Guest guest Posted June 14, 2010 Report Share Posted June 14, 2010 As much as I like the MS Society for trying to advocate for us … I think they have dropped the ball with CCVSI. It sounds valid and there is proof that something they are doing is working … but because all the money is tied up, in drugs to help us with the disease and not curing it … they don’t want to fund a cure thinking they will no longer be needed. It is frustrating that Hamilton is all ready to go with the testing … only the testing … as is Barrie … they did not receive a dime to study this. I am hoping now the Canadian government will step in and realize that a simple test, and a simple operation may save everyone money. I don’t want to go on disability … but If I have to I will … which will cost the governments. I can no longer afford my medication (Rebif) even with Trillium’s help because at work I have been down sized and had to take a pay cut and lost hours and I cannot afford my co-pay. I have been off Rebif for 2 months and I feel the disease already starting to progress and make its self known in my body. I have hope but I don’t have the energy to fight. Save paper, ink & energy - do you really need to print this e-mail? Reilly koala5@... http//canadaMS Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.