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I posted last time that they think that I do not have CMT but HSNI

another hereditary neurological disease, but with it I have the charcot

foot and similar physical clinical signs.I have a broken left foot

which has been slow to heal and I am still wearing the CAM boot. I was

fitted last week at Rothman Institute for a smaller supportive brace

that will go into my shoe.

I am swimming everday at the Sheraton and now I go to my friends house

everynight and we have put together an exercise program with music that we do in

the pool and it takes about an hour.

The weather has been very hot and I am grateful to have my friend with the pool.

I am nervous about switching to a smaller brace for my foot because I feel

protected in the cam boot.I am on LTD from my job and they will be re-evaluating

in Sept. I am still paying my health insurance under COBRA,it is expensive but I

have to have health insurance.

I am going to a Holistic Health Counselor and changing my diet. She thinks I

should see a Dr. for Accupuncture. I could not write for a long time because I

lost my password.

loaves.1957

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  • 3 months later...

Hi ,

Orthotics should give the best fit and stability. I'm not keen on

Podiatrists making suitable orthotics - this is from my personal

experience. Once I saw a Board Certified Orthotist who was correctly

trained and examined/measured my feet, legs, hips, and spine, I knew I

was in the 'right' place.

Stefan explained to me that well-fitting orthotics should not even

be 'felt' in my shoes - rather it should just feel like I am walking

normally. He was right.

Too much support could also throw off one's balance and gait and be

distributing weight unevenly maybe causing pain even.

~ Gretchen

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Hi ,

Try http://cpeds.org to find a Board Certified Orthotist. On the left

side of that page, click on 'Locate a C.Ped'. Perhaps your Internist

or Orthopedist can recommend one also. That's how I found Stefan, my

Internist suggested I go see him.

~ Gretchen

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  • 4 months later...

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