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Welcome Selfish Genome

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Welcome Selfish Genome,

Thank you for introducing yourself. Many with CMT have experiences

similiar emotional issues as you surrounding CMT. In my experience,

the best I can do is maintain a positive attitude in the 'power of

now', plus remaining grateful for all my experiences that have

been 'gifts' - including having CMT.

As for AFOs, custom made ones for your legs/feet will help. You may

wish to review our past posts on AFOs, as this topic has come up many

times. You may also wish to look at Helios braces http://www.hnf-

cure.org/html/braces.php AFOs can be worn under slacks/pants, or

under long skirts if you are so concerned with " looks " . Many of my

friends wearing AFOs, who have fully accepted their CMT, wear shorts,

and do not think much of it. AFOs are merely a device to help persons

with CMT move around better.

Whatever kind and make, I suggest you find a quality Orthotist and

discuss your needs and options with him/her.

~ Gretchen (Founder/Moderator )

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