Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Strictly speaking it was the aldo from the tumor and your high salt diet that was causing all the symptoms. Not the adenoma itself. So one needs both excess aldo and excess salt. This is true in humans, rats, mice and sheep.CE Grim Hi Charlotte~I was on Spiro-diuretic and Nifedipine- calcium channel blocker. I also took Topomax for migraines and Potassium horse pill supplements during the day. They had me on estrogen/hormones and something else as I went through early menopause. It was tough keeping track of them all! I am no longer on any meds now.Before surgery--I had been on the HP meds for years, but they switched my diuretic once Conn's was diagnosed. The kidney pain was most prevalent the last year I had Conn's. I was urinating 5-6 times a night-seriously. My urine was darker and more concentrated and it became painful as it was voluminous. I was really sick that last year. Whether the drugs caused the brain fog or whatever, I'll never know- but I do know the tumor caused everything to break down in my body, especially the last two years. Hope this helps.Are you a candidate for surgery?CaroleOn Sun, Jul 18, 2010 at 10:30 PM, charlotte zahnd <charlottezbellsouth (DOT) net> wrote: Hey Carole, You mentioned you were doubled over in kidney pain at one time in your post. Do you remember if you were on a bp med and if so what type? I have found that I get kidney pain on certain bp meds, like arb’s and bb’s but not so much with ccb’s. Charlotte ZahndNefertuti From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Carole LangrallSent: Saturday, July 17, 2010 2:01 PMTo: hyperaldosteronism Subject: Re: Re: If you have limited income not much help for dx On Sat, Jul 17, 2010 at 1:48 PM, Francis Bill SUSPECTED PA <georgewbill> wrote: This information on Conn's is the standard that you see on many sites.> > > FrancisBill,> >> > I was reading your email and wanted to tell you I am sorry you have > > to deal with such dismissive doctoring. I've been there, believe me. > > After I read the part about you going to the Dartmouth Medical > > Center, I remembered something I read from thier web-site when I > > first got Conn's. I've listed the link below so people can see what > > an incomplete description of Conn's looks like.> >> > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402> >> > When I saw Dartmouth/Hitchcocks Medical Center's description of the > > symptoms of Conn's, I knew something was wrong. Here's their direct > > quote:> >> > What are the signs of Conn's disease?> >> > High blood pressure (hypertension) is often the only symptom of > > Conn's disease. In some cases, the condition can lower the level of > > the mineral potassium in a patient's blood. This can lead to muscle > > weakness, headaches, and the passing of large amounts of urine.> >> > Truly this is wrong. While they added the other conditions at the > > end, at the time I read this I was doubled over in kidney pain, had > > horrible brain-fog, and migraines. It would have helped knowing > > these symptoms I was experiencing were legitimate and a result of > > the adrenal adenoma. I had to learn this by perusing through miles > > of other sites, then by luck I discovered the NORD and Yahoo group. > > And for the record, Conn's is a disorder marked by lowered potassium > > to due an over-production of potassium. DHMC...unbelievable how > > incomplete their research is on this subject.> >> > My point for writing you this--- I agree with everything you are > > saying, in particular your last sentence. What this disease needs is > > for the A.M.A. and American Society of Endo's to reinforce the > > symptom guidelines and to test for it if you are diagnosed with > > hypertension without reason. A CBC is supposed to be ordered when > > this happens and if potassium levels are low-Conn's SHOULD BE > > suspected. As we all know, this is not happening. So I wrote Dr. OZ > > about this because I am so frustrated and saddened to see people in > > this site suffering from delayed diagnosis and a general lack of > > expertise by their endocrinologists. I don't know what will happen, > > but it sure felt good to put in in writing with the intention to > > help others become aware of this debilitating disease.> >> > Wish you well....Flower Spy> >> >> >> >>-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthlydelights.nethttp://neglectedbeauty.blogspot.com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.” ~Lady Bird -- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthlydelights.nethttp://neglectedbeauty.blogspot.com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.” ~Lady Bird Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 That is right. Heat adapted man can lose 35 gms of salt in 4 hrs of intense exericse in the heat in the sweat.Did I ever send you what I have written about salt and slavery?The best way to determine this is to measure the Cl in the urine. On Jul 19, 2010, at 8:59 AM, Francis Bill SUSPECTED PA wrote:The question is how much salt is to much. Or what is the right amount each one of us needs. We do x amount of salt. Both to little and to much will kill us. It has been over 90 Deg F here for close to a month. I belive I am loseing more salt and potassium then when it is 0 deg F. > > >> > > > FrancisBill,> > > >> > > > I was reading your email and wanted to tell you I am sorry you > > have> > > > to deal with such dismissive doctoring. I've been there, believe > > me.> > > > After I read the part about you going to the Dartmouth Medical> > > > Center, I remembered something I read from thier web-site when I> > > > first got Conn's. I've listed the link below so people can see > > what> > > > an incomplete description of Conn's looks like.> > > >> > > > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402> > > >> > > > When I saw Dartmouth/Hitchcocks Medical Center's description of > > the> > > > symptoms of Conn's, I knew something was wrong. Here's their > > direct> > > > quote:> > > >> > > > What are the signs of Conn's disease?> > > >> > > > High blood pressure (hypertension) is often the only symptom of> > > > Conn's disease. In some cases, the condition can lower the level > > of> > > > the mineral potassium in a patient's blood. This can lead to > > muscle> > > > weakness, headaches, and the passing of large amounts of urine.> > > >> > > > Truly this is wrong. While they added the other conditions at the> > > > end, at the time I read this I was doubled over in kidney pain, > > had> > > > horrible brain-fog, and migraines. It would have helped knowing> > > > these symptoms I was experiencing were legitimate and a result of> > > > the adrenal adenoma. I had to learn this by perusing through miles> > > > of other sites, then by luck I discovered the NORD and Yahoo > > group.> > > > And for the record, Conn's is a disorder marked by lowered > > potassium> > > > to due an over-production of potassium. DHMC...unbelievable how> > > > incomplete their research is on this subject.> > > >> > > > My point for writing you this--- I agree with everything you are> > > > saying, in particular your last sentence. What this disease > > needs is> > > > for the A.M.A. and American Society of Endo's to reinforce the> > > > symptom guidelines and to test for it if you are diagnosed with> > > > hypertension without reason. A CBC is supposed to be ordered when> > > > this happens and if potassium levels are low-Conn's SHOULD BE> > > > suspected. As we all know, this is not happening. So I wrote Dr. > > OZ> > > > about this because I am so frustrated and saddened to see people > > in> > > > this site suffering from delayed diagnosis and a general lack of> > > > expertise by their endocrinologists. I don't know what will > > happen,> > > > but it sure felt good to put in in writing with the intention to> > > > help others become aware of this debilitating disease.> > > >> > > > Wish you well....Flower Spy> > > >> > > >> > > >> > > >> > >> >> >> >> >> > -- > > Carole Aine Langrall> > "A Garden of Earthly Delights"> > > > www.agardenofearthlydelights.net> > http://neglectedbeauty.blogspot.com/> >> > "My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth." ~Lady Bird > >> >> >> >> > -- > > Carole Aine Langrall> > "A Garden of Earthly Delights"> > > > www.agardenofearthlydelights.net> > http://neglectedbeauty.blogspot.com/> >> > "My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth." ~Lady Bird > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Dr. Grim, I am very interested in the Cl strips you speak of and have done a specific search looking for your information on these strips and not once have I found where to purchase these strips. I also sent Francis Bill an email about where he purchased his but never heard back from him. I have also searched the internet and cannot seem to locate them either. Do you know how we can obtain these? I’ve done my homework but just can’t locate them. Has anyone else on this site purchased any? If so let me know where. Thanks. Charlotte From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Sent: Monday, July 19, 2010 11:43 AM To: hyperaldosteronism Subject: Re: Re: If you have limited income not much help for dx That is right. Heat adapted man can lose 35 gms of salt in 4 hrs of intense exericse in the heat in the sweat. Did I ever send you what I have written about salt and slavery? The best way to determine this is to measure the Cl in the urine. On Jul 19, 2010, at 8:59 AM, Francis Bill SUSPECTED PA wrote: The question is how much salt is to much. Or what is the right amount each one of us needs. We do x amount of salt. Both to little and to much will kill us. It has been over 90 Deg F here for close to a month. I belive I am loseing more salt and potassium then when it is 0 deg F. > > > > > > > FrancisBill, > > > > > > > > I was reading your email and wanted to tell you I am sorry you > > have > > > > to deal with such dismissive doctoring. I've been there, believe > > me. > > > > After I read the part about you going to the Dartmouth Medical > > > > Center, I remembered something I read from thier web-site when I > > > > first got Conn's. I've listed the link below so people can see > > what > > > > an incomplete description of Conn's looks like. > > > > > > > > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402 > > > > > > > > When I saw Dartmouth/Hitchcocks Medical Center's description of > > the > > > > symptoms of Conn's, I knew something was wrong. Here's their > > direct > > > > quote: > > > > > > > > What are the signs of Conn's disease? > > > > > > > > High blood pressure (hypertension) is often the only symptom of > > > > Conn's disease. In some cases, the condition can lower the level > > of > > > > the mineral potassium in a patient's blood. This can lead to > > muscle > > > > weakness, headaches, and the passing of large amounts of urine. > > > > > > > > Truly this is wrong. While they added the other conditions at the > > > > end, at the time I read this I was doubled over in kidney pain, > > had > > > > horrible brain-fog, and migraines. It would have helped knowing > > > > these symptoms I was experiencing were legitimate and a result of > > > > the adrenal adenoma. I had to learn this by perusing through miles > > > > of other sites, then by luck I discovered the NORD and Yahoo > > group. > > > > And for the record, Conn's is a disorder marked by lowered > > potassium > > > > to due an over-production of potassium. DHMC...unbelievable how > > > > incomplete their research is on this subject. > > > > > > > > My point for writing you this--- I agree with everything you are > > > > saying, in particular your last sentence. What this disease > > needs is > > > > for the A.M.A. and American Society of Endo's to reinforce the > > > > symptom guidelines and to test for it if you are diagnosed with > > > > hypertension without reason. A CBC is supposed to be ordered when > > > > this happens and if potassium levels are low-Conn's SHOULD BE > > > > suspected. As we all know, this is not happening. So I wrote Dr. > > OZ > > > > about this because I am so frustrated and saddened to see people > > in > > > > this site suffering from delayed diagnosis and a general lack of > > > > expertise by their endocrinologists. I don't know what will > > happen, > > > > but it sure felt good to put in in writing with the intention to > > > > help others become aware of this debilitating disease. > > > > > > > > Wish you well....Flower Spy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > Carole Aine Langrall > > " A Garden of Earthly Delights " > > > > www.agardenofearthlydelights.net > > http://neglectedbeauty.blogspot.com/ > > > > " My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth. " ~Lady Bird > > > > > > > > > > -- > > Carole Aine Langrall > > " A Garden of Earthly Delights " > > > > www.agardenofearthlydelights.net > > http://neglectedbeauty.blogspot.com/ > > > > " My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth. " ~Lady Bird > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Cl Sticks Mann SJ 1. J Clin Hypertens (Greenwich). 2010 Mar;12(3):174-80. Estimation of 24-hour sodium excretion from spot urine samples. Mann SJ, Gerber LM. Department of Medicine, Division of Nephrology and Hypertension, New York Presbyterian Hospital, Weill Cornell Medical Center, New York, NY, USA. sjmann@... Despite the effects of sodium intake on blood pressure and on response to antihypertensive medication, sodium intake is rarely monitored in clinical practice. The current method, the 24-hour urine collection for sodium excretion, is cumbersome, often incorrectly performed, and not commonly ordered. Further, its results have limited meaning because of the substantial day-to-day variation in sodium intake. A spot urine test to enable convenient, inexpensive, and serial monitoring of sodium excretion would be desirable. In this study, the accuracy of predicting 24-hour sodium excretion from a spot urine sample was assessed. The urine sodium/creatinine ratio was determined from the following urine samples: an "AM sample," submitted at the beginning of the 24-hour urine collection; a "PM sample" collected in the later afternoon/early evening before dinner, at roughly the midpoint of the collection; and a "random sample," collected after its completion. The ratio was then corrected for 24-hour creatinine excretion. The strongest correlation between predicted and actual 24-hour sodium excretion was observed with the PM sample collected near the midpoint (r=0.86, P<.001). This sample also identified persons with sodium excretion <100 mEq/d with a sensitivity of 100% and specificity of 82%. The sodium/creatinine ratio from a spot urine sample collected in the late afternoon/early evening at roughly the midpoint of the 24-hour collection, and adjusted for 24-hour creatinine excretion, strongly correlated with 24-hour sodium excretion. Additional studies are merited to further evaluate the role of the spot urine sample in assessing sodium intake. PMID: 20433530 [PubMed - in process] 2. Am J Hypertens. 2010 Jul;23(7):743-8. Epub 2010 Mar 25. Estimation of 24-h sodium excretion from a spot urine sample using chloride and creatinine dipsticks. Mann SJ, Gerber LM. Department of Medicine, Division of Nephrology and Hypertension, New York Presbyterian Hospital-Weill Cornell Medical Center, New York, New York, USA. sjmann@... BACKGROUND: Despite its clinical relevance, sodium intake is seldom monitored by physicians, largely because of shortcomings of the 24-h urine collection for sodium excretion. In a prior study, sodium excretion was shown to be accurately estimated from a late afternoon/early evening spot urine sodium/creatinine ratio, adjusted for 24-h creatinine excretion. In this study, we assessed a more convenient and inexpensive method, using chloride and creatinine dipsticks. METHODS: Subjects submitted 24-h urine collections along with an "AM sample," collected at the beginning, a "PM sample" collected in the late afternoon/early evening before dinner, at roughly the midpoint, and a "random sample," collected after completion, of the 24-h collection. Predicted 24-h sodium excretion was then determined from the spot urine dipstick chloride/creatinine ratio, measured by two independent observers, and from the spot urine laboratory sodium/creatinine ratio. Both ratios were adjusted for 24-h creatinine excretion. RESULTS: For PM samples, predicted sodium excretion correlated strongly with actual 24-h sodium excretion, both for the dipstick method (r = 0.71; observer 1 and r = 0.65; observer 2; both P < 0.001), and the laboratory method (r = 0.86, P < 0.001). PM samples also differentiated subjects with sodium excretion <100 mEq/day vs. > or =100 mEq/day (sensitivity and specificity: dipstick method: 83 and 82%, respectively for observer 1, 89 and 77%, respectively, for observer 2; laboratory method: 100 and 82%, respectively). AM samples and random samples correlated less strongly. CONCLUSION: The dipstick method appears promising as a convenient and inexpensive means to serially assess sodium excretion. PMID: 20339352 [PubMed - in process] Dr. Grim, I am very interested in the Cl strips you speak of and have done a specific search looking for your information on these strips and not once have I found where to purchase these strips. I also sent Francis Bill an email about where he purchased his but never heard back from him. I have also searched the internet and cannot seem to locate them either. Do you know how we can obtain these? I’ve done my homework but just can’t locate them. Has anyone else on this site purchased any? If so let me know where. Thanks. Charlotte From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSent: Monday, July 19, 2010 11:43 AMTo: hyperaldosteronism Subject: Re: Re: If you have limited income not much help for dx That is right. Heat adapted man can lose 35 gms of salt in 4 hrs of intense exericse in the heat in the sweat. Did I ever send you what I have written about salt and slavery? The best way to determine this is to measure the Cl in the urine. On Jul 19, 2010, at 8:59 AM, Francis Bill SUSPECTED PA wrote:The question is how much salt is to much. Or what is the right amount each one of us needs. We do x amount of salt. Both to little and to much will kill us. It has been over 90 Deg F here for close to a month. I belive I am loseing more salt and potassium then when it is 0 deg F. > > >> > > > FrancisBill,> > > >> > > > I was reading your email and wanted to tell you I am sorry you > > have> > > > to deal with such dismissive doctoring. I've been there, believe > > me.> > > > After I read the part about you going to the Dartmouth Medical> > > > Center, I remembered something I read from thier web-site when I> > > > first got Conn's. I've listed the link below so people can see > > what> > > > an incomplete description of Conn's looks like.> > > >> > > > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402> > > >> > > > When I saw Dartmouth/Hitchcocks Medical Center's description of > > the> > > > symptoms of Conn's, I knew something was wrong. Here's their > > direct> > > > quote:> > > >> > > > What are the signs of Conn's disease?> > > >> > > > High blood pressure (hypertension) is often the only symptom of> > > > Conn's disease. In some cases, the condition can lower the level > > of> > > > the mineral potassium in a patient's blood. This can lead to > > muscle> > > > weakness, headaches, and the passing of large amounts of urine.> > > >> > > > Truly this is wrong. While they added the other conditions at the> > > > end, at the time I read this I was doubled over in kidney pain, > > had> > > > horrible brain-fog, and migraines. It would have helped knowing> > > > these symptoms I was experiencing were legitimate and a result of> > > > the adrenal adenoma. I had to learn this by perusing through miles> > > > of other sites, then by luck I discovered the NORD and Yahoo > > group.> > > > And for the record, Conn's is a disorder marked by lowered > > potassium> > > > to due an over-production of potassium. DHMC...unbelievable how> > > > incomplete their research is on this subject.> > > >> > > > My point for writing you this--- I agree with everything you are> > > > saying, in particular your last sentence. What this disease > > needs is> > > > for the A.M.A. and American Society of Endo's to reinforce the> > > > symptom guidelines and to test for it if you are diagnosed with> > > > hypertension without reason. A CBC is supposed to be ordered when> > > > this happens and if potassium levels are low-Conn's SHOULD BE> > > > suspected. As we all know, this is not happening. So I wrote Dr. > > OZ> > > > about this because I am so frustrated and saddened to see people > > in> > > > this site suffering from delayed diagnosis and a general lack of> > > > expertise by their endocrinologists. I don't know what will > > happen,> > > > but it sure felt good to put in in writing with the intention to> > > > help others become aware of this debilitating disease.> > > >> > > > Wish you well....Flower Spy> > > >> > > >> > > >> > > >> > >> >> >> >> >> > -- > > Carole Aine Langrall> > "A Garden of Earthly Delights"> > > > www.agardenofearthlydelights.net> > http://neglectedbeauty.blogspot.com/> >> > "My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth." ~Lady Bird > >> >> >> >> > -- > > Carole Aine Langrall> > "A Garden of Earthly Delights"> > > > www.agardenofearthlydelights.net> > http://neglectedbeauty.blogspot.com/> >> > "My heart found its home long ago in the beauty, mystery, order and > > disorder of the flowering earth." ~Lady Bird > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 I just sent company name. They have to be ordered directly from company. If you like to play chemist you can also get a drop kit that will test chloride. Cheaper but more messyCE Grim MDOn Jul 19, 2010, at 11:32 AM, Francis Bill SUSPECTED PA wrote:I don't always check the email I set up for this site better to email me at frankbill@.... I find it much easier to post and read on group site. since most of the time you can read Dr Grims posting with out opening email saves time. I also haven't used the Cl strips. Do think you can get them any place that sell pool supplies check Walmart. You can get urine test kits on line also most drug stores should have them. > > > >> > > > > FrancisBill,> > > > >> > > > > I was reading your email and wanted to tell you I am sorry you > > > have> > > > > to deal with such dismissive doctoring. I've been there, believe > > > me.> > > > > After I read the part about you going to the Dartmouth Medical> > > > > Center, I remembered something I read from thier web-site when I> > > > > first got Conn's. I've listed the link below so people can see > > > what> > > > > an incomplete description of Conn's looks like.> > > > >> > > > >> <http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=3> 4389 & item_id=34402>> http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34> 389 & item_id=34402> > > > >> > > > > When I saw Dartmouth/Hitchcocks Medical Center's description of > > > the> > > > > symptoms of Conn's, I knew something was wrong. Here's their > > > direct> > > > > quote:> > > > >> > > > > What are the signs of Conn's disease?> > > > >> > > > > High blood pressure (hypertension) is often the only symptom of> > > > > Conn's disease. In some cases, the condition can lower the level > > > of> > > > > the mineral potassium in a patient's blood. This can lead to > > > muscle> > > > > weakness, headaches, and the passing of large amounts of urine.> > > > >> > > > > Truly this is wrong. While they added the other conditions at the> > > > > end, at the time I read this I was doubled over in kidney pain, > > > had> > > > > horrible brain-fog, and migraines. It would have helped knowing> > > > > these symptoms I was experiencing were legitimate and a result of> > > > > the adrenal adenoma. I had to learn this by perusing through miles> > > > > of other sites, then by luck I discovered the NORD and Yahoo > > > group.> > > > > And for the record, Conn's is a disorder marked by lowered > > > potassium> > > > > to due an over-production of potassium. DHMC...unbelievable how> > > > > incomplete their research is on this subject.> > > > >> > > > > My point for writing you this--- I agree with everything you are> > > > > saying, in particular your last sentence. What this disease > > > needs is> > > > > for the A.M.A. and American Society of Endo's to reinforce the> > > > > symptom guidelines and to test for it if you are diagnosed with> > > > > hypertension without reason. A CBC is supposed to be ordered when> > > > > this happens and if potassium levels are low-Conn's SHOULD BE> > > > > suspected. As we all know, this is not happening. So I wrote Dr. > > > OZ> > > > > about this because I am so frustrated and saddened to see people > > > in> > > > > this site suffering from delayed diagnosis and a general lack of> > > > > expertise by their endocrinologists. I don't know what will > > > happen,> > > > > but it sure felt good to put in in writing with the intention to> > > > > help others become aware of this debilitating disease.> > > > >> > > > > Wish you well....Flower Spy> > > > >> > > > >> > > > >> > > > >> > > >> > >> > >> > >> > >> > > -- > > > Carole Aine Langrall> > > "A Garden of Earthly Delights"> > > > > > <http://www.agardenofearthlydelights.net>> www.agardenofearthlydelights.net> > > <http://neglectedbeauty.blogspot.com/>> http://neglectedbeauty.blogspot.com/> > >> > > "My heart found its home long ago in the beauty, mystery, order and > > > disorder of the flowering earth." ~Lady Bird > > >> > >> > >> > >> > > -- > > > Carole Aine Langrall> > > "A Garden of Earthly Delights"> > > > > > <http://www.agardenofearthlydelights.net>> www.agardenofearthlydelights.net> > > <http://neglectedbeauty.blogspot.com/>> http://neglectedbeauty.blogspot.com/> > >> > > "My heart found its home long ago in the beauty, mystery, order and > > > disorder of the flowering earth." ~Lady Bird > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Again you have early PA.CE Grim MDOn Jul 19, 2010, at 12:19 PM, Francis Bill SUSPECTED PA wrote:When I went to Dartmouth the first time I asked about being tested on the meds. Was told nothing I was taking wound change the results.Again the results of that test. RENIN ACTIVITY .8 no range givenALDOSTERONE-MAYO 5.5 range <=21> > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > And they have not read my article.> > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > Remind me if you have ever been tired on > > > > spiro.> > > > > > > > > > > > > > > >> > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Once again if you are feeling normal on current Rx no worries. If not you need to find a Dr who will start you on spiro.If you are not telling them you don't feel right then you need to do so. I suspect you are but they are not listening. I would be happy to write a letter to your VA team but it may be easier to get a local Dr we can work with.Does the VA you go to have an ombudsman you can talk to?Ask to be seen by the Hypertension Specialist there if they have one. If not maybe by the Neph docs.CE Grim MDOn Jul 19, 2010, at 1:21 PM, Francis Bill SUSPECTED PA wrote:This test may indicate early PA but because of meds could be stage 3 or 4. Also BP readings that have been as high 199/100 K drop from 4.3 to 3.2 after being started 25 MG of HYDROCHLOROTHIAZIDE Dizziness Fatigue Tachycardia shortness of breath. Of course by the Dartmouth Dr say I don't have PA anyway.I can provide Email addresses of any Dartmouth Dr If you like.> > > > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > And they have not read my article.> > > > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > Remind me if you have ever been > > tired on> > > > > > spiro.> > > > > > > > > > > > > > > > > >> > > > > > > > > > > > >> > >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Cushings is prob 100 x less common than PA Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension We have see people come and go. Some go because Information given on this site doesn't match what they read in other places. Some have listes Sx that match PA but since there test numbers don't intercate to there Dr they have PA. They think they have something else. Most think they have cushing. As Dr Grim says most don't have to be tested to know they have cushing. From what I have read there are less people that have cushing then PA yet Dr will test for cushing before they test for PA. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > And they have not read my article. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Remind me if you have ever been > > > > > tired on > > > > > > > > > spiro. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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