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Hello to everyone. I am a 44 yr. old female who has recently been diagnosed

with CMT. I do not know which type yet. It has been 8 weeks since I have been

to Cleveland Clinic and still no answer from the DNA test. Meanwhile, I am

trying my best to remain positive.

My symptoms began during an extremely stressful time. I went back to school to

become a nurse and during my last semester began having numbness, weakness in my

hands and legs. Originally, docs thought it was a mild form of Guillain Barre.

My symptoms have subsided somewhat but my hands and forearms seem to be the most

bothersome. Fortunately, I have not had much trouble with my feet. I did see a

podiatrist and got custom orthotics which have made a difference in how my legs

and feet feel.

The worst part is not knowing how this will affect me and whether or not my

children will be affected. I took the summer off after graduating nursing

school to be with my 2 sons and planned to go to work in my new career as a

nurse but now I'm scared that it will make the symptoms worse.

In a way I feel like the distraction of working part time would be good for me

as I seem to be obsessing over CMT. I know that besides taking good care of

myself, there isn't anything I can do.

I am so happy to have found websites with others who understand. I hope I can

help support others in some way as well.

Patty

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