Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi! I'm from Manchester in the North West of England. I posted my introduction on 8th June 2006, but at the time I wasn't sure whether I had CMT or not and was waiting to see a neurologist. I went to see him yesterday and he thinks I have " some form of HMSN " - he did not seem to have heard of CMT, although he seemed to know his stuff and gave me a thorough examination. He now wants me to have electrical nerve stimulation tests (I presume these will be an NCV and EMG), so I am waiting for appointment to have these done, although he did say there was a long waiting list. I just have a couple of questions which I hope someone can answer. He said that the reflexes in my knees were normal which is unusual for someone who has HMSN. Does anyone else with CMT have normal reflexes? Also, I have read in various posts that muscle cramps are a common feature of CMT, but I don't seem to get these. I get the crawling feeling in my legs at night when I finally sit down and my legs below the knee ache and feel like they are waking up after going to sleep, as though the circulation isn't quite there. Anyone else experience this? If anyone can give me any information regarding this, I'd be very grateful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 , HMSN is also known as CMT. http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html As for reflexes, well my doc checked them last year and I have reflexes now. But, most of my life, docs could NOT get any reflexes from my legs. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi , CMT is the same thing as HSMN. CMT stands for the name (Charcot-Marie-Tooth) of the people who founded it. HSMN is Hereditary Sensor Motor Neuropathy which explains the neuropathy problem we have. I'm sure Gretchen can explain this in better terms. I have normal reflexes which puzzle doctors. I'm sure the tingling your getting below the knees at night, is called Restless Leg Syndrome. I get muscle cramps and various posts from here mentioned it. My theory the cramps are from CMT, because the muscles aren't doing what they're suppose to. Anyway, good luck with your doctors tests. Debbie Quote Link to comment Share on other sites More sharing options...
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