Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Welcome and give us your story. You cannot give us too many details. And I just thought of another Dr. in KC if Dr. Winer does not work out. I believe Cowdoctor say the one there one I am thinking of but cant' whoops just did; Reams I taught his teacher. CE Grim MD CE Grim MD1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 These are endocronlogists, correct? Would you know Dr. Winer's first name? And what does NIH stand for? Thank you! Re: PA's in Kansas City Welcome and give us your story. You cannot give us too many details. And I just thought of another Dr. in KC if Dr. Winer does not work out. I believe Cowdoctor say the one there one I am thinking of but cant' whoops just did; Reams I taught his teacher. CE Grim MD CE Grim MD 1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. 2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this. 4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. 5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself. 6. Go to our file /Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. 7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/29186 9. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD. Clarence E. Grim BS, MS, MD, FACP, FACC Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure Clinincal Professor of Internal Medicine and Cardiology, Medical College of Wisconsin Specializing in Difficult to Control HIgh Blood Pressure. I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 ial as I recall. See our abbreviations file. You need to download this a you are learning a new language here.CEThese are endocronlogists, correct? Would you know Dr. Winer's first name? And what does NIH stand for? Thank you! Re: PA's in Kansas City Welcome and give us your story. You cannot give us too many details. And I just thought of another Dr. in KC if Dr. Winer does not work out. I believe Cowdoctor say the one there one I am thinking of but cant' whoops just did; Reams I taught his teacher. CE Grim MD CE Grim MD1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure.I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Thanks! I'm not finding these 2 drs in KC, but I'll keep looking... Re: PA's in Kansas City Welcome and give us your story. You cannot give us too many details. And I just thought of another Dr. in KC if Dr. Winer does not work out. I believe Cowdoctor say the one there one I am thinking of but cant' whoops just did; Reams I taught his teacher. CE Grim MD CE Grim MD 1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in. 2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore. or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdf download this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this. 4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly. 5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself. 6. Go to our file /Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team. 7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/29186 9. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD. Clarence E. Grim BS, MS, MD, FACP, FACC Board Certified in Internal Medicine, Geriatrics, and High Blood Pressure Clinincal Professor of Internal Medicine and Cardiology, Medical College of Wisconsin Specializing in Difficult to Control HIgh Blood Pressure. I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. RE: PA's in Kansas City How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Again go to our acronyms list and download. It is very extensive and will save you time.CE Grim MDNot familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. RE: PA's in Kansas City How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Sorry Dr. Winer is now in Brooklyn. Been awhile since I have seen him.CE Grim MDThanks! I'm not finding these 2 drs in KC, but I'll keep looking... Re: PA's in Kansas City Welcome and give us your story. You cannot give us too many details. And I just thought of another Dr. in KC if Dr. Winer does not work out. I believe Cowdoctor say the one there one I am thinking of but cant' whoops just did; Reams I taught his teacher. CE Grim MD CE Grim MD1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure.I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 WOW - I had no idea. They did do a CT scan on me - but no AVS that I'm aware of anyway - not sure what test consists of. This kidney doc was on call when I went into the hospital. I have not checked around for any others - but have checked to see if there's any alternative treatment methods. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 AVS is done through a vein in the leg. Some can do it from only side but most do it both sides. > > WOW - I had no idea. They did do a CT scan on me - but no AVS that I'm aware of anyway - not sure what test consists of. This kidney doc was on call when I went into the hospital. I have not checked around for any others - but have checked to see if there's any alternative treatment methods. > RE: PA's in Kansas City > > > > > Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. > > > > Val > > > > > > From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan > > > Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. > > ----- Original Message ----- > > From: Valarie > > > > How were you diagnosed bilateral? Did you have AVS? > > Val > > From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 > > > I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 CT identifies bump(s). AVS tells you if you will be better for a long time if it comes out.Review my article on the evolution of PA and you may want to take to your team as well.We can help more if we have the complete story.CE Grim, MDWOW - I had no idea. They did do a CT scan on me - but no AVS that I'm aware of anyway - not sure what test consists of. This kidney doc was on call when I went into the hospital. I have not checked around for any others - but have checked to see if there's any alternative treatment methods. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily) I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 lisino will not work in PABystolic will not work in PAHave him read my evolution article. I am happy to help him.Inspra will not affect the menses. Have you ever had a renin and aldo measured?CE Grim Clarence E. Grim, BS, MS, MD Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today. Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily) I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Are renin and aldo measured through blood draws? If blood draws, I assume I've had at least the aldo measured (all kidney dr said was aldo was very high) - not sure about renin. So with all these meds I take - would they make me tired or any one of them particularly? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 yes in blood. I renin low the need blood and urine aldo also.See Dr. Grim's best test somewhere in out files. CE Grim MDAre renin and aldo measured through blood draws? If blood draws, I assume I've had at least the aldo measured (all kidney dr said was aldo was very high) - not sure about renin. So with all these meds I take - would they make me tired or any one of them particularly? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Bystolic may have been prescribed to manage the anxiety sensation that PA may cause. The edema from PA will stimulate the autonomic nervous system with anxiety as a symptom. Manage the edema with dash and sprio or inspra, the anxiety can subside. This is a lot of medications. Need to examine the excessive salt intake and take less stuff. To: hyperaldosteronism Sent: Mon, June 21, 2010 5:41:44 PMSubject: Re: PA's in Kansas City lisino will not work in PABystolic will not work in PAHave him read my evolution article. I am happy to help him.Inspra will not affect the menses. Have you ever had a renin and aldo measured?CE Grim Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today. Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily) I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  Didn't know PA could cause anxiety - I still am researching this condition. I've had anxiety for years - that's why I was prescribed the Zoloft (sertraline). RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Kathy - just to let you know my cardiologist is associated with KU med so that is where I ended up going to see the endocrinologist. They informed me the other day they don't believe I have PA. But that is where I ended up going. DanaSent from my Verizon Wireless BlackBerrySender: hyperaldosteronism Date: Mon, 21 Jun 2010 17:29:04 -0500To: <hyperaldosteronism >ReplyTo: hyperaldosteronism Subject: Re: PA's in Kansas City Didn't know PA could cause anxiety - I still am researching this condition. I've had anxiety for years - that's why I was prescribed the Zoloft (sertraline). RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling.ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message -----From: Valarie How were you diagnosed bilateral? Did you have AVS?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  Dana, would you recommend your endocrinologist? If so, can I have his/her name? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 What did they think is causing your Htn. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  Dana, would you recommend your endocrinologist? If so, can I have his/her name? RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 As u will note in many stories anxiety is very common. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension  Didn't know PA could cause anxiety - I still am researching this condition. I've had anxiety for years - that's why I was prescribed the Zoloft (sertraline). RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 U need to see a hypertension specialist. Better than an endo or cards. Usually. Some are both which would be good also. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily) I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 You need more spiro DASH or inspra. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Is it best to see an endocrinologist versus a kidney doc? Here's my story: I was diagnosed with HBP in 2006 when hospitalized for pneumonia and influenza - but I suspect I've had it longer than this. BP was very high; about 220/125. It was discovered then my potassium was low. Started seeing an internist (who I still see). He had me on spirolactone with other BP meds, but it messed with my periods and eventually was off of it. He never put me on any other meds to replace the Spiro. My HBP has never been "managed" since this time. Clonidine was the only med that ever really knocked my HBP - but it made me so tired so he tried other meds but they haven't worked. I was never diagnosed with Primary hyperaldosteronism until this hospital episode. I've had 2 blood draws since hospital stay and my potassium has dropped down to 3.3 versus the 5.1 I had leaving the hospital. So, Internist increased Klor-Con to 2x day. Then when I had my first kidney dr. visit after hospital stay, doc rearranged my meds including taking me back down to 1 Klor-Con and adding yet another BP med. My BP had been staying about 141/82 to 86 and sometimes around 136/84 (home readings), but was up both to around 150/104 the two times I've seen the kidney doc since hospital stay. Here's the extensive meds I'm taking currently: Hydralazine – 50mg, 2 tablets 3x/day (total 150mg daily) Spironolactone - 50mg, 2 tablets/day (total 100 mg daily) Bystolic – 10mg, 2 tablets/day (total 20 mg daily) Klor-Con M20 - 2 tablets/day Sertraline HCL - 50 mg, 1 tablet/day (total 50 mg) Lisinopril – 20mg/day (total 20 mg daily) I also take a daily multi-vitamin and 1,000 mg of Vitamin C. I was EXTREMELY tired the first month out of the hospital - sleeping throughout the day. Much better now, but still tired. Any recommendations are more than welcome. RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of dugie1960 I'm new to this group. Does anyone know of a good PA doc in the Kansas City area. I've been diagnosed with PA-bilateral adrenal hyperplasia. My BP has been very high the last 5 years. Was recently hospitalized for extremely low potassium level (1.5). I'm on a lot of medication--too much as far as I'm concerned. Also, are there any alternative methods for healing this condition? Thanks for any information you can forward! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010  The loss of potassium and holding onto sodium... RE: PA's in Kansas City Then you may have primary aldosteronism, but there is no way he can tell if it is unilateral or bilateral without adrenal vein sampling. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Kathy Dugan Not familiar with all the acronyms, but no AVS if that means something to do with the vein. All I received were blood tests in the hospital. Doc said I have way over abundance of aldosterone in the blood. ----- Original Message ----- From: Valarie How were you diagnosed bilateral? Did you have A Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.