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Re: welcome Patty

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Hi Patty,

Congratulation on your nursing degree! My CMT reacts to stress too.

I know several nurses with CMT. Where are you thinking about working?

We sure can't predict what CMT will do next but I obsess over CMT at times also.

I try to keep positive by reading research and staying active on

when ever time allows. I am a worry wart by nature so being positive takes

practice.

Nice to meet you!

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WELCOME PATTY;

I'M DENNIS, FROM OREGON. WE WELCOME ALL HELP AND ASSISTANCE FROM KNOWLEDGEABLE

PEOPLE. I'M SORRY THAT YOU HAVE CMT; ALTHO IT COULD BE A BLESSING TO CMT.

YOUR BEING CONNECTED TO THE MEDICAL ARENA, AND AFTER YOUR UPDATED, YOU CAN

BECOME AN EMMISSARY FOR CMT. BUT WE ALL MUST BECOME, 'EMMISSARY'S' FOR OUR

CAUSE. WE ALL NEED TO SPEAK UP, TALK TO THE DOCS, GET THEM MORE AWARE OF OUR

FRUSTRATIONS AND CONCERNS. A FEW PEOPLE CAN DO A GOOD WORK, BUT ALOT OF PEOPLE

WILL SPREAD THE WORD SO MUCH FASTER. SO FELLOW MEMBERS, BECOME A MESSENGER, AND

CARRY FORTH THE WORD OF 'CMT', TO ALL WHOM YOU MAY VISIT, AND TALK TO EVERYONE

ABOUT IT. LET'S GET THE WORD OUT!

DENNIS

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Hi Patty and welcome to the group.

I read your introduction and wanted to say hello. My mother had CMT and was a

nurse for 35 years, until she passed away from cancer. Although she never

discussed her CMT and I suppose she was in a denial of sorts, she enjoyed her

work a lot. She used to get a lot of fatigue, but she was working shift work

for a long time and I think that contributed to it. I would think that doing

nursing part time would be fine as long as you did what you felt you could

manage, and you were in touch with yourself and knew how much was too much. My

mother worked in all varieties of jobs, but I remember her saying

she loved the neo-natal intensive care unit the best. She loved premature baby

work. She also worked on paediatric intensive care, which she also loved. She

worked with kids with cancer, and as she had cancer too I think it was good for

the kids and her - the developed great bonds. The work was not easy

emotionally, but I also think it was a way to put aside one's thoughts about

one's own problems and focus on giving care and cheer to others.

Another thing too about your intro. When my mother had chemo (she did not

discuss CMT with the doctors) she was diagnosed with Guillain Berre too. I told

my dad when I was diagnosed last year that I doubted now that the syndrome was

GB, but rather a negative effect of chemo on her CMT.

I think you will find this group really useful and a good place to come to ask

for advice or share news.

Best wishes from London,

Donna

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