Re: Autism tests and treatments - recommened by Dr Singh

[Guest guest]

oh, absolutely agree. ...it is not that there is no MS in sunny states,

but that the incidence is much lower when compared to for example

Scotland. it would be nice to see comparisons of different states in USA

for autism rates - but then again as you said migration is probably too

strong there for those figures to be very reliable...

natasa

> > > >

> > > > " ...By single approach I mean he is looking only at the immune

> > > system as

> > > > a cause and treatment for ASD... "

> > > >

> > > > , that statement could not be more off the mark!!

> > > >

> > > >

> > > > Immune system overactivation is to be looked as INTERCONNECTED

> with

> > > > everything else! ... whether it is viruses or bacteria or

> > > mercury or

> > > > pesticides or radiation or combination of any of those the

> immune

> > > > system will react by upping the inflammatory messengers, which

> can

> > > in

> > > > itself be doing harm.

> > > >

> > > > and more importantly still, if the immune system is pushed

> > > enough and

> > > > if there is a lack of regulatory mechanism, it will at some

> point

> > > turn

> > > > to attack the host body. which is where real mess starts.

> > > >

> > > > yes, not everyone has brain myelin antibodies. and some 'normal'

> > > people

> > > > have them. but there are many many more antibodies that could

> well

> > > be

> > > > present in some kids and could be doing mess, that have not been

> > > looked

> > > > into.

> > > >

> > > > this is an area that desperately needs more research and funding

> > > and

> > > > looking into, defining this as 'just' autoimmune theory is

> > > definitely

> > > > not in order. especially as it could potentially explain and

> help

> > > more

> > > > severe cases and non-responding kids.

> > > >

> > > > natasa

> > > >

> > >

> >

>

[Guest guest]

Hi

Our dr said that in his experience transfer factor doesn't do great

things but will ask again - maybe it will work for us. Just need a

few more hours in the day to give all the supps/meds!

Peta-

-- In Autism-Biomedical-Europe , " "

wrote:

>

> I agree Peta, in the last 2-3 years most dans! have incorporated

immune system testing and treatment into their protocol, largely I

might say due to Jackie McCandless' insistence that the immune system

is an important player in the dx.

>

> And dare I say that almost every parent is aware of the importance

of treating the two (immune system and metals) simultaneously with

the vast improvement some had noted with antiviral treatment.

>

> Also wanted to add that although we had improvement to NT with

chelation we also used natural antiviral treatment (Virastop) with

great improvements. Transfer Factor was also, in my mind, solely

responsible for bringing her social development to normal, almost

overnight and it has never waivered after appearing.

>

> And we're not done. Just recently she was coming down with a minor

upper respiratory infection. My dd picked up some Echinacea and with

a day of giving it we got what is unmistakingly her normal viral

treatment behavior. It is minor, but it's there.

>

>

>

> Re: Autism tests and

treatments - recommened by Dr Singh

>

>

> Hi our DAn is treating Charlie for his immune system. The pterine

> test from the French lab showing the neopterine and biopterine

levels

> are a marker of how out of kilter the immune system is. We were

> giving spironalcton to lower neop and bh4 to raise biop. Now we

are

> using LDN to try to keep neop down. Have also used steroids when

in

> the States to reduce neop. These treatments have made a big

> difference cognitively to Charlie. For mylein antibodies we used

> actos for about 8 months. I don't think you can say that DAN is

all

> the same - depends on the dr.

> Peta-

>

> -- In Autism-Biomedical-Europe , " bbrowne123 "

> <bbrowne123@> wrote:

> >

> > Natasa, its actually the most confusing part of autism and the

most

> > revealing in my opinion. What is so frustrating is that as a

parent

> > and for all the rest of us, we are on our own.

> >

> > Like now, i have just discovered this info from you about Dr

Singh,

> > and about what other people say about autism as an auto

> > immune " disease " but what do we do about it, without the

doctors

> > help. As a parent, i can only go so far. I can just hear my

son's

> GP

> > laugh in my face when i ask him for some directed tests.

> >

> > We can of course get the mbp tests done, (have done so alredy)

but

> > the real nitty gritty stuff, at least for us, is yet beyond our

> > reach (for a reason perhaps???)

> >

> > I know in my heart that this is the " heart " of autism and

nobody

> > wants to touch it with a barge pole except for a very few.

> >

> > There is no point in following DAN or any other protocol on its

own

> > without seeing the bigger picture and that calls for tests,

> > interpretation of tests and accessing the information to put it

all

> > together.

> >

> > I feel like what is going to help my son is always just out of

> > reach. I am sure many others feel this way too. We have gone as

far

> > as we can right now, we need more info and more help. The

answers

> > are there, but who wants to help us get them.

> >

> > Makes me so very angry. Even the doctors we use who have been

> > helping us only know " so much " they dont have the time to spend

on

> > my boy or talking with me. It would take weeks of dialogue to

> > discuss each child and get tests done and interpret, etc.

> >

> > As a parent, all i can say to those new to this is read as much

as

> > you possibly can and don't take anyone's word for your child

and

> > dont stop till you find what you need and dont EVER take

anyone's

> > experiences/approach for granted, that it might be good for

your

> > child. The DAN protocol is like a recipe book and increasingly

i am

> > feeling left out of the loop on it, it just doesnt offer us

much.

> >

> > whew, feel better getting that off my chest!

> >

> >

> > >

> > > " ...By single approach I mean he is looking only at the

immune

> > system as

> > > a cause and treatment for ASD... "

> > >

> > > , that statement could not be more off the mark!!

> > >

> > >

> > > Immune system overactivation is to be looked as

INTERCONNECTED

> with

> > > everything else! ... whether it is viruses or bacteria or

> > mercury or

> > > pesticides or radiation or combination of any of those the

immune

> > > system will react by upping the inflammatory messengers,

which

> can

> > in

> > > itself be doing harm.

> > >

> > > and more importantly still, if the immune system is pushed

> > enough and

> > > if there is a lack of regulatory mechanism, it will at some

point

> > turn

> > > to attack the host body. which is where real mess starts.

> > >

> > > yes, not everyone has brain myelin antibodies. and

some 'normal'

> > people

> > > have them. but there are many many more antibodies that could

> well

> > be

> > > present in some kids and could be doing mess, that have not

been

> > looked

> > > into.

> > >

> > > this is an area that desperately needs more research and

funding

> > and

> > > looking into, defining this as 'just' autoimmune theory is

> > definitely

> > > not in order. especially as it could potentially explain and

help

> > more

> > > severe cases and non-responding kids.

> > >

> > > natasa

> > >

> >

>

[Guest guest]

Hi Peta,

Andy Cutler didn't think much of Transfer Factor either but I'm glad we tried it. Bock does mention it in his new book. It could be a huge coincidence but within 5 days of the TF she was executing social situations flawlessly.

It was different than improvements we got with chelation. Those would waiver in and out and then finally would be there to stay. Like her why ?'s which we did not have until chelation but they would appear on round and then we'd lose them off round, and back and forth before they were solid. But the social stuff was solidly there with the addition of TF. I can't honestly think of anything else that could have done it.

I hope it works well for you.

Re: Autism tests and treatments - recommened by Dr Singh

Hi Our dr said that in his experience transfer factor doesn't do great things but will ask again - maybe it will work for us. Just need a few more hours in the day to give all the supps/meds!Peta> > >> > > "...By single approach I mean he is looking only at the immune > > system as> > > a cause and treatment for ASD..."> > > > > > , that statement could not be more off the mark!!> > > > > > > > > Immune system overactivation is to be looked as INTERCONNECTED > with> > > everything else! ... whether it is viruses or bacteria or > > mercury or> > > pesticides or radiation or combination of any of those the immune> > > system will react by upping the inflammatory messengers, which > can > > in> > > itself be doing harm.> > > > > > and more importantly still, if the immune system is pushed > > enough and> > > if there is a lack of regulatory mechanism, it will at some point > > turn> > > to attack the host body. which is where real mess starts.> > > > > > yes, not everyone has brain myelin antibodies. and some 'normal' > > people> > > have them. but there are many many more antibodies that could > well > > be> > > present in some kids and could be doing mess, that have not been > > looked> > > into.> > > > > > this is an area that desperately needs more research and funding > > and> > > looking into, defining this as 'just' autoimmune theory is > > definitely> > > not in order. especially as it could potentially explain and help > > more> > > severe cases and non-responding kids.> > > > > > natasa> > >> >>

[Guest guest]

What are transfer factors? Does anyone have time please to explain what they do, which kids they're good for and where you get them from.

Thanks

[Guest guest]

Hi ,

Transfer Factor from www.4LifeCenter.com is the immunity that comes from colostrum, or first milk. The casein is taken out so it is said it is safe for kids who are intolerant or allergic to milk. This colostrum is from cows but there is lots of evidence to show there is adequate transfer between species.

The colostrum contains immunity factors that are passed from mother to baby and are thought to be beneficial to kids with disordered immune systems. Not all kids, by a long shot, respond to TF and the best figure I can report to you is about 20% of kids who use TF benefit in some way from it. There is no way to tell in advance which children will benefit from TF you just have to try it.

Again, not a lot of kids, unless it's your child and then it's a big deal. There is Transfer Factor Classic which is just the immunity based on colostrum. Then there is Transfer Factor, Advanced and that is based on colostrum and also egg immunity so not recommended for kids who can't tolerate eggs. This is the one we used.

There is also a TF Advanced Plus, a good product, that also contains mushroom compounds but not recommended as a starting point due to the possibility the child would react to the mushroom portion.

If you have any other ?'s, just ask, hope this helps.

Re: Autism tests and treatments - recommened by Dr Singh

What are transfer factors? Does anyone have time please to explain what they do, which kids they're good for and where you get them from.

Thanks

[Guest guest]

thanks!

DS is taking colostrum, which has been one of our more helpful supplements. So does TF do the same? or is it better/different? Sorry I'm a little confused on this - thanks everyone for your input.

[Guest guest]

You're welcome, , no TF is different than colostrum, has the actual immunity built in, sorry if this is a lame explanation, maybe others can do better.

I do remember something from Yasko who said that colostrum and something else is the poor person's Transfer Factor, but I can't remember what, was it Lactoferrin? Anyone?

Sorry, tired, brain not working well.

Re: Autism tests and treatments - recommened by Dr Singh

thanks!

DS is taking colostrum, which has been one of our more helpful supplements. So does TF do the same? or is it better/different? Sorry I'm a little confused on this - thanks everyone for your input.

[Guest guest]

,

Transfer factor comes from the colostrum. The only difference

between taking the kind of TF that 4Life offers and colostrum is how

much you're getting at a time. You can think of TF as really

concentrated colostrum (because the stuff that isn't transfer factor

is removed from the colostrum in an expensive process).

There are other transfer factors sold, which are crazy expensive I

believe, that are supposed to target specific problems. These TFs

have numbers. I can't for the life of me remember where I read about

them though. Sorry.

Keep in mind there are thousands, probably millions of transfer

factors. Hitting the widest range may be the best bet for most of

our kids. Also keep in mind that the transfer factors really kind

of act like memory that will help the immune system do its job better

(this may be why my son didn't see anything from TF: I have a a

theory that either his immune system was so poor it couldn't do much

with the TF, or his immune system is so hyper that it again couldn't

do much with them). The fact that your child does well on colostrum

means that there is room for immune system improvement. That

opportunity should probably be taken :-)

I think any child who wasn't breastfed should be given TF for a

period of time.

Anita

>

> thanks!

> DS is taking colostrum, which has been one of our more helpful

supplements. So does TF do the same? or is it better/different? Sorry

I'm a little confused on this - thanks everyone for your input.

>

[Guest guest]

Also to add this is not something that is supposed to be given

long-term, approx 3-4 months should be the optimum and then phase out...

natasa

> >

> > thanks!

> > DS is taking colostrum, which has been one of our more helpful

> supplements. So does TF do the same? or is it better/different? Sorry

> I'm a little confused on this - thanks everyone for your input.

> >

>

[Guest guest]

The protocol as developed for TF was 4 months of continual use followed by pulsing TF for a few days to week each month afterward, which is what we use.

I will say after our original improvements, we do not see anything with the pulsing method.

Ours was breastfed for the first 4 months but still got huge benefits from TF but I agree it would particularly valuable for any child not breastfed.

Re: Autism tests and treatments - recommened by Dr Singh

Also to add this is not something that is supposed to be givenlong-term, approx 3-4 months should be the optimum and then phase out...natasa> >> > thanks!> > DS is taking colostrum, which has been one of our more helpful> supplements. So does TF do the same? or is it better/different? Sorry> I'm a little confused on this - thanks everyone for your input.> >>

[Guest guest]

Hi Anita

I breastfed but was given the rhogam injection on the day Charlie was

born which contains mercury ( also had amalgams when pregnant) so

would this in your opinion negate the benefits of breastfeeding?

Thanks

Peta-

-- In Autism-Biomedical-Europe , " Anita "

wrote:

>

> ,

>

> Transfer factor comes from the colostrum. The only difference

> between taking the kind of TF that 4Life offers and colostrum is

how

> much you're getting at a time. You can think of TF as really

> concentrated colostrum (because the stuff that isn't transfer

factor

> is removed from the colostrum in an expensive process).

>

> There are other transfer factors sold, which are crazy expensive I

> believe, that are supposed to target specific problems. These TFs

> have numbers. I can't for the life of me remember where I read

about

> them though. Sorry.

>

> Keep in mind there are thousands, probably millions of transfer

> factors. Hitting the widest range may be the best bet for most of

> our kids. Also keep in mind that the transfer factors really kind

> of act like memory that will help the immune system do its job

better

> (this may be why my son didn't see anything from TF: I have a a

> theory that either his immune system was so poor it couldn't do

much

> with the TF, or his immune system is so hyper that it again

couldn't

> do much with them). The fact that your child does well on

colostrum

> means that there is room for immune system improvement. That

> opportunity should probably be taken :-)

>

> I think any child who wasn't breastfed should be given TF for a

> period of time.

>

> Anita

>

>

>

>

>

> >

> > thanks!

> > DS is taking colostrum, which has been one of our more helpful

> supplements. So does TF do the same? or is it better/different?

Sorry

> I'm a little confused on this - thanks everyone for your input.

> >

>