Re: Re: A newbee and looking for help- Bernetta

July 23, 2010

Hi, can you explain more? Do you mean in a Renin in a blood test of urine? I have had aldosterone lately Renin not is awhile but I had many urine test. Bernetta

-- Re: A newbee and looking for help- Bernetta

Need to compare aldosterone to renin to know what is going on.

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 23, 2010

Low Aldo makes u retain K not lose it. STiped sanded us Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Need to compare aldosterone to renin to know what is going on.

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

July 24, 2010

Hi, I sent a email last night with my blood work and my whole story. My aldo was

Here are my blood test results.

Aldosterone, 9(ng/dl)

Plasma Renin Activity 0.73(lg/mL/h)

Ferritin 35(10-232mg/ml)

Potassium 4.5

Thanks, Bernetta

-- Re: A newbee and looking for help- Bernetta

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 24, 2010

aldo in blood or urine pref best for testing. Renin in blood.See belowDr. Grim's Perfect

Primary Aldosteronism Blood and Urine Testing to diagnose PA in one day. 1. Eat a regular to

high salt diet for 2 weeks.2. No BP meds in last

4-12 weeks depending on meds.3. Collect 24 hr urine

for Na, K and creatinine and aldosterone. Do not lose a drop of this liquid gold. It is impossible to interpret the renin

and aldo without this.4. The morning you

finish the 24 hr urine have fasting blood drawn for renin, aldo and K using our

guidelines to get an accurate K.

Try to get this done about 4 hours after you have been out of bed.5. Send us the results

with the normal values for your lab.6. If you ever have a

salt (saline) infusion test for PA be certain to ask them to measure how much

you pee during the 4 hours of the infusion. If it is 1-1.5 liter of urine it

strongly suggests that you may have PA.

If more tha 1.5 L you almost certainly have PA.

Welcome1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this. I strongly recommend you get the book! One of the best sources for foods of low sodium content I recommend ricediet.com4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health.groups.yahoo.com/group/bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureRetired Faculty in Departments of Nephrology, Internal Medicine, Endocrinology, and Cardiology. Specializing in Difficult to Control HIgh Blood Pressure. Hi, can you explain more? Do you mean in a Renin in a blood test of urine? I have had aldosterone lately Renin not is awhile but I had many urine test. Bernetta -- Re: A newbee and looking for help- Bernetta Need to compare aldosterone to renin to know what is going on. >> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta> ------------------------------------

July 24, 2010

BTW licorice can cause severe HTN, low K and low renin AND low aldo.We need your numbers.CE Grim MDOn Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

How much trouble do they have getting blood on you?What meds were you on when these tests were doe?How much sodium were you eating when the tests were done?What part of your menstrual cycle were you in or are you on female hormones.CE Grim MDHi, I sent a email last night with my blood work and my whole story. My aldo was Here are my blood test results.Aldosterone, 9(ng/dl)Plasma Renin Activity 0.73(lg/mL/h)Ferritin 35(10-232mg/ml)Potassium 4.5Thanks, Bernetta -- Re: A newbee and looking for help- Bernetta Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this? >> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta> ------------------------------------

July 24, 2010

They have no trouble at all getting blood from me.

I was on HC 20mg., Cytomel 40mgs, Atenolol 25mg..1/4 pill, Xanax 1mg. 1/2 pill, Ambien,

B12 injections, Prometruim 100mg.

I was eating a little sea salt on my eggs and that was it.

I haven't had a period in 7yrs.

Did you get my email about my wholel story?

Thanks so much Bernetta Elliott

-- Re: A newbee and looking for help- Bernetta

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 24, 2010

What is HTN?

DGL (deglycyrrhizinated licorice) has had the glycyrrhizic acid removed, and therefore is considered safer for use. I thought DGL had all the real licorice removed from it. I am a homeopath and recommended it to many for stomach problems.

I was not taking it last yr. when all this started.

Thanks,Bernetta

-- Re: Re: A newbee and looking for help- Bernetta

BTW licorice can cause severe HTN, low K and low renin AND low aldo.

We need your numbers.

CE Grim MD

On Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

Yes I go it. HC may lower aldo, atentonlo will lower renin and aldo.What is the prometrium for? How old are you now.What has your TSH been running?They have no trouble at all getting blood from me.I was on HC 20mg., Cytomel 40mgs, Atenolol 25mg..1/4 pill, Xanax 1mg. 1/2 pill, Ambien,B12 injections, Prometruim 100mg.I was eating a little sea salt on my eggs and that was it.I haven't had a period in 7yrs.Did you get my email about my wholel story? Thanks so much Bernetta Elliott -- Re: A newbee and looking for help- Bernetta Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this? >> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta> ------------------------------------

July 24, 2010

What does DGL taste like? If licorice it may have some glyc left in it.My understanding is that it is the glycyrr acid that helps with GI problems. HTN is hypertensionWhat is HTN? DGL (deglycyrrhizinated licorice) has had the glycyrrhizic acid removed, and therefore is considered safer for use. I thought DGL had all the real licorice removed from it. I am a homeopath and recommended it to many for stomach problems. I was not taking it last yr. when all this started.Thanks,Bernetta -- Re: Re: A newbee and looking for help- Bernetta BTW licorice can cause severe HTN, low K and low renin AND low aldo.We need your numbers.CE Grim MDOn Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

My guess is you have an early stage of PA. Were you doing DGL when you had the renin and aldo measured? Read my evolution article if you have not.CE Grim MDWhat is HTN? DGL (deglycyrrhizinated licorice) has had the glycyrrhizic acid removed, and therefore is considered safer for use. I thought DGL had all the real licorice removed from it. I am a homeopath and recommended it to many for stomach problems. I was not taking it last yr. when all this started.Thanks,Bernetta -- Re: Re: A newbee and looking for help- Bernetta BTW licorice can cause severe HTN, low K and low renin AND low aldo.We need your numbers.CE Grim MDOn Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

Yes I was taking DGL some when these test were done. But was not when this problem started a year ago. And I had low aldo then and low potassium. I did read your article. Thanks, Bernetta

-- Re: Re: A newbee and looking for help- Bernetta

BTW licorice can cause severe HTN, low K and low renin AND low aldo.

We need your numbers.

CE Grim MD

On Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

A 1/4 of a 25mg pill of atenolol is enough to lower renin and aldo? Prometrium is progesterone. I don't take it now but was then. It was a very low dose. My TSH last time was

TSH 0.03. I only take T3. I only take 40mg. Of cytomel that is nothing for someone with no thyroid. Bernetta

-- Re: A newbee and looking for help- Bernetta

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 24, 2010

I'm not taking any herbs and was only taking some DGL at the time. Bernetta

-- Re: A newbee and looking for help- Bernetta

Need to list all herbs you take.

> >

> > Hi, I am new to the group but have been a long time going to doc after doc

> and including Shands hospital from Oct - April. I have a adrenal tumor and

> high blood pressure. I am up all night going to the bathroom, I have low

> potassium and take RX potassium. But my aldosterone is low. I have all the

> low potassium symptoms. If your aldosteron is low then it's not Conn's

> right? That is what I have gotten from reading all the post here. Is this

> correct? My doc has put me on Florinef and I can barely stand to take a 1/4

> of a pill they make me loose more potassium and feel really sick. He said he

> think I have a mineralcortico problem from low aldosteron making me loose

> potassium. Does that make since? Thanks, Bernetta

> >

>

------------------------------------

July 24, 2010

Your TSH SUGGESTS you may be getting too much thyroid exactly what was the thyroid tumor.? Some are associated with MEN Syndromes. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

A 1/4 of a 25mg pill of atenolol is enough to lower renin and aldo? Prometrium is progesterone. I don't take it now but was then. It was a very low dose. My TSH last time was

TSH 0.03. I only take T3. I only take 40mg. Of cytomel that is nothing for someone with no thyroid. Bernetta

-- Re: A newbee and looking for help- Bernetta

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 24, 2010

Your Aldo was not low that u gave us but need normals donut lab. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Yes I was taking DGL some when these test were done. But was not when this problem started a year ago. And I had low aldo then and low potassium. I did read your article. Thanks, Bernetta

-- Re: Re: A newbee and looking for help- Bernetta

BTW licorice can cause severe HTN, low K and low renin AND low aldo.

We need your numbers.

CE Grim MD

On Jul 23, 2010, at 7:12 PM, Francis Bill SUSPECTED PA wrote:

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?>> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4

of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta>

July 24, 2010

Depends on how big u r and what race u r. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

A 1/4 of a 25mg pill of atenolol is enough to lower renin and aldo? Prometrium is progesterone. I don't take it now but was then. It was a very low dose. My TSH last time was

TSH 0.03. I only take T3. I only take 40mg. Of cytomel that is nothing for someone with no thyroid. Bernetta

-- Re: A newbee and looking for help- Bernetta

Your symptoms don't seem to match 's disease. Yet you are being treated with Florinef A med that is used to treat 's. When you say aldosterone is low how low is this?

>

> Hi, I am new to the group but have been a long time going to doc after doc and including Shands hospital from Oct - April. I have a adrenal tumor and high blood pressure. I am up all night going to the bathroom, I have low potassium and take RX potassium. But my aldosterone is low. I have all the low potassium symptoms. If your aldosteron is low then it's not Conn's right? That is what I have gotten from reading all the post here. Is this correct? My doc has put me on Florinef and I can barely stand to take a 1/4 of a pill they make me loose more potassium and feel really sick. He said he think I have a mineralcortico problem from low aldosteron making me loose potassium. Does that make since? Thanks, Bernetta

>

------------------------------------

July 24, 2010

When the blood starts the remove the band. They tell you to make a fist always in the beginning and then to release.Bernetta

-- Re: A newbee and looking for help- Bernetta

Do they leave rubber band on during blood draw? do you ever have to make fist?