Re: Numbering system for many problems some have here.

[Guest guest]

Sorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results. I've taken a long list to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeDate: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bit redundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1. Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I was much worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome and spirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > > the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > > > > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > > headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brother suggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

I can understand being obsessed as many others here can as well. Hope we are getting closer to getting you some help.CE GrimSorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results.I've taken a long list to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bit redundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1. Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I was much worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome and spirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > > the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > > > > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > > headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brother suggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

Mandy,I understand your being obsessed because I have been researching this like crazy too! Try to take it easy though and don't stress too much about it. I would imagine that stress will make matters worse. Waiting is a hard game, I know. My doctor called me today with the results of my test but I missed his call. I am bummed but I will get the answers I need soon enough. Take it easy and relax! This site has given you lots of good information so you will be prepared for your doctor appointments. There is nothing wrong with that. Relax girl and try to enjoy the ride! : )Sent from my iPod

I can understand being obsessed as many others here can as well. Hope we are getting closer to getting you some help.CE GrimOn Mar 15, 2010, at 4:48 PM, moseleymandhotmail (DOT) co.uk wrote:Sorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results.I've taken a long

list to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bit

redundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1.

Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I was

much worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome and

spirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > >

the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > >

> > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > >

headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brother

suggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

Ask him to email you rather than call. saves time on both endsCE Grim MDMandy,I understand your being obsessed because I have been researching this like crazy too! Try to take it easy though and don't stress too much about it. I would imagine that stress will make matters worse. Waiting is a hard game, I know. My doctor called me today with the results of my test but I missed his call. I am bummed but I will get the answers I need soon enough. Take it easy and relax! This site has given you lots of good information so you will be prepared for your doctor appointments. There is nothing wrong with that. Relax girl and try to enjoy the ride! : )Sent from my iPodOn Mar 15, 2010, at 6:52 PM, Clarence Grim <lowerbp2mac> wrote: I can understand being obsessed as many others here can as well. Hope we are getting closer to getting you some help.CE GrimOn Mar 15, 2010, at 4:48 PM, moseleymandhotmail (DOT) co.uk wrote:Sorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results.I've taken a long list to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bit redundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1. Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I was much worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome and spirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > > the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > > > > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > > headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brother suggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

Thank you, ever so much Vicki :)Good luck I hope you get the answers asap so you can start getting better.Yes, I think I am getting nervous. And worried in case they don't help me and I can't carry on like this anymore.I don't mean to sound shallow but my wonky face does upset me when its bad, on top of being ill all the time. I think that doesn't help me mentally.Fingers crossed ill be able to work again and get my old life back!ThanksHugsMandySent using BlackBerry® from OrangeDate: Mon, 15 Mar 2010 16:35:05 -0700 (PDT)To: hyperaldosteronism <hyperaldosteronism >Subject: Re: Numbering system for many problems some have here. Mandy,I understand your being obsessed because I have been researching this like crazy too! Try to take it easy though and don't stress too much about it. I would imagine that stress will make matters worse. Waiting is a hard game, I know. My doctor called me today with the results of my test but I missed his call. I am bummed but I will get the answers I need soon enough. Take it easy and relax! This site has given you lots of good information so you will be prepared for your doctor appointments. There is nothing wrong with that. Relax girl and try to enjoy the ride! : )Sent from my iPodOn Mar 15, 2010, at 6:52 PM, Clarence Grim <lowerbp2mac> wrote: I can understand being obsessed as many others here can as well. Hope we are getting closer to getting you some help.CE GrimOn Mar 15, 2010, at 4:48 PM, moseleymandhotmail (DOT) co.uk wrote:Sorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results.I've taken a longlist to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bitredundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1.Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I wasmuch worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome andspirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > >the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > >> > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > >headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brothersuggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

You don't want to become a cyberchondriac. Do a Wikipedia on this.CE Grim MDThank you, ever so much Vicki :)Good luck I hope you get the answers asap so you can start getting better.Yes, I think I am getting nervous. And worried in case they don't help me and I can't carry on like this anymore.I don't mean to sound shallow but my wonky face does upset me when its bad, on top of being ill all the time. I think that doesn't help me mentally.Fingers crossed ill be able to work again and get my old life back!ThanksHugsMandySent using BlackBerry® from OrangeFrom: Vicki Ritchie <vritchie147>Date: Mon, 15 Mar 2010 16:35:05 -0700 (PDT)To: hyperaldosteronism <hyperaldosteronism >Subject: Re: Numbering system for many problems some have here. Mandy,I understand your being obsessed because I have been researching this like crazy too! Try to take it easy though and don't stress too much about it. I would imagine that stress will make matters worse. Waiting is a hard game, I know. My doctor called me today with the results of my test but I missed his call. I am bummed but I will get the answers I need soon enough. Take it easy and relax! This site has given you lots of good information so you will be prepared for your doctor appointments. There is nothing wrong with that. Relax girl and try to enjoy the ride! : )Sent from my iPodOn Mar 15, 2010, at 6:52 PM, Clarence Grim <lowerbp2mac> wrote: I can understand being obsessed as many others here can as well. Hope we are getting closer to getting you some help.CE GrimOn Mar 15, 2010, at 4:48 PM, moseleymandhotmail (DOT) co.uk wrote:Sorry, if I'm sounding like I'm obsessed! I won't reply to anymore on my phone until I've created that file and have some results.I've taken a long list to appointments before and worry as makes me feel like a hypocondriac sitting there with a big list! :(Although, a neurologist at barts said thankyou, when I gave him a list of symptoms asked if he could have a copy. Then wrote saying its an obvious Endocrine problem!ThanksTcMandySent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 16:35:23 -0500To: <hyperaldosteronism >Subject: Numbering system for many problems some have here. You seem to be getting a bit redundundundent here. Recommend you develop a numbered list of your problems to take to Bart's. Sort of a 20 Questions list. This will help all who care for you. Indeed this list should be how we develop our questionnaire I would think. Maybe I left some out.Start at the top of your head and work your way down to your feet.This way you will not have to repeat your self when talking to us you can say see my list for number 5 in our files for complete details, etc. This will be a great help to your health care team and to you to help keep things straight.For each problem: list when it started, what it is like, does it move anywhere, how long does it last, what makes it better, What makes it worse, How do you stop it. What do you think the cause is.1. Hair-skin-nails2. Headache, Mental Health3. Eyes4. Ears5. Nose-Mouth-Throat6. Sleep7. Teeth8. Neck9. Thyroid/Parathyroid10. Other Endocrine: pituitary, adrenals, pancreas, goands.11. Carotids other arteries.12. Lungs13. Heart14. Gut: Stomach, Gallbladder, Liver, Colon, hernia15. Urine System: Kidneys, Bladder, stones, peeing16. Female System: menses etc17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes 18. Blood: anemia, etc.19. Infections/Immune system20. VeinsOn Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:Makes sense. I get it also off of my diet but then there are time I don't when iam off the diet.Maybe it depends what I've eaten off my diet. If I've just had chocolate or a lot more bread/salty foods.When this first started and I'd seen homeopath. If I came off the diet I was much worse but I think it was because she said I musnt have any caffeine.So, I'd have the salt just drink water all day.The last two years I've gone back to drinking black tea (can't drink much with milk) as I do feel some relief of symptoms but new symptoms from doing so.I can't drink coffee I tremble, manic and can feel a massive fatigue, angry emotional etc. as it wears off!Also, with chocolate my face looks better (weakness) but then I have a crash type feeling..maybe its the caffine.Sent using BlackBerry® from OrangeFrom: Clarence Grim <lowerbp2mac>Date: Mon, 15 Mar 2010 08:41:55 -0500To: <hyperaldosteronism >Subject: Re: Re: Conn's syndrome and spirolactineSo mostly from having too much fat in belly which pushes stomach into chest.But we need to have a good reflux question set. Some BP meds interfere with the gastroesop muscle.sphincter.On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:Do you suffer reflux with pa? I either get it after eating normal but at other times eating normal I don't.Same with sister. This is what makes me wonder about cushings if cycling.Sent using BlackBerry® from OrangeFrom: "Francis Bill SUSPECTED PA" <georgewbill>Date: Mon, 15 Mar 2010 02:28:38 -0000To: <hyperaldosteronism >Subject: Re: Conn's syndrome and spirolactine If you look at my legs they are swelling. looking at my arms and hands it looks like they are dehydrated. I know that I am not dehydrated. I belive my skin has lost some of its flexibility. I am 62 but me skin looks like and 80 year olds.I think is may be the same with moseleymand. > > > > >> > > > > > Hi Everyone> > > > > > My name is 47 years old from sydney australia and i > > have been> > > > > > diagosed with conns syndrome after 7 years of firstly high > > and hard> > > > > > to control blood pressure.I had conns tests intially when i > > got high> > > > > > blood pressure they did everything including blood tests, > > urine> > > > > > tests ,a renal dopler (checks veins near kidneys ,i was in > > hospital> > > > > > for 2 weeks but they didnt do any avs or ct scans and finally> > > > > > discounted thst i had conns !!!> > > > > > Now 7 years later and thousands of tablets later they finally> > > > > > decided to do a ct scan and found a 12mm tumor on my right > > adrenal> > > > > > gland (so i guess it was small when i first got high b/ > > p) .Have been> > > > > > on spiracton for aprox 8 weeks now but still feeling like > > crap my bp> > > > > > has dropped from the usual 150-160/90-100 yes even on all > > the meds> > > > > > below to a very low 100/60 , i did have a colonoscopy 2 > > weeks ago> > > > > > and had to take the preperation to clear the bowel so > > probably lost> > > > > > a lot of fluid and electrolites my b/p went down to 88/58 > > when i had> > > > > > the colonoscopy but has risen a little since then although not> > > > > > much .I better tell you guys what meds i was on and now take > > well.> > > > > >> > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a day> > > > > > 1 x gopten (dolopril) 4mg once a day> > > > > > 1 x betaloc (metropol)100mg twice a day> > > > > > 1 x potassium chlor 600mg twice a day> > > > > > 1 x norvasc (amlodipine) 10mg once a day> > > > > > 2 x zoloft (sertaline) 100mg once a day.> > > > > > 1 x slow-k potasium 600mg twice a day> > > > > > 2 x alprazolam 1mg at night> > > > > >> > > > > > Now 1 x atacand 32mg once a day> > > > > > 1 x gopten 4mg once a day> > > > > > 1 x betaloc twice a day> > > > > > 2 x zoloft once a day> > > > > > 1 x spircton 100mg twice a day.> > > > > > 2 x alprazolam 1mg ayt night> > > > > >> > > > > > Now the only trouble is i feel worse than before i am getting> > > > > > headaches ,really bad digestion and bowel movements(maybe a > > little> > > > > > from colonscopy) sterum pain, back pain, light headed at > > times, hot> > > > > > flushes and sweat like a fountain when i do most things even > > when i> > > > > > sit down on cold days too??> > > > > > Im am booked for a hand assisted laproscopic adrenaldectomy > > for 1 st> > > > > > april .I have a renal proffessor doing the surgery and my > > renal> > > > > > specialist assisting (although i dont have a lot of > > confidence in this> > > > > > guy but the professor is great ).> > > > > > Im getting a lot of conflictiiong opinions from my g.p / my > > renal> > > > > > specialist and my brother who is a an emergency doctor.You > > see my> > > > > > creatinine (kidneys 50-60% working ) has risen alarmingly > > and it was> > > > > > always normal even with high b/p and my pottasium has risen > > too high> > > > > > after being too low for 7 years but i have just stopped taking> > > > > > potassium as per renal specialist ,my brother suggested i > > shouldnt> > > > > > be taking anything except spiro as he thinks im dehydrated > > due to> > > > > > spiro and thats why all this stuff with my stomach is > > happening and> > > > > > also the effects of the colonoscopy and my g.p has just > > taken me off> > > > > > the norvasc all together to get the blood pressure back up > > again to> > > > > > near normal so out of 3 doctors 3 differing opinions lol.> > > > > > ive been to hell and back for the last 7 years as most of > > you have> > > > > > too the sleepness nights bad headaches ,dizziness sore bones > > and> > > > > > muscles bad stomach, foggy head, bad short term memory and> > > > > > concentration always tired sleepin a lot during the day .I> > > > > > eventually had to give up my job as i just couldnt do it > > anymore so> > > > > > ive been off work for 12 months and most of all depressed > > for last 6> > > > > > or so years oh and libido what libido(lol).> > > > > >> > > > > > So any advice or suggestions would be greatly appreciated .I > > thank> > > > > > you guys for this group as conns should be made more aware > > of .i> > > > > > think a lot out there that dont know they have it .Im seeing> > > > > > anethitest on wednesday for chat before op so is there > > anything i> > > > > > should ask ????> > > > > > I wish you all the best of health .> > > > > > kind regards> > > > > > paul> > > > > >> > > > > >> > > > >> > > >> > >> >> >> >> >> >> >>

[Guest guest]

That's sounds good that he looked at your list. I made a symptom listand

spreadsheet with test results trying to help out my doctor and one doctor didn't

look at them at all and the endo I recently saw seemed to have looked at them

some but not enough I think. I wish they would just read it -sometimes it is

hard to describe all of the weird symptoms, especially if I'm prone to

forgetting things and worried about leaving out something. I think if they read

it before appoinment and then ask us questions about the symptoms then they can

get a better feel of what is going on.

---- Clarence Grim wrote:

> I can understand being obsessed as many others here can as well. Hope

> we are getting closer to getting you some help.

> CE Grim

>

>

> > Sorry, if I'm sounding like I'm obsessed! I won't reply to

> > anymore on my phone until I've created that file and have some

> > results.

> >

> > I've taken a long list to appointments before and worry as makes me

> > feel like a hypocondriac sitting there with a big list!

> >

> > Although, a neurologist at barts said thankyou, when I gave him a

> > list of symptoms asked if he could have a copy. Then wrote saying

> > its an obvious Endocrine problem!

> >

> > Thanks

> > Tc

> > Mandy

> >

> > Sent using BlackBerry® from Orange

> >

> >

> > Date: Mon, 15 Mar 2010 16:35:23 -0500

> > To: <hyperaldosteronism >

> > Subject: Numbering system for many problems

> > some have here.

> >

> >

> > You seem to be getting a bit redundundundent here.

> >

> >

> > Recommend you develop a numbered list of your problems to take to

> > Bart's. Sort of a 20 Questions list.

> > This will help all who care for you. Indeed this list should be how

> > we develop our questionnaire I would think. Maybe I left some out.

> >

> >

> > Start at the top of your head and work your way down to your feet.

> >

> > This way you will not have to repeat your self when talking to us

> > you can say see my list for number 5 in our files for complete

> > details, etc.

> > This will be a great help to your health care team and to you to

> > help keep things straight.

> >

> > For each problem: list when it started, what it is like, does it

> > move anywhere, how long does it last, what makes it better, What

> > makes it worse, How do you stop it. What do you think the cause is.

> >

> > 1. Hair-skin-nails

> > 2. Headache, Mental Health

> > 3. Eyes

> > 4. Ears

> > 5. Nose-Mouth-Throat

> > 6. Sleep

> > 7. Teeth

> > 8. Neck

> > 9. Thyroid/Parathyroid

> > 10. Other Endocrine: pituitary, adrenals, pancreas, goands.

> > 11. Carotids other arteries.

> > 12. Lungs

> > 13. Heart

> > 14. Gut: Stomach, Gallbladder, Liver, Colon, hernia

> > 15. Urine System: Kidneys, Bladder, stones, peeing

> > 16. Female System: menses etc

> > 17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes

> > 18. Blood: anemia, etc.

> > 19. Infections/Immune system

> > 20. Veins

> >

> >

> >

> >

> >

> >

> >> Makes sense.

> >>

> >> I get it also off of my diet but then there are time I don't when

> >> iam off the diet.

> >>

> >> Maybe it depends what I've eaten off my diet. If I've just had

> >> chocolate or a lot more bread/salty foods.

> >>

> >> When this first started and I'd seen homeopath. If I came off the

> >> diet I was much worse but I think it was because she said I musnt

> >> have any caffeine.

> >>

> >> So, I'd have the salt just drink water all day.

> >>

> >> The last two years I've gone back to drinking black tea (can't

> >> drink much with milk) as I do feel some relief of symptoms but new

> >> symptoms from doing so.

> >>

> >> I can't drink coffee I tremble, manic and can feel a massive

> >> fatigue, angry emotional etc. as it wears off!

> >>

> >> Also, with chocolate my face looks better (weakness) but then I

> >> have a crash type feeling..maybe its the caffine.

> >>

> >>

> >> Sent using BlackBerry® from Orange

> >>

> >>

> >> Date: Mon, 15 Mar 2010 08:41:55 -0500

> >> To: <hyperaldosteronism >

> >> Subject: Re: Re: Conn's syndrome and

> >> spirolactineSo

> >>

> >>

> >> mostly from having too much fat in belly which pushes stomach into

> >> chest.

> >>

> >> But we need to have a good reflux question set. Some BP meds

> >> interfere with the gastroesop muscle.sphincter.

> >>

> >>

> >>> Do you suffer reflux with pa? I either get it after eating normal

> >>> but at other times eating normal I don't.

> >>>

> >>> Same with sister. This is what makes me wonder about cushings if

> >>> cycling.

> >>>

> >>> Sent using BlackBerry® from Orange

> >>>

> >>>

> >>> Date: Mon, 15 Mar 2010 02:28:38 -0000

> >>> To: <hyperaldosteronism >

> >>> Subject: Re: Conn's syndrome and spirolactine

> >>>

> >>>

> >>> If you look at my legs they are swelling. looking at my arms and

> >>> hands it looks like they are dehydrated. I know that I am not

> >>> dehydrated. I belive my skin has lost some of its flexibility. I

> >>> am 62 but me skin looks like and 80 year olds.

> >>>

> >>> I think is may be the same with moseleymand.

> >>>

> >>>

> >>> > > > > >

> >>> > > > > > > Hi Everyone

> >>> > > > > > > My name is 47 years old from sydney australia and i

> >>> > > have been

> >>> > > > > > > diagosed with conns syndrome after 7 years of firstly

> >>> high

> >>> > > and hard

> >>> > > > > > > to control blood pressure.I had conns tests intially

> >>> when i

> >>> > > got high

> >>> > > > > > > blood pressure they did everything including blood

> >>> tests,

> >>> > > urine

> >>> > > > > > > tests ,a renal dopler (checks veins near kidneys ,i

> >>> was in

> >>> > > hospital

> >>> > > > > > > for 2 weeks but they didnt do any avs or ct scans and

> >>> finally

> >>> > > > > > > discounted thst i had conns !!!

> >>> > > > > > > Now 7 years later and thousands of tablets later they

> >>> finally

> >>> > > > > > > decided to do a ct scan and found a 12mm tumor on my

> >>> right

> >>> > > adrenal

> >>> > > > > > > gland (so i guess it was small when i first got high b/

> >>> > > p) .Have been

> >>> > > > > > > on spiracton for aprox 8 weeks now but still feeling

> >>> like

> >>> > > crap my bp

> >>> > > > > > > has dropped from the usual 150-160/90-100 yes even on

> >>> all

> >>> > > the meds

> >>> > > > > > > below to a very low 100/60 , i did have a colonoscopy 2

> >>> > > weeks ago

> >>> > > > > > > and had to take the preperation to clear the bowel so

> >>> > > probably lost

> >>> > > > > > > a lot of fluid and electrolites my b/p went down to

> >>> 88/58

> >>> > > when i had

> >>> > > > > > > the colonoscopy but has risen a little since then

> >>> although not

> >>> > > > > > > much .I better tell you guys what meds i was on and

> >>> now take

> >>> > > well.

> >>> > > > > > >

> >>> > > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a

> >>> day

> >>> > > > > > > 1 x gopten (dolopril) 4mg once a day

> >>> > > > > > > 1 x betaloc (metropol)100mg twice a day

> >>> > > > > > > 1 x potassium chlor 600mg twice a day

> >>> > > > > > > 1 x norvasc (amlodipine) 10mg once a day

> >>> > > > > > > 2 x zoloft (sertaline) 100mg once a day.

> >>> > > > > > > 1 x slow-k potasium 600mg twice a day

> >>> > > > > > > 2 x alprazolam 1mg at night

> >>> > > > > > >

> >>> > > > > > > Now 1 x atacand 32mg once a day

> >>> > > > > > > 1 x gopten 4mg once a day

> >>> > > > > > > 1 x betaloc twice a day

> >>> > > > > > > 2 x zoloft once a day

> >>> > > > > > > 1 x spircton 100mg twice a day.

> >>> > > > > > > 2 x alprazolam 1mg ayt night

> >>> > > > > > >

> >>> > > > > > > Now the only trouble is i feel worse than before i am

> >>> getting

> >>> > > > > > > headaches ,really bad digestion and bowel

> >>> movements(maybe a

> >>> > > little

> >>> > > > > > > from colonscopy) sterum pain, back pain, light headed at

> >>> > > times, hot

> >>> > > > > > > flushes and sweat like a fountain when i do most

> >>> things even

> >>> > > when i

> >>> > > > > > > sit down on cold days too??

> >>> > > > > > > Im am booked for a hand assisted laproscopic

> >>> adrenaldectomy

> >>> > > for 1 st

> >>> > > > > > > april .I have a renal proffessor doing the surgery and

> >>> my

> >>> > > renal

> >>> > > > > > > specialist assisting (although i dont have a lot of

> >>> > > confidence in this

> >>> > > > > > > guy but the professor is great ).

> >>> > > > > > > Im getting a lot of conflictiiong opinions from my

> >>> g.p / my

> >>> > > renal

> >>> > > > > > > specialist and my brother who is a an emergency

> >>> doctor.You

> >>> > > see my

> >>> > > > > > > creatinine (kidneys 50-60% working ) has risen

> >>> alarmingly

> >>> > > and it was

> >>> > > > > > > always normal even with high b/p and my pottasium has

> >>> risen

> >>> > > too high

> >>> > > > > > > after being too low for 7 years but i have just

> >>> stopped taking

> >>> > > > > > > potassium as per renal specialist ,my brother

> >>> suggested i

> >>> > > shouldnt

> >>> > > > > > > be taking anything except spiro as he thinks im

> >>> dehydrated

> >>> > > due to

> >>> > > > > > > spiro and thats why all this stuff with my stomach is

> >>> > > happening and

> >>> > > > > > > also the effects of the colonoscopy and my g.p has just

> >>> > > taken me off

> >>> > > > > > > the norvasc all together to get the blood pressure

> >>> back up

> >>> > > again to

> >>> > > > > > > near normal so out of 3 doctors 3 differing opinions

> >>> lol.

> >>> > > > > > > ive been to hell and back for the last 7 years as most

> >>> of

> >>> > > you have

> >>> > > > > > > too the sleepness nights bad headaches ,dizziness sore

> >>> bones

> >>> > > and

> >>> > > > > > > muscles bad stomach, foggy head, bad short term memory

> >>> and

> >>> > > > > > > concentration always tired sleepin a lot during the

> >>> day .I

> >>> > > > > > > eventually had to give up my job as i just couldnt do it

> >>> > > anymore so

> >>> > > > > > > ive been off work for 12 months and most of all

> >>> depressed

> >>> > > for last 6

> >>> > > > > > > or so years oh and libido what libido(lol).

> >>> > > > > > >

> >>> > > > > > > So any advice or suggestions would be greatly

> >>> appreciated .I

> >>> > > thank

> >>> > > > > > > you guys for this group as conns should be made more

> >>> aware

> >>> > > of .i

> >>> > > > > > > think a lot out there that dont know they have it .Im

> >>> seeing

> >>> > > > > > > anethitest on wednesday for chat before op so is there

> >>> > > anything i

> >>> > > > > > > should ask ????

> >>> > > > > > > I wish you all the best of health .

> >>> > > > > > > kind regards

> >>> > > > > > > paul

> >>> > > > > > >

> >>> > > > > > >

> >>> > > > > >

> >>> > > > >

> >>> > > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> >

> >>>

> >>>

> >>>

> >>

> >>

> >>

> >

> >

> >

> >

>

[Guest guest]

That's sounds good that he looked at your list. I made a symptom listand

spreadsheet with test results trying to help out my doctor and one doctor didn't

look at them at all and the endo I recently saw seemed to have looked at them

some but not enough I think. I wish they would just read it -sometimes it is

hard to describe all of the weird symptoms, especially if I'm prone to

forgetting things and worried about leaving out something. I think if they read

it before appoinment and then ask us questions about the symptoms then they can

get a better feel of what is going on.

---- Clarence Grim wrote:

> I can understand being obsessed as many others here can as well. Hope

> we are getting closer to getting you some help.

> CE Grim

>

>

> > Sorry, if I'm sounding like I'm obsessed! I won't reply to

> > anymore on my phone until I've created that file and have some

> > results.

> >

> > I've taken a long list to appointments before and worry as makes me

> > feel like a hypocondriac sitting there with a big list!

> >

> > Although, a neurologist at barts said thankyou, when I gave him a

> > list of symptoms asked if he could have a copy. Then wrote saying

> > its an obvious Endocrine problem!

> >

> > Thanks

> > Tc

> > Mandy

> >

> > Sent using BlackBerry® from Orange

> >

> >

> > Date: Mon, 15 Mar 2010 16:35:23 -0500

> > To: <hyperaldosteronism >

> > Subject: Numbering system for many problems

> > some have here.

> >

> >

> > You seem to be getting a bit redundundundent here.

> >

> >

> > Recommend you develop a numbered list of your problems to take to

> > Bart's. Sort of a 20 Questions list.

> > This will help all who care for you. Indeed this list should be how

> > we develop our questionnaire I would think. Maybe I left some out.

> >

> >

> > Start at the top of your head and work your way down to your feet.

> >

> > This way you will not have to repeat your self when talking to us

> > you can say see my list for number 5 in our files for complete

> > details, etc.

> > This will be a great help to your health care team and to you to

> > help keep things straight.

> >

> > For each problem: list when it started, what it is like, does it

> > move anywhere, how long does it last, what makes it better, What

> > makes it worse, How do you stop it. What do you think the cause is.

> >

> > 1. Hair-skin-nails

> > 2. Headache, Mental Health

> > 3. Eyes

> > 4. Ears

> > 5. Nose-Mouth-Throat

> > 6. Sleep

> > 7. Teeth

> > 8. Neck

> > 9. Thyroid/Parathyroid

> > 10. Other Endocrine: pituitary, adrenals, pancreas, goands.

> > 11. Carotids other arteries.

> > 12. Lungs

> > 13. Heart

> > 14. Gut: Stomach, Gallbladder, Liver, Colon, hernia

> > 15. Urine System: Kidneys, Bladder, stones, peeing

> > 16. Female System: menses etc

> > 17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes

> > 18. Blood: anemia, etc.

> > 19. Infections/Immune system

> > 20. Veins

> >

> >

> >

> >

> >

> >

> >> Makes sense.

> >>

> >> I get it also off of my diet but then there are time I don't when

> >> iam off the diet.

> >>

> >> Maybe it depends what I've eaten off my diet. If I've just had

> >> chocolate or a lot more bread/salty foods.

> >>

> >> When this first started and I'd seen homeopath. If I came off the

> >> diet I was much worse but I think it was because she said I musnt

> >> have any caffeine.

> >>

> >> So, I'd have the salt just drink water all day.

> >>

> >> The last two years I've gone back to drinking black tea (can't

> >> drink much with milk) as I do feel some relief of symptoms but new

> >> symptoms from doing so.

> >>

> >> I can't drink coffee I tremble, manic and can feel a massive

> >> fatigue, angry emotional etc. as it wears off!

> >>

> >> Also, with chocolate my face looks better (weakness) but then I

> >> have a crash type feeling..maybe its the caffine.

> >>

> >>

> >> Sent using BlackBerry® from Orange

> >>

> >>

> >> Date: Mon, 15 Mar 2010 08:41:55 -0500

> >> To: <hyperaldosteronism >

> >> Subject: Re: Re: Conn's syndrome and

> >> spirolactineSo

> >>

> >>

> >> mostly from having too much fat in belly which pushes stomach into

> >> chest.

> >>

> >> But we need to have a good reflux question set. Some BP meds

> >> interfere with the gastroesop muscle.sphincter.

> >>

> >>

> >>> Do you suffer reflux with pa? I either get it after eating normal

> >>> but at other times eating normal I don't.

> >>>

> >>> Same with sister. This is what makes me wonder about cushings if

> >>> cycling.

> >>>

> >>> Sent using BlackBerry® from Orange

> >>>

> >>>

> >>> Date: Mon, 15 Mar 2010 02:28:38 -0000

> >>> To: <hyperaldosteronism >

> >>> Subject: Re: Conn's syndrome and spirolactine

> >>>

> >>>

> >>> If you look at my legs they are swelling. looking at my arms and

> >>> hands it looks like they are dehydrated. I know that I am not

> >>> dehydrated. I belive my skin has lost some of its flexibility. I

> >>> am 62 but me skin looks like and 80 year olds.

> >>>

> >>> I think is may be the same with moseleymand.

> >>>

> >>>

> >>> > > > > >

> >>> > > > > > > Hi Everyone

> >>> > > > > > > My name is 47 years old from sydney australia and i

> >>> > > have been

> >>> > > > > > > diagosed with conns syndrome after 7 years of firstly

> >>> high

> >>> > > and hard

> >>> > > > > > > to control blood pressure.I had conns tests intially

> >>> when i

> >>> > > got high

> >>> > > > > > > blood pressure they did everything including blood

> >>> tests,

> >>> > > urine

> >>> > > > > > > tests ,a renal dopler (checks veins near kidneys ,i

> >>> was in

> >>> > > hospital

> >>> > > > > > > for 2 weeks but they didnt do any avs or ct scans and

> >>> finally

> >>> > > > > > > discounted thst i had conns !!!

> >>> > > > > > > Now 7 years later and thousands of tablets later they

> >>> finally

> >>> > > > > > > decided to do a ct scan and found a 12mm tumor on my

> >>> right

> >>> > > adrenal

> >>> > > > > > > gland (so i guess it was small when i first got high b/

> >>> > > p) .Have been

> >>> > > > > > > on spiracton for aprox 8 weeks now but still feeling

> >>> like

> >>> > > crap my bp

> >>> > > > > > > has dropped from the usual 150-160/90-100 yes even on

> >>> all

> >>> > > the meds

> >>> > > > > > > below to a very low 100/60 , i did have a colonoscopy 2

> >>> > > weeks ago

> >>> > > > > > > and had to take the preperation to clear the bowel so

> >>> > > probably lost

> >>> > > > > > > a lot of fluid and electrolites my b/p went down to

> >>> 88/58

> >>> > > when i had

> >>> > > > > > > the colonoscopy but has risen a little since then

> >>> although not

> >>> > > > > > > much .I better tell you guys what meds i was on and

> >>> now take

> >>> > > well.

> >>> > > > > > >

> >>> > > > > > > Before 1 x atacand (candesartan cilexetil) 32mg once a

> >>> day

> >>> > > > > > > 1 x gopten (dolopril) 4mg once a day

> >>> > > > > > > 1 x betaloc (metropol)100mg twice a day

> >>> > > > > > > 1 x potassium chlor 600mg twice a day

> >>> > > > > > > 1 x norvasc (amlodipine) 10mg once a day

> >>> > > > > > > 2 x zoloft (sertaline) 100mg once a day.

> >>> > > > > > > 1 x slow-k potasium 600mg twice a day

> >>> > > > > > > 2 x alprazolam 1mg at night

> >>> > > > > > >

> >>> > > > > > > Now 1 x atacand 32mg once a day

> >>> > > > > > > 1 x gopten 4mg once a day

> >>> > > > > > > 1 x betaloc twice a day

> >>> > > > > > > 2 x zoloft once a day

> >>> > > > > > > 1 x spircton 100mg twice a day.

> >>> > > > > > > 2 x alprazolam 1mg ayt night

> >>> > > > > > >

> >>> > > > > > > Now the only trouble is i feel worse than before i am

> >>> getting

> >>> > > > > > > headaches ,really bad digestion and bowel

> >>> movements(maybe a

> >>> > > little

> >>> > > > > > > from colonscopy) sterum pain, back pain, light headed at

> >>> > > times, hot

> >>> > > > > > > flushes and sweat like a fountain when i do most

> >>> things even

> >>> > > when i

> >>> > > > > > > sit down on cold days too??

> >>> > > > > > > Im am booked for a hand assisted laproscopic

> >>> adrenaldectomy

> >>> > > for 1 st

> >>> > > > > > > april .I have a renal proffessor doing the surgery and

> >>> my

> >>> > > renal

> >>> > > > > > > specialist assisting (although i dont have a lot of

> >>> > > confidence in this

> >>> > > > > > > guy but the professor is great ).

> >>> > > > > > > Im getting a lot of conflictiiong opinions from my

> >>> g.p / my

> >>> > > renal

> >>> > > > > > > specialist and my brother who is a an emergency

> >>> doctor.You

> >>> > > see my

> >>> > > > > > > creatinine (kidneys 50-60% working ) has risen

> >>> alarmingly

> >>> > > and it was

> >>> > > > > > > always normal even with high b/p and my pottasium has

> >>> risen

> >>> > > too high

> >>> > > > > > > after being too low for 7 years but i have just

> >>> stopped taking

> >>> > > > > > > potassium as per renal specialist ,my brother

> >>> suggested i

> >>> > > shouldnt

> >>> > > > > > > be taking anything except spiro as he thinks im

> >>> dehydrated

> >>> > > due to

> >>> > > > > > > spiro and thats why all this stuff with my stomach is

> >>> > > happening and

> >>> > > > > > > also the effects of the colonoscopy and my g.p has just

> >>> > > taken me off

> >>> > > > > > > the norvasc all together to get the blood pressure

> >>> back up

> >>> > > again to

> >>> > > > > > > near normal so out of 3 doctors 3 differing opinions

> >>> lol.

> >>> > > > > > > ive been to hell and back for the last 7 years as most

> >>> of

> >>> > > you have

> >>> > > > > > > too the sleepness nights bad headaches ,dizziness sore

> >>> bones

> >>> > > and

> >>> > > > > > > muscles bad stomach, foggy head, bad short term memory

> >>> and

> >>> > > > > > > concentration always tired sleepin a lot during the

> >>> day .I

> >>> > > > > > > eventually had to give up my job as i just couldnt do it

> >>> > > anymore so

> >>> > > > > > > ive been off work for 12 months and most of all

> >>> depressed

> >>> > > for last 6

> >>> > > > > > > or so years oh and libido what libido(lol).

> >>> > > > > > >

> >>> > > > > > > So any advice or suggestions would be greatly

> >>> appreciated .I

> >>> > > thank

> >>> > > > > > > you guys for this group as conns should be made more

> >>> aware

> >>> > > of .i

> >>> > > > > > > think a lot out there that dont know they have it .Im

> >>> seeing

> >>> > > > > > > anethitest on wednesday for chat before op so is there

> >>> > > anything i

> >>> > > > > > > should ask ????

> >>> > > > > > > I wish you all the best of health .

> >>> > > > > > > kind regards

> >>> > > > > > > paul

> >>> > > > > > >

> >>> > > > > > >

> >>> > > > > >

> >>> > > > >

> >>> > > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> > >

> >>> >

> >>>

> >>>

> >>>

> >>

> >>

> >>

> >

> >

> >

> >

>

[Guest guest]

One the other hand you can get. A lot from just talking to pt. But a list will help focus. Just took one with me to my Dr. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

That's sounds good that he looked at your list. I made a symptom listand spreadsheet with test results trying to help out my doctor and one doctor didn't look at them at all and the endo I recently saw seemed to have looked at them some but not enough I think. I wish they would just read it -sometimes it is hard to describe all of the weird symptoms, especially if I'm prone to forgetting things and worried about leaving out something. I think if they read it before appoinment and then ask us questions about the symptoms then they can get a better feel of what is going on.

---- Clarence Grim <lowerbp2mac> wrote:

> I can understand being obsessed as many others here can as well. Hope

> we are getting closer to getting you some help.

> CE Grim

> On Mar 15, 2010, at 4:48 PM, moseleymandhotmail (DOT) co.uk wrote:

>

> > Sorry, if I'm sounding like I'm obsessed! I won't reply to

> > anymore on my phone until I've created that file and have some

> > results.

> >

> > I've taken a long list to appointments before and worry as makes me

> > feel like a hypocondriac sitting there with a big list!

> >

> > Although, a neurologist at barts said thankyou, when I gave him a

> > list of symptoms asked if he could have a copy. Then wrote saying

> > its an obvious Endocrine problem!

> >

> > Thanks

> > Tc

> > Mandy

> >

> > Sent using BlackBerry® from Orange

> >

> > From: Clarence Grim <lowerbp2mac>

> > Date: Mon, 15 Mar 2010 16:35:23 -0500

> > To: <hyperaldosteronism >

> > Subject: Numbering system for many problems

> > some have here.

> >

> >

> > You seem to be getting a bit redundundundent here.

> >

> >

> > Recommend you develop a numbered list of your problems to take to

> > Bart's. Sort of a 20 Questions list.

> > This will help all who care for you. Indeed this list should be how

> > we develop our questionnaire I would think. Maybe I left some out.

> >

> >

> > Start at the top of your head and work your way down to your feet.

> >

> > This way you will not have to repeat your self when talking to us

> > you can say see my list for number 5 in our files for complete

> > details, etc.

> > This will be a great help to your health care team and to you to

> > help keep things straight.

> >

> > For each problem: list when it started, what it is like, does it

> > move anywhere, how long does it last, what makes it better, What

> > makes it worse, How do you stop it. What do you think the cause is.

> >

> > 1. Hair-skin-nails

> > 2. Headache, Mental Health

> > 3. Eyes

> > 4. Ears

> > 5. Nose-Mouth-Throat

> > 6. Sleep

> > 7. Teeth

> > 8. Neck

> > 9. Thyroid/Parathyroid

> > 10. Other Endocrine: pituitary, adrenals, pancreas, goands.

> > 11. Carotids other arteries.

> > 12. Lungs

> > 13. Heart

> > 14. Gut: Stomach, Gallbladder, Liver, Colon, hernia

> > 15. Urine System: Kidneys, Bladder, stones, peeing

> > 16. Female System: menses etc

> > 17. Joints:Back, Legs, Ankles, Hand/Feet/Fingers/Toes

> > 18. Blood: anemia, etc.

> > 19. Infections/Immune system

> > 20. Veins

> >

> >

> >

> >

> > On Mar 15, 2010, at 12:01 PM, moseleymandhotmail (DOT) co.uk wrote:

> >

> >> Makes sense.

> >>

> >> I get it also off of my diet but then there are time I don't when

> >> iam off the diet.

> >>

> >> Maybe it depends what I've eaten off my diet. If I've just had

> >> chocolate or a lot more bread/salty foods.

> >>

> >> When this first started and I'd seen homeopath. If I came off the

> >> diet I was much worse but I think it was because she said I musnt

> >> have any caffeine.

> >>

> >> So, I'd have the salt just drink water all day.

> >>

> >> The last two years I've gone back to drinking black tea (can't

> >> drink much with milk) as I do feel some relief of symptoms but new

> >> symptoms from doing so.

> >>

> >> I can't drink coffee I tremble, manic and can feel a massive

> >> fatigue, angry emotional etc. as it wears off!

> >>

> >> Also, with chocolate my face looks better (weakness) but then I

> >> have a crash type feeling..maybe its the caffine.

> >>

> >>

> >> Sent using BlackBerry® from Orange

> >>

> >> From: Clarence Grim <lowerbp2mac>

> >> Date: Mon, 15 Mar 2010 08:41:55 -0500

> >> To: <hyperaldosteronism >

> >> Subject: Re: Re: Conn's syndrome and

> >> spirolactineSo

> >>

> >>

> >> mostly from having too much fat in belly which pushes stomach into

> >> chest.

> >>

> >> But we need to have a good reflux question set. Some BP meds

> >> interfere with the gastroesop muscle.sphincter.

> >> On Mar 15, 2010, at 4:30 AM, moseleymandhotmail (DOT) co.uk wrote:

> >>

> >>> Do you suffer reflux with pa? I either get it after eating normal

> >>> but at other times eating normal I don't.

> >>>

> >>> Same with sister. This is what makes me wonder about cushings if

> >>> cycling.

> >>>

> >>> Sent using BlackBerry® from Orange

> >>>

> >>> From: "Francis Bill SUSPECTED PA" <georgewbill>

> >>> Date: Mon, 15 Mar 2010 02:28:38 -0000

> >>> To: <hyperaldosteronism >

> >>> Subject: Re: Conn's syndrome and spirolactine

> >>>

> >>>

> >>> If you look at my legs they are swelling. looking at my arms and

> >>> hands it looks like they are dehydrated. I know that I am not

> >>> dehydrated. I belive my skin has lost some of its flexibility. I

> >>> am 62 but me skin looks like and 80 year olds.

> >>>

> >>> I think is may be the same with moseleymand.

> >>>

> >>>

> >>> > > > > >

> >>> > > > > > > Hi Everyone

> >>> > > > > > > My name is 47 years old from