Re: Conn's without high BP?

October 30, 2010

One reason I rarely recommend thyroid surgery. 2 of the pts I sent to surgery in Ann Arbor with the best surgeon in the world for thyroid that that problem. One also had vocal cord paralysis.Think you need to be being seen by a VERY experienced Endo person. Where do you live? CE Grim MDI had a total thyroidectomy in 2008; this destroyed my parathyroid glands. I now have to take large amounts of calcium citrate, plus rocaltrol everyday to stay alive.Immediately after surgery was the first time my potassium had ever dropped critically low. I was never able to stabilize it after that.> >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > "My sodium is QUITE low according to my labs; I feel like cutting my > > > > sodium by 50% would be asking for more trouble."> > > "are you talking about blood or urine Na? Be specific."> > > > ****I am referring to my sodium blood level: 138(137-145). My24 hour urine sodium is normal: 158(52-380)*****> > > > > > > > > > > > "I did find several links on the web saying that sodium can suppress > > > > aldosterone in some circumstances."> > > > > > "It always suppresses aldo."> > ****Are my symptoms of higher BP, thirst, headache, and dizziness from a high blood aldosterone level, 38(<28)?> > Does an incease in dietary salt make me feel better because the sodium is suppressing the high aldosterone?******> > > > > > > > "The only way to tell is to measure the Na in your urine."> > *****My 24 hour urine sodium was 158(52-380).*****> > > > > > > "Could my whole problem be that I have always had a low sodium diet???> > > > And maybe this is screwing with K?"> > > "By screwing with I dont know what you mean. Be more specific."> > > > *****Admittedly, I have no idea what I am talking about. I have no medical background. I guess I was thinking that all the potassium I am taking(140 meq), should be balanced out by taking in more sodium into my normally low sodium diet.*****> > > > > > > > > > > I feel so ill that I am losing hours at work, and I need answers.> > > > > > Ask the correct questions of your Dr and us.> > > He cannot tell how you feel.> > > > > >> > > > > > "Give us the exact details."> > ******I wake in the morning feeling shaky, and as though I haven't slept. I have dark circles under my eyes. I am dizzy and often wake with headaches that go up the back of my neck(I found this to coincide with my blood pressure rising 20-35 points above my normal 90/60). My leg muscles feel weak; my body just feels 'heavy' in general.I experience incessant thirst, and at times I have a metallic taste in my mouth. Things often get worse in afternoon between 2-5 PM. I become so drowsy and fatigued that I must lay down, all the while it feels like my heart is pounding very heavily(not fast, just heavy). > > While I am lying done, I feel just awful instead of rested--headache, sick stomach, crushing fatigue. > > Sometimes I feel good between 8-10 PM at night.> > My worse days are when I rise at 3:30 AM because I need to be at work at 4:30 AM, I usually do not finish work until about 2PM. These days are simply awful.> > I am waking at night once or twice to urinate, compounding the feeling of not having slept.******> > > > > > > > Thank you,> > > > > > >> >>

October 30, 2010

I feel best when my TSH is 1.38.

These labs do not reflect optimal thyroid treatment. I start getting hypothyroid

symptoms(hairloss, puffy eyes, cold extremities, anxiety and profound

depression) when my TSH go above 2.0, at that time my FreeT3 levels will begin

to drop below normal.

My doctor is still trying to optimize my treatment, as my body is not responding

to the typical Synthroid(T4) treatment.

> > >

> > > > Medications:

> > > > ~Synthroid 125 mcg

> > > > ~cytomel 10 mcg

> > >

> >

>

October 30, 2010

This is a bit above normal. Must have filled up the jug.

> > > > > > > > >

> > > > > > > > > Don't tell us high or low.

> > > > > > > > >

> > > > > > > > > We need to see the numbers and the normals for that lab.

> > > > > > > > > What was the renin?

> > > > > > > > >

> > > > > > > > > CE Grim, MD

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

October 30, 2010

I am so traumatized over the loss of my thyroid. It was needless, and now I am

paying for it. I was told it 'had' to come out, and that I would take one pill a

day for the rest of my life, and everybody does fine on it. I was told it was

EXACTLY the same thing my own thyroid would make. I was not told about

hypoparathyroidism. Even when I left the hospital after 5 days and a severe case

of tetany(CA dropped to 5.0), no one told me I was going to be permanently

impaired, so this of course led to a LONG delay in treatment for the hypopara.

I am in Massachusetts. I have been to endocrinologists at three top Boston

hospitals, without much help. Admittedly, I probably was unable to get in with a

'good' endo. My endo at Mass General was a resident when she took on my case.

I was finally able to get in with an endo in my hometown, and she is the only

one who has expressed a desire to look further into things, hence the recent

testing.

> > > >

> > > > >

> > > > " My sodium is QUITE low according to my labs; I feel like

> > cutting my

> > > > > > sodium by 50% would be asking for more trouble. "

> > > > > " are you talking about blood or urine Na? Be specific. "

> > > >

> > > > ****I am referring to my sodium blood level: 138(137-145). My24

> > hour urine sodium is normal: 158(52-380)*****

> > > > >

> > > >

> > > > >

> > > > > > " I did find several links on the web saying that sodium can

> > suppress

> > > > > > aldosterone in some circumstances. "

> > > > >

> > > > > " It always suppresses aldo. "

> > > > ****Are my symptoms of higher BP, thirst, headache, and

> > dizziness from a high blood aldosterone level, 38(<28)?

> > > > Does an incease in dietary salt make me feel better because the

> > sodium is suppressing the high aldosterone?******

> > > >

> > > > >

> > > > > " The only way to tell is to measure the Na in your urine. "

> > > > *****My 24 hour urine sodium was 158(52-380).*****

> > > > >

> > > > > > " Could my whole problem be that I have always had a low

> > sodium diet???

> > > > > > And maybe this is screwing with K? "

> > > > > " By screwing with I dont know what you mean. Be more specific. "

> > > >

> > > > *****Admittedly, I have no idea what I am talking about. I have

> > no medical background. I guess I was thinking that all the potassium

> > I am taking(140 meq), should be balanced out by taking in more

> > sodium into my normally low sodium diet.*****

> > > >

> > > > >

> > > > > > I feel so ill that I am losing hours at work, and I need

> > answers.

> > > > >

> > > > > Ask the correct questions of your Dr and us.

> > > > > He cannot tell how you feel.

> > > > >

> > > > > " Give us the exact details. "

> > > > ******I wake in the morning feeling shaky, and as though I

> > haven't slept. I have dark circles under my eyes. I am dizzy and

> > often wake with headaches that go up the back of my neck(I found

> > this to coincide with my blood pressure rising 20-35 points above my

> > normal 90/60). My leg muscles feel weak; my body just feels 'heavy'

> > in general.I experience incessant thirst, and at times I have a

> > metallic taste in my mouth. Things often get worse in afternoon

> > between 2-5 PM. I become so drowsy and fatigued that I must lay

> > down, all the while it feels like my heart is pounding very

> > heavily(not fast, just heavy).

> > > > While I am lying done, I feel just awful instead of rested--

> > headache, sick stomach, crushing fatigue.

> > > > Sometimes I feel good between 8-10 PM at night.

> > > > My worse days are when I rise at 3:30 AM because I need to be at

> > work at 4:30 AM, I usually do not finish work until about 2PM. These

> > days are simply awful.

> > > > I am waking at night once or twice to urinate, compounding the

> > feeling of not having slept.******

> > > >

> > > > > > Thank you,

> > > > > >

> > > > >

> > > >

> > >

> >

>

October 30, 2010

Yes, it did. Right to the tippy top. I actually usually use an extra container,

but not for the last 24 hour urine test.

>

> This is a bit above normal. Must have filled up the jug.

>

October 31, 2010

You can cycle with cushing's and have high periods and low ones...its not as rare as they say. Its just very hard to diagnosed with high and low's if you cycle with cushing's . Can be days ..or even months in a low and then switch to a high period..:)Sent using BlackBerry® from OrangeSender: hyperaldosteronism Date: Sat, 30 Oct 2010 11:19:28 -0000To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: Conn's without high BP? None of this adds up.I agree that my labs could point towards Cushings, and many of my symptoms as well. But..... I have NONE of the physical traits of Cushings, such as 'moon face' and abdominal weight gain. I am actually losing weight. At 5'4 " and 105 lbs I look nothing like a Cushing's patient.Maybe all the labs need to be rerun.> > > > > >> > > > > > Don't tell us high or low.> > > > > > > > > > > > We need to see the numbers and the normals for that lab.> > > > > > What was the renin?> > > > > > > > > > > > CE Grim, MD> > > > > > > > > >> > > >> > >> >>

October 31, 2010

What goes in goes out.CE Grim MDOn Oct 30, 2010, at 5:40 PM, Francis Bill SUSPECTED PA wrote:This is a bit above normal. Must have filled up the jug. > > > > > > > > >> > > > > > > > > Don't tell us high or low.> > > > > > > > > > > > > > > > > > We need to see the numbers and the normals for that lab.> > > > > > > > > What was the renin?> > > > > > > > > > > > > > > > > > CE Grim, MD> > > > > > > > > > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

October 31, 2010

Let me know if I can help. I am available as a personal consultant work with you and your Dr. For details you can contact me at my email. CE Grim MDI am so traumatized over the loss of my thyroid. It was needless, and now I am paying for it. I was told it 'had' to come out, and that I would take one pill a day for the rest of my life, and everybody does fine on it. I was told it was EXACTLY the same thing my own thyroid would make. I was not told about hypoparathyroidism. Even when I left the hospital after 5 days and a severe case of tetany(CA dropped to 5.0), no one told me I was going to be permanently impaired, so this of course led to a LONG delay in treatment for the hypopara.I am in Massachusetts. I have been to endocrinologists at three top Boston hospitals, without much help. Admittedly, I probably was unable to get in with a 'good' endo. My endo at Mass General was a resident when she took on my case. I was finally able to get in with an endo in my hometown, and she is the only one who has expressed a desire to look further into things, hence the recent testing.> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > >> > > > "My sodium is QUITE low according to my labs; I feel like > > cutting my> > > > > > sodium by 50% would be asking for more trouble."> > > > > "are you talking about blood or urine Na? Be specific."> > > >> > > > ****I am referring to my sodium blood level: 138(137-145). My24 > > hour urine sodium is normal: 158(52-380)*****> > > > >> > > >> > > > >> > > > > > "I did find several links on the web saying that sodium can > > suppress> > > > > > aldosterone in some circumstances."> > > > >> > > > > "It always suppresses aldo."> > > > ****Are my symptoms of higher BP, thirst, headache, and > > dizziness from a high blood aldosterone level, 38(<28)?> > > > Does an incease in dietary salt make me feel better because the > > sodium is suppressing the high aldosterone?******> > > >> > > > >> > > > > "The only way to tell is to measure the Na in your urine."> > > > *****My 24 hour urine sodium was 158(52-380).*****> > > > >> > > > > > "Could my whole problem be that I have always had a low > > sodium diet???> > > > > > And maybe this is screwing with K?"> > > > > "By screwing with I dont know what you mean. Be more specific."> > > >> > > > *****Admittedly, I have no idea what I am talking about. I have > > no medical background. I guess I was thinking that all the potassium > > I am taking(140 meq), should be balanced out by taking in more > > sodium into my normally low sodium diet.*****> > > >> > > >> > > > >> > > > > > I feel so ill that I am losing hours at work, and I need > > answers.> > > > >> > > > > Ask the correct questions of your Dr and us.> > > > > He cannot tell how you feel.> > > > >> > > > >> > > > >> > > > > "Give us the exact details."> > > > ******I wake in the morning feeling shaky, and as though I > > haven't slept. I have dark circles under my eyes. I am dizzy and > > often wake with headaches that go up the back of my neck(I found > > this to coincide with my blood pressure rising 20-35 points above my > > normal 90/60). My leg muscles feel weak; my body just feels 'heavy' > > in general.I experience incessant thirst, and at times I have a > > metallic taste in my mouth. Things often get worse in afternoon > > between 2-5 PM. I become so drowsy and fatigued that I must lay > > down, all the while it feels like my heart is pounding very > > heavily(not fast, just heavy).> > > > While I am lying done, I feel just awful instead of rested-- > > headache, sick stomach, crushing fatigue.> > > > Sometimes I feel good between 8-10 PM at night.> > > > My worse days are when I rise at 3:30 AM because I need to be at > > work at 4:30 AM, I usually do not finish work until about 2PM. These > > days are simply awful.> > > > I am waking at night once or twice to urinate, compounding the > > feeling of not having slept.******> > > >> > > >> > > > > > Thank you,> > > > > > > > > > >> > > >> > >> >> >> >>

October 31, 2010

,I know dealing with thyroid issues can be very frustrating! I have been dealing with Thyroid Hormone Resistance for awhile but I think your situation is more complicated!I wanted to give you a link to a yahoo support group that I truly believe can make a difference to your situation. There are people on the group just like you who have no thyroid. Actually there are all kinds of different "issues". (cancer, nodules, hypo,etc)Http://health.groups.yahoo.com/group/naturalthyroidhormones/If this doesn't work let me know.One other thing about your post that jumped out at me was that you are on Synthyroid. What I have learned is that most people don't do well on Synthyroid. Most people do better on NatureThyroid or

WestThyroid. You can google those and do your own research. Armour used to be a really good thyroid med but they recently reformulated it and most people are not doing well with it.SuzanneSent from my iPad

I am so traumatized over the loss of my thyroid. It was needless, and now I am paying for it. I was told it 'had' to come out, and that I would take one pill a day for the rest of my life, and everybody does fine on it. I was told it was EXACTLY the same thing my own thyroid would make. I was not told about hypoparathyroidism. Even when I left the hospital after 5 days and a severe case of tetany(CA dropped to 5.0), no one told me I was going to be permanently impaired, so this of course led to a LONG delay in treatment for the hypopara.

I am in Massachusetts. I have been to endocrinologists at three top Boston hospitals, without much help. Admittedly, I probably was unable to get in with a 'good' endo. My endo at Mass General was a resident when she took on my case.

I was finally able to get in with an endo in my hometown, and she is the only one who has expressed a desire to look further into things, hence the recent testing.

> > > >

> > > > >

> > > > "My sodium is QUITE low according to my labs; I feel like

> > cutting my

> > > > > > sodium by 50% would be asking for more trouble."

> > > > > "are you talking about blood or urine Na? Be specific."

> > > >

> > > > ****I am referring to my sodium blood level: 138(137-145). My24

> > hour urine sodium is normal: 158(52-380)*****

> > > > >

> > > >

> > > > >

> > > > > > "I did find several links on the web saying that sodium can

> > suppress

> > > > > > aldosterone in some circumstances."

> > > > >

> > > > > "It always suppresses aldo."

> > > > ****Are my symptoms of higher BP, thirst, headache, and

> > dizziness from a high blood aldosterone level, 38(<28)?

> > > > Does an incease in dietary salt make me feel better because the

> > sodium is suppressing the high aldosterone?******

> > > >

> > > > >

> > > > > "The only way to tell is to measure the Na in your urine."

> > > > *****My 24 hour urine sodium was 158(52-380).*****

> > > > >

> > > > > > "Could my whole problem be that I have always had a low

> > sodium diet???

> > > > > > And maybe this is screwing with K?"

> > > > > "By screwing with I dont know what you mean. Be more specific."

> > > >

> > > > *****Admittedly, I have no idea what I am talking about. I have

> > no medical background. I guess I was thinking that all the potassium

> > I am taking(140 meq), should be balanced out by taking in more

> > sodium into my normally low sodium diet.*****

> > > >

> > > > >

> > > > > > I feel so ill that I am losing hours at work, and I need

> > answers.

> > > > >

> > > > > Ask the correct questions of your Dr and us.

> > > > > He cannot tell how you feel.

> > > > >

> > > > > "Give us the exact details."