hours and this should have made me tired and maybe needed a nap right....no. I was so exhausted when I got home that I crashed out and ate supper and slept again for 12 hours. Got up next morning still feeling same and very dizzy. I couldn't go to work the next day and stayed all day in bed. I felt the same the next day and did the same thing.I once sat up long enough to check my e-mail but couldn't even get into program withou having to lay down...an overwhelming feelin of you got to lay down now....aweful! After this, that is why doctor ran ACTH stim test. I have not done this since medicines and have more energy and feel more like myself. If i truely do have addisons or adrenal insufficiency...dont they take this medicine for life? If I have an autoimmune disease attacking my adrenal glands, I'm sure I'll still need it. I'm just glad something is making me feel better....YES AND THAT IS THE REASON (LIFE LONG NEED AND NEED TO CARRY A SYRINGE WITH YOU WITH CORTISL FOR EMERGENCIES) IT IS CRITICAL TO CONSIDER REPEATING THE TEST. Re: update Prednisone reduces swelling and inflammation. Can be ok in small doses. If you body gets more then it needs you will get cushings. Not a goog drug to take long term unless that is your only choice. The question is it helping because it is reducing inflammation from some something other then addisons? If you have an autoimmune disorder then Prednisone would help this. > > > Hello, I haven't e-mailed you guys in awhile but think me and my new > > internal medicine doctor are on to something and it is not conn's. > > Did salt loading test and was normal. My new doctor did ACTH > > stimulation test and adrenal glands are not working like they should > > and he is thinking adrenal insuffienciency. My cortisol level was > > supposed to double and mine bearly did anything and was lower than > > normal to start out with. He put me on 2 mg of prednisone for 3 > > weeks and I saw him again. I wasn't a whole lot better and with more > > strewss of going to a special class for work, working, and doing > > projects for another job - I was getting dizzy and exteemely > > exhausted again. He increased dose to 4 mg a day and again I will go > > back in few weeks.> >> > The difference is huge but still not back to nomral by any means. I > > can breath better, less heart palpitations, increased tolerance to > > sodium, feel a lot more energy and mentally there. Last week though > > I had alot more stree again and dizziness and fatigue crept back in > > so maybe I need an evening dose or another pill when I am stressed > > to help with that.> >> > I'm wondering if this is autoimmune because of having autommune > > thyroid disease too. I've looked online and saw the adrenal spectrum > > disease that range from addisons to cushings and I think my adreanls > > ahve been going crazy because at first one doctor thought I did have > > cushings because of elevated cortisol and ACTH and many symptoms. > > Now it seems I am leaning toward addisons but still do not have the > > extreme symptoms of salt craving or tanning. Any thoughts guys....> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 i had booked Operation Lift it is the handicapped bus to get to the CR meeting tonight but it is lousy weather so i had to cancel. i actually am alittle scared to go back, and today i have been crying off and on as i had to put a cat down yesterday. Fat boy was 7yrs old and he had a blockage i had him in the vet hospital since last Thurs and the bill came to over 1100$ that i only had 500$ so my pastor put it on her credit card so i will pay her back on installments but first i have to pay the loan i got from Money Mart for the 500$ as they charge 28% interest and for 3weeks it is 100$ more i have to pay back so on the 27'th i will have to pay 600$. so next month is going to be tight but we will make it we get the Ontario Sales tax rebate which is 65$ per person which will help cause i have to take my dog Whimpy to get a hair cut and nails done which willl be 50$, and one good thing is we have a full freezer and alot of pasta and canned stuff so we will be fine and can always go to the free meals if need to. anyway one day i will make it back to CR i just don't feel right going in after being away for 4 months but it is just my own pride i don't like being noticed or recognized and they point out new comers and ppl that come back so it is something i have to get over. later kim Quote Link to comment Share on other sites More sharing options...
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