Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 , I've thought about this for a day or so, and honestly. I can't separate the pain from each disease. I see so many posts where people describe the same symptoms I have, burning feet, pain at the joints wherever a nerve passes, pain at night from general activity. I beleive that a lot of this is CIDP and I get tons of relief from the IVIG, to the point I'm almost pain free, but does the CMT also respond to it? There is also a thread that says that some CMT types may be prone to CIDP, and may of the CMT diagnosis in the group may also have CIDP. My CIDP was diagnosed 7 years after the CMT diagnosis. It's just hard to say. Sorry I can't help more, but I do recommend that anyone with significant pain look at CIDP and see if there are cross over symtoms, and look into a lumbar puncture, particularly if one is diabetic also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi , , I'm jumping in her. I haven't been reading the emails this week so I'm behind. Sorry if I say something that has already been discussed. I have CMT 1A and I have all of the symptoms you mention below. I especially have the joint pain and it is very seasonal. I have not been diagnosed with any type of arthritis -- I have been checked for rheumatoid arthritis as well. I've always believed it was CMT related until I recently saw the posts on CIDP and looked it up on some medical sites. It does sound so close in symptoms to at least the demyelinating CMT types. Of course, lots of neuropathies have similar symptoms. I have begun wondering if I have more than one type of neurological issue going on and I plan to ask my doctor about CIDP when I see her again. I also have significant shoulder and neck pain that I believe is due to muscles weakened by inactivity. Right now, that is my primary complaint. The bones in my neck pop which I think is due to muscle atrophy. Even my neurologist noted how very weak my neck muscles are. I don't hear CMTers complaining much about shoulder and neck pain though. My mother (also diagnosed with CMT1A) has had significant neck and shoulder pain most of her life. Quote Link to comment Share on other sites More sharing options...
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