Re: Entitlements Help Please

[Guest guest]

Off the top of my head Mandi, but premium on tax credit for disabled children, will try and think of anything else.

Vicky

[Guest guest]

Oh and really silly one, we got the extra large wheelie bin when was still in nappies lol.

Vicky

[Guest guest]

>

> Hi Troops

>

> Been asked to write a short article or suggest somebody who can

about

> entitlements, I know there was soembody here who knew all sorts of

stuff and led to

> me getting a free tax disc and parking - comeout comeout whever

you are!

>

> Things I can think of quickly

>

> DLA

> ICA

> Blue Badge - Tax Disc - Parking

> Carers Assessment

> Access to Leisure (maybe be geographical)

>

> What else is there pretty please

Free nappies?

respite care?

>

> TIA

>

> Mandi x

>

[Guest guest]

---Direct payments.

Sharon.

In Autism-Biomedical-Europe , " brownsauce66 "

wrote:

>

>

> >

> > Hi Troops

> >

> > Been asked to write a short article or suggest somebody who can

> about

> > entitlements, I know there was soembody here who knew all sorts

of

> stuff and led to

> > me getting a free tax disc and parking - comeout comeout whever

> you are!

> >

> > Things I can think of quickly

> >

> > DLA

> > ICA

> > Blue Badge - Tax Disc - Parking

> > Carers Assessment

> > Access to Leisure (maybe be geographical)

> >

> > What else is there pretty please

>

>

> Free nappies?

> respite care?

>

> >

> > TIA

> >

> > Mandi x

> >

>

[Guest guest]

Free entry for carer to most attractions (is this the same as leisure

pass)

Family Fund grants

Council tax reduction if room solely used for child

Local Authority grant for extra disabled failities (dont know the

proper name)

x

[Guest guest]

Direct

payments

-----Original

Message-----

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of Mum231ASD@...

Sent: 18 October 2007 11:44

To:

Autism-Biomedical-Europe

Subject:

Entitlements Help Please

Hi

Troops

Been

asked to write a short article or suggest somebody who can about entitlements,

I know there was soembody here who knew all sorts of stuff and led to me

getting a free tax disc and parking - comeout comeout whever you are!

Things

I can think of quickly

DLA

ICA

Blue

Badge - Tax Disc - Parking

Carers

Assessment

Access

to Leisure (maybe be geographical)

What

else is there pretty please

TIA

Mandi x

[Guest guest]

Oh

yeah nad council tax rebate if you have a room for therapy.

-----Original

Message-----

From: Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of MaddiganV@...

Sent: 18 October 2007 11:54

To:

Autism-Biomedical-Europe

Cc: MaddiganV@...

Subject: Re:

Entitlements Help Please

Off the

top of my head Mandi, but premium on tax credit for disabled children, will try

and think of anything else.

Vicky

[Guest guest]

Didn't someone mention money off your gas bill??

Money off you council tax if you have a room adapted for therapy in some way

Direct Payments

Flexibility in your working hours - there is legislation in place

Cinema Card - offers free entry to a carer (this costs £5 per year) and some places let carer in for nothing.

RE: Entitlements Help Please

Direct payments

-----Original Message-----From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Mum231ASDaolSent: 18 October 2007 11:44To: Autism-Biomedical-Europe Subject: Entitlements Help Please

Hi Troops

Been asked to write a short article or suggest somebody who can about entitlements, I know there was soembody here who knew all sorts of stuff and led to me getting a free tax disc and parking - comeout comeout whever you are!

Things I can think of quickly

DLA

ICA

Blue Badge - Tax Disc - Parking

Carers Assessment

Access to Leisure (maybe be geographical)

What else is there pretty please

TIA

Mandi x

[Guest guest]

A very good book to have re background to social services assessments

and what they should lead to, also discusses human rights and

disability is Disabled Children and the Law ( Kingsley

publishers, available from Amazon via the TA website). Make sure you

get the second edition. It came out before the lates LA complaints

system came in, so, like any book discussing the law, is never bang

up to date, but it's very good.

No point having an assessment if you don't get services at the end of

it!

Not an entitlement, but useful:

1. Caudwell Charity who fund biomed and start-up for Sonrise. I also

heard they helped a family doing ABA.

2. Cerebra have interesting and useful grants: eg vouchers for £350,

not means tested, to help you pay for a solicitor to set up a Will

Trust for your disabled child. Also holiday grants. And a free

bungalow, but they're booked already for next year. Applications for

2009 will be accepted from 1 January 2008. Two professional letters

of support required, so need to plan in advance. (I make a mental

note myself to do this!)

3.Family Fund can help families on lowish incomes with disabled child

under 16 with various items, also driving lessons for carer if you

can show you'd have access to a car afterwards eg high rte mobility

DLA.

4. Some areas have a carer's contingency fund to help support carers.

Ours has a budget of £nil this year.

Margaret

In Autism-Biomedical-Europe , Mum231ASD@... wrote:

>

> Hi Troops

>

> Been asked to write a short article or suggest somebody who can

about

> entitlements, I know there was soembody here who knew all sorts of

stuff and led to

> me getting a free tax disc and parking - comeout comeout whever

you are!

>

> Things I can think of quickly

>

> DLA

> ICA

> Blue Badge - Tax Disc - Parking

> Carers Assessment

> Access to Leisure (maybe be geographical)

>

> What else is there pretty please

>

> TIA

>

> Mandi x

>

[Guest guest]

Direct payments/respite care won't be offered until you have had a

completed core assessment (get a carer's one at the same time)and

have an assessed need at alevel that comes within your LA's

eligibiulity criteria for help. Get a copy of these before you start

and find out which categories get help. Then a Care Plan should be

drawn up stating what services are to be provided. Only at that point

do the soecified services become an entitlement. In law they can only

then remove them after doing a full reassessment and deciding you

don't need them any more.

If you are in Cambridgeshire, the LA will ignore the law and remover

them any way!

Margaret

> > >

> > > Hi Troops

> > >

> > > Been asked to write a short article or suggest somebody who can

> > about

> > > entitlements, I know there was soembody here who knew all sorts

> of

> > stuff and led to

> > > me getting a free tax disc and parking - comeout comeout whever

> > you are!

> > >

> > > Things I can think of quickly

> > >

> > > DLA

> > > ICA

> > > Blue Badge - Tax Disc - Parking

> > > Carers Assessment

> > > Access to Leisure (maybe be geographical)

> > >

> > > What else is there pretty please

> >

> >

> > Free nappies?

> > respite care?

> >

> > >

> > > TIA

> > >

> > > Mandi x

> > >

> >

>

[Guest guest]

Possibly the most useful thing for many families with fortnightly

rubbish collection!

Margaret

>

> Oh and really silly one, we got the extra large wheelie bin when

was

> still in nappies lol.

> Vicky

>

[Guest guest]

I've got a leaflet here (Can't remember where it came from) and there

seem to be a few charities that can offer help to families with

disabled children. Some give one off grants of cash, grants towards

bedding, essential furniture, equipment relating to disabilty... I'm

preparing a letter to send out to them describing Nic and what we are

doing re biomed, diet and home programme. I'm also planning on

listing what we need, from organic mattress to funding for HBOT. I'm

hoping the saturation technique will result in a few donations being

made!!!

The leaflet is 14 double sided pages long. If anyone wants me to post

or fax them a copy you can email me off list if you like.

Jane

x

> >

> > Hi Troops

> >

> > Been asked to write a short article or suggest somebody who can

> about

> > entitlements, I know there was soembody here who knew all sorts

of

> stuff and led to

> > me getting a free tax disc and parking - comeout comeout whever

> you are!

> >

> > Things I can think of quickly

> >

> > DLA

> > ICA

> > Blue Badge - Tax Disc - Parking

> > Carers Assessment

> > Access to Leisure (maybe be geographical)

> >

> > What else is there pretty please

> >

> > TIA

> >

> > Mandi x

> >

>

[Guest guest]

Carers Allowance

Council Tax Benefit (if you can prove you have altered your house specifically because of your child e.g.)installed downstairs bathroom)

Disabled Railcard thingy

Family Fund Trust

Motability

Jacqui X

[Guest guest]

In Glasgow

you can get a bus pass for child and carer. ‘s

school uses it for outings too. Als cinema pass for adult accompanying child (although I

have lost mine!)

Elaine

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of brownsauce66

Sent: 18 October 2007 11:54

To: Autism-Biomedical-Europe

Subject:

Re: Entitlements Help Please

>

> Hi Troops

>

> Been asked to write a short article or suggest somebody who can

about

> entitlements, I know there was soembody here who knew all sorts of

stuff and led to

> me getting a free tax disc and parking - comeout comeout whever

you are!

>

> Things I can think of quickly

>

> DLA

> ICA

> Blue Badge - Tax Disc - Parking

> Carers Assessment

> Access to Leisure (maybe be geographical)

>

> What else is there pretty please

Free nappies?

respite care?

>

> TIA

>

> Mandi x

>

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