Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  Interesting - it makes me think I've had PA longer than I thought. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  Kidney doc is Htn specialist. My last doc visit last week had him stumped as to why my BP is still high...but is guessing that since it's been sitting up high for so long it will take a while to get down to normal level... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  DASH is the Dash Diet? Still haven't learned all the acronyms. Doc's never mentioned inspra. How receptive are docs to suggestions from other docs? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Good question! They say it is not endocrine related. DanaSent from my Verizon Wireless BlackBerrySender: hyperaldosteronism Date: Mon, 21 Jun 2010 18:53:45 -0500To: hyperaldosteronism <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City What did they think is causing your Htn. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jun 21, 2010, at 5:42 PM, Kathy Dugan <dugie@....com> wrote: Dana, would you recommend your endocrinologist? If so, can I have his/her name? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 All HTN is Endocrine that I know of. Guess they don't understand what hormones are. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Good question! They say it is not endocrine related. DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2mac> Sender: hyperaldosteronism Date: Mon, 21 Jun 2010 18:53:45 -0500To: hyperaldosteronism <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City What did they think is causing your Htn. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jun 21, 2010, at 5:42 PM, Kathy Dugan <dugie@....com> wrote:  Dana, would you recommend your endocrinologist? If so, can I have his/her name? Re: PA's in Kansas City CT identifies bump(s). AVS tells you if you will be better for a long time if it comes out. Review my article on the evolution of PA and you may want to take to your team as well. We can help more if we have the complete story. CE Grim, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Depends on how intellegent they are. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  DASH is the Dash Diet? Still haven't learned all the acronyms. Doc's never mentioned inspra. How receptive are docs to suggestions from other docs? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Only if they have been Board Certified by the AM Soc HTN IMHO. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  Kidney doc is Htn specialist. My last doc visit last week had him stumped as to why my BP is still high...but is guessing that since it's been sitting up high for so long it will take a while to get down to normal level... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New Topic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 That is almost always the case. Note my evolution article. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  Interesting - it makes me think I've had PA longer than I thought. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 And that is caused by?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  The loss of potassium and holding onto sodium... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  the excessive aldosterone I have...that's how I understand it anyway... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 I am frustrated. But they said since my potassium was not low and my aldosterone was not high they told me it wasn't PA. But Cozaar could affect both of those. Dr. Ream didn't think it was PA either. DanaSent from my Verizon Wireless BlackBerrySender: hyperaldosteronism Date: Mon, 21 Jun 2010 21:14:25 -0500To: hyperaldosteronism <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City All HTN is Endocrine that I know of. Guess they don't understand what hormones are. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jun 21, 2010, at 7:16 PM, cowdocsbcglobal (DOT) net wrote: Good question! They say it is not endocrine related. DanaSent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2mac>Sender: hyperaldosteronism Date: Mon, 21 Jun 2010 18:53:45 -0500To: hyperaldosteronism <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City What did they think is causing your Htn. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jun 21, 2010, at 5:42 PM, Kathy Dugan <dugie@....com> wrote: Dana, would you recommend your endocrinologist? If so, can I have his/her name? Re: PA's in Kansas City CT identifies bump(s). AVS tells you if you will be better for a long time if it comes out. Review my article on the evolution of PA and you may want to take to your team as well.We can help more if we have the complete story.CE Grim, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  my kidney dr doesn't have the best bed side manner; not too personable - but he seems intelligent. my next appoint. is july 16. how long do you think it takes to get this under control. i'm currently unemployed and need to get a job... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Kathy if you don't mind me asking who is your kidney doc?Sent from my Verizon Wireless BlackBerrySender: hyperaldosteronism Date: Mon, 21 Jun 2010 21:51:39 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City my kidney dr doesn't have the best bed side manner; not too personable - but he seems intelligent. my next appoint. is july 16. how long do you think it takes to get this under control. i'm currently unemployed and need to get a job... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  Gerald Ried - he's located at about 65th and Troost, KC,MO... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 I was just curious.Sent from my Verizon Wireless BlackBerrySender: hyperaldosteronism Date: Mon, 21 Jun 2010 21:55:10 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City Gerald Ried - he's located at about 65th and Troost, KC,MO... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  I'm kind of angry that this wasn't discovered 5 years ago when my Htn was diagnosed...could have been resolved by now I'm thinking... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 What symptoms are you currently having? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of cowdoc@... Â I am frustrated. But they said since my potassium was not low and my aldosterone was not high they told me it wasn't PA. But Cozaar could affect both of those. Dr. Ream didn't think it was PA either. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Not sure Bystolic is approved to treat anxiety.CE Grim MDBystolic may have been prescribed to manage the anxiety sensation that PA may cause. The edema from PA will stimulate the autonomic nervous system with anxiety as a symptom. Manage the edema with dash and sprio or inspra, the anxiety can subside. This is a lot of medications. Need to examine the excessive salt intake and take less stuff. From: Clarence Grim <lowerbp2mac>To: hyperaldosteronism Sent: Mon, June 21, 2010 5:41:44 PMSubject: Re: PA's in Kansas Citylisino will not work in PABystolic will not work in PAHave him read my evolution article. I am happy to help him.Inspra will not affect the menses. Have you ever had a renin and aldo measured?CE Grim Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today.On Jun 21, 2010, at 04:26 PM, Kathy Dugan <dugie@....com> wrote: Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily)I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 When K is low it is a 4th year Medical Student Dx.CE Grim MDI'm kind of angry that this wasn't discovered 5 years ago when my Htn was diagnosed...could have been resolved by now I'm thinking... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New TopicMessages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 And recall that a works in the medical field and lives just a short distance from Dr Conn's Home base (Univ of Mich) were it was first reported.a: Just wondering if most of your previous Drs who had missed it had or had not gone to Mich?They should NEVER miss this disease. ;-)CE Grim MDIt's not unusual. Several of us here went undiagnosed for 15 years or more. aWOW - I had no idea. They did do a CT scan on me - but no AVS that I'm aware of anyway - not sure what test consists of. This kidney doc was on call when I went into the hospital. I have not checked around for any others - but have checked to see if there's any alternative treatment methods. RE: [hyperaldosteronism ] PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism@ yahoogroups. com [mailto:hyperaldost eronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication-- too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New TopicMessages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Thats a good reason but recommened for BP as I recall. In anxious pts I do tend to use BB as well for the antianxiolytic effect some experience. Also nearly a miracle drug in some with migraine.Many PAs have migraine that goes away with spiro or ADX.CE Grim MDIf I recall from back in 2006, they prescribed for a rapid heart beat... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 About 10 x more would be my guess. It depends on how much your periods are messed up and how important that is to you.But if you have BP and have failed spiro due to side effects then it should be possible to get it. If I were in charge I would also want urine tests to be sure you are DASHing to the max before using it.CE Grim MDIs the med Inspra expensive - compared to my Spirolactone I get for $10? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 He can join our group or you can send me an email and I will send him my CV etc. and we can correspond directly. For this service (if he chooses not to join the group) I change $500 per year for unlimited access to me and my expertise by you and all of your health care team-email, tele, video conference. CE Grim MDhmmm...interesting. Dr. Grim - where are you located? You stated earlier that you'd be glad to work with my kidney doc? How does he get a hold of you? And thanks for all your help! RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New TopicMessages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010  OK, thanks. Again, where are you located? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Reply to sender | Reply to group | Reply via web post | Start a New TopicMessages in this topic (29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Milwaukee WI and S lake Tahoe NVOK, thanks. Again, where are you located? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward!Reply to sender | Reply to group | Reply via web post | Start a New TopicMessages in this topic (29 Quote Link to comment Share on other sites More sharing options...
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