Re: Re: AVS - What to Expect

[Guest guest]

At my very first lap I was on no meds. My Aldosterone was 55 my

K was 2.8 and my renin was <.1. My endo is changing my meds. Spiro 50 and

titrating me off the lisinopril. CT scan (I have had two) show mass of 19 mm

on right adrenal gland.

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On

Behalf Of Francis Bill SUSPECTED PA

Sent: Saturday, September 25, 2010 8:54 AM

To: hyperaldosteronism

Subject: Re: AVS - What to Expect

We need all test numbers and lab ranges to give

you good information. What did the last CT show? Did Endo have you stop meds

before doing tests? If so for how long? From what Dr grim posts many times many

meds don't work with PA. I believe norvasc and lisinopril are in this group. 25

mg of spiro probably isn't enough to lower B/P.

> >

> >

> >

> > First I would like to say Thanks for all the great information on

this site. I have learned so much and it has helped me through my medical

issues.

> >

> > I year ago I went in for a routine physical. I hadn't had one in

about 3 years prior. During my physical my BP was 180/110. I have never had

high BP before and for all practical purposes very healthy. When my blood work

came back my K was 2.8. The following week my MD had me come in for another

Blood test to check my Aldosterone - it was 55. She recommended a CT and

results show a mass on my right adrenal glad. It measured 18mm x 10mm. I was

put on spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my

BP. My BP finally was under control around May 2010. By end of June - back up

running 145/95. I went to a cardiologist and then an endo. My Endo did the 24

urine, blood test, and another CT. All test came back with perfect results and

now I am being scheduled for AVS at Mayo Clinic in Rochester, MN.

> >

> > My question is can someone explain the test and what to expect?

> >

> > Thanks.

> >

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

01:34:00

[Guest guest]

I was put on K 20 mg pills for a while. As of this week my K is

4 and I am no longer on those. Yes I had side effect from low K.

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Francis Bill

SUSPECTED PA

Sent: Saturday, September 25, 2010 9:22 AM

To: hyperaldosteronism

Subject: Re: AVS - What to Expect

If K is 2.8 you must have problems related to

low K. You did not list med to replace K. What did they say about cutting back

on salt.

> > >

> > >

> > >

> > > First I would like to say Thanks for all the great information

on this

> site. I have learned so much and it has helped me through my medical

issues.

>

> > >

> > > I year ago I went in for a routine physical. I hadn't had one in

about 3

> years prior. During my physical my BP was 180/110. I have never had high

BP

> before and for all practical purposes very healthy. When my blood work

came

> back my K was 2.8. The following week my MD had me come in for another Blood

> test to check my Aldosterone - it was 55. She recommended a CT and results

> show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put

on

> spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my

BP.

> My BP finally was under control around May 2010. By end of June - back up

> running 145/95. I went to a cardiologist and then an endo. My Endo did the

> 24 urine, blood test, and another CT. All test came back with perfect

> results and now I am being scheduled for AVS at Mayo Clinic in Rochester,

> MN.

> > >

> > > My question is can someone explain the test and what to expect?

> > >

> > > Thanks.

> > >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

> 01:34:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

01:34:00

[Guest guest]

As Dr. Grim said, we have a folder in the files section called AVS experiences

at

http://health.groups.yahoo.com/group/hyperaldosteronism/files/AVS%20Experiences/

You'll see that our experiences very greatly, from very easy to completely

bungled. You MUST find an interventional radiologist who has a lot of

successful experiences with AVS. Personally mine was a piece of cake, I was

back to normal activities the next day.

Good luck,

a

>

> Subject: Re: AVS - What to Expect

> To: hyperaldosteronism

> Date: Saturday, September 25, 2010, 3:34 PM

> Hi,

>

> I posted last week and I'm the stage before - the final lab

> tests still to be done but mass (similar size to yours) on

> right adrenal gland, lowish potassium etc.etc.

>

> I wanted to know what are the pros and cons of surgery vs.

> long term meds and nobody's really answered that on here

> yet. My perspective is why would you want to stay on drugs

> long term when you could have what sounds like a relatively

> simple operation and then, hopefully, be drug free for life?

> Anybody?

>

> Once you've been through the AVS, I'd love to hear your

> experience too. I'm still wondering whether I'm completely

> underestimating the surgery but it sounds to me like the AVS

> is nearly as traumatic as the surgery to remove the growth,

> so why not just get it taken out instead? How often do you

> lose the complete adrenal gland rather than just having the

> tumour removed?

>

> Hester

>

>

> > > > > >

> > > > > >

> > > > > >

> > > > > > First I would like to say Thanks

> for all the great information on this

> > > > site. I have learned so much and it has

> helped me through my medical

> > > issues.

> > > >

> > > > > >

> > > > > > I year ago I went in for a routine

> physical. I hadn't had one in about

> > > 3

> > > > years prior. During my physical my BP was

> 180/110. I have never had high

> > > BP

> > > > before and for all practical purposes very

> healthy. When my blood work

> > > came

> > > > back my K was 2.8. The following week my MD

> had me come in for another

> > > Blood

> > > > test to check my Aldosterone - it was 55.

> She recommended a CT and results

> > > > show a mass on my right adrenal glad. It

> measured 18mm x 10mm. I was put

> > > on

> > > > spiro 25, norvasc 10, lisinopril 40 over the

> next 4 months to control my

> > > BP.

> > > > My BP finally was under control around May

> 2010. By end of June - back up

> > > > running 145/95. I went to a cardiologist and

> then an endo. My Endo did the

> > > > 24 urine, blood test, and another CT. All

> test came back with perfect

> > > > results and now I am being scheduled for AVS

> at Mayo Clinic in Rochester,

> > > > MN.

> > > > > >

> > > > > > My question is can someone explain

> the test and what to expect?

> > > > > >

> > > > > > Thanks.

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - www.avg.com

> > > > Version: 9.0.856 / Virus Database:

> 271.1.1/3157 - Release Date: 09/25/10

> > > > 01:34:00

> > > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 9.0.856 / Virus Database: 271.1.1/3157 -

> Release Date: 09/25/10

> > > 01:34:00

> > >

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

In at least 50% of cases it is on both sides. Therefore taking out one side does little benefit for long haul. Even with AVS CURE with no drugs is about 75%. As you note AVS is not without risk or cost. So far our biggest AVS bill we have recorded was $40,000. They almost alwAys take out the whole adrenal. Did u read Dr Bravo's article on med Rx in PA. Most folks here are one medical Rx which must include DASHING. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Hi,

I posted last week and I'm the stage before - the final lab tests still to be done but mass (similar size to yours) on right adrenal gland, lowish potassium etc.etc.

I wanted to know what are the pros and cons of surgery vs. long term meds and nobody's really answered that on here yet. My perspective is why would you want to stay on drugs long term when you could have what sounds like a relatively simple operation and then, hopefully, be drug free for life? Anybody?

Once you've been through the AVS, I'd love to hear your experience too. I'm still wondering whether I'm completely underestimating the surgery but it sounds to me like the AVS is nearly as traumatic as the surgery to remove the growth, so why not just get it taken out instead? How often do you lose the complete adrenal gland rather than just having the tumour removed?

Hester

> > > > >

> > > > >

> > > > >

> > > > > First I would like to say Thanks for all the great information on this

> > > site. I have learned so much and it has helped me through my medical

> > issues.

> > >

> > > > >

> > > > > I year ago I went in for a routine physical. I hadn't had one in about

> > 3

> > > years prior. During my physical my BP was 180/110. I have never had high

> > BP

> > > before and for all practical purposes very healthy. When my blood work

> > came

> > > back my K was 2.8. The following week my MD had me come in for another

> > Blood

> > > test to check my Aldosterone - it was 55. She recommended a CT and results

> > > show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put

> > on

> > > spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my

> > BP.

> > > My BP finally was under control around May 2010. By end of June - back up

> > > running 145/95. I went to a cardiologist and then an endo. My Endo did the

> > > 24 urine, blood test, and another CT. All test came back with perfect

> > > results and now I am being scheduled for AVS at Mayo Clinic in Rochester,

> > > MN.

> > > > >

> > > > > My question is can someone explain the test and what to expect?

> > > > >

> > > > > Thanks.

> > > > >

> > > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

> > > 01:34:00

> > >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

> > 01:34:00

> >

>

[Guest guest]

Don't forget that DASHING is an imporant Part of your treatment. For Aldo to do it's job on BP and K you must be eating too much salt. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I was put on K 20 mg pills for a while. As of this week my K is

4 and I am no longer on those. Yes I had side effect from low K.

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Francis Bill

SUSPECTED PA

Sent: Saturday, September 25, 2010 9:22 AM

To: hyperaldosteronism

Subject: Re: AVS - What to Expect

If K is 2.8 you must have problems related to

low K. You did not list med to replace K. What did they say about cutting back

on salt.

> > >

> > >

> > >

> > > First I would like to say Thanks for all the great information

on this

> site. I have learned so much and it has helped me through my medical

issues.

>

> > >

> > > I year ago I went in for a routine physical. I hadn't had one in

about 3

> years prior. During my physical my BP was 180/110. I have never had high

BP

> before and for all practical purposes very healthy. When my blood work

came

> back my K was 2.8. The following week my MD had me come in for another Blood

> test to check my Aldosterone - it was 55. She recommended a CT and results

> show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put

on

> spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my

BP.

> My BP finally was under control around May 2010. By end of June - back up

> running 145/95. I went to a cardiologist and then an endo. My Endo did the

> 24 urine, blood test, and another CT. All test came back with perfect

> results and now I am being scheduled for AVS at Mayo Clinic in Rochester,

> MN.

> > >

> > > My question is can someone explain the test and what to expect?

> > >

> > > Thanks.

> > >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

> 01:34:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

01:34:00

[Guest guest]

Also our Kudos to your Dr for quickly making the DX. I SUSPECT be will enjoy reading my article. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Perfect means - all test were great except, aldosterone, renin, and Potassium. I have no other complications.

>

>

>

> First I would like to say Thanks for all the great information on this site. I have learned so much and it has helped me through my medical issues.

>

> I year ago I went in for a routine physical. I hadn't had one in about 3 years prior. During my physical my BP was 180/110. I have never had high BP before and for all practical purposes very healthy. When my blood work came back my K was 2.8. The following week my MD had me come in for another Blood test to check my Aldosterone - it was 55. She recommended a CT and results show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put on spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my BP. My BP finally was under control around May 2010. By end of June - back up running 145/95. I went to a cardiologist and then an endo. My Endo did the 24 urine, blood test, and another CT. All test came back with perfect results and now I am being scheduled for AVS at Mayo Clinic in Rochester, MN.

>

> My question is can someone explain the test and what to expect?

>

> Thanks.

>

[Guest guest]

I meant Lab sorry for the confusion.  I never was told to change

my diet.

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On

Behalf Of Clarence Grim

Sent: Saturday, September 25, 2010 4:54 PM

To: hyperaldosteronism

Subject: Re: Re: AVS - What to Expect

By lap do you mean your first Laporoscopic surgery?

Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

If K is 2.8 you must have problems related to

low K. You did not list med to replace K. What did they say about cutting back

on salt.

> > >

> > >

> > >

> > > First I would like to say Thanks for all the great information

on this

> site. I have learned so much and it has helped me through my medical

issues.

>

> > >

> > > I year ago I went in for a routine physical. I hadn't had one in

about 3

> years prior. During my physical my BP was 180/110. I have never had high

BP

> before and for all practical purposes very healthy. When my blood work

came

> back my K was 2.8. The following week my MD had me come in for another

Blood

> test to check my Aldosterone - it was 55. She recommended a CT and results

> show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put

on

> spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my

BP.

> My BP finally was under control around May 2010. By end of June - back up

> running 145/95. I went to a cardiologist and then an endo. My Endo did the

> 24 urine, blood test, and another CT. All test came back with perfect

> results and now I am being scheduled for AVS at Mayo Clinic in Rochester,

> MN.

> > >

> > > My question is can someone explain the test and what to expect?

> > >

> > > Thanks.

> > >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10

> 01:34:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3158 - Release Date: 09/25/10

01:34:00

[Guest guest]

Welcome to the world of PA. Keep us posted on your progress. We do not yet have a 's Story so when you get time this would be an good contribution to our files.CE Grim MDAt my very first lap I was on no meds. My Aldosterone was 55 my K was 2.8 and my renin was <.1. My endo is changing my meds. Spiro 50 and titrating me off the lisinopril. CT scan (I have had two) show mass of 19 mm on right adrenal gland. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PASent: Saturday, September 25, 2010 8:54 AMTo: hyperaldosteronism Subject: Re: AVS - What to Expect We need all test numbers and lab ranges to give you good information. What did the last CT show? Did Endo have you stop meds before doing tests? If so for how long? From what Dr grim posts many times many meds don't work with PA. I believe norvasc and lisinopril are in this group. 25 mg of spiro probably isn't enough to lower B/P.> > > > > > > > First I would like to say Thanks for all the great information on this site. I have learned so much and it has helped me through my medical issues. > > > > I year ago I went in for a routine physical. I hadn't had one in about 3 years prior. During my physical my BP was 180/110. I have never had high BP before and for all practical purposes very healthy. When my blood work came back my K was 2.8. The following week my MD had me come in for another Blood test to check my Aldosterone - it was 55. She recommended a CT and results show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put on spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my BP. My BP finally was under control around May 2010. By end of June - back up running 145/95. I went to a cardiologist and then an endo. My Endo did the 24 urine, blood test, and another CT. All test came back with perfect results and now I am being scheduled for AVS at Mayo Clinic in Rochester, MN. > > > > My question is can someone explain the test and what to expect? > > > > Thanks.> >>No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10 01:34:00

[Guest guest]

Most never are as Endos dont know about diet to treat HTN just DM ;-)Trust you have started doing this since joining us. Read our files on DASH success stories.I meant Lab sorry for the confusion. I never was told to change my diet. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Saturday, September 25, 2010 4:54 PMTo: hyperaldosteronism Subject: Re: Re: AVS - What to Expect By lap do you mean your first Laporoscopic surgery?Tiped sad Send form miiPhone ;-) May your pressure be low! CE Grim MDSpecializing in DifficultHypertension If K is 2.8 you must have problems related to low K. You did not list med to replace K. What did they say about cutting back on salt. > > > > > > > > > > > > First I would like to say Thanks for all the great information on this> site. I have learned so much and it has helped me through my medical issues.> > > > > > > I year ago I went in for a routine physical. I hadn't had one in about 3> years prior. During my physical my BP was 180/110. I have never had high BP> before and for all practical purposes very healthy. When my blood work came> back my K was 2.8. The following week my MD had me come in for another Blood> test to check my Aldosterone - it was 55. She recommended a CT and results> show a mass on my right adrenal glad. It measured 18mm x 10mm. I was put on> spiro 25, norvasc 10, lisinopril 40 over the next 4 months to control my BP.> My BP finally was under control around May 2010. By end of June - back up> running 145/95. I went to a cardiologist and then an endo. My Endo did the> 24 urine, blood test, and another CT. All test came back with perfect> results and now I am being scheduled for AVS at Mayo Clinic in Rochester,> MN. > > > > > > My question is can someone explain the test and what to expect? > > > > > > Thanks.> > >> >> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date: 09/25/10> 01:34:00>No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.856 / Virus Database: 271.1.1/3158 - Release Date: 09/25/10 01:34:00

[Guest guest]

No one does. But do you want to be 35 and have had surgery that does not cure and then be on mess for the rest of you life AVS is the best way to increase your probab of cure but no guarantee. Curious that you did not mention DASH as a part of med Rx. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I have the same question on meds v surgery. I don’t want to be

35 and on meds the rest of my life.

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On

Behalf Of hesterfenwick

Sent: Saturday, September 25, 2010 2:35 PM

To: hyperaldosteronism

Subject: Re: AVS - What to Expect

Hi,

I posted last week and I'm the stage before - the final lab tests still to be

done but mass (similar size to yours) on right adrenal gland, lowish potassium

etc.etc.

I wanted to know what are the pros and cons of surgery vs. long term meds and

nobody's really answered that on here yet. My perspective is why would you want

to stay on drugs long term when you could have what sounds like a relatively

simple operation and then, hopefully, be drug free for life? Anybody?

Once you've been through the AVS, I'd love to hear your experience too. I'm

still wondering whether I'm completely underestimating the surgery but it

sounds to me like the AVS is nearly as traumatic as the surgery to remove the

growth, so why not just get it taken out instead? How often do you lose the

complete adrenal gland rather than just having the tumour removed?

Hester

> > > > >

> > > > >

> > > > >

> > > > > First I would like to say Thanks for all the great

information on this

> > > site. I have learned so much and it has helped me through my

medical

> > issues.

> > >

> > > > >

> > > > > I year ago I went in for a routine physical. I hadn't

had one in about

> > 3

> > > years prior. During my physical my BP was 180/110. I have never

had high

> > BP

> > > before and for all practical purposes very healthy. When my

blood work

> > came

> > > back my K was 2.8. The following week my MD had me come in for

another

> > Blood

> > > test to check my Aldosterone - it was 55. She recommended a CT

and results

> > > show a mass on my right adrenal glad. It measured 18mm x 10mm. I

was put

> > on

> > > spiro 25, norvasc 10, lisinopril 40 over the next 4 months to

control my

> > BP.

> > > My BP finally was under control around May 2010. By end of June

- back up

> > > running 145/95. I went to a cardiologist and then an endo. My

Endo did the

> > > 24 urine, blood test, and another CT. All test came back with

perfect

> > > results and now I am being scheduled for AVS at Mayo Clinic in

Rochester,

> > > MN.

> > > > >

> > > > > My question is can someone explain the test and what

to expect?

> > > > >

> > > > > Thanks.

> > > > >

> > > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date:

09/25/10

> > > 01:34:00

> > >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 9.0.856 / Virus Database: 271.1.1/3157 - Release Date:

09/25/10

> > 01:34:00

> >

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3158 - Release Date: 09/25/10

01:34:00

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