Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 I will be traveling tomorrow morning to Dr. Kramer's office in Charlotte, NC. I will be having blood draws prior to the ct scan and I will be asking the phlebotomist to not use a tourniquet nor do I want to squeeze any object or make a fist. I plan on taking Dr. Grims notes on what not to do or should do for a K draw. The ct scan I believe is with and without contrast if I heard Dr. Kramer correctly focusing on the adrenals. I do not know if I will know anything tomorrow or not but I will post to let everyone know. I am also carrying urine across the state line. One aldo and one na/K. I hope I don't get caught doing that. this wouldn't be the first time in my family! True! TIP: I almost voided today without catching but thankfully enough I had put measures in place to help should I forget about catching the urine. I have a master bath upstairs and early today before my shower I closed the lid on the toilet seat and put the toilet plunger on top of it should I try to use the bathroom and forget to catch. I knew if I saw the plunger I would realize that I was doing something I shouldn't be doing. Well I did make an effort to go right before my shower and the toilet plunger kept me from making a mistake. Thank Goodness! Just a tip for you urine catchers! Looking for a diagnosis soon! Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Glad you got everything done. When I had my CT and ultrasound done on my adrenals and kidney, I was put on a special diet with very little sodium allowed for 48 hours before them. Did you have to do anything like that or was life normal for you. So when do you return for the results? Pam I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC.Today I turned in my urine for na/k and aldo and also had blood draws taken for the following: AldoReninBMP (Basic Metabolic Panel)18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism)Seems that there were 5 stickers on my chart, I must be missing one! The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that.I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal. After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one. So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K.The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not! I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!!Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Excellent Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC. Today I turned in my urine for na/k and aldo and also had blood draws taken for the following: Aldo Renin BMP (Basic Metabolic Panel) 18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism) Seems that there were 5 stickers on my chart, I must be missing one! The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that. I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal. After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one. So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K. The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not! I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!! Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Hey Pam, Glad to hear from you. I was not asked to change diet, just collect urine as required and show up at appointment from ct scan. Man, what a difference health care is at Mecklenburg Medical Group compared to our hoity toity doctors here in Greenville, SC. Email me and let me know how you have been. Charlotte Zahnd From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Pam Scriber Sent: Thursday, July 08, 2010 5:35 PM To: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Glad you got everything done. When I had my CT and ultrasound done on my adrenals and kidney, I was put on a special diet with very little sodium allowed for 48 hours before them. Did you have to do anything like that or was life normal for you. So when do you return for the results? Pam On Thu, Jul 8, 2010 at 4:30 PM, Charlotte <charlottezbellsouth (DOT) net> wrote: I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC. Today I turned in my urine for na/k and aldo and also had blood draws taken for the following: Aldo Renin BMP (Basic Metabolic Panel) 18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism) Seems that there were 5 stickers on my chart, I must be missing one! The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that. I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal. After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one. So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K. The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not! I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!! Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 I have another HTN expert in ton SC at Tiped sad Send form miiPhone ;-)he May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Hey Pam, Glad to hear from you. I was not asked to change diet, just collect urine as required and show up at appointment from ct scan. Man, what a difference health care is at Mecklenburg Medical Group compared to our hoity toity doctors here in Greenville, SC. Email me and let me know how you have been. Charlotte Zahnd From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Pam Scriber Sent: Thursday, July 08, 2010 5:35 PM To: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Glad you got everything done. When I had my CT and ultrasound done on my adrenals and kidney, I was put on a special diet with very little sodium allowed for 48 hours before them. Did you have to do anything like that or was life normal for you. So when do you return for the results? Pam On Thu, Jul 8, 2010 at 4:30 PM, Charlotte <charlottezbellsouth (DOT) net> wrote: I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC. Today I turned in my urine for na/k and aldo and also had blood draws taken for the following: Aldo Renin BMP (Basic Metabolic Panel) 18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism) Seems that there were 5 stickers on my chart, I must be missing one! The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that. I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal. After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one. So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K. The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not! I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!! Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Dr. Jan Basile at UN SC. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Like Charlotte, Charlotte NC is closer for me than ton (2 hours vs 4) but could you please share his name with us. I am seeing my doctor tomorrow and depending on the renin/adolesterone results, another opinion might be in my best interest. Pam On Thu, Jul 8, 2010 at 8:26 PM, Clarence Grim <lowerbp2mac> wrote: I have another HTN expert in ton SC at Tiped sad Send form mi iPhone ;-)he May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Jul 8, 2010, at 7:43 PM, charlotte zahnd <charlottezbellsouth (DOT) net> wrote: Hey Pam, Glad to hear from you. I was not asked to change diet, just collect urine as required and show up at appointment from ct scan. Man, what a difference health care is at Mecklenburg Medical Group compared to our hoity toity doctors here in Greenville, SC. Email me and let me know how you have been. Charlotte Zahnd From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Pam Scriber Sent: Thursday, July 08, 2010 5:35 PMTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Glad you got everything done. When I had my CT and ultrasound done on my adrenals and kidney, I was put on a special diet with very little sodium allowed for 48 hours before them. Did you have to do anything like that or was life normal for you. So when do you return for the results? Pam On Thu, Jul 8, 2010 at 4:30 PM, Charlotte <charlottezbellsouth (DOT) net> wrote: I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC. Today I turned in my urine for na/k and aldo and also had blood draws taken for the following:AldoReninBMP (Basic Metabolic Panel)18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism) Seems that there were 5 stickers on my chart, I must be missing one!The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that. I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal. After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one. So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K.The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not! I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!!Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 Instructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 correct.Thank you Dr. Grim. My research regarding this lab as I understand is somewhat useful in ruling out unilateral vs. bilateral adenoma. Does that sound right? Charlotte From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Monday, July 12, 2010 9:31 PMTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer It may take a couple of weeks to get this on back. CE Grim MD The lab I mentioned in the following text, 18-b oxycortisol, that was incorrect. It was 18-hydroxycorticosterone. I haven’t heard from results just yet. Charlotte Zahnd From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of CharlotteSent: Thursday, July 08, 2010 4:31 PMTo: hyperaldosteronism Subject: CT Scan - Dr. Kramer I have returned home and continue to be impressed by Dr. Kramer but also everyone working at the Mecklenburg Medical Group in Charlotte, NC.Today I turned in my urine for na/k and aldo and also had blood draws taken for the following:AldoReninBMP (Basic Metabolic Panel)18-b oxycortisol ??? I believe this is testing for GRA (glucocorticoid remediable aldosteronism)Seems that there were 5 stickers on my chart, I must be missing one!The Phlebotomist did as I asked by not using a tourniquet or hand squeeze an object, so that my blood potassium would be checked properly. She seemed to understand that.I went downstairs to Carolina Imaging and did my ct scan first without contract and then later with contrast. First, I drank approximately 8 oz. water and waited 30 minutes. I went in and out the machine a few times without contrast. There was difficulty getting a vein to insert the iodine contrast (150cc) but it was managed. i did get a minor warm feeling but almost immediately my bladder was getting full. I was told this is normal.After going in and out of the machine a few times after the contrast, I told my lab tech that I wasn't sure if I would be able to wait the 10 minutes before the next scan, because I desperately needed to urinate but would try my best to hold as long as possible, maybe she could find a bed pan so I wouldn't have to get up. She said if I had to go to the bathroom that they would have to take an extra scan for some reason I don't recall. She saw how miserable I was becoming holding my urine, so she helped me get up (only because my bladder felt like it was about to explode), relieved myself and then returned for the last scan plus the extra one.So that's that! These trips take a total of 4 hours but very worth it for peace of mind and expertise of Dr. K.The fact that Dr. Kramer is looking at all avenues regarding aldosteronism (meaning testing the 18-b steroid) has blown my socks off. I feel certain he will arrive at some conclusion as far as PA goes and get me on my way back to better health whether it's PA or not!I'm so happy that I am in good hands! What a relief! I finally feel like someone has taken me seriously and that good health is just a few trips away. Yeah!!!!!!!!!!Charlotte Zahnd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 Yes it is called read your email.CE Grim MDInstructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 Hi Dr. Grim,I'm going to unsubscribe aswell but thank you for trying to help me. I will come back and tell you My diagnosis once I have a firm one.Good luck to all of you :)I just have to many emails on my phone.KRMandySent using BlackBerry® from OrangeSender: hyperaldosteronism Date: Tue, 13 Jul 2010 10:03:40 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Yes it is called read your email.CE Grim MDInstructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 you can always subscribe to the summary each day or week.CE Grim MDHi Dr. Grim,I'm going to unsubscribe aswell but thank you for trying to help me. I will come back and tell you My diagnosis once I have a firm one.Good luck to all of you :)I just have to many emails on my phone.KRMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Sender: hyperaldosteronism Date: Tue, 13 Jul 2010 10:03:40 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Yes it is called read your email.CE Grim MDInstructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 Oh, I may do that then.ThanksTcSent using BlackBerry® from OrangeSender: hyperaldosteronism Date: Tue, 13 Jul 2010 10:24:20 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer you can always subscribe to the summary each day or week.CE Grim MDOn Jul 13, 2010, at 10:22 AM, moseleymandhotmail (DOT) co.uk wrote:Hi Dr. Grim,I'm going to unsubscribe aswell but thank you for trying to help me. I will come back and tell you My diagnosis once I have a firm one.Good luck to all of you :)I just have to many emails on my phone.KRMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Sender: hyperaldosteronism Date: Tue, 13 Jul 2010 10:03:40 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Yes it is called read your email.CE Grim MDInstructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 You can set your message to only get the digest or nothing so you can sign on and read only when you want. That way you can keep up when at your computer without having to register again and not bother you phone. I would recommend this.I/we am very interested in what turns up in your interesting case.CE Grim MDHi Dr. Grim,I'm going to unsubscribe aswell but thank you for trying to help me. I will come back and tell you My diagnosis once I have a firm one.Good luck to all of you :)I just have to many emails on my phone.KRMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Sender: hyperaldosteronism Date: Tue, 13 Jul 2010 10:03:40 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: CT Scan - Dr. Kramer Yes it is called read your email.CE Grim MDInstructions are a the bottom of every email. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Stone How do i get off the mailing list for this group? Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
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