Re: Amino Acids - need your help about protein breakdown - Margaret

[Guest guest]

Hi Margaret,

Thank you for your post, it means a lot to me.

It may be the glutamine/glutamate doing this, I just don't know

anymore. He has been on the glutamine for 2 weeks and was ok all along

unless it is a case of the supplement building up in the body, if it

does this. I wonder if this is what happens, if they build up in the

body over a duration or are they used up as you take them in???? anyone

know? He appeared fine this morning, took him to school after 11.00

a.m. with no signs of NCS but waiting to see how he will be this

evening.

As things were going pretty smoothly with the glutamine after 2 weeks

supplementation, we decided that we could move to the next step, which

was the TD-GSH. Perhaps I should backtrack, withdraw the glutamine

and see what happens.

I'd be interested in the talk by Foresight, have you got their website

and/or any details of this?

Thanks,

emily xx

>

> Dear ,

> I read your earlier post and was upset to hear your child has been in

Status epilepticus. Are you certain that nothing you are doing

biomed-wise may be making things worse? I don't know enough to be of any

help, I'm sorry. Does supplementing with glutamine raise glutamate

levels? - I know high glutamate and low GABA are not good. I hope you

get good seizure control very soon.

> Margaret

>

> PS: Foresight are coming to Bury St Edmunds for a day of talks one

Saturday later in September. Mrs is billed to be present. She

helped me and Henry when he was having sezures and spotted we were both

loaded with lead.

>

> Amino Acids - need your help about

protein breakdown

>

>

>

> Hi everyone,

>

> We are using customised Amino Acids and L-Glutamine (as advised) but

can

> I pick your brains on a couple of things.

>

> We give 5 gms x 2 /day of the Amino acids; and 7.5 gms of L-glutamine

x

> 2/day..

>

> My question is, is taking amino acids equivalent to eating protein

> foods? I'm asking this because DS is on the ketogenic diet where

> quantity of proteins, carbs and fats is calculated exact to a

> prescription. So I thought last nite that if the amino acids are just

> like him having additional protein then I may be giving him too many

> proteins as I have not calculated the amino acids into the diet and he

> continues to have the full amount of protein foods (meat, eggs etc)

> prescribed for him. If this is the case, it brings me to my next

> question......

>

> We've had VERY increased urine output as well as increased thirst, and

> ketone breath (acetone breath). I know that being on the ketogenic

> diet produces ketones and is expected, but we did not have the acetone

> breath until he has been on the amino acids. So, the question is if

> you have too much protein/aminos can this produce an acetone breath?

>

> I'm not very good at all of this but can the increased urine output be

> caused by an excess intake of the amino acids and proteins breaking

> down into nitrogen and increasing water loss and puting strain on the

> kidneys.

>

> I'd really be grateful for you really smart and knowledgeable parents

> to advise or put me right if I am off track here.

>

> TIA

>

> emily

>

[Guest guest]

Dear ,

I got the date wrong: it's 20 October: http://foresight-preconception.org.uk/maingifs/2007%20East%20Anglia%2020%20Oct.pdf

There are other days and other locations: http://foresight-preconception.org.uk/information_days.htm

Margaret

Amino Acids - need your help aboutprotein breakdown>>>> Hi everyone,>> We are using customised Amino Acids and L-Glutamine (as advised) butcan> I pick your brains on a couple of things.>> We give 5 gms x 2 /day of the Amino acids; and 7.5 gms of L-glutaminex> 2/day..>> My question is, is taking amino acids equivalent to eating protein> foods? I'm asking this because DS is on the ketogenic diet where> quantity of proteins, carbs and fats is calculated exact to a> prescription. So I thought last nite that if the amino acids are just> like him having additional protein then I may be giving him too many> proteins as I have not calculated the amino acids into the diet and he> continues to have the full amount of protein foods (meat, eggs etc)> prescribed for him. If this is the case, it brings me to my next> question......>> We've had VERY increased urine output as well as increased thirst, and> ketone breath (acetone breath). I know that being on the ketogenic> diet produces ketones and is expected, but we did not have the acetone> breath until he has been on the amino acids. So, the question is if> you have too much protein/aminos can this produce an acetone breath?>> I'm not very good at all of this but can the increased urine output be> caused by an excess intake of the amino acids and proteins breaking> down into nitrogen and increasing water loss and puting strain on the> kidneys.>> I'd really be grateful for you really smart and knowledgeable parents> to advise or put me right if I am off track here.>> TIA>> emily>

[Guest guest]

Hi Margaret,

Thank you for the details.

emily

> >

> > Dear ,

> > I read your earlier post and was upset to hear your child has been

in

> Status epilepticus. Are you certain that nothing you are doing

> biomed-wise may be making things worse? I don't know enough to be of

any

> help, I'm sorry. Does supplementing with glutamine raise glutamate

> levels? - I know high glutamate and low GABA are not good. I hope you

> get good seizure control very soon.

> > Margaret

> >

> > PS: Foresight are coming to Bury St Edmunds for a day of talks one

> Saturday later in September. Mrs is billed to be present. She

> helped me and Henry when he was having sezures and spotted we were

both

> loaded with lead.

> >

> > Amino Acids - need your help

about

> protein breakdown

> >

> >

> >

> > Hi everyone,

> >

> > We are using customised Amino Acids and L-Glutamine (as advised) but

> can

> > I pick your brains on a couple of things.

> >

> > We give 5 gms x 2 /day of the Amino acids; and 7.5 gms of

L-glutamine

> x

> > 2/day..

> >

> > My question is, is taking amino acids equivalent to eating protein

> > foods? I'm asking this because DS is on the ketogenic diet where

> > quantity of proteins, carbs and fats is calculated exact to a

> > prescription. So I thought last nite that if the amino acids are

just

> > like him having additional protein then I may be giving him too many

> > proteins as I have not calculated the amino acids into the diet and

he

> > continues to have the full amount of protein foods (meat, eggs etc)

> > prescribed for him. If this is the case, it brings me to my next

> > question......

> >

> > We've had VERY increased urine output as well as increased thirst,

and

> > ketone breath (acetone breath). I know that being on the ketogenic

> > diet produces ketones and is expected, but we did not have the

acetone

> > breath until he has been on the amino acids. So, the question is if

> > you have too much protein/aminos can this produce an acetone breath?

> >

> > I'm not very good at all of this but can the increased urine output

be

> > caused by an excess intake of the amino acids and proteins breaking

> > down into nitrogen and increasing water loss and puting strain on

the

> > kidneys.

> >

> > I'd really be grateful for you really smart and knowledgeable

parents

> > to advise or put me right if I am off track here.

> >

> > TIA

> >

> > emily

> >

>