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Hi - what you would need to do if you don't have a social worker is phone the duty social worker, the phone number will be on the local authorities web pages. They have a duty of care. The next thing I would do is look at the criteria for support. Many LA now are only offering support to families with "critical or substantial" needs. Ask for an assessment as you have a child with a disability and are struggling to cope. They should send a social worker out to do an initial assessment or they may ever to it over the phone. The key here is the criteria for support.... and I suggest you keep that in mind. What I have found in the past is to tell them what you are coping with on a really bad day. Just ask what support they could offer you owing to your Childs needs... it is a needs assessment but often they become a resource assessment, and all that means is if they have a service they can slot your child in, they may offer you a place.... but the key will be to get the assessment saying exactly what your needs are and your Childs.

Good luck.

SOCIAL SERVICES

Re: help from socail services -SORRY FOR POSTING THIS AGAIN FOLKES BUT NO ONE ANSWERED SO I THOUGHTID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOMEASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY DONTKNOW WHAT TO DO ALOT OF THE TIME.-- In AutismAspergersCheshire , "lindseym71" wrote:>> hi all> I had a recent phone consult with jean who was lovely and helpfulas> ever and jean was supprised that we do not and have never had any> kind of help or assesment from social services and she suggsted to> post a message on the site to see what experiences if any you guys> have had and if you have how you went around getting it.> thanks for any help/advice in advance and a big thanks to everyone> who has helped me re the antimonity questions, i look foward to the> day i can answer a question for one of you guys!!

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Hi - what you would need to do if you don't have a social worker is phone the duty social worker, the phone number will be on the local authorities web pages. They have a duty of care. The next thing I would do is look at the criteria for support. Many LA now are only offering support to families with "critical or substantial" needs. Ask for an assessment as you have a child with a disability and are struggling to cope. They should send a social worker out to do an initial assessment or they may ever to it over the phone. The key here is the criteria for support.... and I suggest you keep that in mind. What I have found in the past is to tell them what you are coping with on a really bad day. Just ask what support they could offer you owing to your Childs needs... it is a needs assessment but often they become a resource assessment, and all that means is if they have a service they can slot your child in, they may offer you a place.... but the key will be to get the assessment saying exactly what your needs are and your Childs.

Good luck.

SOCIAL SERVICES

Re: help from socail services -SORRY FOR POSTING THIS AGAIN FOLKES BUT NO ONE ANSWERED SO I THOUGHTID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOMEASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY DONTKNOW WHAT TO DO ALOT OF THE TIME.-- In AutismAspergersCheshire , "lindseym71" wrote:>> hi all> I had a recent phone consult with jean who was lovely and helpfulas> ever and jean was supprised that we do not and have never had any> kind of help or assesment from social services and she suggsted to> post a message on the site to see what experiences if any you guys> have had and if you have how you went around getting it.> thanks for any help/advice in advance and a big thanks to everyone> who has helped me re the antimonity questions, i look foward to the> day i can answer a question for one of you guys!!

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Hi - what you would need to do if you don't have a social worker is phone the duty social worker, the phone number will be on the local authorities web pages. They have a duty of care. The next thing I would do is look at the criteria for support. Many LA now are only offering support to families with "critical or substantial" needs. Ask for an assessment as you have a child with a disability and are struggling to cope. They should send a social worker out to do an initial assessment or they may ever to it over the phone. The key here is the criteria for support.... and I suggest you keep that in mind. What I have found in the past is to tell them what you are coping with on a really bad day. Just ask what support they could offer you owing to your Childs needs... it is a needs assessment but often they become a resource assessment, and all that means is if they have a service they can slot your child in, they may offer you a place.... but the key will be to get the assessment saying exactly what your needs are and your Childs.

Good luck.

SOCIAL SERVICES

Re: help from socail services -SORRY FOR POSTING THIS AGAIN FOLKES BUT NO ONE ANSWERED SO I THOUGHTID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOMEASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY DONTKNOW WHAT TO DO ALOT OF THE TIME.-- In AutismAspergersCheshire , "lindseym71" wrote:>> hi all> I had a recent phone consult with jean who was lovely and helpfulas> ever and jean was supprised that we do not and have never had any> kind of help or assesment from social services and she suggsted to> post a message on the site to see what experiences if any you guys> have had and if you have how you went around getting it.> thanks for any help/advice in advance and a big thanks to everyone> who has helped me re the antimonity questions, i look foward to the> day i can answer a question for one of you guys!!

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Hi

I don't where you live but you should be able to contact your local

Children with Disabilities Team/Social Workers names seem to change

all the time. You can self refer or ask your GP or your child's

Paediatritian for a referral. Usually they start off doing a Carers

Assessment for you to see if you qualify for Carers Allowance and if

you are in need of respite. Nowadays this is usually offered in the

form of Direct Payments ie they give you money to employ someone to

care for the child to give you some respite or holiday clubs. You can

also apply for Disability Living Allowance for the child (check out

NAS or AFASIC websites for advice on filling in form to get the best

results). A lot depends on the perceived level of disability and I

don't know your circumstances so can't comment further really.

HTH

> >

> > hi all

> > I had a recent phone consult with jean who was lovely and helpful

> as

> > ever and jean was supprised that we do not and have never had any

> > kind of help or assesment from social services and she suggsted to

> > post a message on the site to see what experiences if any you guys

> > have had and if you have how you went around getting it.

> > thanks for any help/advice in advance and a big thanks to everyone

> > who has helped me re the antimonity questions, i look foward to

the

> > day i can answer a question for one of you guys!!

>

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What info do you want Lindsey, sorry I must of missed your last post.

Lara

> >

> > hi all

> > I had a recent phone consult with jean who was lovely and helpful

> as

> > ever and jean was supprised that we do not and have never had any

> > kind of help or assesment from social services and she suggsted to

> > post a message on the site to see what experiences if any you guys

> > have had and if you have how you went around getting it.

> > thanks for any help/advice in advance and a big thanks to everyone

> > who has helped me re the antimonity questions, i look foward to the

> > day i can answer a question for one of you guys!!

>

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Lindsey,

do you feel able to tell us more about your son behaviours and also

how he is health-wise, we may be able to help with this if given more

details, i am particularly interested in bowels,etc, but there are

also some behaviour experts on this list i think.

Nikki

> ID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOME

> ASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY DONT

> KNOW WHAT TO DO ALOT OF THE TIME.

>

> -- In AutismAspergersCheshire , " lindseym71 "

> <lindsey_mcconnell@> wrote:

> >

> > hi all

> > I had a recent phone consult with jean who was lovely and helpful

> as

> > ever and jean was supprised that we do not and have never had any

> > kind of help or assesment from social services and she suggsted to

> > post a message on the site to see what experiences if any you guys

> > have had and if you have how you went around getting it.

> > thanks for any help/advice in advance and a big thanks to everyone

> > who has helped me re the antimonity questions, i look foward to

the

> > day i can answer a question for one of you guys!!

>

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-thanks claire thats somewhere to start!

kind regards

lindsey

-- In Autism-Biomedical-Europe , " claire_downey "

wrote:

>

> Hi

> I don't where you live but you should be able to contact your local

> Children with Disabilities Team/Social Workers names seem to change

> all the time. You can self refer or ask your GP or your child's

> Paediatritian for a referral. Usually they start off doing a Carers

> Assessment for you to see if you qualify for Carers Allowance and

if

> you are in need of respite. Nowadays this is usually offered in the

> form of Direct Payments ie they give you money to employ someone to

> care for the child to give you some respite or holiday clubs. You

can

> also apply for Disability Living Allowance for the child (check out

> NAS or AFASIC websites for advice on filling in form to get the

best

> results). A lot depends on the perceived level of disability and I

> don't know your circumstances so can't comment further really.

>

> HTH

>

>

>

>

>

>

>

> > >

> > > hi all

> > > I had a recent phone consult with jean who was lovely and

helpful

> > as

> > > ever and jean was supprised that we do not and have never had

any

> > > kind of help or assesment from social services and she suggsted

to

> > > post a message on the site to see what experiences if any you

guys

> > > have had and if you have how you went around getting it.

> > > thanks for any help/advice in advance and a big thanks to

everyone

> > > who has helped me re the antimonity questions, i look foward to

> the

> > > day i can answer a question for one of you guys!!

> >

>

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--ringt, thanks for that sandra

kind regards

lindsey

- In Autism-Biomedical-Europe , " sandra barrett "

wrote:

>

> Hi - what you would need to do if you don't have a social worker is

phone the duty social worker, the phone number will be on the local

authorities web pages. They have a duty of care. The next thing I

would do is look at the criteria for support. Many LA now are only

offering support to families with " critical or substantial " needs.

Ask for an assessment as you have a child with a disability and are

struggling to cope. They should send a social worker out to do an

initial assessment or they may ever to it over the phone. The key

here is the criteria for support.... and I suggest you keep that in

mind. What I have found in the past is to tell them what you are

coping with on a really bad day. Just ask what support they could

offer you owing to your Childs needs... it is a needs assessment but

often they become a resource assessment, and all that means is if

they have a service they can slot your child in, they may offer you a

place.... but the key will be to get the assessment saying exactly

what your needs are and your Childs.

> Good luck.

>

> SOCIAL SERVICES

>

>

> Re: help from socail services

>

> -SORRY FOR POSTING THIS AGAIN FOLKES BUT NO ONE ANSWERED SO I

THOUGHT

> ID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOME

> ASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY

DONT

> KNOW WHAT TO DO ALOT OF THE TIME.

>

> -- In AutismAspergersCheshire , " lindseym71 "

> <lindsey_mcconnell@> wrote:

> >

> > hi all

> > I had a recent phone consult with jean who was lovely and

helpful

> as

> > ever and jean was supprised that we do not and have never had

any

> > kind of help or assesment from social services and she suggsted

to

> > post a message on the site to see what experiences if any you

guys

> > have had and if you have how you went around getting it.

> > thanks for any help/advice in advance and a big thanks to

everyone

> > who has helped me re the antimonity questions, i look foward to

the

> > day i can answer a question for one of you guys!!

>

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I read recently that 70% of social services depts. now only provide

any services to families who are in the highest (ie most severe)

group according to their eligibility criteria. I suggest you get

hiold of your LA's set of criteria - they should supply them on

request - and ask them which of the four groups get respite etc in

your LA area before you start.Also, if you can. Get help from a local

disability rights organisation if you can.

I recommend the book Disabled Children and the Law by Luke Clements

et al. - it's written for families to use.

Margaret

(whose LA has unlawfully, I think, taken away respite from us and who

may be starting Court action over it this week....)

Margaret

> > >

> > > hi all

> > > I had a recent phone consult with jean who was lovely and

> helpful

> > as

> > > ever and jean was supprised that we do not and have never had

> any

> > > kind of help or assesment from social services and she

suggsted

> to

> > > post a message on the site to see what experiences if any you

> guys

> > > have had and if you have how you went around getting it.

> > > thanks for any help/advice in advance and a big thanks to

> everyone

> > > who has helped me re the antimonity questions, i look foward

to

> the

> > > day i can answer a question for one of you guys!!

> >

>

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hi lara

just really wanted to know how to get help from them to manage my

sons behavior at home as its making me ill!!!

thanks

lindsey

> > >

> > > hi all

> > > I had a recent phone consult with jean who was lovely and

helpful

> > as

> > > ever and jean was supprised that we do not and have never had

any

> > > kind of help or assesment from social services and she suggsted

to

> > > post a message on the site to see what experiences if any you

guys

> > > have had and if you have how you went around getting it.

> > > thanks for any help/advice in advance and a big thanks to

everyone

> > > who has helped me re the antimonity questions, i look foward to

the

> > > day i can answer a question for one of you guys!!

> >

>

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-hi nikki

thanks for asking.

lewis is 5 1/2. he is very bright and at mainstream school with 10hr

support mostly for settling in in the mornings which is finds hard.

the main problems are with defience and answering back, slamming

doors and going to throw things if he cant do what he likes doing and

we want or need him to do something else. he takes hours to eat his

dinner and this tends to turn into a battle field. He refuses to

eat/ swallow and will often store food in his mouth. he os over

emaotionall and tends to over react. he tells me he hates me

frequently!

his bowel movents are a problem but he now takes 1 movical, 1 senna

cap and 1 oxypowder per day and will now open his bowels once per

day. before this he would go 4 to 5 days without going.

Is this the sort of info you meant?

thanks for any help

kind regards

lindsey

-- In Autism-Biomedical-Europe , " Nikki " <nikki-

mills@...> wrote:

>

>

>

>

> Lindsey,

>

> do you feel able to tell us more about your son behaviours and also

> how he is health-wise, we may be able to help with this if given

more

> details, i am particularly interested in bowels,etc, but there are

> also some behaviour experts on this list i think.

>

> Nikki

>

>

>

>

>

>

>

>

>

>

> > ID TRY ANGAIN. ANY COMMENTS GOOD OR BAD WELCOME! I AM FINDING SOME

> > ASPECTS OF MY SONS BEHAVOIUR VERY HARD TO COPE WITH AND REALLY

DONT

> > KNOW WHAT TO DO ALOT OF THE TIME.

> >

> > -- In AutismAspergersCheshire , " lindseym71 "

> > <lindsey_mcconnell@> wrote:

> > >

> > > hi all

> > > I had a recent phone consult with jean who was lovely and

helpful

> > as

> > > ever and jean was supprised that we do not and have never had

any

> > > kind of help or assesment from social services and she suggsted

to

> > > post a message on the site to see what experiences if any you

guys

> > > have had and if you have how you went around getting it.

> > > thanks for any help/advice in advance and a big thanks to

everyone

> > > who has helped me re the antimonity questions, i look foward to

> the

> > > day i can answer a question for one of you guys!!

> >

>

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Share on other sites

> > > >

> > > > hi all

> > > > I had a recent phone consult with jean who was lovely and

> > helpful

> > > as

> > > > ever and jean was supprised that we do not and have never

had

> > any

> > > > kind of help or assesment from social services and she

> suggsted

> > to

> > > > post a message on the site to see what experiences if any

you

> > guys

> > > > have had and if you have how you went around getting it.

> > > > thanks for any help/advice in advance and a big thanks to

> > everyone

> > > > who has helped me re the antimonity questions, i look

foward

> to

> > the

> > > > day i can answer a question for one of you guys!!

> > >

> >Sorry didnot get to post earlier. Margret how do you take action

against Social Services. We are in a sticky situation. My son gets

higher DLA and Mobility but still no respite. We had the head of

scoial services and children round to our house to access the

situation. She said we desperatly needed respite but they didnot have

the money til October. I'm really getting annoyed waiting. Would

welcome any advice on this topic. I have also contacted my local

councillor.

Many thanks

Sara

>

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You have to get a completed assessment and for a Care Plan to be drawn

up. The book I recommended will help you. but you also need advice from

a disability rights organisation/law centre/CAB/solicitor.If provision

is in the care Plan they HAVE to provide what's there. However, they

will obviously delay issuing one or put nothing in it, which is why you

need advice.

Margaret

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HI LINDSEY,

MY THOUGHTS BELOW:

> lewis is 5 1/2. he is very bright and at mainstream school with

10hr

> support mostly for settling in in the mornings which is finds hard.

> the main problems are with defience and answering back, slamming

> doors and going to throw things if he cant do what he likes doing

and

> we want or need him to do something else.

IS THIS BEHAVIOUR JUST AT HOME OR AT SCHOOL AS WELL? IS HE FINDING

SCHOOL VERY STRESSFUL, SO MUCH SO THAT WHEN HE COMES HOME HE TAKES IT

OUT ON YOU???

he takes hours to eat his

> dinner and this tends to turn into a battle field. He refuses to

> eat/ swallow and will often store food in his mouth. he os over

> emaotionall and tends to over react. he tells me he hates me

> frequently!

IS HE A FUSSY EATER??? DOES HE HAVE STRANGE LIKES/DISLIKES FOODWISE?

DO DIFFERENT TEXTURED FOODS BOTHER HIM? MY SON DOES THE KEEPING THE

FOOD IN THE MOUTH TRICK SOMETIMES, I'VE NEVER BEEN SURE WHY, MAYBE IN

OUR CASE BECAUSE HE LIKES THE TASTE? I JUST IGNORE IT!

MAYBE JUST LET HIM EAT WHEN HE IS HUNGRY AND THE AMOUNT HE WANTS AND

STOP MEAL TIMES BECOMING A BATTLE GROUND, JUST CUT ALL THE FUSS SHORT

AND LET HIM GET DOWN, INGNORING THE BEAHVIOURS. JUST A SUGGESTION,

I'M NOT AN EXPERT HERE, BUT SOMEHOW YOU NEED TO MAKE LIFE MORE

BEARABLE!!!

> his bowel movents are a problem but he now takes 1 movical, 1 senna

> cap and 1 oxypowder per day and will now open his bowels once per

> day. before this he would go 4 to 5 days without going.

> Is this the sort of info you meant?

> thanks for any help

OK, SORRY MORE QUESTIONS, ALTHOUGH HE IS GOING REGULARLY NOW IT WOULD

BE USEFUL TO KNOW WHAT HIS STOOLS ARE LIKE, IN ALL THE GORY DETAIL!!!

ALSO DOES HE HAVE A FLAT TUMMY OR IS HIS ABDOMEN BLOATED? DO YOU

THINK HE IS NO LONGER CONSTIPATED?

I SUSPECT THERE MAY BE THINGS GOING ON IN HIS GUT THAT NEED TREATING

AND IF YOU ARE ABLE TO DO THIS SUCCESSFULLY THE BEHAVIOUR PROBLEMS

ABOVE WILL IMPROVE IMO. ITS JUST WORKING OUT WHATS GOING ON IS THE

TRICKY THING!!!

HTH, NIKKI

>

> -- In Autism-Biomedical-Europe , " Nikki " <nikki-

> mills@> wrote:

> >

> >

> >

> >

> > Lindsey,

> >

> > do you feel able to tell us more about your son behaviours and

also

> > how he is health-wise, we may be able to help with this if given

> more

> > details, i am particularly interested in bowels,etc, but there

are

> > also some behaviour experts on this list i think.

> >

> > Nikki

> >

> >

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