Re: unknowledgeable doctors

July 22, 2006

In a message dated 7/17/2006 9:16:08 A.M. Pacific Daylight Time,

mickeyjdot@... writes:

I am suprised to hear your Doctors don't know much. Every Dr. I have

gone to knows at least a little bit.

One time a doctor that I saw thought CMT was a sexually transmitted disease.

July 28, 2006

Hello there,

My name is Melvin Jarvis. I live near Ellsinore, Missouri. I also was diagnosed

with CMT in 1998. Most of my concerns that turned me towards seeing a doc before

I was diagnosed with CMT was severe leg pain. I am talking so severe that after

doc said I had CMT and tried me on many many heavy narcotic pain killers. Like

the Lorcet 10/650 to the Duragesic patches, Morphine 30mg ER tablets.

I endup graduating to an implanted morphine pump thats implanted in my stumic on

the right side the concentrate that is in that is 500MG Per 18ML My pump holds

18ML. I get just a little over 4MG of that a day auto release. I seen many on

many of docs and no one seems to know anything about CMT here at all.

My little brothers have had the ankle tendon cut and lengthend and pieces

removed from there toes. To lengthen other tendons.

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