Re: If you have limited income not much help for dx

[Guest guest]

And they have not read my article. Remind me if you have ever been tired on spiro. With an adrenal bump a low renin and not a very low aldo I would do a spiro trial unless you are doing well on what you are on. Don't recognize any of the folks you mentionsed. Is the chief listed as Hypertension Specialist at ASH?CE Grim MDOn Jul 17, 2010, at 11:21 AM, Francis Bill SUSPECTED PA wrote:If you have limited funds then you are limited as to health care choices. Due to what ever is wrong with me I am unable to be gainfully employed. Because I didn't have enough work credits in the ten years before my SX started I couldn't get SSA disability. Because I am a war time Vietnam Veteran I was able to get a pension from the VA. This is a very limited pension plan that is the limit income from all sources to a set amount. The current amount is $985 a month. Any income below this amount the VA will make up to = the $985. With this amount of income I could get Medicaid If I wanted to deplete my savings. Well I can have $1500 in the bank. I do own my home and the 1500 would not be enough to pay the taxes. So for now no Medicaid. Since I am a Veteran I use the VA for health care. This does limit my being able to try to find help other places. The VA I use is a teaching medical center. Part of the Dartmouth Medical school that is rated one of the best medical schools in the US. Almost all of the medical centers in NH and VT are tied to Dartmouth. The main Dartmouth medical center is not far from me. For most things they have some of the top Dr in the US. Since They are a non profit medical center they have to provide care to any one that can not pay. I did the paper work and was able to get free care there. Since I have done a lot of research on PA and a CT showed I had 2 cm tumor on left adrenal gland. The test the VA did was not done as what I was reading said it should be done. First the test was done two weeks after surgery. It was done while I was taking 25 MG Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium Chloride. This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0 ng/mL/hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/dL. Thinking this test wasn't done right I then went to the Dartmouth medical center hoping to be tested off the meds. I called an was told I would see a both A Tharsan Sivakumar Endocrinology Fellow a Dr H Turco Practice in Adrenal Disorders, Osteoporosis, Pituitary Disorders, Thyroid Aspiration, Thyroid Disorders, Transgender Hormonal Therapy.I was tested the same day as this visit on the same meds as before. with the the results RENIN ACTIVITY .8 no range given and ALDOSTERONE-MAYO 5.5 range <=21. I then learned about the the Am Soc of HTN site I found this Dr listed at Dartmouth D. Remillard Section Chief, Nephrology & Hypertension. Called and was told I would see Dr YASHASWINI RANGAN Fellow Nephrology & Hypertension and Dr D. Remillard. I did see Dr RANGAN however I didn't see Dr Remillard. Instead I saw A Dr M. Kaneko. Was told they would not retest me as there was nothing wrong with the way the test was done the first time.What this tells me is Dartmouth is teaching Dr how not to do the test for PA.

[Guest guest]

Dr Oz does many much rarer diseases. Wish he would read my article.CE Grim MDFrancisBill,I was reading your email and wanted to tell you I am sorry you have to deal with such dismissive doctoring. I've been there, believe me. After I read the part about you going to the Dartmouth Medical Center, I remembered something I read from thier web-site when I first got Conn's. I've listed the link below so people can see what an incomplete description of Conn's looks like. http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402When I saw Dartmouth/Hitchcocks Medical Center's description of the symptoms of Conn's, I knew something was wrong. Here's their direct quote:What are the signs of Conn's disease?High blood pressure (hypertension) is often the only symptom of Conn's disease. In some cases, the condition can lower the level of the mineral potassium in a patient's blood. This can lead to muscle weakness, headaches, and the passing of large amounts of urine. Truly this is wrong. While they added the other conditions at the end, at the time I read this I was doubled over in kidney pain, had horrible brain-fog, and migraines. It would have helped knowing these symptoms I was experiencing were legitimate and a result of the adrenal adenoma. I had to learn this by perusing through miles of other sites, then by luck I discovered the NORD and Yahoo group. And for the record, Conn's is a disorder marked by lowered potassium to due an over-production of potassium. DHMC...unbelievable how incomplete their research is on this subject. My point for writing you this--- I agree with everything you are saying, in particular your last sentence. What this disease needs is for the A.M.A. and American Society of Endo's to reinforce the symptom guidelines and to test for it if you are diagnosed with hypertension without reason. A CBC is supposed to be ordered when this happens and if potassium levels are low-Conn's SHOULD BE suspected. As we all know, this is not happening. So I wrote Dr. OZ about this because I am so frustrated and saddened to see people in this site suffering from delayed diagnosis and a general lack of expertise by their endocrinologists. I don't know what will happen, but it sure felt good to put in in writing with the intention to help others become aware of this debilitating disease.Wish you well....Flower Spy

[Guest guest]

Wish he would read my letter, too.-- Carole Aine Langrall " A Garden of Earthly Delights " www.agardenofearthlydelights.net

http://neglectedbeauty.blogspot.com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.”  ~Lady Bird

[Guest guest]

No never tried spiro. Yes the chief is listed on ASH. I am not doing well on

meds I am on.

Reason why I think I have PA. BP readings that have been as high 199/100 K drop

from 4.3 to 3.2 after being started 25 MG of HYDROCHLOROTHIAZIDE fulid retention

Dizziness Fatigue Tachycardia shortness of breath brain fog 2 cm tumor on left

adrenal gland

>

> > If you have limited funds then you are limited as to health care

> > choices. Due to what ever is wrong with me I am unable to be

> > gainfully employed. Because I didn't have enough work credits in the

> > ten years before my SX started I couldn't get SSA disability.

> >

> > Because I am a war time Vietnam Veteran I was able to get a pension

> > from the VA. This is a very limited pension plan that is the limit

> > income from all sources to a set amount. The current amount is $985

> > a month. Any income below this amount the VA will make up to = the

> > $985.

> >

> > With this amount of income I could get Medicaid If I wanted to

> > deplete my savings. Well I can have $1500 in the bank. I do own my

> > home and the 1500 would not be enough to pay the taxes. So for now

> > no Medicaid.

> >

> > Since I am a Veteran I use the VA for health care. This does limit

> > my being able to try to find help other places.

> >

> > The VA I use is a teaching medical center. Part of the Dartmouth

> > Medical school that is rated one of the best medical schools in the

> > US. Almost all of the medical centers in NH and VT are tied to

> > Dartmouth.

> >

> > The main Dartmouth medical center is not far from me. For most

> > things they have some of the top Dr in the US.

> >

> > Since They are a non profit medical center they have to provide care

> > to any one that can not pay. I did the paper work and was able to

> > get free care there.

> >

> > Since I have done a lot of research on PA and a CT showed I had 2 cm

> > tumor on left adrenal gland. The test the VA did was not done as

> > what I was reading said it should be done. First the test was done

> > two weeks after surgery. It was done while I was taking 25 MG

> > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium Chloride.

> >

> > This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0 ng/mL/

> > hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/dL.

> >

> > Thinking this test wasn't done right I then went to the Dartmouth

> > medical center hoping to be tested off the meds. I called an was

> > told I would see a both A Tharsan Sivakumar Endocrinology Fellow a

> > Dr H Turco Practice in Adrenal Disorders, Osteoporosis,

> > Pituitary Disorders, Thyroid Aspiration, Thyroid Disorders,

> > Transgender Hormonal Therapy.

> >

> > I was tested the same day as this visit on the same meds as before.

> > with the the results RENIN ACTIVITY .8 no range given and

> > ALDOSTERONE-MAYO 5.5 range <=21.

> >

> > I then learned about the the Am Soc of HTN site I found this Dr

> > listed at Dartmouth D. Remillard Section Chief, Nephrology &

> > Hypertension. Called and was told I would see Dr YASHASWINI RANGAN

> > Fellow Nephrology & Hypertension and Dr D. Remillard.

> >

> > I did see Dr RANGAN however I didn't see Dr Remillard. Instead I saw

> > A Dr M. Kaneko. Was told they would not retest me as there

> > was nothing wrong with the way the test was done the first time.

> >

> > What this tells me is Dartmouth is teaching Dr how not to do the

> > test for PA.

> >

> >

> >

>

[Guest guest]

This information on Conn's is the standard that you see on many sites.

>

> > FrancisBill,

> >

> > I was reading your email and wanted to tell you I am sorry you have

> > to deal with such dismissive doctoring. I've been there, believe me.

> > After I read the part about you going to the Dartmouth Medical

> > Center, I remembered something I read from thier web-site when I

> > first got Conn's. I've listed the link below so people can see what

> > an incomplete description of Conn's looks like.

> >

> >

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

> >

> > When I saw Dartmouth/Hitchcocks Medical Center's description of the

> > symptoms of Conn's, I knew something was wrong. Here's their direct

> > quote:

> >

> > What are the signs of Conn's disease?

> >

> > High blood pressure (hypertension) is often the only symptom of

> > Conn's disease. In some cases, the condition can lower the level of

> > the mineral potassium in a patient's blood. This can lead to muscle

> > weakness, headaches, and the passing of large amounts of urine.

> >

> > Truly this is wrong. While they added the other conditions at the

> > end, at the time I read this I was doubled over in kidney pain, had

> > horrible brain-fog, and migraines. It would have helped knowing

> > these symptoms I was experiencing were legitimate and a result of

> > the adrenal adenoma. I had to learn this by perusing through miles

> > of other sites, then by luck I discovered the NORD and Yahoo group.

> > And for the record, Conn's is a disorder marked by lowered potassium

> > to due an over-production of potassium. DHMC...unbelievable how

> > incomplete their research is on this subject.

> >

> > My point for writing you this--- I agree with everything you are

> > saying, in particular your last sentence. What this disease needs is

> > for the A.M.A. and American Society of Endo's to reinforce the

> > symptom guidelines and to test for it if you are diagnosed with

> > hypertension without reason. A CBC is supposed to be ordered when

> > this happens and if potassium levels are low-Conn's SHOULD BE

> > suspected. As we all know, this is not happening. So I wrote Dr. OZ

> > about this because I am so frustrated and saddened to see people in

> > this site suffering from delayed diagnosis and a general lack of

> > expertise by their endocrinologists. I don't know what will happen,

> > but it sure felt good to put in in writing with the intention to

> > help others become aware of this debilitating disease.

> >

> > Wish you well....Flower Spy

> >

> >

> >

> >

>

[Guest guest]

It is now belived that between 10% and 15% of us that have hypertension also

have PA. It would be intresting to if all Dr that treat hypertension also treat

10% to 15% for PA.

>

> FrancisBill,

>

> I was reading your email and wanted to tell you I am sorry you have to deal

> with such dismissive doctoring. I've been there, believe me. After I read

> the part about you going to the Dartmouth Medical Center, I remembered

> something I read from thier web-site when I first got Conn's. I've listed

> the link below so people can see what an* incomplete *description of Conn's

> looks like.

>

>

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

>

> When I saw Dartmouth/Hitchcocks Medical Center's description of the symptoms

> of Conn's, I knew something was wrong. Here's their direct quote:

>

> *What are the signs of Conn's disease?*

>

> *High blood pressure (hypertension) is often the only symptom of Conn's

> disease. In some cases, the condition can lower the level of the mineral

> potassium in a patient's blood. This can lead to muscle weakness, headaches,

> and the passing of large amounts of urine.

> *

>

> Truly this is wrong. While they added the other conditions at the end, at

> the time I read this I was doubled over in kidney pain, had horrible

> brain-fog, and migraines. It would have helped knowing these symptoms I was

> experiencing were legitimate and a result of the adrenal adenoma. I had to

> learn this by perusing through miles of other sites, then by luck I

> discovered the NORD and Yahoo group. And for the record, Conn's is a

> disorder marked by lowered potassium to due an over-production of potassium.

> DHMC...unbelievable how incomplete their research is on this subject.

>

> My point for writing you this--- I agree with everything you are saying, in

> particular your last sentence. What this disease needs is for the A.M.A. and

> American Society of Endo's to reinforce the symptom guidelines and to test

> for it if you are diagnosed with hypertension without reason. A CBC is

> supposed to be ordered when this happens and if potassium levels are

> low-Conn's SHOULD BE suspected. As we all know, this is not happening. So I

> wrote Dr. OZ about this because I am so frustrated and saddened to see

> people in this site suffering from delayed diagnosis and a general lack of

> expertise by their endocrinologists. I don't know what will happen, but it

> sure felt good to put in in writing with the intention to help others become

> aware of this debilitating disease.

>

> Wish you well....Flower Spy

>

[Guest guest]

Maybe that should be undiagnosed Conn's.

> > >

> > > > FrancisBill,

> > > >

> > > > I was reading your email and wanted to tell you I am sorry you have

> > > > to deal with such dismissive doctoring. I've been there, believe me.

> > > > After I read the part about you going to the Dartmouth Medical

> > > > Center, I remembered something I read from thier web-site when I

> > > > first got Conn's. I've listed the link below so people can see what

> > > > an incomplete description of Conn's looks like.

> > > >

> > > >

> >

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

> > > >

> > > > When I saw Dartmouth/Hitchcocks Medical Center's description of the

> > > > symptoms of Conn's, I knew something was wrong. Here's their direct

> > > > quote:

> > > >

> > > > What are the signs of Conn's disease?

> > > >

> > > > High blood pressure (hypertension) is often the only symptom of

> > > > Conn's disease. In some cases, the condition can lower the level of

> > > > the mineral potassium in a patient's blood. This can lead to muscle

> > > > weakness, headaches, and the passing of large amounts of urine.

> > > >

> > > > Truly this is wrong. While they added the other conditions at the

> > > > end, at the time I read this I was doubled over in kidney pain, had

> > > > horrible brain-fog, and migraines. It would have helped knowing

> > > > these symptoms I was experiencing were legitimate and a result of

> > > > the adrenal adenoma. I had to learn this by perusing through miles

> > > > of other sites, then by luck I discovered the NORD and Yahoo group.

> > > > And for the record, Conn's is a disorder marked by lowered potassium

> > > > to due an over-production of potassium. DHMC...unbelievable how

> > > > incomplete their research is on this subject.

> > > >

> > > > My point for writing you this--- I agree with everything you are

> > > > saying, in particular your last sentence. What this disease needs is

> > > > for the A.M.A. and American Society of Endo's to reinforce the

> > > > symptom guidelines and to test for it if you are diagnosed with

> > > > hypertension without reason. A CBC is supposed to be ordered when

> > > > this happens and if potassium levels are low-Conn's SHOULD BE

> > > > suspected. As we all know, this is not happening. So I wrote Dr. OZ

> > > > about this because I am so frustrated and saddened to see people in

> > > > this site suffering from delayed diagnosis and a general lack of

> > > > expertise by their endocrinologists. I don't know what will happen,

> > > > but it sure felt good to put in in writing with the intention to

> > > > help others become aware of this debilitating disease.

> > > >

> > > > Wish you well....Flower Spy

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

> Carole Aine Langrall

> " A Garden of Earthly Delights "

>

> www.agardenofearthlydelights.net

> http://neglectedbeauty.blogspot.com/

>

> " My heart found its home long ago in the beauty, mystery, order and disorder

> of the flowering earth. " ~Lady Bird

>

[Guest guest]

Yes we have you as the expert Dr and we have the real experts that have PA.

> > >

> > > > FrancisBill,

> > > >

> > > > I was reading your email and wanted to tell you I am sorry you

> > have

> > > > to deal with such dismissive doctoring. I've been there, believe

> > me.

> > > > After I read the part about you going to the Dartmouth Medical

> > > > Center, I remembered something I read from thier web-site when I

> > > > first got Conn's. I've listed the link below so people can see

> > what

> > > > an incomplete description of Conn's looks like.

> > > >

> > > >

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

> > > >

> > > > When I saw Dartmouth/Hitchcocks Medical Center's description of

> > the

> > > > symptoms of Conn's, I knew something was wrong. Here's their

> > direct

> > > > quote:

> > > >

> > > > What are the signs of Conn's disease?

> > > >

> > > > High blood pressure (hypertension) is often the only symptom of

> > > > Conn's disease. In some cases, the condition can lower the level

> > of

> > > > the mineral potassium in a patient's blood. This can lead to

> > muscle

> > > > weakness, headaches, and the passing of large amounts of urine.

> > > >

> > > > Truly this is wrong. While they added the other conditions at the

> > > > end, at the time I read this I was doubled over in kidney pain,

> > had

> > > > horrible brain-fog, and migraines. It would have helped knowing

> > > > these symptoms I was experiencing were legitimate and a result of

> > > > the adrenal adenoma. I had to learn this by perusing through miles

> > > > of other sites, then by luck I discovered the NORD and Yahoo

> > group.

> > > > And for the record, Conn's is a disorder marked by lowered

> > potassium

> > > > to due an over-production of potassium. DHMC...unbelievable how

> > > > incomplete their research is on this subject.

> > > >

> > > > My point for writing you this--- I agree with everything you are

> > > > saying, in particular your last sentence. What this disease

> > needs is

> > > > for the A.M.A. and American Society of Endo's to reinforce the

> > > > symptom guidelines and to test for it if you are diagnosed with

> > > > hypertension without reason. A CBC is supposed to be ordered when

> > > > this happens and if potassium levels are low-Conn's SHOULD BE

> > > > suspected. As we all know, this is not happening. So I wrote Dr.

> > OZ

> > > > about this because I am so frustrated and saddened to see people

> > in

> > > > this site suffering from delayed diagnosis and a general lack of

> > > > expertise by their endocrinologists. I don't know what will

> > happen,

> > > > but it sure felt good to put in in writing with the intention to

> > > > help others become aware of this debilitating disease.

> > > >

> > > > Wish you well....Flower Spy

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

> > disorder of the flowering earth. " ~Lady Bird

> >

> >

>

[Guest guest]

Did you have brain fog all the time?

>

> FrancisBill,

>

> I was reading your email and wanted to tell you I am sorry you have to deal

> with such dismissive doctoring. I've been there, believe me. After I read

> the part about you going to the Dartmouth Medical Center, I remembered

> something I read from thier web-site when I first got Conn's. I've listed

> the link below so people can see what an* incomplete *description of Conn's

> looks like.

>

>

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

>

> When I saw Dartmouth/Hitchcocks Medical Center's description of the symptoms

> of Conn's, I knew something was wrong. Here's their direct quote:

>

> *What are the signs of Conn's disease?*

>

> *High blood pressure (hypertension) is often the only symptom of Conn's

> disease. In some cases, the condition can lower the level of the mineral

> potassium in a patient's blood. This can lead to muscle weakness, headaches,

> and the passing of large amounts of urine.

> *

>

> Truly this is wrong. While they added the other conditions at the end, at

> the time I read this I was doubled over in kidney pain, had horrible

> brain-fog, and migraines. It would have helped knowing these symptoms I was

> experiencing were legitimate and a result of the adrenal adenoma. I had to

> learn this by perusing through miles of other sites, then by luck I

> discovered the NORD and Yahoo group. And for the record, Conn's is a

> disorder marked by lowered potassium to due an over-production of potassium.

> DHMC...unbelievable how incomplete their research is on this subject.

>

> My point for writing you this--- I agree with everything you are saying, in

> particular your last sentence. What this disease needs is for the A.M.A. and

> American Society of Endo's to reinforce the symptom guidelines and to test

> for it if you are diagnosed with hypertension without reason. A CBC is

> supposed to be ordered when this happens and if potassium levels are

> low-Conn's SHOULD BE suspected. As we all know, this is not happening. So I

> wrote Dr. OZ about this because I am so frustrated and saddened to see

> people in this site suffering from delayed diagnosis and a general lack of

> expertise by their endocrinologists. I don't know what will happen, but it

> sure felt good to put in in writing with the intention to help others become

> aware of this debilitating disease.

>

> Wish you well....Flower Spy

>

[Guest guest]

I had brain fog literally till the day after my surgery. It was the first thing I noticed that was gone. A gift from the gods it was...-- Carole Aine Langrall " A Garden of Earthly Delights "

www.agardenofearthlydelights.nethttp://neglectedbeauty.blogspot.com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.”  ~Lady Bird

[Guest guest]

Not many in group have full time brain fog many have it sometimes. I do have it

all the time. Have been asked to describe it. Something I really can't can't put

in words to make other understand. Of course it has nothing to do with Conn's.

>

> I had brain fog literally till the day after my surgery. It was the first

> thing I noticed that was gone. A gift from the gods it was...

>

> --

> Carole Aine Langrall

> " A Garden of Earthly Delights "

>

> www.agardenofearthlydelights.net

> http://neglectedbeauty.blogspot.com/

>

> " My heart found its home long ago in the beauty, mystery, order and disorder

> of the flowering earth. " ~Lady Bird

>

[Guest guest]

There are not many Dr that think side effects listed for meds are a problem.

>

> > I had brain fog literally till the day after my surgery. It was the

> > first thing I noticed that was gone. A gift from the gods it was...

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

> > disorder of the flowering earth. " ~Lady Bird

> >

> >

>

[Guest guest]

The one that was working on the data base seems to have had problems with AVS

that was done. This AVS was done before other test to show if she even had

conn's.

> >>> >

> >>> > FrancisBill,

> >>> >

> >>> > I was reading your email and wanted to tell you I am sorry you have to

> >>> deal

> >>> > with such dismissive doctoring. I've been there, believe me. After I

> >>> read

> >>> > the part about you going to the Dartmouth Medical Center, I remembered

> >>> > something I read from thier web-site when I first got Conn's. I've

> >>> listed

> >>> > the link below so people can see what an* incomplete *description of

> >>> Conn's

> >>> > looks like.

> >>> >

> >>> >

> >>>

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

> >>> >

> >>> > When I saw Dartmouth/Hitchcocks Medical Center's description of the

> >>> symptoms

> >>> > of Conn's, I knew something was wrong. Here's their direct quote:

> >>> >

> >>> > *What are the signs of Conn's disease?*

> >>> >

> >>> > *High blood pressure (hypertension) is often the only symptom of Conn's

> >>> > disease. In some cases, the condition can lower the level of the

> >>> mineral

> >>> > potassium in a patient's blood. This can lead to muscle weakness,

> >>> headaches,

> >>> > and the passing of large amounts of urine.

> >>> > *

> >>> >

> >>> > Truly this is wrong. While they added the other conditions at the end,

> >>> at

> >>> > the time I read this I was doubled over in kidney pain, had horrible

> >>> > brain-fog, and migraines. It would have helped knowing these symptoms I

> >>> was

> >>> > experiencing were legitimate and a result of the adrenal adenoma. I had

> >>> to

> >>> > learn this by perusing through miles of other sites, then by luck I

> >>> > discovered the NORD and Yahoo group. And for the record, Conn's is a

> >>> > disorder marked by lowered potassium to due an over-production of

> >>> potassium.

> >>> > DHMC...unbelievable how incomplete their research is on this subject.

> >>> >

> >>> > My point for writing you this--- I agree with everything you are

> >>> saying, in

> >>> > particular your last sentence. What this disease needs is for the

> >>> A.M.A. and

> >>> > American Society of Endo's to reinforce the symptom guidelines and to

> >>> test

> >>> > for it if you are diagnosed with hypertension without reason. A CBC is

> >>> > supposed to be ordered when this happens and if potassium levels are

> >>> > low-Conn's SHOULD BE suspected. As we all know, this is not happening.

> >>> So I

> >>> > wrote Dr. OZ about this because I am so frustrated and saddened to see

> >>> > people in this site suffering from delayed diagnosis and a general lack

> >>> of

> >>> > expertise by their endocrinologists. I don't know what will happen, but

> >>> it

> >>> > sure felt good to put in in writing with the intention to help others

> >>> become

> >>> > aware of this debilitating disease.

> >>> >

> >>> > Wish you well....Flower Spy

> >>> >

> >>>

> >>>

> >>

> >>

> >> --

> >>

> >> Carole Aine Langrall

> >> " A Garden of Earthly Delights "

> >>

> >> www.agardenofearthlydelights.net

> >> http://neglectedbeauty.blogspot.com/

> >>

> >> " My heart found its home long ago in the beauty, mystery, order and

> >> disorder of the flowering earth. " ~Lady Bird

> >>

> >>

> >>

> >

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

> > disorder of the flowering earth. " ~Lady Bird

> >

> >

> >

> >

>

>

>

> --

> Carole Aine Langrall

> " A Garden of Earthly Delights "

>

> www.agardenofearthlydelights.net

> http://neglectedbeauty.blogspot.com/

>

> " My heart found its home long ago in the beauty, mystery, order and disorder

> of the flowering earth. " ~Lady Bird

>

[Guest guest]

I did writh something on group about brain fog. Maybe it is only my Dr I can't

make understand. He is the one that told me it has nothing to do with conn's.

> > >

> > > I had brain fog literally till the day after my surgery. It was

> > the first

> > > thing I noticed that was gone. A gift from the gods it was...

> > >

> > > --

> > > Carole Aine Langrall

> > > " A Garden of Earthly Delights "

> > >

> > > www.agardenofearthlydelights.net

> > > http://neglectedbeauty.blogspot.com/

> > >

> > > " My heart found its home long ago in the beauty, mystery, order

> > and disorder

> > > of the flowering earth. " ~Lady Bird

> > >

> >

> >

> >

>

[Guest guest]

My Dr seems to think his way is the only way. He fells even if I have PA he is

treating me as he feel is the right treatment any way.

> > >

> > > > If you have limited funds then you are limited as to health care

> > > > choices. Due to what ever is wrong with me I am unable to be

> > > > gainfully employed. Because I didn't have enough work credits in

> > the

> > > > ten years before my SX started I couldn't get SSA disability.

> > > >

> > > > Because I am a war time Vietnam Veteran I was able to get a

> > pension

> > > > from the VA. This is a very limited pension plan that is the limit

> > > > income from all sources to a set amount. The current amount is

> > $985

> > > > a month. Any income below this amount the VA will make up to = the

> > > > $985.

> > > >

> > > > With this amount of income I could get Medicaid If I wanted to

> > > > deplete my savings. Well I can have $1500 in the bank. I do own my

> > > > home and the 1500 would not be enough to pay the taxes. So for now

> > > > no Medicaid.

> > > >

> > > > Since I am a Veteran I use the VA for health care. This does limit

> > > > my being able to try to find help other places.

> > > >

> > > > The VA I use is a teaching medical center. Part of the Dartmouth

> > > > Medical school that is rated one of the best medical schools in

> > the

> > > > US. Almost all of the medical centers in NH and VT are tied to

> > > > Dartmouth.

> > > >

> > > > The main Dartmouth medical center is not far from me. For most

> > > > things they have some of the top Dr in the US.

> > > >

> > > > Since They are a non profit medical center they have to provide

> > care

> > > > to any one that can not pay. I did the paper work and was able to

> > > > get free care there.

> > > >

> > > > Since I have done a lot of research on PA and a CT showed I had

> > 2 cm

> > > > tumor on left adrenal gland. The test the VA did was not done as

> > > > what I was reading said it should be done. First the test was done

> > > > two weeks after surgery. It was done while I was taking 25 MG

> > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium

> > Chloride.

> > > >

> > > > This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0 ng/

> > mL/

> > > > hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/dL.

> > > >

> > > > Thinking this test wasn't done right I then went to the Dartmouth

> > > > medical center hoping to be tested off the meds. I called an was

> > > > told I would see a both A Tharsan Sivakumar Endocrinology Fellow a

> > > > Dr H Turco Practice in Adrenal Disorders, Osteoporosis,

> > > > Pituitary Disorders, Thyroid Aspiration, Thyroid Disorders,

> > > > Transgender Hormonal Therapy.

> > > >

> > > > I was tested the same day as this visit on the same meds as

> > before.

> > > > with the the results RENIN ACTIVITY .8 no range given and

> > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > >

> > > > I then learned about the the Am Soc of HTN site I found this Dr

> > > > listed at Dartmouth D. Remillard Section Chief, Nephrology &

> > > > Hypertension. Called and was told I would see Dr YASHASWINI RANGAN

> > > > Fellow Nephrology & Hypertension and Dr D. Remillard.

> > > >

> > > > I did see Dr RANGAN however I didn't see Dr Remillard. Instead I

> > saw

> > > > A Dr M. Kaneko. Was told they would not retest me as there

> > > > was nothing wrong with the way the test was done the first time.

> > > >

> > > > What this tells me is Dartmouth is teaching Dr how not to do the

> > > > test for PA.

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

I am on my 3rd PCP at the VA Have been to Ed and urgent care for Sx many times

Have been to there so called Endocrinologist. I have a lot of history withn no

answers.

My nephew is now working there. Am learning a few things about some of the

problems at this VA. At this point they are 1,000,000 over budget and cutting

back on help.

> > > > >

> > > > > > If you have limited funds then you are limited as to health

> > care

> > > > > > choices. Due to what ever is wrong with me I am unable to be

> > > > > > gainfully employed. Because I didn't have enough work

> > credits in

> > > > the

> > > > > > ten years before my SX started I couldn't get SSA disability.

> > > > > >

> > > > > > Because I am a war time Vietnam Veteran I was able to get a

> > > > pension

> > > > > > from the VA. This is a very limited pension plan that is the

> > limit

> > > > > > income from all sources to a set amount. The current amount is

> > > > $985

> > > > > > a month. Any income below this amount the VA will make up to

> > = the

> > > > > > $985.

> > > > > >

> > > > > > With this amount of income I could get Medicaid If I wanted to

> > > > > > deplete my savings. Well I can have $1500 in the bank. I do

> > own my

> > > > > > home and the 1500 would not be enough to pay the taxes. So

> > for now

> > > > > > no Medicaid.

> > > > > >

> > > > > > Since I am a Veteran I use the VA for health care. This does

> > limit

> > > > > > my being able to try to find help other places.

> > > > > >

> > > > > > The VA I use is a teaching medical center. Part of the

> > Dartmouth

> > > > > > Medical school that is rated one of the best medical schools

> > in

> > > > the

> > > > > > US. Almost all of the medical centers in NH and VT are tied to

> > > > > > Dartmouth.

> > > > > >

> > > > > > The main Dartmouth medical center is not far from me. For most

> > > > > > things they have some of the top Dr in the US.

> > > > > >

> > > > > > Since They are a non profit medical center they have to

> > provide

> > > > care

> > > > > > to any one that can not pay. I did the paper work and was

> > able to

> > > > > > get free care there.

> > > > > >

> > > > > > Since I have done a lot of research on PA and a CT showed I

> > had

> > > > 2 cm

> > > > > > tumor on left adrenal gland. The test the VA did was not

> > done as

> > > > > > what I was reading said it should be done. First the test

> > was done

> > > > > > two weeks after surgery. It was done while I was taking 25 MG

> > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium

> > > > Chloride.

> > > > > >

> > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0

> > ng/

> > > > mL/

> > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/dL.

> > > > > >

> > > > > > Thinking this test wasn't done right I then went to the

> > Dartmouth

> > > > > > medical center hoping to be tested off the meds. I called an

> > was

> > > > > > told I would see a both A Tharsan Sivakumar Endocrinology

> > Fellow a

> > > > > > Dr H Turco Practice in Adrenal Disorders, Osteoporosis,

> > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid Disorders,

> > > > > > Transgender Hormonal Therapy.

> > > > > >

> > > > > > I was tested the same day as this visit on the same meds as

> > > > before.

> > > > > > with the the results RENIN ACTIVITY .8 no range given and

> > > > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > >

> > > > > > I then learned about the the Am Soc of HTN site I found this

> > Dr

> > > > > > listed at Dartmouth D. Remillard Section Chief,

> > Nephrology &

> > > > > > Hypertension. Called and was told I would see Dr YASHASWINI

> > RANGAN

> > > > > > Fellow Nephrology & Hypertension and Dr D. Remillard.

> > > > > >

> > > > > > I did see Dr RANGAN however I didn't see Dr Remillard.

> > Instead I

> > > > saw

> > > > > > A Dr M. Kaneko. Was told they would not retest me as

> > there

> > > > > > was nothing wrong with the way the test was done the first

> > time.

> > > > > >

> > > > > > What this tells me is Dartmouth is teaching Dr how not to do

> > the

> > > > > > test for PA.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Here is what I wrote on brain fog Kind of like not getting enough sleep. Felling

changes from almost being

> dizzy to just being spacey like things are in a fog or haze. If you are

> walking sometime can think yor might not make it to where your are going.

> hitting the wrong key on the key board many times. loseing train of thought

> when working on something. Having to stop what your doing because your head

> tell you it has had enough.

> >> >

> >> > I had brain fog literally till the day after my surgery. It was

> >> the first

> >> > thing I noticed that was gone. A gift from the gods it was...

> >> >

> >> > --

> >> > Carole Aine Langrall

> >> > " A Garden of Earthly Delights "

> >> >

> >> > www.agardenofearthlydelights.net

> >> > http://neglectedbeauty.blogspot.com/

> >> >

> >> > " My heart found its home long ago in the beauty, mystery, order

> >> and disorder

> >> > of the flowering earth. " ~Lady Bird

> >> >

> >>

> >>

> >

> >

> >

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

> > disorder of the flowering earth. " ~Lady Bird

> >

> >

>

[Guest guest]

Information on VA Chief of Staff

Dr. Parrino holds a B.S. from Carroll (1967), MD from town (1971),

MBA from University of St. , MN (2003), and an honorary MA from Brown

University (1992). He completed his medicine internship and residency at Boston

City Hospital on the V & VI Medical Service (1971-1973), and Medicine Chief

Residency and Infectious Diseases Fellowship at University Hospital, Boston

(1973-1976). For the past six years Dr. Parrino has served as the Chief of Staff

at West Palm Beach VA Medical Center. Prior to that, he was Chief Medical

Officer for the VA New England Health Care System from 1996-1999. He was also

the Assistant & then Acting Chief of Staff at the Providence VA Medical Center

from 1991-1996. Dr. Parrino developed a nationally-recognized primary care

program, and earned the rank of Professor of Medicine at Brown University. He

received the Student Citation for teaching excellence in 1996, & gave the

invited faculty commencement address in 1997. Dr. Parrino is a Fellow of the

American College of Physicians and the American College of Physician Executives,

and is a member of the Infectious Diseases Society of America. He has served on

a number of national VA councils and committees, and was recently invited to

serve on the Board of Directors of the Palm Beach County Medical Society. He has

senior academic appointments at the University of Miami, University of Florida,

and Nova Southeastern College of Osteopathic Medicine.

> > > > >

> > > > > > If you have limited funds then you are limited as to health

> > care

> > > > > > choices. Due to what ever is wrong with me I am unable to be

> > > > > > gainfully employed. Because I didn't have enough work

> > credits in

> > > > the

> > > > > > ten years before my SX started I couldn't get SSA disability.

> > > > > >

> > > > > > Because I am a war time Vietnam Veteran I was able to get a

> > > > pension

> > > > > > from the VA. This is a very limited pension plan that is the

> > limit

> > > > > > income from all sources to a set amount. The current amount is

> > > > $985

> > > > > > a month. Any income below this amount the VA will make up to

> > = the

> > > > > > $985.

> > > > > >

> > > > > > With this amount of income I could get Medicaid If I wanted to

> > > > > > deplete my savings. Well I can have $1500 in the bank. I do

> > own my

> > > > > > home and the 1500 would not be enough to pay the taxes. So

> > for now

> > > > > > no Medicaid.

> > > > > >

> > > > > > Since I am a Veteran I use the VA for health care. This does

> > limit

> > > > > > my being able to try to find help other places.

> > > > > >

> > > > > > The VA I use is a teaching medical center. Part of the

> > Dartmouth

> > > > > > Medical school that is rated one of the best medical schools

> > in

> > > > the

> > > > > > US. Almost all of the medical centers in NH and VT are tied to

> > > > > > Dartmouth.

> > > > > >

> > > > > > The main Dartmouth medical center is not far from me. For most

> > > > > > things they have some of the top Dr in the US.

> > > > > >

> > > > > > Since They are a non profit medical center they have to

> > provide

> > > > care

> > > > > > to any one that can not pay. I did the paper work and was

> > able to

> > > > > > get free care there.

> > > > > >

> > > > > > Since I have done a lot of research on PA and a CT showed I

> > had

> > > > 2 cm

> > > > > > tumor on left adrenal gland. The test the VA did was not

> > done as

> > > > > > what I was reading said it should be done. First the test

> > was done

> > > > > > two weeks after surgery. It was done while I was taking 25 MG

> > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium

> > > > Chloride.

> > > > > >

> > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0

> > ng/

> > > > mL/

> > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/dL.

> > > > > >

> > > > > > Thinking this test wasn't done right I then went to the

> > Dartmouth

> > > > > > medical center hoping to be tested off the meds. I called an

> > was

> > > > > > told I would see a both A Tharsan Sivakumar Endocrinology

> > Fellow a

> > > > > > Dr H Turco Practice in Adrenal Disorders, Osteoporosis,

> > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid Disorders,

> > > > > > Transgender Hormonal Therapy.

> > > > > >

> > > > > > I was tested the same day as this visit on the same meds as

> > > > before.

> > > > > > with the the results RENIN ACTIVITY .8 no range given and

> > > > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > >

> > > > > > I then learned about the the Am Soc of HTN site I found this

> > Dr

> > > > > > listed at Dartmouth D. Remillard Section Chief,

> > Nephrology &

> > > > > > Hypertension. Called and was told I would see Dr YASHASWINI

> > RANGAN

> > > > > > Fellow Nephrology & Hypertension and Dr D. Remillard.

> > > > > >

> > > > > > I did see Dr RANGAN however I didn't see Dr Remillard.

> > Instead I

> > > > saw

> > > > > > A Dr M. Kaneko. Was told they would not retest me as

> > there

> > > > > > was nothing wrong with the way the test was done the first

> > time.

> > > > > >

> > > > > > What this tells me is Dartmouth is teaching Dr how not to do

> > the

> > > > > > test for PA.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

I belive Dr Grim knows what it is. I think He is just trying to find a way to

define it. Those of us that have it know what it is but have a hard time putting

it into words. It is like describe the color red.

> >> >

> >> > I had brain fog literally till the day after my surgery. It was the

> >> first

> >> > thing I noticed that was gone. A gift from the gods it was...

> >> >

> >> > --

> >> > Carole Aine Langrall

> >> > " A Garden of Earthly Delights "

> >> >

> >> > www.agardenofearthlydelights.net

> >> > http://neglectedbeauty.blogspot.com/

> >> >

> >> > " My heart found its home long ago in the beauty, mystery, order and

> >> disorder

> >> > of the flowering earth. " ~Lady Bird

> >> >

> >>

> >>

> >>

> >

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

> > disorder of the flowering earth. " ~Lady Bird

> >

> >

> >

> >

>

>

>

> --

> Carole Aine Langrall

> " A Garden of Earthly Delights "

>

> www.agardenofearthlydelights.net

> http://neglectedbeauty.blogspot.com/

>

> " My heart found its home long ago in the beauty, mystery, order and disorder

> of the flowering earth. " ~Lady Bird

>

[Guest guest]

To be sure you didn't have Conn's you would have to be tested for PRA ratio.

> >

> > I had brain fog literally till the day after my surgery. It was the first

> > thing I noticed that was gone. A gift from the gods it was...

> > 

> > -- 

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthl ydelights. net

> > http://neglectedbea uty.blogspot. com/

> > 

> > " My heart found its home long ago in the beauty, mystery, order and disorder

> > of the flowering earth. " ~Lady Bird

> >

>

>

>

>

>

>

>

> -- 

> Carole Aine Langrall

> " A Garden of Earthly Delights "

>

> www.agardenofearthl ydelights. net

> http://neglectedbea uty.blogspot. com/

>

> “My heart found its home long ago in the beauty, mystery, order and disorder

of the flowering earth.â€Â  ~Lady Bird

>

[Guest guest]

That is me, and I finally have a small relief from pain today and am trying to

catch up on my reading here in the group. I do have the database started, got

the initial files that Dr. Grim sent, and am going to have time this weekend to

start inputting data. Any information, questions, etc, that need to be in this,

please send them to my email address singlemomx2 (at) gmail (dot) com. I'll work

to get it input as I can. When possible, excel spreadsheets are ideal as I can

often upload these direclty to a database with a little tweaking so quicker.

As for the pain after AVS, still having it, mainly in the right flank area.

Hospital was not much help, told me it " wasn't normal for that kind of pain to

be associated with AVS " . Ugghh! Primary doctor was not able to help much as she

is not familiar with the procedure and was not the one to order it (endo was).

Endo has to wait for insurance (HMO) approval before he can see me, so I have

yet to see him. But hopefully this coming week. I do have some relief this

morning, but seems to be because I took a vicoden last night due to pain being

so severe and I was unable to sleep. Slept 12 hours once I took it!

Primary Dr. has officially placed me on part-time disability as of last week,

since between the extreme fatigue, brain fog and constant dizziness, I am just

not able to spend a full day on my job and haven't since June 1. I don't have a

physically strenous job, but mentally strenous as a web developer/marketing

manager. My fellow employees and managers have even noted the change in me over

the last year. Thankfully my employer is patient and willing to work with me on

my hours, and I don't have to worry about my job.

> > > >>> >

> > > >>> > FrancisBill,

> > > >>> >

> > > >>> > I was reading your email and wanted to tell you I am sorry

> > you have to

> > > >>> deal

> > > >>> > with such dismissive doctoring. I've been there, believe me.

> > After I

> > > >>> read

> > > >>> > the part about you going to the Dartmouth Medical Center, I

> > remembered

> > > >>> > something I read from thier web-site when I first got

> > Conn's. I've

> > > >>> listed

> > > >>> > the link below so people can see what an* incomplete

> > *description of

> > > >>> Conn's

> > > >>> > looks like.

> > > >>> >

> > > >>> >

> > > >>>

http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & \

item_id=34402

> > > >>> >

> > > >>> > When I saw Dartmouth/Hitchcocks Medical Center's description

> > of the

> > > >>> symptoms

> > > >>> > of Conn's, I knew something was wrong. Here's their direct

> > quote:

> > > >>> >

> > > >>> > *What are the signs of Conn's disease?*

> > > >>> >

> > > >>> > *High blood pressure (hypertension) is often the only

> > symptom of Conn's

> > > >>> > disease. In some cases, the condition can lower the level of

> > the

> > > >>> mineral

> > > >>> > potassium in a patient's blood. This can lead to muscle

> > weakness,

> > > >>> headaches,

> > > >>> > and the passing of large amounts of urine.

> > > >>> > *

> > > >>> >

> > > >>> > Truly this is wrong. While they added the other conditions

> > at the end,

> > > >>> at

> > > >>> > the time I read this I was doubled over in kidney pain, had

> > horrible

> > > >>> > brain-fog, and migraines. It would have helped knowing these

> > symptoms I

> > > >>> was

> > > >>> > experiencing were legitimate and a result of the adrenal

> > adenoma. I had

> > > >>> to

> > > >>> > learn this by perusing through miles of other sites, then by

> > luck I

> > > >>> > discovered the NORD and Yahoo group. And for the record,

> > Conn's is a

> > > >>> > disorder marked by lowered potassium to due an over-

> > production of

> > > >>> potassium.

> > > >>> > DHMC...unbelievable how incomplete their research is on this

> > subject.

> > > >>> >

> > > >>> > My point for writing you this--- I agree with everything you

> > are

> > > >>> saying, in

> > > >>> > particular your last sentence. What this disease needs is

> > for the

> > > >>> A.M.A. and

> > > >>> > American Society of Endo's to reinforce the symptom

> > guidelines and to

> > > >>> test

> > > >>> > for it if you are diagnosed with hypertension without

> > reason. A CBC is

> > > >>> > supposed to be ordered when this happens and if potassium

> > levels are

> > > >>> > low-Conn's SHOULD BE suspected. As we all know, this is not

> > happening.

> > > >>> So I

> > > >>> > wrote Dr. OZ about this because I am so frustrated and

> > saddened to see

> > > >>> > people in this site suffering from delayed diagnosis and a

> > general lack

> > > >>> of

> > > >>> > expertise by their endocrinologists. I don't know what will

> > happen, but

> > > >>> it

> > > >>> > sure felt good to put in in writing with the intention to

> > help others

> > > >>> become

> > > >>> > aware of this debilitating disease.

> > > >>> >

> > > >>> > Wish you well....Flower Spy

> > > >>> >

> > > >>>

> > > >>>

> > > >>

> > > >>

> > > >> --

> > > >>

> > > >> Carole Aine Langrall

> > > >> " A Garden of Earthly Delights "

> > > >>

> > > >> www.agardenofearthlydelights.net

> > > >> http://neglectedbeauty.blogspot.com/

> > > >>

> > > >> " My heart found its home long ago in the beauty, mystery, order

> > and

> > > >> disorder of the flowering earth. " ~Lady Bird

> > > >>

> > > >>

> > > >>

> > > >

> > > >

> > > > --

> > > > Carole Aine Langrall

> > > > " A Garden of Earthly Delights "

> > > >

> > > > www.agardenofearthlydelights.net

> > > > http://neglectedbeauty.blogspot.com/

> > > >

> > > > " My heart found its home long ago in the beauty, mystery, order

> > and

> > > > disorder of the flowering earth. " ~Lady Bird

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > > --

> > > Carole Aine Langrall

> > > " A Garden of Earthly Delights "

> > >

> > > www.agardenofearthlydelights.net

> > > http://neglectedbeauty.blogspot.com/

> > >

> > > " My heart found its home long ago in the beauty, mystery, order

> > and disorder

> > > of the flowering earth. " ~Lady Bird

> > >

> >

> >

> >

>

[Guest guest]

How can you tell from ones posting if they have brain fog. Many times I spend a

lot of time on posting just a few words. I think many times I fix mistakes only

to read the posting and find out I didn't.

> >

> > I had brain fog literally till the day after my surgery. It was the first

> > thing I noticed that was gone. A gift from the gods it was...

> >

> > --

> > Carole Aine Langrall

> > " A Garden of Earthly Delights "

> >

> > www.agardenofearthlydelights.net

> > http://neglectedbeauty.blogspot.com/

> >

> > " My heart found its home long ago in the beauty, mystery, order and

disorder

> > of the flowering earth. " ~Lady Bird

> >

>

[Guest guest]

Someone that is a bit high can also seem to think normal. I just wouldn't want

to have them drive me some place.

> > >

> > > I had brain fog literally till the day after my surgery. It was the

first

> > > thing I noticed that was gone. A gift from the gods it was...

> > >

> > > --

> > > Carole Aine Langrall

> > > " A Garden of Earthly Delights "

> > >

> > > www.agardenofearthlydelights.net

> > > http://neglectedbeauty.blogspot.com/

> > >

> > > " My heart found its home long ago in the beauty, mystery, order and

disorder

> > > of the flowering earth. " ~Lady Bird

> > >

> >

>

[Guest guest]

I have never see this Dr. Maybe should have told you he is the Chief of Staff at

the VA in Vermont. Yet this talks about his being part of the VA in Florida some

1500 miles from VT. With this king of leadership how well does the rest of the

staff do with there jobs? In my case not very well.

> > > > > > >

> > > > > > > > If you have limited funds then you are limited as to

> > health

> > > > care

> > > > > > > > choices. Due to what ever is wrong with me I am unable

> > to be

> > > > > > > > gainfully employed. Because I didn't have enough work

> > > > credits in

> > > > > > the

> > > > > > > > ten years before my SX started I couldn't get SSA

> > disability.

> > > > > > > >

> > > > > > > > Because I am a war time Vietnam Veteran I was able to

> > get a

> > > > > > pension

> > > > > > > > from the VA. This is a very limited pension plan that is

> > the

> > > > limit

> > > > > > > > income from all sources to a set amount. The current

> > amount is

> > > > > > $985

> > > > > > > > a month. Any income below this amount the VA will make

> > up to

> > > > = the

> > > > > > > > $985.

> > > > > > > >

> > > > > > > > With this amount of income I could get Medicaid If I

> > wanted to

> > > > > > > > deplete my savings. Well I can have $1500 in the bank. I

> > do

> > > > own my

> > > > > > > > home and the 1500 would not be enough to pay the taxes. So

> > > > for now

> > > > > > > > no Medicaid.

> > > > > > > >

> > > > > > > > Since I am a Veteran I use the VA for health care. This

> > does

> > > > limit

> > > > > > > > my being able to try to find help other places.

> > > > > > > >

> > > > > > > > The VA I use is a teaching medical center. Part of the

> > > > Dartmouth

> > > > > > > > Medical school that is rated one of the best medical

> > schools

> > > > in

> > > > > > the

> > > > > > > > US. Almost all of the medical centers in NH and VT are

> > tied to

> > > > > > > > Dartmouth.

> > > > > > > >

> > > > > > > > The main Dartmouth medical center is not far from me.

> > For most

> > > > > > > > things they have some of the top Dr in the US.

> > > > > > > >

> > > > > > > > Since They are a non profit medical center they have to

> > > > provide

> > > > > > care

> > > > > > > > to any one that can not pay. I did the paper work and was

> > > > able to

> > > > > > > > get free care there.

> > > > > > > >

> > > > > > > > Since I have done a lot of research on PA and a CT

> > showed I

> > > > had

> > > > > > 2 cm

> > > > > > > > tumor on left adrenal gland. The test the VA did was not

> > > > done as

> > > > > > > > what I was reading said it should be done. First the test

> > > > was done

> > > > > > > > two weeks after surgery. It was done while I was taking

> > 25 MG

> > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG

> > Potassium

> > > > > > Chloride.

> > > > > > > >

> > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab range

> > 0.65-5.0

> > > > ng/

> > > > > > mL/

> > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < or = 28 ng/

> > dL.

> > > > > > > >

> > > > > > > > Thinking this test wasn't done right I then went to the

> > > > Dartmouth

> > > > > > > > medical center hoping to be tested off the meds. I

> > called an

> > > > was

> > > > > > > > told I would see a both A Tharsan Sivakumar Endocrinology

> > > > Fellow a

> > > > > > > > Dr H Turco Practice in Adrenal Disorders,

> > Osteoporosis,

> > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid

> > Disorders,

> > > > > > > > Transgender Hormonal Therapy.

> > > > > > > >

> > > > > > > > I was tested the same day as this visit on the same meds

> > as

> > > > > > before.

> > > > > > > > with the the results RENIN ACTIVITY .8 no range given and

> > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > > > >

> > > > > > > > I then learned about the the Am Soc of HTN site I found

> > this

> > > > Dr

> > > > > > > > listed at Dartmouth D. Remillard Section Chief,

> > > > Nephrology &

> > > > > > > > Hypertension. Called and was told I would see Dr

> > YASHASWINI

> > > > RANGAN

> > > > > > > > Fellow Nephrology & Hypertension and Dr D.

> > Remillard.

> > > > > > > >

> > > > > > > > I did see Dr RANGAN however I didn't see Dr Remillard.

> > > > Instead I

> > > > > > saw

> > > > > > > > A Dr M. Kaneko. Was told they would not retest me

> > as

> > > > there

> > > > > > > > was nothing wrong with the way the test was done the first

> > > > time.

> > > > > > > >

> > > > > > > > What this tells me is Dartmouth is teaching Dr how not

> > to do

> > > > the

> > > > > > > > test for PA.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

My Dr is the past Chief of Staff now semi retired.

> > > > > > > > >

> > > > > > > > > > If you have limited funds then you are limited as to

> > > > health

> > > > > > care

> > > > > > > > > > choices. Due to what ever is wrong with me I am unable

> > > > to be

> > > > > > > > > > gainfully employed. Because I didn't have enough work

> > > > > > credits in

> > > > > > > > the

> > > > > > > > > > ten years before my SX started I couldn't get SSA

> > > > disability.

> > > > > > > > > >

> > > > > > > > > > Because I am a war time Vietnam Veteran I was able to

> > > > get a

> > > > > > > > pension

> > > > > > > > > > from the VA. This is a very limited pension plan

> > that is

> > > > the

> > > > > > limit

> > > > > > > > > > income from all sources to a set amount. The current

> > > > amount is

> > > > > > > > $985

> > > > > > > > > > a month. Any income below this amount the VA will make

> > > > up to

> > > > > > = the

> > > > > > > > > > $985.

> > > > > > > > > >

> > > > > > > > > > With this amount of income I could get Medicaid If I

> > > > wanted to

> > > > > > > > > > deplete my savings. Well I can have $1500 in the

> > bank. I

> > > > do

> > > > > > own my

> > > > > > > > > > home and the 1500 would not be enough to pay the

> > taxes. So

> > > > > > for now

> > > > > > > > > > no Medicaid.

> > > > > > > > > >

> > > > > > > > > > Since I am a Veteran I use the VA for health care.

> > This

> > > > does

> > > > > > limit

> > > > > > > > > > my being able to try to find help other places.

> > > > > > > > > >

> > > > > > > > > > The VA I use is a teaching medical center. Part of the

> > > > > > Dartmouth

> > > > > > > > > > Medical school that is rated one of the best medical

> > > > schools

> > > > > > in

> > > > > > > > the

> > > > > > > > > > US. Almost all of the medical centers in NH and VT are

> > > > tied to

> > > > > > > > > > Dartmouth.

> > > > > > > > > >

> > > > > > > > > > The main Dartmouth medical center is not far from me.

> > > > For most

> > > > > > > > > > things they have some of the top Dr in the US.

> > > > > > > > > >

> > > > > > > > > > Since They are a non profit medical center they have

> > to

> > > > > > provide

> > > > > > > > care

> > > > > > > > > > to any one that can not pay. I did the paper work

> > and was

> > > > > > able to

> > > > > > > > > > get free care there.

> > > > > > > > > >

> > > > > > > > > > Since I have done a lot of research on PA and a CT

> > > > showed I

> > > > > > had

> > > > > > > > 2 cm

> > > > > > > > > > tumor on left adrenal gland. The test the VA did was

> > not

> > > > > > done as

> > > > > > > > > > what I was reading said it should be done. First the

> > test

> > > > > > was done

> > > > > > > > > > two weeks after surgery. It was done while I was

> > taking

> > > > 25 MG

> > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG

> > > > Potassium

> > > > > > > > Chloride.

> > > > > > > > > >

> > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab range

> > > > 0.65-5.0

> > > > > > ng/

> > > > > > > > mL/

> > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < or =

> > 28 ng/

> > > > dL.

> > > > > > > > > >

> > > > > > > > > > Thinking this test wasn't done right I then went to

> > the

> > > > > > Dartmouth

> > > > > > > > > > medical center hoping to be tested off the meds. I

> > > > called an

> > > > > > was

> > > > > > > > > > told I would see a both A Tharsan Sivakumar

> > Endocrinology

> > > > > > Fellow a

> > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,

> > > > Osteoporosis,

> > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid

> > > > Disorders,

> > > > > > > > > > Transgender Hormonal Therapy.

> > > > > > > > > >

> > > > > > > > > > I was tested the same day as this visit on the same

> > meds

> > > > as

> > > > > > > > before.

> > > > > > > > > > with the the results RENIN ACTIVITY .8 no range

> > given and

> > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > > > > > >

> > > > > > > > > > I then learned about the the Am Soc of HTN site I

> > found

> > > > this

> > > > > > Dr

> > > > > > > > > > listed at Dartmouth D. Remillard Section Chief,

> > > > > > Nephrology &

> > > > > > > > > > Hypertension. Called and was told I would see Dr

> > > > YASHASWINI

> > > > > > RANGAN

> > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.

> > > > Remillard.

> > > > > > > > > >

> > > > > > > > > > I did see Dr RANGAN however I didn't see Dr Remillard.

> > > > > > Instead I

> > > > > > > > saw

> > > > > > > > > > A Dr M. Kaneko. Was told they would not

> > retest me

> > > > as

> > > > > > there

> > > > > > > > > > was nothing wrong with the way the test was done the

> > first

> > > > > > time.

> > > > > > > > > >

> > > > > > > > > > What this tells me is Dartmouth is teaching Dr how not

> > > > to do

> > > > > > the

> > > > > > > > > > test for PA.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>