Re: Re: If you have limited income not much help for dx

[Guest guest]

I guess you know at Yale they do not test Medical Students. They are adults and learn what needs to be learned therefore testing in worthless.We need someone famous to have the problem diagnosed who hits the news. Such as Ophra.CE Grim MDOn Jul 18, 2010, at 8:06 AM, Francis Bill SUSPECTED PA wrote:If as what I belive and what you say is true. That either medical schools are not teaching how to DX PA or that med students are skipping classes on PA. How do we fix this problem?Do we try to get the Medical schools to change how they teach about Conn's?I am not a big fan of sueing Dr. Sometime it has to be done. Is this what it is going to take?Do we go to all the states and request that for a Dr be licensed in there state they have to know how to test for Conn's?Do we go to places like the American Heart Association and request that they educate everyone on Conn's? > > > > > > > > > > > >> > > > > > > > > > > > > If you have limited funds then you are limited > > as to> > > > > > > health> > > > > > > > > care> > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > am unable> > > > > > > to be> > > > > > > > > > > > > gainfully employed. Because I didn't have > > enough work> > > > > > > > > credits in> > > > > > > > > > > the> > > > > > > > > > > > > ten years before my SX started I couldn't get > > SSA> > > > > > > disability.> > > > > > > > > > > > >> > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > able to> > > > > > > get a> > > > > > > > > > > pension> > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > that is> > > > > > > the> > > > > > > > > limit> > > > > > > > > > > > > income from all sources to a set amount. The > > current> > > > > > > amount is> > > > > > > > > > > $985> > > > > > > > > > > > > a month. Any income below this amount the VA > > will make> > > > > > > up to> > > > > > > > > = the> > > > > > > > > > > > > $985.> > > > > > > > > > > > >> > > > > > > > > > > > > With this amount of income I could get > > Medicaid If I> > > > > > > wanted to> > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > bank. I> > > > > > > do> > > > > > > > > own my> > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > taxes. So> > > > > > > > > for now> > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > care.> > > > > This> > > > > > > does> > > > > > > > > limit> > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > >> > > > > > > > > > > > > The VA I use is a teaching medical center. > > Part of the> > > > > > > > > Dartmouth> > > > > > > > > > > > > Medical school that is rated one of the best > > medical> > > > > > > schools> > > > > > > > > in> > > > > > > > > > > the> > > > > > > > > > > > > US. Almost all of the medical centers in NH > > and VT are> > > > > > > tied to> > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > >> > > > > > > > > > > > > The main Dartmouth medical center is not far > > from me.> > > > > > > For most> > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > >> > > > > > > > > > > > > Since They are a non profit medical center > > they have> > > > > to> > > > > > > > > provide> > > > > > > > > > > care> > > > > > > > > > > > > to any one that can not pay. I did the paper > > work> > > > > and was> > > > > > > > > able to> > > > > > > > > > > > > get free care there.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I have done a lot of research on PA and > > a CT> > > > > > > showed I> > > > > > > > > had> > > > > > > > > > > 2 cm> > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > did was> > > > > not> > > > > > > > > done as> > > > > > > > > > > > > what I was reading said it should be done. > > First the> > > > > test> > > > > > > > > was done> > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > taking> > > > > > > 25 MG> > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > MG> > > > > > > Potassium> > > > > > > > > > > Chloride.> > > > > > > > > > > > >> > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > range> > > > > > > 0.65-5.0> > > > > > > > > ng/> > > > > > > > > > > mL/> > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > or => > > > > 28 ng/> > > > > > > dL.> > > > > > > > > > > > >> > > > > > > > > > > > > Thinking this test wasn't done right I then > > went to> > > > > the> > > > > > > > > Dartmouth> > > > > > > > > > > > > medical center hoping to be tested off the > > meds. I> > > > > > > called an> > > > > > > > > was> > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > Endocrinology> > > > > > > > > Fellow a> > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > Osteoporosis,> > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > Disorders,> > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > >> > > > > > > > > > > > > I was tested the same day as this visit on the > > same> > > > > meds> > > > > > > as> > > > > > > > > > > before.> > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > given and> > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > >> > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > site I> > > > > found> > > > > > > this> > > > > > > > > Dr> > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > Chief,> > > > > > > > > Nephrology & > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > YASHASWINI> > > > > > > > > RANGAN> > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > Remillard.> > > > > > > > > > > > >> > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > Remillard.> > > > > > > > > Instead I> > > > > > > > > > > saw> > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > retest me> > > > > > > as> > > > > > > > > there> > > > > > > > > > > > > was nothing wrong with the way the test was > > done the> > > > > first> > > > > > > > > time.> > > > > > > > > > > > >> > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > how not> > > > > > > to do> > > > > > > > > the> > > > > > > > > > > > > test for PA.> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >>

[Guest guest]

AGREE!

Re: Re: If you have limited income not much help for dx

I guess you know at Yale they do not test Medical Students. They are adults and learn what needs to be learned therefore testing in worthless.

We need someone famous to have the problem diagnosed who hits the news. Such as Ophra.

CE Grim MD

On Jul 18, 2010, at 8:06 AM, Francis Bill SUSPECTED PA wrote:

If as what I belive and what you say is true. That either medical schools are not teaching how to DX PA or that med students are skipping classes on PA. How do we fix this problem?Do we try to get the Medical schools to change how they teach about Conn's?I am not a big fan of sueing Dr. Sometime it has to be done. Is this what it is going to take?Do we go to all the states and request that for a Dr be licensed in there state they have to know how to test for Conn's?Do we go to places like the American Heart Association and request that they educate everyone on Conn's? > > > > > > > > > > > >> > > > > > > > > > > > > If you have limited funds then you are limited > > as to> > > > > > > health> > > > > > > > > care> > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > am unable> > > > > > > to be> > > > > > > > > > > > > gainfully employed. Because I didn't have > > enough work> > > > > > > > > credits in> > > > > > > > > > > the> > > > > > > > > > > > > ten years before my SX started I couldn't get > > SSA> > > > > > > disability.> > > > > > > > > > > > >> > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > able to> > > > > > > get a> > > > > > > > > > > pension> > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > that is> > > > > > > the> > > > > > > > > limit> > > > > > > > > > > > > income from all sources to a set amount. The > > current> > > > > > > amount is> > > > > > > > > > > $985> > > > > > > > > > > > > a month. Any income below this amount the VA > > will make> > > > > > > up to> > > > > > > > > = the> > > > > > > > > > > > > $985.> > > > > > > > > > > > >> > > > > > > > > > > > > With this amount of income I could get > > Medicaid If I> > > > > > > wanted to> > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > bank. I> > > > > > > do> > > > > > > > > own my> > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > taxes. So> > > > > > > > > for now> > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > care.> > > > > This> > > > > > > does> > > > > > > > > limit> > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > >> > > > > > > > > > > > > The VA I use is a teaching medical center. > > Part of the> > > > > > > > > Dartmouth> > > > > > > > > > > > > Medical school that is rated one of the best > > medical> > > > > > > schools> > > > > > > > > in> > > > > > > > > > > the> > > > > > > > > > > > > US. Almost all of the medical centers in NH > > and VT are> > > > > > > tied to> > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > >> > > > > > > > > > > > > The main Dartmouth medical center is not far > > from me.> > > > > > > For most> > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > >> > > > > > > > > > > > > Since They are a non profit medical center > > they have> > > > > to> > > > > > > > > provide> > > > > > > > > > > care> > > > > > > > > > > > > to any one that can not pay. I did the paper > > work> > > > > and was> > > > > > > > > able to> > > > > > > > > > > > > get free care there.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I have done a lot of research on PA and > > a CT> > > > > > > showed I> > > > > > > > > had> > > > > > > > > > > 2 cm> > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > did was> > > > > not> > > > > > > > > done as> > > > > > > > > > > > > what I was reading said it should be done. > > First the> > > > > test> > > > > > > > > was done> > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > taking> > > > > > > 25 MG> > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > MG> > > > > > > Potassium> > > > > > > > > > > Chloride.> > > > > > > > > > > > >> > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > range> > > > > > > 0.65-5.0> > > > > > > > > ng/> > > > > > > > > > > mL/> > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > or => > > > > 28 ng/> > > > > > > dL.> > > > > > > > > > > > >> > > > > > > > > > > > > Thinking this test wasn't done right I then > > went to> > > > > the> > > > > > > > > Dartmouth> > > > > > > > > > > > > medical center hoping to be tested off the > > meds. I> > > > > > > called an> > > > > > > > > was> > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > Endocrinology> > > > > > > > > Fellow a> > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > Osteoporosis,> > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > Disorders,> > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > >> > > > > > > > > > > > > I was tested the same day as this visit on the > > same> > > > > meds> > > > > > > as> > > > > > > > > > > before.> > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > given and> > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > >> > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > site I> > > > > found> > > > > > > this> > > > > > > > > Dr> > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > Chief,> > > > > > > > > Nephrology & > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > YASHASWINI> > > > > > > > > RANGAN> > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > Remillard.> > > > > > > > > > > > >> > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > Remillard.> > > > > > > > > Instead I> > > > > > > > > > > saw> > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > retest me> > > > > > > as> > > > > > > > > there> > > > > > > > > > > > > was nothing wrong with the way the test was > > done the> > > > > first> > > > > > > > > time.> > > > > > > > > > > > >> > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > how not> > > > > > > to do> > > > > > > > > the> > > > > > > > > > > > > test for PA.> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >>

[Guest guest]

renin and aldo predict he will not respond to ACE-I should have been the note.Good notes but have not read my article obvisouly. Cortisol was not needed in urine unless you looked Cushingoid. Aldosterone is what should have been measured. Well the VA can do both so that is best actually.Sorry always give both the aldo and the renin numbers so I dont have to back calculate. Again if BP and you are doing good then sit tight. If not request a trial of spiro which is now being widely recommended for difficult HTN PA or not.CE Grim MDCE Grim MDOn Jul 18, 2010, at 8:32 AM, Francis Bill SUSPECTED PA wrote:Just a bit of what is in my VA record By three different Providers. A oReviewed Aldosterone, renin level results. His PAC/PRA ratio is 8.1. Normal is 4-10 . Patients with primary hyperaldo typically have ratios in 30 to 50 range.borderline K in recent past and frankly low 2005 but was onHCTZ. has stable appearing adrenal adenoma and past nl 24 hr urine cortisol.pt cts with htn and recent check for Conns syndrome neg (normalrenin/aldol. Pt's K tends to be low, and given that his bp are still not well controlled, he may benefit from ACE-I .> > > > > > > > > > > >> > > > > > > > > > > > > If you have limited funds then you are limited > > as to> > > > > > > health> > > > > > > > > care> > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > am unable> > > > > > > to be> > > > > > > > > > > > > gainfully employed. Because I didn't have > > enough work> > > > > > > > > credits in> > > > > > > > > > > the> > > > > > > > > > > > > ten years before my SX started I couldn't get > > SSA> > > > > > > disability.> > > > > > > > > > > > >> > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > able to> > > > > > > get a> > > > > > > > > > > pension> > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > that is> > > > > > > the> > > > > > > > > limit> > > > > > > > > > > > > income from all sources to a set amount. The > > current> > > > > > > amount is> > > > > > > > > > > $985> > > > > > > > > > > > > a month. Any income below this amount the VA > > will make> > > > > > > up to> > > > > > > > > = the> > > > > > > > > > > > > $985.> > > > > > > > > > > > >> > > > > > > > > > > > > With this amount of income I could get > > Medicaid If I> > > > > > > wanted to> > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > bank. I> > > > > > > do> > > > > > > > > own my> > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > taxes. So> > > > > > > > > for now> > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > care.> > > > > This> > > > > > > does> > > > > > > > > limit> > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > >> > > > > > > > > > > > > The VA I use is a teaching medical center. > > Part of the> > > > > > > > > Dartmouth> > > > > > > > > > > > > Medical school that is rated one of the best > > medical> > > > > > > schools> > > > > > > > > in> > > > > > > > > > > the> > > > > > > > > > > > > US. Almost all of the medical centers in NH > > and VT are> > > > > > > tied to> > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > >> > > > > > > > > > > > > The main Dartmouth medical center is not far > > from me.> > > > > > > For most> > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > >> > > > > > > > > > > > > Since They are a non profit medical center > > they have> > > > > to> > > > > > > > > provide> > > > > > > > > > > care> > > > > > > > > > > > > to any one that can not pay. I did the paper > > work> > > > > and was> > > > > > > > > able to> > > > > > > > > > > > > get free care there.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I have done a lot of research on PA and > > a CT> > > > > > > showed I> > > > > > > > > had> > > > > > > > > > > 2 cm> > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > did was> > > > > not> > > > > > > > > done as> > > > > > > > > > > > > what I was reading said it should be done. > > First the> > > > > test> > > > > > > > > was done> > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > taking> > > > > > > 25 MG> > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > MG> > > > > > > Potassium> > > > > > > > > > > Chloride.> > > > > > > > > > > > >> > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > range> > > > > > > 0.65-5.0> > > > > > > > > ng/> > > > > > > > > > > mL/> > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > or => > > > > 28 ng/> > > > > > > dL.> > > > > > > > > > > > >> > > > > > > > > > > > > Thinking this test wasn't done right I then > > went to> > > > > the> > > > > > > > > Dartmouth> > > > > > > > > > > > > medical center hoping to be tested off the > > meds. I> > > > > > > called an> > > > > > > > > was> > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > Endocrinology> > > > > > > > > Fellow a> > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > Osteoporosis,> > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > Disorders,> > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > >> > > > > > > > > > > > > I was tested the same day as this visit on the > > same> > > > > meds> > > > > > > as> > > > > > > > > > > before.> > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > given and> > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > >> > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > site I> > > > > found> > > > > > > this> > > > > > > > > Dr> > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > Chief,> > > > > > > > > Nephrology & > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > YASHASWINI> > > > > > > > > RANGAN> > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > Remillard.> > > > > > > > > > > > >> > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > Remillard.> > > > > > > > > Instead I> > > > > > > > > > > saw> > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > retest me> > > > > > > as> > > > > > > > > there> > > > > > > > > > > > > was nothing wrong with the way the test was > > done the> > > > > first> > > > > > > > > time.> > > > > > > > > > > > >> > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > how not> > > > > > > to do> > > > > > > > > the> > > > > > > > > > > > > test for PA.> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >>

[Guest guest]

So he does not order many. But at least he called.CE Grim MDOn Jul 18, 2010, at 8:44 AM, Francis Bill SUSPECTED PA wrote:When My Dr ordered the Aldo/renin test he had to call the lab to find out how to order it. They have it listed as a miscellanies blood test.> > > > > > > > > > > > >> > > > > > > > > > > > > > If you have limited funds then you are limited > > > as to> > > > > > > > health> > > > > > > > > > care> > > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > > am unable> > > > > > > > to be> > > > > > > > > > > > > > gainfully employed. Because I didn't have > > > enough work> > > > > > > > > > credits in> > > > > > > > > > > > the> > > > > > > > > > > > > > ten years before my SX started I couldn't get > > > SSA> > > > > > > > disability.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > > able to> > > > > > > > get a> > > > > > > > > > > > pension> > > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > > that is> > > > > > > > the> > > > > > > > > > limit> > > > > > > > > > > > > > income from all sources to a set amount. The > > > current> > > > > > > > amount is> > > > > > > > > > > > $985> > > > > > > > > > > > > > a month. Any income below this amount the VA > > > will make> > > > > > > > up to> > > > > > > > > > = the> > > > > > > > > > > > > > $985.> > > > > > > > > > > > > >> > > > > > > > > > > > > > With this amount of income I could get > > > Medicaid If I> > > > > > > > wanted to> > > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > > bank. I> > > > > > > > do> > > > > > > > > > own my> > > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > > taxes. So> > > > > > > > > > for now> > > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > > care.> > > > > > This> > > > > > > > does> > > > > > > > > > limit> > > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The VA I use is a teaching medical center. > > > Part of the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > Medical school that is rated one of the best > > > medical> > > > > > > > schools> > > > > > > > > > in> > > > > > > > > > > > the> > > > > > > > > > > > > > US. Almost all of the medical centers in NH > > > and VT are> > > > > > > > tied to> > > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The main Dartmouth medical center is not far > > > from me.> > > > > > > > For most> > > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since They are a non profit medical center > > > they have> > > > > > to> > > > > > > > > > provide> > > > > > > > > > > > care> > > > > > > > > > > > > > to any one that can not pay. I did the paper > > > work> > > > > > and was> > > > > > > > > > able to> > > > > > > > > > > > > > get free care there.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I have done a lot of research on PA and > > > a CT> > > > > > > > showed I> > > > > > > > > > had> > > > > > > > > > > > 2 cm> > > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > > did was> > > > > > not> > > > > > > > > > done as> > > > > > > > > > > > > > what I was reading said it should be done. > > > First the> > > > > > test> > > > > > > > > > was done> > > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > > taking> > > > > > > > 25 MG> > > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > > MG> > > > > > > > Potassium> > > > > > > > > > > > Chloride.> > > > > > > > > > > > > >> > > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > > range> > > > > > > > 0.65-5.0> > > > > > > > > > ng/> > > > > > > > > > > > mL/> > > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > > or => > > > > > 28 ng/> > > > > > > > dL.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Thinking this test wasn't done right I then > > > went to> > > > > > the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > medical center hoping to be tested off the > > > meds. I> > > > > > > > called an> > > > > > > > > > was> > > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > > Endocrinology> > > > > > > > > > Fellow a> > > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > > Osteoporosis,> > > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > > Disorders,> > > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I was tested the same day as this visit on the > > > same> > > > > > meds> > > > > > > > as> > > > > > > > > > > > before.> > > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > > given and> > > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > > site I> > > > > > found> > > > > > > > this> > > > > > > > > > Dr> > > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > > Chief,> > > > > > > > > > Nephrology & > > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > > YASHASWINI> > > > > > > > > > RANGAN> > > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > > Remillard.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > > Remillard.> > > > > > > > > > Instead I> > > > > > > > > > > > saw> > > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > > retest me> > > > > > > > as> > > > > > > > > > there> > > > > > > > > > > > > > was nothing wrong with the way the test was > > > done the> > > > > > first> > > > > > > > > > time.> > > > > > > > > > > > > >> > > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > > how not> > > > > > > > to do> > > > > > > > > > the> > > > > > > > > > > > > > test for PA.> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> > >> > >> >>

[Guest guest]

but all Drs know this if they went to class?CEOn Jul 18, 2010, at 8:53 AM, Francis Bill SUSPECTED PA wrote:Like to add keed to change what Labs do. They could make Dr do a check list that goes with the sample. It they see that meds taking change results then they can say report maybe flawed. > > > > > > > > > > > > >> > > > > > > > > > > > > > If you have limited funds then you are limited > > > as to> > > > > > > > health> > > > > > > > > > care> > > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > > am unable> > > > > > > > to be> > > > > > > > > > > > > > gainfully employed. Because I didn't have > > > enough work> > > > > > > > > > credits in> > > > > > > > > > > > the> > > > > > > > > > > > > > ten years before my SX started I couldn't get > > > SSA> > > > > > > > disability.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > > able to> > > > > > > > get a> > > > > > > > > > > > pension> > > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > > that is> > > > > > > > the> > > > > > > > > > limit> > > > > > > > > > > > > > income from all sources to a set amount. The > > > current> > > > > > > > amount is> > > > > > > > > > > > $985> > > > > > > > > > > > > > a month. Any income below this amount the VA > > > will make> > > > > > > > up to> > > > > > > > > > = the> > > > > > > > > > > > > > $985.> > > > > > > > > > > > > >> > > > > > > > > > > > > > With this amount of income I could get > > > Medicaid If I> > > > > > > > wanted to> > > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > > bank. I> > > > > > > > do> > > > > > > > > > own my> > > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > > taxes. So> > > > > > > > > > for now> > > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > > care.> > > > > > This> > > > > > > > does> > > > > > > > > > limit> > > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The VA I use is a teaching medical center. > > > Part of the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > Medical school that is rated one of the best > > > medical> > > > > > > > schools> > > > > > > > > > in> > > > > > > > > > > > the> > > > > > > > > > > > > > US. Almost all of the medical centers in NH > > > and VT are> > > > > > > > tied to> > > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The main Dartmouth medical center is not far > > > from me.> > > > > > > > For most> > > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since They are a non profit medical center > > > they have> > > > > > to> > > > > > > > > > provide> > > > > > > > > > > > care> > > > > > > > > > > > > > to any one that can not pay. I did the paper > > > work> > > > > > and was> > > > > > > > > > able to> > > > > > > > > > > > > > get free care there.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I have done a lot of research on PA and > > > a CT> > > > > > > > showed I> > > > > > > > > > had> > > > > > > > > > > > 2 cm> > > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > > did was> > > > > > not> > > > > > > > > > done as> > > > > > > > > > > > > > what I was reading said it should be done. > > > First the> > > > > > test> > > > > > > > > > was done> > > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > > taking> > > > > > > > 25 MG> > > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > > MG> > > > > > > > Potassium> > > > > > > > > > > > Chloride.> > > > > > > > > > > > > >> > > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > > range> > > > > > > > 0.65-5.0> > > > > > > > > > ng/> > > > > > > > > > > > mL/> > > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > > or => > > > > > 28 ng/> > > > > > > > dL.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Thinking this test wasn't done right I then > > > went to> > > > > > the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > medical center hoping to be tested off the > > > meds. I> > > > > > > > called an> > > > > > > > > > was> > > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > > Endocrinology> > > > > > > > > > Fellow a> > > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > > Osteoporosis,> > > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > > Disorders,> > > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I was tested the same day as this visit on the > > > same> > > > > > meds> > > > > > > > as> > > > > > > > > > > > before.> > > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > > given and> > > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > > site I> > > > > > found> > > > > > > > this> > > > > > > > > > Dr> > > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > > Chief,> > > > > > > > > > Nephrology & > > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > > YASHASWINI> > > > > > > > > > RANGAN> > > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > > Remillard.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > > Remillard.> > > > > > > > > > Instead I> > > > > > > > > > > > saw> > > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > > retest me> > > > > > > > as> > > > > > > > > > there> > > > > > > > > > > > > > was nothing wrong with the way the test was > > > done the> > > > > > first> > > > > > > > > > time.> > > > > > > > > > > > > >> > > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > > how not> > > > > > > > to do> > > > > > > > > > the> > > > > > > > > > > > > > test for PA.> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> > >> > >> >>

[Guest guest]

Prob a combo of both but what we eat overwhelms the other. If you eat lots of stuff then you are almost certainly getting plenty of Vits. CA etc.CE Grim MDMy wife insists our(mine and hers) health is due to not what we eat, but what we DON'T eat.How do we test that? Regards Re: If you have limited income not much help for dx I would think if you wanted to know if those the don't have Pa have the same Sx as those that do would need to test all in survey. > > > >> > > > 46 members of this group diagnosed with Conn's took> > > our survey. We know from that survey that of these 46> > > people:> > > >> > > > 78% had poorly controlled HPTN despite multiple meds> > > > 65% had to get up one or more times per night to pee> > > > 61% had unexplained tiredness or lethargy despite> > > sleeping well at night> > > > 59% had brain fog or feeling of confusion> > > > 59% had unexplained feelings of anxiety> > > > 57% had muscle weakness> > > > 57% had heart palpitations or irregular heart beat> > > > 54% had headaches> > > > 50% had muscle cramps tremors or twitches> > > > 46% had numbness or tingling of extremeties> > > > 39% had episodes of unexplained> > > sweating/flushing/feeling hot> > > > 35% had unexplained thirst> > > > 26% had unexplained chest pain> > > > 13% had a metallic taste in mouth> > > >> > > > Some of these complaints are objective but some are> > > subjective. How could we attribute the subjective> > > complaints to PA without knowing what percentage of people> > > without PA have the same complaint?> > > >>

[Guest guest]

The JNC 7 says that and the new JNC 8 will also not to mention JNC 1-6. The problem is few Drs read the guidelines and even fewer follow them.You might what to go to ALLHAT.com to read how the publication of this landmark study failed to chance prescribing habits. Viva la Pharms. CE Grim MDYes. The American Heart Assoc. Needs a reminder of the guidelines that Conn's should be suspected n tested for when high BP is diagnosedsent from blackberryFrom: "Francis Bill SUSPECTED PA" <georgewbill>Sender: hyperaldosteronism Date: Sun, 18 Jul 2010 13:06:50 -0000To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: If you have limited income not much help for dx If as what I belive and what you say is true. That either medical schools are not teaching how to DX PA or that med students are skipping classes on PA. How do we fix this problem?Do we try to get the Medical schools to change how they teach about Conn's?I am not a big fan of sueing Dr. Sometime it has to be done. Is this what it is going to take?Do we go to all the states and request that for a Dr be licensed in there state they have to know how to test for Conn's?Do we go to places like the American Heart Association and request that they educate everyone on Conn's? > > > > > > > > > > > >> > > > > > > > > > > > > If you have limited funds then you are limited > > as to> > > > > > > health> > > > > > > > > care> > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > am unable> > > > > > > to be> > > > > > > > > > > > > gainfully employed. Because I didn't have > > enough work> > > > > > > > > credits in> > > > > > > > > > > the> > > > > > > > > > > > > ten years before my SX started I couldn't get > > SSA> > > > > > > disability.> > > > > > > > > > > > >> > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > able to> > > > > > > get a> > > > > > > > > > > pension> > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > that is> > > > > > > the> > > > > > > > > limit> > > > > > > > > > > > > income from all sources to a set amount. The > > current> > > > > > > amount is> > > > > > > > > > > $985> > > > > > > > > > > > > a month. Any income below this amount the VA > > will make> > > > > > > up to> > > > > > > > > = the> > > > > > > > > > > > > $985.> > > > > > > > > > > > >> > > > > > > > > > > > > With this amount of income I could get > > Medicaid If I> > > > > > > wanted to> > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > bank. I> > > > > > > do> > > > > > > > > own my> > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > taxes. So> > > > > > > > > for now> > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > care.> > > > > This> > > > > > > does> > > > > > > > > limit> > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > >> > > > > > > > > > > > > The VA I use is a teaching medical center. > > Part of the> > > > > > > > > Dartmouth> > > > > > > > > > > > > Medical school that is rated one of the best > > medical> > > > > > > schools> > > > > > > > > in> > > > > > > > > > > the> > > > > > > > > > > > > US. Almost all of the medical centers in NH > > and VT are> > > > > > > tied to> > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > >> > > > > > > > > > > > > The main Dartmouth medical center is not far > > from me.> > > > > > > For most> > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > >> > > > > > > > > > > > > Since They are a non profit medical center > > they have> > > > > to> > > > > > > > > provide> > > > > > > > > > > care> > > > > > > > > > > > > to any one that can not pay. I did the paper > > work> > > > > and was> > > > > > > > > able to> > > > > > > > > > > > > get free care there.> > > > > > > > > > > > >> > > > > > > > > > > > > Since I have done a lot of research on PA and > > a CT> > > > > > > showed I> > > > > > > > > had> > > > > > > > > > > 2 cm> > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > did was> > > > > not> > > > > > > > > done as> > > > > > > > > > > > > what I was reading said it should be done. > > First the> > > > > test> > > > > > > > > was done> > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > taking> > > > > > > 25 MG> > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > MG> > > > > > > Potassium> > > > > > > > > > > Chloride.> > > > > > > > > > > > >> > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > range> > > > > > > 0.65-5.0> > > > > > > > > ng/> > > > > > > > > > > mL/> > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > or => > > > > 28 ng/> > > > > > > dL.> > > > > > > > > > > > >> > > > > > > > > > > > > Thinking this test wasn't done right I then > > went to> > > > > the> > > > > > > > > Dartmouth> > > > > > > > > > > > > medical center hoping to be tested off the > > meds. I> > > > > > > called an> > > > > > > > > was> > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > Endocrinology> > > > > > > > > Fellow a> > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > Osteoporosis,> > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > Disorders,> > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > >> > > > > > > > > > > > > I was tested the same day as this visit on the > > same> > > > > meds> > > > > > > as> > > > > > > > > > > before.> > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > given and> > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > >> > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > site I> > > > > found> > > > > > > this> > > > > > > > > Dr> > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > Chief,> > > > > > > > > Nephrology & > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > YASHASWINI> > > > > > > > > RANGAN> > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > Remillard.> > > > > > > > > > > > >> > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > Remillard.> > > > > > > > > Instead I> > > > > > > > > > > saw> > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > retest me> > > > > > > as> > > > > > > > > there> > > > > > > > > > > > > was nothing wrong with the way the test was > > done the> > > > > first> > > > > > > > > time.> > > > > > > > > > > > >> > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > how not> > > > > > > to do> > > > > > > > > the> > > > > > > > > > > > > test for PA.> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> >> >>

[Guest guest]

My recommendation is to do a trial of spiro first. If it works then no worries.CE Grim MDOn Jul 18, 2010, at 10:00 AM, Francis Bill SUSPECTED PA wrote:I do drive but sometimess I have problems driving. About 30 miles is my limit.My next choice for Dx would be Boston about 150 miles from me. Since I would have to stop meds Dr grim says for 6 weeks I would have to be close to the treating Dr. during that time. As I would be doing this out side of the VA. I would frist have to apply for free or reduced care at one of the Boston medical centers. Hopelul one that can deal with Conn's. As I have found out not many places that deal with Conn's. > > > >> > > > I had brain fog literally till the day after my surgery. It was the first> > > > thing I noticed that was gone. A gift from the gods it was...> > > > > > > > -- > > > > Carole Aine Langrall> > > > "A Garden of Earthly Delights"> > > > > > > > www.agardenofearthlydelights.net> > > > http://neglectedbeauty.blogspot.com/> > > > > > > > "My heart found its home long ago in the beauty, mystery, order and disorder> > > > of the flowering earth." ~Lady Bird > > > >> > >> >> > > > > > __________ NOD32 5267 (20100710) Information __________> > This message was checked by NOD32 antivirus system.> http://www.eset.com>

[Guest guest]

Did he ever work with animals or keep pets?

Or mow grass?

Smoke, drink - what'd he drink?

I don't have a questionnaire yet - just making these up as I go.

We now know that genes are highly effected by environment - maybe fortunately.

His BP may have been held down due to small frame, light weight?

I mean, you didn't measure his BP all his life. We did not have the tools then, say before 1970 - in common usage - no automatic cuffs.

Regards

Re: If you have limited income not much help for dx

You health has a lot to do with your genes. My father lived to almost 98. About age 90 his mind started going but body was still strong. He ate a lot of salt pork and lard sandwiches. His Blood presure was never high. Top number never over 110. > >> > Agree. Otherwise we would need to test all 70+ million with HTN.> > > > Best to reserve it for those who do not do well on meds or have low K.> >

[Guest guest]

It is of interest that by age 6 months we know that BP is higher if one or both of your parents have HTN-at least in the US. Also twin studies show that it is highly heritable by this same age. CE Grim MDDid he ever work with animals or keep pets?Or mow grass?Smoke, drink - what'd he drink? I don't have a questionnaire yet - just making these up as I go.We now know that genes are highly effected by environment - maybe fortunately.His BP may have been held down due to small frame, light weight? I mean, you didn't measure his BP all his life. We did not have the tools then, say before 1970 - in common usage - no automatic cuffs. Regards Re: If you have limited income not much help for dx You health has a lot to do with your genes. My father lived to almost 98. About age 90 his mind started going but body was still strong. He ate a lot of salt pork and lard sandwiches. His Blood presure was never high. Top number never over 110. > >> > Agree. Otherwise we would need to test all 70+ million with HTN.> > > > Best to reserve it for those who do not do well on meds or have low K.> >

[Guest guest]

Ah but they are listed as one of the best. Ran into this when we wanted to test Yale Medical Students using the BP Testing program we developed at UCLA and INDY. They said our students are so good they do not need to be tested. Scared the hell out of me.CE grim On Jul 18, 2010, at 11:00 AM, Francis Bill SUSPECTED PA wrote:Guess I wouldn't want to go to Yale medical center. > > > > > > > > > > > > >> > > > > > > > > > > > > > If you have limited funds then you are limited > > > as to> > > > > > > > health> > > > > > > > > > care> > > > > > > > > > > > > > choices. Due to what ever is wrong with me I > > > am unable> > > > > > > > to be> > > > > > > > > > > > > > gainfully employed. Because I didn't have > > > enough work> > > > > > > > > > credits in> > > > > > > > > > > > the> > > > > > > > > > > > > > ten years before my SX started I couldn't get > > > SSA> > > > > > > > disability.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Because I am a war time Vietnam Veteran I was > > > able to> > > > > > > > get a> > > > > > > > > > > > pension> > > > > > > > > > > > > > from the VA. This is a very limited pension plan> > > > > > that is> > > > > > > > the> > > > > > > > > > limit> > > > > > > > > > > > > > income from all sources to a set amount. The > > > current> > > > > > > > amount is> > > > > > > > > > > > $985> > > > > > > > > > > > > > a month. Any income below this amount the VA > > > will make> > > > > > > > up to> > > > > > > > > > = the> > > > > > > > > > > > > > $985.> > > > > > > > > > > > > >> > > > > > > > > > > > > > With this amount of income I could get > > > Medicaid If I> > > > > > > > wanted to> > > > > > > > > > > > > > deplete my savings. Well I can have $1500 in the> > > > > > bank. I> > > > > > > > do> > > > > > > > > > own my> > > > > > > > > > > > > > home and the 1500 would not be enough to pay the> > > > > > taxes. So> > > > > > > > > > for now> > > > > > > > > > > > > > no Medicaid.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I am a Veteran I use the VA for health > > > care.> > > > > > This> > > > > > > > does> > > > > > > > > > limit> > > > > > > > > > > > > > my being able to try to find help other places.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The VA I use is a teaching medical center. > > > Part of the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > Medical school that is rated one of the best > > > medical> > > > > > > > schools> > > > > > > > > > in> > > > > > > > > > > > the> > > > > > > > > > > > > > US. Almost all of the medical centers in NH > > > and VT are> > > > > > > > tied to> > > > > > > > > > > > > > Dartmouth.> > > > > > > > > > > > > >> > > > > > > > > > > > > > The main Dartmouth medical center is not far > > > from me.> > > > > > > > For most> > > > > > > > > > > > > > things they have some of the top Dr in the US.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since They are a non profit medical center > > > they have> > > > > > to> > > > > > > > > > provide> > > > > > > > > > > > care> > > > > > > > > > > > > > to any one that can not pay. I did the paper > > > work> > > > > > and was> > > > > > > > > > able to> > > > > > > > > > > > > > get free care there.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Since I have done a lot of research on PA and > > > a CT> > > > > > > > showed I> > > > > > > > > > had> > > > > > > > > > > > 2 cm> > > > > > > > > > > > > > tumor on left adrenal gland. The test the VA > > > did was> > > > > > not> > > > > > > > > > done as> > > > > > > > > > > > > > what I was reading said it should be done. > > > First the> > > > > > test> > > > > > > > > > was done> > > > > > > > > > > > > > two weeks after surgery. It was done while I was> > > > > > taking> > > > > > > > 25 MG> > > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG Furosemide 20 > > > MG> > > > > > > > Potassium> > > > > > > > > > > > Chloride.> > > > > > > > > > > > > >> > > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr with lab > > > range> > > > > > > > 0.65-5.0> > > > > > > > > > ng/> > > > > > > > > > > > mL/> > > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab range < > > > or => > > > > > 28 ng/> > > > > > > > dL.> > > > > > > > > > > > > >> > > > > > > > > > > > > > Thinking this test wasn't done right I then > > > went to> > > > > > the> > > > > > > > > > Dartmouth> > > > > > > > > > > > > > medical center hoping to be tested off the > > > meds. I> > > > > > > > called an> > > > > > > > > > was> > > > > > > > > > > > > > told I would see a both A Tharsan Sivakumar> > > > > > Endocrinology> > > > > > > > > > Fellow a> > > > > > > > > > > > > > Dr H Turco Practice in Adrenal Disorders,> > > > > > > > Osteoporosis,> > > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration, Thyroid> > > > > > > > Disorders,> > > > > > > > > > > > > > Transgender Hormonal Therapy.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I was tested the same day as this visit on the > > > same> > > > > > meds> > > > > > > > as> > > > > > > > > > > > before.> > > > > > > > > > > > > > with the the results RENIN ACTIVITY .8 no range> > > > > > given and> > > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I then learned about the the Am Soc of HTN > > > site I> > > > > > found> > > > > > > > this> > > > > > > > > > Dr> > > > > > > > > > > > > > listed at Dartmouth D. Remillard Section > > > Chief,> > > > > > > > > > Nephrology & > > > > > > > > > > > > > > Hypertension. Called and was told I would see Dr> > > > > > > > YASHASWINI> > > > > > > > > > RANGAN> > > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr D.> > > > > > > > Remillard.> > > > > > > > > > > > > >> > > > > > > > > > > > > > I did see Dr RANGAN however I didn't see Dr > > > Remillard.> > > > > > > > > > Instead I> > > > > > > > > > > > saw> > > > > > > > > > > > > > A Dr M. Kaneko. Was told they would not> > > > > > retest me> > > > > > > > as> > > > > > > > > > there> > > > > > > > > > > > > > was nothing wrong with the way the test was > > > done the> > > > > > first> > > > > > > > > > time.> > > > > > > > > > > > > >> > > > > > > > > > > > > > What this tells me is Dartmouth is teaching Dr > > > how not> > > > > > > > to do> > > > > > > > > > the> > > > > > > > > > > > > > test for PA.> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> > >> > >> >>

[Guest guest]

Most of the questions on our survey would not apply to people that don't have PA. If we're seriously interested in symptoms, the group could come up with a survey that could include the previously listed symptoms and others anyone would like to include. I could make duplicate surveys, post one URL here for people diagnosed with PA to do, you could post the URL for the duplicate survey on bloodpressureline for people without PA to take. We would include age and sex. I meant to mention before, 62% of respondents on our survey are 50 years of age or older. I think that would have a definite impact on some of the symptoms listed.

Not many in group have full time brain fog many have it sometimes. I do have it all the time. Have been asked to describe it. Something I really can't can't put in words to make other understand. Of course it has nothing to do with Conn's. >> I had brain fog literally till the day after my surgery. It was the first> thing I noticed that was gone. A gift from the

gods it was...> > -- > Carole Aine Langrall> "A Garden of Earthly Delights"> > www.agardenofearthl ydelights. net> http://neglectedbea uty.blogspot. com/> > "My heart found its home long ago in the beauty, mystery, order and disorder> of the flowering earth." ~Lady Bird >

-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthl ydelights. nethttp://neglectedbea uty.blogspot. com/“My heart found its home long ago in the beauty, mystery, order and disorder of the

flowering earth.†~Lady Bird

[Guest guest]

Yes but I have seen PA in a 3 yr old. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Most of the questions on our survey would not apply to people that don't have PA. If we're seriously interested in symptoms, the group could come up with a survey that could include the previously listed symptoms and others anyone would like to include. I could make duplicate surveys, post one URL here for people diagnosed with PA to do, you could post the URL for the duplicate survey on bloodpressureline for people without PA to take. We would include age and sex. I meant to mention before, 62% of respondents on our survey are 50 years of age or older. I think that would have a definite impact on some of the symptoms listed.

Not many in group have full time brain fog many have it sometimes. I do have it all the time. Have been asked to describe it. Something I really can't can't put in words to make other understand. Of course it has nothing to do with Conn's. >> I had brain fog literally till the day after my surgery. It was the first> thing I noticed that was gone. A gift from the

gods it was...> > -- > Carole Aine Langrall> "A Garden of Earthly Delights"> > www.agardenofearthl ydelights. net> http://neglectedbea uty.blogspot. com/> > "My heart found its home long ago in the beauty, mystery, order and disorder> of the flowering earth." ~Lady Bird >

-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthl ydelights. nethttp://neglectedbea uty.blogspot. com/“My heart found its home long ago in the beauty, mystery, order and disorder of the

flowering earth.†~Lady Bird

[Guest guest]

Furos and tri will increase renin. Met lower it. So u can see the problem. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Informatin the Va had was.

I was taking 25 MG Atenolol 50 MG Triamterene 60 MG Furosemide 20 MG Potassium Chloride

This test has my RENIN: 1.8 ng/mL/hr with lab range 0.65-5.0 ng/ mL/hr and SERUM ALDOS: 16 ng/dL with lab range <or=28 ng/dL.

k done a few days before test 3.5 a few days after 3.6

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > And they have not read my article.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Remind me if you have ever been tired on

> > spiro.

> > > > > > > > > > > > > >

> > > > > > > > >

[Guest guest]

But how many more pts do you injure?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

But if go to Yale, Dartmouth or Harvard you earn $1,000,000 more in your life time.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > If you have limited funds then you are

> > limited

> > > > > as to

> > > > > > > > > > health

> > > > > > > > > > > > care

> > > > > > > > > > > > > > > > choices. Due to what ever is wrong with

> > me I

> > > > > am unable

> > > > > > > > > > to be

> > > > > > > > > > > > > > > > gainfully employed. Because I didn't have

> > > > > enough work

> > > > > > > > > > > > credits in

> > > > > > > > > > > > > > the

> > > > > > > > > > > > > > > > ten years before my SX started I

> > couldn't get

> > > > > SSA

> > > > > > > > > > disability.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > Because I am a war time Vietnam Veteran

> > I was

> > > > > able to

> > > > > > > > > > get a

> > > > > > > > > > > > > > pension

> > > > > > > > > > > > > > > > from the VA. This is a very limited

> > pension plan

> > > > > > > > that is

> > > > > > > > > > the

> > > > > > > > > > > > limit

> > > > > > > > > > > > > > > > income from all sources to a set amount.

> > The

> > > > > current

> > > > > > > > > > amount is

> > > > > > > > > > > > > > $985

> > > > > > > > > > > > > > > > a month. Any income below this amount

> > the VA

> > > > > will make

> > > > > > > > > > up to

> > > > > > > > > > > > = the

> > > > > > > > > > > > > > > > $985.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > With this amount of income I could get

> > > > > Medicaid If I

> > > > > > > > > > wanted to

> > > > > > > > > > > > > > > > deplete my savings. Well I can have

> > $1500 in the

> > > > > > > > bank. I

> > > > > > > > > > do

> > > > > > > > > > > > own my

> > > > > > > > > > > > > > > > home and the 1500 would not be enough to

> > pay the

> > > > > > > > taxes. So

> > > > > > > > > > > > for now

> > > > > > > > > > > > > > > > no Medicaid.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > Since I am a Veteran I use the VA for

> > health

> > > > > care.

> > > > > > > > This

> > > > > > > > > > does

> > > > > > > > > > > > limit

> > > > > > > > > > > > > > > > my being able to try to find help other

> > places.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > The VA I use is a teaching medical center.

> > > > > Part of the

> > > > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > > > Medical school that is rated one of the

> > best

> > > > > medical

> > > > > > > > > > schools

> > > > > > > > > > > > in

> > > > > > > > > > > > > > the

> > > > > > > > > > > > > > > > US. Almost all of the medical centers in

> > NH

> > > > > and VT are

> > > > > > > > > > tied to

> > > > > > > > > > > > > > > > Dartmouth.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > The main Dartmouth medical center is not

> > far

> > > > > from me.

> > > > > > > > > > For most

> > > > > > > > > > > > > > > > things they have some of the top Dr in

> > the US.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > Since They are a non profit medical center

> > > > > they have

> > > > > > > > to

> > > > > > > > > > > > provide

> > > > > > > > > > > > > > care

> > > > > > > > > > > > > > > > to any one that can not pay. I did the

> > paper

> > > > > work

> > > > > > > > and was

> > > > > > > > > > > > able to

> > > > > > > > > > > > > > > > get free care there.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > Since I have done a lot of research on

> > PA and

> > > > > a CT

> > > > > > > > > > showed I

> > > > > > > > > > > > had

> > > > > > > > > > > > > > 2 cm

> > > > > > > > > > > > > > > > tumor on left adrenal gland. The test

> > the VA

> > > > > did was

> > > > > > > > not

> > > > > > > > > > > > done as

> > > > > > > > > > > > > > > > what I was reading said it should be done.

> > > > > First the

> > > > > > > > test

> > > > > > > > > > > > was done

> > > > > > > > > > > > > > > > two weeks after surgery. It was done

> > while I was

> > > > > > > > taking

> > > > > > > > > > 25 MG

> > > > > > > > > > > > > > > > Atenolol 50 MG Triamterene 60 MG

> > Furosemide 20

> > > > > MG

> > > > > > > > > > Potassium

> > > > > > > > > > > > > > Chloride.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > This test has my RENIN: 1.8 ng/mL/hr

> > with lab

> > > > > range

> > > > > > > > > > 0.65-5.0

> > > > > > > > > > > > ng/

> > > > > > > > > > > > > > mL/

> > > > > > > > > > > > > > > > hr and SERUM ALDOS: 16 ng/dL with lab

> > range <

> > > > > or =

> > > > > > > > 28 ng/

> > > > > > > > > > dL.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > Thinking this test wasn't done right I

> > then

> > > > > went to

> > > > > > > > the

> > > > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > > > medical center hoping to be tested off the

> > > > > meds. I

> > > > > > > > > > called an

> > > > > > > > > > > > was

> > > > > > > > > > > > > > > > told I would see a both A Tharsan

> > Sivakumar

> > > > > > > > Endocrinology

> > > > > > > > > > > > Fellow a

> > > > > > > > > > > > > > > > Dr H Turco Practice in Adrenal

> > Disorders,

> > > > > > > > > > Osteoporosis,

> > > > > > > > > > > > > > > > Pituitary Disorders, Thyroid Aspiration,

> > Thyroid

> > > > > > > > > > Disorders,

> > > > > > > > > > > > > > > > Transgender Hormonal Therapy.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > I was tested the same day as this visit

> > on the

> > > > > same

> > > > > > > > meds

> > > > > > > > > > as

> > > > > > > > > > > > > > before.

> > > > > > > > > > > > > > > > with the the results RENIN ACTIVITY .8

> > no range

> > > > > > > > given and

> > > > > > > > > > > > > > > > ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > I then learned about the the Am Soc of HTN

> > > > > site I

> > > > > > > > found

> > > > > > > > > > this

> > > > > > > > > > > > Dr

> > > > > > > > > > > > > > > > listed at Dartmouth D. Remillard

> > Section

> > > > > Chief,

> > > > > > > > > > > > Nephrology &

> > > > > > > > > > > > > > > > Hypertension. Called and was told I

> > would see Dr

> > > > > > > > > > YASHASWINI

> > > > > > > > > > > > RANGAN

> > > > > > > > > > > > > > > > Fellow Nephrology & Hypertension and Dr

> > D.

> > > > > > > > > > Remillard.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > I did see Dr RANGAN however I didn't see

> > Dr

> > > > > Remillard.

> > > > > > > > > > > > Instead I

> > > > > > > > > > > > > > saw

> > > > > > > > > > > > > > > > A Dr M. Kaneko. Was told they

> > would not

> > > > > > > > retest me

> > > > > > > > > > as

> > > > > > > > > > > > there

> > > > > > > > > > > > > > > > was nothing wrong with the way the test

> > was

> > > > > done the

> > > > > > > > first

> > > > > > > > > > > > time.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > What this tells me is Dartmouth is

> > teaching Dr

> > > > > how not

> > > > > > > > > > to do

> > > > > > > > > > > > the

> > > > > > > > > > > > > > > > test for PA.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Granted. What I meant was the influence of other existing conditions on symptoms. For instance, 46% of respondents in our survey said they had numbness or tingling of extremeties. Is this a symptom of PA or another comorbid condition? In my case I also have PAD, so is my numbness and tingling due to PA or PAD? Probably impossible to say. Diabetic neuropathy can also cause.

Not many in group have full time brain fog many have it sometimes. I do have it all the time. Have been asked to describe it. Something I really can't can't put in words to make other understand. Of course it has nothing to do with Conn's. >> I had brain fog literally till the day after my surgery. It was the first> thing I noticed that was gone. A gift from the gods it was...> > -- > Carole Aine Langrall> "A Garden of Earthly Delights"> > www.agardenofearthl ydelights. net> http://neglectedbea uty.blogspot. com/> > "My heart found its home long ago in the beauty, mystery, order and disorder> of the flowering earth." ~Lady Bird >

-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthl ydelights. nethttp://neglectedbea uty.blogspot. com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.†~Lady Bird

[Guest guest]

You want to ask all if they have ever had to take K. Go back as far as you can and list age and cause of death as best the family recalls. There is an NIH site that will help .See below under 5 Welcome1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Jul 18, 2010, at 12:17 PM, Francis Bill SUSPECTED PA wrote:I am working on getting my family history together. I have 8 sisters and 3 brothers. Some have high blood pressure. At least one has low blood pressure. My mother had High blood pressure but also was bi-poler. Some meds can cause increase in B/P. I have one sister that is dashing so far no b/P meds. Most have weight problems as well. > > > >> > > > Agree. Otherwise we would need to test all 70+ million with HTN.> > > >> > > > Best to reserve it for those who do not do well on meds or have > > low K.> > > >> >> >> >>

[Guest guest]

There is a familial form of adenomas PA type 2 as I recall. It is discussed in my article. I have never seen two family members with this and we looked very hard at Indy. I think Dr. Conn had a pair of brothers but never published as such.It is conceivable to me that if depression is associated with bursts of ACTH then this should be considered a possible driving force for the hyperplasia and adenoma(s). Same for stress response. Esp when combined with a low sodium diet.You might want to do a pubmed on Whitworth J from Australia who has shown that ACTH infusion can cause HTN in humans, sheep and maybe rats.CE Grim MDOn Jul 18, 2010, at 2:10 PM, Francis Bill SUSPECTED PA wrote:One of my interests is If adenomas them selves are heredity. Not that they all cause the same problems. Since there seems to be a link between depression and adenomas and there is a history of depression and other mental illness in family can the cause be adenomas. > > > > > >> > > > > > Agree. Otherwise we would need to test all 70+ million with > > HTN.> > > > > >> > > > > > Best to reserve it for those who do not do well on meds or > > have> > > > low K.> > > > > >> > > >> > > >> > > >> > >> >> >> >>

[Guest guest]

Right-I have found numbness and tingling a Sx of advanced PA mostly. The only way we know if this is a good Sx to use in getting to the Dx is to compare it in many other pts with HTN not due to PA.So we need to develop a complete Hx that will ask all the needed questions and then have everyone with HTN fill it out. I have sent some to our right hand person working on this. So if any out there have a list of questions "I wish my Drs had asked me early on" that would be a help.I think Bill has been keeping a list.Granted. What I meant was the influence of other existing conditions on symptoms. For instance, 46% of respondents in our survey said they had numbness or tingling of extremeties. Is this a symptom of PA or another comorbid condition? In my case I also have PAD, so is my numbness and tingling due to PA or PAD? Probably impossible to say. Diabetic neuropathy can also cause. Not many in group have full time brain fog many have it sometimes. I do have it all the time. Have been asked to describe it. Something I really can't can't put in words to make other understand. Of course it has nothing to do with Conn's. >> I had brain fog literally till the day after my surgery. It was the first> thing I noticed that was gone. A gift from the gods it was...> > -- > Carole Aine Langrall> "A Garden of Earthly Delights"> > www.agardenofearthl ydelights. net> http://neglectedbea uty.blogspot. com/> > "My heart found its home long ago in the beauty, mystery, order and disorder> of the flowering earth." ~Lady Bird >-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthl ydelights. nethttp://neglectedbea uty.blogspot. com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.” ~Lady Bird

[Guest guest]



Wow - that's interesting!

Re: Re: If you have limited income not much help for dx

Yes but I have seen PA in a 3 yr old. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jul 18, 2010, at 1:07 PM, a Hall <shahall> wrote:

Most of the questions on our survey would not apply to people that don't have PA. If we're seriously interested in symptoms, the group could come up with a survey that could include the previously listed symptoms and others anyone would like to include. I could make duplicate surveys, post one URL here for people diagnosed with PA to do, you could post the URL for the duplicate survey on bloodpressureline for people without PA to take. We would include age and sex. I meant to mention before, 62% of respondents on our survey are 50 years of age or older. I think that would have a definite impact on some of the symptoms listed.

Not many in group have full time brain fog many have it sometimes. I do have it all the time. Have been asked to describe it. Something I really can't can't put in words to make other understand. Of course it has nothing to do with Conn's. >> I had brain fog literally till the day after my surgery. It was the first> thing I noticed that was gone. A gift from the gods it was...> > -- > Carole Aine Langrall> "A Garden of Earthly Delights"> > www.agardenofearthl ydelights. net> http://neglectedbea uty.blogspot. com/> > "My heart found its home long ago in the beauty, mystery, order and disorder> of the flowering earth." ~Lady Bird >

-- Carole Aine Langrall"A Garden of Earthly Delights"www.agardenofearthl ydelights. nethttp://neglectedbea uty.blogspot. com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.†~Lady Bird

[Guest guest]

Think I have probably been to a few of

those students!

Charlotte

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sent: Sunday, July 18, 2010 12:49

PM

To: hyperaldosteronism

Subject: Re:

Re: If you have limited income not much help for dx

Ah but

they are listed as one of the best. Ran into this when we wanted to test

Yale Medical Students using the BP Testing program we developed at UCLA and

INDY. They said our students are so good they do not need to be tested. Scared

the hell out of me.

CE grim

On Jul 18, 2010, at 11:00 AM, Francis Bill SUSPECTED PA wrote:

Guess

I wouldn't want to go to Yale medical center.

> > > > > > > > > > > > >

> > > > > > > > > > > > > > If you

have limited funds then you are limited

> > > as to

> > > > > > > > health

> > > > > > > > > > care

> > > > > > > > > > > > > > choices.

Due to what ever is wrong with me I

> > > am unable

> > > > > > > > to be

> > > > > > > > > > > > > > gainfully

employed. Because I didn't have

> > > enough work

> > > > > > > > > > credits in

> > > > > > > > > > > > the

> > > > > > > > > > > > > > ten years

before my SX started I couldn't get

> > > SSA

> > > > > > > > disability.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Because I

am a war time Vietnam Veteran I was

> > > able to

> > > > > > > > get a

> > > > > > > > > > > > pension

> > > > > > > > > > > > > > from the

VA. This is a very limited pension plan

> > > > > > that is

> > > > > > > > the

> > > > > > > > > > limit

> > > > > > > > > > > > > > income

from all sources to a set amount. The

> > > current

> > > > > > > > amount is

> > > > > > > > > > > > $985

> > > > > > > > > > > > > > a month.

Any income below this amount the VA

> > > will make

> > > > > > > > up to

> > > > > > > > > > = the

> > > > > > > > > > > > > > $985.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > With this

amount of income I could get

> > > Medicaid If I

> > > > > > > > wanted to

> > > > > > > > > > > > > > deplete

my savings. Well I can have $1500 in the

> > > > > > bank. I

> > > > > > > > do

> > > > > > > > > > own my

> > > > > > > > > > > > > > home and

the 1500 would not be enough to pay the

> > > > > > taxes. So

> > > > > > > > > > for now

> > > > > > > > > > > > > > no

Medicaid.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Since I

am a Veteran I use the VA for health

> > > care.

> > > > > > This

> > > > > > > > does

> > > > > > > > > > limit

> > > > > > > > > > > > > > my being

able to try to find help other places.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > The VA I

use is a teaching medical center.

> > > Part of the

> > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > Medical

school that is rated one of the best

> > > medical

> > > > > > > > schools

> > > > > > > > > > in

> > > > > > > > > > > > the

> > > > > > > > > > > > > > US. Almost

all of the medical centers in NH

> > > and VT are

> > > > > > > > tied to

> > > > > > > > > > > > > > Dartmouth.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > The main Dartmouth medical center

is not far

> > > from me.

> > > > > > > > For most

> > > > > > > > > > > > > > things

they have some of the top Dr in the US.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Since

They are a non profit medical center

> > > they have

> > > > > > to

> > > > > > > > > > provide

> > > > > > > > > > > > care

> > > > > > > > > > > > > > to any

one that can not pay. I did the paper

> > > work

> > > > > > and was

> > > > > > > > > > able to

> > > > > > > > > > > > > > get free

care there.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Since I

have done a lot of research on PA and

> > > a CT

> > > > > > > > showed I

> > > > > > > > > > had

> > > > > > > > > > > > 2 cm

> > > > > > > > > > > > > > tumor on

left adrenal gland. The test the VA

> > > did was

> > > > > > not

> > > > > > > > > > done as

> > > > > > > > > > > > > > what I

was reading said it should be done.

> > > First the

> > > > > > test

> > > > > > > > > > was done

> > > > > > > > > > > > > > two weeks

after surgery. It was done while I was

> > > > > > taking

> > > > > > > > 25 MG

> > > > > > > > > > > > > > Atenolol

50 MG Triamterene 60 MG Furosemide 20

> > > MG

> > > > > > > > Potassium

> > > > > > > > > > > > Chloride.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > This test

has my RENIN: 1.8 ng/mL/hr with lab

> > > range

> > > > > > > > 0.65-5.0

> > > > > > > > > > ng/

> > > > > > > > > > > > mL/

> > > > > > > > > > > > > > hr and

SERUM ALDOS: 16 ng/dL with lab range <

> > > or =

> > > > > > 28 ng/

> > > > > > > > dL.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Thinking

this test wasn't done right I then

> > > went to

> > > > > > the

> > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > medical

center hoping to be tested off the

> > > meds. I

> > > > > > > > called an

> > > > > > > > > > was

> > > > > > > > > > > > > > told I

would see a both A Tharsan Sivakumar

> > > > > > Endocrinology

> > > > > > > > > > Fellow a

> > > > > > > > > > > > > > Dr H

Turco Practice in Adrenal Disorders,

> > > > > > > > Osteoporosis,

> > > > > > > > > > > > > > Pituitary

Disorders, Thyroid Aspiration, Thyroid

> > > > > > > > Disorders,

> > > > > > > > > > > > > >

Transgender Hormonal Therapy.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > I was

tested the same day as this visit on the

> > > same

> > > > > > meds

> > > > > > > > as

> > > > > > > > > > > > before.

> > > > > > > > > > > > > > with the

the results RENIN ACTIVITY .8 no range

> > > > > > given and

> > > > > > > > > > > > > >

ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > I then

learned about the the Am Soc of HTN

> > > site I

> > > > > > found

> > > > > > > > this

> > > > > > > > > > Dr

> > > > > > > > > > > > > > listed at

Dartmouth D. Remillard Section

> > > Chief,

> > > > > > > > > > Nephrology &

> > > > > > > > > > > > > >

Hypertension. Called and was told I would see Dr

> > > > > > > > YASHASWINI

> > > > > > > > > > RANGAN

> > > > > > > > > > > > > > Fellow

Nephrology & Hypertension and Dr D.

> > > > > > > > Remillard.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > I did see

Dr RANGAN however I didn't see Dr

> > > Remillard.

> > > > > > > > > > Instead I

> > > > > > > > > > > > saw

> > > > > > > > > > > > > > A Dr

M. Kaneko. Was told they would not

> > > > > > retest me

> > > > > > > > as

> > > > > > > > > > there

> > > > > > > > > > > > > > was

nothing wrong with the way the test was

> > > done the

> > > > > > first

> > > > > > > > > > time.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > What this

tells me is Dartmouth

is teaching Dr

> > > how not

> > > > > > > > to do

> > > > > > > > > > the

> > > > > > > > > > > > > > test for

PA.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

Lifetime? Try year or so.

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PA

Sent: Sunday, July 18, 2010 1:44

PM

To: hyperaldosteronism

Subject: Re:

If you have limited income not much help for dx

But if go to Yale, Dartmouth or Harvard you earn $1,000,000 more

in your life time.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

If you have limited funds then you are

> > limited

> > > > > as to

> > > > > > > > > > health

> > > > > > > > > > > > care

> > > > > > > > > > > > > > > >

choices. Due to what ever is wrong with

> > me I

> > > > > am unable

> > > > > > > > > > to be

> > > > > > > > > > > > > > > >

gainfully employed. Because I didn't have

> > > > > enough work

> > > > > > > > > > > > credits in

> > > > > > > > > > > > > > the

> > > > > > > > > > > > > > > >

ten years before my SX started I

> > couldn't get

> > > > > SSA

> > > > > > > > > > disability.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

Because I am a war time Vietnam Veteran

> > I was

> > > > > able to

> > > > > > > > > > get a

> > > > > > > > > > > > > > pension

> > > > > > > > > > > > > > > >

from the VA. This is a very limited

> > pension plan

> > > > > > > > that is

> > > > > > > > > > the

> > > > > > > > > > > > limit

> > > > > > > > > > > > > > > >

income from all sources to a set amount.

> > The

> > > > > current

> > > > > > > > > > amount is

> > > > > > > > > > > > > > $985

> > > > > > > > > > > > > > > >

a month. Any income below this amount

> > the VA

> > > > > will make

> > > > > > > > > > up to

> > > > > > > > > > > > = the

> > > > > > > > > > > > > > > >

$985.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

With this amount of income I could get

> > > > > Medicaid If I

> > > > > > > > > > wanted to

> > > > > > > > > > > > > > > >

deplete my savings. Well I can have

> > $1500 in the

> > > > > > > > bank. I

> > > > > > > > > > do

> > > > > > > > > > > > own my

> > > > > > > > > > > > > > > >

home and the 1500 would not be enough to

> > pay the

> > > > > > > > taxes. So

> > > > > > > > > > > > for now

> > > > > > > > > > > > > > > >

no Medicaid.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

Since I am a Veteran I use the VA for

> > health

> > > > > care.

> > > > > > > > This

> > > > > > > > > > does

> > > > > > > > > > > > limit

> > > > > > > > > > > > > > > >

my being able to try to find help other

> > places.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

The VA I use is a teaching medical center.

> > > > > Part of the

> > > > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > > >

Medical school that is rated one of the

> > best

> > > > > medical

> > > > > > > > > > schools

> > > > > > > > > > > > in

> > > > > > > > > > > > > > the

> > > > > > > > > > > > > > > >

US. Almost all of the medical centers in

> > NH

> > > > > and VT are

> > > > > > > > > > tied to

> > > > > > > > > > > > > > > >

Dartmouth.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

The main Dartmouth

medical center is not

> > far

> > > > > from me.

> > > > > > > > > > For most

> > > > > > > > > > > > > > > >

things they have some of the top Dr in

> > the US.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

Since They are a non profit medical center

> > > > > they have

> > > > > > > > to

> > > > > > > > > > > > provide

> > > > > > > > > > > > > > care

> > > > > > > > > > > > > > > >

to any one that can not pay. I did the

> > paper

> > > > > work

> > > > > > > > and was

> > > > > > > > > > > > able to

> > > > > > > > > > > > > > > >

get free care there.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

Since I have done a lot of research on

> > PA and

> > > > > a CT

> > > > > > > > > > showed I

> > > > > > > > > > > > had

> > > > > > > > > > > > > > 2 cm

> > > > > > > > > > > > > > > >

tumor on left adrenal gland. The test

> > the VA

> > > > > did was

> > > > > > > > not

> > > > > > > > > > > > done as

> > > > > > > > > > > > > > > >

what I was reading said it should be done.

> > > > > First the

> > > > > > > > test

> > > > > > > > > > > > was done

> > > > > > > > > > > > > > > >

two weeks after surgery. It was done

> > while I was

> > > > > > > > taking

> > > > > > > > > > 25 MG

> > > > > > > > > > > > > > > >

Atenolol 50 MG Triamterene 60 MG

> > Furosemide 20

> > > > > MG

> > > > > > > > > > Potassium

> > > > > > > > > > > > > > Chloride.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

This test has my RENIN: 1.8 ng/mL/hr

> > with lab

> > > > > range

> > > > > > > > > > 0.65-5.0

> > > > > > > > > > > > ng/

> > > > > > > > > > > > > > mL/

> > > > > > > > > > > > > > > >

hr and SERUM ALDOS: 16 ng/dL with lab

> > range <

> > > > > or =

> > > > > > > > 28 ng/

> > > > > > > > > > dL.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

Thinking this test wasn't done right I

> > then

> > > > > went to

> > > > > > > > the

> > > > > > > > > > > > Dartmouth

> > > > > > > > > > > > > > > >

medical center hoping to be tested off the

> > > > > meds. I

> > > > > > > > > > called an

> > > > > > > > > > > > was

> > > > > > > > > > > > > > > >

told I would see a both A Tharsan

> > Sivakumar

> > > > > > > > Endocrinology

> > > > > > > > > > > > Fellow a

> > > > > > > > > > > > > > > >

Dr H Turco Practice in Adrenal

> > Disorders,

> > > > > > > > > > Osteoporosis,

> > > > > > > > > > > > > > > >

Pituitary Disorders, Thyroid Aspiration,

> > Thyroid

> > > > > > > > > > Disorders,

> > > > > > > > > > > > > > > >

Transgender Hormonal Therapy.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

I was tested the same day as this visit

> > on the

> > > > > same

> > > > > > > > meds

> > > > > > > > > > as

> > > > > > > > > > > > > > before.

> > > > > > > > > > > > > > > >

with the the results RENIN ACTIVITY .8

> > no range

> > > > > > > > given and

> > > > > > > > > > > > > > > >

ALDOSTERONE-MAYO 5.5 range <=21.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

I then learned about the the Am Soc of HTN

> > > > > site I

> > > > > > > > found

> > > > > > > > > > this

> > > > > > > > > > > > Dr

> > > > > > > > > > > > > > > >

listed at Dartmouth D. Remillard

> > Section

> > > > > Chief,

> > > > > > > > > > > > Nephrology &

> > > > > > > > > > > > > > > >

Hypertension. Called and was told I

> > would see Dr

> > > > > > > > > > YASHASWINI

> > > > > > > > > > > > RANGAN

> > > > > > > > > > > > > > > >

Fellow Nephrology & Hypertension and Dr

> > D.

> > > > > > > > > > Remillard.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

I did see Dr RANGAN however I didn't see

> > Dr

> > > > > Remillard.

> > > > > > > > > > > > Instead I

> > > > > > > > > > > > > > saw

> > > > > > > > > > > > > > > >

A Dr M. Kaneko. Was told they

> > would not

> > > > > > > > retest me

> > > > > > > > > > as

> > > > > > > > > > > > there

> > > > > > > > > > > > > > > >

was nothing wrong with the way the test

> > was

> > > > > done the

> > > > > > > > first

> > > > > > > > > > > > time.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

What this tells me is Dartmouth

is

> > teaching Dr

> > > > > how not

> > > > > > > > > > to do

> > > > > > > > > > > > the

> > > > > > > > > > > > > > > >

test for PA.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

The 80% is because they have not been well tested IMHO.CE Grim MDOn Jul 18, 2010, at 2:59 PM, Francis Bill SUSPECTED PA wrote:There seems to a lot of information on Pheochromocytomas runing in familes. To me the 80% on non functioning adenomas seem to high. > > > > > > > >> > > > > > > > Agree. Otherwise we would need to test all 70+ million > > with> > > > HTN.> > > > > > > >> > > > > > > > Best to reserve it for those who do not do well on meds or> > > > have> > > > > > low K.> > > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> > >> >> >> >>

[Guest guest]

Hey Carole,

You mentioned you were doubled over in

kidney pain at one time in your post.  Do you remember if you were on a bp med

and if so what type?  I have found that I get kidney pain on certain bp meds,

like arb’s and bb’s but not so much with ccb’s.

Charlotte Zahnd

Nefertuti

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Carole Langrall

Sent: Saturday, July 17, 2010 2:01

PM

To: hyperaldosteronism

Subject: Re:

Re: If you have limited income not much help for dx

On Sat, Jul 17, 2010 at 1:48 PM, Francis Bill SUSPECTED PA <georgewbill> wrote:

This information on Conn's is the standard that you see on many

sites.

>

> > FrancisBill,

> >

> > I was reading your email and wanted to tell you I am sorry you have

> > to deal with such dismissive doctoring. I've been there, believe me.

> > After I read the part about you going to the Dartmouth Medical

> > Center, I remembered something I read from thier web-site when I

> > first got Conn's.

I've listed the link below so people can see what

> > an incomplete description of Conn's

looks like.

> >

> > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402

> >

> > When I saw Dartmouth/Hitchcocks Medical Center's description of

the

> > symptoms of Conn's,

I knew something was wrong. Here's their direct

> > quote:

> >

> > What are the signs of Conn's

disease?

> >

> > High blood pressure (hypertension) is often the only symptom of

> > Conn's

disease. In some cases, the condition can lower the level of

> > the mineral potassium in a patient's blood. This can lead to muscle

> > weakness, headaches, and the passing of large amounts of urine.

> >

> > Truly this is wrong. While they added the other conditions at the

> > end, at the time I read this I was doubled over in kidney pain, had

> > horrible brain-fog, and migraines. It would have helped knowing

> > these symptoms I was experiencing were legitimate and a result of

> > the adrenal adenoma. I had to learn this by perusing through miles

> > of other sites, then by luck I discovered the NORD and Yahoo group.

> > And for the record, Conn's

is a disorder marked by lowered potassium

> > to due an over-production of potassium. DHMC...unbelievable how

> > incomplete their research is on this subject.

> >

> > My point for writing you this--- I agree with everything you are

> > saying, in particular your last sentence. What this disease needs is

> > for the A.M.A. and American Society of Endo's to reinforce the

> > symptom guidelines and to test for it if you are diagnosed with

> > hypertension without reason. A CBC is supposed to be ordered when

> > this happens and if potassium levels are low-Conn's SHOULD BE

> > suspected. As we all know, this is not happening. So I wrote Dr. OZ

> > about this because I am so frustrated and saddened to see people in

> > this site suffering from delayed diagnosis and a general lack of

> > expertise by their endocrinologists. I don't know what will happen,

> > but it sure felt good to put in in writing with the intention to

> > help others become aware of this debilitating disease.

> >

> > Wish you well....Flower Spy

> >

> >

> >

> >

>

--

Carole Aine Langrall

" A Garden of Earthly Delights "

www.agardenofearthlydelights.net

http://neglectedbeauty.blogspot.com/

“My heart found its home long ago in the beauty, mystery, order and disorder of

the flowering earth.” ~Lady Bird

[Guest guest]

Hi Charlotte~I was on Spiro-diuretic and Nifedipine- calcium channel blocker. I also took Topomax for migraines and Potassium horse pill supplements during the day. They had me on estrogen/hormones and something else as I went through early menopause. It was tough keeping track of them all! I am no longer on any meds now.

Before surgery--I had been on the HP meds for years, but they switched my diuretic once Conn's was diagnosed. The kidney pain was most prevalent the last year I had Conn's. I was urinating 5-6 times a night-seriously. My urine was darker and more concentrated and it became painful as it was voluminous. I was really sick that last year. Whether the drugs caused the brain fog or whatever, I'll never know- but I do know the tumor caused everything to break down in my body, especially the last two years. Hope this helps.

Are you a candidate for surgery?Carole

 

Hey Carole,

 

You mentioned you were doubled over in

kidney pain at one time in your post.  Do you remember if you were on a bp med

and if so what type?  I have found that I get kidney pain on certain bp meds,

like arb’s and bb’s but not so much with ccb’s.

 

Charlotte Zahnd

Nefertuti

 

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Carole Langrall

Sent: Saturday, July 17, 2010 2:01

PM

To: hyperaldosteronism

Subject: Re:

Re: If you have limited income not much help for dx

 

 

 

 

This information on Conn's is the standard that you see on many

sites.

>

> > FrancisBill,

> >

> > I was reading your email and wanted to tell you I am sorry you have

> > to deal with such dismissive doctoring. I've been there, believe me.

> > After I read the part about you going to the Dartmouth Medical

> > Center, I remembered something I read from thier web-site when I

> > first got Conn's.

I've listed the link below so people can see what

> > an incomplete description of Conn's

looks like.

> >

> > http://www.dhmc.org/webpage.cfm?site_id=2 & org_id=597 & gsec_id=34389 & sec_id=34389 & item_id=34402

> >

> > When I saw Dartmouth/Hitchcocks Medical Center's description of

the

> > symptoms of Conn's,

I knew something was wrong. Here's their direct

> > quote:

> >

> > What are the signs of Conn's

disease?

> >

> > High blood pressure (hypertension) is often the only symptom of

> > Conn's

disease. In some cases, the condition can lower the level of

> > the mineral potassium in a patient's blood. This can lead to muscle

> > weakness, headaches, and the passing of large amounts of urine.

> >

> > Truly this is wrong. While they added the other conditions at the

> > end, at the time I read this I was doubled over in kidney pain, had

> > horrible brain-fog, and migraines. It would have helped knowing

> > these symptoms I was experiencing were legitimate and a result of

> > the adrenal adenoma. I had to learn this by perusing through miles

> > of other sites, then by luck I discovered the NORD and Yahoo group.

> > And for the record, Conn's

is a disorder marked by lowered potassium

> > to due an over-production of potassium. DHMC...unbelievable how

> > incomplete their research is on this subject.

> >

> > My point for writing you this--- I agree with everything you are

> > saying, in particular your last sentence. What this disease needs is

> > for the A.M.A. and American Society of Endo's to reinforce the

> > symptom guidelines and to test for it if you are diagnosed with

> > hypertension without reason. A CBC is supposed to be ordered when

> > this happens and if potassium levels are low-Conn's SHOULD BE

> > suspected. As we all know, this is not happening. So I wrote Dr. OZ

> > about this because I am so frustrated and saddened to see people in

> > this site suffering from delayed diagnosis and a general lack of

> > expertise by their endocrinologists. I don't know what will happen,

> > but it sure felt good to put in in writing with the intention to

> > help others become aware of this debilitating disease.

> >

> > Wish you well....Flower Spy

> >

> >

> >

> >

>

--

Carole Aine Langrall

" A Garden of Earthly Delights "

www.agardenofearthlydelights.net

http://neglectedbeauty.blogspot.com/

“My heart found its home long ago in the beauty, mystery, order and disorder of

the flowering earth.”  ~Lady Bird

-- Carole Aine Langrall " A Garden of Earthly Delights " www.agardenofearthlydelights.net

http://neglectedbeauty.blogspot.com/“My heart found its home long ago in the beauty, mystery, order and disorder of the flowering earth.”  ~Lady Bird