Guest guest Posted August 20, 2007 Report Share Posted August 20, 2007 Hi Tim and Sandy, hope your little lad is doing good and still improving. We have just purchased a vitaris 320 HBOT machine. My Mrs is having panic attacks about it! Have got it all set up and had a go in it and it seems to be working fine. I was wondering what you do about the ear pressure for your lad. Its going to be difficult to teach Dan to pinch his nose and blow threw his nose to re pressurise his ears. I was wondering if you have any time if my Mrs could ask you about your experiences with it. Our telephone number is 0 or 07977141198 if you get any spare time. Bye for now. dave and Angie in Birmingham Reply-To: Autism-Biomedical-Europe To: Autism-Biomedical-Europe Subject: Re: Allergy ideas? (sorry a bit long)Date: Mon, 20 Aug 2007 09:30:06 -0000 Dear friends,Thanks so very much everyone for these posts and for emails too - I couldn't have wished for more help and ideas. They really are great! I'm looking into them all. It really gives me optimism about Eddie's allergies :-) Best wishes,Sandy> >> > Hi everyone,> > > > Sorry this is a bit long. Eddie and I had a really really rotten > day > > attempting NAET. We had a really fabulous day yesterday - he is > so > > improved - saying "hello" and "bye-bye" to people. This is so > > significant for us - Eddie has had such huge problems with > anxieties > > in the past. We're in a very strange place now - he appears > fairly > > normal - I can't see anyone giving a diagnosis on his good days > now > > and he was very autistic and early onset too. What made yesterday > so > > great was that he had a conversation with the librarian while he > > waited for me to fill out the forms. Not so long back we couldn't > go > > anywhere at all - and especially not the library. We read 4 > stories > > and he had a good look around and really enjoyed everything - even > > did the little quiz and took home a picture to colour. Just > amazing.> > > > But the downs after the ups are really hard. I really feel it's > > unfair to have to try out therapies rather than spend time just > > playing and having fun BUT Eddie is anaphylactic to wheat and egg > > white and very allergic to - well most of the planet. It is so > hard > > just keeping him safe - he is like a peanut allergic child but > it's > > wheat and egg white that can kill him - every biscuit, pizza, bit > of > > play doh is absurdly dangerous. Wheat is so pervasive - but I > guess > > you all know that! So we really have to keep trying everything to > > help Eddie heal.> > > > So driving a long long way to the nearest NAET practitioner and it > > going so badly was really sad (he just didn't like the place or > > anything about it - really awful - lots of pitying looks etc.). > We > > have also tried looking into low does immunotherapy at Breakspear -> > > but that's so far away too and he's less ready for that than > NAET. > > Would really love any suggestions on ideas for helping allergies. > We > > are well into DAN! and Yasko too. The fact that Eddie can no > longer > > tolerate colostrum or transfer factor doesn't help.> > > > I'm thinking about having a go at somehow learning NAET myself - > we > > have got the books. But not sure if this will be the best > investment > > in our time? Any ideas at all (no matter how wacky) with allergy > > interventions would really be welcome. > > > > Best wishes,> > Sandy> >> Got a favourite clothes shop, bar or restaurant? Share your local knowledge with BackOfMyHand.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2007 Report Share Posted August 20, 2007 Hi Dave, I'll give you a call tonight. But we started just by sitting in it open (a big clip is handy for holding the cover back) and reading a story - just to get him comfy. We went up VERY slowly at first and still go slow for me (about 15mins to pressure especially if there has been a gap of a few days). Speak to you soon, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Hi Sandy, thanks for phoning and talking to angie, Dan did his first 40 minute session tonight, he fell asleep after about 10 minutes and we took about 15 minutes either side of the 40 to increase and decrease the pressure. Going slow seems to make a big difference as far as ear drum pain goes. We will let you know how we get on. Thanks again. Dave Reply-To: Autism-Biomedical-Europe To: Autism-Biomedical-Europe Subject: Re: Tim and sandyDate: Mon, 20 Aug 2007 16:12:56 -0000 Hi Dave,I'll give you a call tonight.But we started just by sitting in it open (a big clip is handy for holding the cover back) and reading a story - just to get him comfy. We went up VERY slowly at first and still go slow for me (about 15mins to pressure especially if there has been a gap of a few days).Speak to you soon,Sandy The next generation of Hotmail is here - Windows Live Hotmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hi Sandy there is some info on mb12 valtrex group tonight on high dose vit a helping with food allergy.im sorry i cant transfer the info over im not a tecky!! im afraid!! its very interesting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi that its really nice to hear that Eddie is doing so well. Did you buy a rife machine. I was looking at a few but to be truthful thought it was a little mad but very interesting all the same. There was one I was looking at from a company called resinant light in canada. I hear also you have a web site could you send me the address I would love to see it. Hope you are both doing well. Take care dave To: Autism-Biomedical-Europe From: sandyandtim@...Date: Tue, 19 Feb 2008 18:52:12 +0000Subject: Re: LED cold (slow) Laser Therapy for autism Hi Natasa,This sounds really interesting. We've not looked at all at laser therapy. I've had a bit of a search but haven't found too much solid infohttp://www.healing.org/only-7.html... Found it - just remembered the electrotherapy website - I think this is really well done - wish I could attend their university module on the subject of electrotherapy healing ..Here's the section on lasershttp://www.electrotherapy.org/modalities/laser.htmandhttp://www.electrotherapy.org/modalities/laser2.htmWe'd be really interested to know what you think about lasers and neurofeedback too (we just haven't really had any time to do much more than skim a couple of books on the latter).We think rifing is having an effect - Eddie is certainly rashing then showing gains. Here's a recent post from the lyme-rife group - it's just a short interview - the video mentions lasers.---------------Fox News reports the effectiveness of rife technology:http://tinyurl.com/3x2vymThere may be a 30 second commercial before the video plays; just keepwatching.Thanks,, http://www.lymebook.com----------------Best wishes,Sandy>> This is something we are looking into and very interested to hear from > others - I have located a couple of practitioners near us (south> London) but not sure what to check for before booking appointment....> both of those I found are chiropractices, doing acupuncture, also> something called Empulse (anyone heard?)> > My understanding that there are smaller Cold Laser devices for home-use > as well, but sound awfully expensive... and I would feel more > comfortable starting at a practice with someone who has more experience > with this.> > here is a bit about the treatment (I can post loads more if anyone> interested)> http://www.wimbledonclinic.co.uk/diagnostic_soft_laser_therapy.asp> > this is different but also intriguing> http://www.wimbledonclinic.co.uk/diagnostic_brain_frequency_analysis.asp> > > tia> Natasa> She said what? About who? Shameful celebrity quotes on Search Star! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi that its really nice to hear that Eddie is doing so well. Did you buy a rife machine. I was looking at a few but to be truthful thought it was a little mad but very interesting all the same. There was one I was looking at from a company called resinant light in canada. I hear also you have a web site could you send me the address I would love to see it. Hope you are both doing well. Take care dave To: Autism-Biomedical-Europe From: sandyandtim@...Date: Tue, 19 Feb 2008 18:52:12 +0000Subject: Re: LED cold (slow) Laser Therapy for autism Hi Natasa,This sounds really interesting. We've not looked at all at laser therapy. I've had a bit of a search but haven't found too much solid infohttp://www.healing.org/only-7.html... Found it - just remembered the electrotherapy website - I think this is really well done - wish I could attend their university module on the subject of electrotherapy healing ..Here's the section on lasershttp://www.electrotherapy.org/modalities/laser.htmandhttp://www.electrotherapy.org/modalities/laser2.htmWe'd be really interested to know what you think about lasers and neurofeedback too (we just haven't really had any time to do much more than skim a couple of books on the latter).We think rifing is having an effect - Eddie is certainly rashing then showing gains. Here's a recent post from the lyme-rife group - it's just a short interview - the video mentions lasers.---------------Fox News reports the effectiveness of rife technology:http://tinyurl.com/3x2vymThere may be a 30 second commercial before the video plays; just keepwatching.Thanks,, http://www.lymebook.com----------------Best wishes,Sandy>> This is something we are looking into and very interested to hear from > others - I have located a couple of practitioners near us (south> London) but not sure what to check for before booking appointment....> both of those I found are chiropractices, doing acupuncture, also> something called Empulse (anyone heard?)> > My understanding that there are smaller Cold Laser devices for home-use > as well, but sound awfully expensive... and I would feel more > comfortable starting at a practice with someone who has more experience > with this.> > here is a bit about the treatment (I can post loads more if anyone> interested)> http://www.wimbledonclinic.co.uk/diagnostic_soft_laser_therapy.asp> > this is different but also intriguing> http://www.wimbledonclinic.co.uk/diagnostic_brain_frequency_analysis.asp> > > tia> Natasa> She said what? About who? Shameful celebrity quotes on Search Star! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi Dave, Sorry for taking so long to reply. Rifing sounded quite mad to us at first but we have been amazed that it works. There are issues about what machine Rife actually used and what is the penetration - but the resonant vibration is wholly effective. There are now similar approaches in the news/publications but they still aren't developing into mainstream therapies. Seeing the FDA listing of bacteria and frequencies was one of the things that first surprises for me. We think that we are seeing effects from rifing with Eddie having had lots of rashing and improvements (though we've been using BH4 too) - but also I believe I can feel it. I can feel it heats my face (isn't it odd) and we are all doing well at the moment. I'm doing especially well. I must admit - in a strange way I still don't believe in it either - yet I've read a fair bit now and I'm very convinced by the lyme sufferers. But my brain just doesn't like that this works and is never used - I suppose in the same way it still doesn't accept that anyone could knowingly put mercury in the baby and flu vaccines. I put them in a summary presentation for my students here http://www.eee.bham.ac.uk/woolleysi/thebodyelectric.ppt Eddie's web pages are http://www.endofthetunnel.co.uk/eddie Can you come to our video on 17 April - will email also :-) Best wishes, Sandy >> This is something we are looking into and very interested to hear from > others - I have located a couple of practitioners near us (south> London) but not sure what to check for before booking appointment....> both of those I found are chiropractices, doing acupuncture, also> something called Empulse (anyone heard?)> > My understanding that there are smaller Cold Laser devices for home-use > as well, but sound awfully expensive... and I would feel more > comfortable starting at a practice with someone who has more experience > with this.> > here is a bit about the treatment (I can post loads more if anyone> interested)> http://www.wimbledonclinic.co.uk/diagnostic_soft_laser_therapy.asp> > this is different but also intriguing> http://www.wimbledonclinic.co.uk/diagnostic_brain_frequency_analysis.a sp> > > tia> Natasa> > > > > > > > _________________________________________________________________ > Free games, great prizes - get gaming at Gamesbox. > http://www.searchgamesbox.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi again Dave, Forgot to say we use an EMX EMEM from Rifelabs it cost about £800 I think (the exchange rate is so good) http://www.rifelabs.com/emx.html It seems quite a popular make - but Tim knows more about this than me - and still we are quite beginners really. We are rifing for candida, C. Pneumonia (which we tested positive for) and also using a small basic set. We have already built up to about an hour a day. We just switch it on when we are in the living room. Best wishes, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi Sandy, would you ever consider renting it out one day? Natasa x > > Hi again Dave, > > Forgot to say we use an EMX EMEM from Rifelabs it cost about £800 I > think (the exchange rate is so good) > > http://www.rifelabs.com/emx.html > > It seems quite a popular make - but Tim knows more about this than me - > and still we are quite beginners really. > > We are rifing for candida, C. Pneumonia (which we tested positive for) > and also using a small basic set. > > We have already built up to about an hour a day. We just switch it on > when we are in the living room. > > Best wishes, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Hi Natasa, I'm sure we could arrange a Summer loan :-) Probably wouldn't put it in the post but could meet you somewhere halfway. Best wishes, Sandy Quote Link to comment Share on other sites More sharing options...
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