Pseudomonas found - Was re: Pneumonia & Pink Urine

[Guest guest]

Hi everyone,

Was in hospital again with ds today, (after pneumonia on 19June). He started coughing again on Wed so took him for assessment. Xray done, lungs look better but still a haze over the right lung and they are not sure if it is the remainder of the last infection or a new infection altogether. Further examination also shows an ear and throat infection as well! (he has been scratching at his left temple but this explains why, I thought all along it was a skin irritation )

A further swab done last week around his bum/penis area shows "colonisation of pseudomonas". The Registrar went through various tests done since January and said he had pseudomonas at the end of April in a throat swab, which we were never informed of. What we've been told is it is a bacteria that is found on all of us, soil, water etc.

My concern is if this bears any significance to his recent pneumonia and being poorly for sometime now. Is there anyway of finding out or getting them to test further? Does anyone know much about this bacteria?

He's now been prescribed azithromycin (6 days) and fluconazole (14 days). I'm getting really concerned over the number of antibiotics. He's had about 4 courses of antibiotics in the last 6-8 months.

I still can't figure out why doctors hide/don't give us full results of tests, this is the second time this week that we have found out a result that they didn't give us. Early this week we found out that Norman was diagnosed with colitis by the GI at GOSH when he was 3 yrs old (he is now 12)but she never gave us this result, she only asked us to try the GFCF diet to see if it helped his loose stools. Surely, we should have a right to the results of findings, don't we? Should I be writing to complain about not being told of these results??

Any thoughts, advice, anything on the pseudomonas will be really helpful.

emily

> > > >> > > >> > > > Hi everyone,> > > >> > > > Norman was admitted in hospital early this morning and results of> > bloods> > > > indicated increased levels of white blood cells and a chest xray> > > > confirmed that he has an infection on his lungs with the right> side> > much> > > > more affected.> > > >> > > > Has anyone else been in this situation? What can I do to help him> > > > recover? The doctors have started him on intravenous Augmentin and> > > > something ....mycin (sounds like erythromycin but different) and> > suggest> > > > to keep him in for 48hrs and reassess.> > > >> > > > This all developed very quickly on Saturday evening beginning with> a> > > > horrific cough and a high temperature, having said this he's had> > > > problems with phlegm and mucous in the throat for a long time and> is> > > > unaware of how to cough it out but he has also had a number of> staph> > > > infections over the last few months (so not sure how or if this> fits> > in> > > > with what is going on). As well as this, he has reflux problems> > which> > > > appear to be resurfacing now (he was treated for this as a baby)> and> > am> > > > not sure if the high fat ketogenic diet is exacerbating this.> > > >> > > > Anyway I'd be most grateful for any words of advice, wisdom that> you> > may> > > > be able to share with me. Just googled pneumonia quickly and looks> > as> > > > if it can be bacterial, viral, fungal....ummmmm. I've also just> > > > introduced Vit A over the last couple of weeks and this was> showing> > > > positive signs but can an underlying measles virus be> > > > resurrected/released from this and be playing a role?> > > >> > > > TIA> > > >> > > > emily> > > >> > > Dear I am so sorry to hear that your little lad is so poorly I> > > am afraid that I am not knowledgeable enough to offer advice just> want> > > to say that I will be thinking of you both and I really hope that he> > > makes a speedy recovery.> > > Very best wishes> > > Emma> > >> >>