Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 I don’t believe “fibromyalgia” exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.” What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.” I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright Yes, but I'm unable to separate the ALL the causes of a general term, fibromyalgia, which may be caused by several medications, lack of BG control, gut problems, kidney problems, arthritic pain, and generalized joint pain. I've never had Lyme but I know people who did. Oddly they're not dead before me. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Francis, other ticks have found to be carrying Lyme. In the south, the Lonestar tick is the one to watch. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PA It is only the deer tick that spreads lyme. There is more then one type but they are very small and most would not know they had one on them. The bigger ticks that most see can spread ehrlichiosis, Rocky Mountain spotted fever, Relapsing fever, Colorado tick fever and tularemia. For what ever reason the number of ticks in getting out of control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Your doctor could not have possibly known from merely looking at the tick. If you had a bullseye rash that spread, you have/had Lyme. Only 50% of cases have that tell-tell rash. Lyme is found in every state In the U.S. and every country. I got my tick in Arkansas as have several of my husband’s family. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright I carried the one tick to the Dr and he said it wasn;t a Lyme tick, and he examined the location of the bite. It leaves a circle or something. I can assure you we have a S/L of ticks - they're just not Lyme type. And cattle raisers (who surround me with thousands (300k?) of cattle), regularly dip their herds. And the S/L of other insects accompanied by regular use of insecticides - everywhere in Texas, maybe helps to keep the yankee ticks away. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Some would say the same about Lyme. Low K can cause lots of the Sx of both. How as K related to your problems if at all?Sorry I forgot the details.CE Grim MDI don’t believe “fibromyalgia” exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.” What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.” I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics.Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright Yes, but I'm unable to separate the ALL the causes of a general term, fibromyalgia, which may be caused by several medications, lack of BG control, gut problems, kidney problems, arthritic pain, and generalized joint pain. I've never had Lyme but I know people who did. Oddly they're not dead before me. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Have I given you all my joke about the prostitute who had Rocky Mountain Spotted Fever?Could change it to Lyme as well. If so I won't repeat it.CE Grim MDYour doctor could not have possibly known from merely looking at the tick. If you had a bullseye rash that spread, you have/had Lyme. Only 50% of cases have that tell-tell rash. Lyme is found in every state In the U.S. and every country. I got my tick in Arkansas as have several of my husband’s family. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright I carried the one tick to the Dr and he said it wasn;t a Lyme tick, and he examined the location of the bite. It leaves a circle or something. I can assure you we have a S/L of ticks - they're just not Lyme type. And cattle raisers (who surround me with thousands (300k?) of cattle), regularly dip their herds. And the S/L of other insects accompanied by regular use of insecticides - everywhere in Texas, maybe helps to keep the yankee ticks away. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 At least Lyme can be measured, even if adequate measurement takes heroic efforts. Is there any test for “fibromyalgia”? I don’t have low K now but it has been borderline low two times I’ve been to the ER. Both times I was on HCTZ. I am on spiro/Inspra so K is not a problem. I saw my doc on 4/9 and forgot to ask about low K and Lyme. I know low magnesium is an issue. He told me to take 2,000 – 3,000 mg/d. I can’t take that much but do take about 1,800 mg. The rest of the “polymyalgia” scam for me was that my HMO didn’t want to pay for parathyroid surgery. Since that was my insurance, I had no choice until I could escape. Thank God, I was able to escape. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Some would say the same about Lyme. Low K can cause lots of the Sx of both. How as K related to your problems if at all? On Apr 26, 2010, at 11:23 AM, Valarie wrote: I don’t believe “fibromyalgia” exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.” What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.” I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Okay, let’s hear about the prostitute who had Rocky Mountain Spotted Fever. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Have I given you all my joke about the prostitute who had Rocky Mountain Spotted Fever? Could change it to Lyme as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 CDC says about 20,000 cases/year in U.S. but says it is under-reported by 10 – 12 times. Worse areas are the NE and upper Midwest, but it’s all over. I’ve seen maps that show you right in the middle of the epidemic. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Lots of ticks here. Not much Lyme that I have seen. Many have had the test but all neg. It appears but lots of reported cases. My guess is that it is markedly undereported. No one had done a random survey up here that I know of. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 I never see ticks unless hunting where cattle roam. Why is Lyme not prevalent in Houston, eg, if it's trans'd by rats and mice? There hasta be some reason they are prevalent in spots. Maybe the fire ants eat them. Regards Re: Re: U.S. Plans Drive to Limit Salt in Foods Guess you can troll for them by walking in the grass and then picking the off. and if you do it enough you will get rid of them. CE Grim MD On Apr 26, 2010, at 9:30 AM, Francis Bill SUSPECTED PA wrote: It is becoming common to just work in your yard and get at least one tick on you. A walk in tall grass will net 4 or 5 ticks. > > > > >> > > IgeneX in CA. There are others but I don't know about them.> > >> > >> > >> > > Val> > >> > >> > >> > >> > >> > > From: hyperaldosteronism [mailto:hyperaldosteronism > > > ] On Behalf Of Clarence Grim> > >> > >> > > I dont know where you send it to be tested up here. The state wont > > > do it.> > >> > >> > >> > > CE Grim MD> > >> > >> __________ NOD32 4893 (20100224) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Mine declined when I ducked the toprol. RE: Re: U.S. Plans Drive to Limit Salt in Foods I don’t believe “fibromyalgia” exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.” What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.” I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright Yes, but I'm unable to separate the ALL the causes of a general term, fibromyalgia, which may be caused by several medications, lack of BG control, gut problems, kidney problems, arthritic pain, and generalized joint pain. I've never had Lyme but I know people who did. Oddly they're not dead before me. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 That still begs the question why not prevalent here? Instead NYC area, eg? I didn't have a rash. Maybe some people are immune? RE: Re: U.S. Plans Drive to Limit Salt in Foods Your doctor could not have possibly known from merely looking at the tick. If you had a bullseye rash that spread, you have/had Lyme. Only 50% of cases have that tell-tell rash. Lyme is found in every state In the U.S. and every country. I got my tick in Arkansas as have several of my husband’s family. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jwwright I carried the one tick to the Dr and he said it wasn;t a Lyme tick, and he examined the location of the bite. It leaves a circle or something. I can assure you we have a S/L of ticks - they're just not Lyme type. And cattle raisers (who surround me with thousands (300k?) of cattle), regularly dip their herds. And the S/L of other insects accompanied by regular use of insecticides - everywhere in Texas, maybe helps to keep the yankee ticks away. Regards __________ NOD32 4893 (20100224) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 But parathryoid surgery is not for polymyalgia I dont think.CE Grim MDAt least Lyme can be measured, even if adequate measurement takes heroic efforts. Is there any test for “fibromyalgia”? I don’t have low K now but it has been borderline low two times I’ve been to the ER. Both times I was on HCTZ. I am on spiro/Inspra so K is not a problem. I saw my doc on 4/9 and forgot to ask about low K and Lyme. I know low magnesium is an issue. He told me to take 2,000 – 3,000 mg/d. I can’t take that much but do take about 1,800 mg. The rest of the “polymyalgia” scam for me was that my HMO didn’t want to pay for parathyroid surgery. Since that was my insurance, I had no choice until I could escape. Thank God, I was able to escape. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimSome would say the same about Lyme. Low K can cause lots of the Sx of both. How as K related to your problems if at all? I don’t believe “fibromyalgia” exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.” What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.” I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics.Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 She took a ticking but kept on licking.Okay, let’s hear about the prostitute who had Rocky Mountain Spotted Fever. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimHave I given you all my joke about the prostitute who had Rocky Mountain Spotted Fever?Could change it to Lyme as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Well, we have deer, and many cattle, just not many ticks here. I have not seen a tick in this county. I have seen them at my son's farther north on dogs. I never saw a tick on deer we hunted in Lavaca county - warmer- farther South. The last I saw was in a house we bought next to the sliding door. They had dogs. We chlorodaned the place. We are near Nat'l forests where deer hunker down in season. One county North abounds in deer. Last I heard, TX has 3 million deer. In Llano county deer casually walk into yards and eat shrubbery and people put out feeders. With that many deer and every family averaging at least 1 dog and 1 cat, how can they be so non-prevalent? We see deer road kill regularly. In a place I can stand still and catch fire ants, I never see a tick. I do shower each time I come in from mowing/tree trimming. Clothes worn outside do not make it to the bedroom. But it's not the tocks, it's the other thousand biting, flying, stinging, food defiling critters. Black flies, yellow flies, noseeums, thirteen kinds of wasps including browns that will chase/attack you. But no ticks. Maybe the mosquito spray? Regards Re: Re: U.S. Plans Drive to Limit Salt in Foods Write that up and you might win the poulitzer prize. CE Grim MD On Apr 24, 2010, at 4:25 PM, Francis Bill SUSPECTED PA wrote: It this statement is true Guineafowl consume mass quantities of ticks. Just 2 birds can clear 2 acres in a single year. Do you think it would be a good law if our Gov would make it so there be there had to be 1 guineafowl per acre. Where it was shown deer ticks live > __________ NOD32 4893 (20100224) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 I can assure you that fibromyalgia exists. There is much research showing an up-regulation of substance P, alterations to autonomic nerve function, changes in brain PET scans and differences in the amount of force that evokes pain at pressure points. The symptoms overlap other disorders and since fibromyalgia is a diagnosis of exclusion, there are diagnostic mistakes. That doesn't mean it doesn't exist. From: Valarie To: hyperaldosteronism Sent: Mon, April 26, 2010 12:23:42 PMSubject: RE: Re: U.S. Plans Drive to Limit Salt in Foods I don’t believe “fibromyalgia†exists. While my BP was raging and my bones were disintegrating, I was diagnosed with “polymyalgia.†What a scam! Those are ignorant terms for “I don’t know, am too stupid to recognize what the patient tells me it is, and too lazy to research it.†I’ve read of too many people being cured of fibromyalgia and chronic fatigue with antibiotics. Val From: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism@yahoogro ups.com] On Behalf Of jwwright Yes, but I'm unable to separate the ALL the causes of a general term, fibromyalgia, which may be caused by several medications, lack of BG control, gut problems, kidney problems, arthritic pain, and generalized joint pain. I've never had Lyme but I know people who did. Oddly they're not dead before me. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Convenience foods that are low in salt are more expensive and less variety. Good quality low salt foods are readily available and abundant. Just shop at the edges of the grocery store where all the produce, nuts, fish and fresh meats are sold. The middle shelves are stocked with toxic waste. Check out the DASH diet book. To: hyperaldosteronism Sent: Mon, April 26, 2010 8:28:22 PMSubject: Re: U.S. Plans Drive to Limit Salt in Foods It makes it hard to change salt intake when most foods have as much in them as they do. Most stores have limited low salt foods. what they do have costs more to buy and many have limited money to buy food. Most food that the poor can afford to by is loaded with salt. Even some of the better meats are hard to find that doesn't have added salt. > > > > > There has been little if no public education, and most doctors don't > > seem to understand sodium either. > > > > > > > > Val > > > > > > > > > > > > From: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldosteronism@ yahoogroups. com > > ] On Behalf Of Clarence Grim > > > > > > We have been disclosing at least on packages for 15 years and salt > > intake has not gone down. > > > > > > > > Disclosure without educating the public is not worth while I don't > > think. And there are few choices if you eat out which lots of folks > > do at McDs etc. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 I don’t mean there is no such thing. I offer that it is a symptom of something else. Have you heard the new stuff out on XMRV? I have a friend who is desperately ill with fibromyalgia. She’s originally from Connecticut, home of Lyme. Her son and DIL have both had it. I’ve been trying to get her to go see my doc but she’s so sick, I doubt she’ll ever make it. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Zhen Chu I can assure you that fibromyalgia exists. There is much research showing an up-regulation of substance P, alterations to autonomic nerve function, changes in brain PET scans and differences in the amount of force that evokes pain at pressure points. The symptoms overlap other disorders and since fibromyalgia is a diagnosis of exclusion, there are diagnostic mistakes. That doesn't mean it doesn't exist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Polymyalgia was the HMO’s way of saving money. That was the contention even with the sestimibi scan that showed the adenoma. It all went away when the adenoma was removed. Funny how things like that happen. VM From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim But parathryoid surgery is not for polymyalgia I dont think. CE Grim MD On Apr 26, 2010, at 2:13 PM, Valarie wrote: The rest of the “polymyalgia” scam for me was that my HMO didn’t want to pay for parathyroid surgery. Since that was my insurance, I had no choice until I could escape. Thank God, I was able to escape. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Sick! VM From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim She took a ticking but kept on licking. On Apr 26, 2010, at 2:14 PM, Valarie wrote: Okay, let’s hear about the prostitute who had Rocky Mountain Spotted Fever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 A definitive indication is the rash, but that doesn’t happen all of the time. There are places in the east where 90% of ticks are infected. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Will see what the charge is. Need to know what the prob of infection if tick has L with Rx vs non-Rx, what Rx to use and the risks/benefits of Rx. People up here seem to have ticks every few weeks but most people do not have L. CE Grim MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1281460/From: Valarie To: hyperaldosteronism Sent: Mon, April 26, 2010 10:33:39 PMSubject: RE: Re: U.S. Plans Drive to Limit Salt in Foods Polymyalgia was the HMO’s way of saving money. That was the contention even with the sestimibi scan that showed the adenoma. It all went away when the adenoma was removed. Funny how things like that happen. VM From: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism@yahoogro ups.com] On Behalf Of Clarence Grim But parathryoid surgery is not for polymyalgia I dont think. CE Grim MD On Apr 26, 2010, at 2:13 PM, Valarie wrote: The rest of the “polymyalgia†scam for me was that my HMO didn’t want to pay for parathyroid surgery. Since that was my insurance, I had no choice until I could escape. Thank God, I was able to escape. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Yes, I have read about XMRV on aboutcfsme and at the Whittemore peterson Institute website when they first made the anouncement. XMRV may be a cause or it may simply be associated with Fibromyalgia. Just because you see umbrellas doesn't mean they umbrellas cause rain. Let's hope they are right. To: hyperaldosteronism Sent: Mon, April 26, 2010 10:19:14 PMSubject: RE: Re: U.S. Plans Drive to Limit Salt in Foods I don’t mean there is no such thing. I offer that it is a symptom of something else. Have you heard the new stuff out on XMRV? I have a friend who is desperately ill with fibromyalgia. She’s originally from Connecticut, home of Lyme. Her son and DIL have both had it. I’ve been trying to get her to go see my doc but she’s so sick, I doubt she’ll ever make it. Val From: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism@yahoogro ups.com] On Behalf Of Zhen Chu I can assure you that fibromyalgia exists. There is much research showing an up-regulation of substance P, alterations to autonomic nerve function, changes in brain PET scans and differences in the amount of force that evokes pain at pressure points. The symptoms overlap other disorders and since fibromyalgia is a diagnosis of exclusion, there are diagnostic mistakes. That doesn't mean it doesn't exist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 I forgot you had an adenoma removed?? VM?http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1281460/To: hyperaldosteronism Sent: Mon, April 26, 2010 10:33:39 PMSubject: RE: Re: U.S. Plans Drive to Limit Salt in Foods Polymyalgia was the HMO’s way of saving money. That was the contention even with the sestimibi scan that showed the adenoma. It all went away when the adenoma was removed. Funny how things like that happen. VM From: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism@yahoogro ups.com] On Behalf Of Clarence GrimBut parathryoid surgery is not for polymyalgia I dont think. CE Grim MDThe rest of the “polymyalgia” scam for me was that my HMO didn’t want to pay for parathyroid surgery. Since that was my insurance, I had no choice until I could escape. Thank God, I was able to escape. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Rice and beans and pasta are very slow sodium. and cheap.CE Grim MDOn Apr 26, 2010, at 7:28 PM, Francis Bill SUSPECTED PA wrote:It makes it hard to change salt intake when most foods have as much in them as they do. Most stores have limited low salt foods. what they do have costs more to buy and many have limited money to buy food. Most food that the poor can afford to by is loaded with salt.Even some of the better meats are hard to find that doesn't have added salt. > > >> > There has been little if no public education, and most doctors don't > > seem to understand sodium either.> >> >> >> > Val> >> >> >> >> >> > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Clarence Grim> >> >> > We have been disclosing at least on packages for 15 years and salt > > intake has not gone down.> >> >> >> > Disclosure without educating the public is not worth while I don't > > think. And there are few choices if you eat out which lots of folks > > do at McDs etc.> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 I did encounter an infestation of red bugs in 1963 - really bad. The guy I was fishing with had to go to the hospital. Is it possible that's where I got the "fibromyalgia"? In 1964, July 4th is when I couldn't stand up because my knees hurt bad. If it is, it apparently is not knocked out with penicillin given me many times for strep throat infections and dental problems. Regards Re: U.S. Plans Drive to Limit Salt in Foods Because everthing in Texas is big maybe they don't let the little ticks in.The dog tick is what most people see. > > > It this statement is true Guineafowl consume mass quantities of ticks. Just 2 birds can clear 2 acres in a single year. Do you think it would be a good law if our Gov would make it so there be there had to be 1 guineafowl per acre. Where it was shown deer ticks live > Quote Link to comment Share on other sites More sharing options...
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